#HemiplegicMigraine

[almostasenior]

Shield Your Eyes From Blue Light

As a lifetime sufferer of migraine headaches, I always seek ways to avoid attacks.Throughout the years, the migraine experience continued to change. The “aura” appeared at the onset during my teen years. The best way to describe this phase is a sensory disturbance. You may see flashing lights, blind spots, and tingling. Soon after it goes away, a pounding headache and nausea set in.In middle age,…

[lelibug]

FEEL ACTUALLY ENTIRELY, IN EVERY SINGLE WAY, SICK to my stomach with myself when I’m doing this. And I Cannot WORK OUT WHY I am….

I need to, though. I HATE IT.

And I don’t know what the Hell is going on right now, but it’s Horrible.

Fibromyalgia, Hemiplegic Migraine, Vestibular Migraine, Long COVID are all individually and in concert are Absolutely Wrecking Me. PAIN, Paresthesia, Disturbing Sensations, AGONY, Exhaustions, Fatigue, Fragile, Physically Trembling, resulting in Depersonalisation & Disassociation… Everything Is Overwhelmingly Too Much.

HOURS & HOURS & HOURS GO BY EACH & ERVERY DAY… AND I’VE STARED AT MY PHONE, LAPTOP, COMPUTER, THE WALL, THE FLOOR… UTTERLY VACANT INSIDE, WITH NOTHING BUT RAMPANT & PURE CHAOS IN MY BRAIN AND IN MY MIND (oh, yes — they’re Two VERY Different Things!!)

My Existence is Vanishing before my unfocused eyes, and I am seemingly Incapable of, unable to, or Struggling To Manage to Grasp a single millimeter of purchase on it, get even a SMALL say in what happens or what I do with whatever time I have left here – whether it’s ten years or Six Decades.

Agitated… Jerky & Jittery… Can’t Think AT ALL… Physically CAN’T Move & BRAIN is Driving Me To DISTRACTION Over It.. TOO MUCH STRESS = Too Much Fight-or-Flight Chemicals RUSHING THROUGH my system and NO WAY for my to BURN IT ALL OFF without HELP… And There Is No Help…

Read more (via RELENTLESS)

[woahitssarrah-blog-blog]

I hopefully don’t have another one coming down the line but I’ve really not been 100% since my last migraine. And I don’t have normal ones so I Oren get freaked out depending on what is going on. Hopefully I wake up tmw and I feel like myself again. #migraine #hemiplegicmigraine #FUmigraines https://www.instagram.com/p/CQM5aU-rf1AmIEHd9Mkg279-vGQZLOvXgQi-xk0/?utm_medium=tumblr

[craftygal65]

RepostBy @migraine_is_not_a_pose: "Credit: @migraine_support #migrainepose #disability #migraine #chronicpain #chronicmigraine #chronicillness #complexmigraines #hemiplegicmigraine #migraines" (via #InstaRepost @AppsKottage)

[easternexotics]

Visit our Facebook Page for more information link in the Bio! #hemiplegicmigraine #epilepsy #migrane #wildlife #awareness #nonprofit #nonprofitorganization #fundraiser #reptile #lizard #stopkillinganimals #support #crocodile #crocodilians #parrots #macaw #monitorlizard #frog #ocean #nc #charity (at Eastern Exotics Wildlife Foundation) https://www.instagram.com/p/ByGnftPBXIy/?igshid=1w8dmfwi7vk6p

[sacredjinx]

Life's Steel Toe To The Face

My life is playing out like a tragic country song. I tell you what...most the time I post, I carefully regulate my words. I try, always, to keep a positive for every negative. I'm not sure I succeed, but I do try.   THIS is not a silver lined time, so I drop my mask. I. Am. Devastated. Through to my soul. The ONLY time I am ok is when I'm saving face in front of others. I've never want to be a burden, a bummer, a wuss. So I fake it. But...     I am wrecked. Ma's car smashed. My car totalled. No insurance assistance, no easy feat to replace them. Surgery on hold, back gnarled & twisted. Diagnosis super rare, already in later stages. Vision failing without Immunosuppressants. Unclear how/when I'll be monitored & treated by Stanford docs. W's visiting his folks, where I desperately wish I was.    Instead, I'm going full wackadoo. Unable to eat. (barf if I do) Unable to sleep. (migraine trigger if I do) Hemiplegic migraine joins this dead mans party. Hacking my hair, nipping my skin. My only distractions: videos, music & cable. But No! Life couldn't stand to see me with such "luxuries". And since they are all hooked up to my TV, when it broke hours ago, it left me in silence.    No, I'm not doing well at all. We all have a breaking point. I do believe I've reached mine. This is MY reality, filters off. And it's some DAMN BULLSHIT. So sorry if my weakness irritates, but I'm not a robot of strength & courage. I wish I was, I try to be. But 19 years of painful existence, decomposing, symptoms, survivor/surviving sepsis/pss, coma, blood loss & flatlining, being doubted & accused, and having to fight like hell every minute of every day will mess you the fuck up.

[ladyvilyaofrivendell-blog]

I don't understand

I don't understand why my emotions aren't valid. Why do you both think they are so easily "fixed"? Why is it so hard for you to listen to doctors? If they argue against you, you think you know more. You, who never went to med school, know more? I do what you say, yet you are always angry at me. I'm a disappointment, so why haven't you gotten rid of me? Why do you stand in my way? Why is my pain not valid? You saw me take injections to the temple, face, skull, neck, & shoulders. You heard it is a treatment forever, yet you get angry that I am not cured. The doctors said I won't be cured or fixed. They are trying to limit the pain. Why didn't you listen? I worked for you. The computer light, the ringing phones, the yelling clients, your mood swings, lying for you... you hated me still. I worked, because you said so. On my feet 8 to 12 hours, carrying hot plates, being the outlet for strangers' anger, being the outlet for coworkers' anger, smelling like a variety of sauces, & grinding my teeth through the pain. It wasn't enough. Now I feel the pain as if I just did a shift yesterday, but it isn't real to you. I'm too old to live here, but my plans to leave are unacceptable. I have no money now. My friends are small and I don't wish to be a burden to them as I am to both of you. You taught me what I am. A burden. A disappointment. A failure. If I wasn't Christian, I would have left you by now. I would have been a memory you could twist for your own story, to gain sympathy, but God said no. God wants me here, but this is hardly living. I can't even accept a friend's generosity to give me time away, because it discredits my pain to you. Taking her gift was wrong of me. If I hadn't, you would have said I was acting like a martyr. Money isn't love. Forcing me to sit with you isn't love. Being the outlet for both of you isn't love. I haven't developed enough to be free. At this rate, I might never. I don't understand what you see when you look at me. I don't understand what you want when you yell at me. You want success, then support the doctors who are trying to help. Don't pick apart their treatments & decide you know best. You don't. I can't be fixed. I don't understand....

[youngandpained-blog]

My ‘type’ of migraine.

There are various types of migraine. I, unfortunately suffer with the rarer type.

Hemiplegic migraine is a rare and serious type of migraine headache. Many of its symptoms mimic those common to stroke; for example, muscle weakness can be so extreme that it causes a temporary paralysis on one side of your body, which doctors call hemiplegia.

When I say I get these bad, I’m not joking. I’ve been taken to A&E on a few occasions from these. So you can imagine when someone says... “It’s just a headache, relax” the last thing I do is relax. Let me take you through what I experience on a good episode and a bad one. 

See above post.

[kimbliboo]

Apparently Sunday is migraine day now

[lovesilentfury]

🔪🔥 Credit to from @strength_in_struggles (@get_regrann) - What doesn't kill you gives you a dark sense of humor. 😂😈 #chronicillness #invisbleillness #dysautonomia #neurocardiogenicsyncope #posturalorthostatictachycardiasyndrome #POTS #ehlersdanlossyndrome #medicalzebra #hemiplegicmigraines #gastroparesis #chronicpain #intractablemigraine #superventriculartachycardia #epilepsy #postconcussionsyndrome #antiphospholipidsyndrome #lupus #osteoarthritis #toomanyillnessestohashtag #illnesshumor #dontdoubtme GoddessStrong (at Park Hill, Denver) https://www.instagram.com/p/B1fQK4nF-kl/?igshid=t3lhi1ln73xq

[runningmeanforapharmd]

June is Migraine Awareness Month. 💜 One thing a majority of you all don't know about me is that I fight an invisible battle on a day to day basis. I have the rarest form of migraine called Hemiplegic Migraines that affect only 100,000 people. This essentially causes me to have all stroke symptoms while having a migraine occur. This effects one side of my face (as pictured above), causes slurred speech, optical blind spots or auras, and weakness/twitching on one side of my body. Migraines are always mistaken for just a headache but when in reality it causes more issues than a simple aspirin can fix. For the past 10 years I have been on countless different medications to try and prevent these episodes from happening frequently. Let's stand up to this invisible condition and for all of those who battle it. Some day we will defeat migraines and all of the subsets once and for all. This month I wear purple. 💜 #migraineawareness #hemiplegicmigraines #livingwithhm #june

[lelibug]

(via RELENTLESS)

... Fibromyalgia, Hemiplegic Migraine, Vestibular Migraine, Long COVID are all individually and in concert are Absolutely Wrecking Me. PAIN, Paresthesia, Disturbing Sensations, AGONY, Exhaustions, Fatigue, Fragile, Physically Trembling, resulting in Depersonalisation & Disassociation... Everything Is Overwhelmingly Too Much. And The Weather with RollerCoaster Isobars driving it.

[chronicbodylove]

So great to have some leg power today to rummage in the French market. I ate my first Beignets at @cafedumonde nomnomnom and inhaled an award winning rib PoBoy at #mahonyspoboys man am I a happy traveler good things were accomplished today! . . . . . . . . . . . . #neworleans #frenchquarter #cafedumonde #eatneworleans #mahonyspoboys #poboys #beignets #cocktails #spoonieontour #spoonies #pwme #hemiplegicmigraine #travelblogger #digitalnomad #stlouiscathedral #stlouiscathedralneworleans (at FrenchQuarter NewOrleans) https://www.instagram.com/p/BrG1YruhRh-/?utm_source=ig_tumblr_share&igshid=8te353lyict3

[craftygal65]

RepostBy @migraine_is_not_a_pose: "Credit: @migraine_support #migrainepose #disability #migraine #chronicpain #chronicmigraine #chronicillness #complexmigraines #hemiplegicmigraine #migraines" (via #InstaRepost @AppsKottage) https://www.instagram.com/p/B0gl6lpJXbL/?igshid=1xjtn8w6ygvb6

[fashnontap]

When you get home from the hospital and This Sweet Girl won't leave my side 🐾💜 Just another proof of Gods hand on my life.. having just returned from a month long trip around Europe I'm just so thankful that I've learned to listen to my body and not fear the doctors and going to the hospital ....It's just more proof that God is with me every second because this happened while I was in my home country not in someplace in Europe... #wackyheart #heartscare #noclue #thoughtItWasTheFlu #whenInDoubt #call911 #womenssymptomsaredifferentthanmens #GodIsGood #Faithful #FaithOverFear #byHisStripes #myStory4HisGlory #prayer #healingtouch #noGodNoGood #GodWatchesOverMe #grateful #thankful #HisLoveEndures #healthproblems #fibromyalgia #sneddonssyndrome #hemiplegicmigraine #miracles #justbelieve #imLivingProof

[spoonielivingapp]

Thank you for sharing 💜 Sending Spoons 💜🥄✨🥄💜 Repost: @you_cl0d me on a "good" day (left) vs. me on a "bad" day (right). the left was me a couple weeks ago with considerable fatigue and pain. the right was me a few months ago after multiple anxiety/panic attacks and sensory issues and pain, emotional, mental, and physical problems. this is so important for people to see, because i have to be so strong to be where i am. every day is a serious struggle for me but i've made it almost three years with more severe problems and i'm making this post to force myself to be proud of it! sharing my story is hard but also fun and necessary, awareness is key. #spoonie #spooniewarrior #refusetosink #fibromyalgia #dissociativeidentitydisorder #borderlinepersonalitydisorder #paranoidpersonalitydisorder #anxiety #depression #obsessivecompulsivedisorder #chronicpain #chronicillness #ednos #hemiplegicmigraine #sensoryprocessing #disabled #disabilityawareness #fibromyalgiaawareness #juvenilefibromyalgia #juvenilefibromyalgiaawareness #spoonielivingapp (almost forgot to tag the app 😅 - i also used befunky for more pictures)