#nemaline myopothy

[geekasms]

Rare Disease Day - 2022

Rare Disease Day – 2022

Today is Rare Disease Day. Observed yearly, on the last day of February. To help raise awareness for rare diseases and to improve access to treatment and medical representation for individuals with rare diseases and their families. A disease is considered rare in the United States when it affects fewer than 200,000 Americans. Our son falls under this. His Arthrogryposis falls under that…