#arthrogryposis parent

[parsonsmedia]

Always Answering the Hardest Question

Throughout this journey, I’ve learned many things. How to change diapers while working around various casts, the benefits of owning a Giraffe Bottle, and new terms such as torticollis, nemaline myopathy, and apraxia. I’ve also learned that people will ask awkward questions when faced with awkward situations. I fully admit that asking how our son is doing, even now, can be an awkward question…

[allkindsofadvocacy]

Find Me Friday: Erik & Liam!

Logo that says Reece’s Rainbow Special Needs Adoption Support in blue, below a blue & yellow paint stroke rainbow graphic with a yellow Ukrainian trident symbol on the right half. In this series, each Friday, I want to share a different child or group of children with you who are available for adoption and listed through the adoption advocacy website Reece’s Rainbow. All the kids who are listed…

[kidsorthopedic]

Congenital Clubfoot: Symptoms And Causes

Clubfoot is one of the most common birth defects of the foot. Out of one thousand new-born babies, one to two have this deformity. This deformity affects a new-born’s muscles, tendons, and blood vessels. It is caused when the tissues that connect the muscles to the bone are not the usual size. In congenital clubfoot, one or both feet are rotated downward and inward. It is also known as congenital talipes equinovarus in medical terms, and the child born with this deformity can’t place their foot flat on the ground for walking. Clubfoot is not painful, but if this congenital disease is not treated on time, the foot will remain deformed forever. Mostly, clubfoot can be treated without surgery, but in severe cases, follow-up surgery is required later on.

 Types of Clubfoot

Clubfoot can be divided into two major categories non-isolated clubfoot and Isolated (idiopathic) clubfoot. Isolated clubfoot is a common musculoskeletal birth defect. It generally occurs without any other medical problems. On the other hand, non-isolated clubfoot happens along with other serious medical problems, including arthrogryposis and spina bifida. Arthrogryposis is a joint problem, and spina bifida is a neural tube disorder. If anyone in your family has clubfoot, your baby will be at higher risk of congenital clubfoot. Also, boys are at a greater risk of developing clubfoot than girls. Babies also have a higher chance of developing clubfoot if they have another birth defect known as spina bifida. Women who had oligohydramnios during pregnancy are also at a higher risk of having a clubfoot baby.

 Symptoms of Congenital Clubfoot

If your new-born baby has clubfoot, their foot will be twisted inward and downward. The affected foot or leg will also be slightly shorter. In some cases, the foot is so severely turned that it seems as if it is upside down. Clubfoot is a serious health concern that will not improve on its own without any treatment. A baby with untreated clubfoot will use the outer edge of their foot to walk, leading to painful calluses. But with proper treatment, clubfoot can be treated, and your baby can lead a normal life.

 How can clubfoot affect your baby

Clubfoot will not affect your baby until your child starts to walk. Untreated club food can limit your baby’s daily activities. They might have difficulty walking, standing, and wearing their shoes. A child with clubfoot may walk on the top and side of their feet. Clubfoot can also lead to calluses which is a thick layer of skin that usually develops on the foot’s sole. It can also lead to arthritis, a disease that causes stiffness and painful inflammation of the joints.

 Causes of clubfoot

The definite cause of clubfoot has still not been identified by the researchers. But according to a popular theory, clubfoot is caused due to environmental and genetic factors. Families with a history of clubfeet are at higher risk of this disease. If a pregnant woman has one child with clubfoot, their chance of having a second child with this deformity is 1 in 35. In some cases, clubfoot is also linked to spina bifida, a congenital deformity that mostly occurs when the spinal cord and spine have not formed properly. Sometimes it can be linked to a developmental dysplasia of the hip or a developmental hip condition called hip dysplasia. If one of the parents has clubfoot, there is a 1 in 30 chance that your baby will have it. In 20016, research was conducted in which it was shown for the first time that a gene variation that processes folate in the body might be the cause of clubfoot.

[atlanticcanada]

More N.L. parents speaking out following 'discriminatory' daycare dismissals for kids with exceptionalities

Lindsay Chafe and Selian Dixon both have daughters with arthrogryposis, and say they've been battling discrimination when it comes to finding services like childcare, after school programs and summer camps. 

from CBC | Newfoundland and Labrador News https://ift.tt/2f4oGwL

[geekasms]

Blogging with More Honesty

Blogging with More Honesty

Our latest visit to Shriners Children’s in Greenville, SC was last week. As I always do, I wrote my blog post covering the visit over on The Greene Affect. Since the beginning, I’ve tried to be uplifting and playful with these posts. I entitle the entire series Greene does Greenville, which is followed by a subtitle. Last year I tried to maintain a feel of movie titles and movie sequels. So far…

[ladysquigglebones]

HELP A MOTHER IN THE PHILIPPINES SAVE HER DISABLED INFANT SON!

Update 2/22: PayPal has blocked Jing. She had nearly 13,000 pesos in donations in her account which will not be accessible to her for 180 days. Please donate to her AirFunding to help her with Kyle. He has improved and was able to come off the vent, but is still in the hospital. This fundraiser has helped so much, but with almost all of the money that hadn’t been spent on hold, Kyle is in peril.

Update 2/17: Jing messaged me on Facebook this morning and let me know Kyle was able to undergo a CT scan thanks to the donations generated from this post! This wouldn’t have been possible without your support. So far we have raised 6,208 Philippine pesos for Kyle. Keep reblogging and donating when you can, please. Every little bit helps.

Jing Lee’s 1 and a half month old son, Kyle, was born with Arthrogryposis Multiplex Congenita, a disability which involves joint contractures. Kyle recently got sick with severe pneumonia and had to go to the hospital. He was put in intensive care and intubated. Now, Jing has exhausted her savings and is out of money to pay for Kyle’s life-saving medications, including antibiotics. She has looked to disability organizations for help but the process of securing funding will take too long to help her and her baby. The medicine costs about 10 - 15,000 Philippine pesos a day, which is 208-312 United States Dollars.

Here is Kyle and Jing before he became ill.

[Image Description: A young woman and her baby smile at the camera while they take a selfie together.]

Here is Kyle in the hospital. (Trigger Warning: Blood, Medical Setting, intubation)

[Image Description: A baby in a hospital bed attached to various medical devices, including an IV and breathing tube.]

I met Jing through a Facebook group for Arthrogryposis, my and Kyle’s disability. I was advertising for my own small advocacy group on there, so she requested to join mine looking for support. My group is mostly poor college kids, so I knew we wouldn’t be much help. Instead I made this post on tumblr hoping she could get donations. I’ve been talking with her for several days now, and she’s a wonderful person. She and I are working so hard to get the word out about Kyle, and I beg you to help in any way you can.

If you have questions about the legitimacy of this post, please feel free to comment or message me directly. I can post screenshots of my conversations with Jing or provide whatever proof you need to donate. This is too important to let skepticism deter people from contributing!

🛑Do Not Scroll Past This Without At Least Reblogging!🛑

To help save Kyle, donate to Jing Lee’s AirFunding:

AirFunding: https://www.airfunding.net/s/74149771-6e81-4e0a-8d6b-06b85f802155

[positiveaboutdisability]

Raissa Rocha Machado is an amazing, 25 year old track and field athlete from Salvador, the capital of the Brazilian state of Bahia.

Raissa has been a wheelchair user for all her life because of Arthrogryposis Multiplex Congenita(AMC). This is a congenital condition which causes joint contractures, stiffness and muscle weakness in some or all of one’s limbs. Fortunately, only Raissa’s lower limbs were affected, albeit in a pretty serious manner. She has never been able to use her legs in any way and also has some slight malformations in both her feet.

In her early childhood, Raissa didn’t accept herself because of her condition and felt excluded from her classmates.

When Raissa was 11 years old, her mother and her teacher encouraged her to try out gymnastics and wheelchair dancing. At first, this was quite a challenge for her, but as time grew on, she started to like it more and more.

At the age of 13, Raissa started to practice athletics. This proved to be exactly what she wanted with her life. She even turned out to have a huge talent, especially for the javelin throw. Furthermore, her parents, teachers and classmates did a tremendous job in supporting her! She started to compete more and more in some smaller regional tournaments and at age 15, she played her first major tournament; the Brazilian Championships in São Paulo.

Raissa has booked some major successes in the previous years. In 2015, she won a bronze medal in the Parapan-American Games in Toronto. In 2016, she competed in the Paralympic Games in Rio de Janeiro, and in 2019, she won the gold medal at the Parapan-American Games in Lima! She was also runner-up in the 2015 World Athletics Championship in Doha.

Now, Raissa has been selected to represent her country at the 2020 Paralympic Games in Tokyo, which will start in just a few weeks. Good luck Raissa!

If you’d like, you can visit Raissa on Instagram or you can check out her Facebook page by clicking the link down below!

[harlemcries]

I want a president who has body dysmorphia. A president who listens to the concerns of the community and creates a letter-writing branch directly from prison systems to the wh*te house. I want a president who looks like they haven’t slept, and hasn’t. Because they can’t. But they need to, so they try melatonin. I want a president with befitting self efficacy; someone who has seen days which humble them boneless, and days which remind oneself they are special because they can support life in becoming safer and more livable. I want a president who explains themselves slowly on public television and without a consultation of corporate schmoozes. I want a deaf president who can’t afford a hearing aid. I want president who has an OnlyFans because they can’t claim disability. I want a president who doesn’t “perform” an impression of Serge Kovaleski, who suffers from a congenital joint condition, at a South Carolina rally. I want a president with arthrogryposis who reports on hypocrisy. I want a president who doesn’t proclaim the 26 of July, a Sunday, as a day which should be “celebrated” for its accomplishment of the now 30-year-anniversary of the Americans with Disabilities Act in 2020 while mocking a reporter for a disability in 2015. I want a president who doesn’t outlive the cat after having reason to be impeached over nine times in the first term. I want a president who doesn’t coif their hair and doesn’t rejoice in reigning white supremacists in Charlottesville. I want a president whose father died in a car accident with a drunk driver. I want a president who transitioned and refuses their deadname. I want a president who prefers ballet flats but wears heels to appear taller. I want a president who regards and speaks to the dead. I want a president who regards the living and speaks to the living. I want a president who tells the truth before Anonymous has to. I want a president who has been sent to live in a half-way house by older parents who can’t watch them hurt themselves anymore. I want a president with a sobriety chip. I want a president with a trans daughter who they consult about matters of equality and equity for the LGBTq+ community before starting a national fund for parents of youth who can’t afford hormone therapy. I want a president with golds in. I want a president who goes in for a CAT-scan and throws up on the way from nerves. I want a president with a poetry book dedicated to their single mother. I want a president with an ovarian cyst. I want a president with a cancerous mole. I want a president who needs five dollars for a sandwich and a tall boy. I want a president who doesn’t like to receive compliments until they know they are deserved. I want a president who thinks they are gay and wants to commit suicide. I want a president who cooks for their grandmother’s friends. I want a president who personally documents immigration and hands people their identification the same week. I want a president who signs petitions for clean water and enjoys sharing water with other countries in big bath-like vats sent overseas, lemons on the side. I want a president who knows what reparations actually mean and offers ongoing support for the fight towards fundamental rights to land endowed to the indigenous. I want a president who has been Baker Acted over 20 times between 16 and 18 years old in West Palm Beach. I want a president who can’t afford coffee every day. I want a president who didn’t have sex with underage girls only to threaten their lives and their family lives when they came forward against Trump and Epstein during the 1994-1995 school year. I want a president who sends reading materials to public schools and doesn’t get a thank you note from every student. I want a president who asks for divine guidance. I want a president who misses their period from a Plan B. I want a president who does not excuse racism as a “freedom of speech.” I want a president who enjoys being president because they like to know the country they love is also part of a world they love, and who knows they can effectively love the country and world concurrently, without jeopardizing violent bias and ethnocentrism. I want a president who wants to get signed to a record label so they can make it out of their situation and bring others up with them. I want a president who doesn’t know how to calculate military time without using subtraction. I want a president with a felony they didn’t commit. I want a president who listens to the abused child when they first bravely out their abuser. I want a president who doesn’t have access to necessary insulin. I want a president who was amputated after several months of living out of home with an infection to the right leg. I want a president who can’t move their tongue quickly enough to manipulate with fast speech. I want a president who pegs their femme girlfriend. I want a president whose son is dying of AIDS and can’t call them enough because of conflicting work hours. I want a president who can’t call their son during work because they can’t cry in their cubicle every day. I want a president who protests and loots a Target. I want a president who is consensually unhinged in gay night clubs every Friday. I want a president who buys a toy for the family in front of them in line during a non-holiday month and secretly also pays for their baby formula. I want a president who has been tased by police for simply being Black in the Lower East side. I want a president who meditates to connect with their ancestors. I want a president who can cook enough with what they have. I want an intersex president with a preference for it/its pronouns. I want a president with an addiction to cigarettes because they were introduced at a young age. I want a president with acrylic nails. I want a president who forgot their umbrella but still prays for rain when there’s been a drought. I want a president who doesn’t know what to say all the time, and so admits it. I want a president who miscarried and was left by their partner. I want a president who addresses triggering events with sensitivity and vulnerability. I want a president who has suffered sexual trauma and gets flashbacks during their senior year. I want a president who knows it wasn’t their fault. I want a president who condemns slavery and doesn’t ignore the prison pipeline. I want a president who ate ramen noodles for a week and started getting headaches. I want a president who offers their coats to donate when they gain weight. I want a president who offers their coats to donate when they lose weight. I want a president with indelible frown lines from smiling. I want a president who doesn’t make uncomfortable comments about grabbing “‘em” by the pussy. I want a president who asks for consent. I want a president who cares if I survive an abortion. I want a president who asks me how my day was. I want a president who cares if I ate today. I want a president who doesn’t lie to me about how long I have to live. I want a president who knows the world is heating. I want a president who doesn’t send airstrikes to Somalia, Iraq, Mogadishu, Helmand and kill civilians. I want a president who urges people to vote with their hearts. I want a president who doesn’t intentionally end USPS. I want a president who wears a mask when there’s a global pandemic. I want a president who holds themselves accountable with transparency. I want a president who shops local. I want a president who petitions against female genital mutilation. I want a president who works full-time as a waitress to pay their own tuition. I want a president who can’t be it all and apologizes when they can’t be. I want a president with a tattoo of Breonna Taylor’s name. I want a president who calls home to say they miss you. I want a president with a flat tire. I want a president who funds the art program at my kid’s public school. I want a president who can fit everything they own in a backpack. I want a president who can tell me which bus to take. I want a president who dances poorly and sneezes loudly. I want a president that says “bless you.”

And another poem, titled “us, women,”

 by: also yours truly 

[drmichaelvohrer]

Clubfoot And its Treatment

Questions and Answers about Clubfoot and its treatment….

Club foot is common, affecting around 150,000 children worldwide every year – but it can be treated.

What is a club foot? Club foot is a congenital abnormality of the foot with a combination of deformities like equinus and varus, adduction and cavus. There are lots of different types of club feet related to various medical problems. Club feet are also seen in neurologic or in some musculoskeletal disorders, e.g. cerebral palsy, spina bifida, arthrogryposis multiplex congenital and others.

Is it common among newborn in the UAE? The most common club foot is the idiopathic club foot which has an incidence of about one to three per 1,000 births. More girls than boys are born with club feet and in about 25 to 50 percent of affected children the club feet are bilateral.

What is the reason for a clubfoot? Genetic factors and environmental influences during pregnancy might play a role in the development of congenital club foot. There is not a single gene which is responsible for the development of club feet but several genes. Families with a history of club feet have a higher risk to have children with club feet, than families without any history.

The risk is particularly high if both the parents have club feet. These club feet are generally more severe than the sporadic idiopathic club feet.

Would a parent see it straight away? Usually, most parents can see the deformity directly after birth as the feet are positioned inward, rotated and plantar flexed, and the mobility of the foot is restricted.

If parents are worried about the foot alignment after birth it is recommended to see a paediatric orthopaedic doctor to evaluate the deformity at the same time a general orthopaedic check-up can be done. Nurses and doctors are trained to see deformities and will guide the families to a paediatric orthopaedic doctor for evaluation.

Generally it is always recommended to do a hip screening (with ultrasound) at the age of four to six weeks to rule out other musculoskeletal problems like developmental dysplasia of the hip. In case of a clubfoot deformity this hip screening should be done before starting to treat the foot.

Can the clubfoot deformity be cured? A club foot can be treated and cured by somebody who is experienced in musculoskeletal problems. The golden standard in club foot treatment is Ponseti Treatment. This method is a non-surgical treatment for correcting club foot. It involves three phases: four to eight weeks of weekly casting, a tenotomy (cutting of the Achilles tendon), which is performed in the clinic, and thereafter cast treatment followed by special shoes connected by a bar.

What is involved in curing it? Is the procedure painful for the baby? The initial casting procedure is not at all painful for the child. After the initial castings the child undergoes a minor office procedure (tenotomy) done with local anaesthesia. Then a final cast is applied for three weeks. Thus, a baby who is treated from birth will have completed all casting by the age of three months.

When the last cast is removed after the tenotomy, the shoes and bar are applied. The child wears them day and night for four months. After the fourth month they switch to a “night time and nap time only” protocol and wear the shoes and bar only at night and nap time 14-16 hours per day until the age of four.

CONCLUSION: The Ponseti treatment is not painful and will be done with gentle manipulation by a specially trained pediatric orthopaedic surgeon. Usually outcomes in Ponseti clubfoot treatment are excellent if done properly by doctor and the affected family.

[mcatmemoranda]

Earlier, I answered a question about gastroschisis and omphalocele and it mentioned that omphalocele is found in trisomies such as trisomy 18 (Edwards syndrome) and trisomy 13 (Palau syndrome). I always forget these genetic syndromes, so I’m reviewing them now.

From Wikipedia:

Edwards syndrome, also known as trisomy 18, is a genetic disorder caused by the presence of a third copy of all or part of chromosome 18. Many parts of the body are affected. Babies are often born small and have heart defects. Other features include a small head, small jaw, clenched fists with overlapping fingers, and severe intellectual disability.

Most cases of Edwards syndrome occur due to problems during the formation of the reproductive cells or during early development. The rate of disease increases with the mother's age. Rarely, cases may be inherited from a person's parents. Occasionally, not all cells have the extra chromosome, known as mosaic trisomy, and symptoms in these cases may be less severe. An ultrasound during pregnancy can increase suspicion for the condition, which can be confirmed by amniocentesis.

Treatment is supportive. After having one child with the condition, the risk of having a second is typically around one percent. It is the second-most common condition due to a third chromosome at birth, after Down syndrome.

Edwards syndrome occurs in around 1 in 5,000 live births. Some studies suggest that more babies that survive to birth are female. Many of those affected die before birth. Survival beyond a year of life is around 5–10%. It is named after English geneticist John Hilton Edwards, who first described the syndrome in 1960.

Children born with Edwards syndrome may have some or all of these characteristics: kidney malformations, structural heart defects at birth (i.e., ventricular septal defect, atrial septal defect, patent ductus arteriosus), intestines protruding outside the body (omphalocele), esophageal atresia, intellectual disability, developmental delays, growth deficiency, feeding difficulties, breathing difficulties, and arthrogryposis (a muscle disorder that causes multiple joint contractures at birth).

Some physical malformations associated with Edwards syndrome include small head (microcephaly) accompanied by a prominent back portion of the head (occiput), low-set, malformed ears, abnormally small jaw (micrognathia), cleft lip/cleft palate, upturned nose, narrow eyelid openings (blepharophimosis), widely spaced eyes (ocular hypertelorism), drooping of the upper eyelids (ptosis), a short breast bone, clenched hands, choroid plexus cysts, underdeveloped thumbs and/or nails, absent radius, webbing of the second and third toes, clubfoot or rocker bottom feet, and in males, undescended testicles.

In utero, the most common characteristic is cardiac anomalies, followed by central nervous system anomalies such as head shape abnormalities. The most common intracranial anomaly is the presence of choroid plexus cysts, which are pockets of fluid on the brain. These are not problematic in themselves, but their presence may be a marker for trisomy 18. Sometimes, excess amniotic fluid or polyhydramnios is exhibited. Although uncommon in the syndrome, Edwards syndrome causes a large portion of prenatal cases of Dandy–Walker malformation.

Trisomy 18 (47,XX,+18) is caused by a meiotic nondisjunction event. With nondisjunction, a gamete (i.e., a sperm or egg cell) is produced with an extra copy of chromosome 18; the gamete thus has 24 chromosomes. When combined with a normal gamete from the other parent, the embryo has 47 chromosomes, with three copies of chromosome 18.

Ultrasound can increase suspicion for the condition, which can be confirmed by amniocentesis.

Levels of PAPP-A, AFP, uE3, free β-hCG, all of which are generally decreased during pregnancy.

Patau syndrome is a syndrome caused by a chromosomal abnormality, in which some or all of the cells of the body contain extra genetic material from chromosome 13. The extra genetic material disrupts normal development, causing multiple and complex organ defects.

This can occur either because each cell contains a full extra copy of chromosome 13 (a disorder known as trisomy 13 or trisomy D or T13), or because each cell contains an extra partial copy of the chromosome or because there are two different lines of cells - one healthy with the correct number of chromosomes 13 and one that contains an extra copy of the chromosome- mosaic Patau syndrome. Full trisomy 13 is caused by nondisjunction of chromosomes during meiosis (the mosaic form is caused by nondisjunction during mitosis).

Like all nondisjunction conditions (such as Down syndrome and Edwards syndrome), the risk of this syndrome in the offspring increases with maternal age at pregnancy, with about 31 years being the average. Patau syndrome affects somewhere between 1 in 10,000 and 1 in 21,700 live births.

Of those fetuses that do survive to gestation and subsequent birth, common abnormalities may include:

Nervous system:

Intellectual disability and motor disorder

Microcephaly

Holoprosencephaly (failure of the forebrain to divide properly).

Structural eye defects, including microphthalmia, Peters' anomaly, cataract, iris or fundus (coloboma), retinal dysplasia or retinal detachment, sensory nystagmus, cortical visual loss, and optic nerve hypoplasia

Meningomyelocele (a spinal defect)

Musculoskeletal and cutaneous

Polydactyly (extra digits)

Cyclopia

Proboscis

Congenital trigger digits

Low-set ears

Prominent heel

Deformed feet known as rocker-bottom feet

Omphalocele (abdominal defect)

Abnormal palm pattern

Overlapping of fingers over thumb

Cutis aplasia (missing portion of the skin/hair)

Cleft palate

Urogenital:

Abnormal genitalia

Kidney defects

Other:

Heart defects (ventricular septal defect) (Patent Ductus Arteriosus)

Dextrocardia

Single umbilical artery

Diagnosis is usually based on clinical findings, although fetal chromosome testing will show trisomy 13. While many of the physical findings are similar to Edwards syndrome there are a few unique traits, such as polydactyly [an extra digit]. However, unlike Edwards syndrome and Down syndrome, the quad screen does not provide a reliable means of screening for this disorder. This is due to the variability of the results seen in fetuses with Patau.

Approximately 90% of infants with Patau syndrome die within the first year of life. Those children who do survive past 1 year of life are typically severely disabled with intellectual disability, seizures, and psychomotor issues.

[parsonsmedia]

Reflecting Back on Shariners Children's 58-Mile Challenge

If you had told me on February 1st that not only would I complete a 58-mile challenge, but that I would double the number of miles and record just over 117 miles by February 29th, I would have genuinely bellied-laughed at you. Yet, when the clock struck midnight on March 1st, that’s what I had accomplished. Between the treadmill, elliptical, and a lot of stationary bike, I recorded 117.04 miles…

[allkindsofadvocacy]

Find Me Friday: Brogan & Sawyer!

Find Me Friday: Brogan & Sawyer!

PD: RR’s logo states ‘Reece’s Rainbow’ across center, w/ signature 3 diagonal brush strokes in blue, pink, & green. Above & below in a circle are the words ‘Special needs adoption support’.

In this series, each Friday, I want to share a different child or group of children with you who are available for adoption and listed through the adoption advocacy website Reece’s Rainbow. All the kids who…

[abs0luteb4stard]

Firstly, Fred Trump was probably not a great dad.

He was shrewd, racially motivated not to rent his apartments to minorities. Probably a rent hiking slum lord. Etc.

Which factually is the history of their business and is legally documented. They skirted laws to help themselves while holding others back. And got away with it.

But Mocking your own father while he's losing his marbles? The guy who gave you a 'small' loan of a million dollars? The one who saw you as the favorite son?

For a guy like Trump to pretend he's a saint and thinks he's a savior, and sees himself as a living martyr.

And whatever else you think you'd like to tack onto it since being elected. The list is endless.

That's pretty disgusting.

Especially if he plays up being this family man. Being part of the Trump legacy. All that.

You could be racist, bigot, cheating other people, a fucking murderer even, but your own family, specifically your nuclear family. One's that he purports are the reason he's the best, made him who he is - All that!?

If he has a high opinion of his family, and his parents, why would you mock them in their confused and dying years?

So that means EITHER he really doesn't have these good and holy views of his father and mother OR he's a truly awful sociopath. (Or both).

---

I guess I have "Strong beliefs, but they're loosely held". Because I can always change my views. They're not part of my identity.

But for every instance of disproving the consensus that Trump is a madman and an incredible asshole, and stupid incompetent idiot.

I find nothing, not one shred of evidence to support that he's just a misunderstood blowhard. Or some hard businessman who's going to do the unprecedented in helping the citizens of this country live better, more prosperous lives fit the 4 to hopefully not 8 years he's in office.

This is just a defining example of how cruel and disgusting and surface charming he is. The opposite of his portrayal of himself.

Makes me pretty sick.

Trump always had the money to take care of his family or parents in their declining Alzheimer's years. They'd never have to go to a nursing home, to be neglected, he didn't have to be hands on at all with them if he chose. Just send nurses and doctors and caretakers to be with them.

So why mock his father cruelly of the involuntary loss of his mind?

Because Donald Trump thinks he's powerful, and he's mocked those he perceived as weak dozens of times from before he even ran as president.

Ugliest example is when he publicly mocked reporter Serge Kovaleski who suffers from arthrogryposis.

So just imagine what he said or did to his own father outside of the public eye in those years.

He's so religious, I'm sure he's heard of the 10 commandments, or maybe seen the movie?

"Honour thy father and thy mother"

I not nearly as "godly and religious" as Trump pretends to be, but I put a lot of what's left of my extinct faith into that commandant.

[royalcareassist]

6 Helpful & Informative Blogs for Families Living With Disability

It’s delicate to understand how it feels to live with a disability, or to be parent of a child with one. The term disability and everything that comes with it, is no longer rumored about in quiet corners. With the internet exploding, so are thousands of blogs and web runners working to educate, endorse for andde-marginalise people living with disability. Then's a list of the 6 stylish blogs to follow covering everything from particular experience and politics to community and trip. 

Parker Myles 

Kat, a mama of two, only discovered her son had down pattern in the bearing suite. As a single mum she began Parker Myles, a warm, gash – jerking and hypercritically written blog, on raising children with disabilities. Her blog has featured numerous viral papers and covers everything from particular notes and experience stories, to communication chops, calls for action. Kat’s blog has come an online community, with numerous families reaching out to partake their stories and assignments for raising kiddies with disability. 

 Have Wheelchair Will Travel 

Author of Have Wheelchair Will Travel, understands that travelling the world, and passing different societies is one of the stylish gests life can give you, and explosively believes that disability shouldn't help anyone from this amazing occasion. This blog is gladdening, instructional and filled with tips and tricks for travelling with wheelchairs. With a son diagnosed with cerebral paralysis, Julie and her hubby have been travelling as a family for 22 times. Their gests in trip, both in the US and Australia are each well proved in the blog and the papers cover everything from the stylish airlines, hiring buses, backpacking, tenures and further. When not travelling overseas, Julie and her family blog about weekend passages and jaunts. Covering as numerous wheelchair accessible places around Australia as possible.

 Disability Sports Australia  

Disability Sports Australia is a government run website with information on the huge variety of disability acclimated sports in Australia. The point covers types of sports available, how they're acclimated for people with disability and where they can be played. It’s a great starting point if you're wanting your child to come involved in social or competitive sports. 

 Disability Allowing 

Disability Thinking is a comprehensive blog about about disability life, ideas, identity, culture and politics. The author, Andrew, is a graduate in history with a Master in Rhetoric and Dispatches studies and is diagnosed with Arthrogryposis. The blog offers great daily reading lists covering a range of motifs related to disability. The author also has a yearly podcast on disability definition in media. 

 Active Rehab – link removed as no longer working  

Active Rehab is devoted to perfecting the Quality of Life of Australia’s impaired citizens. Its blog covers everything from the stylish Apps for hindered children, to improvements in disability availability. The blog aims to educate people on how to deal with a variety of disabilities, alongside ways to get family members with disability active and involved with everyday life. 

 Wheelchair Travel 

Triadic amputee, John, from the united countries who was told trip would be insolvable after his accident in 2012. Now he has flown over half a million country miles since his recovery with no plans to decelerate down. John’s blog provides plenitude of sapience into travelling with disability in America, Asia Pacific, the Middle East, Africa and Europe. Travelling both Solo and with musketeers or family his blog covers the utmost wheelchair accessible metropolises in each mainland. The composition cover motifs similar as disability accessible transport, accommodation and conditioning. John’s blog aims to prepare you with everything you need to know about wheelchair trip, and works tode-marginialise disability trip across the globe.

[geekasms]

Rare Disease Day - 2022

Rare Disease Day – 2022

Today is Rare Disease Day. Observed yearly, on the last day of February. To help raise awareness for rare diseases and to improve access to treatment and medical representation for individuals with rare diseases and their families. A disease is considered rare in the United States when it affects fewer than 200,000 Americans. Our son falls under this. His Arthrogryposis falls under that…

[ladysquigglebones]

So, I run a small advocacy group on Facebook for disabled people, and I have a friend in this group who needs help. She is in need of financial help to get medical care for her child who has my disability. She has reached out to organizations but hasn’t had much luck with them. I want to help her but I am inexperienced and she is in the Philippines, which I’m not very familiar with. Does anyone have advice on how she can get an online fundraiser or something like that going? Or information about federal programs or mutual aid organizations?

Thanks!