#Hashimoto disease
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every time I start to feel better I am given a new physical ailment which means a new diagnosis which means even more grief for my perception of what my adult life would look like lmao. one day i may have almost no physical function and i won't even get to achieve any of my dreams like grad school or traveling. it's so hard to not be depressed or hopeless when I work so hard to get better and only get worse.
#tw vent#chronic illness#pots syndrome#spinal stenosis#osteoarthritis#eoe#hashimoto disease#the list goes on and on#spoonie
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you call it mentally and chronically ill, I call it getting most out of the 130€/month I pay for health insurance taxes 😎
#tan rambles#adhd#chronic illness#shoutout at my thyroid and dopamine level not working properly#why do I have so many hormone issues now that I think about it???#genetics are a wonderful thing#hashimoto disease#this is a joke my life would be easier without these two#positive thinking and all
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How do u not crave sweet? I’m losing my mind. I didn’t know how much birth control was helping for my pcos. I’m literally losing my shit right now. But at the same time I don’t want to take brith control for the rest of my life.
Istg this sendromes and diseases are fucking annoying
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I wish all chronically ill and disabled people a very “doctors listening to you” November
#disabled#chronic illness#epilepsy#seizures#me/cfs#myalgic encephalomyelitis#pots#postural orthostatic tachycardia syndrome#pots syndrome#dysautonomia#autoimmune disease#hashimotos#disability#mental health#mental illness
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What really interesting is on Hashimoto disease is, you can be plus size or totally thin. Some want to lose weight other want to gain some.
So this whole thin is healthy don't work.
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I don’t WANT to lie around all day. It’s not “relaxing” or “peaceful” or “restorative”; I’m Miserable.
I WANT to be at my job.
I WANT to hang out with my friends.
I WANT to clean the apartment.
I WANT to FEEL BETTER.
#chronic pain#chronic illness#chronic fatigue#hashimotos disease#I could tag so much but my thumbs are tired
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Me: I don't think my chronic illness is bad today! :D I mean I just have a little pain—
Me as soon as I get home:
#the fatigue is always the worst#I never used to take naps now I need at least 3 a week#chronic illness#chronically ill#chronic pain#chronic fatigue#hashimotos#fibromyalgia#autoimmune disease
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what do I say when it will never get better
#chronically ill artist#comorbidities#comorbid conditions#chronically ill#chronic illness#chronic fatigue#autoimmine disease#autoimmune#potsawareness#potsie#pots#pots syndrome#hashimotos#hashimotos disease#hypothyroidism#thyroid#illustrator#illustration#illustrative art#queer artist#fine art#original art#traditional art#my art#artwork#artists on tumblr#ohuhuart#ohuhualcoholmarkers#ohuhumarkers#ohuhubrushmarkers
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So let's see, what can I do to manage my chronic conditions:
-Destress (HAH uhhh we live in capitalism)
-Try a diet designed to get rid of inflammation (okay but how do I do that on $200 a month, I'm poor)
-Get mild exercise (Okay if my heart could stop having palpitations and my fatigue could let me I would)
-Have healthcare (easier said than done, especially if you don't live in a state with easy Medicaid)
-Apply for Disability (LMAO like it's easy)
I'm not even making excuses. This is real fucking life.
#disability#disabilities#invisible disability#invisible illness#fibro#fibromyalgia#hashimotos#hashimotos thyroiditis#autoimmune#autoimmune disease#disabled#spoonie#chronic pain#chronic fatigue#cripple punk
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And I ended up with Autoimmune Hashimoto's Disease from Long Covid that occurred from October-December 2020
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#chronic illness#chronically ill#chronic disease#chronic pain#type 1 diabetes#rheumatoid arthritis#spondyloarthritis#neuropathy#nerve pain#hypothyroidism#hashimotos#bilateral hip pain
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it should be a cut and dry case if you go to a restaurant and get glutened by them. and by case i mean criminal. not just suing for damages and distress.
#celiac disease#celiac#i dont eat at restaurants anymore but people who do always share the craziest fucking stories that are downright criminal#asking if it's gluten free and being told 'everything is gluten free' only to be told after paying that it's gluten free 'if you ask for it#^^^^^ literally criminal and the server manager and chain should be held fully liable#as well as HEAVY compensation for the victim#people downplay celiac disease SO much. even celiacs#it isnt just 'ooooo my tummy hurtin owwie i have a rash :('#your body. is. attacking. itself.#it isnt just your intestines either. it's a full body immune response. it causes other disorders if unchecked like hashimotos disease#it causes CANCER#and complete malabsorption on a long term scale#TMI but after im glutened i literally shit things out more whole than when i swallow them. for up to a YEAR afterwards. No matter how much#i eat i simply will not digest it.#no matter how much i chew i will not digest it.#You know how dangerous that is? :)#especially when i dont get to eat often enough anyway bc of budget and low energy??? :))))#celiac kills you cant convince me it doesnt#no it doesnt kill you immediately like an allergic reaction.#it kills you slowly#painfully#over years and years of your life#and yes restaurants should be held liable and have to at the very least pay a considerable amount of money
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Hi melon patch :) I’m a streamer, but I’m also a huge disability advocate. I wanted to create a space where I could chat about my medical struggles as well as the way I manage symptoms, how I’m doing day by day, and the things I think about. I’ll share about my interests as well, but I felt I needed a platform just to talk about being disabled. Just wanted to say hi to the community :) 🍈
Stability score today: 3/5
#actually autistic#actually dissociative#actually neurodivergent#arfid#autoimmune#autoimmune disorder#actually disabled#autoimmune disease#chronic disability#disability#disabilties#disabled#light sensitivity#sensory issues#sensory overload#sensory processing disorder#hashimotos#thyroid#thyroid disease#me/cfs#mecfs#chronic fatigue#chronic fatigue syndrome#chronic illness#chronic migraine#chronic pain#chronically ill
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Fatigue feels like you have sandbags tied to your feet while trying to walk. It feels like you haven’t slept in weeks. It feels like gravity is pulling you down. It feels like cotton balls are in your head, clouding everything.
Fatigue is NOT the equivalent to being tired.
#disabled#chronic illness#epilepsy#me/cfs#myalgic encephalomyelitis#pots#pots syndrome#postural orthostatic tachycardia syndrome#dysautonomia#autoimmune disease#hashimotos#long covid#disability#chronic fatigue
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me: hey faulty thyroid have some meds
thyroid: no work. Low levels.
my doctor: Increase dose?
thyroid: your heart is racing
doctor: let’s go down
thyroid: I’m so low that your sick
Doctor: Heart is good. Go up on dose and wait?
Thyroid: I am very high in some categories and much too low in others
doctor: huh? Lol wait what??
me: balls!
Doctor: putting you on wait list for expensive and scary endocrinologist.
thyroid: hehe. I win
Update: my endocrinologist is super nice! We found the right dosage. My Hashimoto’s is in remission and I’m feeling pretty good. I have some cysts on my thyroid but they are not cancerous and are super tiny. I’m still having some problems with my vitamin levels and a few hormone imbalances but everything is better overall and we are still problem solving.
Being able to whine about my process was cathartic. Thanks yall
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Mia Castro, a model with Hashimoto’s Disease, Hypermobile Ehlers-Danlos Syndrome (hEDS), and Tarsal Coalition.
#mia castro#photography#model#modeling#disability#disabled models#fashion#hashimoto's disease#hypermobile ehlers danlos#ehlers danlos syndrome#heds#eds#tarsal coalition#autoimmune disorders#congenital disorders
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