#apply this to any disability too

[c0smic-horrorwerewolf]

How social media looks sometimes

[classicslesbianopinions]

the thing about being a disabled grad student is that if you want even half a chance you constantly have to not only reveal but interrogate and explain your softest most vulnerable parts. while people around you act like this is just completely normal and actually that is not the softest most vulnerable part of you and actually you are exactly the same as all of them. so you feel like you are in disguise as exactlythesame while also completely exposed. and you just have to live like that. absolutely insane

[lololollywrites]

STEWING in anger today. My younger sister - she's 33 - was diagnosed with multiple sclerosis (MS) 16 months ago, which obviously has been devastating. She is no longer able to work as a nurse, which has been a huge adjustment mentally for her (she LOVED her job in post-labor maternal care). She and her husband had only recently bought a house, but now they can barely pay their bills; he has to work extra hours, and she's home with both of my nieces, one of whom (at 8 years old) has severe behavioral issues stemming from ADHD and OCD. They've already had to file for bankruptcy. She's a wonderful mother, but the stress of it all certainly doesn't help her MS symptoms, and it all piles up (she isn't always physically able to clean the house, etc.). I live about five hours from her and come down when I can to help, but I can't do that as often as I'd like.

She's been hospitalized five times in the past year (unable to walk, with spasms and pain) and received planned infusions even more often, though has thus far only received steroid treatments because HER INSURANCE COMPANY DIDN'T COVER THE INITIAL MEDICATION SUGGESTED BY HER NEUROLOGIST, then REFUSED TO COVER THE SECOND RECOMMENDATION (after the first one was ineffective) despite it being the one they argued should have been chosen in the first place. That's meant she's only had treatment to **manage** her symptoms rather than **treat** them. For over a year. FOR A PROGRESSIVE DISEASE. After more than five years of being misdiagnosed with POTS despite clearly having more going on (and a doctor's office "misplacing" an MRI from years ago that could have showed early signs). Fortunately, she recently got approval from her insurance and will begin treatments next month that will hopefully help.

But this post isn't even about that. This post is about the fact that, as she can no longer work (and briefly tried another desk job at the hospital that was also impossible due to her MS brain fog), she applied for disability. 15 MONTHS AGO. They've made her jump through SO MANY HOOPS - so much paperwork and waiting with no updates that she's been in tears more than once. My mother even contacted her state's Congress representative, who's reached out directly to the disability office to inquire as to why it's all taking so long. Without disability, she and her husband will barely be able to cover their bills, let alone save to repair the many things that need repaired in their new home or to support their children. Or even to just, you know, take a vacation for the first time in ten years to ensure their marriage is salvaged. We started a GoFundMe at the beginning, right after she was diagnosed, which was wonderful, but she doesn't want to do that again now; it feels like begging to her.

Yesterday, her disability request was denied. Who the hell knows why. It was just an instant updated status; we don't yet have the letter. She's devastated, as are all of us. It just seems incomprehensible, though apparently up to 77% of disability applicants are denied in the hope that no one appeals (about 50% do). She now has to get a lawyer and fight for what she deserves. More stress (making her symptoms worse) and more money. And more waiting.

This whole experience has just further radicalized me. I have no idea what to do. I'm just SO ANGRY.

[proudfreakmetarusonikku]

I think something about oppression that’s always important to keep in mind is that it’s designed to oppress marginalised people first, and benefit privileged people second. and as such any harm to the privileged group, if it hurts even a tiny amount of the marginalised group, is an acceptable sacrifice. and while that absolutely shouldn’t be what’s centred in those discussions, i think it’s also deeply important to discuss that as it is a major part of harm done to marginalised people- for example, misogyny effects men through toxic masculinity, and men take out that harm even further on women. it’s not a bug, it’s a feature, because if you hurt the privileged with the same tools you hurt the marginalised, they will blame and further harm the marginalised.

if even being slightly associated with traits similar to a marginalised group (or even traits assigned by society as belonging to that marginalised group) results in mockery and abuse it’s very common for people undergoing that to blame the marginalised group for existing, and not the structures of oppression that keep people down. it’s a tool that can control both the oppressed and privileged group, and allows for both of them to in truth be treated worse than either would in an equal world. because, while privileged people are privileged in comparison to the marginalised, and do benefit in many areas due to that, fundamentally the privileges they have are basic human rights (and sometimes not even that) and the licence to take their anger out on an easy target.

and recognising how bigotry is used as a political tool against both the marginalised and the privileged to keep both of them complacent is important to, like… understand politics? like, the right wing isn’t just like that because they're hateful cruel people- though that’s absolutely a part of it, and often a large part- it’s because culture war shit is very useful for controlling a populace. many of them don’t fully believe what they’re saying, same as any other politician, but it’s useful rhetoric to maintain power. hate and superiority are very powerful emotions. and this isn’t to say that politicians aren’t genuinely bigoted, obviously. i think to some extent you have to somewhat believe in bigotry to spread it. but i also think they’re fully aware of the power it holds, and use that power deliberately. and that power needs to be acknowledged if we're to really get anywhere.

[brittlebutch]

idk if i can fully articulate this but i find it like, Interesting how often people seem to flinch away from the notion of a character having a genuine difficulty in academic settings that is caused by Intellect — how often people will seemingly try to get around the idea by writing something that amounts to, like “No this character is Smart, they just struggle with XYZ and if they were Accommodated for that, then they wouldn’t struggle in school” but it’s like,, why do they Have to be ‘smart’ though?

[unproduciblesmackdown]

what if we held on to whatever we get the idea of as Normal as unquestionable & think all you can do to this normal is apply some veneers overtop it to be more polite & also resent that. maybe we could project that everyone who seems to be Annoyingly Disruptively doing more than this must be putting on a performance to look good &/or humor others b/c that's all we ever believe we're doing, & again, we resent even that much....maybe we could use our show of More Polite language to make the same points blaming everyone who our Normal mistreats for their own mistreatment

[meangan-thee-lesbian]

Idc who this upsets, but I actually hated the whole forced mask wearing era with a burning passion. As someone with epilepsy which is aggravated by heat, it was absolute hell to have to wear that shit because (and fuck what y’all abled-bodies wanna say) it DOES impact my breathing and make me overheat. And I actually cannot just ‘go get a medical exemption’ because a) they don’t give that shit out like free candy, I had to go pay $500 to a neurologist to get that lil note, and b) I could staple that med cert to my fucking forehead and still get people losing their minds every time I went anywhere without a mask. Everyone like ‘oh disabled people are so terrified of COVID-19 so you should think of them before ragging on masks like this’ as though everyone ain’t already spent the last three decades of my life not giving a singular shit about my disability, but now suddenly want to act like they care about disabled people? Why tf should I care about giving anyone the spicy cough when no one has ever given a fuck how many seizures their actions cause me? Y’all want me to put my own health at risk by wearing this mask, so you don’t get a lil sore throat, when y’all will remain deliberately oblivious to epilepsy and other heat-related illnesses, right up until someone dies, and then you’ll still have a giggle about that too? Way more people be dying every day from heat-related illnesses than from COVID-19, so where’s my mandatory air-conditioning and icepack stations at every street corner? Fuck hand sanitizer stations, provide me a free cold drink. Additionally, mask wearing was the ONLY thing people got this fucking turnt about too. It’s not like any of y’all were social distancing (something which would have actually helped me with my disability lmao). No one was getting booted out of stores for standing on my damn heels every time I had to get in a queue. Anyway, after the first twenty times I got asked to leave a store for not wearing a mask (despite having that magical medical certificate) I made up my own mask by getting four of those ‘valves’, absolutely gutting the inside of them to allow unrestricted airflow, and then stitching them into a linen mask. Still uncomfortable, fo sure, but a lot better than having to deal with hot air on my face and under my sunglasses while already struggling not to pass out in the middle of the Australian summer. 

[fingertipsmp3]

We need to take all the hate that tax collectors get and instead give it to debt collectors and people who check on eligibility for benefits. Tbh

[bean-spring]

Hot take and not to be a killjoy or the shipping police but people treating Viktor or Jinx's aroace headcanons as if they were canon is not the revolutionary take people think it is.

Headcanons are always all right but we have to acknowledge that they are somehow damaging when they apply to stereotypes. It might not be the case for everyone but most of the time people unconsciously assume that disability/mental illness=asexuality. These headcanons erase the freedom of attraction from people who are already seen as unable to have sexual/romantic experiences/desires, when it's completely untrue and harmful.

You can headcanon Viktor and Jinx as aroace, but I have seen people changing their minds once Viktor is no longer disabled (s2 with all of his other forms) and Jinx is no longer as mentally ill (alternate universe Powder). And it speaks wonders of how people see these characters.

"I never thought about Jinx being able to feel romantic/sexual attraction until s2!" To believe she's actually only capable of that when she's not "damaged" is incredibly disturbing. Especially since Jinx has always had a bit of a flirty personality too.

"I've always seen Viktor as asexual, I don't know why!" That's fine. You can headcanon him as ace. But I believe there is a reason behind it, most of the time, if for some inexplicable reason the "vibes" of the disabled character are making you think he's ace.

I say all of this being aroaspec myself, by the way. Headcanon all you want but going to people's posts commenting how "it's weird for you that they have romantic/sexual plots when they're clearly aroace" is not a win at all. It's a headcanon, after all, and it should be treated as such, and that's fine. But it also is damaging to spread stereotypes like these.

Of course the disabled character is asexual. Of course the mentally ill character is aromantic. It's not as revolutionary as you might think, tbh.

Fandom is not activism and it's all right to have any headcanons you want BUT some of them are filled with damaging stuff and perhaps we should look into ourselves more before treating these assumptions as something canon.

[friendlycursedspaceotter]

Pro tip for my disabled and chronically ill friends in college: if you have to put a work order in and it is related any bit at all to your disability, write, very clearly in the "describe what needs to get done" section, "This issue is a health hazard," followed by a description of how the issue relates to your disability/chronic illness.

They are required to put it as a high-priority issue and fix it ASAP. Required BY LAW. Yes, I said it. They are legally required to fix these things, both under OSHA regulations and the ADA.

Play the disability card. I'm begging you. DISABLED IS NOT A BAD WORD. But don't abuse it. This is a fine line here.

Example: I'm heat and noise sensitive. My HVAC unit started breaking down and rattling loudly. That would be an example of a health hazard. A broken light could be a health hazard to someone with vision issues. I can only speak for myself here. But y'all have the right to speak up and advocate to yourself.

Neurodivergent people, this applies to you too. You're one of us (one of us! one of us! one of us!). Don't let the exclusionists gatekeep this information from you.

[tony-andonuts]

Got home from work like an hour ago (early day yipee) butlike also today fucking sucked and im gonna go off a little

Okso first and foremost all but one person from an entire fucking department got let off for ''budget cuts'' today and not only that but us in the kitchen and ALL OF MEDICAL AS A FUCKING WHOLE recieved a budget cut. And we're already purchasing the lowest quality products overall. The department in question not only makes the workload easier on literally everyone but they get the residents out and about rather than rotting in their rooms. Its just so fucking vile and evil, and the department that they cut off is VITAL. The residents are gonna mentally deteriorate and more fights are gonna happen. The assisted living facility i work for is now a fucking PRISON. like dead fucking ass. I really fucking hope that the CNAs told the residents that love to complain because this shit is just straight up cruel and the owner of the corporation as a whole is so fucking lucky their name doesnt have to be public or else i wouldve already scheduled a flight to. Uh, you know <3

Another thing too solike. Okay this is morally inappropriate and i fully acknowledge that but i cant stop thinking abt it

So i had a dream this morning (like 8-10am) that the am aide i work with was gonna get fired, and then i also recieved bad news regarding a resident. IRL at around the same exact time i had that dream was when the department got fired *and* my am aide coworker recieved really bad news. I know i naturally have some clairvoyance butlike. FUCK I really hope it was all a coincidence and my meds were just working really well and that I dont get forebodings like that bc I know for a fact my psychosis will get the better of me if this happens even once more

Anyways i apologise for how out of touch that sounded, i genuinely am both seething for my coworkers who were dumped and saddened for my aide comrade

Butlike fucking UGH I've also been working like 4 days in a row with only one day off in between and Im fucking SHOT. I can technically work those shifts while also doing my laundry, making food, and attending therapy but I can't do much else bc its either Im getting ready to go to work, getting ready to go to bed for work in the morning, or using my one day off to clean everything that got dirty during my work days

Also the transphobia and burnt-out ableism I witness at work makes me wanna scream and break everything but i dont wanna fight with my coworkers in front of the residents so i just have to give the residents twice as much love as the malice theyre recieving like they're living in a perpetual state of good cop bad cop :)

[writing-with-olive]

So i'm working on a project that involves looking at people's opinions on public transportation, and something that keeps coming up is that a lot of people like the idea of public transportation but ridership is at the same time low, so I wanna figure out what stops people from riding.

If you could reblog this for bigger sample size that would be so so appreciated

[atha-nasy]

On the same vein of those last two reblogs I just want to vent something real quick

[cy-cyborg]

Disability Tropes: The Perfect Prosthetic

[ID: A screenshot from the movie Nimona, showing Nimona, a small white girl with red hair, grabbing the right prosthetic arm of Ballister, a knight in black armour with black hair and light brown skin. He is holding a broken bottle in his prosthetic hand while Nimona admires his arm. Overlaid on the screenshot is white text that reads "Disability Tropes: The Perfect Prosthetic" /End ID]

In a lot of media, prosthetic limbs are portrayed as these devices that act as a near-perfect replacement for a character who has lost, or was born without a limb. So much so that in a lot of cases, the use of a prosthetic has basically no impact on the character beyond a superficial level or their appearance, or it's portrayed as something that's even better than the old meat-limb it's replacing. This trope shows up most often in Sci-fi, but it shows up in all kinds of stories outside of that, even otherwise very grounded ones!

If a story isn't depicting the loss of a limb as the be-all-end-all worst thing that can happen to a person, they almost always default to a perfect prosthetic, functionally curing the amputation with it. But the reality is that prosthetics are FAR from perfect, and as someone who has used them for their entire life I don't think they ever will be. Limb difference is still and always will be a disability, regardless of the prosthetics available, and this really isn't a bad thing.

Why is this trope so common?

I meant it when I said this is a really, really a common trope, so much so that the majority of the media I've seen with amputees and characters with limb differences that released in the last decade or end up using it. Even stories where becoming an amputee is treated like a fate worse than death, ironically, aren't excluded from this. I have a few theories as to why this has happened: The pessimistic answer is that it's easy. You get to have a disabled character and claim you have disability representation, without really having to do much extra work or research because most of your audience won't notice if you aren't accurate - in fact they kind of expect it. You also, for the most part, dodge the backlash other kinds of disability representation (or really any minority representation) usually get. The more optimistic reason is that, for a long time, amputees and people with limb differences (as well as a lot of other disabled people) were predominantly shown in media as sad, depressed and unable to do anything, very much falling into the "sad disabled person" trope. As a kid, this was really the only way I saw people like me on screen or in books. And so, the limb difference community pushed back against that portrayal and were pretty successful in changing the narrative in the public's eye. A little too successful. A lot of creatives were genuinely trying to do right by our community, listen and do better, but many simply overcorrected and instead ended up creating stories where prosthetics were essentially cures instead of the mobility aids they are. I also think the public's general lack of understanding about disability plays a roll in all this. There are a lot of people who, in my experience, believe that the more visible a disability is, the worse it is. Limb differences and amputations are very visible, but prosthetics, even those that aren't trying to be discreet, make them less so. While using a prosthetic is very, very different to a biological limb, you won't necessarily see how in a casual interaction with, say a co-worker or neighbor, especially because there is a very real stigma applied to people with limb differences to keep those things hidden from the public. There are other reasons too, such as the fact that a lot of creatives don't even consider the connection to real amputees when creating characters with robotic limbs in genres like sci-fi and some fantasy, so they never stop to consider that these tropes could be impacting real people. Amputees are also very frequently used in "inspiration porn" content that uses the angle that disabilities can be "overcome" with a good attitude, downplaying the way those disabilities actually impact us. The prosthetics industry - specifically the component manufacturers, often also push the idea of prosthetics being the only way to return to a "normal" life, both to the wider public and to people with limb differences and amputations (which can add to that sense of shame I mentioned when it doesn't play out that way for them). On top of that, I also think the recent increase in popularity of concepts like trans-humanism contributes to it as well. these movements often talk about robotic or bionic body parts being enhancements and "the way of the future", and I think people get a bit too caught up on what may be potentially possible in the future with the real, current experiences of people with "robotic limbs" aka prosthetics, now. There are also inherently disabling things that come with removing and replacing parts of your body, things that will not just go away with some fancier tech.

So How do you actually avoid the trope?

So, we have some ideas about why it happens, but how do you actually avoid the "perfect prosthetic" trope from appearing in your work? The most important thing is to remember that this is still a disability. The loss of a limb, even with the best prosthetic technology or magical item in the world, will always have some inherently disabling aspects to it - and this is not a bad thing. The key is to not over-do it, lest you risk falling into the old "sad disabled person" trope. So let's go over some of the ways you can show how your character's disability impacts them. You don't have to use all of these recommendations, just choose the ones that would best fit your character, their circumstances and your setting.

The prosthetic itself is just different

Probably the most important thing to address and acknowledge for prosthetic-using characters, is the actual ways in which the prosthetic itself is different from a biological limb, and the drawbacks and changes that come with that. For the sake of simplicity, I'm mainly going to focus on modern prosthetics here, but it's worth considering how to apply this your own, more advanced/fantastical prosthetics too. One major thing that most people writing amputees fail to acknowledge is that prosthetic limbs are not fleshy-limbs with a different coat of paint. They do the same basic thing their meat-counterparts do, but how they do it is often drastically different, which changes how they are used. A really good example of this is in prosthetic feet. There are dozens of joints in a biological foot, but most prosthetic feet have no joints or moving parts at all. Instead of having dozens of artificial joints to mimic the real bone structure of a foot, which are more prone to failure, require power and make the prosthetic much, much heavier for very little gain, prosthetic feet are often constructed from flexible carbon fiber sheets inside a flexible rubber foot-shaped shell. This allows the bend and flex those bones provide, without all the drawbacks that come from trying to directly mimic it. Making the sheets into different shapes makes them more ideal for different activities. E.g. feet made for general use, like walking around the city, are simple and light, shaped to encourage the most energy-efficient steps, while still allowing their users to do things like wear normal shoes. Feet made for rough terrain often have a split down the middle of the foot to allow the carbon fiber sheets to bend better over rocks when there is no ankle, and some newer designs also include a kind of suspension using pressurized air pulled from the prosthetic socket to allow some additional padding. Running feet have large "blades" made of these carbon fiber sheets to absorb more pressure when the foot hits the ground, and redirect the force that creates to propel their user forward as quickly as possible.

[ID: A photo of 4 prosthetic feet. On the left, the foot is covered with a black shoe, the one to it's right consists of a small, carbon fiber blade, split down the middle, in roughly the same shape and size as the previous foot. Next to the right is an even simpler and smaller carbon fiber foot with no split, and finally is a very short foot that is vaguely rectangular in shape. /End ID]

These are some of my own prosthetic feet I've had over the years. The two on the right are designed to be used by someone who is less mobile, and the ones on the left are made for someone who is more active. As my needs changed over the years, I've used different designs and styles, and keep the old ones since my needs do tend to fluctuate.

There are also robotic feet available that are designed as a kind of "all-purpose" foot that use an electronic ankle which more closely mimics a biological foot, but they are not very popular as the mechanism adds a lot of extra weight and it requires a battery and power to work, with many amputees feeling the jointless carbon fiber feet do a better job at meeting their needs. The same goes for arms and hands. "Robotic" hands that mimic a meat hand exist, but they aren't really that popular, even in places like Australia where the prohibitively expensive price tag isn't as much of an issue due to government programs that pay for the device for you. Instead, most arm amputees who use prosthetics that I know prefer simpler devices that do specific tasks, and just swap between them as needed, rather than something that tries to do it all. A big part of this is because the all-purpose hands can be clunky. they often require manual adjustment using the other hand to do simple things like going from holding a deck of cards to putting them down and picking up a glass of water, for example. The few that don't require that, I've been told, are often temperamental and don't actually work for every person with a limb difference.

Altered Proprioception

Loosing a limb is a big deal and this is always going to have an impact on the body in some way that won't be solved with a fancy piece of tech. One such example is how limb loss effects your sense of proprioception. This is your sense of where your body parts are in space. It's how you (mostly) know where your foot is going to land when you're walking, or how you're able to do things like lift up a glass of water without needing to actually watch your hand do it. Your brain does this by creating a mental map of your body, but this map doesn't get adjusted if you loose a limb. If that map doesn't accurately reflect your real body, you're not going to have an accurate sense of proprioception. This might look like a leg amputee being a bit less stable on their feet, or like an arm amputee needing to look at their arm or hand to be able to grab something with it. Those born without their limbs who take to using prosthetics often have a lot of trouble adapting, as their brains aren't used to having that limb in the first place, whereas an amputee's brain can sometimes be tricked into using their outdated body map to help them adjust to the prosthetic (though its impossible to line it up perfectly). Prosthetics that directly integrate with the nervous system, while rare, do exist, and even this direct connection doesn't completely erase this issue for reasons doctors aren't quite sure about. This is something that does become less of a problem with time. Eventually, someone proficient with their prosthetic will learn to compensate, but their sense of proprioception will never be 100% perfect. At the end of the day, no matter how it attaches, a prosthetic is still not a natural part of the body, and that will always cause some issues. It also means if they aren't practicing it all the time, they may have to relearn how to compensate for it.

Extra weight

You also have to remember that a prosthetic is not a natural part of the body, like we already talked about, and so no matter how good it is, your brain will most likely always interpret the weight of the prosthetic as something attached to you, not part of you. This means that, even though prosthetics are actually a lot lighter than biological limbs, they feel so much heavier. This is because, while a meat limb is heavier, a lot of that weight is from muscles which are actively contributing to the limb working, so it doesn't really feel like its that heavy. When you have less of your meat-limb though, you have even less muscle to work with to move this big thing strapped to it, so it feels heavier. The more of the limb you've lost, or just didn't have, the heavier the prosthetic has to be, and the less muscle you have left to move it. It's for this reason that a lot of amputees and people with limb differences get tired faster when using prosthetics. Some of us are fit enough where you almost wouldn't notice the extra effort they need to put in, but once again, just because you can't see it from the outside, doesn't mean it's not an issue.

Avoiding Water

Most prosthetics also aren't waterproof, and so prosthetic users have to be very careful about when and how they come into contact with it. For amputees with electric components, contact with water at all will likely damage the device. This can even include especially heavy rain, something I was told to avoid when I got my electronic knee prosthetic and something I assume would also apply to arm amputees with complex, electronic hands. For those with non-electronic prosthetics, water can be hazardous for different reasons. If the prosthetic has metal components, water may cause them to rust, especially if it's salty water. Other prosthetics have foam covers to give the illusion of a limb with the general shape of muscles and fat, but these covers do not come off, and if they get wet enough that water seeps all the way through, it is very hard to dry it and they may become moldy. Finally, cheaper modern prosthetics may also float. Many are made of very light-weight materials and some have pockets of air trapped inside them. For leg prosthetics in particular, this means a user might, at best, struggle to swim with them on, but at worst, may get flipped upside down and become trapped underwater - something that happened to me as a very young child. On the flip-side, older prosthetics were usually made of heavy materials like wood or steel, and so had the opposite problem, acting like a weight and pulling a person down if they were to wear them in the water. Water-safe prosthetics do exist, I had a pair of prosthetic legs as a teenager that were hollow, and designed especially for me to swim with fins on when swimming in the ocean, and Nadya Vessey, a double leg amputee in New Zealand even got a mermaid-tail prosthetic made especially for use in the water. Most amputees though just swim without any prosthetics at all, and in 99% of cases, this is the easiest and safest way to go.

Prosthetic-Related Pressure Sores and Pain

Many people with limb differences also experience pressure sores from their prosthetics. Modern prosthetics typically attach to the body using a socket made of carbon fiber or fiberglass, held on either by pressure, using a vacuum seal or through a mechanical locking system built into the socket. No matter the specifics though, the socket has to be very tight in order to stay on, and this means that extended periods of use can lead to rub-spots, blisters and pressure sores. Many socket prosthetics also use silicone liners to add extra padding, but this means wounds caused by the pressure can't breathe, and bacteria in sweat has nowhere to go, meaning if the person doesn't rest when one of these wounds occur, it can very easily and quickly turn into a serious infection. In a properly fitting prosthetic, used by someone who has fully adjusted to them, this doesn't happen often, but it is something most amputees and people with limb differences have to at least be mindful of. Some new prosthetics use a different method of attachment, called Osteointegration - where the prosthetic attaches to a clip, surgically implanted into the person's bones. While Osteointegration avoids many of the issues like pressure sores that come from a socket, they have their own issues: mainly that they are incredibly expensive, and as of right now, have a pretty high failure rate due to the implant getting infected. Because the implants are directly connected to the bone, these infections become very serious very quickly. Many people with Osteointegration limbs have to be on very strong medication to keep these infections at bay, and they are generally considered unsuitable for anyone who is going to regularly come into contact with "unclean" environments.

Maintenance

[ID: A screenshot of Winrey, from Full Metal alchemist Brotherhood, a white woman with blond hair handing out the sides of a green hat. She is measuring a piece of metal from a prosthetic she is making while Ed, the prosthetic's owner, gives her a thumbs up in the background. /End ID]

Finally, prosthetics also require maintenance from a specialist called a prosthetist, and they don't last forever. Some parts, like a foot or hand, can be reused over an over, but the sockets of a prosthetic need to be completely remade any time your body changes shape, including if you gain/loose weight, you start experiencing swelling, or you're just a child who is growing. Children in particular need new prosthetics every few months because they grow so fast, and as such, their prosthetics have to be made with this growth in mind. If they go too long without adjustment or an entirely new prosthetic, it can seriously impact the child and their growth but even small adjustments can be costly, depending on where you live. While prosthetics are built to be sturdy and reliable, they need a lot of work to stay that way. The more complex the prosthetic, the more work is needed. Complicated electronic components may need to have regular maintenance done by your prosthetist or even the specific component's manufacturer, and depending on where you live, this might mean having to send your prosthetic limb away for this to be done. While my prosthetist technically has the skills and knowledge to do the maintenance on my electronic knee, for example, the manufacturer forbids anyone not from their company to provide this service, meaning my leg needs to be shipped off to Germany once every few years if I want to keep the warranty. This has the unfortunate side effect of sometimes your limbs getting lost in postage (shout-out to Australia Post, who lost mine twice), meaning it can be months before you get it back or get a replacement. Usually, you'll be given a replacement in the meantime if you need it, but walking on a leg that isn't yours, even when its correctly fitted, always feels a bit weird (maybe that's just me though).

Not every difference is Inherently Negative

We've talked about some of the negatives that come from having a prosthetic, but not every difference is negative or even really that big of a deal. In fact, often times, it's these little moments in the depiction of a disability that go the furthest and make it feel the most genuine. My amputations effect me from the moment I wake up, to the moment I go to bed, but that doesn't mean every single way it impacts me is always inherently bad or negative. For example, back when I was working a normal job and going to university, I would often come home, throw my legs off at the door with the shoes still attached and get into my wheelchair, the same way you might throw your shoes off after work and replace them with comfy socks and other comfy clothing. This is something I've only ever seen on screen once, with Eda from the Owl House (and she wasn't even an amputee yet, her limbs were just detachable)

[ID: an screenshot of Eda from the owl house, a very pale woman, laying on the couch in a bathrobe, her hair in a towel. She has taken her actual legs off, throwing them to the other side of the seat. /End ID]

After that, my day mostly looked the same as most other people working a 9 to 5, I'd make myself dinner, watch some TV or play some games, maybe do some extra work at my desk or chat with friends. The only difference is that it would all be from a wheelchair, mainly because my prosthetics were heavy and it was just easier to use the chair around the house. The fact my afternoon and evening routine was done from a wheelchair wasn't a bad thing, it was just different. Likewise, I also don't sleep or shower with my prosthetics on, for the same reasons most other people wouldn't take a shower or sleep in thigh-high, steel-capped boots. In your own stories, this might look like giving your characters similar alterations to how they go about their day. Let them take their arm or leg off when they're resting or relaxing, show them taking a few minutes longer to get ready because they have to put it back on, show them doing some things without it. Arm amputees in particular tend to get very good at going about their days without their arm prosthetics, and leg amputees often either learn to get around more relaxed spaces like their homes using a different mobility aids like wheelchairs or crutches, or just through hopping if that's something they're physically able to do. Even when everything is going well and working as intended, your limb-different character won't wear their prosthetic 24/7, no matter how much they love it. There doesn't have to be something wrong with it or painful about it to not want it glued to them at all times, just like you can love a pair of big heavy boots but not want them on when you're trying to sleep. For more action-focused stories, being an amputee, also changes things like how you fight. The specifics will vary from person to person, but for example, when I did Hap Ki Do, a Korean Martial art, my instructor heavily modified when I learned what techniques. Beginner-level kicks and most leg attacks were impractical for me, as the force from the kicking motion would usually cause one of my legs to fly off. I also couldn't jump very well, due to some complications with my original amputation that made my stumps too sensitive to withstand the force of landing again. So I ended up learning a lot more upper-body attacks much earlier than it is typically taught. By the time I got my green belt, I was practicing upper-body techniques usually saved for black belts - including weapons training that I could use my secondary mobility aids for, like crutches and my cane in a bad situation. Many holds that rely on creating tension in your target are also less effective on amputees, because either the anatomy that causes those holds to be painful just simply isn't there, or the body part in question can just be removed to escape. Whether we're talking about the negative things, or just neutral differences that come with using prosthetics, you don't want to go too far with any one example. The key is to strike a balance. Of course, the old writing advice of "show don't tell" also applies here. It's one thing to tell us all of this stuff, but unless we actually see it play out, it won't mean much.

How NOT to avoid the trope

Before we move on, let's focus for a moment on some common things I've seen that you SHOULDN'T do as a way to get away from the trope.

The Enhanced Prosthetic

A lot of sci-fi in particular will take prosthetic limbs, make them function exactly the same as a biological limb, but add something extra to it. This does change the way the prosthetic functions and is used, but it usually still ignores the actual disabling parts of having a prosthetic. A really good example of this can be seen in pretty much any futuristic setting, but personally, I think Fizzeroli, from Helluva Boss is the best one to demonstrate what I mean. Fizz is a quadrilateral, above knee/above elbow amputee with highly advanced prosthetics that function, more or less exactly like the limbs he lost, but with the added benefit of being super-stretchy. Fizz is an acrobat and a clown in service, at least initially, to Mammon, one of the Seven Deadly Sins. These prosthetics help him perform and we even do see how they change little things like how he walks and just goes about his day, but the show still treats them like natural arms and legs, but better. 

[ID: A screenshot of Fizzeroli from Helluva Boss, a white-skinned imp with 4 black, prosthetic limbs, dressed in teal a nightgown as he lays in bed, reading from a list /End ID]

We see that he never takes them off, even when sleeping, and when he needs to use them as regular arms and legs, they do everything he needs, perfectly fine - at least when they're working correctly. The only time he ever even takes them off or has any issues with them, is when they break in season 2. The word amputee is never used to describe him, as far as I remember, and the fact he is one never really comes up at all, except for when they break or when the story focuses on how he lost them. Which brings me to my next point.

The Glitchy/Broken Prosthetic

One way I see people try to avoid the perfect prosthetic trope, is to take the prosthetic and break it or otherwise make it unreliable by having it malfunction, but not really changing anything else. This approach is heading in the right direction but still kind of misses the point of the criticism a lot of limb different folks have with the depictions of prosthetics in the media. Yeah, prosthetics do break down and some do require extra maintenance, but if your character's prosthetic is still exactly the same as a biological limb (or even better, in the case of the "enhanced prosthetic") when it's not broken, and the only time their disability is treated like a disability, is when it breaks, you're not really addressing the issue. Real prosthetics, like we discussed, even when functioning at 100%, exactly as the manufacturer intended, don't function the same as a meat-limb. They are fundamentally different, and the glitchy/unreliable prosthetic completely ignores all of that. Once again, Fizz is a really good example of this - the only time his prosthetics are not perfect, is when they break or are malfunctioning (despite the criticism, I do genuinely love Fizz as a character, but he unfortunately does fall into a lot of disability tropes).

[ID: Another screenshot of Fizzeroli, this time in a torn up jester outfit, looking down, panicked, at his prosthetic arms which are fully extended and laying motionless on the ground, with his left arm visibly short-circuiting with electricity around it. /End ID]

Now this isn't to say you can't have your character's prosthetics break down or malfunction at all. just that this shouldn't be the only way you differentiate the prosthetic from a biological limb. You should also be mindful of how or why they're breaking. A typical prosthetic isn't going to break down randomly from normal use unless something is very, very wrong or your character just has a terrible prosthetist (which unfortunately, does happen). You might experience issues if you try to make the prosthetic do something it just wasn't designed to do, or expose it to something it wasn't designed to deal with though (e.g. submerging an electronic prosthetic in water and trying to use it to swim).

Just add Phantom Pain

Another common pitfall I see when people are trying to avoid the perfect prosthetic trope, is to just give the character in question phantom pain - which is a side-effect of amputation where your brain's mental map of the body doesn't acknowledged you lost a limb. Your brain tries to fill in the gaps, since there is no signals coming from that part of the body anymore, and assumes either something must be wrong and so you should be in pain, even when you actually aren't. Alternatively, it can also happen when your brain was so used to feeling pain from that area before, in the case of people who had chronic conditions before they lost their limb, that it just keeps remaking those old signals itself. Like the broken/glitchy prosthetic approach, this also doesn't really address the issue with the perfect prosthetic trope, because it has nothing to do with the prosthetic itself. Phantom pain doesn't come from the prosthetic, nor does it effect how they're used, and so including it doesn't really address the issue of the prosthetic being functionally the same as the original, biological limb. This isn't to say that you shouldn't include phantom limb sensation or pain as something your character experiences, but just keep in mind that, when used on it's own, it doesn't counter the trope. Also, just be sure to do your research, everyone's experience with phantom pain is different and it's not something everyone with a limb difference even experiences.

Why is this trope even a problem?

Alright, so we know what the trope is, we know why it became so prevalent, ways to avoid it and also how not to avoid it. All good information, but why is this trope even bad? Why should you try to avoid it? Outside of just wanting to portray a real disability that effects real people more accurately in your creations, the prevalence of this trope actually contributes to a lot of real-world issues, especially when it's as overused as it currently is. I've talked before about "the jaws effect" - where the depiction of something in the media, especially something that the public is widely uneducated on, influences how people see it in real life. The Jaws effect specifically referred to how the popularity of creature-feature movies featuring sharks, like Jaws, caused the belief that sharks were monstrous killing machines to become much more wide-spread, even going so far as to influence decisions about laws and policy surrounding real-life shark preservation and culling in some parts of the world. But sharks aren't the only thing this has happened to.

Disabled people are so thoroughly misunderstood by wider society, that when tropes like this one become popular, people can and often do start to believe the misinformation they spread - in this case, believing that our prosthetics are a perfect replacement for a biological limb, and that getting a prosthetic means you're not disabled any more. While this can be annoying and cause small scale issues for some of us, like people giving us a hard time for using disability accommodations we very much need, it can also impact us in systemic ways too. If the wrong people believe these tropes, it can and does have a very real impact on the lives of disabled people through things like changes to policies to make it harder for amputees and people with limb differences to access financial assistance for other things outside of our prosthetics we may need assistance with.

Conclusion

Despite the very real harm tropes like this can do when it's overused, I don't think it should go away entirely. Some of my favourite pieces of media even use the perfect prosthetic trope and there are even some kinds of media where I even think it's somewhat unavoidable. Characters with perfect prosthetics in kids media in particular, especially when talking about side characters, can help to correct some of the other stereotypes kids may have seen elsewhere - such as prosthetics being "creepy" or "scary" - in a way that is casual and easy for them to understand. The problem with the trope, in my eyes, is it's excessive overuse. It's the fact that it seems to be the only representation amputees and people with limb differences are getting now. Not every story with a limb-different character can or even should delve into the reality of what using prosthetics is actually like, but we need at least some stories that do, without it being this majorly depressing thing.

[drchucktingle]

THE TEXAS LIBRARY ASSOCIATION HAVE ISSUED AN APOLOGY AND A RE-INVITATION. HERE IS MY STATEMENT

hello buckaroos. the TEXAS LIBRARY ASSOCIATION have issued a formal statement and apology which you can read at the attached link.

while i find the language used to discuss what was done a little unsatisfying, i would like to start by saying i appreciate anyone taking steps to prove love is real and make things right. the genuine feeling of ‘realizing you have made a mistake and hurt someone else’ is a terrible one, and i have so much empathy for this group as they reckon with their choices causing harm. i appreciate their apology.

i also think more good than bad has come from this situation. i am so thankful this happened to me (someone with a large social media presence) and not a smaller buckaroo author without the means to stand up for themselves. i think the next time someone comes to the TXLA with an accommodation need, they will hopefully be taken more seriously

lets trot down to business about specifics now. the TXLA has re-invited chuck to the original panel and even offered to take a moment at the top of the panel to talk about what happened. this is very kind of them and i will say THANK YOU. 

unfortunately i will also have to decline.

the fact that it took this much effort, social media backlash, and discussion to let me simply EXIST PHYSICALLY in a way that is authentic to myself is not a good sign. if this organization immediately questions an authors chosen presentation in this manner, i cannot imagine what my other accommodations would be met with.

sometimes i am at an event and i very quickly need extra space to breathe. sometimes i am at an event and i need special guides to help me along from place to place. these are not ‘big asks’ and every other conference has gladly provided them, but if the TXLA had this kind of initial reaction to my physical appearance, i cannot imagine them readily helping with my other needs without ‘proof’.

this is clearly not a safe place to trot for those who require additional accommodations. regardless of any apology, their ACTIONS have shown that people who appear unusual or unique are not welcome at this event on a subconscious level. i believe the TXLA have some serious inner work to do beyond this apology, and i believe this inner work will involve actions more than words.

but even more importantly i would like to make this very important point: IT DOES NOT MATTER IF MY MASK IS A DISABILITY AID OR NOT. i appreciate the way this discussion has allowed us to trot out some deep talks on autism and proved love in this way, but i think there is a much more important point at hand.

regardless of WHAT someone looks like, it is not the job of an event or conference to pick apart WHY. physical presentation can be a part of someones neurodivergence, or gender, or sexuality, but i can also just exist as a nebulous undefined part of their inner self. it can be a piece they are not ready to openly discuss yet. the guests at TXLA are authors (aka ARTISTS) and the idea that a conference dedicated to an ART is going to deny people with unique and unusual presentations for ANY reason is absurd. since when are we applying a ‘dress code’ to our artists?

without knowing it, i personally believe there is an element of the ‘good queer, bad queer’ phenomenon going on here. there is a push to say ‘LOOK we accept these marginalized groups and cultures’ but behind the scenes that means ‘we accept these marginalized groups and cultures who are quiet and speak in turn and wear the metaphorical suit and tie’. it is easy to show diversity when you only take on the voices that arent too ‘strange’.

to prove my point i ask you this: do you think orville peck would have FOR ONE SECOND been asked to perform at the texas library association event without his mask?

so with that i say ‘very sincerely, thank you, but i will have to decline the re-invitation. maybe next year’

[mythicalcoolkid]

I love the "glasses are disability" thing because it applies to basically every complaint abled people have about disability

"You're not even that bad, why would you get that?" Have you ever used a magnifying glass for small details or zoomed in on a picture

"Why do you have that accommodation TODAY?" Why do you wear reading glasses when you're reading

"It seems like your 'needs' are inconsistent." Yeah and you wear sunglasses when it's sunny and not all the time

"But you can technically walk without that." Yeah and if I put the page really close to your face you could read it, it would just hurt and be hugely impractical, inconvenient, and limiting

"But you COULD go without it all the time, you don't NEED it to live." And maybe you could technically see without your glasses, doesn't mean it's comfortable or practical day to day

"If you REALLY had a hard time seeing you would have glasses." Have you ever known someone who couldn't afford a new pair of glasses? Or eye appointments? Someone who needed vision therapy or special prism glasses? Someone whose vision only gets bad during migraines or seizures? Someone with astigmatism that glasses can't help? Someone who didn't qualify for LASIK?

"You only use it when you're out in public." Have you ever gotten up to use the bathroom at night without putting on your glasses

"Decorating it is just trying to get attention, and it's a medical device so stop glamorizing it." Do you hate any patterned or colorful glasses frames too? Art with characters who wear glasses? People who make OCs with glasses? Glasses chains, prescription sunglasses, aesthetic fake glasses with tinted lenses?

"There are secretly lots of people just using aids for fun and attention." There are secretly lots of people wearing fake glasses or colored contacts for fun and attention, it does not affect you

"We need to find fakers, they're stealing disabled resources!" Someone pretending to need glasses is "taking" a seat in the front from someone who might need it more. That sucks and they shouldn't do that. But I'm not going to scrutinize every person who wears glasses to see if I think they really need that seat. You personally are not the arbiter of who is (based on the random times you've seen them) secretly not disabled

"My friend has that and doesn't act like that." Does every pair of glasses in production, or even every pair close to your prescription, work for you? Is your vision identical to every other nearsighted person?

"If you can do X why can't you do Y? Some people with that can do Y."/"But if you have that how can you do X? People with that can't usually do X." Some people are nearsighted and some people are farsighted and some people are both. Some farsighted people can read some without glasses and some can't. And good distance vision doesn't mean you don't ever need glasses, it's just an entirely different reason you'd need glasses

"You're too young to need that." And there are young people who need bifocal lenses

"Why don't you use this DIFFERENT aid though, it would look like you didn't even have an aid." Why doesn't everyone in the world wear contacts

"Why can't I/my friend/my kid play with it?" Do you let random strangers and children try on your glasses at the grocery store

"I was just trying to help, I thought you'd need a push/you were in the way." Are you cool with me suddenly pulling your glasses off your face to clean them, or because the glare was distracting me

"You'll eventually stop using it though right?" Are you planning on no longer needing glasses someday

Disabled people are free to add

I am aware this is not a 1-to-1 perfectly accurate post. Do not come into the notes trying to "um actually this isn't a perfect comparison." I know. Just don't