#Hashimoto disease

[neutralmilfhote1111]

every time I start to feel better I am given a new physical ailment which means a new diagnosis which means even more grief for my perception of what my adult life would look like lmao. one day i may have almost no physical function and i won't even get to achieve any of my dreams like grad school or traveling. it's so hard to not be depressed or hopeless when I work so hard to get better and only get worse.

[sintanic]

you call it mentally and chronically ill, I call it getting most out of the 130€/month I pay for health insurance taxes 😎

[thoughtssssssssssss]

How do u not crave sweet? I’m losing my mind. I didn’t know how much birth control was helping for my pcos. I’m literally losing my shit right now. But at the same time I don’t want to take brith control for the rest of my life.

Istg this sendromes and diseases are fucking annoying

[spoonfulofhannah]

Fatigue feels like you have sandbags tied to your feet while trying to walk. It feels like you haven’t slept in weeks. It feels like gravity is pulling you down. It feels like cotton balls are in your head, clouding everything.

Fatigue is NOT the equivalent to being tired.

[synaspensprungvomdorf]

What really interesting is on Hashimoto disease is, you can be plus size or totally thin. Some want to lose weight other want to gain some.

So this whole thin is healthy don't work.

[chronic-melon]

Reblog if you understand that disability is not a monolith and two people with the same disability do not have identical experiences ✨

[emmuffins]

I don’t WANT to lie around all day. It’s not “relaxing” or “peaceful” or “restorative”; I’m Miserable.

I WANT to be at my job.

I WANT to hang out with my friends.

I WANT to clean the apartment.

I WANT to FEEL BETTER.

[colleendoran]

This Explains a Lot

Hey folks, I don’t want to drama queen all over you. I know you all have big problems. But there’s been a recall of medication I take to manage Hashimoto’s Disease.

Hasimoto’s Disease affects something like 1% of the population (depending on who you ask). It’s an autoimmune disorder that causes the immune system to attack your thyroid gland.

The thyroid is sort of like your body’s throttle. If it doesn’t work properly, a lot of other things won’t work properly.

Symptoms include (from the Mayo Clinic Website):

Fatigue and sluggishness

Increased sensitivity to cold

Increased sleepiness

Dry skin

Constipation

Muscle weakness

Muscle aches, tenderness and stiffness

Joint pain and stiffness

Irregular or excessive menstrual bleeding

Depression

Problems with memory or concentration

Swelling of the thyroid (goiter)

A puffy face

Brittle nails

Hair loss

Enlargement of the tongue

For my part, the big issues are the fatigue, aches and pains (my hands are sometimes so stiff I cannot move my fingers, and right now my back is killing me,) depression, and memory problems. As in, I will be sitting there working on a drawing and between the time I look at my reference and the time I look at my drawing I can’t remember what I just saw in my reference.

That’s not good.

Also not on the above list: edema, anxiety, high cholesterol, poor heart function, an enlarged heart and irregular heartbeats. I had to have a CAT scan in December, and my anxiety has been swinging back and forth into the red zone for months.

When well managed, I don’t notice it much, but when not well-managed, my life grinds to a halt.

Since cancer treatment, I’ve felt the usual fallout from all that cancer entails. But I honestly thought I should have been feeling much better by now.

But I’m not. I’ve been up and down, but mostly down.

Finding out I’ve been improperly medicated for 7 months certainly explains a lot. A friend of mine who got the defective medication notice from her doctor thought she felt poorly due to long Covid. Another was sinking for months, unable to understand why.

Well, at least we know why.

This doesn’t affect everyone on the medication, just those with certain lot numbers from certain manufacturers. And if you are highly sensitive to hormone fluctuations, even a small variation will knock you right on your keister.

Several people I know heard from their health care providers. Others heard nothing until they asked.

It’s not like I don’t have a lot of stress right now, and figured my anxiety, poor mood, and weight gain originated from dealing with what I’m dealing with.

Well, at least some of it is because my medication hasn’t been hitting the sweet spot.

Bad luck, but it is what it is.

It’s going to take about 6 weeks before I start to feel better, but at least I am working it.

Best Wishes.

[beetusbritt]

[rhiandoesfandom]

So let's see, what can I do to manage my chronic conditions:

-Destress (HAH uhhh we live in capitalism)

-Try a diet designed to get rid of inflammation (okay but how do I do that on $200 a month, I'm poor)

-Get mild exercise (Okay if my heart could stop having palpitations and my fatigue could let me I would)

-Have healthcare (easier said than done, especially if you don't live in a state with easy Medicaid)

-Apply for Disability (LMAO like it's easy)

I'm not even making excuses. This is real fucking life.

[untypicalcomfort]

Me: I don't think my chronic illness is bad today! :D I mean I just have a little pain—

Me as soon as I get home:

[charlies-a-ghost]

what do I say when it will never get better

[sunflowerinpearls]

And I ended up with Autoimmune Hashimoto's Disease from Long Covid that occurred from October-December 2020

[spoonfulofhannah]

Disabled and chronically ill people are allowed to enjoy things and do things they like (if they’re able) while still being sick and disabled. Yes, even if they aren’t employed. Hope this helps.

[swagging-back-to]

it should be a cut and dry case if you go to a restaurant and get glutened by them. and by case i mean criminal. not just suing for damages and distress.

[chronic-melon]

Having ME/CFS around Yule looks like:

• Pushing WAY past your limits to spend time with family and friends

• Leaning over to wrap gifts and coming away with sore hands, legs, back…

• Overdoing it trying to make the perfect meal

• Disappointing family when you can’t make it to every gathering or event

• Being unprepared for unexpected hardships or tragedy during the season, like family members in hospitals or a bill that will be hard to pay

• Needing to rest for several days after a gathering and likely flaring severely

• Wanting to do things with the time off but not having the energy, or sometimes even the interest

• Dealing with symptoms from eating foods outside your normal diet… and generally struggling with new textures or flavors

• Needing more help with things like washing extra dishes or handling more packages than usual, even taking out the trash more often

• Managing animals who are dysregulated from unfamiliar people, decorations, smells, and sounds

• Struggling with bright lights and loud noises, leaving gatherings with a headache

• Falling asleep when you’re sitting in the living room talking to your family (yes this happened to me)

• Leaving events early

• Misunderstanding directions or jokes due to brain fog (and in my case autism) but people not taking the time to explain, or getting ignored because there are too many people and it’s too loud

• Not giving the proper reaction to a gift because of symptoms bothering you, not being able to mask pain or fatigue and appearing ungrateful or even upset (also autism)

• The deep-seated fear of catching an infection brought by another guest, but dreading the eye roll and comments from disapproving family

• Needing to park further away from stores or restaurants due to the *hustle and bustle*

If you have more to add, please list it. It doesn’t have to be ME, it can be anything you struggle with as a disabled person around the holiday season.