#stiffpersonsyndrome

[phonemantra-blog]

Céline Dion, the iconic Canadian singer known for her powerful vocals and timeless ballads, is facing a personal battle with Stiff Person Syndrome (SPS). Diagnosed with the rare autoimmune disorder in 2022, Dion has spoken openly about the challenges she faces while maintaining a hopeful outlook. Living with Stiff Person Syndrome: A Relentless Pursuit of Recovery In a recent interview with Vogue France, Dion revealed her ongoing struggle with SPS. The incurable condition causes muscle stiffness and spasms, often impacting the lower body and back. While acknowledging the lack of a cure, Dion expresses her unwavering optimism: Céline Dion "I haven't beaten the disease, as it's still within me and always will be. I hope that we'll find a miracle, a way to cure it with scientific research, but for now, I have to learn to live with it." Dion's determination shines through as she describes her rigorous rehabilitation routine: "I work on my toes, my knees, my calves, my fingers, my singing, my voice… I have to learn to live with it now and stop questioning myself. At the beginning I would ask myself: why me? How did this happen? What have I done? Is this my fault?" Embracing a New Reality: From Self-Doubt to Unwavering Will Dion acknowledges the initial emotional turmoil following her diagnosis. However, she has shifted her focus towards a proactive approach, embracing a disciplined therapy schedule and a renewed sense of purpose: "Life doesn't give you any answers. You just have to live it! I have this illness for some unknown reason. The way I see it, I have two choices. Either I train like an athlete and work super hard, or I switch off and it’s over, I stay at home, listen to my songs, stand in front of my mirror, and sing to myself. I've chosen to work with all my body and soul, from head to toe, with a medical team. I want to be the best I can be. My goal is to see the Eiffel Tower again!" This determination extends beyond physical therapy. Dion emphasizes the importance of maintaining a positive outlook and setting realistic goals: "It's morally hard to live from day to day. It's hard, I'm working very hard and tomorrow will be even harder. Tomorrow is another day. But there's one thing that will never stop, and that's the will. It's the passion. It's the dream. It's the determination." The Power of Support: Family, Fans, and the Will to Perform Despite the uncertainties surrounding her future touring capabilities, Dion expresses her immense gratitude for the unwavering support system that surrounds her: "The love of my family and my children, the love of the fans too, and the support of my team" is what helps her keep going. This love and support provide a source of strength as she navigates the challenges of her condition: "I can't answer" whether she will tour ever again. "For four years I've been saying to myself that I'm not going back, that I'm ready, that I'm not ready… As things stand, I can't stand here and say to you: 'Yes, in four months.' I don't know… My body will tell me." While the future of touring remains uncertain, Dion's commitment to her music and her fans remains unwavering.

[uinterview]

On Friday, Céline Dion shared an encouraging post on Instagram to honor International Stiff-Person Awareness Day and show appreciation for her family and those dealing with the disease.

Full Story Here: https://uinterview.com/news/750-pound-blind-alligator-seized-from-new-york-home-after-owner-allowed-children-to-swim-with-it/

[kelechiofor-blog]

I Have Missed It- Celine Dion Hopes To Keep Performing Following Stiff Person Syndrome Legendary music star, Celine Dion has revealed she has put in a lot of effort “to continue performing for her beloved and loyal fans” following her stiff person syndrome diagnosis. I Have Missed It- Celine Dion Hopes To Keep Performing Following Stiff Person Syndrome According to the trailers for a new documentary about her life, the “intimate” project “takes viewers on a journey inside Celine’s past and present as she reveals her battle with Stiff Person Syndrome (SPS) and the lengths she has gone to continue performing.” The documentary, to be released on Amazon Prime states: “emotional, energetic, and poetic love letter to music” that “captures more than a year of filming as the legendary singer navigates her journey toward living an open and authentic life amidst illness.”   Written by kelechi ofor

[story-squadron7]

https://www.higherinflux.com/2023/12/celine-dion-is-not-well-confronting.html

[deinheilpraktiker]

Celine Dion sagt, sie habe eine seltene neurologische Krankheit namens Stiff-Person-Syndrom - Celine Dion, eine kanadische Singer-Songwriterin und internationaler Superstar, gab kürzlich bekannt, dass bei ihr eine seltene neurologische Störung namens Stiff-Person-Syndrom (SPS) diagnostiziert wurde. Der Zustand ist durch fortschreitende Muskelstarrheit und Steifheit gekennzeichnet, ... - #Celine #Dion #habe #Krankheit #neurologische #seltene #StiffPersonSyndrom

[ikno-io]

An in-depth look at the neurological disorder affecting Celine Dion, its symptoms, impact on her career, and how she is managing the condition. read the full article: https://bit.ly/3ygsmQH #CelineDion #Health #NeurologicalDisorders #StiffPersonSyndrome #CelebrityHealth read more: what is celine dion disease

[livioacerbo]

Celine Dion’s Comeback at Paris Olympics | Your Opinion Counts #CelineDion, #Olympics2024, by Livio Andrea Acerbo Celine Dion’s Comeback at Paris Olympics | Your Opinion Counts #CelineDion, #Olympics2024, #Comeback, #Inspiration, #Health, #Performance, #Poll, #Music, #StiffPersonSyndrome, #YourOpinion Celine Dion’s inspiring comeback at the Paris Olympics! Do you think her performance will inspire others? Like 👍 for yes or comment 💬 for no. Remember, if you want to stay updated with the latest trends, news, and tech reviews, don’t forget to like and subscribe to GreengroundIT! Follow up on our website https://ift.tt/xiSVbps or follow up on our social #fyp, #foryou, #love, #explorepage, #trending, #reviews, #news, #youropinioncounts #YouTube: https://youtube.com/#TikTok: https://ift.tt/tvxoIJj: https://ift.tt/XBiqw7g #Instagram: https://ift.tt/u8ymt4w #Podcast: https://ift.tt/z2WeOfj #Medium: https://ift.tt/8NxPfwK: https://ift.tt/2yzZam6 #Reddit: https://ift.tt/2T5UZio #Rumble: https://ift.tt/2Z8iMTO via YouTube https://www.youtube.com/watch?v=JrJx3Sqno2A

[ricisidro]

View this post on Instagram

A post shared by Jun Isidro (@rcisidro)

Get well soon Celine Dion. 🙏

Her sister Claudette gives an update on the singer’s stiff-person syndrome battle and says hope ‘is important.’

#CelineDion

https://www.latimes.com/entertainment-arts/music/story/2023-08-04/celine-dion-stiff-person-syndrome-sister-update

Stiff-Person Syndrome

#StiffPersonSyndrome

https://www.ninds.nih.gov/health-information/disorders/stiff-person-syndrome #NINDS

[chronicallyme-katie]

Dealing with a high decibel day 🔊 • Today the house is getting cleaned. That means that there is a fair amount of noise happening. I have hyperacusis - an increased sensitivity to noises especially of certain decibel levels. I do my best to avoid certain noises (like the vacuum) but on days like today I can’t. So I’m in bed (my safe space) with my noise cancelling headphones on - which help a lot - and watching something. Bonus is that I have my soulmate (soulcat?) Muffin curled up on my lap giving me comfort. • What do you do when you can’t escape the noises? ••• ID: Katie in bed, giving the camera the peace sign. She has over the ear headphones on. She has her black cat Muffin on her lap • end ID ••• #chronicillness #chronicpain #grief #undiagnosed #invisibleillness #chronicillnesscollective #spoonie #disabled #medicalmystery #selfcare #youarenotalone #alwayskeepfighting #mentalhealthmatters #raredisease #stiffpersonsyndrome #goldenhart #butyoudontlooksick #fightlikeawarrior #noisesensitivity #hyperacusis #sickfightsback #unchargeable #chronicillnesswarrior #spoonielife #chronicallyill #spooniestrong #chronicillnesscommunity #ibs #depression (at Kawartha Lakes) https://www.instagram.com/p/CZZ7ntcuG8y/?utm_medium=tumblr

[faithnself]

Eventful day. Neurology appointment findings. #chiari #chiarimalformation #stiffpersonsyndrome #surgery https://www.instagram.com/p/CND5HOsJPud/?igshid=dfemn5cvv8hx

[phonemantra-blog]

Celine Dion, the iconic singer who has captivated audiences worldwide for decades, has become a beacon of hope and resilience in the face of a rare neurological disorder called Stiff Person Syndrome (SPS). Diagnosed in December 2022, Dion has shared her journey with the condition, offering support and encouragement to others battling SPS while inspiring fans with her unwavering determination. A Diagnosis and a Determined Spirit On International Stiff Person Syndrome Awareness Day in December 2023, Celine Dion took to social media to connect with fans and raise awareness about SPS. A photograph showcasing Dion's radiant smile alongside her three sons accompanied a heartfelt message. She acknowledged the challenges of overcoming SPS but emphasized her unwavering commitment to returning to the stage and reclaiming normalcy in her life. Dion expressed her deepest gratitude for the unwavering support she received from her family, team, and fans worldwide. Concluding the message with a powerful statement of solidarity, she wrote, "I want you to know you can do it! We can do it!" This message resonated deeply with fans and individuals battling SPS, highlighting the importance of community and shared experiences in navigating chronic illness. Unveiling the Challenge: Stiff Person Syndrome Stiff Person Syndrome (SPS) is a rare autoimmune disorder characterized by progressive muscle stiffening and painful spasms. These spasms can be triggered by various factors, including noise, touch, and emotional distress. Over time, the syndrome can lead to a hunched posture and difficulty walking. Dion's decision to publicly disclose her diagnosis raised awareness about SPS, a condition that often goes undiagnosed due to its rarity. By sharing her experience, she has empowered others battling the condition and shed light on the challenges faced by individuals with SPS. A Journey of Courage and Adaptation Celine Dion's diagnosis with SPS forced her to make significant adjustments to her life and career. In December 2022, the heartbreaking decision to cancel her Courage World Tour became necessary due to the debilitating symptoms of SPS. Despite these challenges, Dion continues to demonstrate remarkable courage and a fierce determination to navigate her health journey. In February 2024, Dion surprised fans with a captivating appearance at the Grammy Awards. Presenting the award for Album of the Year, she expressed her sincere joy at being present, highlighting the transformative power of music. This appearance served as a powerful testament to Dion's unwavering spirit and her enduring love for music. Embracing Hope: A New Documentary and the Road Ahead Looking ahead, Dion remains dedicated to her music career while actively managing her health condition. The upcoming documentary, "I Am: Celine Dion", produced by Amazon MGM, delves into her journey, chronicling her health struggles alongside her remarkable musical achievements. This documentary is expected to be released later in 2024, offering fans a deeper understanding of Dion's experiences and her unwavering strength. Standing Together: Facing SPS with Support Celine Dion's story serves as an inspiration to individuals battling chronic illnesses. Her message of hope and resilience underscores the importance of seeking support and building a strong community. Here are some resources for those seeking more information about Stiff Person Syndrome: The Stiff Person Syndrome Research Foundation: https://stiffperson.org/ The National Institute of Neurological Disorders and Stroke: https://www.ncbi.nlm.nih.gov/books/NBK573078/ FAQs Q: What is Stiff Person Syndrome (SPS)? A: Stiff Person Syndrome (SPS) is a rare autoimmune disorder that causes muscle stiffness and painful spasms. Q: How did Celine Dion's diagnosis with SPS impact her career? A: The debilitating symptoms of SPS forced Celine Dion to cancel her Courage World Tour. Q: What message did Celine Dion share on International Stiff Person Syndrome Awareness Day? A: On International Stiff Person Syndrome Awareness Day, Celine Dion shared a message of encouragement and solidarity with others battling SPS, emphasizing the importance of hope and resilience. Q: How can I learn more about Stiff Person Syndrome? A: You can find more information about Stiff Person Syndrome through resources like the Stiff Person Syndrome Research Foundation and the National Institute of Neurological Disorders and Stroke.

[catholicinspiration09-blog]

If you or someone you know is in #EMS please be advised of this thing called Stiff Person Syndrome. I encourage you to go check out my youtube channel or any other media outlets or news articles or journals and learn. Learning is what will advance a medical mission of mine , which is to have a cure for a disease. Because I suffer from SPS or #StiffPersonSyndrome. The race for the cure is on. Be your patients light source. Educate yourself and learn from a bad thing and turn it into something positive. #EMS my own flesh and blood hurt me when I got sick but now I return the favor in education. My youtube channel has a lot of videos on my own experiences with SPS so check it out @ Catholic Inspiration . #NeverAgain #DieCar You can find the link to my youtube channel in my bio. (at Las Vegas, Nevada) https://www.instagram.com/p/B1mhZuoDgiX/?igshid=cvi4h9x1ua0r

[livioacerbo]

Celine Dion’s Comeback at Paris Olympics | Your Opinion Counts #CelineDion, #Olympics2024, by Livio Andrea Acerbo Celine Dion’s Comeback at Paris Olympics | Your Opinion Counts #CelineDion, #Olympics2024, #Comeback, #Inspiration, #Health, #Performance, #Poll, #Music, #StiffPersonSyndrome, #YourOpinion Celine Dion’s inspiring comeback at the Paris Olympics! Do you think her performance will inspire others? Like 👍 for yes or comment 💬 for no. Remember, if you want to stay updated with the latest trends, news, and tech reviews, don’t forget to like and subscribe to GreengroundIT! Follow up on our website https://ift.tt/xiSVbps or follow up on our social #fyp, #foryou, #love, #explorepage, #trending, #reviews, #news, #youropinioncounts #YouTube: https://youtube.com/#TikTok: https://ift.tt/tvxoIJj: https://ift.tt/XBiqw7g #Instagram: https://ift.tt/u8ymt4w #Podcast: https://ift.tt/z2WeOfj #Medium: https://ift.tt/8NxPfwK: https://ift.tt/2yzZam6 #Reddit: https://ift.tt/2T5UZio #Rumble: https://ift.tt/2Z8iMTO via YouTube https://www.youtube.com/watch?v=bV-U6UG2I-0

[youngpeople-chronicillnesse-blog]

Super interesting video about a girls story with a autoimmune akin disease called #bullouspemphigoid And the story of a woman with #TypeOneDiabetes and #StiffPersonSyndrome If you have any videos like these that share people's stories feel free to DM us the link and we would love to share them here and on ournfacebook group where you can share them yourself @ young people chronic illnesses IG . . . . . . #SpoonieLife #SPOONIE #chronicillness #chronicallyill #chronicpain #chronicfatigue

[chronicallyme-katie]

A new weird pain 🙃 • I slept for 7 hours last night. That happens very very very rarely. I woke up feeling well rested and ready to accomplish things today. Well life with chronic illness means you should always been ready for plans to change. After having breakfast, tea, and a productive conversation with my dad about the realities of building our new house (more on that another time), I started to get pain in my ribs. Not uncommon, my ribs are all out of whack and I should probably be stretching more 😳. However, when I got off the couch to go have a shower I suddenly felt the pain radiate around my entire middle and it was stopping me from taking a full breathe without agonizing pain. I couldn’t stand or sit comfortably so after having a warm bath and washing my hair I stayed in the lukewarm bath water because my pain was minimal. I didn’t want to move and for it to get bad again. Eventually I needed to get out. I was okay for about 5 minutes but then the pain became horrendous again. Since then I’ve been in bed with 2 heating pads and only able to be at a certain angle (thank god for my adjustable bed). • It’s been an odd day. I don’t know what I did or what is making my ribs hurt so very much but I guess this is what life with chronic pain is. Sometimes I just get so used to my “normal pain” that I forget to expect new weird pains. ••• What’s been your weirdest pain? ••• ID: Katie is in bed wearing a tank top with the blankets up to her chest. Her hair is a mess, as is her nightstand. She is smiling at the camera • end ID ••• #chronicillness #chronicpain #grief #undiagnosed #invisibleillness #chronicillnesscollective #spoonie #disabled #medicalmystery #selfcare #youarenotalone #alwayskeepfighting #mentalhealthmatters #raredisease #stiffpersonsyndrome #goldenhart #butyoudontlooksick #fightlikeawarrior #noisesensitivity #hyperacusis #sickfightsback #unchargeable #chronicillnesswarrior #spoonielife #chronicallyill #spooniestrong #chronicillnesscommunity #ibs #depression (at Kawartha Lakes) https://www.instagram.com/p/CZVVj89sZA5/?utm_medium=tumblr

[catieeeboo]

With Rare Disease Awareness coming to an end, I wanted to share these last few images. Feeling pretty proud that I contacted my representatives, shared information and links, and learned a little more about how many diseases I already support are on the rare disease list. These wristbands never come off, and now they really won't. #cysticfibrosis #dystonia #musculardystrophy #stiffpersonsyndrome #cf #sps #awareness so proud to be wearing all of these wristbands & I can't wait to get more!