headpainmigraine

[headpainmigraine]

They're too frightened to arm us.

I wanted to get a gun to hunt my own game but it turns out people on disability in the United States can’t have guns because we’re, according to the sites I looked at, “too likely to use them on [ourselves].”

Time to learn to bow hunt from a wheelchair I guess.

[headpainmigraine]

Okay, now it's also my shoulder, hip, knee, ankle, fingers, so I think this is a flare up.

Time for 23:05 bath.

[headpainmigraine]

RiB pAiN

Oooh, I'm your rib joints, I barely do anything but I'm still gonna hurt you, oooohh I'm so special and useful

[headpainmigraine]

The notes on this are a cesspit that thinks it's an idyllic lake.

If the group targeted by a word say its a hurtful slur, maybe don't argue with them on pedantry and semantics?

Maybe think about if your unaffected ass weighing in with 'well actuallys' and 'it's defined as' and 'but the origin of the word' are appropriate.

Maybe realise it's being used against us as a weapon now, so it's origins don't really matter as much as the fact that its become a slur?

Fucking hell; intersexism and ableism man. People really think they can argue it with us.

((Also, you can't reclaim a slur for someone else, nevermind an entire category of people that you're not a part of in the first fucking place!))

I am reminding you that h*rmaphrodite and variations thereof is a slur harmful to your intersex siblings. Stop using it.

[headpainmigraine]

People with chronic migraines (minimum 15 headache days a month, 8 of those with migraine symptoms, for over 3 months)

[headpainmigraine]

Had a weird aura last night.

Heard someone calling my name twice, and then I had a weird shimmer swooping under my eye over and over.

Migraines do weird things to your brain.

[headpainmigraine]

This one might kill me.

Sleep didn't work.

900mg aspirin didn't work.

Took an extra cocodamol, and if that doesn't work, my head might just crack open and the end of the world will shine out in bright and terrible glory.

So, like, sorry in advance

[headpainmigraine]

I've been wondering if my constant pain is related to my high blood pressure.

I've never been able to get enough anecdotal info to confirm it, but like... how can it not be?

I’m still tweaking it, but something the Visible app has hammered home these past few weeks is just how much energy my body expends existing.

Currently lying perfectly still and I’m in the ‘exertion zone’ because I’m in so much nerve pain it's making my heart rate elevate.

Being in pain is burning up my pace points. I’ve used two since I woke up this morning simply by being conscious.

Anyone who dismisses the effects of chronic pain on the body or tells you to exercise to push through it is formally invited to throw themselves into the sun.

[headpainmigraine]

https://www.instagram.com/p/DFaUhUGz5u7/?igsh=MXNwcmppb3Y5c3hyNw==

posted this on instagram today 🙇🏽 but it isn’t real until I post it on here

[headpainmigraine]

Eyelid twitch and nightmares every night makes it official, I am stuh-ressed.

[headpainmigraine]

Nope.

But I know some of the people following this blog do.

Do you have Ehlers-Danlos Syndrome (EDS)?

Ehlers-Danlos syndrome (EDS) is a group of genetic disorders that affect connective tissues, causing symptoms that range from mild to life-threatening.

[headpainmigraine]

Seconding anyone dealing with headache disorders checking out the Migraine World Summit - it's been so helpful for me over the last few years

If you can see this, this isn’t directed at you because I blocked the person, but oh boy, nothing quite like someone telling you to “try taking Tylenol AND ibuprofen” for your chronic migraines to turn me into a colossal bitch.

Like, I’m sorry. Here’s me been experimenting with anti-seizure medication and a whole bunch of other nasty shit so I don’t walk into oncoming traffic and you really think my ass who had 200+ migraines in 2023 and developed occipital neuralgia in 2024 on top of the trigeminal neuralgia I’ve already had for years because the nerves in my head won’t turn off hasn’t tried over the counter pain relief?

I should be allowed to start biting.

[headpainmigraine]

I posted something like this before

I cannot BELIEVE that it was only 80 years ago

and there are actually people across the world who

think it's been exagerrated

don't believe it ever happened

don't know that it happened?!

What the hell?

Something that gouged a wound into human history and it's already being forgotten and denied?

Nothing matters, does it.

All the stuff happening now, the rise of the Right Wing, Donald Trump in office, Elon Musk LARPing as a real human being who's also a Nazi - if something like the Holocaust can be 'debated' right now, does anything even matter?

It feels like a historical, life-defining moment to us, but-

Are people going to give a fuck about you 80 years from now?

Will they even believe you existed?

[headpainmigraine]

OTC pain meds are a help especially when they're limited sale per person.

In the UK, meds off the shelf can be helpful too because they're 2 maximum per person - 1 NSAID (ibuprofen or aspirin) and 1 paracetamol product is good because they can be taken together, or staggered 2 hours apart for a steadier stream of meds.

If you feel the need to gift your chronically ill friends things for whatever reason, here is my "starter pack/gift guide"

A pack of their favorite gateorade flavor, great for hydration, tastes good, easy and quick. Body armor, prime, etc are also good options if they dont like gateorade

Some of their favorite powder electrolytes. Liquid IV and drip drop are some good options. There are also the generic brand electrolyte packets at Walmart, I think they taste good. There is also bouy if they like the squeezy ones, i dont but if they do bouy has an unflavored one as well as like 30 different options

Kt tape. Regular, extreme strength, cooling, heating, literally any type of kt tape. They can probably find a use for it. Most ((not all but most)) chronically ill people, at least the ones I know, suffer from some type of joint issues and kt tape is a life saver. On this vein, I would stray away from braces unless you know what joints/muscles specifically give them the most trouble, kt tape is a bit more versatile

Compression socks, there are cute ones on Amazon, Walmart, many small business sell some nice ones. I would go for a higher compression, or at least upwards of 15 mmhg, for the best chance of them being worth it

Temperature devices, im putting these in the same bullet point bc it felt unnecessary to put ice packs and heating pads in different points. Ice packs are really nice for swelling and heating pads are really good for pain. Both are a good option ALWAYS. I will say, the reusable ice packs give you a better bang for your buck than the single use crack and use ones.

Their comfort foods. A bit of an ed tw for this bullet point, but i have noticed quite a few of my fellow chronic illness sufferers deal with an ed, and while it isnt all of us, those who do probably find it a bit extra hard to eat on rough days. So comfort foods/snacks

If they have to take their blood sugar for things, lancets. They usually come in like 100 packs for really cheap, like under 5 bucks cheap. Just check to see the brand of their lancing pen before you buy them tho

Batteries, it sounds weird but stay with me. Do you know how many medical devices I have that require batteries?? MANY. My hr monitor, my glucose monitor, my blood pressure monitor- like bro, a pack of triple a batteries will mean more than you think trust

A weighted blanket/stuffie. Stuffies are cute and easy to carry around, blankets are nice when you need some extra weight

If they have a service animal, an accessory for their vest/leash/collar could be nice

One of those reacher things that grab things for you. I want one of those. When your stuck in bed, cant move, ill, in pain and suddenly drop your mother fucking phone cord off the side of your bed and now you have to MOVE and grab it- 10/10 worst experience. One of those grabby things would be amazing

A migraine cap. I got mine from target but I have seen them at Walmart, on Amazon, weirdly one on depop, some on shein, some at places like tj maxx, etc. Migraine caps are especially wonderful for those days where your shut in your room, blinds drawn, fans off, three ice packs on you in constant rotation, barely mobile and for some gods forsaken reason your blinds wont close all the way so the light keeps catching your eyes and making you want to lose your ever loving shit bc you cant move to fuck with them. And more normal experiences Im sure lmao

If your short on funds, just being there with them, listening to them, watching a movie, body doubling so they can get some help with chores, running errands with them, literally anything so they remember their a human person with human feelings that you love and care abt. Who knows, it might help you feel better too

More than anything, listening to what they want and need is a bigger gift than most think

[headpainmigraine]

Distraction from pain is a legitimate pain management tool, when it works.

Some interesting reading here.

I probably wouldn't call it dissociating though.

Anyone else with chronic pain ever get really absorbed in a project and dissociate from your body while you're working but then you finish and you come back to your body and you're just like AAAAAAAHHH! WHAT'S WRONG?? oh yeah. The horrors. Never mind

[headpainmigraine]

never watched the good doctor n never plan to. so maybe not good person talk about this. but never plan to watch it because in fact kinda hate it (mainly because once someone be ableist about high support needs autism n excuse it using shaun & say how they know what HSN is because they call shaun is, n quoting, “very high support needs” n he very. much. not. but anyway) — so this also give weight to what am going say

do see how people make fun of shaun (main character). like “i am a surgeon/sturgeon” memes n so much more. my favorite show house md & keep especially see meme compare house with sean autism to make fun of shaun—make fun of irony of “shaun be explicit autistic but bad autism representation & house not supposed to be / not explicit (depend on interpretation) autistic but somehow way better autism rep than shaun” situation. like:

[id: two meme compare sean with house about autism.

1: left side is shaun screaming/meltdown in “i am surgeon” scene with “bad autism rep” write on top. right side house in prison suit with “good autism rep” write on top.

2: twitter screenshot from rooster @/ househiscane. left is picture of shaun n have “autistic doctor” non capitalized on top. right is picture of house with stereo n “AUTISTIC doctor” on top, with “AUTISTIC” in all caps. at time of screenshot, have 648k views.

end id]

n again, never watched the good doctor. so maybe in show there truly part where not great n ableist n problematic autism rep. BUT.

from all these memes. n all these people justify how they hate sean how them make fun of shaun is okay. don’t see evidence for how shaun & show represent autism in some truly problematic way.

instead. see visibly autistic person. see people describe trait of visibly autistic person. see people make fun of visibly autistic traits. see a visibly autistic and low support needs person.

see same rhetoric used by non autistic AND AUTISTIC people to make fun of n be ableist to me, visible autistic (high support needs) person. that am embarrassing. that am stereotype. that “no autistic person act like this.” that “you make me embarrassed be autistic.” that am make autistic people look bad. the r word.

every single one of those thing, have heard it also be use call shaun.

versus. house, he’s asshole, he’s visibly asshole, n because of that he’s dynamic he’s well rounded. but he’s not visibly autistic.

n so suspect in big part, or even, entire unspoken point of these comparison, or meme against shaun, is because. house is not visibly autistic so relatable n thus good to audience of mainly high masking autustics. he the real autism rep. he the good autism rep. he the ACTUALLY autistic rep. shaun is visibly autistic n thus not.

from crowd that champion unmasking! be free! be yourself! but say nothing, or in this case nothing good, about people who cannot mask or be put in genuine life danger if choose unmask. from crowd that say autistic meltdowns not tantrum! normalize autistic meltdown! it’s okay! don’t record or make fun of or comment on someone’s worst moments! but make fun of visibly autistic person meltdown in public.

although should not be surprised. should not be! this same crowd that not know what visibly autistic actually is. or even not believe it even exist. same crowd that think unmasking will make them visibly autistic same way it make me visibly autistic. same crowd that think it mean just some occasional happy hand flapping. same crowd that call themselves visibly autistic because they do those occasional hand flapping n in next sentence complain about be told “but you don’t look autistic.” same crowd that say autism not have look. same crowd that permanently group autism into invisibly disability.

same crowd that cannot fathom autistic person different from them.

same crowd that bully n exclude n speak over n be ableist towards me.

like it the autism show to acceptable make fun of, it the autistic character to acceptable make fun of. it the show n character where u can let out all your offensive edgy ableist anti-autistic feelings, go mask off about it. it acceptable. everyone do it. even autistic people do it. especially autistic people do it. especially high masking autistic do it. autistic people who do it n justify it okay because they autistic n that grant them free pass.

criticize how any show represent autism badly problematically. that okay! that acceptable! that great! not telling you you can’t. — don’t doubt in the good doctor there not parts that make you wince in bad way because it speak terribly for autism.

but if all your “reasoning” for why that autism rep is. traits of visibly autistic person. or, (not applicable in this case), traits of high support needs & traits of level 2/3 autism. it’s not criticism you just ableist.

you all say visibly autistic people get enough rep already that it’s time for low support needs invisibly autistic high masking autistic women (& white—but shhh that part shouldn’t be say out loud) be in center of representation.

you all can’t even handle a visibly autistic character that’s low support needs and CISGENDER WHITE MAN.

once again. am hate this fucking show. n am here defending it.

is it genuinely bad rep or is character just visibly autistic.

[headpainmigraine]

It has directly made me feel MORE shit about the times I have to stay in bed.

Non-consensual bed rotting.

Used to be I could imagine I was a dormouse getting snuggled up in the dead of winter, but now 'bEdRoTtInG'

I don't hate abled people, but I hate abled people, you know.

Any other disabled/very mentally ill folks get tired of seeing "bed rotting" becoming a catchy or even positive phrase?