#PAIN!!!!!!!!!!
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head in hands the first one to reach him is wavelength
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What I mean when I do not control the hyperfixation.
#adhd#undiagnosed adhd#actually adhd#undiagnosed autism#autism#neurodivergent#hyperfixation#chrambles#ms pain#ch33zart#audhd#actually audhd
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I need to say something and I need y'all to be calm
if it isn't actively bad or harmful, no representation should be called "too simple" or "too surface level"
I have a whole argument for this about the barbie movie but today I wanna talk about a show called "the babysitters club" on Netflix
(obligatory disclaimer that I watched only two episodes of this show so if it's super problematic I'm sorry) (yes. I know it's based on a book, this is about the show)
this is a silly 8+ show that my 9 year old sister is watching and it manages to tackle so many complex topics in such an easy way. basic premise is these 13 year old girls have a babysitting agency.
in one episode, a girl babysits this transfem kid. the approach is super simple, with the kid saying stuff like "oh no, those are my old boy clothes, these are my girl clothes". they have to go to the doctor and everyone is calling the kid by her dead name and using he/him and this 13 year old snaps at like a group of doctors and they all listen to her. it's pure fantasy and any person versed in trans theory would point out a bunch of mistakes.
but after watching this episode, my little sister started switching to my name instead of my dead name and intercalating he/him pronouns when talking about me.
one of the 13 years old is a diabetic and sometimes her whole personality is taken over by that. but she has this episode where she pushes herself to her limit and passes out and talks about being in a coma for a while because of not recognizing the limits of her disability.
and this allowed my 9 year old sister to understand me better when I say "I really want to play with you but right now my body physically can't do that" (I'm disabled). she has even asked me why I'm pushing myself, why I'm not using my crutches when I complain about pain.
my mom is 50 years old and watching this show with my sister. she said the episode about the diabetic girl helped her understand me and my disability better. she grew up disabled as well, but she was taught to shut up and power through.
yes, silly simple representation can annoy you if you've read thousands of pages about queer liberation or disability radical thought, but sometimes things are not for you.
#long post#long text#disability#chronically ill#chronic pain#cripple punk#cripplepunk#chronic illness#disability activism#trans#transgender#queer theory#queer punk
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I would like to see more people talk about how jobs treat disabled employees.
I used to prep, wash dishes, and cook at mellow mushroom. I had chronic pain that wasn't NEARLY as bad as it is today, but it was still very debilitating. I told my employer "i cannot stand more than 4 to 6 hours. I CANNOT do shifts longer than this due to my illness." And even though i made my boundaries VERY clear, everyday i worked it was 8 hours at the least and 10 or 12 at the most. I would go up to my manager and say "look i really need to leave, my shift is over, my chronic pain is killing me." And he'd say "we really need to here, you HAVE to push through." And so i did, and after one, ONE month of that job my crps got incredibly worse to the point where i could no longer walk my dog around the block which was .5 miles. I quit, and that was FOUR years ago, and ever since that day I HAVE BEEN BEDRIDDEN AND HAVE TO USE A WHEELCHAIR. It is my biggest regret in life.
My best friend who has seen my whole journey has recently developed undiagnosed chronic pain, and she is in the EXACT same scenario i was 4 years ago. Busting her ass at a pizza place with extreme pain that hurts her so much she tells me "im in so much pain i don't even feel like a person." She doesn't feel LUCID. And her manager and coworkers are saying the same thing "if you don't help us you will let us down, we'll be in the shit."
That job thats hurting you isn't fucking worth it. I promise you no money is worth losing all your physical abilities and never getting them back. Your coworkers and boss do not give a shit about you, so don't you dare suffer for them. They will never understand your struggle and they will never try. They truly think being understaffed is worse than whatever pain you experience. They would rather you permanently damage yourself than inconvenience them. FUCK THEM. DON'T FUCKING DO IT!
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what is it with able bodied people saying “get well soon” after you say that you’re chronically ill?? like? i am not gonna? and i once literally responded with “i’m not gonna, it’s chronic, as in permanent.” and they went like “oh well, hope you get better!” like bro 💀
#chronic disability#chronic illness#chronically ill#chronicpain#chronic disease#disabled#chronic fatigue#chronic pain#disability#disabilties
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i started playing Disco Elysium and last night (the same day i started playing) i woke up to my stomach hurting so bad that in my delirium i thought it had to do with something from the game.
and looked it up…
i thought this was completely normal until waking up later after the pain was gone.
#what was i on#disco elysium induced stomach pain#not a second thought#or a brain cell either#wow so harry du bois core…#disco elysium#harry du bois
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#bpd#mental health#actually bpd#mental illness#bpd shit#actually borderline#bpd shitposting#bpd problems#bpd mood#bpd meme#autism#actually autistic#chronic pain#chronic illness
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We ask your questions so you don’t have to! Submit your questions to have them posted anonymously as polls.
#polls#incognito polls#anonymous#tumblr polls#tumblr users#questions#polls about the body#submitted june 7#pain#injury#polls about health
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the 'what if you played it a little risky' post literally Changed my life but i cant fujkign find it in my blog because its. a tiktok screenshot
#like literally every time ive hesitated sending a text or complimenting someone or stuff ive thought of it#like youre right. what if i played it a little risky what do i have to lose in doing a nice thing!!!!!! ur so right!!!!!!!!#but its forever lost cos i cant search it with any words cause its an image#misery and pain. you know how it is#my post
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When I say “school should be disability accessible”, I don’t just mean we need handicap rails and EAs. Kids should be able to miss a day without failing out of school. You shouldn’t be dismissed from clubs because your attendance record is “spotty” (true story). I once missed an entire week of school because of a terrible, unending migraine. I was expected to keep up with my studies despite the blinding pain that came with working on my computer. When I heard my teachers say that you couldn’t miss exams, I asked what I would have to do to be excused from them. Their response? “Either get a doctor’s note an hour before the exam or death of an immediate family member.”
I cannot express how rigid this expectation was. First of all, with my condition, I wouldn’t have enough warning about my sickness to go to the doctor and request a note. For many people, this is exceptionally difficult, especially with the current shortage of medical professionals. Next, it ignores the fact that my schedule may not line with theirs because of my medical needs. Once, I had to visit a hospital a province away (which I was on the waiting list of for over a year) on the same day as an exam. I begged my mother not to take me because I was so nervous that I would be marked as an automatic fail. I was lucky enough to make it work, but that’s only because of my spectacular support system consisting of family members and wonderful doctors.
Disabilities aren’t always about needing a bus that can accommodate wheelchairs. It’s already difficult enough for many of us to maintain school attendance without the harsh punishments involved for skipping a day. We need to be able to miss school without being punished. Only than can you claim that the school is “accessible”
#disability#chronic pain#chronic illness#crip punk#cripple punk#accessibility#social justice#angry cripple
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Nothing like a little workout session 🦀
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Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.
#chronic fatigue#chronic illness#chronic pain#chronically ill#disability#disabled#fibromyalgia#lupus#autoimmine disease#pots#pots syndrome#invisible illness#invisible disability#accessibility#cripple punk
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Analysis so bad you don't even know what it's talking about anymore.
#chrambles#not a lily orchard video (i have never watched one in my life im sorry for whoever did)#being a homestuck fan alone is hell. people make shit up and call it canon unironically its painful#can be of any form of analysis btw your responses are so insightful (and also funny)#if you mention dirkjohn in the tags then youre the one who needs to reread the canon material again lol
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Kinda fucked up that we all coo and sympathize with "former gifted kids" but never talk about the students who had to stay late after school or over the summer for remedial classes/clubs, who struggled to get above a C, who were given up on or punished. Who tried so hard to understand or just couldn't. Who were grouped with the "stupid kids" (a classmate called us that in remedial math btw)
Autistic kids and adhders who can't relate to their gifted peers and are constantly alienated by them. Kids who struggled in school due to dealing with a chronic or mental illness or physical/learning/developmental disability. Those of us who have had to drop out of highschool or college. Kids who worked so hard and wanted to be seen as smart, but never were. Who watched as their peers seem to fly by them in school, while they were left behind. Who were bullied and put down by those in the gifted and honors classes. Whose confidence was absolutely destroyed by education.
I love you all and I'm so sorry the school system failed you. I'm sorry you weren't properly accommodated and given the education you deserved. I'm sorry people put you down for something that they never had to fight for.
#wrenfea.exe#was going to keep this in drafts for a bit but wanted to post to give my solidarity with morg#gifted kids act like they are the most oppressed but in my experience they love feeling better than other people#disability#chronic disability#chronic pain#spoonie#chronic illness#physical disability#autism
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I think that it's really important for people to realize that being disabled is traumatic. genuinely. your body and brain feel like they are breaking down and wrong. you are in constant heavy stress from stuff like chronic pain. most disabled people i know have a somewhat regular emotional break down from the trauma of it all. and we are expected to just smile through it by society, to not be in the way, to not be an issue.
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