I'm ok-ish now medically, btw. Definitely need to see a specialist to find out Why This Is Happening, but I'm on new meds and feeling somewhat better/have somewhat improved numbers. I felt well enough to carve pumpkins with KC and go with him to a concert whose primary audience demo was Gen X industrial fans.
I am, however, having frequent health anxiety and recurring, distressing mental images of my own sudden death. I saw my primary care today and she was like "uhhh it might be a good idea to do some therapy for your medical trauma". I am toying with the idea, even though I quit last year because I felt impossibly sick of therapy. There do seem to be some allegedly HAES-oriented trauma specialists (some of whom do EMDR!) in the state who take my insurance and have telehealth openings, which I did not expect at all.
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As a person with a history of eating disorders who is currently overweight, I generally refuse to track calories because it's super triggering but I've had to track everything for medical reasons for the past week and it's been really interesting seeing that in general I average about 1300-1500 calories a day, and that includes snacks. And I am still unable to lose weight.
It's kind of validating honestly, because it's clear that there's just other stuff going on (slow metabolism, autoimmune stuff, etc) and the "calories in/calories out" assholes are just wrong. I knew they were because I've done the research, but it's nice to also have proof irl.
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thank you medical technology for giving me a dad that’s still alive and for prolonging his life and for prolonging MY life and for all the times I’ve never caught a disease I’m vaccinated for and all the times doctors had to cut me open to fix my insides and I was able to sleep through it thank you anesthesiologists thank you surgeons thank you physical therapists thank you nurses thank you nurse practitioners thank you surgery technicians thank you neurologists thank you cardiologists thank you gastroenterologists thank you ENT doctors thank you OB/GYNs thank you midwifes thank you scientists who discover and synthesize new medicines thank you engineers designing prosthetics and insulin pumps and metal implants thank you janitors for keeping our hospital rooms and hallways clean and safe thank you phlebotomists thank you laboratory workers thank you pharmacists for filling our meds THANK YOU MODERN MEDICINE FOR MY LIFE AND FOR MY FAMILY AND MY FUTURE
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if you try to police disabled peoples' diets INCLUDING how they spend their money on food: i just want to ask why? what do you gain from this? like seriously, what do you actually gain from displaying holier-than-thou behavior toward another person's spending and dietary habits? who cares if you would spend your money "better"? you're not them. this is a form of abuse. you literally have no idea what the disabled person can safely digest and actually gains nutrients and energy from. you have no clue, even if you share the same disorder, you are not that person, nor are you their gastroenterologist or other specialist.
telling disabled people to "eat healthier," "eat more salads," "eat more fresh fruits," "eat more fresh vegetables," "eat more grains," and so on can not only be outwardly dangerous for people who have digestive issues like inflammatory bowel diseases, gastroparesis, irritable bowel disease, acid reflux, a history of ulcers, gastritis, and a long list of other digestive health issues, it can outright kill someone if they form a blockage. this can also injure, sicken or kill diabetics, people with non-diabetic low or high blood sugar, blood pressure issues, kidney and liver issues, and many other people.
not only that but you're potentially forcing a neurodivergent person to eat foods that nauseate, sicken, or disgust them, and for what? autistic people know what foods are safe for them to eat. adhd people need to find finds they can manage to keep in their homes without spoiling. dissociative people, people with ADHD, head trauma, develeopmental disorders, other people with memory issues, dementia, alzheimers, psychotic people, and other mental and cognitive health issues need foods they can prepare safely, because many mentally ill and neurodivergent people can't safe;y cook without risk of injury or damage to their home.
people who deal with allergies and intolerances are constantly struggling with being told how to eat when they are the ones who know their experience the most. NOBODY gives a fuck about people with allergies and literally nobody takes food intolerances seriously. i can't digest animal products OR byproducts anymore. i lost the ability. but sometimes i question "maybe i can try it again because this food is cheaper." well. i decided i was spending too much on groceries due to inflation and bought cow's milk instead of almond milk and got so sick it was something i had never seen before. i do NOT need to prioritize "saving money" over eating foods i can safely digest. i had an IBS attack early this morning because i ate some cheese- because it is a "cheap, easy source of protein."
some disabled people need to use certain services like pre-prepared foods being delivered to their homes, be it meals on wheels, or hello fresh. guilting these people for using the services because they could "just cook at home" is insulting to say the least. many of these services have tailored meals with consistent ingredients with limitations on contaminants with allergens.
here's the big one that everyone fucking hates but needs to accept immediately: some disabled people are too exhausted, in pain, dissociated, psychotic, unable to focus, unable to follow instructions, or in other ways unable to cook for themselves and need to use food delivery services like doordash and uber eats.
some disabled people can't or don't want to drive due to their disabilities! blind disabled people exist! para- and quadriplegics exist! people with hand tremors exist! working disabled people exist! amputees exist! disabled parents exist! disabled people who care for partners and family exist!
this one is sooooooo taboo and i'm sick of it. first of all, dashers and uber drivers are every day people who need to earn income. these are people's jobs and their lives are in fact on the line because this is a lot of drivers' primary income. enough with guilting people on this one. i'm fucking sick of it. y'all hate independently employed people and it shows. this isn't a luxury just relegated to rich white moms: disabled people need to have prepared, easy to eat foods delivered to our homes too. y'all need to leave people the fuck alone when it comes to takeout.
the second someone poorer and more disabled than you does something you do regularly, suddenly you're sending articles and giving paragraphs and paragraphs of advice on how to spend money better and how the disabled person "just needs to eat rice, beans, ramen, and frozen vegetables" because disabled people are not allowed comfort NOR convenience in your eyes. this is absolutely asinine. stop it. EATING is not relegated to the privileged
disabled people are people and need to eat. why you are prioritizing money over a literal human need is beyond me this is sick behavior. why do you care so much more about the money than the person ?why is money more important than someone's safety to you? why would anyone rather see someone "spend money the right way" over a human being EATING FOOD and especially foods they KNOW won't make them sick. policing how any disabled person spends their money on food is also unnecessary and abusive. it serves nothing to gain and everything to lose. so what if you think a disabled person spends too much money on food? you do too- we all do: food should be fucking free. get over yourself and let disabled people eat. leave your greed at the door, stop feeling entitled over other peoples' finances and spending habits.
telling a disabled person how to "eat healthier" will not make you healthier, and it will not do them any good, either. all it does is serve to stroke your ego because you believed you ""helped"" someone but all you did was give unsolicited advice that will be forever moot because you do not live in that person's body. don't care if you know them personally: you ain't them. so back off, let disabled people eat. food ain't just for the rich. food ain't just for the abled. let people access food in ways that are safe for us or get the fuck out of our way because all you're doing is causing problems and making disabled people's health problems WORSE.
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