#DISABILITY

[reasonsforhope]

"For [Tanner] Green, the chief engineer at Not a Wheelchair, this is one of the thousand complications standing between his team and a rather lofty goal: upending the manual wheelchair marketplace.

If you’ve heard of Not a Wheelchair, it’s likely because of its owners, Zack Nelson, the star of the 8.8-million-subscriber YouTube channel JerryRigEverything, and his wife Cambry, a para and manual wheelchair user. The Nelsons got into the mobility equipment business a few years ago when they released The Rig, an electric, adaptive off-road device with a simple yet robust and functional design priced significantly lower than anything else on the market. Now, they’re bringing that same ethos to manual wheelchairs.

Not a Wheelchair aims to offer a base-model, custom manual wheelchair at a similar or better quality than most of the insurance-approved wheelchairs in the U.S. for $999.

Yes, that’s just under $1,000 for everything — wheels, handrims, tires, side guards and rigid, angle-adjustable backrest included. And the company plans to have a turnaround time of weeks, rather than the monthslong slog that it typically takes from order to delivery.

When I first heard about this, it sounded awesome and a bit far-fetched. It’s hard to find a pair of quality wheelchair wheels for less than $500. Same with a rigid backrest. How were they going to offer both, plus a custom wheelchair frame without compromising on quality? I drove to their headquarters in Utah to find out...

So how does Not a Wheelchair’s base model chair stack up to other options on the market? I hate to sound like a preacher, but … it’s totally reasonable! It hits the mark of being at least as good, if not better, than the majority of insurance-approved wheelchairs in the U.S.

Touring the factory, I saw other prototypes scattered all around the facility. There’s a beefier, four-wheel drive version of The Rig that the company just launched. There’s a track wheelchair that’s still in development. It’s clear that Not a Wheelchair doesn’t intend to stop at a simple, manual wheelchair. Inexpensive components, more advanced electric off-road devices, power assist, it’s all on the table. “We’re just really excited to see where this leads,” says Green."

-Article and video via New Mobility, October 1, 2024

[lupusbaby]

Say it with me! Wheelchairs aren’t sad! Mobility aids aren’t sad! Mobility aids are instruments of freedom!

[thesustainedworldatransverse]

That's it. That's exactly it.

Call now to recieve help with the inability to make phone calls!

Fill out this forum to receive assistance with your difficulty filling out forms

Come on down to our center thats two hours away so we can give assistance with your inability to walk or drive

There's help out there! You're just not trying hard enough!

[nondivisable]

I need to say something and I need y'all to be calm

if it isn't actively bad or harmful, no representation should be called "too simple" or "too surface level"

I have a whole argument for this about the barbie movie but today I wanna talk about a show called "the babysitters club" on Netflix

(obligatory disclaimer that I watched only two episodes of this show so if it's super problematic I'm sorry) (yes. I know it's based on a book, this is about the show)

this is a silly 8+ show that my 9 year old sister is watching and it manages to tackle so many complex topics in such an easy way. basic premise is these 13 year old girls have a babysitting agency.

in one episode, a girl babysits this transfem kid. the approach is super simple, with the kid saying stuff like "oh no, those are my old boy clothes, these are my girl clothes". they have to go to the doctor and everyone is calling the kid by her dead name and using he/him and this 13 year old snaps at like a group of doctors and they all listen to her. it's pure fantasy and any person versed in trans theory would point out a bunch of mistakes.

but after watching this episode, my little sister started switching to my name instead of my dead name and intercalating he/him pronouns when talking about me.

one of the 13 years old is a diabetic and sometimes her whole personality is taken over by that. but she has this episode where she pushes herself to her limit and passes out and talks about being in a coma for a while because of not recognizing the limits of her disability.

and this allowed my 9 year old sister to understand me better when I say "I really want to play with you but right now my body physically can't do that" (I'm disabled). she has even asked me why I'm pushing myself, why I'm not using my crutches when I complain about pain.

my mom is 50 years old and watching this show with my sister. she said the episode about the diabetic girl helped her understand me and my disability better. she grew up disabled as well, but she was taught to shut up and power through.

yes, silly simple representation can annoy you if you've read thousands of pages about queer liberation or disability radical thought, but sometimes things are not for you.

[wishful-seeker]

I would like to see more people talk about how jobs treat disabled employees.

I used to prep, wash dishes, and cook at mellow mushroom. I had chronic pain that wasn't NEARLY as bad as it is today, but it was still very debilitating. I told my employer "i cannot stand more than 4 to 6 hours. I CANNOT do shifts longer than this due to my illness." And even though i made my boundaries VERY clear, everyday i worked it was 8 hours at the least and 10 or 12 at the most. I would go up to my manager and say "look i really need to leave, my shift is over, my chronic pain is killing me." And he'd say "we really need to here, you HAVE to push through." And so i did, and after one, ONE month of that job my crps got incredibly worse to the point where i could no longer walk my dog around the block which was .5 miles. I quit, and that was FOUR years ago, and ever since that day I HAVE BEEN BEDRIDDEN AND HAVE TO USE A WHEELCHAIR. It is my biggest regret in life.

My best friend who has seen my whole journey has recently developed undiagnosed chronic pain, and she is in the EXACT same scenario i was 4 years ago. Busting her ass at a pizza place with extreme pain that hurts her so much she tells me "im in so much pain i don't even feel like a person." She doesn't feel LUCID. And her manager and coworkers are saying the same thing "if you don't help us you will let us down, we'll be in the shit."

That job thats hurting you isn't fucking worth it. I promise you no money is worth losing all your physical abilities and never getting them back. Your coworkers and boss do not give a shit about you, so don't you dare suffer for them. They will never understand your struggle and they will never try. They truly think being understaffed is worse than whatever pain you experience. They would rather you permanently damage yourself than inconvenience them. FUCK THEM. DON'T FUCKING DO IT!

[demonboyhalo]

collection of useful things tumblr has taught me:

even if you can't fall asleep, laying down with your eyes closed will still rest your body

you don't have to brush your teeth standing up

you don't have to do any chore standing up, from dishes to showering

you don't have to shower with the lights on

if you can't brush your teeth, flossing and a tongue scraper gets rid of plaque and bad breath

if you can't do that, mouthwash kills a lot of bacteria

eating "unhealthy" food is better than eating no food

you can make the same meal everyday for however long you still want it

some pills come in syrups or chewables if you can't swallow them

kids nutritional shakes can be a quick way to get fuel if you can't eat/don't have time

if walking hurts/exhausts you on a regular basis, canes and rollers are for you, no matter how young you are

we have free will—if doing something "out of the ordinary" makes life easier for you, do it

if you have even a dollar to spare, please consider donating to Alaikum's family.

they're a large family at only 10% of their goal to evacuate, and could use any help you can give!!

[sunnysilvavo]

YES! MORE ACCESSIBILITY FOR ALL! ✊🏻✊🏻✊🏻

We need more solutions like this to aid disabled people keep the jobs they love and PREVENT disabilities as well! I can't tell you how much it would have helped me not make my fibromyalgia worse just by having a normal seat at my retail jobs in the past!

[commonzinnia]

yeah, sorry i exhibited symptoms of the disorder i told you i have. it will happen again because i have that disorder and will continue having it. hope this helps!! 🫶🫶🫶

[2003-playground]

Can we stop using "still lives with their parents" or "unemployed" or "doesn't have a drivers license" or "didn't graduate high school" as an insult or evidence that someone is a bad person? Struggling with independence or meeting milestones is not a moral failing.

[i-say-stupid-things]

what is it with able bodied people saying “get well soon” after you say that you’re chronically ill?? like? i am not gonna? and i once literally responded with “i’m not gonna, it’s chronic, as in permanent.” and they went like “oh well, hope you get better!” like bro 💀

[almostfini]

Important side point: there's lots of of different causes of chronic fatigue! People commonly confuse chronic fatigue with Chronic Fatigue Syndrome which is the common name for myalgic encephalomyeltis, a mitochondrial disorder that's not uncommon in long covid. Chronic fatigue could also be caused by a vitamin deficiency or thyroid problem or something autoimmune so it's a good idea to get some blood labs to rule things out.

I've always had chronic fatigue. I remember being twelve, and an adult mentioned how I couldn't possibly know how tired they felt because adulthood brought levels of exhaustion I couldn't imagine. I thought about that for days in fear, because I couldn't remember the last time I didn't feel tired.

Eventually I came to terms with the fact that I was just tired, and I couldn't do as many things as everyone else. People called me lazy, and I knew that wasn't true, but there's only so many times you can say "I'm tired" before people think it's an excuse. I don't blame them. When a teenager does 20 hours of extracurriculars every week and only says "I'm too tired" when you ask them to do the dishes, it's natural to think it's an excuse. At some point, I started to think the same thing.

It didn't matter that I could barely sit up. It was probably all in my head, and if I really wanted to, I could do it.

When I learned the name for it, chronic fatigue, I thought wow, people that have that must be miserable, because I am always tired and I cannot imagine what it would feel like if it were worse.

Spoiler alert, if you've been tired for a decade, it's probably chronic fatigue.

Once I figured that out though, I thought of my energy as the same as everyone else's, just smaller in quantity. And that might be true for some people, but I've figured out recently that it absolutely isn't true for me.

I used to be like wow I have so much energy today I can do this whole list for sure! And then I'd do the dishes and have to lay down for 2 hours. Then I'd think I must gave misjudged that, I didn't have as much energy as I thought.

But the thing is - I did have enough energy for more tasks, I just didn't go about them properly.

With chronic fatigue, your maximum energy is obviously much smaller than the average person's. Doing the dishes for you might use up the same percentage of energy that it takes to do all the daily chores for someone else.

If someone without chronic fatigue was to do all the daily chores, they would take breaks. Because otherwise, they're sprinting a marathon for no reason and it would take way more energy than necessary. We have to do the same.

Put the cups in the dishwasher, take a break. Put the bowls in, take a break. So on and so forth. This may mean taking breaks every 2-5 minutes but afterwards, you get to not feel like you've run a marathon while carrying 4 people on your back.

Today, I had a moderate amount of energy. Under my old system of go till you drop, I probably could have done most of the dishes and wiped off the counter and then been dead to the world for the rest of the day.

Under the new system, I scooped litter boxes, cleaned out the fridge, took the trash out, cleaned the stove, and wiped off the counter and did all the dishes. And after all that, I still had it in me to make a simple dinner, unload the dishwasher, and tidy the kitchen.

It was complete and utter insanity. Just because I sat down whenever I felt myself getting more tired than I already was.

All this to say, take fucking breaks. It's time to unlearn the ceaseless productivity bullshit that capitalism has shoved down our throats. Its actively counterproductive. Just sit down. Drink some water. Rest your body when it needs to rest.

There will still be days where there is nothing to do but rest, and days where half a load of dishes is absolutely the most I can do. But this method has really helped me minimize those, which is so incredibly relieving.

[compassionatereminders]

The worst thing is that there is so much potential for exploring the horror of psych wards from the angle of medical abuse, ableism, forced treatment/drugging, loss of autonomy, power imbalance, demonization, dehumanization, etc, and YET the horror genre keeps defaulting to "insane asylums and psych wards are scary because there are mentally ill people in there"

[thenervebible]

CONNIE PANZARINO at a pride march in Boston circa 1990

[ID: Connie is marching along in her sip 'n' puff (SNP) wheelchair. She is wearing a patterned poncho and sporting a green felt party crown on her head. She styles a pair of wire-rimmed glasses with her slicked back hair. She is smiling. Attached to the back of her wheelchair is a large green cardboard poster that reads "Trached Dykes Eat Pussy Without Comin' Up For Air!" followed by a pink upside-down triangle with a stick figure person in a wheelchair at the centre (a symbol for disabled women)].

the cyborg & the crip by Alison Kafer

[ID: “Trached dykes eat pussy without coming up for air.” Connie Panzarino, a longtime disability activist and out lesbian, would attach this sign to her wheelchair during Pride marches in Boston in the early 1990s. Shockingly explicit, her sign refuses to cast technology as cold, distancing, or disembodied/disembodying, presenting it instead as a source and site of embodied pleasure. “Trach” is an abbreviation of tracheotomy, a medical procedure in which a breathing tube is inserted directly into the trachea, bypassing the mouth and nose. Someone with a trach, then, can, in effect, breathe through her throat, freeing her mouth for other activities (another version of this sign is “Trached dykes french kiss without coming up for air”). From a cyborgian perspective, this sign is brilliantly provocative and productive. It draws on the pervasive idea that adaptive technologies grant superior abilities,not merely replacing a lost capacity but enhancing it, yet it does so in a highly subversive way. The message here isn’t about blending in, about passing as normal or hypernormal, but about publicly announcing the viability of a queer disabled location. It’s disnormalizing, adamantly refusing compulsory heterosexuality, compulsory able bodiedness, and homonormativity. As Corbett O’Toole argues, it challenges the perceived passivity of disabled women, presenting them as actively pleasuring their partners, thereby graphically refuting stereotypes linking physical disability with nonsexuality.]

[bisexualseraphim]

ADHD at night: I could write a book. I could get my Master’s Degree. I could go to the club and come home with 12 new friends. I could get a job at that club and meet the mother of my children. I could cure every disease and use my wealth to bring world peace.

ADHD during the day: Fold laundry too hard :( Come back next week

[disableddyke]