#sickfightsback

[justeveallover-blog]

This week marks my four month stomaversary, and I will finally have my review with my surgeon. Yay. • This is also my second week back at work, and I am loving being back. I am determined to try and get myself back on track swiftly, after phasing myself into my routine. • I have been a bit quiet on here. Everything is fine, I am just trying to get on with things and adapt to everything but it's sometimes easier said than done. I've lost alot of confidence, and I definitely need to work on that. • I will just take things one step at a time. 2020 is going to be a much better year. • #LetsTalkIBD #ItTakesGuts #IBDGirls #Crohns #Advocate #Awareness #PostOp #Surgery #ChronicIllness #CrohnsDisease #Fighter #FightLikeAWarrior #GirlsWithGuts #IBDandMe #IBDSuperheroes #IBDWarrior #InstaCrohns #JustEve #MyLife #SickFightsBack #SickButInvisible #CrohnsandColitisNI https://www.instagram.com/p/B7RUnsKgiT3/?igshid=5734cj4vvnx

[aheronamedsaida]

My Battle fighting HS

On February 9th 2021 I found out that I was in for a big battle to fight due to my disease called Pyodermia Sinifica Fistulans another name for this disease is Hidradenitis Supprativa (HS) Having HS is a rare chronic illness. My HS is a stage 1 disease and I am in the process of undergoing different treatment plans and I am starting a injection treatment plan to help get my Pyodermia under…

[yes-iamthemadhatter]

I realized it's been a little bit since I've shown my face around here so here it is. Yesterday I got my last three Sneak Peek pieces listed (link in my bio) so I can finally do my favorite thing again, which is making jewelry. I have so many ideas in my head and in my notebook but I know what I'm making first. It's a bit different from my usual style but I think you guys will like it. I'll most likely share process photos in my Story today. . . . . . . #girlbosslife #freespirited #loveyourselfalways #jewelrystyle #stylehunter #spooniestrong #mentalhealthwarrior #chronicillnesswarrior #meetthemaker #comfystyle #aquietstyle #chronicallyill #chronicallystrong #disabledandcute #outfitphoto #fighterspirit #bentnotbroken #sheislight #comfortandstyle #womeninbiz #rollwiththepunches #liveyourbestlife #mindbodyandsoul #mindfulmovement #livetolearn #selfimprovement #seekthepositive #keeponkeepingon #personalgrowthjourney #sickfightsback (at Carson, Washington) https://www.instagram.com/p/BzyHApPhrJd/?igshid=n7ccclxxgam4

[chronicallyme-katie]

Dealing with a high decibel day 🔊 • Today the house is getting cleaned. That means that there is a fair amount of noise happening. I have hyperacusis - an increased sensitivity to noises especially of certain decibel levels. I do my best to avoid certain noises (like the vacuum) but on days like today I can’t. So I’m in bed (my safe space) with my noise cancelling headphones on - which help a lot - and watching something. Bonus is that I have my soulmate (soulcat?) Muffin curled up on my lap giving me comfort. • What do you do when you can’t escape the noises? ••• ID: Katie in bed, giving the camera the peace sign. She has over the ear headphones on. She has her black cat Muffin on her lap • end ID ••• #chronicillness #chronicpain #grief #undiagnosed #invisibleillness #chronicillnesscollective #spoonie #disabled #medicalmystery #selfcare #youarenotalone #alwayskeepfighting #mentalhealthmatters #raredisease #stiffpersonsyndrome #goldenhart #butyoudontlooksick #fightlikeawarrior #noisesensitivity #hyperacusis #sickfightsback #unchargeable #chronicillnesswarrior #spoonielife #chronicallyill #spooniestrong #chronicillnesscommunity #ibs #depression (at Kawartha Lakes) https://www.instagram.com/p/CZZ7ntcuG8y/?utm_medium=tumblr

[thecaregiverspace]

Grateful every day for my beautiful friends 💕 When I say “let me stand on this side to hide my picc line,” they instead say “let’s take a picture that says you’re picc line proud.” . . . . . . . #curecf #cysticfibrosis #cf #justbreathe #breathe #65roses #saltysquad #saltmates #giveback #donate #fundraiser #handmade #handcrafted #artisan #thesaltyartisan #handmadejewelry #sickfightsback #untilitsdone #facesofcare #cysticfibrosisawareness 📷: @the.salty.cf.artisan http://ift.tt/2I7XK5d

[fidoinski]

After many attempts on coming up with a clever way to spread awareness about my chronic illness I've decided to go with this. I have Fibromyalgia, and I'm 23. #fightlikeawarrior #sickfightsback #fibromyalgia

[justeveallover-blog]

🎃 Halloween 2019 🎃 Our first Halloween in our little house. 😊 I love that I can decorate as much as I want. I had so much fun putting everything together (and surprising Raymond with it). 👻 My first halloween after surgery, it can only get better from here. 💜 I think I can say it has went well. We had so many trick or treaters, and they were all so lovely. 👻 Plus, it is exactly 2 years to our wedding in 2021!! Lots of time to get all our ideas put together to have a fantastic day. 😊 #Halloween #SpookySeason #JustEve #MyLife #Home #WeddingCountdown #IBD #Crohns #CrohnsDisease #Advocate #Awareness #ChronicIllness #Fighter #FightLikeAWarrior #GirlsWithGuts #IBDandMe #ItTakesGuts #IBDGirls #SickFightsBack #SickButInvisible @crohnscolitisni (at Antrim, County Antrim) https://www.instagram.com/p/B4TaR8XlyyR/?igshid=155d72i13mrdx

[justeveallover-blog]

#3things you might not know about me: 1. I was diagnosed with Crohns Colitis in 2002, at the age of 17. This is mainly in my large bowel and causes fistulas and alot of extra intestinal symptoms. 2. I have an irrational fear of Cows, I dont know why but I am petrified of them. They terrify me. 3. I am a huge daredevil. I love trying new things and am always first in line at theme parks and Fair grounds. I have even done a skydive for charity. #ItTakesGuts to talk about Crohns and Colitis. 💜 What are your three things? @CrohnsandColitisUK #IBD #Crohns #Advocate #Awareness #ChronicIllness #CrohnsDisease #Fighter #GirlsWithGuts #IBDandMe #IBDSuperheroes #IBDWarrior #InstaCrohns #ItTakesGuts #JustEve #IBDGirls #PreOp #Surgery #SickFightsBack #SickButInvisible #MyLife #CrohnsandColitisNI https://www.instagram.com/p/B1_3kO1gYRO/?igshid=11y4rl5miv5gp

[chronicallyme-katie]

A new weird pain 🙃 • I slept for 7 hours last night. That happens very very very rarely. I woke up feeling well rested and ready to accomplish things today. Well life with chronic illness means you should always been ready for plans to change. After having breakfast, tea, and a productive conversation with my dad about the realities of building our new house (more on that another time), I started to get pain in my ribs. Not uncommon, my ribs are all out of whack and I should probably be stretching more 😳. However, when I got off the couch to go have a shower I suddenly felt the pain radiate around my entire middle and it was stopping me from taking a full breathe without agonizing pain. I couldn’t stand or sit comfortably so after having a warm bath and washing my hair I stayed in the lukewarm bath water because my pain was minimal. I didn’t want to move and for it to get bad again. Eventually I needed to get out. I was okay for about 5 minutes but then the pain became horrendous again. Since then I’ve been in bed with 2 heating pads and only able to be at a certain angle (thank god for my adjustable bed). • It’s been an odd day. I don’t know what I did or what is making my ribs hurt so very much but I guess this is what life with chronic pain is. Sometimes I just get so used to my “normal pain” that I forget to expect new weird pains. ••• What’s been your weirdest pain? ••• ID: Katie is in bed wearing a tank top with the blankets up to her chest. Her hair is a mess, as is her nightstand. She is smiling at the camera • end ID ••• #chronicillness #chronicpain #grief #undiagnosed #invisibleillness #chronicillnesscollective #spoonie #disabled #medicalmystery #selfcare #youarenotalone #alwayskeepfighting #mentalhealthmatters #raredisease #stiffpersonsyndrome #goldenhart #butyoudontlooksick #fightlikeawarrior #noisesensitivity #hyperacusis #sickfightsback #unchargeable #chronicillnesswarrior #spoonielife #chronicallyill #spooniestrong #chronicillnesscommunity #ibs #depression (at Kawartha Lakes) https://www.instagram.com/p/CZVVj89sZA5/?utm_medium=tumblr

[yes-iamthemadhatter]

I used to have both a business and a personal Instagram account. I got rid of my personal account because it took too much energy to run it. I had written a long post but my IG crashed and I forgot @growingbliss advice to copy my post text when I'm done writing it in case IG crashes. To sum it up, this account is both for my handmade jewelry business and personal, since it is pretty hard for me to separate the two and I like to share the person behind the business. I hope you always feel free to ask me any questions you have about me or my business in my post comments or in a message. I like telling you more things that I might not think to share otherwise. I'm not easily offended and if your question is too personal for me to answer I'll kindly let you know. Stop reading here, hashtags below. . . . . . . #girlbosslife #freespirited #loveyourselfalways #jewelrystyle #stylehunter #spooniestrong #mentalhealthwarrior #chronicillnesswarrior #meetthemaker #comfystyle #aquietstyle #chronicallyill #chronicallystrong #disabledandcute #outfitphoto #fighterspirit #bentnotbroken #sheislight #comfortandstyle #womeninbiz #rollwiththepunches #liveyourbestlife #mindbodyandsoul #mindfulmovement #livetolearn #selfimprovement #seekthepositive #keeponkeepingon #personalgrowthjourney #sickfightsback (at Carson, Washington) https://www.instagram.com/p/B3hsVtulRox/?igshid=3xv8e85fpl3j

[justeveallover-blog]

🍂🍁 I love the Autumn. 🍁🍂 I am sitting here basking in the glow of the fire in my little house. I am so content. I feel like things are all coming together now. Im really proud of everything me and Raymond achieved this year, despite me being sick, we managed to book our wedding, move into our own house and even got me through surgery. So once I have healed up and recovered I will be able to get on with everything and start all the fun planning. This is amazing. 😊 #Stoma #PostOp #Ostomate #Ileostomy #BagLady #BagLife #BagLadies #Recovery #BagForLife #NoColonStillRollin #OstomyConnection #IBD #Crohns #Advocate #Awareness #ChronicIllness #CrohnsDisease #Fighter #FightLikeAWarrior #GirlsWithGuts #IBDandMe #IBDSuperheroes #IBDWarrior #InstaCrohns #ItTakesGuts #JustEve #IBDGirls #MyLife #SickFightsBack #SickButInvisible #CrohnsandColitisNI https://www.instagram.com/p/B3Kj27DgTPi/?igshid=5r3wwi6yty6s

[justeveallover-blog]

2 weeks post surgery... I feel like it's very easy to forget how easy I tire out. I've not been very good at resting, as I feel so well with my Crohns pain being nonexistent since I woke up. I managed to go and do a short walk with my Milo, which felt so good. I love the fresh air, and the happy skips of the furbaby make it so worth it. Getting back home I got my comfys on and ended up having a great nap. My wounds are all healing great, and I'm adjusting to my new life with a ileostomy. It's a tough journey, but I'm not going to look back when I know I'm getting my life back already. 💜 #PostOp #Surgery #Ileostomy #Ostomate #BagLife #BagLady #BagLadies #IBD #Advocate #GutlessandGlamorous #Awareness #ChronicIllness #CrohnsDisease #Fighter #FightLikeAWarrior #GirlsWithGuts #IBDandMe #IBDSuperheroes #IBDWarrior #InstaCrohns #ItTakesGuts #JustEve #IBDGirls #MyLife #SickFightsBack #SickButInvisible #CrohnsandColitisNI @crohnsandcolitisuk (at Antrim Castle Gardens & Clotworthy House) https://www.instagram.com/p/B3AD18elOtd/?igshid=4ppfuf363zmn

[justeveallover-blog]

I finally have my letter!! It's nice to have something official in my hands, proof this is really happening. I'll have my pre-admission appointment tomorrow, so I'll know more about what to expect. The countdown is really on now. #IBD #Crohns #Advocate #Awareness #ChronicIllness #Community #CrohnsDisease #IBDandMe #FightLikeAWarrior #GirlsWithGuts #IBDWarrior #IBDSuperheroes #InstaCrohns #ItTakesGuts #JustEve #IBDGirls #MyLife #PreOp #Support #Surgery #Colectomy #MyIBDCare #IBDJourney #SickFightsBack #LetsTalkIBD #SickButInvisible #NHS #CrohnsandColitisNI (at Antrim, County Antrim) https://www.instagram.com/p/B00TOBcgmQj/?igshid=4zz055ussvw9

[yes-iamthemadhatter]

Which necklace would you wear with this outfit? They're both for sale in my shop, link in my bio. . . . . . . #flatlay #bohostyle #girlbosslife #freespirited #loveyourselfalways #jewelrystyle #stylehunter #spooniestrong #mentalhealthwarrior #chronicillnesswarrior #meetthemaker #comfystyle #aquietstyle #chronicallyill #chronicallystrong #disabledandcute #fighterspirit #bentnotbroken #sheislight #womeninbiz #rollwiththepunches #liveyourbestlife #mindbodyandsoul #mindfulmovement #livetolearn #selfimprovement #seekthepositive #keeponkeepingon #goodvibetribe #sickfightsback (at Carson, Washington) https://www.instagram.com/p/ByQPYuWBeEZ/?igshid=1xe8su2wiha9o