#where's my pain meds
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Loose Change: Migraine?
WAS ANYBODY GOING TO TELL ME THAT MIGRAINES CAN HAVE SIMILAR SYMPTOMS AS ALLERGIES AND GET WORSE IN THE WINTER OR-
transcript:
Q: It burns!
2: No it doesn't. Stop being dramatic.
20 years later
Q <- (in hell): Wait a second. Have I been having migraines this entire time?
#quarterdraws#loose change#comic#me: oh my nose and face is on fire my eyes are watering and my head is cracking in half#me: but its winter? wheres the pollen?#and then i never thought about it more than that#i mean i was always brushed off so like. for a reason. but still.#remember kids! whatever's wrong with you doesnt have to be#/the absolute worst it can be/ to be bad!#you dont have to throw up from pain to take some pain meds
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irritable bc chronic pain or discomfort is flaring up & you're overdue to medicate/take measures to mitigate symptoms? call that paingry.
#ctxt#i'm hanging out at E's this evening and was telling her 'i even took my meds before coming over so i wouldn't be—'#[pause while i realized hangry wasn't the word but it was a similar phenomenon where i get cranky when having Ouch and#OH SHIT THERE COULD BE A WORD FOR THAT IF THERE ISN'T ALREADY]#'SO I WOULDN'T BE PAINGRY OHOHOHOHOHOHOOOOO!!!!'#chronic blogging#chronic pain#spoonie
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? ¿
#song link; where's jaoba by spellcasting#this was drawn cause i was feeling a n x i e t y after having to take the max amount of two types of meds in the 24 hrs due to period pain#so. yeah. lmao#art#artists on tumblr#my art#digital art#artist on tumblr#dragon#serpent#coatl#sona#personal art#vent
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whenever i see the view of 'always be 100% honest with the medical professionals providing you with healthcare' i just... how much privilege do you have to have to not see the pitfalls with that statement?
i understand 'always tell first responders what drugs you've taken'. but when it comes down to trans healthcare or people who're disabled or have "scary" mental health conditions. do you really think being honest the entire time is safe?
#the specific post that prompted this was about being honest about your mental illnesses/neurodivergences with gender clinics#buddy i am in a country where if i pursued an autism diagnosis they could just decide BANG no more hormones for you!#i've been taught by other people with chronic pain on the exact language to use with doctors so i get the pain meds i need#i once confided in a therapist that i had a voice in my head that i'd been hearing since i was around 8-9#they asked me 'does he tell you to do things?'#the truth was yes but you can bet your ass i said no because these people aren't your fucking friends#please just be *safe* i am begging you#trans#transgender#chronic pain#chronic illness#bipolar disorder#actually bipolar#actuallyautistic#mine
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ok this recovery process is truly more miserable than i thought it would be
#major tmi but it's gonna be days before i'm able to take a shit and i ate a lot of food the day before yesterday#so that cramping in the area where the surgery took place is VERY painful#i can't really eat because 1. throat hurts from having a breathing tube shoved down it#2. can't smoke weed to help my appetite bc the coughing hurts too bad (and all I have is wax & dabs make you cough a lot more)#and 3. the whole aforementioned being unable to shit thing makes me too nervous to put any more food in my stomach#i'm so fucking hungry my stomach hurts so bad#all i've eaten since yesterday is a few chips and half of a taco#pain meds aren't working at all so i quit taking em so my stomach wouldn't be even more fucked#especially since i was taking them on an empty stomach#i can hardly walk i need a cane BAD#peeing hurts bc they had to mess around w my bladder during surgery too#i'm just miserable as fuck#.bdo
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private clinics in costa rica really treat you right, during the vacation portion after classes were over i caught a local stomach bug and i remember one of the nurses touching my arm going pobrecita :( and then they gave me amazing pain meds and sent me home with a giant jug of juice to drink, and anyway i just had my first er visit in appalachia and the vibe was honestly similar
#they actually gave me pain meds i couldn't believe it#i was crying on the phone to my mom bc i've gone in for this exact issue before when i lived in the midwest and they never did anything#but everyone was nice to me!!!#and they didn't know what was wrong but they still treated the symptoms anyway#basically i have some kind of issue where my stomach gets so bloated that it physically hurts and i get nauseated#and normally i can manage it with otc stuff but it was really bad for some reason this time#my track record with urgent/emergency care has made me extremely mistrustful#i am never anything but polite and the condescension... i wish i could trade places and see if they'd be as nice as me :)#i just wish i knew what would trigger this stomach thing so i could never do it ever again
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The new meds I'm on have, as far as I can tell, caused my hands to be very weak, to the point that I can't tension this thin sock yarn :/ I'm in the gussets of sock 2 but the sock is definitely bigger and a thinner fabric.
Im... not positive what to do (whether to frog or not, or maybe just switch to a worsted weight project?) Other than tell the doctor this shit is not good.
#if i frog its a full day of knitting wasted#i also really would like these socks tho. i need another good pair...#i did say id knit a thick pair of socks for my sister and thats the only other project i can think of#my hands also hurt so bad from attempting to tension anyway#also. i ASKED the doc what the side effects would be !#and she said 'just your standard NSAID side effects'#well i checked the page and no they are fucking not. they are not at all and also have huge glaring warnings saying#DONT TAKE IF YOU DONT RESPOND WELL TO OTHER NSAIDS#i am allergic to nsaids and she knows that and i told her that as she was prescribing it to me and she brushed it off#pain management clinic where they put you in more pain. great.#disability#knitting#i am desperately hoping its my meds and the timing would make sense#if my hands just do this now i will cry
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58 is not 38, and it's not even 48.
I moved furniture around today.
I probably should not have done that.
I don't need to write whump because I have got it going on.
Edit: How the fuck did I get here? I was 35 just ten minutes ago!
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i must say i did not expect getting a chronic illness diagnosed would be of any help, i thought it wouldn't matter since ive already had it unknowingly for 2 years, but it's actually quite helpful... I suddenly can hardly remember the feeling of having moments where I can't do anything because of my fibromyalgia, which is nice☺️☺️ Without it it feels I can be more optimistic.
But at the same time I can't help but feel the dread of having to take antidepressants for the rest of my life so i can get close to functioning like a normal person. I am quite dependant on them to go through the day without pain and be able to sleep properly. Something about that makes me feel a bit lonely😓😓
#i talk!!!#this one is. a bit of a downer as well as positive#like mostly the effects have been positive antidepressants really do help me a lot#it made me realize heavily that my previous lifestyle was. completely abnormal and I just convinced myself it wasnt#Ive also been able to take things more calmly since I'm now conscious stress is what causes pain to flare up#but at the same time im hit with the dread that im reliant on meds to function and will be for the rest of my life😓😓#it only came to me right now because i forgot to take my anti depressants when i woke up#so the brief hours where i wasnt under its influence i felt weak in pain and with an awful headache#and something about the concept of me being reliant on meds otherwise I'll feel that way makes me really sad#i wish being normal was a thing i could achieve without meds#fibromyalgia
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Hira's year in medical review:
Me, August 2023: *experiencing extreme fatigue, fainting spells, mood swings, sudden and drastic increase of suicidal thoughts, and intense hair loss*
P.A: let's do blood work
Me: ok!
Bloodwork: *normal except for prolactin*
Doctor: sometimes that's a fluke so let's retest
Me: ok
Bloodwork: *exactly the same*
Doctor: your values are higher than normal range, but not high enough to be in range for a pituitary gland tumor.
(P.A: go see an endocrinologist and get an MRI, that might be indicative of a pituitary gland tumor.) <- bless this person and only this person in particular
Endocrinologist, seen earliest available which was January 2024: *wants to retest blood work instead of ordering an MRI*
Me: ... ok
Bloodwork: *the same*
Me: can we please do an MRI now?
Endocrinologist: Well. Your values are above the normal limit, but it's highly unlikely that's it's a pituitary gland tumor because they are not high enough for that. Let's retest blood work in four months.
Me: ...................... ok
Bloodwork, May 2024: *THE SAME*
Endocrinologist: hmm, I recommend an MRI
Me: *gesturing angrily*
MRI, June 2024: 🎉 pituitary gland tumor 🎉
Doctor, when I went in for something else: I doubt your endocrinologist will want to treat that, we typically don't treat adenomas that small
Endocrinologist, who took 3 weeks to review my results: I recommend just monitoring. It's highly unlikely that this is causing your symptoms, it's too small for that.
Me, July 2024:
#like im sorry but 'highly unlikely' =/= 'impossible'#sure it might be rare but like thats not a reason not to check it out???#idk wtf is with this resistance to treat it#like SO WHAT if in the majority of people a microadenoma of that size doesnt cause symptoms?? all individuals are different#like y'all didnt even think i had one because it was atypical presentation so maybe that's the case with my symptoms too#what would it hurt to do meds for it?#if i do meds to shrink it and my symptoms resolve; great!#if i do meds and my symptoms dont resolve? thats also great! it means we've ruled one thing out#and can continue exploring why THE FUCK my body is acting the way it is#why wouldn't you want to rule things out if you can?????#the healthcare in this country is so fucking broken#its been almost a year since i went in for my symptoms and still no resolution#ive lost about 2/3 of my hair at this point. ill probably have to chop it off if it keeps going like this#not even gonna talk about the fatigue#nor gonna talk about my sis's current experience where an untreated infection (not for lack of her trying to get it treated!)#is potentially now developing into something more serious. like kidney stuff. 🙃#(and they apparently have no record of the labs she submitted 🙃🙃 so she's gotta go do it all over again otherwise they wont give her meds)#it's okay. its just nausea to the point she hasn't really eaten in days and constant pain and dizziness. difficulty standing#but its fine right lmao#ughhh#dont mind me im just frustrated beyond everything and need to yell into my little corner of the void#withoutwords
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Oliver is having a rough time. I’m so upset. He was doing so well and then last night and today he’s had a lot of issues. I’m so worried bc he’s probably going to need surgery and he’s so old. Plus my vet is out of town, of course.
#called to see if they can prescribe pain meds#i am beside myself#i thought we’d be able to get his stones down with food#but it doesn’t look like that’s happening#and what sucks so much is his arthritis is much better#bc he is on solensia#and they thought it might help with his bladder pain too and at first it seemed like it did#and his thyroid is better#like . . .#why does everything have to happen to my cats#between this and lk’s heart murmur#i’m so stressed and worried#plus i didn’t realize some cats have to be put down bc of them#like where the fuck did these come from he’s never had urinary issues ever#fuck this really sucks y’all
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Is there anything that helps with the nighttime panic? :/
#this is one of those days where I'm already getting nervous about nighttime thanks to last night not being great#my physical pain has been getting worse at night too so now there's some painsomnia thrown into the mix as well#I prefer sleeping without sleep aids because my natural sleep is a lot deeper and leaves me more well rested#but when I use sleep meds they get me to sleep quicker#just not good quality sleep#but even while knowing that I still resort to the meds sometimes because I start panicking that I won't sleep#I listen to audios about calm subjects to fall asleep but my brain just doesn't want to turn off sometimes#and it sucks because I had been wanting to eventually not rely on sleep aids at all#my mind just feels so loud and cluttered
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Tumblr Community - Full Metal Panic
Tumblr is rolling out this new community feature, and I had applied for an FMP! community a couple weeks back when I saw it pop up, and today it was approved!
I'm still learning my way around communities, but here's some things I've discovered so far:
It doesn't seem like posts in the community will post to the tags. This is good for isolating a post to a limited audience, if you're perhaps shy or worried about negative interactions.
A community can be public, so others can see the posts even if they don't belong to the community, but they cannot interact with the posts.
A community can be private, which would be good for further limiting the possibility of bad actors invading a space. Not my goal as a fandom community, so not a feature I'll use, but useful to know.
Side-blogs can't be invited or posted from in a community right now. Unsure if that will be implemented or not.
Posts from wild tumblr can be reblogged into the community. The reverse is not possible.
Currently, edits to a community are not possible, but they will be implemented in the hopefully-near-future. I didn't have any graphics ready to go when I applied, so the FMP community has default graphics, and I can't change that until this update. Apologies for the sloppiness on my part.
I'm not sure if you can request to be added to a community through it, I don't see any mention of such a feature.
If you have a pending invite to join a community, you may SEE everything a member can, but cannot interact until you accept the invite.
I sent invites earlier to a small handful of people I see in the notes or tags a lot, but then I got distracted so I never finished. Please feel free to send me a message here or @moonlight-at-dawn to request an invite to the community, if this seems like something you wish to join!
EDIT: Also just learned that if you reblog a non-community post to a community, the community-comments do NOT show up in the activity of the original poster. I'm not sure how I feel about that as of right now. I suppose it's ultimately no different than sharing something to a friend group and talking about it away from wherever it is hosted. But at the same time, I kinda feel where this is the *same* site, that the OP has a right to see what comments are made on their posts within the same hosting space? Not sure, I guess it falls into "I don't think this sort of thing should be made any easier, but I also don't think not including it would deter anyone whose goal is that."
#full metal panic#(sorry for my sloppiness i didn't realize when i applied that i wouldn't be able to edit the graphics)#(though that's also a load of my shoulders at the moment and is like... well i guess that means i may as well just advertise the existence#of the community now since i CAN'T prettify it until that feature rolls out)#(i am... Recovering... Slowly... from some massive flare ups... so i really wasn't prepared lol)#(i JUST had an appt where my meds were further sorted and with a worry off my mind now i feel like i finally have breathing room again)#(chronic pain :) is so :) fun :) :) :)
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i think i'm like. really in denial sometimes about how much pain i'm just Casually In...
OH NO WAIT HANG ON WAIT ACTUALLY MY MEDICINE WORE OFF AND I DID LIKE A LOT OF UNANTICIPATED ACTIVITY NEVER MIND I'M DUMB I'M HURTING FOR ACTUAL REASONS THIS TIME
#i mean i'm not but like also i am#this post brought to you by#apparently my meds wearing off and my absolutely insane menty b where i tore my crafting supply caches apart looking for my sewing needles#(i did not find them - i found *one* but not all of them they're supposed to be in a little blue circle jewel case#you know it's just a cheap needle set from joanns or michaels i don't remember which)#i am still distraught i never found the whole case of them but at least i know where One is and it's with my current Embroidery Project#which means it's where it needs to be and so long as it doesn't go missing when i inevitably drop it we're gucci#but since that's a silly thing to hope for indefinitely i will be intending to purchase more of them and try very hard not to misplace them#i also helped put away the groceries which was one of the first ways i realized actually the POTS dx might be on to something#so it's always a little taxing to do as it is#but that on top of the tantrum i threw about not being able to find my needles and the spiral inherent in the system#may have aggravated some parts of me that are already unhappy about the weather and pressure situation over this part of MI#i'll deal with the worn off meds until bedtime#TECHNICALLY i should still have about 4 hours of mild pain relief from them#it's not as good as it is around the 5-6 hour mark but it's not y'know. rawdogging the pain so that's nice#and it's not like any of it really does anything as it is everything just always hurts and it sucks but like we stay silly#it's just worse right now cause i did a lot and the weather's been nasty
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it's crazy finding out you're autistic as an adult bc then you start to notice the ways it affects you and has affected you throughout life
and then it becomes a hyperfixation bc you're like "omg this makes so much sense now" and you start feeling a bit better about yourself knowing that there's an explanation to everything
#.bdo#autism#''panic attack disorder'' they have all been full-on meltdowns#which is just as much of a reason that I stopped working as my chronic pain#bc the last job i had i quit in the middle of a phone call#bc the lights and sounds on top of the problem solving on top of my ADHD were Too Much#i was also incorrectly diagnosed with both bipolar type 1 and BPD#it was the PTSD mixed with everything else like my post-partum depression and psychosis#found out that the ''bipolar'' was just me being happier when i have my pain meds#and getting everything done in those couple of weeks where i felt better (''mania'')#and of course more depressed when i'm in more pain bc i can't not notice it#and then also my period really fucks me up too and i get extremely angry for 3-7 days straight#but anyway#i noticed how i stim and how the way i think specifically in patterns and numbers#i've always had really bad texture issues w both food and fabric#i have misophonia and can also feel certain noises (ESPECIALLY mouth noises)(ESPECIALLY if it's repetitive)#it makes me feel like i need to make the noise too#and half the people in my family have vocal stims#ik they can't help it but it sends me into panic attacks & meltdowns#i can hear electricity on top of my tinnitus#i get socially overwhelmed easily bc of all the masking#i talk to myself and make my own noises when im alone#i have repetitive thoughts that will cycle for weeks sometimes months at a time#so i think the ocd is comorbid#bc ever since i was like 5 i've had this pattern that i HAVE to tap on things every now and then or it drives me insane#i get intense hyperfixations for months or years#there's just a lot i notice about myself now
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#meg talks#feeling really down and frustrated#ever since i caught covid over the new year ive just been doing so badly#it’s now halfway through may and not only am i having all sorts of weird new pain problems#to the point where i dragged myself to the er yesterday bc my usual meds didn’t do shit for me and i spent seven hours writhing in pain#but also mentally im just. constantly tapped out#before covid i was able to keep up w news and work on research projects and write multiple image descriptions every day and read books#and keep up w friends all while working full time#like even if i was in bed p much whenever i wasn’t at work i could still read and write and carry conversations#now it’s like i can only handle all of these things in small doses before my brain just shuts off#im still keeping up w news and describing what i can and working on my research projects and trying to make connections#but i feel so slow abt everything i do#it’s driving me up the wall#ive been trying for days to get through this one academic paper that’s rlly not even that long#and i just can’t do it. not for long anyway i have to read in small bursts#and then having to take muscle relaxants for these fucking spasms that make me really drowsy and sleep the whole day away…#idk. it might not even be abt covid i might be reading too much into it but it’s just pissing me off. thinking abt how nobody masks anymore#and how every time there’s a covid outbreak i won’t be able to properly protect myself or my brothers from it#bc of this fuckass job#idk im just tired and upset
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