#chiariwarrior

[shalatolduwrite]

https://gofund.me/6bcb8517

Help me if you can.

[cbeers42]

Chiari Awareness Warrior Skull & Purple Roses Classic Round Sticker

[faithnself]

Ive posted 4 commemorative memes today. They commemorate those individuals from the Chiari community that have passed away. #chiariawareness #chiariwarrior #chiarisucks #chiarimalformation #chiari https://www.instagram.com/p/B2qNHU8p-x6/?igshid=1pkhea5055p7i

[spoonie-adventures]

Has anyone with Chiari malformation had an episode where you got a sudden exploding pain in the back of their head/upper neck to the point where you’re screaming uncontrollably and it’s the worst pain you’ve ever had in your life? I’m asking because this happened to me a few months ago and I really feel like my doctors have just blown it off because I also suffer from migraines. But I feel like something was/is wrong because I actually thought I was dying and almost called an ambulance (my mom talked me out of it). The pain is a lot better (otherwise I would e in the hospital) but it’s still there. Any experience/ideas are appreciated :)

[ambubag86]

FML!! 😫 this is killing my 🧠!! #chiariwarrior #chiarilifesux #barometricpressureheadache (at Harker Heights, Texas) https://www.instagram.com/p/CQ9ueFNBFyfhCagGQCSHldG0gU7XcK7pCIdEx80/?utm_medium=tumblr

[aslsuzyq]

Some days are better than others #americansignlanguage #deafcan #deaf #musically #asl #signlanguage #musicallyapp #healthadvocate #chronicpainwarrior #painwarrior #crpswarrior #edswarrior #ptsdwarrior #pacemakerwarrior #afibwarrior #chiariwarrior #rawarrior #cvidwarrior #autonomicneuropathysurvivor #heartattacksurvivor #strokesurvivor #tbiwarrior #dysautonomiawarrior #potswarrior

[chasingemma420]

Hey babes! Y'all know I love #cbd and the healing properties it has. From your skin to your muscles to your brain there are so many ways that CBD offers relief. @serenitywholebeing has fast become one of my favorites! They spent a whole Sunday morning explaining how to use the tinctures to me. They were patient and compassionate and super knowledgeable. I truly felt heard and helped after that conversation. There are so many brands out there and people don't know where to start. That is one of the things that I absolutely love about Serenity! They will walk you through this process. Now down to the brass tacks! Their products work! They're amazing. I've been using the roller ball now for almost 2 weeks on my neck for my muscle spasms and it helps a great deal. Is it a cure? nope, does it provide relief ABSOLUTELY! I keep it in my purse or my pocket for easy and convenient relief. It is fortified with 300mg of full spectrum hemp extract. I am a brain surgery survivor and have several chronic illnesses that cause me to have crazy symptoms. CBD has been a lifesaver for me in this regard. I am huge fan of the Topical Balm as well! It works great on my knees and shoulders and even my lower back. It is made with Shea butter, beeswax, and coconut oil and absorbs deep into the skin for long lasting relief! I just started the tincture. I am already loving the relief I feel. I am using the minimalist and is specifically designed for those new to CBD. It is a mellow dose. Serenity CBD crafts their full spectrum in small batches. They're gluten free, non-GMO, eco friendly, pet friendly, and lab tested! They know their stuff, y'all! Everything they make is made from sustainable materials and with LOVE! That is something I absolutely believe after my Sunday morning conversation with them. Go show them some love! I will link them in my recommendations in my bio link! @serenitywholebeing https://www.serenitycbd.com/ #feelbetter #mycbdjourney #lovecbd #cbdrelief #cbdwellness #mombeautyblogger #chiarimalformation #ehlersdanlossyndrome #syringomyelia #chronicillness #chiariwarrior #brainsurgerysurvivor #mycbdstory (at Siesta Key, Florida) https://www.instagram.com/p/CCbeIkMFUP_/?igshid=a58tt2rq0qk9

[nieceyshark]

We can take responsibility and keep looking forward or we can blame others and keep looking back. When we constantly look back it causes us to get stuck. This makes it to difficult to see all the positive in our lives.For me, when I look back it causes anger and depression. So instead of focusing on how much progress I have made, I focus on all the mobility and strength I have lost. I miss out on living and enjoying all the blessings that God has given me. So, let’s do our best to keep moving forward by taking responsibility for our thoughts and actions. Turn the negatives into positives. #keepmovingforward prayerworks #hope #faith #inspirational #prayerworks #hope #faith #walkagain #walkingparaplegic #spinalcordinjuryrecovery #spinalcordinjury #chiarimalformation #chiariwarrior https://www.instagram.com/p/B5-qZ2xhbW6/?igshid=s82ckoasqr1w

[cbeers42]

Chiari Malformation Awareness Warrior Angel Square Sticker

[faithnself]

#chiariawareness #chiariwarrior #chiarisucks #chiarimalformation #chiari https://www.instagram.com/p/B2qM5URpFa1/?igshid=jidnus2tvxvh

[giazillashow]

Poke me. Prod me. Cut open my head. Pull my brain out and forget where it belongs. Slice me dice me, put me in a tube, call me crazy, cuz you can't be wrong. Ignore my pain. Say it's all in my head. It's ok cuz I am still not dead. #chiariwarrior #mmjpatient #patientsafety #chiariawareness #traumasurgery #neurosurgery #medicalptsd #ehlersdanlossyndrome #guineapig https://www.instagram.com/p/B0G90uRg1pT/?igshid=1gzp32gg58q95

[nerdgirlofficial]

Soooo sad we are not at the Book Expo of America and Book Con this year! BUT even if we were I still cant travel. #ScadSurvivor #HeartAttack #ChiariWarrior #brainsurgerywarrior https://www.instagram.com/p/ByOB_eYAidO/?igshid=lco6h045wo0w

[lipstickonapiggie-blog]

My post-surgery steroid induced acne is finally getting better! Does anyone have recommendations on a good concealer or products to help fade the spots? My face is covered in spots! Also accepting tips in products to help with the tech neck 🤣 . . . . . #chiarimalformation #chiari #chiariawareness #chiariwarrior #asianskincare #asianbeautyblogger #asianskincare #abcommunity #rasianbeauty #skincareadvice #skincareaddict #makeupadvice #makeuptips #makeup #kbeauty #kbeautyaddict #kbeautyblogger #kbeautyph #acnescars #acne #koreanskincare #steroid #dexamethasone #scars #scarface #concealer #beautyadvice https://www.instagram.com/p/BtwFgYLnHNP/?utm_source=ig_tumblr_share&igshid=1reueykpmiyar

[aslsuzyq]

#hoh #asl #signlanguage #youtuber #tiktokcreator #accidentsurvivor #tbi #eds #crps #gp #chiariwarrior https://www.instagram.com/p/BtC1JPznWU9/?utm_source=ig_tumblr_share&igshid=1u2xmnedozk6y

[theartwerks]

Soooo T-minus 1 week until my brain surgery! 😳 I’ve gotten opinions, second opinions, and third opinions on which of the two procedures I need to do first to resolve my chiari malformation and the intracranial hypertension & optic nerve swelling it is causing. I’ve decided to do the Posterior Fossa Decompression with C1 Lamenenectomy. If my papilliodema (optic nerve swelling) persists, I still may need venous sinus stenting with a 2nd procedure in 4-6 weeks. Basically, my cerebellum is drooping into the hole at the bottom of my skull, crowding and squishing my brain stem, and blocking all of the very much needed cerebral spinal fluid from getting to my brain properly, which is causing massive pressure inside of my head. Crazy thing is this image (minus my doodles, of course) is from 2015, meaning this blockage has been happening for AT LEAST 5 years. 😭😖 I’m ready to get it taken care of! To reiterate what I’ve said in earlier posts: my website shop & Etsy shop are now CLOSED. Most likelyyyyyy for 6 weeks+ (but not permanently!!) My spoonflower shop will remain open, but I will not be checking messages or emails, so I won’t be able to do any revisions for again, minimum 6 weeks, if not longer. If I don’t reply to DMs, emails, messages whatever, please understand this is why!! I won’t be able to lift anything more than 1-2 lbs for months. I won’t be able to move my head/neck to be on my computer, and I won’t be able to drive.. So yeah, staying closed for awhile is unfortunately necessary. I will miss y’all, I hope to post updates on here if I can. I appreciate all y’all’s positive vibes!! Please send some for my Neurosurgeon Dr. Effendi to DI an extra good job (and not to have to shave off too much of my hair 😭 #vain ), and send some extra for my poor hubs for when he suddenly realizes just how much house cleaning, kid watching, and cooking I actually do (lol!) 😂and pray Lexi & him will be ok too!!! I’m happy to get this done, and looking forward to feeling even better than before in a few months!! ✨💕🥰🌈 See y’all soon! #chiaridecompression #chiarimalformation #theartwerks #brainsurgery #chiarimalformationawareness #chiariwarrior #chiaristrong (at The Woodlands, Texas) https://www.instagram.com/p/CBedbJ7gflB/?igshid=1a2scwi14kyim