the thing about art is that it was always supposed to be about us, about the human-ness of us, the impossible and beautiful reality that we (for centuries) have stood still, transfixed by music. that we can close our eyes and cry about the same book passage; the events of which aren't real and never happened. theatre in shakespeare's time was as real as it is now; we all laugh at the same cue (pursued by bear), separated hundreds of years apart.
three years ago my housemates were jamming outdoors, just messing around with their instruments, mostly just making noise. our neighbors - shy, cautious, a little sheepish - sat down and started playing. i don't really know how it happened; i was somehow in charge of dancing, barefoot and laughing - but i looked up, and our yard was full of people. kids stacked on the shoulders of parents. old couples holding hands. someone had brought sidewalk chalk; our front walk became a riot of color. someone ran in with a flute and played the most astounding solo i've ever heard in my life, upright and wiggling, skipping as she did so. she only paused because the violin player was kicking his heels up and she was laughing too hard to continue.
two weeks ago my friend and i met in the basement of her apartment complex so she could work out a piece of choreography. we have a language barrier - i'm not as good at ASL as i'd like to be (i'm still learning!) so we communicate mostly through the notes app and this strange secret language of dancers - we have the same movement vocabulary. the two of us cracking jokes at each other, giggling. there were kids in the basement too, who had been playing soccer until we took up the far corner of the room. one by one they made their slow way over like feral cats - they laid down, belly-flat against the floor, just watching. my friend and i were not in tutus - we were in slouchy shirts and leggings and socks. nothing fancy. but when i asked the kids would you like to dance too? they were immediately on their feet and spinning. i love when people dance with abandon, the wild and leggy fervor of childhood. i think it is gorgeous.
their adults showed up eventually, and a few of them said hey, let's not bother the nice ladies. but they weren't bothering us, they were just having fun - so. a few of the adults started dancing awkwardly along, and then most of the adults. someone brought down a better sound system. someone opened a watermelon and started handing out slices. it was 8 PM on a tuesday and nothing about that day was particularly special; we might as well party.
one time i hosted a free "paint along party" and about 20 adults worked quietly while i taught them how to paint nessie. one time i taught community dance classes and so many people showed up we had to move the whole thing outside. we used chairs and coatracks to balance. one time i showed up to a random band playing in a random location, and the whole thing got packed so quickly we had to open every door and window in the place.
i don't think i can tell you how much people want to be making art and engaging with art. they want to, desperately. so many people would be stunning artists, but they are lied to and told from a very young age that art only matters if it is planned, purposeful, beautiful. that if you have an idea, you need to be able to express it perfectly. this is not true. you don't get only 1 chance to communicate. you can spend a lifetime trying to display exactly 1 thing you can never quite language. you can just express the "!!??!!!"-ing-ness of being alive; that is something none of us really have a full grasp on creating. and even when we can't make what we want - god, it feels fucking good to try. and even just enjoying other artists - art inherently rewards the act of participating.
i wasn't raised wealthy. whenever i make a post about art, someone inevitably says something along the lines of well some of us aren't that lucky. i am not lucky; i am dedicated. i have a chronic condition, my hands are constantly in pain. i am not neurotypical, nor was i raised safe. i worked 5-7 jobs while some of these memories happened. i chose art because it mattered to me more than anything on this fucking planet - i would work 80 hours a week just so i could afford to write in 3 of them.
and i am still telling you - if you are called to make art, you are called to the part of you that is human. you do not have to be good at it. you do not have to have enormous amounts of privilege. you can just... give yourself permission. you can just say i'm going to make something now and then - go out and make it. raquel it won't be good though that is okay, i don't make good things every time either. besides. who decides what good even is?
you weren't called to make something because you wanted it to be good, you were called to make something because it is a basic instinct. you were taught to judge its worth and over-value perfection. you are doing something impossible. a god's ability: from nothing springs creation.
a few months ago i found a piece of sidewalk chalk and started drawing. within an hour i had somehow collected a small classroom of young children. their adults often brought their own chalk. i looked up and about fifteen families had joined me from around the block. we drew scrangly unicorns and messed up flowers and one girl asked me to draw charizard. i am not good at drawing. i basically drew an orb with wings. you would have thought i drew her the mona lisa. she dragged her mother over and pointed and said look! look what she drew for me and, in the moment, i admit i flinched (sorry, i don't -). but the mother just grinned at me. he's beautiful. and then she sat down and started drawing.
someone took a picture of it. it was in the local newspaper. the summary underneath said joyful and spontaneous artwork from local artists springs up in public gallery. in the picture, a little girl covered in chalk dust has her head thrown back, delighted. laughing.
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Oops I fell into a hole and disappeared off this website for like a month but here's a patreon reward I hadn't posted yet that I still love!
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can there be a service for autistic people (maybe even other disabilities too) that's kind of like an aide or helper or assistant, but more of a casual friendly type thing? basically people volunteer to be paired with autistic people who don't have friends and struggle to make them and their job is to be our friend as in go places with us, play games, chat, etc. whatever friends do. but they are contractually obligated to stick with it and not hurt or abandon us, but work with us. maybe invite us to hang out with their friends. we can try different people to see who we best fit with. then maybe that person sticks with one of us and not multiple so they dont play favorites and neglect us or get overwhelmed or something.
it's a volunteer job and they don't get paid because all they're doing is being a friend and doing normal things that doesn't deserve pay lol. why should you get paid to pretend to be someone's friend? do it because you want to support someone who needs you, nit because you think it will be an easy job to make money. and friendship isn't a job. that weeds out people only doing it for money and not trying very hard or quitting when they think it's too hard and abandoning the person they were paired with. and that way it's a free service for us since most of us are poor. but they probably need to get some education as well, and we go over our own specific needs and expectations so they know what we need and expect from them, how to work with us, and what they should expect from us. they could work with counselors so if there are any problems they can't handle and are worried about us, we can get a check in or something. but generally, this would be good for very social and friendly people who like to help others and are open minded, accepting, and kindhearted. (which is getting increasingly hard to find in my experience...)
it would be hard to find the right people, but that's why it's good to have meetups and try to find the right match. because sometimes I think that, even if I dont relate to the neurotypical/allistic/abled people, it might be helpful to have someone who can navigate the social situations for me and let me just follow along and be included in things. someone I can ask to go to a convention with me and they can be my voice and keep me company and lead me, while having fun themselves. or someone who invites me to a party with their friends and let's me mostly ait in their room with their cat, but occasionally step out to listen to their conversation and laugh with them. I can absorb their fun energy and have more fun, feel included, but have the space i need, because they are willing to work with me, support me, and acccept me, my needs, and my boundaries.
other autistic or in general ND and disabled people are cool and all, but when they also struggle like I do, we end up not talking to each other becasue we don't know how or cant. we often don't get along because differences that get in the way ("im autistic and I can do that why don't you just do it too" -a real life example that I experienced) or we cant meet each other's needs or struggle with boundary issues. maybe we both need help and can't help each other. or if the other does help it burns them out so fast they are miserable (like my one friend who always has to speak for me and then shes burnt out for months after and cant even talk to me over text....we used to be so close. now we barely talk 🥲). or they don't want to do the things I want to do, like going out somewhere, and rather watch TV all day when I hate doing that.
it would be nice to have someone to consistently rely on to help me out with doing "normal" things no one else will do with me because i'm too autistic for them, or they are too disabled to deal with me. I know people aren't obligated to be my friend or do things with me. so that's why a "job" for this would be great, so someone IS more obligated to do it. because i'm so incredibly lonely and exhausted and losing my mind over having not a single person to turn to or rely on 🥲
does that make sense?????
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