#Medical Negligence

[disableddyke]

onion not even doing satire at this point

[pro-birth]

With Amber Thurman's case no longer useful to pro-aborts, they are already trying to sensationalize other cases of medical negligence in pro-life states and act like it's an anti-abortion problem. Of course they are ignoring the cases that still happen at similar rates in pro-choice states.

I called this shit years ago yet I'm still disgusted. Birth justice deserves better than this.

[wormworker]

Wearing a mask/respirator to protect yourself & others from the continuing deadly spread of COVID, even while the majority of the public has been brainwashed into not doing so, is punk as fuck.

[thebibliosphere]

TW: MEDICAL TRAUMA AND GASLIGHTING- UK FRIENDS, PLEASE HELP

Hey, this is a long shot, but do I have any followers in the UK--specifically Scotland, but I’ll take anywhere--diagnosed with MCAS/D with a doctor they can recommend?

My younger disabled brother who I share a lot of health problems with has just been hospitalized at the Queen Elizabeth Hospital (aka 'the Death Star') for symptoms consistent with a prolonged MCAS flare. He's hardly eating, he's got undiagnosable bladder pain, blinding headaches, worsening allergies, and his skin/eczema is so bad he’s at risk of sepsis and losing his eyesight because he’s been left to claw himself raw with chronic urticaria near his eyes that has been brushed off for years as “anxiety.” (Which he was then prescribed diazepam for and nothing else 🙃)

When my mother brought up my MCAS diagnosis over here in the US and how similar my brother’s symptoms and reactions are, the attending doctor said that MCAS “isn’t real” and won’t even prescribe famotidine for what my brother is describing as “suffocating acid reflux”—presumably because this doctor is now on some sort of bruised ego trip over my mother questioning his prognosis that my brother is suffering from anxiety and “a lack of personal hygiene.”

(My brother is severely disabled, and my elderly mother has to bathe and dress his wounds daily, just like she’s been doing for the last 32 years since he was born. This is not a lack of personal hygiene this is a lack of medical care!!!)

My mother is trying her best, but she’s got her own health problems and suffers severely from her own medical trauma, which is making advocating harder. They do have an appointment to see a dermatologist on Friday, but considering it's at the same clinic that said my chronic urticaria was also anxiety (🙃), we're not holding out much hope.

I've managed to find him some OTC meds that might help stabilize things, but he's at the stage where he needs a knowledgeable MCAS doctor to either confirm or rule this out and figure out what the hell is going on.

I'm trying to help, but from 4000 miles away, it's proving difficult and every possible lead I've found so far has been a dead end.

NHS is preferable but it doesn't have to be. I will find a way for him to go private if I have to. Fuck if you are an MCAS doctor in the UK, I'll pay for your petrol to go to Scotland. I'll pay for anything. I just can't listen to my mother crying in the Queen Liz car park anymore because she might be about to lose her second child to the illness that almost took her first.

Thank you. Sorry. I just don't know what to do anymore.

[thebad-lydrawn-sanses]

The last post about Cat Ink's activity got me worried

DREAM, DEAR, ARE YOU OKAY? DO YOU NEED ANYTHING? HUGS, LOVE, TO BE LEFT ALONE?

Dream: i need more money so i can afford groceries

Dream: i would also like the doctors to listen to me about my health. mental and physical

Coworker: i don't know how to help with that, sorry

Dream: not you. uh.. i was talking to Blue

Coworker: oh, i'm sorry

Dream: it's ok

[risingscorchingsuns]

hey guys! this isn’t kny related, but I need advice, and I have a wider audience on this blog compared to my main.

I have a doctor’s appointment tomorrow, for a specialist I’ve been waiting six months to see regarding my chronic illness. I’m really worried about it- to even get this appointment, we had to threaten to claim medical negligence because nobody would take me seriously enough to look at my case file. I’ve had doctors cancel appointments on me week-of because they didn’t mean to make them. I need this appointment to go well. I need to start taking steps towards the surgery to fix MALS, but i need doctors to take me seriously enough not to dismiss it as menstruation or a normal food intolerance. Im afraid they’ll look me over, then send me home with an ibuprofen and a $700 bill. Its happened before.

I’m bringing my cis male friend to pretend to be a relative of mine, and he’s going to tell the doctors he’s been very worried about me and made me come in. Does anyone have any other advice on how to get doctors to listen to you? Any advice is appreciated- i need this appointment to go well.

I know I may be overthinking this, but I’ve had bad experiences in the past, and I can’t spend another year begging professionals who are supposed to help me to even consider my pain. I just want to be prepared to self-advocate.

[perplexingluciddreams]

well.

the appointment with the CMH (community mental health) doctor was really really shit. to put it lightly.

she said lots of bad and wrong things like saying that i have no sign of infection so i don't have ME/CFS (which is just not how that works).

she also made a bunch of assumptions about my life and experiences based from very scattered (and often inaccurate or just unrelated) medical notes. and tried to tell me my life story and how my FND is caused based from that which was all just completely wrong.

she also said that because i have FND "there is no reason you are not talking and walking". which was what made me so upset that i ran (/crawled fast) upstairs and had a meltdown crying and hit the floor really really hard (hand still hurts ouch).

me not talking is NOT from FND. it's from autism (plus regression, which is still a part of my autism for me). life long experience of communication struggle and language issue and body not in my fucking control. and she completely disregarded my autism basically and saying i have no communicating problems even though that is such a HUGE HUGE part of my life.

also she said that i am "medicalised" and don't really need bath lift or stair lift or medical equipment (EVEN THOUGH i am have low mobility and CAN'T have a bath or go up down stairs without it AT ALL).

i don't know what else she said because of the running upstairs and meltdown but mum had some more talking with her and then she left. then i had a lie down in mum's bed and she did nice stroking on my back and i calmed down a bit.

still very upset. today was supposed to be good because new AAC but now it just is ruined.

and this was me trying really hard to give a second chance because she was horrible the last time too but i was being good and really trying to stay and listen but it was just horrible.

and she had awful strong perfume and the house still smells like it. making me feel sick.

sad angry frustrated.

((ask if need more tags on here i don't know what ones is right to put)).

[ineloquent-creature]

i hate EDS like what do u mean i am DISLOCATING joints *passes out*

[atticollateral]

Autism Assessment Update (bc it's been almost 3 months since I mentioned it haha oops) (it's a novel. you've been warned.)

tagging @examishbookwyrm bc they did comment on my autism assessment post I made in MARCH!! n i didn't respond...(adhd moment) get honourable mention'd.

--- SOOOO. BIG ASS PERSONAL LIFE UPDATE!!! I have... literally the worst news? Like the worst-worst news I think I will ever share. So imma start from the beginning :> [I detail everything about the assessment in this post. The process, the assessment itself, and the after.]

So. This is part of the NS Pilot Program for assessing people who were going to age out of the early-childhood-assessment waitlist (because hey! it is a 5 year long wait! haha!) which was led by NS Health and the Gov. of Canada (who paid for all the assessments.) It's safe to say that NOBODY is happy! (if you look it up you will find articles on how... awful it's been. Also if you look up articles I might have left out details bc my brain is VERY SPOTTY bc i am enraged) but anyway,

The first part of this is they had been calling my mom during the day; my mother had been working days. So she wasn't picking up. And they weren't answering her calls back or her messages! Already a big red flag. Because they can't get ahold of her they call me. Me! The person they're going to assess, who, at the time, was 18, and perfectly capable of consenting, as an adult, and taking care of their own medical records and appointments and such. They go "Hello, is this (deadname's) mom?" And I go "This is (deadname); and my name is [Chosen]" and they go "Oh, Well. Can you get your mother to call us?" And I said in a tone I believe was very clearly annoyed bc wtf? "Oh, no, you can tell me whatever you're going to tell her!" They tell me "Well we're looking to get you into the NS pilot program for autism assessments" yada yada "is that something you'd be interested in?" And me being me (poor and reasons to think I'm autistic and being on the waitlist) go "yeah!" AND THIS FUCKING WOMAN GOES "ok then get your mom to call us. this is the date. we need her to confirm." and I go "...why?" and they go "we just need to talk to her." and I go "...why can't you just talk to me?" and she just repeats herself so I go "um. ok. well. you have a good day? bye?" and hang up. So i'm simmering; bc I am literally an adult. I don't need my mom. I should be treated like an adult and I'm getting infantilized. I got the woman's name and # so I give it to my mom. It takes another month to get a date for the assessment approved bc they STILL WONT ANSWER HER CALLS OR MESSAGES.

My mother was required to do two prerequisite assessments a week or two before my in-person one. One over the phone and one over zoom. I am above the age of 16 (as stated) and perfectly capable of consent and being an informant. (you are legally allowed to consent to a majority of medical assessments in NS when you turn 16 w/o alerting ur parents, and clearly allowed to do that over the age of 18 as that is age of majority.) So i'm just miffed. They tell her not to tell me anything. She says fuck that (thank the gods) and so she tells me things they tell her. So the night before the assessment I help her with the form they MAKE HER FILL OUT before the assessment like "when did your child start walking/running" "when did they learn to ride a bike" "when did they start talking/writing" stuff like that. and I go ok. sure. autism can show in early childhood, it's a neurological developmental disorder. I get it. Even though autistic individuals can have average, slowed, or accelerated development (IT'S ALMOST LIKE ITS LITERALLY CALLED AUTISM SPECTRUM DISORDER) There's a question that catches me off guard. "what is your child's dominant hand" ...i'm sorry. back it up. *Yes.* There are studies that say many people who have ASD are left handed or ambidextrous. But oh. My. Gods. Above. THAT IS NOT GROUNDS FOR DIAGNOSIS; and you can also ASK THE KID during the assessment! What kind of question?! [I am right-hand predominant but I am ambidextrous.]

I move on.

I go into the assessment. On the table; the dr's introductory sheet in a photo frame. His title sits atop the document with a head, MADE OF BLUE PUZZLE PIECES alarm bells alarm bells alarm bells oh my fucking god help me jesus christ please help me i promise i'll believe in you if you help me right now please please plea "Hi!" A woman greets us, sitting in an office with the door open. I don't know her name. She doesn't stand from her desk. "I'll be with you in a moment." I laugh awkwardly. My mom says ok as the woman shuts her door. I tell my mom "I hate it here; can we go home?" Because I genuinely feel unsafe; I'm shaking. She laughs softly and goes "It'll be okay." So I put a brave face on bc I love my mom and she's nice and wait for the lady. She calls us in a few minutes later. I don't remember her introducing herself. I don't remember her offering a handshake or any other "polite" gesture. That would be something important to do, and I would have remembered it. She tells us how long it will be and a lay down of what's gonna happen and asks MY MOTHER FOR CONSENT TO FILM ME. Not ME for consent to film ME, an 18 year old. My mom turns to me confused and asks me if I'm okay with it instead. I go "yeah." (I was not okay with it); the woman told us the assessment would not happen if they could not film it. So I agreed; giving *assent* rather than *consent* was something I was pissed off about then and there. The woman asks HER if she'd like to stay so my mom asks ME if she wants me to stay, I hug my mom after I ask her to leave because I'm an adult and can handle myself. I don't need my mom to be there. I sit down. I have my pompompurin stuffed animal with me and a messenger bag with pens and stuff in it because I know there are things to write and don't like using other people's things. She doesn't ask about the bag. She sets up the camera and such, explaining that she'll have to occasionally turn to her laptop to make sure the recording is still going. I have pompom in my lap along with a fidget while she talks. She says something along the lines of "um, you'll want to put that away, you'll need your hands." And I go, rather firmly, something along the lines of; "I'll put it away when I need to use my hands. I am focusing on you right now." To which she seems surprised and goes "um... okay, that's fine." And continues on. (Was she not expecting an adult to have clear boundaries and be able to state their needs?) She offhandedly mentions something about [Dr] perhaps coming in to see me at some point during the assessment. My heart drops. She's not the doctor? She isn't the psychiatrist? What the hell?

The assessment begins. They're giving me tests for children, she said she made it harder. I disagree. I find the tasks easy. Simple games/puzzles. I tell her I like puzzles. She keeps throwing positive affirmation at me; I become annoyed with it after awhile because I know she's only doing it to make me continue doing the activity. It's common for people who work with children. She is infantilizing me. I know I was thinking it subconsciously.

The tests are not geared towards my age range, I notice immediately. I become miffed, going "these are too easy for me so far" or something to that effect. She laughs at me. I become upset. We start the reading part of the test. I read to show reading speed and comprehension. I read out loud to show my pronunciation. I read words that don't exist to show my reasoning skills when it comes to language. I am in my 5th year of high school (I struggle with school). This task is mundane and annoying. I feel like I am in third grade. I feel infantilized. I feel like the tests aren't going to be accurate. I am annoyed. I do it fast as I can to get it over with. Some of the reading pieces she makes me do multiple times.

We begin the mathematics part. I am not good at mathematics. She has upped the difficulty for the mathematics, she tells me. I begin; The first test is a Working Memory test; listing numbers she reads to me in a specific order. I am bad at it after the more convoluted ones. Some of the work is recognizing shapes and patterns. There is addition, fractions, multiplication and division questions. She points out I'm 'doing the test wrong' multiple times. I tell her that this test is stupid (or something to that effect) due to the structure. She laughs at me. There are a few tests I can't do or become quickly annoyed with (naming mean, median, and mode, prime numbers, fractions.) As I haven't done them since 11th grade level (I took a different math course and haven't done math since I finished my credits 2 school years ago.) We break for lunch after doing half of the mathematics.

I return to continue with the mathematics. I am still annoyed even after eating lunch. I had complained to my mother how it felt like torture: No eraser, No Calculator, no Tools, and no asking for help (She is not allowed to give me help, even if I don't know something.) I am on the brink of actual tears in frustration because I cannot receive help. I understand the potential why, but I think it's idiotic.

We begin the writing and listening comprehension. I am made to write an essay on a game I like and why I like it, I am given 10 minutes. I write it about Minecraft and it's offshoots. For listening comprehension, there are a few tests. I tell her about certain parts of what i've heard. Most of them are ads, so telling her what they say is easy for me, because it feels like slush and I have trained my ears to pick up more important information because of APD (Auditory Processing Disorder). She repeats them a few times to get me to tell her more. There are more working memory tests. Something with shapes, form, and colours. One about things she's listed. There's a test where I tell her a story in a picture book based on photos only. I am becoming tired. There's a test where I need to copy a picture. I am not allowed to trace the picture. I am not allowed to hold the picture. I am not allowed to use a tool. She says something about how I should like it because I told her I am an artist. I start going on while begrudgingly doing the test that this is horrible, this isn't what art is, and i'd like to not be doing it this way because it is impractical. She laughs at me again. I am annoyed. I get to take another short break after that.

There is another test when I come back with shapes. I see there are 8 pieces and a grid I must put them in; observing the grid, I go "I need all 8 pieces." She gives me 4 pieces. I frown. I say "I need all 8 of them, can I have them please?" as I put the 4 she gave me into the grid. She hands me 2. I put them in. I repeat myself. "I know I need all 8 of them. Can you give them to me please?" She gives me 1. I become insanely frustrated at that point. "What is this?" I go, "Can I have the last piece?" I ask her annoyedly, and she gives it to me. She's smiling. She thinks this is funny? I put it in the place. I rearrange the pieces into a nicer pattern in the grid because she annoyingly gave me the pieces while she takes her notes.

There is an activity where I have to tell her a story using 5 random pieces of garbage. She shows me how to do it first when I already understand the premise and was going to do it after the verbal instruction and presentation of the items. I know it is to assess my imaginative play. I am an 18 year old artist. This is easier than breathing to me. I do it begrudgingly because I am embarrassed to do it. She laughs at me again. I am so annoyed at this point I am thinking the most angry thoughts. What is her issue??? I don't say anything while I wait for the other tests.

I am presented with a test with over 100 questions. I say out loud multiple times "I don't have OCD" to multiple questions I've been asked before to assess me for OCD. She says something about 'Don't think about it. just answer.' and I say something along the lines of "I've been to therapy since I was about 12. I do therapy speak. I know what the questions are asking me. I can't not think about it." She scoffs at me. I am so irritated. Many of the questions ask me if I am suicidal. Many of the questions ask me if I am paranoid. There are questions about ego, and questions about self-worth, questions about poverty, questions about things that don't pertain (to see if I'm paying attention.) I finish the test. She asks if I answered honestly. I say "I think so." But I my answers will be different tomorrow. They're always different later. That's how surveys work.

One of the last tests is asking me questions and having me answer. Things like "do you have friends?" "how do you feel about relationships?"; I ask her "Well, how do you define relationships? Are you in any? Are you asking me about friendship or dating?" She tells me she has a partner; a husband if I recall. I say something about marriage and romance. She asks me more questions about feelings, boundaries, relationships, and experiences in my life. It is the last test.

We leave the room to talk to my mother in the waiting room. I have not seen [Dr] once. Girl asks me what my pronouns are. I tell her it/its. She complains. I tell her too bad flat out. We leave.

I only learn upon getting home that her name is Alison.

I wait a month for my draft results. I had to get my teacher to fill out a form. I had to sign a consent form for them to do that which they made me do digitally after the assessment and CLEARLY wanted my mother to sign. She gets me to sign it because I'm an adult. She understands.

My mom sits me down. She goes "You aren't going to like this." I frown. "I'm not autistic?" She nods. "You aren't. But they said you have 3 or 4 other things."

Alarm bells again. I get her to bring up my draft assessment on the computer for me to read. I am enraged. They refer to me as "transgendered". They misgendered me. There were numerous, insane typos that would be easy to catch on the first pass.

I begin work on an Essay/Paper telling them why their assessment is bullshit and how I meet the criteria for autism spectrum disorder. (I READ THE DSM-5 AND DSM-5-TR FOR THIS CRAP.) I also berate them the whole time for their behaviour, the nature of the assessment, and lack of care. A week or so later I get the final draft. They still misgendered me; and there are still typos. I get my mom to email it to me and I send it to multiple of my friends, my Therapist, and give her my consent to share it with my Psychiatrist and anyone else she sees fit with her discretion with the password for the protected document, along with a screenshot pointing out the most glaring typo (being misgendered.) My therapist and psychiatrist show it to the Autism Lead in their district with my consent.

I receive an overwhelmingly positive onslaught of "this assessment is bullshit! You SHOULD be angry." The autism lead tells my therapist I do likely have autism based on what was shown and told to her, and to get a second opinion (as she can't diagnose me without assessing me herself). I tell my therapist more about the assessment. She does some research.

The Psychometrist (someone who administers psychological tests/assessments) is underqualified during time of assessment.

Medical Negligence.

[Dr.] Is clearly on grounds to be tried for Medical Malpractice.

I am now working on submitting a complaint and finishing my paper.

I may potentially be involved in legal trouble against the psychologist I never even got to see or speak to.

Fuck that guy.

[disableddyke]

“why don’t you just go see a doctor” i go see doctors and they perform $10,000 worth of basic tests that i’ve had done hundreds of times and already know will come back normal and then when they inevitably do, they tell me they don’t know what’s wrong with me and send me home with zero answers, the same problems and a medical bill i can’t afford. don’t tell me i just need to see a doctor.

[pro-birth]

Amber Thurman's hospital is flooded with negative reviews from patients who complain about the neglectful care they received there, in all sorts of medical situations.

Further proof that pro-aborts will use dead women's bodies to fearmonger society about abortion laws, when the REAL culprit has always been shit healthcare to begin with. If you want to give af about birth and reproductive justice, then STOP IGNORING WHAT'S ACTUALLY HURTING US.

[alexandraisyes]

Hey guys when a child tells you that they're in pain you don't tell them to walk it off.

This is coming from someone who was just about to start sobbing from his chronic hip injury they got in the behavioral health hospital when she was 15 where the doctors told him to "walk it off".

And continued to say that for the next two months.

And then when he got home her parents told her the same thing and told her to stop being dramatic.

For eight months.

Finally, when it got to the point that they literally couldn't walk more than half a mile a day without their hip buckling and giving out and them being in so much pain they would start crying at random - then they took her in to get checked out.

We had to go and get an X-ray, and the X-ray showed that I (yeah the hypothetic kid was me, shocker) had damaged and scarred tendons and ligaments in my hip. We went to a physical therapist, but there wasn't much they could do. "Oh just exercise", isn't good advice when I had already been getting in an hour of good exercise every day. Everyone has told me I need to exercise for years, it doesn't help. My injury is getting worse the older I get, and I'm only 19. It interferes with my work, and with my life.

I need to see a doctor, I can't afford that. I don't have insurance. I can't get a job with benefits because I can't work with my hip like this. The strain has leeched down to my knees and my ankles over the years, and when I sprained my ankle last year it only sped up the process. I didn't get any treatment for the ankle other than ice, and my dad didn't let me rest it. I didn't have any mobility aids either.

So fucking please. If your kid tells you there's something wrong, listen. What kid is going to lie about a hip injury for 8 months?

[wormworker]

( content notes: fatphobia, medical negligence )

GUESS WHAT. Doctors have been wrong about me for nearly 10 years, if not more!!

I told them I had a hard place in my belly. That it wasn't all just adipose. They NEVER LISTENED. I thought it was a tumor that kept growing bigger.

2-3 years ago, I did the "family testimony" cheat. Instead of telling my primary care physician that I was concerned about my abdomen, I said my family was.

FINALLY got my ultrasound scheduled after that. Smh.

Ultrasound results: Gallstones.

Doctor said it wasn't serious enough to have surgery.

But it had to have been serious, because the hard place in my belly was so huge that I often felt it pressing against my ribs & it was becoming too painful to sit or stand without a bra.

This was because the weight of my chest would rest on the hard place if it wasn't supported with a bra. Didn't hurt when lying down.

Eating hurt, too. Exercising hurt terribly, as it had since I was little, only it's much worse in adulthood.

There was obviously something serious. But I was so sick of going to the doctor & of being treated like I was a woman from the 1950s with "hysteria."

And then, a month ago, I had the worst abdominal pain I'd ever experienced.

I went to bed early with discomfort. And then I woke up with extreme pain. Enough that, despite my history with doctors telling me not to, I HAD to go to the hospital.

At the time, I thought it was my appendix. I had no idea gallbladder complications could cause such acute pain.

Around 8 hours after I got to the hospital, they took out my gallbladder laparoscopically. I went home an hour later.

I thought my belly looked funny. There was a weird dip in the middle, Like I was made of memory foam & had been punched in the gut.

It almost seemed to keep changing shape throughout the month.

Now, 4 weeks later, the swelling is gone. Once I noticed a strange shape again, I finally felt safe to press on the area with my hand.

Pushed right in. No hard mass anymore. It's all just fat now! No more pain!

YEARS of so much agony, confusion, body image issues, & disordered eating could've been avoided if just ONE doctor, nurse, etc, would have just LISTENED to me!! And treated me like a PERSON!!

[risingscorchingsuns]

im so fucking mad at the healthcare system guys. I have an appointment regarding my MALS this Thursday. I’ve been on the waitlist for six months and just to GET that appointment I’ve had to threaten to sue for medical negligence because nobody would even look at my case file. As a backup just to ENSURE that they actually take me fucking seriously, I am bringing my cis male friend to pretend to be my relative and that hes very worried about me. I’m so fucking mad if I were a cis man id have had the surgery I need by now, or at the very least a goddamn follow up email. medical misogyny I hate you I hate you I hate you everything about this is demeaning

[angrydino42-and-avathecannibal]

I’ve been bringing this up in every conversation I can but medical discrimination exists. And it can be life-ending.

If you request a procedure, scan, exam, or anything of the sort, and your doctor denies you, then tell them to mark it on your chart that you asked and they denied.

If you die from a complication that could have EASILY been prevented by those checks, they can be sued for medical negligence and it will make most doctors think twice before completely denying you.

Sometimes, you know your body better than they do.

I once read a story of a coroner who had a cadaver that had a history of “hypochondria, anxiety, medication reliance and addiction.” Well, when he opened up her body, she had scar tissue across her whole body up to her diaphragm. She didn’t have fucking anxiety. She had a medical condition. A condition that caused a death that could have been prevented.

[cripplerage]

Pro tip for any marginalised person going to the ER for heart attack symptoms: if you can take an antacid before you go, do it. It's a tip my nurse friend told me. There's a pretty high chance they'll tell you to take one when you get there so saying you've already done that and it didn't work might help you get listened to sooner.