#well spoony :p
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Happy Birthday Nebby!
@nebbychan -- As per your suggestion of doing something with your Modern AU takes on Dan and Kiya from MediEvil (specifically "Maybe the two chatting at a museum about their favorite time periods (Dan can brag about his minor degree in Medieval Studies and Kiya can do the same with her Egyptology studies)"), here's the pair at a museum, specifically chatting about Medieval European and Ancient Egyptian weaponry! Because, to be honest, the first things that popped into my head when thinking about the prompt were these two posts on wacky polearms by prokopetz. XD Hope you enjoy!
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“...and that one, right there? That’s a Bohemian Ear-Spoon.”
Kiya raised a suspicious eyebrow at him. “You are definitely making that one up.”
“Nope,” Dan told her with his biggest, toothiest grin. “Completely real. Check out the label.”
Kiya squinted at him, then turned her attention to the identification tag plastered to the case. A moment later, her eyes went wide. “What even,” she declared, standing up straight.
“I know!” Dan said, laughing. “And you know what? That thing is not nearly the weirdest polearm out there. I’ve seen one that looked like one of those fancy pointy spikes you see on top of churches with a blender attachment on the side.”
“Seriously? European weapons are bizarre,” was Kiya’s opinion on that. She glanced up at him. “So – did they tell you in uni why that one’s called an ‘Ear-Spoon’ of all things?”
“Oh, this is one of those weird ones where the original name doesn’t translate well to English,” Dan explained. “But most people think it’s ‘cause they call those two triangular bits forming the guard the ‘ears.’”
“Ah – well, that’s better than what I originally thought.”
Dan tilted his head. “Do I want to know?”
Kiya made a motion like she was jamming something into her ear while pulling a face. “I think you can guess.”
Dan grimaced, his very teeth seeming to flex with the motion. “Yeah...kind of prefer to avoid that kind of ear-spooning,” he said, absently brushing his bangs a little more over his eye patch.
Kiya winced. “Yeah, I – sorry, I didn’t mean to–”
“No, no, it’s fine!” Dan assured her, holding up his hands with an awkward grin. “Shit happens, you know? It’s not a big deal or anything. I definitely don’t want it spoiling our date.”
“Me either.” Kiya took one of his hands, smiling warmly. “I’m having a really good time. I didn’t expect learning about the fifty million polearms Medieval Europe invented would be so interesting.”
Dan snorted. “Well, I gotta make sure someone other than me gets some use out of my minor,” he said, smile much more genuine now. “And it is pretty neat that they came up with so many different variations. You wouldn’t think there would be that many ways to change up ‘sharp pointy metal bit on stick.’” He regarded Kiya curiously. “You get anything like that with Ancient Egyptian weaponry?”
“Not really – Ancient Egypt honestly had something of a problem making any effective weapons until the New Kingdom period,” Kiya said, slipping into “curator” mode. “And even then, they mainly advanced because they’d been conquered by the Hyksos – foreign rulers who slipped into power while the main Egyptian dynasty was crumbling – and they were able to pilfer a lot of knowledge of arms off them before they drove them out.”
“Yeah? Like what?”
“Mainly, using bronze tips on their spears to help them hold an edge better and longer,” Kiya said with a little chuckle. “Though they also created the javelin in that time, and they used that to pretty great effect in their later campaigns. Honestly, though, my favorite Egyptian weapon from that time period is the Khopesh.”
“Oh?” Dan leaned in, intrigued. “What’s that? Guessing not a spear?”
“Nope – a large curved sword that looks something like a sickle,” Kiya told him, grinning. “Only with the sharp edge on the outside. Pharaohs from that time period are often depicted wielding it because it was known as a very dangerous and powerful weapon – one more than fit for a king.” She giggled. “And like your Ear-Spoon, the name might come from a body part – some scholars believe it was derived from the Egyptian word for ‘leg’ because it looks vaguely like a haunch of beef.”
Dan laughed. “That’s great!” He looked around the room. “You think they might have one of those here? I know they’ve got an Egyptian exhibit...”
Kiya linked her arm through his, face bright. “Let’s go and find out.”
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Bohemian Ear-Spoon On Wikipedia
Ancient Egyptian Weapons: The Evolution of Warfare
Khopesh On Wikipedia
#happy birthday#nebbychan#fanfic#medievil#modern au#we'll assume the museum they're at has the Egyptian stuff on loan as part of a trade#but yeah first thought was 'I gotta have Dan tell Kiya about the Bohemian Ear-Spoon' XD#and of course I had to reference the khopesh since that's Kiya's weapon of choice in your fanfic#turned out to be a pretty fun time researching all this#I expected the Ear-Spoon to be more#well spoony :p#and yeah my first thought about the name was also#'designed for shoving in people's ears'#but nope apparently it comes from the pointy little guards#learn something new every day#and I though the khopesh would be more sword-like but apparently not#...and it just occurred to me that I have in fact seen pharaohs holding it in art#I had an Egyptian phase as a kid and THAT was probably the curved thingy they were always holding!#revelation!#anyway hope you enjoy :)#queued
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💚♿️ Introduction Post ♿️💚
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Hi there, fellow spoonie! I’m Sebastian, and this is my blog for my diagnosis journey. Welcome! <3
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Things To Be Diagnosed
Physical
Hyperglycemia or Hypoglycemia (We aren’t sure yet)
Gastroparesis (Likely)
IBS (Irritable Bowel Syndrome) (Likely)
POTS (Postural Orthostatic Tachycardia Syndrome) (Was tested, came back with no indicators, the doctor was an asshat, so planning to test in other ways to make sure)
hEDS (Hypermobile Ehlers-Danlos Syndrome) (Was tested, came back without enough indicators, the doctor was an asshat and did a lot of it wrong, so planning to test again by someone else to make sure)
?MCAS (Mast Cell Activation Syndrome)? (Not too sure, but there seems to be some correlations, and will get it checked in the future just in case)
Mental
ASD (Autism Spectrum Disorder)
ADHD (Attention Deficit Hyperactive Disorder) (Combined Type)
C-PTSD (Complex Post-Traumatic Stress Disorder) or PTSD (Post-Traumatic Stress Disorder)
Pure O OCD (“Purely Obsessional” Obsessive-Compulsive Disorder)
SPD (Sensory Processing Disorder)
APD (Auditory Processing Disorder)
ARFID (Avoidant/Restrictive Food Intake Disorder)(Avoidant Type)
SAD (Social Anxiety Disorder) BDD (Body Dysmorphic Disorder)
Misophonia
Trichotillomania
Dermatillomania
SAD (Seasonal Affective Disorder)
Agoraphobia (“Mild”)
PDA (Pathological Demand Avoidance, or Persistent Drive for Autonomy)
Alexithymia
Hypersexuality
DPDR & Dissociative Amnesia
Overlapping
PMDD (Premenstrual Dysphoric Disorder)
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Already Diagnosed
MDD (Major Depressive Disorder)
GAD (Generalized Anxiety Disorder)
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About This Blog
I’ll probably mainly be posting about the progress on my physical diagnoses. I will be posting about PT, my chronic pain, chronic dislocations and subluxations, chronic fatigue, pre-syncope and co., and everything to do with my physical symptoms and struggles.
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More Things
I’m going in for PT twice a week, and I’m doing home exercises.
I had an appointment with my eye doctor on 10/14/2024. Prescription changed, slightly worse.
I had an appointment with a cardiologist on 11/4/2024 to figure out if I have POTS and hEDS as well, and came back negative for all, but the doctor was a medical gaslighter, so we’re getting things re-tested by someone different.
I had an appointment with a gender clinic on 11/4/2024 to start the process of diagnosing and treating my neurodivergencies, and it went really well.
I went for bloodwork today (9/20/2024), and I was tested for diabetes and more things, but I do not have it. The tests showed that I have poor liver function, so we’re doing things to start helping with that. We’re hoping to test for the hyperglycemia or hypoglycemia in the future sometime.
I went for a gynecologist appointment on 11/15/2024 for suspected PMDD, and am now on menstrual-suppressing medication.
I had an appointment with the gastroenterologist on 11/26/2024, and now we’re going for testing later on to confirm celiac, to make sure my thyroid is healthy and okay, and then testing for both IBS and Gastroparesis.
I had an appointment with a Gender Clinic on December 2nd of 2024 to discuss testosterone for in the future, gender dysphoria, and had a binder fitting. I’m being referred to an endocrinologist for testing to see my hormone levels and etc., and we’ll hopefully be able to get an appointment in January, maybe February, but hopefully sooner than all that.
I had an appointment with a Psychiatrist who specializes in ADHD and Autism, on December 4th of 2024, who gave us referrals to psychologists who also specialize in those, so that we can get testing for them both.
I have an appointment with an endocrinologist on January 29th to test hormone levels and hopefully get on testosterone ASAP.
I have an appointment with the AMPS Program to do mass overall testing of my body, and hopefully get referrals to specialists and options as to what’s going on.
I suffer from chronic pain, chronic dislocations & subluxations, chronic stomach issues, hypermobility (about an 6/9 on the Beighton Scale, plus hypermobility outside the Beighton Scale), chronic fatigue, and more stuff.
I own some mobility aids (forearm crutches & cane) and am hoping to get more in the future (specifically wheelchair, I’m saving up for it, but might be able to get it this or next year), and I have compression socks to help with blood pooling. I also have joint support braces to help during flare ups with subluxations and dislocations.
I am also celiac, have a dairy allergy, have environmental allergies, like dust, mold, and pollen, have random allergies like bananas, peanuts, eggs, any sort of concentrated sugars or things with lots of sugar in them (natural or added), specific adhesives, amoxicillin, random hand soaps, random hand sanitizers, certain kinds of bleach, random kinds of metals, kiwi, some deodorants, and random acne face washes.
I struggle with my eating due to my undiagnosed ARFID, POTS, and possible Gastroparesis. So, beware, I am always incredibly mood swingy due to that.
Daily Pain Scale
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About Me
I’m a Queer, Nonhuman, Neurodivergent, and Disabled Transman (He/It/Any Neos).
I’m 17-years-old, and feel 35 already.
I am taken by my amazing boyfriend, @sorensstuffs (He/It/Xe).
I have one sibling (Any Pronouns), who I won’t be tagging since he isn’t on here much.
I’m a reality shifter, and have shifted about 5 or 6 times (parallel realities).
I’m a beginner Dual Faith Polytheist. I am in contact w/ a lot of Gods, and have altars for a few. I do have religious trauma with Christianity/God/Jesus though, so if you’re heavy with that on your blog, please shoo shoo.
My Special Interests are: Wings Of Fire, Harry Potter (fuck the author, I’m mainly here for the dead gay wizards), Dragons, and currently my most active special interest is Neurodivergency & Disabilities.
My Current Hyperfixation is: Neurodivergency & Disabilities, specifically my own.
I’m queer in many ways: Trans (FTM), Genderqueer, Enby (and under the umbrella), Xenogender, AroAce (Homoalterous, Panqueerplatonic, Homoexteramo, Pansensual, Panaesthetic, Panplatonic), Polyamorous, T4T-leaning, and Lesboy.
I’m nonhuman in many ways as well: Polytherian, Polykin, Otherfix, Otherhearted, Otherflicker/Fictionflicker, Transspecies (radqueer fuck off), Humanfluid, Pseudohuman, Physical Nonhuman, and Voidpunk.
I love drawing, creating things, reading, and writing. Mainly, my hyperfixations and special interests take over my life, so I don’t have the energy or time for anything else (and then sometimes, my possible chronic illnesses take over my hyperfixations and special interests, and I’m not even able to muster energy to do them).
Tone tags/indicators are incredibly helpful for me, PLEASE USE THEM!
If you have any questions about anything, please ask me and I will not be bothered.
I don’t have the energy to make a DNI list, but just know that I will block you loads if you do fall under my mental DNI list.
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Userboxes:
(All credit to the original creators of the userboxes - I am hoping to individually credit them soon, I am just waiting for the energy to do so!)
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#chronically ill#chronic illness#hEDS#HSD#POTS#audhd#neurodivergent#disabled#physical disability#invisible disability#diabetes#hyperglycemia#hypoglycemia#gastroparesis#undiagnosed#ptsd#cptsd#pmdd#queer#nonhuman#trans#ocd#chronic fatigue#chronic pain#invisible illness#physical illness#diagnosis#diagnosis journey#hypermobile ehlers danlos#hypermobility
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Okay so I'm& revitalizing this again.
Hi, my& name's Arcana& / Angel&, and I& am the core / host / singletsona of The Imaginarians Galaxy. If you want to help support a local queer, trans, nonbinary, genderfluid, intersex, mspec, aspec, autistic, disabled, neurodivergent, hoh, chronically ill, psychotic spoonie witch two spirited mixed native and ashkenazi jewish bodied multigenic DID system who's an aspiring activist, fashion model, voice & film actrex, ASMRtist, youtuber/vtuber, polyglot & writer, it'd be greatly appreciated.
This month is Pride Month & Indigenous History Month so please support our indigenous turtle island communities, know who's land you're on and support queer indigenous turtle islander creators, & on top of that, July 13th is also my& birthday & July is also Disability Pride Month & Queer Wrath Month !! I& just find it's funny how white queers get all this support & clout, but the minute a queer Native Jew asks for any kind of mutual assistance, it's like cricket noises, but anyway, here I& go again, I'm& putting out these links just in case someone actually does wanna help out because it's only right to do so being an indigenous queer two spirited bodied system, after all.
If you're white, you can think of this as paying reparations for us& for dealing with antinative racism, antisemitism, ableism, sanism, pluralphobia, psyism, audism, homophobia, biphobia, transphobia, multitransphobia, aphobia, exorsexism, intersexism and the ongoing colonization of my& people and fighting on the behalf of the indigenous, queer and plural communities on here while for any POC reading this, you can think of this as extending your solidarity with us&, so after I& spent a lot of blood sweats and tears into what i& do, I'm& finally asking something that would benefit me& for a change, even like 10$ could help, but even if you still can't for whatever reason, please spread the word out to help us& live easier as a disabled, neurodivergent mixed native system in this ableist & racist world.
Donate To Our& P*yP*l
Multipurpose Psychiatric Service Dog Donations
Throne Wishlist
So far these are the best ways to support us&. Information on commissions, booking tarot readings with me& as well as sensitivity reader information will be available in a reblog eventually.
We& didn't have a great childhood growing up as we& were abused for a decade & we& weren't taught many lifeskills so we're& still learning from the gate. Even though we aren't in a life threatening emergency, I'm& generally not in the right financial space to spend a lot & buying my& own shit because I'm& Saving Up™ for a lot of things, including the possibility of me& moving to my& first ever apartment next year & my& future service dog & I& cannot work due to my& multiple disabilities, & I& can't stand up for long periods of time without feeling exhausted & just being an overall madcripple, so whatever you do, it'd be greatly appreciated, especially if you like our& content.
Remember, reblogs > likes!
#arcana.txt#mutual aid.#** post; signal boost.#hennywayz please consider helping us& out !#our& p.osts for our& t.arot readings & c.ommishes'll be open soon hopefully bc we& got Good Reviews !! TM#also our& s.ervice d.og GFM is still a wip in the sense the description needs to be updated our& bad but you generally get the gist lmao#but keep in mind that this is only for those who're mentally & physically able to give who have energy & spoons to care & those who have $#if you don't have any of that that's fine too !! n e wayz yt settlers yall owe us& apology gift reparations lmao#tagging for visibility purposes:#indigenous history month#pride month#pride#** post; okay to reblog.#!!!!!
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I recently came across this quote on #Twitter and thought that it just brilliantly summed up the experience of living with #chronicillness perfectly. Because although there are good days, sometimes even wonderful days - pain and illness are still there, still a part of that memory and experience. In my experience, there is never a day when pain or the #symptoms of the #neurologicaldisorder I live with are not there; it is my full-time job, just one where I never have a break or a holiday entitlement, and which I work 24 hours a day, 365 days a year. This illness and these symptoms have now been a part of my life for so long, I can no longer recall what it felt like when they weren't there, or what it feels like to feel healthy, what it feels like to feel well. #spoonie #chronicpain #chroniclife #chronicallyill #invisibleillness #spoonielife #chronicillnessblogger #chronicallyillblogger #spooniecommunity #neisvoid #wherethetiredgirlsare #chronicillnesswarrior #chronicpainwarrior #chronicpainblogger #fnd #functionalneurologicaldisorder #fndaware #voices4fnd https://www.instagram.com/p/CqIM1NLtGp2/?igshid=NGJjMDIxMWI=
#twitter#chronicillness#symptoms#neurologicaldisorder#spoonie#chronicpain#chroniclife#chronicallyill#invisibleillness#spoonielife#chronicillnessblogger#chronicallyillblogger#spooniecommunity#neisvoid#wherethetiredgirlsare#chronicillnesswarrior#chronicpainwarrior#chronicpainblogger#fnd#functionalneurologicaldisorder#fndaware#voices4fnd
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Low energy day today, coupled with a restless and demanding old basset girl. It translates to dozing/resting being interrupted every few hours by my girl demanding something or another 🐶 - to go out, more food, lifting on the bed... and the poor younger pup always gets up to go with her and then just sits all groggy for a few moments. I feel you little one, I feel you 😅😴 Do you have pets? Do they have you well trained? 😁 Blouse and from @scarletdarkness_official Harness from @uchronictime Photo by VBstills #witchstyle #witchaesthetic #cottagecore #spoonie #darkacademia #goth #gothicgirl #gothsofinstagram (at Zagreb, Croatia) https://www.instagram.com/p/CpsgjqboHyN/?igshid=NGJjMDIxMWI=
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"A chronic illness is not a life sentence. One can learn to live well despite it. But first, one must learn to live with it." Paul J. Donaghue & Mary E. Siegel, Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Illness. #quotes #bookstagram #motivation #chronicillness #sickandtired #selfhelp #mentalhealth #book #life #living #invisibleillness #truedat #motivationalquotes #livewell #learn #myositis #myositiswarrior #spoonie #zebra #antisynthetasesyndrome #autoimmunedisease #raredisease #interstitiallungdisease #raynaudsphenomenon #mechanicshands #health https://www.instagram.com/p/CpgKH00PYHp/?igshid=NGJjMDIxMWI=
#quotes#bookstagram#motivation#chronicillness#sickandtired#selfhelp#mentalhealth#book#life#living#invisibleillness#truedat#motivationalquotes#livewell#learn#myositis#myositiswarrior#spoonie#zebra#antisynthetasesyndrome#autoimmunedisease#raredisease#interstitiallungdisease#raynaudsphenomenon#mechanicshands#health
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"I am old, Gandalf. I don't look it, but I am beginning to feel it in my heart of hearts. Well-preserved indeed! Why, I feel all thin, sort of stretched, if you know what I mean: like butter that has been scraped over too much bread. That can't be right. I need a change, or something." -- #jrrtolkien #tolkien #LOTR #lordoftherings #bilbobaggins #gandalf #weary #tiredasamother #tiredselfie #anxietyanddepression #anxietybelike #overthinker #overwhelmed #anxiousmind #chronicillnesslife #chronicpain #chronicallyill #spoonie #thespooniesisterhood #spoonieselfie #spoonies #quoteslover https://www.instagram.com/p/Co8WPxyviQn/?igshid=NGJjMDIxMWI=
#jrrtolkien#tolkien#lotr#lordoftherings#bilbobaggins#gandalf#weary#tiredasamother#tiredselfie#anxietyanddepression#anxietybelike#overthinker#overwhelmed#anxiousmind#chronicillnesslife#chronicpain#chronicallyill#spoonie#thespooniesisterhood#spoonieselfie#spoonies#quoteslover
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Me on one blog: mental breakdown, very upset and sobbing (in real life too)
Me on this blog: haha jousting
#and im not sobbing anymore (still very upset though) but this was me earlier#and those who follow my spoonie one as well probably go ‘wtf’ a lot because this is an occurence#p
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Most people think of getting sick as a part of life. You get sick, you go to the doctor, take your medicine, and like “magic” you get better, and afterwards you go on with your life as if nothing happened. Those few sleepless nights with stuffed noses, stomach aches, and body pain are nothing compared to the long, healthy life that most of them will live. ☆ That’s the funny thing about chronic pain and chronic illness. You’re healthy… until you’re not. Some days you have more energy, or more spoons, and others, you don’t. Last week I was staying in bed every day until 2pm because I wasn’t sleeping at night, wasn’t feeling well, and played it off as “staying up all night reading” to my family because, I am a bookworm, and that is believable to the people I love. I almost dropped out of NaNoWriMo this year because, I have just felt like absolute shit. ☆ I also have a huge week ahead between an Allergist appointment, having to go to Rush on Tuesday, a DEXA scan Wednesday, and more that I haven’t even called to set up yet. All the while my little brother turns 21 on Monday, and I NEED to get my shit together enough to make his birthday pie, and the casserole that he asked for because this is his 21st birthday, and I cannot drop the ball here. Our mom passed away in 2020, and she can’t be here to make it a good birthday so I HAVE to. ☆ I am fucking STRESSED. ☆ #EDS #EhlersDanlos #Stress #Insomnia #Depression #ChronicIllness #ChronicallyIll #Insomniac #Spoonie #SpoonTheory #POTS #ChronicPain #CRPS #InvisibleIllness #ButYouDontLookSick #Disabled #DisabilityAwareness #AuDHD #ChronicPainAwareness #DisabledCreator #MCAS #PTSD #Dysautonomia #InternationalDayofDisability #MentalIllness #nanowrimo #aspiringauthor https://www.instagram.com/p/CluFGucv7Bc/?igshid=NGJjMDIxMWI=
#eds#ehlersdanlos#stress#insomnia#depression#chronicillness#chronicallyill#insomniac#spoonie#spoontheory#pots#chronicpain#crps#invisibleillness#butyoudontlooksick#disabled#disabilityawareness#audhd#chronicpainawareness#disabledcreator#mcas#ptsd#dysautonomia#internationaldayofdisability#mentalillness#nanowrimo#aspiringauthor
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Love my new workout ‘fit. Thank you so much, @__nickitty, for the leggings! 💪🏻😍🖤 • • • #tuesday #happytuesday #selfie #mirrorselfie #smile #tuesdaymotivation #workout #workoutmotivation #workoutfit #workoutclothes #leggings #comfy #black #model #modeling #pose #fitness #health #wellness #beautiful #confident #confidence #yay #happy #grateful #warrior #spoonie #strength #staystrong #love https://www.instagram.com/p/Cb_DgK7Ox7j/?utm_medium=tumblr
#tuesday#happytuesday#selfie#mirrorselfie#smile#tuesdaymotivation#workout#workoutmotivation#workoutfit#workoutclothes#leggings#comfy#black#model#modeling#pose#fitness#health#wellness#beautiful#confident#confidence#yay#happy#grateful#warrior#spoonie#strength#staystrong#love
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#DayInTheLife / #Random Posts, Pictures/Photos, Screenshots, On My Travels :/ :) #YourNHSNeedsYOU & Food/Drinks/Pharmaceutical/Gaming #Retail Needs You & #SolidarityWithShopWorkers :) #StayAtHome :) Self Isolation With: RSD - CRPS Type 1 ,& Wrist Instability/Carpal Instability (Which Are Both Serious & Complex Chronic Pain & Disabilities), Along With Mental Health Illnesses Of Depression & #Anxiety With: #BPD / #EUPD ,Is Often The Norm For Me & Other Suffers / #Spoonies :/ :( #StayHomeChallenge / #CoronaVirusUk :) My #MentalHealth / #LifeJourney / #DayInTheLife Of Me @Scott1984FP - #Scott1984FP - https://www.pscp.tv/Scott1984FP ,VIA #SOCIALMEDIA ,Talking About Mental Health & Life ,Through: Instagram, Shares, Likes, Photos, Videos, #ScreenShots , & #RT's :) I Post On Social Media & Post Videos,Etc For Me & Are For My Benefit/s & Just For Me Too :) Not After, Nor Seeking Sympathy &/Or Prayers, Well-Wishes, Or Any Of Those Combinations Either, Also Its Ok To Get Attention From Time To Time Too :) #BedsHour #Bedford #BedfordMentalHealthHour (at The Three Cups) https://www.instagram.com/p/CaVsFtNq0F9/?utm_medium=tumblr
#dayinthelife#random#yournhsneedsyou#retail#solidaritywithshopworkers#stayathome#anxiety#bpd#eupd#spoonies#stayhomechallenge#coronavirusuk#mentalhealth#lifejourney#scott1984fp#socialmedia#screenshots#rt#bedshour#bedford#bedfordmentalhealthhour
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* Urgent Update * (8/31/2021) I have difficult news to share. I met with my surgeon yesterday (8/30/2021). I have been suffering immensely from severe surgical complications from my first surgery on July 29th 2021 for my hidradenitis suppurativa in my groin. As some of you may know from my previous updates here, I am having multiple reconstructive surgeries of my groin, labia, and thighs to combat my stage three hidradenitis suppurativa. It is extremely painful, isolating, costly, triggering, and extensive. I now must have a complete reconstruction of my first largest incision - on my labia. I have been septic multiple times from continued, chronic abscesses in my incisions. Hidradenitis suppurativa is a chronic, autoimmune disease with no cure. The surgeries I am having are to mitigate the progression of the disease and hopefully extend my lifespan. Things are not going well. I am developing antibiotic resistance over the times between my surgeries. I am not ok. This is a terrifying place to be. I am in excruciating pain. At the start of my surgeries, my surgeon hoped they would slow the progression of the disease process, but they are not. My surgeon stated yesterday that it will not be a 3-4 surgery process, but an ongoing - lifetime battle of continued surgeries to remove the diseased tissue. Please send me your support and comfort. I need it. I am facing these surgeries alone. I have no one here to physically be with me. All I want is a hand to hold and arms to embrace me as I cry. This so, so painful and exhausting. Thank you for reading and being a friend to me. You make a difference in my world. ➡️ Go Fund Me link in BIO: www.gofundme.com/HelpHannahSoar #givingtuesday #sepsissurvivor #hydratinitissuppurativa #skingrafting #trigeminalneuralgia #chronicpain #autoimmunedisease #surgery #emergency #chemohair #sickandtiredofbeingsickandtired #spoonielife #butyoudontlooksick #suicideawarness #invisibleillness #spooniewarrior #fundraising #Paintudes #painrelief #facialpain #spoonies #neuroscience #actuallyautistic #baldisbeautiful #braintumor #gofundme #raredisease #chronicallyill #strongwoman #ptsdawareness (at Eugene, Oregon) https://www.instagram.com/p/CTQlpmJlnMq/?utm_medium=tumblr
#givingtuesday#sepsissurvivor#hydratinitissuppurativa#skingrafting#trigeminalneuralgia#chronicpain#autoimmunedisease#surgery#emergency#chemohair#sickandtiredofbeingsickandtired#spoonielife#butyoudontlooksick#suicideawarness#invisibleillness#spooniewarrior#fundraising#paintudes#painrelief#facialpain#spoonies#neuroscience#actuallyautistic#baldisbeautiful#braintumor#gofundme#raredisease#chronicallyill#strongwoman#ptsdawareness
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Hi, my& name's Arcana& / Angel&, and I& am the core / host / singletsona of The Imaginarians Galaxy. If you want to help support a local queer, trans, nonbinary, genderfluid, intersex, mspec, aspec, autistic, disabled, neurodivergent, hoh, chronically ill, psychotic spoonie witch two spirited mixed native and ashkenazi jewish bodied multigenic DID system who's an aspiring activist, fashion model, voice & film actrex, ASMRtist, youtuber/vtuber, polyglot & writer, it'd be greatly appreciated. It's disability pride month and my& birthday is exactly next week on the 13th of July, & on July 11th is Two Spirit Awareness Day while last month was Pride Month and Indigenous History Month and i& still didnt get anything, not even a single cent despite the reblogs & shows of support so if y'all wanna help out a queer disabled mixed native, y'all can help me& out, especially because we're& also saving because we're& likely gonna be moving out for the first time next year as well as for our& future service dog, we& can't work due to our& multiple disabilities and neurodivergencies & just being an overall madcripple so it'd be greatly appreciated, especially if you like what we& do and our& content.
Our& P*yP*l
Multipurpose Psychiatric Service Dog GFM
Throne Wishlist
#arcana.txt#mine.#tagging for visibility purposes:#disability pride month#** post; okay to reblog.#** post; signal boost.#nonnative goyim do your part if you have the means & don't be a bystander! support disabled n.ative creators! this is very important!#nonnative goyim please step up!
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For any of my spoonies out there also struggling through this crazy time with very little support and understanding... For those operating at a level of pain that able-bodied people wouldn’t be able to get out of bed with, let alone fathom, because there simply is no other choice... For those trying to navigate through these insane times, doing your best to stay safe, terrified of other people’s choices and lack of consideration & care for others… For those not currently able to access treatments & procedures or even see their doctors due to restrictions, challenges and the red tape in place… For those financially struggling due the cost of their treatment/meds, and those forced to work and put themselves at risk to pay for said treatments and meds… You’re not alone. The last two years have been ROUGH AS HELL, and the idea of going into a new year with even more uncertainty and fear is SO daunting and intimidating. You’ve got this! Even if today/lately you haven’t been your best, there’s always tomorrow to work towards it. It’s hard at the moment for everyone, let alone those with the challenges you have, so be a little kinder to yourself and allow yourself some grace… If possible, find a pace that is functional for you and set boundaries, as you know, people really don’t understand what you’re going through and how much it takes to appear “normal”. APMA is an excellent resource if you’re ever in need. Reach out to them and start a convo; vent, ask questions, learn about options you may not have known about that are open to you, find a community or become a well informed a lone wolf if that is how you deal. I have no affiliation with them, but have made contact a few times and found the resources very helpful. Reach out. Hell, reach out to me… I will get back to you. I’m not always on here and am doing my best to simply get through the end of this year, but always have an open ear and heart. Stay safe & try to be nice to yourself ♡ #chronicpainaustralia #chronicillness #spoonie #spoonielife #chronicpain https://www.instagram.com/p/CYG9upfP-az/?utm_medium=tumblr
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𝐇𝐄𝐀𝐋𝐓𝐇.
repost & BOLD all that apply to your muse .
gets colds easily / has a chronic condition / spoonie / has had major surgery / has had minor surgery / suffers from spring allergies / has broken a bone / has a sensitive stomach / gets headaches easily / has anxiety / has depression / has psychosis / disassociates / has trauma / has a phobia / has an addiction / is prone to panic attacks / bruises easily / has had a major health scare / has lost a loved one to health issues / pushes themselves when sick / is a poor patient / is a good patient / ignores signs of poor health in themselves / is a hypochondriac / has undiagnosed health issues / isn’t bothered by medical settings / hates medical settings / takes their medicine / doesn’t take their medicine / only takes their medicine when they need remember it / doesn’t have medicine / works on improving their health / makes choices that worsen their health
Tagged by @x-m-p-e-r-e-u-r ❤️ thank you!
Tagging @sharkfinx (ily okay? You getting all the tags now xD) @thehyugagenius @uchihashisui-kun @yanderink @sage-quinn-itani @theredpalace and everyone who likes to as well :'3
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Howdy, welcome to my sideblog.
DNF IF ANY OF THE FOLLOWING APPLIES TO YOU:
Under 17, zionist/pro-isnotrael, any form of LGBTQ-phobic, exclus, transmed, believe "Queer is a slur", TERF/SWERF, anti-kink/kink critical, anti-Black Lives Matter, anti-ACAB, use religion to excuse bigotry, pedophile or support/defend pedophiles, victim blame SA/CSA survivors, turn a blind eye to predators in your community(/ies), excuse death threats/suicide bait/threats of violence, pro-"life"/anti-choice, refer to CSEM/CSAM as "C//////P" or "child p////rn, Anti-ship/Pro-harassment/Pro-censorship in fiction
(list may be added to in the future)
Basic things to know about me ->v
Name(s): Katt or Jordan, though René, Link, Grell, Harley, Mikey, and Key are also 100% acceptable
Language: English. I want to learn Korean and ASL
Nationality: American (unfortunate, I know, but it wasn’t my idea /j)
Race: Mixed. I primarily identify as Black, though I'm also part Native American (muscogee/creek and blackfoot) and white (really I'm more white than I am Native but I don't like to think about that)
Gender & Orientation: Queer (demiromantic/arospec, sex repulsed aego-pansexual gay nonbinary man); I'm Genderfluid, my pronouns are He/Him, They/Them, Xe/Xim, Kit/Kits, or literally any pronouns you see fit that aren't "she/her" or "it/its"
I am a fiction-kin. The main characters I kin at the moment are Link, Grell, Harley Quinn, Alois Trancy, Adrien Agreste/Chat Noir, and Sebastian/Glam from Metal Family. I don't believe I am these characters, but I heavily relate to them in different ways.
I AM PRO-CHOICE. If this wasn’t already made abundantly clear by my DNI/DNF, bio/description, about, or just the stuff I’ve been posting on here since, what October 2019?, this better make it obvious.
I'm a spoonie due to chronic vertigo, migraines, and possibly POTS and hEDS
I'm autistic as well as ND in other ways (not yet medically validated). I also have very low empathy (on an empathy quotient test I scored a 16.0). I use tone indicators sometimes, but if I don't and I end up coming off as mean/rude, I simply don't have the energy to mask anymore. I'm naturally pretty monotone/deadpan, even in my sense of humor, and it can and will translate into text. No, I will not apologize if your feelings get hurt.
Likes (bolded = special interest, italicized = hyperfixation): Music (especially rock, r&b, and Kpop, but I’m not picky about genre), BOTW, Animals (especially snakes), Horror, Greek mythology, Witchcraft, A:TLA, TLOK, BNHA, Beastars, The Umbrella Academy, Singing, Rapping, Dancing, Stuffed toys, Stimming, Hannibal, Sewing, Mantids, Tarantulas & Jumping spiders, Butterflies, Mermaids, Dragons, cartoons, anime, Ice cream, Cheesecake, Baking, Miraculous Ladybug, Animal Crossing (dm or send an ask off-anon for my friend code :3), MLP, LoliRock, Metal Family, medical dramas (specifically The Good Doctor, Grey's Anatomy, and House M.D.)
Dislikes: Most bugs (especially beetles), small cracks, loud noises that I can't control, broccoli
If you have any questions feel free to DM me or send me an ask off-anon so I can answer privately. Ableist bullshit will not be tolerated.
[Image ID: A gif of the character Grell Sutcliffe from the anime Black Butler/Kuroshitsuji. She is blushing, winking, and blows a kiss, making a baby pink heart appear and bounce from her hand towards the viewer, quickly moving upward. END ID]
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