#I feel so sick all the time
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my son Me who has every disease
#I Feel So Sick All The Time#was just reading abt autism comorbid physical conditions#actually autistic#perpetual notions
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i want to ***
#.#whatever#vent post#i’m so.#..#tired#like#why do i even bother#who do i even talk to#i feel so sick all the time#literally. sick. anxious enough that i feel sick to my stomach#and after my concussion my memory has been going out…i’m scared#and you know what sucks???#i’ve actually progressed to the point where i can’t make certain bad decisions anymore#they don’t make me feel better#so wtf am i supposed to do now lol#cant *** or have brainless sex#bc both of those things make me want to kms#lol#and i like. can’t drink. like i can’t#cant do that to myself#cant. won’t.#shouldn’t#so what do i do#sit around#every night#just#be alone?
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idk if you guys know this but pregnancy is the worst and I am not having a good time
#I’m sure this kid will be worth it in the end but right now I’m dying#I feel so sick all the time#it’s miserable
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
[plain-text version of this post can be found under the cut]
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
Plain-text version:
Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
P.S. Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
#hlep#original#mental health#my sympathies and empathies to anyone who has to rely on this kind of hlep to get what they need.#the people in my life who most need to see this post are my family but even if they did I sincerely doubt they would internalize it#i've tried to break thru to them so many times it makes my head hurt. so i am focusing on boundaries and on finding other forms of support#and this thing i learned today helps me validate those boundaries. the example with the milk was from my therapist.#the example with the towing company was a real thing that happened with my parents a few months ago while I was age 28. 28!#a full adult age! it is so infantilizing as a disabled adult to seek assistance and support from ableist parents.#they were real mad i was mad tho. and the spoons i spent trying to explain it were only the latest in a long line of#huge family-related spoon expenditures. distance and the ability to enforce boundaries helps. haven't talked to sisters for literally the#longest period of my whole life. people really believe that if they love you and try to help you they can do no wrong.#and those people are NOT great allies to the chronically sick folks in their lives.#you can adore someone and still fuck up and hurt them so bad. will your pride refuse to accept what you've done and lash out instead?#or will you have courage and be kind? will you learn and grow? all of us have prejudices and practices we are not yet aware of.#no one is pure. but will you be kind? will you be a good friend? will you grow? i hope i grow. i hope i always make the choice to grow.#i hope with every year i age i get better and better at making people feel the opposite of how my family's ableism has made me feel#i will see them seen and hear them heard and smile at their smiles. make them feel smart and held and strong.#just like i do now but even better! i am always learning better ways to be kind so i don't see why i would stop
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July art
#linkeduniverse#creator content#artworks#Comic update soon#Wild hums#Or he could borrow one of the many ocarinas legend owns#Legend has so many instruments but I picked a small one that wasn’t an ocarina#spent all of July very very sick#I'm finally starting to feel like myself again#Being sick sucks!#So much precious time lost#And I missed a whole month of beautiful warm sunshine!#Sunshine is so rare here
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Having no choice but to try and find at least a part time job remotely. Hoping I get a coding job because no phones lol
I wanna fucking die everyday and if it wasnt for my dogs I would probably stay in rock bottoms basement. I'm trying for them. I don't care about myself.
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I want it back = I drag its dead weight forward
#artists on tumblr#animation#in stars and time#isat#illustration#in stars and time spoilers#isat spoilers#like for real#anyway I'm still thinking about Siffrin Instarsandtime#shoutout to tumblr user jb-blunk for the words from the caption which inspired this whole deal#literally finished the game and had those words looping (haHA) in my head like 'how do I use this what can I do to match this feeling' LMAO#if you haven't played ISAT well. first of all stop looking don't glean anything from this shhhh- but also GO PLAY IT IT'S EXCELLENT#heavily based off the astronomical clock in Prague! I love that thing so it was really fun to try and make it more ISAT-like#bc the themes are already there yanno!! Stars n' whatnot! And then of course the craft types instead of the astrological signs!#Loop and the King for the sun and the moon!!#can you tell I thought about and planned this one for like. A while. Longer than I usually spend LMAO#so yeah go play it immediately come be absolutely ILL and SICK and PLAGUED about the secret boss with me#fanart#pic
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yeah so this was insane
#i feel like too many people reduce this interaction to jason being like ‘lol same’#but idk :/#this chapter is from jason’s pov#and leading up to it he’s like ‘people keep walking on eggshells around me bc of the the michael varus stab wound’#and he hates it so when he goes on deck to help out with the storm#everyone’s like wtf except for percy#and jason states how much he appreciated percy not treating him like a sick kid#and i feel like it’s echoed in this sentiment where jason could say so many things like#‘you should never feel that way’ ‘im here if you need anything’#but he doesn’t make percy feel alone in his desire to just…. end it all#which ik for some people that doesn’t work but you’re not a character in hoo and percy is dealing with so much guilt#and he can’t tell annabeth bc she’s a main aspect of that guilt#and he doesn’t wanna guilt her more and he feels ashamed and when he describes this he feels weird for feeling it#so having jason this tough guy be like ‘yo i understand it bc i felt the same way#that’s gotta mean a lot to percy#also insane how jason who also struggles to display vulnerability#allows it in one of few times in this moment just so percy this guy he’s supposed to be jealous about#feels comforted and not alone in his guilt and shame#and also it’s just insane how jason’s wanting to kay em ess does not get talked about AT ALL#and just seeing his mom and the pressure of new rome getting to him#like this scene is insane and i’ll never shut up about it#also ignore me i’m just finishing my reread of hoo that took all summer#jason grace#percy jackson#pjo#ashla.txt
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look at this idiot not aware that his body is warm and his touch comforting everyone point and laugh
#homestuck#hom3stuck#home24uck#home2t4ck#dirk strider#jake english#dirkjake#admin draws#fanart#i got sick of looking for a ref so i doodled this real quick yesterday#ive been in a 'need hug' mood especially after the exam and sleeplessness preceding it#and thinking stuff#so what better way to process all of this than you guessed it. shoving it onto dirk#short tags this time cos im doing something else but i have lots of things i want to make.... its a shame im not feeling it again#if someone wants to give me excuses to talk about them the ask box is open for more than just rqs
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Normal boy spotted.
[First] Prev <–-> Next
#poorly drawn mdzs#mdzs#wei wuxian#wen wing#wen remnants#Wen ning#This scene felt like a bit of a fever dream. We have (with little to no comedic exaggeration):#1) WWX whistling and somehow summoning not one but several horses to his side.#2) meeting the surviving Wen sect members who insist on not leaving Wen Ning behind.#Only for it to cut back to Wen Ning ripping a guy in half. (Not pictured here. I tried so hard but I could not make it look good).#Personally I feel like we moved on way too fast from the horse thing. Where did they come from? WWX couldn't have brought them.#He *just* found out there were more people left behind.#So...are the from the Jing sect? Are these disloyal horses? Or does WWX have incredible animal charisma skills?#It feels a bit like a DND player asked to call in some horses and the DM said 'Sure if you roll well enough' and it was a natural 20.#Maybe this is just my own envy cutting through. God damn I wish I could whistle and summon a horse to my side whenever I needed to.#I know I should not be so hung up on the horses. But my brain is cooked. I have been so sick.#The kind of sickness that makes it hard to breathe. Or think. Or have any energy at all.#I wish I had good commentary to write here. I just...really want a nap. And for October to restart to make up for all the lost time.#Thank you all for being so kind and patient once again. It truly means a lot.
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On average, what is the total MONTHLY amount that you spend on dining out*?
*(This doesn't only count going out to restaurants, but also stuff like picking up fast food to bring home, getting a coffee on the way to work, getting a premade sandwich from a grocery store deli during lunch, buying a quick snack from a convenience store or food cart whilst walking somewhere, ordering a pizza or any other food to be delivered to your home, etc.)
*(If you often dine out in groups/as a household: calculate and divide the costs so that you get a Per Person average. This is for YOU individually, NOT the total household/group costs)
(I'm sure polls similar to this have been made before (very common topic), I just haven't personally seen one that I can remember, so, I was curious to do my own! I was discussing this with a group of people today and it was very interesting to see how widely the number varied between individuals. :0c )
(Reblog for bigger sample size if you can, and feel free to explain your answer in tags if there's anything extra to add!)
#polls#tumblr polls#I'm mostly in the 0/1 - 25$ category. Maybe the rare month is a bit over $25 if there's something specific going on like birthday.#Which I'm NEVER eating in an actual restaurant (erm... covid... plus I just hate restaurant environments. i would rather pickup#the food and bring it home to a peaceful quiet environment that I control lol). But more typically like stopping by a grocery store deli#section or something. I don't have coffee that much. And I can't eat fast food much due to my health issues/diet restriction stuff#so if I'm out like coming back from an appointment and I start feeling really sick and weak. I know that a hamburger will just#blow up my system and cause nausea or something. So I try to pick the breadiest most#neutral looking turkey sandwich at the safeway deli to eat during the hour ride home or whatever lol#I actually kind of wish I could do stuff like get food more often vecause it would take the burden of cooking everything off of me#but.. alas... Money... and Health Things... T o T#I still wouldn't do it ALL the time but like... once a week instead of once a month or something.. or maybe turning into a coffee#person.. I do love drinks A LOT .. i am a drink person who will have 5 different drinks sipping on at all times#But i just have to make them all myself mostly lol#And I cant really have too much coffee since it will make me sick. so like.. teas and juice mostly#When I inevitably become a millionaire by never using social media never networking and only finishing one#sculpture every 5 months which I dont even post about or sell - then I shall... get more drinks..#I will somehow wean my body onto coffee and drink one a day solely for the ritual of it#Though even then... I would still probably just like.. buy the mateirals to make it at home or something#Like if you had a million dollars you could just buy a kitchen grade ice cream machine and other stuff to make your own milkshakes and#coffees and smoothies and bubble teas. Genuinely I think even if I were a BILLIONAIRE I would still look at playing likr $8 for a single#coffee and go .. uh.... I could just buy the equipment to make this and then save that money. PLUS. its in my house now so no need to#have to leave. I can make my own drinks in the comfort of home. .. ideal..#Like no matter how rich I ever got I would still have the lingering scroogey stinginess. like i am NOT paying for that. I will jus#make it myself. Especially if it was an Everyday thing. Anythign thats part of my routine I try to optimize and make as efficient as#possible... ANYWAY.. In an IDEAL world I would get treats. but probably not that much. as on a daily basis it would start to get#to me and I would just save up to buy kitchen machinery if I was rich lol
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[clonking isafrin together like dolls for my enrichment]
#isat#in stars and time#siffrin#isabeau#isafrin#isat siffrin#isat isabeau#lorne art#my tummy hurts today and im being SO brave about it (read: called out of work bc i felt sick all night)#drew this to make me feel a little better#also idk if these two have other ship names but isafrin sounds the best so im sticking with that 👍#people seem to like my sketches better than my finished stuff so im gonna try to post more of those
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I need to find the person who decided Cait will go from a rich girl ashamed of her privilege and trying her best to make the world better, to someone who weaponizes her social and monetary capital for selfish goals that contribute to the oppression of the lower classes, the MOMENT she goes from heiress to leader. and give them an enormous kiss right on the mouth
#her family FUNDS THE ENFORCERS. THEY HAVE BEEN. FUNDING ENFORCERS THIS ENTIRE TIME.#and the ONLY REASON she threatened to pull funding was to GET VI ACCEPTED INTO THE FORCE.#not for any actually GOOD reason. she now has all the money and power to do all that good she'd always dreamed of.#but now she thinks of those she wanted to protect as animals. as rotten. as someone she needs to protect FROM.#i am going bonkers crazy this is so good. money and power changes you. everyone is vulnerable to moral failure. so good#arcane liveblog#arcane spoilers#s1 vicait breakup was a lil silly to me because i didn't feel they were THAT different. but i was naiive. i was blinded. vi was right.#s2 vicait breakup is breaking my heart because it is directly caused by how different their upbringing is. they are on completely different#social levels. there is such an insane imbalance there and vi jumped headlong into it thinking it didn't matter because she was loved.#i am SICK. to my STOMACH. i LOVE THEM
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You know what? You know what I think?
I think that if we lived as we were meant to, in larger intimate ("extended family") groups and with more shared labor and time to do it (UBI NOW) people like me would not feel so useless and burdensome because there would be people around to help and to do what neurodivergent people can't while making valuable space for the neurodivergent to do what they ARE good at.
The way we live right now, all right, the way we live right now forces units of two adults to be able to do EVERYTHING or PAY to have someone come do it for them. I have to do the housework. I have to do it! But I am having to do a million different things and most of them I am not good at. I suck at them.
I wouldn't feel like shit, okay, if I had more than one other person around who was not a child and who could do the things I can't, like do the yard and cook and do repairs and basic maintenance; and someone else to split everything else that I like but is too much for me. It would free me to do what I am good at and enjoy. Cleaning, as in the sink and toilet, the windows, the blinds. Taking out trash. Folding, hanging, and sorting laundry.
But because all the shit I can do often relies on other shit being done first, and I can't do or have trouble doing those things, the shit I can do often can't be done. And even the shit I can do, I can't do ALL of it. So I can't keep up, and things get very bad.
We aren't meant to live like this. We are not meant to live like this.
That thought hurts so much because being able to flee the birth family is integral to survival for so many people. I'm so afraid that living in larger family groups would create more opportunities for, say, queer kids to be isolated, rejected, bullied, and abused. But if we gave people enough money to survive, and stopped considering children the property of their parents with no system in place to help them escape bad situations except a system that is often just as bad, just different.
I'm aware that communes and collectives aren't all that successful and are kind of a joke. I don't mean that. I mean a fundamental shift to multigenerational families where taking in "strays" (which my family did) is also normalized so people escaping abuse into existing households was accepted, with these families centered in maybe a couple of different larger residences so not everyone has to buy and maintain their own fucking washing machine and vacuum cleaner, and so people can benefit from large group meals that yield leftovers, and so child and elder care can also be centralized.
Then disabled people and the neurodivergent and sick and injured people, and pregnant people, and grieving people, would not have to either labor through all those stressors or consign themselves to living off an unlivable pittance or being put under legal guardianship.
I'm not saying anything new. People live like this in other parts of the world and maybe it sucks and I am wrong. But I'm just really mad right now because I can either do laundry or clean the sink but not both, and I really think we could improve society somewhat by making it so I did not have to choose one without sacrificing the other.
#im feverish feeling (not a real fever just malaise that i have no other way to describe) from the IBS (which can affect you like that#)#and i don't actually want to do ANYTHING#i would have to even living with others but it would be easier#at the very least i wouldn't have had to clean the microwave earlier which is hard because my arms are like the size of a meerkat's#and i can only reach the back with my fingertips#where is my BF in all this?#WORKING FULL TIME WITH BACK PAIN#yes i AM going to want him to have to do as little as possible when he comes home#he's neurodivergent too and struggles with the same shit#it's all a mess#we are doing way better i didn't realize how deep a drain three very sick cats were#but there's still only two of us#if you are disabled physically OR MENTALLY you should at least get in-home household help once a week or so#there's places that do that but the limitations are usually severe and always rule me out#because im not single im not an elder im not a veteran and im not physically disabled#if we have to ration that sort of thing i can see how on the whole it is more caring to allocate those resources to for example elders#but the fact that i celebrate what help there is doesn't mean i don't get mad that more people can't access it#is2g if i was functional enough snd physically sound enough i would start a charity that did intervention cleaning for people like us#who have fallen behind and can't catch up but can MAINTAIN#and who helped people clean for a few months during and after an illness pregnancy trauma major loss etc. so they could stay on their feet
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AGH happy (definitely-not-late) bday to mr jamil viper 💖🐍 and thank u harveston jamil for coming home as well as two of his bday cards 💖💥
#i put WAY too much effort into this and;; i dont even like it 100% 😭#i gave up on the patterns </3#but anyways#thank u jamil for ruining my life ily#also happy holidays everyone (it’s literally still back-to-school season)#actually technically it's already christmas in the philippines#so uhhh#it fits???#thank u harveston sledathon for the perfect timing#[—✦-#-✧ my art#twst#twisted wonderland#twst art#jamil viper#harveston sledathon#-✦—]#also also i havent??? posted art in almost a week???#das crazyyy#i got sick the day after his bday when i was supposed to be finishing up his art >:[#then i just lost all energy for a bit i couldnt do anything 😭#anyways it’s like. 4am i cant sleep#so i decided to just finish up his bday art 😤#who knew drinking thai boba milk tea at 5pm wouldnt be such a good idea#i feel like i’m unnecessarily rambling more than usual lmao sorry 😭
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cant stop thinkin bout charles and erik readin together on the couch but instead of reading with him charles is listening to eriks thoughts while he reads. Live mind commentary ……..
#xmen#cherik#charles xavier#erik lehnsherr#snap chats#the rare time i post an idea of mine only because i really cant think of a way id draw this#usually i hoard my ideas cause i like surprising you guys but this aint really one i feel like drawing so. For You my friends#like i COULD but. idk just isnt particularly something im itching to draw it just seems cute#but anyways no chat let me cook alright hear me out cause i talk in my brain all the time while i read#sometimes i stop reading just to think about a bit i read yeah#i want charles to listen in on all of eriks side comments or observations he makes while reading something#like if he wanted to charles could read the whole book in less than five minutes- maybe shorter than that#and that aint fun that aint cool …. so time for Audible: Husband Edition. With Commentary#ITD BE SO COZY just hangin out by the fireplace …. maybe its snowin outisde … if snow even exists anymore atp#a light fire cracklin and the study SEEMS totally quiet otherwise and yet…..#charles has been locked in to erik’s off-the-cuff literary analysis and mild comments for the past twenty minutes. its simple but its bliss#charles doesnt have to worry about being seen as invasive .. he doesnt have to suppress his powers …#the rare occasion erik lets charles into his mind for somethin so innocent .. ive made myself sick i fear#see now i wanna try writing a fic but 1.) have written in years 2.) id have to really think hard on how erik would commentate on a book#hm…… actually i do wonder what erik’s commentary on The Fable of the Bees would be …..#IN ANY CASE. maybe - at the very least- i can draw cherik by the fireplce someday ….#thatd be cute … hm …. depends on if i get in the mood for it down the line#anyways i have to drive back to my dorm !!! boo !!!! so good night everyone !!!!!
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