#chiarimalformation

[canadianstud]

HAVING ANOTHER MRI THIS WEEK (HEALTH UPDATE)

[potatopie3]

A new name for my blog along thisarvellous way.

What’s your go-to comfort food? My go to comfort food is cinnamon rolls and warm coffee. Ohh I forget all my worries as I get lost in the smells and taste of them both. It is so wonderful to have them both on this planet. McDonald’s is a great place to get them both or Panera’syum.

[symptomfinder]

Cerebellar Tonsillar Ectopia, also known as Chiari Malformation, is a neurological condition that affects the brain. It occurs when the cerebellar tonsils descend below the foramen magnum, which is the opening at the base of the skull. This condition can cause a range of symptoms, including headaches, neck pain, and balance problems. One type of Chiari Malformation is Cerebellar Tonsillar Ectopia 3mm. This means that the cerebellar tonsils have descended 3mm or more below the foramen magnum. While this may seem like a small distance, it can cause significant symptoms and complications. It is important to understand the symptoms of this condition and seek medical attention if you experience any of them. Symptoms of Cerebellar Tonsillar Ectopia 3mm can vary from person to person. Some common symptoms include headaches, neck pain, dizziness, and balance problems. Other symptoms may include vision problems, difficulty swallowing, and numbness or tingling in the arms or legs. It is important to note that not everyone with this condition will experience symptoms, and some may only have mild symptoms.1. What is Cerebellar Tonsillar Ectopia: Understanding the BasicsCerebellar Tonsillar Ectopia (CTE) is a neurological condition where the cerebellar tonsils extend below the foramen magnum. It's also known as Chiari malformation type I. It can cause headaches, neck pain, and balance issues. It's often diagnosed through an MRI. CTE is a congenital condition, but symptoms may not appear until later in life. It can also be caused by trauma or other medical conditions. Treatment options include medication, physical therapy, and surgery. It's important to work with a healthcare professional to manage symptoms. Living with CTE can be challenging, but there are resources and support available. Joining a support group can help connect with others who understand. Learning coping strategies and self-care techniques can improve quality of life. Remember, you are not alone in this journey. 💪 2. 3mm Cerebellar Tonsillar Ectopia: Common Symptoms and Signs🧠 Cerebellar tonsillar ectopia is a common condition where the cerebellar tonsils extend below the foramen magnum. Headaches Dizziness Neck pain Nausea Vomiting 😖 These symptoms are often caused by the tonsils putting pressure on the brainstem and spinal cord. 👀 Other signs include difficulty swallowing, speech problems, and balance issues. Fatigue Tinnitus Muscle weakness Depression Anxiety 🏥 Diagnosis is made through an MRI or CT scan. Treatment may include medication, physical therapy, or surgery. 💊 Medications can help alleviate symptoms, but surgery may be necessary for severe cases. 🙏 It's important to seek medical attention if you experience any of these symptoms to prevent further complications.3. How is Cerebellar Tonsillar Ectopia Diagnosed: Tests and ProceduresDiagnosis of Cerebellar Tonsillar Ectopia (CTE) involves several tests and procedures, including: Magnetic Resonance Imaging (MRI) of the brain and spinal cord Computed Tomography (CT) scan Electroencephalogram (EEG) to measure brain activity Neurological exam to assess motor skills and reflexes Doctors may also perform a lumbar puncture to test for abnormalities in cerebrospinal fluid. CTE is often diagnosed incidentally during imaging for another condition. Symptoms may also prompt further testing. It's important to note that not all cases of CTE require treatment, and a diagnosis does not necessarily mean surgery is necessary. Consult with a neurologist or neurosurgeon for proper diagnosis and management of CTE. 🧠💻📈💉🩺4. Treatment Options for Cerebellar Tonsillar Ectopia: Medications and SurgeryMedications can help manage symptoms of Cerebellar Tonsillar Ectopia, such as headaches and nausea. Commonly prescribed drugs include pain relievers, anti-seizure medications, and muscle relaxants. 🩹 Pain relievers 🧪 Anti-seizure medications 💊 Muscle relaxants Surgery may be necessary if symptoms are severe and medication is not effective. The most common surgical procedure is a decompression surgery, which involves removing a small portion of the skull to relieve pressure on the brain. 🏥 Decompression surgery Other surgical options include a shunt placement to drain excess cerebrospinal fluid or a posterior fossa decompression to create more space in the skull. These procedures are less common and may have more risks. 🧬 Shunt placement 🧠 Posterior fossa decompression It is important to discuss all treatment options with a healthcare provider and weigh the benefits and risks. Some individuals may require a combination of medication and surgery to manage their symptoms effectively.5. Living with Cerebellar Tonsillar Ectopia: Coping Strategies and Support GroupsLiving with Cerebellar Tonsillar Ectopia can be challenging, but there are coping strategies and support groups that can help. Join a support group to connect with others who understand your experience. Practice mindfulness and relaxation techniques to manage stress and anxiety. Stay active and exercise regularly to improve physical and mental health. Seek professional help from a therapist or counselor if needed. It's important to prioritize self-care and seek support from loved ones. Remember to take things one day at a time and celebrate small victories. Stay informed about your condition and treatment options. Advocate for yourself and communicate your needs to healthcare providers. Find hobbies and activities that bring joy and fulfillment. Stay positive and focus on what you can do, rather than what you can't. Living with Cerebellar Tonsillar Ectopia can be isolating, but you are not alone. Reach out for help and support when needed. 🤝💪🧘‍♀️🏋️‍♂️📚🌞🌈 In conclusion, cerebellar tonsillar ectopia of 3mm can cause a range of symptoms, from headaches and neck pain to dizziness and balance issues. It is important to seek medical attention if you experience any of these symptoms, as early diagnosis and treatment can prevent further complications. While the exact cause of cerebellar tonsillar ectopia is not fully understood, there are treatment options available, including medication and surgery. It is important to work closely with your healthcare provider to determine the best course of action for your individual case. Remember, early detection and treatment can improve your quality of life and prevent further complications. Stay informed and take care of your health. 🧠💊🏥 https://symptomfinder.com/cerebellar-tonsillar-ectopia-3mm-symptoms/?_unique_id=64997c13cf791

[sushrutbrainandspine]

Surgical Treatment For CHIARI MALFORMATIONS

▪Only local decompression of the overlying bones.

▪ Decompression of the bones and release of the dura.

▪ Decompression of the bone and dura.

▪ Duraplasty.

Contact for more information:-

• Phone: +91 9810324401

• Website :- www.thebrainandspine.com

[blogkennethratcliffeposts]

Chiarimalformation Seizures

[swiftieinred13]

All of us asking for Taylor to confirm our theories

[tlscott0489]

Have you ever heard of Chiari?

What is Chiari Malformation?

When I was diagnosed January 2016 with Type 1, I asked the same questions. I had never heard of this! Devastated and confused, I started doing some research. I finally found the answer to what had been causing my ailments! After finally having an answer to me having all these debilitating symptoms, came the next steps. Endless appointments, new doctors and more testing and imaging was done. Finally a treatment option, but it was not a cure nor do they claim surgery to be a cure. So I underwent surgery in March 2016. The surgery I had was Posterior Fossa Craniotomy for Chiari Decompression and Laminectomy (surgery removes posterior section of the skull bone and removes C1 & C2 Vertebra) and took over 5 hours of surgery. I had a herniation of 23 mm. Surgery was a success in that of making room for my brain, but I still have a herniation. I do not suffer from as many symptoms as before surgery, but there are still too many. Now even more new doctors, continued appointments and testing still to come in the very near future.

And how do you pronounce that...

Chiari Malformation (kee-AH-ree mal-for-MAY-shun) is a condition in which brain tissue extends into your spinal canal. It occurs when part of your skull is abnormally small or misshapen, pressing on your brain and forcing it downward. Chiari malformations are structural defects in the cerebellum. That is the part of the brain that controls balance.

Some people with Chiari malformations may have no symptoms. Others may have symptoms such as:

dizziness

muscle weakness

numbness

vision problems

headaches

problems with balance and coordination

Chiari malformations is thought to affect females more often than males.

Scientists once believed that Chiari malformations occurred in only 1 in every 1,000 births. But the increased use of diagnostic imaging techniques such as CT scans and MRI's suggests that the condition may be much more common.

They say accurate estimates are difficult to make because some children who are born with the condition either never develop symptoms or don't develop symptoms until they reach adolescence or adulthood.

What causes Chiari Malformations??

Chiari malformations are usually caused by structural defects in the brain and spinal cord. These defects develop during fetal development. Chiari malformation type 1 develops as the skull and brain are growing. As a result. signs and symptoms may not occur until late childhood or adulthood. Chiari malformation type 2 and type 3 are present at birth.

Due to genetic mutations or a maternal diet that lacked certain nutrients, the indented bony space at the base of the skull is abnormally small. As a result, pressure is placed in the cerebellum. This blocks the flow of cerebrospinal fluid (CSF). That is the fluid that surrounds and protects the brain stem and spinal cord.

What can we do to fix this??

Treatment of Chiari malformation depends on the form, severity and associated symptoms. Regular monitoring, medications, pain management, and surgery are treatment options. In some cases, no treatment is needed.

For more information visit:

http://www.ninds.nih.gov/disorders/chiari/detail_chiari.htm

http://www.conquerchiari.org/education/chiari-faqs.html

[beehask]

the wait is over

So you had to wait for this post a few days, huh? Welcome to chiari. It’s a wait game. Its going forever without knowing. Its like a guessing game.

On December 4th my husband and I walked into the neurosurgeons office. Not knowing what to expect. What was next. They called me back. Did my vitals, asked some questions. You know, the usual. The surgeon walked in, he had two nurses with him. He introduced himself. He confirmed what we already knew. “You have chiari malformation type one and it’s 8.3mm” 

Out of the corner of my eye I kept looking at my husband cause of course he’s my safe haven.

The dr showed us my images, he even showed us on a skull exactly what mine looks like. He answered EVERY question we had. Even the most important “are you gonna ruin my hair”

He ordered another mri because we needed to see a few more things to move further. 

He literally calmed all of my fears.

The next appointment was set for January 13th (see why I made you wait)

We went to the mri. No big deal. Now here’s where we waited and waited.

The morning of January 13th we get a call that he is in surgery but we can see the nurse practitioner. 

Sure. Whatever. We met with her and it crushed my soul. She made it seem like my symptoms worsening weren’t my chiari. She almost seemed like she didn’t give a fuck. 

She said she would talk to the surgeon and see what he said but she didn’t feel anything was necessary or we could even do anything. I left feeling scared, hurt, mad, you name it.

This morning we got THE call. You know, that one.

First off she apologized for yesterday. Saying she wasn’t a chiari specialist so she didn’t realize how significant and serious everything getting worse is. She talked to the surgeon and we got the best news. Like better than getting 10 wings when you only ordered 8.

You ready for the news? Like are you really ready?

He said that it is a big issue everything is getting worse. So he made the decision………….

*insert jeopardy music*

HES READY TO DO SURGERY!!!!!!!!!!!!!!!

Hes going to order all of the fun pre app stuff and go ahead and schedule my surgery!

Here’s the part where I tell you. There is a chance surgery wont work. There is a chance things could get worse. There is a chance ill need more than one.

There’s a lot of chances. We decided this was worth the chance.

If yall thought this journey with me so far was fun then please understand there will be no more glamour until things start getting better. I’ll document the whole thing. The pre opp. The surgery aftermath. You name it. You’ll get to see what a chiari warrior is.

So buckle up. Hold on. LETS GO!

[cbeers42]

Chiari Awareness Warrior Skull & Purple Roses Classic Round Sticker

[neurocirurgiabr]

View this post on Instagram

A post shared by Julio Pereira Neurocirurgiabr (@neurocirurgiabr)

Illustrations depicting two vein of Galen malformation types: mural and choroidal vein of Galen malformations. Created by Mark Schornak from Neuroscience Publications @barrowneuro #Repost @skuzzz ・・・ #medicalillustration #brain #vascular #avm #pathology #clinical #neurology #sciart #chiarimalformation #photoshopart #digitalart #2danimation #aftereffects #barrow #neuro #nurse #emt #medicalschool #neurosurgery #brains #vessel #brainsurgery #medical #artwork #medstudent #traditionalart #digitalpainting #skuzz #neuroscience #scienceart #neurosurgeryblog #neurocirurgiabr https://www.instagram.com/p/BzMmq7anqKV/?igshid=xetaj2nuvxjm

[faithnself]

Ive posted 4 commemorative memes today. They commemorate those individuals from the Chiari community that have passed away. #chiariawareness #chiariwarrior #chiarisucks #chiarimalformation #chiari https://www.instagram.com/p/B2qNHU8p-x6/?igshid=1pkhea5055p7i

[canadianstud]

CANADIAN STUDMUFFIN 18 YEARS ON YOUTUBE VLOG

[nanascorner]

As promised, I'm giving you the latest update to what's been going on with me. Also if you want a shout out from me, subscribe to my youtube channel by clicking on my logo. #tarlovcyster #tarlovcystdisease #chiarimalformation #invisibleillness #connectivetissuedisorder https://www.instagram.com/p/B3pZGVAJ0aZ/?igshid=1sasopyewa1yu

[skuzz]

View this post on Instagram

A post shared by Peter M Lawrence (@petermlawrence)

Illustrations depicting two vein of Galen malformation types: mural and choroidal vein of Galen malformations. Created by Mark Schornak from Neuroscience Publications @barrowneuro #medicalillustration #brain #vascular #avm #pathology #clinical #neurology #sciart #chiarimalformation #photoshopart #digitalart #2danimation #aftereffects #barrow #neuro #nurse #emt #medicalschool #neurosurgery #brains #vessel #brainsurgery #medical #artwork #medstudent #traditionalart #digitalpainting #skuzz #neuroscience #scienceart @medic_for_you @neurofact @neurologicalsurgeon @neurologicalsurgery @neurosurgerychair (at Barrow Neurological Institute) https://www.instagram.com/p/BzLgw6qnr8v/?igshid=hyd4axdajmmc

[glamontherun-blog]

I just added this listing on Poshmark: Prayers for My Son. #poshmark #gofundme #chiarimalformation #brainmalformationawareness

[thewickedwilds]

Moose energy