#Chronic pain is a bitch

[minimallycreative]

autism "i need my routine and the routine was already ignored yesterday" vs chronic pain/disability "good fucking luck dude. you got no bones today"

[beansintrenchcoats]

YOUR DAILY REMINDER: DO NOT TOUCH A DISABLED PERSON'S MOBILITY AIDS.

if you randomly push a disabled person's wheelchair. you are taking part of their autonomy.

if you knock away a disabled person's crutches. you are taking part of their autonomy.

if you grab a disabled person's cane. you are taking part of their autonomy.

if you move a disabled person's rollator/walker. you are taking part of their autonomy. I don't think people understand that our mobility aids are an extension of our bodies. You wouldn't kick an abled person in the shins or grab their arms and twist them just to see how they would react, or see if they'd be able to get around and function. You treat us like a joke. Our mobility aids aren't toys that you can play with and fidget with and god forbid potentially break. They're part of us. You have no right to touch them. If you take my fucking cane away from me, I can't walk properly.

If you touch my fucking mobility aid, you take away part of my autonomy.

[w4nderlustsworld]

Chronic pain is honestly so draining and mentally exhausting and isolating.

[spoonie-support]

woke up with another migraine...

managed to take a shower. It made my head hurt worse. Took excedrin and benadryl and Im drinking coke praying it helps Im so sick of always having migraines. My mom told me recently that she had migraines at my age. UGH

[chronicallyuniconic]

Did a thing yesterday, today I'm suffering.

Noone wants this. Absolutely nobody.

I feel alone in my body, only other chronic pain people know what it's like (ime)

Nobody can do anything to help it. I just have to sit with it, somehow.

These pains are eating me away. Joint pain, muscle pain, skin pain, just existing pain.

I can't speak today, only lay down & breathe slowly. I don't have the energy to push the words out, they come out in whispers.

The fatigue just takes me, I'm falling asleep allover the place. I cannot control it.

Nobody fucking wants this.

Why does this always happen when I'm just trying to live my life?????

Will I ever be unchained from my bed?

[astersghost]

Something something the only reason I think that Ashton hasn't fully broken down about everything is the adrenaline of the current events and the moon™️ while also somehow being in more pain than before. Having a new normal or a new baseline for pain is something that I'm unfortunately aware of as someone who's chronically ill w/ several disabilities and chronic pain and I see myself in Ashton waY too much but genuinely that's how I see how they interact with the current situations. They fucked up, basically begged for forgiveness and is still in new levels of pain that any able bodied person would more then likely be unable to focus on anything else but their own body but besides the little breakdown after the fact mf has kept it together stupidly well and done nothing but try and protect and trust everyone else in the group. And I just. Ashton Greymoore is something that can be SO personal.

[roseblog-rog]

i really need a wheelchair. fuck denial, im in agony.

[cosmicwhoresimpingismyliving]

I have the worst chronic flare-up right now. My legs are in agony but I’ve taken some strong painkillers & I'm gonna settle into bed and play a bit of Stardew Valley on the switch & spend some time with my husband Shane🥺🥰

[nonbinarynerdbot]

So I did a thing and wrote a Penumbra fic. Basically I’ve had season 2 brain rot and couldn’t stop thinking about how the THEIAs work and how they would leave an effect even after they were gone. I’m working on one for the psychological effects but I cranked out a chronic illness hurt/comfort fic for the physical effects.

I wasn’t gonna make a post about it but @seth-silver-ink beta’d for me and asked me to so 🤪🤪🤪

[tcfkag]

With Netflix's Painkiller coming out, consider this your friendly reminder from your neighborhood chronic pain patient:

(a) we deserve to be seen,

(b) we deserve to have our pain treated, and

(c) we deserve to be treated with respect instead of suspicion or outright hostility in medical settings and in society as well. While I will not and never have trivialized the consequences of the opioid epidemic, the pendulum has swung so far in the other direction that chronically ill and disabled people are paying for the mistakes that regulators and the medical field made two or three decades ago. Our pain is dismissed and our treatment options are taken away or limited in more and more arbitrary ways because if regulators can't stop illicit fentanyl, by God they need to look like they're doing something. So that something is ever stricter limits and regulations on the medical treatments that chronic pain patients need. Just something to keep in mind; there are many faces to the opioid epidemic and not all of us are just one pain pill away from inevitable addiction and overdose.

[mctwilight-mcd]

When you’re in tech rehearsal and you’re barely a scene in and get stabby pain in your hip because you were standing still for more than five minutes.

And now it’s moved to your knees

I’m sitting down now but jfc

[minimallycreative]

i love how sometimes, despite all the medical advancements of the 21st century, the only thing that relieves pain is sitting/laying/standing in a weird position because it places/doesn't place pressure on certain spots

[beansintrenchcoats]

something I feel like nobody talks about:

how fucking painful it is to be finally getting better with your mental health, only for your disabilities to get worse.

i have spent so much of my teenage years wishing i were dead; hating every part of myself; going through abuse and trauma and pain and honestly living through hell, and I have been consoling myself with the knowledge that one day, it will get better. And it is getting better. I’m finally beginning to live again, to feel the air on my skin, to enjoy each day and not just wait for the end.

And then my body stopped working.

And it won’t start again.

I am always in pain. Everything fucking hurts, all the time, and it won’t stop hurting. This won’t get better. And god, that hurts.

[w4nderlustsworld]

Had a terrible flare up, on my way home finally. I’m so exhausted.

[spoonie-support]

[chronicallyuniconic]

If I were dead, that would really show them

How much pain constantly runs through my body

How heavy the fatigue sits inside my bones

How often I'm silent about the above

How i physically might look fine, but inside I'm crying, screaming, trapped underwater

How frequent I'm at the mercy of medical professionals that couldnt care about pain or fatigue

How i cannot push through pain and fatigue, it is always there and it will not stop

How scrambled my brain is from dealing with this, 24 hours a day, 7 days a week

How pain free I would be, if I weren't here

How I'd never experience this weight of fatigue, if I weren't here

How happy id feel if I weren't here

How free I'd finally be, free from me