headpainmigraine

[headpainmigraine]

"Well, maybe you just have internalized ableism!" has started to become a very convenient thing for low-support disabled people to accuse high-support disable people of.

To break it down. Let's say Alice is a low-support disabled person. She has autism and ADHD, plus some comorbid gastrointestinal issues, and lacks fine motor control. Her activism focuses on combating infantilization, and proving that disabled people can be strong and capable and worthy.

And then there's Bob, who has high support needs. Bob is a full time wheelchair user who uses a hybrid manual/electric chair, needs an oxygen line, and has developed anxiety about leaving the house because his health could be seriously endangered if something goes wrong. Bob's not as involved in activism as Alice, but is more involved with the disabled community.

Now. Both of these people are shaped by their individual disabilities, right? And an abled onlooker would think, "Oh, Alice and Bob should be good friends!" But this isn't as easy as you'd think. And this is where the intra-community discourse comes in.

Alice is advocating that disabled people are strong and deserve a chance. But for Bob, the idea that he must be strong and inspirational is something that's been used to dehumanize him and disregard his boundaries. He's been pressured to just walk a few more steps, just push through, and while he's technically able to transfer himself independently, it's exhausting. What Bob wants isn't a chance to prove himself, but the grace to not need to prove himself.

So now, Alice is flustered and upset that her worldview has been disrupted. Bob, who was supposed to be a fellow disabled person and her ally, is disagreeing with her. From Alice's perspective, this sounds too much like what abled people have told her all her life, that she's incapable and little more than a child who can't be trusted with things like self-determination. This is when she pulls out her ace: internalized ableism. She says, "Bob has internalized ableism and is repeating the biases of abled people. He isn't one of us. He's not like me, so he has to be like them instead."

And now Bob is incredibly upset. Who the hell is Alice to say this, huh? Alice is telling him the same thing that abled people have said to him his entire life, and then she has the gall to say he's the one who doesn't belong? Well, she's less disabled than him, so maybe Alice is the one who doesn't belong in the disabled community.

The truth is, Alice and Bob are just very different people with different needs. Both of them fall under the incredibly vast umbrella of disability, but it doesn't guarantee that they can relate to each other in most aspects. Alice and Bob are representative of a common schism in disabled communities, simplified for ease of understanding.

Maybe Alice and Bob could have been friends. Maybe they could have bonded-- both of them have anxiety, after all! Alice's anxiety stems from the ADHD causing her to forget things, while Bob's is for medical reasons. Alice feels like she can't talk to people about her gastrointestinal issues because they're gross, while Bob feels the same way about his struggles with hydration versus lack of accessible bathrooms causing him to get bladder infections. But both of them assumed the worst of each other.

[headpainmigraine]

I've had a migraine for the last 12 years.

Poll I thought about and realized I didn't see anyone do in my orbit

Could be any severity and from any number of causes

[headpainmigraine]

What a migraine feels like.

But you could reach in there and rub ibuprofen gel right into it.

"Something's wrong with me. Would you mind taking a look?"

Uzumaki (2024) // Coming September 28 [x]

[headpainmigraine]

This is what some of my migraine hallucinations look like, only dancing.

Sarah Anne Johnson. Sunset # 2 (Bedazzled), 2018.

pigment print w/ holographic tape + adhesive

[headpainmigraine]

Why is there so much off-topic shit in the cripplepunk tags lately?

If your post isn't actually about cripplepunk,

if its just tangential because you happen to be physdis but the post has 0 to do with it,

Or because you're tagging it as part of a collective aesthetic/musical punk subculture,

Please don't tag it cripplepunk.

Using a tag that isn't relevant to the content of the post is spamming, and reportable.

And annoying.

[headpainmigraine]

Migraines

[headpainmigraine]

[headpainmigraine]

Using this as a map to find the fuckers that keep my autonomic nervous system from functioning properly so that I'll know who to punch when I shrink down in a little submarine to go on a paradoxical adventure in my own body.

biologists will be like this is a very simplified diagram of a mammalian cell

chemists will be like this is a molecule

[headpainmigraine]

Body temperature!

It's winter, why do I sleep with a fan on? Why do I wake up heatsick?

What say you fellow dysautonomitons?

[headpainmigraine]

"He had a spine injury, but he fought back", lol, what?

What do you mean he 'fought back'?

"Fully recovered, but the damage was still there", so in other words NOT Fully recovered.

Jokes aside, this is so sad. The man's internalised ableism was such a defeating force in his life that he thought a positive mental attitude cured his spine condition, and then ended up in chronic pain years later because he didn't do anything about it.

And then, while he was passing out and collapsing on a weak heart, he still punished himself by refusing to use an aid that wasn't here for people just like him

Pushing through the pain isn't noble when you have other options.

Imagine the stress on his family (his wife, I guess, since whoever this is seems to get off to inspo porn) wondering every time they go out and their husband is struggling if this'll be the final straw, if he's finally put too much stress on his body that wouldn't be there if he just used the mobility aid.

If I knew someone like this, I too wouldn't tell them shit about my amputation or accommodations.

The Abled's Guide to Being Disabled.

I've never seen such damaging ignorance in my life.

Comment:

Reply:

Hey able bodied people SHUT THE ACTUAL FUCK UP AND NEVER TYPE THIS SHIT TO A DISABLED PERSON

[headpainmigraine]

This supraorbital pain won't go away.

Everytime I rub my eye or get an itch above my eyebrow it's like taking a cattleprod to the face.

Electrified baseball bat

Clawhammer

I can't believe the human body can be in this much pain for this length of time and still be functional.

If I could I'd be screaming and screaming and screaming and screaming and

[headpainmigraine]

Just change track and become a GP, hating their client base is part of their job description, you'll be fine 👍

This is one of the funniest things I've found on tumblr and I've seen some shit

[headpainmigraine]

Okay, for real, I know I talk a lot of shit about Labour and the DWP, but when you get down to it, at the end of the day, they really are sacks of crap parading around as people.

Fully convinced the DWP is waiting for MAiD to be legalised before they start sending anymore award letters out saying 'Hey, we know you want money for extravagant things like living and we know that's hard, because we've made it so, and we know you must be suffering because you're a useless girl, but have you thought about killing yourself?

It's very cheap, I mean easy, and it'll lessen the your financial burden, I mean pain. So how 'bout it?'

[headpainmigraine]

Some good points here.

Also some bad ones, mostly in regards to cripplepunk.

I wouldn't encourage vulnerable minorities (eg, crips) to shoplift clothes, knowing how dangerous cops are to their demographic.

If you're disabled and can't make your own clothing, store bought is fine.

You can buy cheap clothing and still make an attempt to be ethical, eg, eBay.

Further to that, cripplepunk has no specific style (as compared to cyberpunk, punk rock, ska, etc)

You can wear pink dresses all day and listen to Taylor Swift and still be cripplepunk as long as youre physically disabled and agree with the tenets.

Battlejackets are unnecessary.

(I also worry about people with limited mobility putting Queer symbols on their backs, or the back of their wheelchairs.

The risk of being attacked from behind because of it and being unable to turn quickly or dodge or run is more dangerous for us.)

If you're bedbound and all you can do is a mail-in vote for the people who don't consider us people, it's enough.

Agreement with the tenets is all you need.

It's not a musical, aesthetic or fashion counter-culture.

Its punkness lies in the rejection of good cripple standards, not Docs, patched jeans, spikes, leather or The Specials.

Bring back posers as a term please I'm begging if ONE MORE GODDAMN 16 YEAR OLD ASKS WHERE I BOUGHT MY CLOTHES I'M GONNA LOSE. MY FUCKING. MIND.

I HAVEN'T PAID FOR SHIT SINCE 2020 BITCH THESE SPIKES ARE THE BROKEN OFF TINES OF A FORK THE THREAD IS DENTAL FLOSS FROM A PAIR OF JEANS I TOOK APART TO USE THE DENIM TO MAKE PATCHES YEAH NO SHIT I SMELL LIKE SILVER SPRAY PAINT. I'VE HAD THE SAME PAIR OF COMBAT BOOTS FOR SIX FUCKIN YEARS NOW. DO YOU KNOW HOW MANY LAYERS OF PAINT AND NAIL POLISH ARE ON THEM. MY WHEELCHAIR GLOVES ARE MORE THREAD THAN LEATHER ATP BUT WHO GIVES A FUCK. THEY'RE STILL FUNCTIONAL.

"but all I can afford is clothes from SheIn and Amazon and I wanna have the punk style"

BITCH STEAL THE CLOTHES. GO TO GOODWILL. YOU KNOW WHAT WE CALL HAVING THE "STYLE" IS BUT NOT THE MINDSET???

A FUCKING POSER

And no I'm not gatekeeping. Anyone anywhere can be punk. BUT BUYING A PRE-PATCHED DENIM JACKET ON AMAZON DOES NOT A PUNK MAKE. BURN YOUR OWN CD'S, PIRATE MOVIES, GO TO PROTESTS, MAKE POSITIVE CHANGE, FORM COMMUNITY IN SOLIDARITY AGAINST OPPRESSIVE SYSTEMS. KILL THE NAZIS INFECTING PUNK COMMUNITIES LIKE A ROTTING BRANCH GETS CUT FROM THE TREE

WHERE'S YOUR FUCKING RAGE??? WHERE'S YOUR FUCKING WEIRDNESS??? WHERE'S YOUR REFUSAL TO FIT INTO THE MAIN STREAM???? WHERE'S YOUR OBSESSION WITH A SKA PUNK BAND FROM THE EARLY 2000'S?!

I saw a TikTok of a person who said they were punk but then proceeded to go on a tirade about not liking the bus because gross homeless people ride the bus

HOW DOES THE BOOT TASTE MOTHERFUCKER

[headpainmigraine]

I wish there were mandatory lessons to learn sign language in schools so that we didn't need this.

"As a Deaf man, Adam Munder has long been advocating for communication rights in a world that chiefly caters to hearing people. 

The Intel software engineer and his wife — who is also Deaf — are often unable to use American Sign Language in daily interactions, instead defaulting to texting on a smartphone or passing a pen and paper back and forth with service workers, teachers, and lawyers. 

It can make simple tasks, like ordering coffee, more complicated than it should be. 

But there are life events that hold greater weight than a cup of coffee. 

Recently, Munder and his wife took their daughter in for a doctor’s appointment — and no interpreter was available. 

To their surprise, their doctor said: “It’s alright, we’ll just have your daughter interpret for you!” ...

That day at the doctor’s office came at the heels of a thousand frustrating interactions and miscommunications — and Munder is not isolated in his experience.

“Where I live in Arizona, there are more than 1.1 million individuals with a hearing loss,” Munder said, “and only about 400 licensed interpreters.”

In addition to being hard to find, interpreters are expensive. And texting and writing aren’t always practical options — they leave out the emotion, detail, and nuance of a spoken conversation. 

ASL is a rich, complex language with its own grammar and culture; a subtle change in speed, direction, facial expression, or gesture can completely change the meaning and tone of a sign. 

“Writing back and forth on paper and pen or using a smartphone to text is not equivalent to American Sign Language,” Munder emphasized. “The details and nuance that make us human are lost in both our personal and business conversations.”

His solution? An AI-powered platform called Omnibridge. 

“My team has established this bridge between the Deaf world and the hearing world, bringing these worlds together without forcing one to adapt to the other,” Munder said. 

Trained on thousands of signs, Omnibridge is engineered to transcribe spoken English and interpret sign language on screen in seconds...

“Our dream is that the technology will be available to everyone, everywhere,” Munder said. “I feel like three to four years from now, we're going to have an app on a phone. Our team has already started working on a cloud-based product, and we're hoping that will be an easy switch from cloud to mobile to an app.” ...

At its heart, Omnibridge is a testament to the positive capabilities of artificial intelligence. "

-via GoodGoodGood, October 25, 2024. More info below the cut!

To test an alpha version of his invention, Munder welcomed TED associate Hasiba Haq on stage. 

“I want to show you how this could have changed my interaction at the doctor appointment, had this been available,” Munder said. 

He went on to explain that the software would generate a bi-directional conversation, in which Munder’s signs would appear as blue text and spoken word would appear in gray. 

At first, there was a brief hiccup on the TED stage. Haq, who was standing in as the doctor’s office receptionist, spoke — but the screen remained blank. 

“I don’t believe this; this is the first time that AI has ever failed,” Munder joked, getting a big laugh from the crowd. “Thanks for your patience.”

After a quick reboot, they rolled with the punches and tried again.

Haq asked: “Hi, how’s it going?” 

Her words popped up in blue. 

Munder signed in reply: “I am good.” 

His response popped up in gray. 

Back and forth, they recreated the scene from the doctor’s office. But this time Munder retained his autonomy, and no one suggested a 7-year-old should play interpreter. 

Munder’s TED debut and tech demonstration didn’t happen overnight — the engineer has been working on Omnibridge for over a decade. 

“It takes a lot to build something like this,” Munder told Good Good Good in an exclusive interview, communicating with our team in ASL. “It couldn't just be one or two people. It takes a large team, a lot of resources, millions and millions of dollars to work on a project like this.” 

After five years of pitching and research, Intel handpicked Munder’s team for a specialty training program. It was through that backing that Omnibridge began to truly take shape...

“Our dream is that the technology will be available to everyone, everywhere,” Munder said. “I feel like three to four years from now, we're going to have an app on a phone. Our team has already started working on a cloud-based product, and we're hoping that will be an easy switch from cloud to mobile to an app.” 

In order to achieve that dream — of transposing their technology to a smartphone — Munder and his team have to play a bit of a waiting game. Today, their platform necessitates building the technology on a PC, with an AI engine. 

“A lot of things don't have those AI PC types of chips,” Munder explained. “But as the technology evolves, we expect that smartphones will start to include AI engines. They'll start to include the capability in processing within smartphones. It will take time for the technology to catch up to it, and it probably won't need the power that we're requiring right now on a PC.” 

At its heart, Omnibridge is a testament to the positive capabilities of artificial intelligence. 

But it is more than a transcription service — it allows people to have face-to-face conversations with each other. There’s a world of difference between passing around a phone or pen and paper and looking someone in the eyes when you speak to them. 

It also allows Deaf people to speak ASL directly, without doing the mental gymnastics of translating their words into English.

“For me, English is my second language,” Munder told Good Good Good. “So when I write in English, I have to think: How am I going to adjust the words? How am I going to write it just right so somebody can understand me? It takes me some time and effort, and it's hard for me to express myself actually in doing that. This technology allows someone to be able to express themselves in their native language.” 

Ultimately, Munder said that Omnibridge is about “bringing humanity back” to these conversations. 

“We’re changing the world through the power of AI, not just revolutionizing technology, but enhancing that human connection,” Munder said at the end of his TED Talk. 

“It’s two languages,” he concluded, “signed and spoken, in one seamless conversation.”"

-via GoodGoodGood, October 25, 2024

[headpainmigraine]

I don't feel very well

[headpainmigraine]

Actually, I think the atogepant DID make my migraines worse.

It could have been the weather, so I can't say for sure, but I had intensely awful headache pain for the last few days of the 3 months I took it, and awful supraorbital pain, which I'm still having now, on and off.

Either way, I failed it.

More migraine posting:

So I know gepants aren't supposed to cause rebound headaches the way triptans do. But I started taking every-other-day rimegepant, and it's like I get 24 hours of headachy-but-manageable (actually achieved some thesis writing this week!) followed by 24 hours of absolute-hell-on-earth.

Anyone else have similar experiences? And, if so, did it even out at some point?

Because right now it feels like I've made a deal with a devil, and I think I'd rather take the chronic daily misery over this.