#chiaristrong

[nieceyshark]

Another beautiful day! To all my family and friends have a great weekend and get out and enjoy the sunshine. Thank God for all of our blessings! #hope #faith #prayerchangesthings #blessings #keepmovingforward #spinalcordinjuryrecovery #spinalcordinjury #incompletespinalcordinjuryrecovery #inspiration #chiaristrong (at Yucaipa, California) https://www.instagram.com/p/CKrd0fVBZmN/?igshid=1h70zhwkbm2me

[geriliz]

Enjoying my Sunday with my Luna by my side. - - - #adidassuperstar shoes *link in Bio👆🏻at #macysfinishline #casualday #adidasshoes #sundayoff #stayinghome #puppylove #reading #audryhepburn #makeupbygeriliz #chiaristrong #macysstylecrew @stylecrewcentral https://www.instagram.com/p/B9xB5JXB0V1/?igshid=tbp4dfq9kzu8

[giazillashow]

#remembering our lost #lovedones to #medicalmalpractice #medical #injury #negligence @chiaridocmovie #writingforryan #chiariawareness #chiarimalformation #chiariwarrior💜 #chiaristrong #chiarian #chiariawarenessmonth https://www.instagram.com/p/B2km7r1A1QC/?igshid=132aekzgq1p2n

[chiarianstrong-blog]

Chiari Malformation. Year 2.

I'm now officially in my 2nd year of my chiari diagnosis. For the first 6 months it never fully registered to me because within weeks of diagnosis I found myself going through a speration and a divorce, so I was pretty much preoccupied trying to learn who I was etc. The next 6 months after that, I was learning if I needed to have brain surgery and how quickly the Chiari was progressing. My first year I did three to four mri scans, and than they decided let's wait a year now and rescan in a year, March will be a year, and I will travel back down to lubbock for the mri and results the same day.

I hate mri's my anxiety gets so bad, but this is my life. Either every 6 months or at least once a year.

My life is chronic neck pain, it's dizziness when I wake up, or feeling great when I wake up and suddenly becoming dizzy. My life is unpredictable from second by second of my day. It's feeling lightheaded underneath certain lights, it's randomly stumbling or falling for no reason at all, it's using a basket to steady myself in a store, some days I spent whatever time I have left in bed, I have back pain, weakness...a overall feeling of unwell. I stick by my spoons. Most days I only have half a spoon left. I don't talk about my chiari alot, I feel some people get tired of hearing it. But chiari is my life, I live with the pain and symptoms every day. It alters my life even though I try to not let it...

If you didn't know me, would you even know something so severe was wrong with me? I try to put on a happy face. I've learned with chiari comes depression, low energy, and a worthless feeling. I try to keep going and pushing through, and I will, this disease will not conquer me. I will still wake and try to be strong, because I have no choice but to be strong for that little boy of mine. I stand up with my head held high, telling Chiari Malformation to kick rocks!

[soeflow-blog1]

Everyday is a battle everything you just want to pull the plug but you dont... You find a reason even of its 1 to keep yourself going even daily. 1 reason a day to keep pushing keep fighting. 1 day farther then the last 1 day closer to feeling better 1 day closer that you will be happier.... Warriors are given the most difficult battles to fight and sometimes its not even with others but with yourself. These battles will shape and mold you to the warrior that you are and will become and you will overcome this because your soul is strong enough to defeat it 💪🔥🔥 #chiaristrong #chiarimalformation #chiarisucks #chiariwarrior #chiari #chiariawareness #chiarian #chronicallyill #chronicillness #chronicfatigue #invisibleillness #dontgiveup #everydayisabattle #painornotiwillstilldance #painsucks #chronicpainwarrior #chronicfatiguesyndrome #tiredofbeingsostrong #tiredofbeingtired #1reasontostayalive #1reason #onereason #onestepatatime https://www.instagram.com/p/Boi5UCZHOOuHvmyTH3VOUNjACK2lqJv3E4HYH80/?utm_source=ig_tumblr_share&igshid=13hp4f763b2k9

[sarahhuntthrives]

For those who don’t understand, but would like to, here is a glimpse... #chiariwarrior #chiaristrong #brainsurgerysurvivor #20yearsonNovember18 #wishingbrainsurgerywasacureinsteadofabandaid

[radiantlydelusionalranting-blog]

When people tell you the "secret to beating chronic pain is just being positive" so you sit around telling yourself all day "I don't feel like shit"

[nieceyshark]

We all have the ability to keep moving forward. As long as we keep trying we are always ahead. Sometimes it is difficult to see how much progress we have made and we continue to make because we are all unreliable narrators when it comes to our personal story.Thank goodness, God has it all under control. Stay positive and keep pushing forward even if it is a very slow process. #keepmovingforward #chiarimalformation #chiaristrong #spinalcordinjuryrecovery #spinalcordinjury #walkingafterspinalcordinjury #walkingparaplegic #encouragement #faith #hope #prayerworks https://www.instagram.com/p/B-qgNPqhqZ3/?igshid=12verae3n2ubr

[theartwerks]

Soooo T-minus 1 week until my brain surgery! 😳 I’ve gotten opinions, second opinions, and third opinions on which of the two procedures I need to do first to resolve my chiari malformation and the intracranial hypertension & optic nerve swelling it is causing. I’ve decided to do the Posterior Fossa Decompression with C1 Lamenenectomy. If my papilliodema (optic nerve swelling) persists, I still may need venous sinus stenting with a 2nd procedure in 4-6 weeks. Basically, my cerebellum is drooping into the hole at the bottom of my skull, crowding and squishing my brain stem, and blocking all of the very much needed cerebral spinal fluid from getting to my brain properly, which is causing massive pressure inside of my head. Crazy thing is this image (minus my doodles, of course) is from 2015, meaning this blockage has been happening for AT LEAST 5 years. 😭�� I’m ready to get it taken care of! To reiterate what I’ve said in earlier posts: my website shop & Etsy shop are now CLOSED. Most likelyyyyyy for 6 weeks+ (but not permanently!!) My spoonflower shop will remain open, but I will not be checking messages or emails, so I won’t be able to do any revisions for again, minimum 6 weeks, if not longer. If I don’t reply to DMs, emails, messages whatever, please understand this is why!! I won’t be able to lift anything more than 1-2 lbs for months. I won’t be able to move my head/neck to be on my computer, and I won’t be able to drive.. So yeah, staying closed for awhile is unfortunately necessary. I will miss y’all, I hope to post updates on here if I can. I appreciate all y’all’s positive vibes!! Please send some for my Neurosurgeon Dr. Effendi to DI an extra good job (and not to have to shave off too much of my hair 😭 #vain ), and send some extra for my poor hubs for when he suddenly realizes just how much house cleaning, kid watching, and cooking I actually do (lol!) 😂and pray Lexi & him will be ok too!!! I’m happy to get this done, and looking forward to feeling even better than before in a few months!! ✨💕🥰🌈 See y’all soon! #chiaridecompression #chiarimalformation #theartwerks #brainsurgery #chiarimalformationawareness #chiariwarrior #chiaristrong (at The Woodlands, Texas) https://www.instagram.com/p/CBedbJ7gflB/?igshid=1a2scwi14kyim

[giazillashow]

Please contact your #senator to #opposesb2089 which will remove even more #rights from #disabled Info here https://www.facebook.com/352923838664117/posts/440372339919266/ #chronic #pain #patients #chiaristrong ##ehlersdanlos #arachnoiditis #cprs #headache #surgery #patientsoverprofits https://www.instagram.com/p/B0j-xJUgNgB/?igshid=1vq32ez4irs6k

[ajjohnson1985]

"You don't know how strong you can be, until you need to strong for them" Happy decompression anniversary to my Bird. #chiari #zipperhead #chiariwarrior #chiaristrong #chiarisupporter #strongbaby

[soeflow-blog1]

She sees victory. She sees evil being vanquished. Through her warrior eyes, all that seems improbable will be accomplished within a matter of seconds. As the faithless blindly walk on the desolate scribbled path of indecisiveness, she gift wraps the power to believe, hands it to them, then rides on, leaving behind a trail of inspiration. Those who do not doubt will see its glow. Its glow stretches far beyond any rainbow, penetrating the nearest body of water. She converses at times with the Lady of the Lake, but she does not need Excalibur to conquer this war of the century. Through a golden heart and strength of steel, she will crush this faceless enemy singlehandedly, defeating every sneak attack and ruthless comeback without breaking a single drop of perspiration. The Supremacy of Love is on her side. The commanding call is spoken through her words. Give it Hell and do not give it a moment’s thought. To the populace who have hope: look to her. Keep your eyes on her and clouds undulating above will answer the request of the unbelievable. Continue your everyday journey. To the sordid nightmare who tries to triumph over the fighter: you will never succeed. Retreat to whatever cavern you crawled out of. You will not stand a chance against her, for she will flick you off of her shoulder like the insignificant pest you are. There shall be no more scrimmages here. She has the power to ‘redefine the impossible Through abiding tenacity, the entirety of this brawl will be a glimpse of valor won fair and square, seen through the eyes of a warrior. #warriorgirl #warriorforlife #ciwarbird #coneyisland #positivianvibes #neutralcolors #chiaristrong #chiariwarrior

[sarahhuntthrives]

Health challenges may have won yesterday, sometimes that happens. However, today is a new day! The sun is shining, the kids are content for the moment, time to get stuff done! Have an amazing a productive day!!! #chiaristrong #onedayatatime #rainmaybenecessarybutitisnotmyfriend #thriveenergyisstrongtoday #thrivewithdawayneandsarahin2018

[fangirlbillie]

September is chiari Awareness month , chiari is a serious nuerological condition in where the brain is herniated into the spinal canal causing a variety of problems including white hot pain leaving you in so much Agony you would truely welcome death Chiari has no cure brain surgery is the only treatment it is not with out its risks or problems please if you can wear purple to raise awareness would be appreciated

[itsbeverly23]

About a week and a half until my surgery. #chiariwarrior #chiarimalformation #chiarilife #chiaristrong #chiarisucks

[foreverourfandoms-blog]

Going home in a few minutes! #chiarimalformation #chiari #surgery #chiaristrong