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giantkillerjack · 1 year

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Today my therapist introduced me to a concept surrounding disability that she called "hLep".

Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"

And my therapist pointed out that this is not "help", it's "hLep".

Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.

At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.

So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!

Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!

Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!

Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.

#hlep #original #mental health #my sympathies and empathies to anyone who has to rely on this kind of hlep to get what they need.#the people in my life who most need to see this post are my family but even if they did I sincerely doubt they would internalize it #i've tried to break thru to them so many times it makes my head hurt. so i am focusing on boundaries and on finding other forms of support #and this thing i learned today helps me validate those boundaries. the example with the milk was from my therapist.#the example with the towing company was a real thing that happened with my parents a few months ago while I was age 28. 28!#a full adult age! it is so infantilizing as a disabled adult to seek assistance and support from ableist parents.#they were real mad i was mad tho. and the spoons i spent trying to explain it were only the latest in a long line of #huge family-related spoon expenditures. distance and the ability to enforce boundaries helps. haven't talked to sisters for literally the #longest period of my whole life. people really believe that if they love you and try to help you they can do no wrong.#and those people are NOT great allies to the chronically sick folks in their lives.#you can adore someone and still fuck up and hurt them so bad. will your pride refuse to accept what you've done and lash out instead?#or will you have courage and be kind? will you learn and grow? all of us have prejudices and practices we are not yet aware of.#no one is pure. but will you be kind? will you be a good friend? will you grow? i hope i grow. i hope i always make the choice to grow.#i hope with every year i age i get better and better at making people feel the opposite of how my family's ableism has made me feel #i will see them seen and hear them heard and smile at their smiles. make them feel smart and held and strong.#just like i do now but even better! i am always learning better ways to be kind so i don't see why i would stop

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cheswirls · 2 months

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short asl thing based on @where-does-the-heart-lie's modern au :) i started this over a year ago but the beginning is all dialogue and felt more like a script to me i suppose??? which deflated my desire to work on it. anyway i checked it over recently and it's completely fine lmfao, self-confidence restored here we go !

"Yo. Aren't you usually in the middle of your shift by now?"

"I've been banned from the hospital."

"Like, for life?"

"No. For the next, uh.. Twenty-two hours."

"That's oddly specific."

"It was twenty-four, but I fell asleep after leaving the building."

"That wouldn't have to do with why they kicked you out, at all?"

"Hmmm. I'm too sleep-deprived, apparently."

"Ah. And, um, you called me because...?"

"I pressed a random number in my call log after waking up. Lucky you, I guess."

"Yeah. Right. Lucky me. And your car keys are...?"

"Confiscated."

"Ah, right, of course."

A beat of silence. Two. Three, then "Look, if you're busy, then–"

"No, no. You called me, so I'll be there. Give me twenty minutes."

"Alright. Thank–"

"Thank someone else. Also, if you fall asleep in my car, I'm taking it as express permission to drive you around wherever I want."

"Ugh, go die. I don't even know why I bothered."

"LUCKY YOU, I guess," sounds off way too loudly in his ear. "No take backs. See you in ten."

"I thought you said–" Sabo breaks off as the call ends, leaving him staring blankly at his phone's too-dim screen. He squints, turns the brightness all the way up, and still squints as the sunlight proves too strong for the display.

Ace shows up in more than ten but decidedly less than twenty minutes. Sabo doesn't waste much brain power on it, only climbing into the passenger seat and yawning into his palm while his other hand fixes the seatbelt into the buckle. Not a second too soon, too, as Ace roars the engine to life and peels away from the curb at record speed.

Ace fiddles with the radio. He turns the music up, then dial it back down to inaudible. They hit the expressway and he leans over the steering wheel, frowning with his eyes fixed on the road far ahead. Sabo yawns again and this appears to be the limit to his patience.

"Hey, so, I had a thought after you hung up on me."

Sabo grimaces. "You mean you–"

"Today's Wednesday."

He doesn't elaborate. Sabo is too tired to process. "Yes," he follows, after a second. He glances at the sky out the front window. "What time is it?"

"Oh, uh." Ace fumbles with hand placement so he can lift his watch to his face. "Nine forty."

Sabo takes a couple beats to try and process this, moves his eyes away from the skyline, and sighs as he pulls his phone out. 2:47 is what the display reads, which sounds much more believable.

"How did the minute hand get off?" he mutters to himself, chancing a look at Ace's busted wristwatch. Ace raises a brow, taking his gaze off the road to scrutinize Sabo. "No, it doesn't matter," he mutters to himself once more, sliding his phone away back on his person and out of his hands.

"My point is," Ace continues, like he hasn't just been interrupted by a whole thing. "Your timeout will be done midday Thursday. Did they switch your days off?"

"No." Sabo sighs. "They technically gave me the next thirty-six hours. Technically closer to forty. Something like that. I go back in on Friday. Sometime.” He tries to smile and it turns out very lopsided, from that he can make out in the rearview mirror. “Can you tell I’m tired?”

“I don’t think ‘tired’ is an accurate description,” Ace quips. “When did you eat a proper meal last?”

“Uh, yesterday. Maybe.”

“Maybe??”

“A ‘proper meal’ means different things to the two of us,” Sabo huffs. “On my account it was yesterday. I’ve had food since then, of course.”

“Alright, so here’s the plan,” Ace announces before absolutely whipping it around a curve. Sabo is his passenger in the passenger seat and had fully prepared to be so when he got in the vehicle, but he’d been vastly underprepared for this sudden course of action, which is how he ends up halfway out of his seat with his cheek slammed into the cold window. Ace doesn’t quite notice his brother’s terminal velocity until the car is once again on the straight and narrow, and only then it’s because of the audible thunk Sabo’s face makes when it collides with the glass.

“Aw shit. You good bro?”

“Ow,” Sabo mutters. “If I have broken bones I’m suing your ass.”

“Well, if you’re good enough to make jokes, I think you’re better than you’re letting on.” Ace keeps the wheel steady with one knee while he takes both hands away to crack his fingers. When he glances over at Sabo again, he looks even more pathetic – like he’s becoming one with the glass. “Anyway, as I was saying.

“I’m taking your ass home. You’re going straight to sleep and while you crash, I’ll make you something decent to eat and stick it in the fridge for you to heat up later. I’ll even make you two servings to eat two different times, since you clearly can’t be trusted to take care of yourself correctly.”

“Ouch.”

“I want you to conk out for as long as your body allows. We can reset your sleep schedule tomorrow, alright? Put your phone on silent; do not answer any calls. In fact, you know what, just give it to me.

Sabo glances over to see Ace’s hand held out to him, palm up. Fingers wiggling expectantly. His lips pull up into a grimace. “I’m not doing that.”

“Fine.” Ace takes his hand back. “But you will comply with everything else.”

“Wow! It’s so funny, I didn’t realize you turned into my mother overnight! Really tapped into your mom potential, huh? Anything exciting happen in your life that would cause that? I guess I wouldn’t know, since I’ve been a zombie for the past two days.”

“There’s nothing wrong with acting like your older brother, you dipshit, especially if you keep putting yourself through the wringer like this. You go home. You sleep. You wake up and eat. You go back to sleep. Then we do laundry. Does that sound agreeable?”

“That’s negotiable, at the least,” Sabo mumbles. “I will accept good food as a form of bribery.”

“Oh, nice, because I’m flat broke at the moment.”

Sabo makes a mental note of that, and then they’re pulling into the driveway. Ace lets him exit the vehicle by himself and then promptly manhandles him all the way onto the couch where it will be easier to force his body to relax than in a real bed. Ace knows this, so he calls him weird before chucking a loose blanket at his head. Sabo is almost too tired to function at this point, so he lets Ace have the last laugh in favor of finally closing his eyes.

Coming to is a surreal experience, especially since the sun is still out. He must make a noise because Ace is suddenly within view. His limbs are tangled in the blanket and still so heavy that he doesn’t bother moving. “Thought you would be gone,” he half-groans, eyes slipping shut again for a moment.

“I did leave,” Ace confirms. “I had to go pilfer some stuff to make stew with. It’s almost done, so I’ll hang here until then.”

Pilfer. That could mean any number of things. Sabo chooses to believe in the option where Ace is an upstanding citizen, and then remembers Ace saying earlier that he had no money. He frowns and squirms on the cushions enough to where it looks like he’s checking his pockets. “Where’s my wallet, Ace?” he bluffs.

“Somewhere around here,” Ace pipes up. “Your stomach will thank you for your contributions to the Portgas Household’s pantry!”

“Ugh, I got robbed,” he complains. “This sucks. ‘m going back to sleep.” He rolls over so his back is to Ace.

“Yeah, you do you, bro. Stew will still be here later. I’ll see you when you’re back in the world of the living.”

—

Luffy comes in late that night and slams the front door shut as loud as humanly possible. When he appears in the main room, he doesn’t seem to be upset, so Ace writes it off as a Luffyism. Sabo hasn’t stirred at the noise, so it’s all good.

Realizing this, Luffy pads closer to Ace’s side and looks at Sabo’s unmoving body warily. “Why is Sabo passed out like a corpse? Is he sick?”

“No, he’s not sick, he just can’t take care of himself. Which is why we are going to let him sleep for as long as possible.”

Luffy just nods to this, but it’s the uncomprehending Luffy-nod that means he’s just going to end up doing whatever he wants to regardless. Ace sighs, then jerks his head towards the kitchen. “He ate a little earlier, but I want him to eat again when he wakes up. There’s stew in the fridge if you want it – just leave him a little. Got it, Monkey D. Luffy?”

Luffy throws him a salute and then runs off in his socks. “Yippee! Ace made stew!”

“Think of your brother, Luffy, and make good choices!” Ace calls after him. “He’s a pathetic man who needs food to feel better or he’ll end up sleeping through Laundry Day!”

—

Sabo does not sleep through laundry day, but he does sleep for sixteen whole hours, so it’s just around noon when he forces himself up off the couch and into a warm shower.

Ace is around, which is mildly unexpected. But he’s still half-asleep, so everything is at least a little unexpected. He glances up from playing video games with Luffy to see Sabo leaving the steam-filled bathroom with his hair hanging around his shoulders. “You look like a wet cat,” he calls.

“Sabo’s awake!” Luffy cheers. “Ace thought you died at one point.”

Ace elbows Luffy in the gut, making him hunch over. “I did not!”

“He totally checked to see if your heart was still beating!”

“I’m undead, actually,” Sabo says completely seriously.

“Does that mean you don’t need to eat anymore?” Luffy questions. “Because I ate all the stew last night.”

“I saw that coming and made extra.” Ace finger-guns in Sabo’s general direction. “That’s why I bought two sets of ingredients. With your money!”

“With my money,” Sabo echoes, because it’s such a wild statement to have to deal with this early in the day. Well, early for him. “Fuck you.”

“I mean, I can tell Luffy where I hid–”

“Thank you, Ace, for agreeing to share your quarters with both of your brothers so we can all do laundry today on your dime!” Sabo raises his pitch so his voice is mockingly squeaky when he says this. He starts moving down the hall before Ace can start to argue, letting his and Luffy’s voices bleed into the background.

When he comes back out, now dressed, it smells significantly better than before. “I reheated the stew,” Ace announces, gesturing for Sabo to take a seat at the kitchen counter. “Let’s all have lunch before we head out.”

“You have to drink this too,” Luffy tells Sabo, sliding a Gatorade across the counter so it sets in front of him when he finally does take a seat. “Ace’s orders.”

“Gotta get those nutrients back somehow.”

“Aren’t we so considerate, Sabo?”

“Do you even know what ‘considerate’ means?” Sabo asks, lips quirking up into a half-smile. At Luffy’s shrug, it turns into a real smile. “Well, thanks anyway. Both of you.”

“No sweat. And look!” Ace brandishes a five dollar bill for both to see. “I found this baby for us to use on coins! It’s all on me today–”

“Where’s my wallet, Ace?!”

#writing #op #whery if i realized anything while doing this its that we need 2 get you a custom theme....#1) anyone whos not logged in will be able to see all your posts w/ no limits #2) (and the more important COUGHCOUGH) it'll be so much easier to find shit on your blog #if you want a cool blog layout lmk and i'll hook you up but for now #there are many benefits to a custom tumblr url........ being able to search /tagged for better blog organization is one of them #if there's a switch to writing style i wrote the first half of this in april 2023 so thats why!!#also lmao i jus spent the weekend w/ my brother so if its too mean-spirited thats unintentional n i'm prolly channeling is all #sighhhhhhh i love when they look after each other its so very very good #wittb has been great but i do wanna see them get up to other shenanigans later #after the comic (plot) at large i mean #little one-off side things still in the modern au #enjoy the rest of artfight month for now tho!!!#(< says someone who has been putting off af attacks to write things again)

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