#seeing disability
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#love having this problem at 26#I mean it started before that but#eye problems#eye disability#seeing disability#disabilties#disabled#legally half blind#half blind#only one working eye#i’m too old for this#people with disabilities#meme#we’re in this together besties#actually disabled#disabled eye#partially blind#vision impaired
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the funniest meltdown ive ever had was in college when i got so overstimulated that i could Not speak, including over text. one of my friends was trying to talk me through it but i was solely using emojis because they were easier than trying to come up with words so he started using primarily emojis as well just to make things feel balanced. this was not the Most effective strategy... until. he tried to ask me "you okay?" but the way he chose to do that was by sending "👉🏼👌🏼❓" and i was so shocked by suddenly being asked if i was dtf that i was like WHAT???? WHAT DID YOU JUST SAY TO ME?????????? and thus was verbal again
#yeehaw#1k#5k#10k#posts that got cursed. blasted. im making these tag updates after... 19 hours?#also i have been told it should say speech loss bc nonverbal specifically refers to the permanent state. did not know that!#unfortunately i fear it is so far past containment that even if i edited it now it would do very little. but noted for future reference#edit 2: nvm enough ppl have come to rb it from me directly that i changed the wording a bit. hopefully this makes sense#also. in case anyone is curious. though i doubt anyone who is commenting these things will check the original tags#1) my friend did not do this on purpose in any way. it was not intended to distract me or to hit on me. im a lesbian hes a gay man. cmon now#he felt very bad about it afterwards. i thought it was hilarious but it was very embarrassed and apologetic#2) “why didn't he use 🫵🏼?” didn't exist yet. “why didn't he use 🆗?” dunno! we'd been using a lot of hand emojis. 👌🏼 is an ok sign#like it makes sense. it was just a silly mixup. also No i did not invent 👉🏼👌🏼 as a gesture meaning sex. do you live under a rock#3) nonspeaking episodes are a recurring thing in my life and have been since i was born. this is not a quirky one-time thing#it is a pervasive issue that is very frustrating to both myself and the people i am trying to communicate with. in which trying to speak is#extremely distressing and causes very genuine anguish. this post is not me making light of it it's just a funny thing that happened once#it's no different than if i post about a funny thing that happened in conjunction w a physical disability. it's just me talking abt my life#i don't mind character tags tho. those can be entertaining. i don't know what any of you are talking about#Except the ppl who have said this is pego/ryu or wang/xian. those people i understand and respect#if you use it as a writing prompt that's fine but send it to me. i want to see it#aaaand i think that's it. everyday im tempted to turn off rbs on it. it hasn't even been a week
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yeah i'm mad
#catsCANdraw#my art#mouthwashing#curly mouthwashing#captain curly#img id in alt text#if i have to see that godforsaken animatic of him with the dog buttons one more time i will straight up start killing people#please treat disfigured disabled people like humans thanks
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*deep breath in*
*deep breath out*
Let AAC users say fuck!
Let them swear, let them say fuck and asshole and anything else they want.
Let them program their devices to say ‘fuck off’ instead of just ‘leave me alone, please’. Let them have language that’s adult or even offensive! Give them the ability to communicate the same as anyone else- let them have the option to be abrasive and even rude for when people are being assholes, let them swear casually so they can joke with their peers and say shit like ‘can you pass the damn ketchup’!!!!!!!!
Let disabled people say fuck!
#AAC#disabled#disability#AAC user#we as a system are semi verbal#we experience frequent episodes of speech loss#though are often able to use ASL or writing to get our points across#if we’re in full shut down#then it’s more helpful to have things like communication cards#and all the communication cards we see are so sanitized
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but you can't keep holding on like this.
#you can put a disability metaphor in any legfndary draconic entity. many people dont know this#my art#comic#ouroboros#for tag filtering:#blood#its a blurry day forgive typos#for search results:#bite down or let go#here's the deal ouroboros#for qna:#yes you can get it tattooed i would appreciate a tip through ny kofi (pinned) and i would love to see if you feel comfortable sharing#yes its an original quote i do write sometimes#no its not cringe or bad if you blorbo tag or whatever. go nuts. if i didnt want people connecting w my work I wouldn't post it#yes you can quote it in your own art and I'd love to see that too#anyways i love you. we'll both get through this regardless of how it changes us okay? i love you.
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Good luck during pride month to all the aroaces who are gonna be blasted with "love is love" everywhere
Edit:
This post includes aplatonic people, loveless aros and any other people who fall anywhere on the aro and ace spectrum.
Stop saying "but theres platonic love and familial love-"
#nothing wrong with love is love but pls being queer isnt just about loving someone#it can also be about the lack of love im certain aspects of peoples lives etc.#idk if that explains it very well but whatever#pride month#lgbtqia#aroace#aromantic#asexual#this goes to anyone on the aro and/or ace spectrum btw#anyway have fun during pride month everyone i hope you have a great time#im turning the reblogs back on#but if i see one person say any shit abouy platonic love im disabling it agaain
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#insane how this is one of the easiest boycotts ever yet some of ya'll are failing it#also I see you mfs disabling comments on your Eurovision fangirl posts don't think you're fucking clever#eurovision#eurovision 2024#eurovision song contest#palestine#gaza#boycott eurovision#boycott israel#esc 2024
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Your personal triggers and squicks do not get to determine what kind of art other people make.
People make shit. It's what we do. We make shit to explore, to inspire, to explain, to understand, but also to cope, to process, to educate, to warn, to go, "hey, wouldn't that be fucked up? Wild, right?"
Yes, sure, there are things that should be handled with care if they are used at all. But plenty more things are subjective. Some things are just not going to be to your tastes. So go find something that is to your tastes and stop worrying so much about what other people are doing and trying to dictate universal moral precepts about art based on your personal triggers and squicks.
I find possession stories super fucking triggering if I encounter them without warning, especially if they function as a sexual abuse metaphor. I'm not over here campaigning for every horror artist to stop writing possession stories because they make me feel shaky and dissociated. I just check Does The Dog Die before watching certain genres, and I have my husband or roommate preview anything I think might upset me so they can give me more detail. And if I genuinely don't think I can't handle it, I don't watch it. It's that simple.
#this post is directly inspired by that goddamn Stop Setting Horror In Hospitals post I keep seeing#fuck you actually I don't care if YOU find it triggering#plenty of my disabled friends including myself like seeing hospital horror used to examine systemic ableism and abuse by doctors#you don't have to engage with it#but you also don't get to say it's not allowed to exist anymore#jackass#original post
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Made the mistake of bringing up that needing glasses is a disability on tiktok and people got real mad.
“You can fix it with glasses” yeah, cuz they’re a disability aid? But like, I still have to pay 160 bucks to use my own fucking eyes?
Like, by definition, if your eyes do not work without aid, you have a disability to see.
Having a disability doesn’t automatically put you in what people consider the “disabled” category, but that doesn’t change the fact that it is in fact, a disability.
#disabilties#glasses are a disability aid#glasses#i am legally blind without my glasses#and even with them I still have difficulty seeing
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i'm sorry but i don't think we should call this the "autism website" when there's still posts with tons of notes mocking people who:
struggle with social skills / have anxiety around social settings
are unemployed / unable to work certain jobs
have intense or "age-inappropriate" interests
haven't had certain life experiences that are deemed universal/essential
struggle with personal hygiene
don't have any friends or dating experience
don't go outside much or at all
take things literally / don't get sarcasm/jokes
have unusual ways of speaking
generally aren't "normal"
#+ other things i'm probably forgetting rn#i know most of these apply to other disabilities too but i wanted to focus on autism bc of all the 'autism website' stuff#it's genuinely disturbing to see someone go 'lol autism website'#and then in the next breath be like 'omg look at this loser who [literal symptom of autism]'#but i guess when these people talk about autism they don't mean actual autism#but the tiktok style 'just a bit quirky but still able to assimilate into abled hegemony with ease' autism#i'm just tired of the hypocrisy#autism acceptance month is over now it's time for autism wrath month#being disabled on tumblr can be fucking awful sometimes. might take a break for a while bc i just don't have the energy to deal with it#autism#actually autistic#actuallyautistic
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#didn’t see that coming#blind#Visual disabilities#humor#joke#jokes#lol#comedy gold#comedic#tiktok#tik tok#memes#funny#walking stick#White canes#visually impaired#disability
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
[plain-text version of this post can be found under the cut]
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
Plain-text version:
Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
P.S. Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
#hlep#original#mental health#my sympathies and empathies to anyone who has to rely on this kind of hlep to get what they need.#the people in my life who most need to see this post are my family but even if they did I sincerely doubt they would internalize it#i've tried to break thru to them so many times it makes my head hurt. so i am focusing on boundaries and on finding other forms of support#and this thing i learned today helps me validate those boundaries. the example with the milk was from my therapist.#the example with the towing company was a real thing that happened with my parents a few months ago while I was age 28. 28!#a full adult age! it is so infantilizing as a disabled adult to seek assistance and support from ableist parents.#they were real mad i was mad tho. and the spoons i spent trying to explain it were only the latest in a long line of#huge family-related spoon expenditures. distance and the ability to enforce boundaries helps. haven't talked to sisters for literally the#longest period of my whole life. people really believe that if they love you and try to help you they can do no wrong.#and those people are NOT great allies to the chronically sick folks in their lives.#you can adore someone and still fuck up and hurt them so bad. will your pride refuse to accept what you've done and lash out instead?#or will you have courage and be kind? will you learn and grow? all of us have prejudices and practices we are not yet aware of.#no one is pure. but will you be kind? will you be a good friend? will you grow? i hope i grow. i hope i always make the choice to grow.#i hope with every year i age i get better and better at making people feel the opposite of how my family's ableism has made me feel#i will see them seen and hear them heard and smile at their smiles. make them feel smart and held and strong.#just like i do now but even better! i am always learning better ways to be kind so i don't see why i would stop
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People seem to think this is fake because it's written in English. Apart from the racism in believing that Arab doctors and nurses aren't fluent in English (a second or official language for half of Asia), Palestinians have deliberately been addressing their audience in English on every social media, from journalists to children, because they know speaking English to Westerners immediately makes people more human in their eyes. Because language is one of the ways the imperial cultural hegemony conditions us (yes, everyone in the world) to see who qualifies as "people" and who are simply a mass of bodies who were always made to suffer and die. Gazans know this deeply, which is why they have been using English to beg and plead through social media, "We're not numbers! We're not numbers! We're people like you, we speak your language, we deserve to live!" all the while they're systematically slaughtered.
Israeli forces also encircled Al Shifa Hospital yesterday and bombed it for several hours while shooting dead anyone trying to flee including medical staff moving between buildings. Not sure whether it's still continuing because WHO lost all communications with its staff there a few hours after. The last new report said that thirty-nine babies had been removed from the incubators before the power went out. It's extremely unlikely they will survive.
Please understand that these atrocities depend on the war of attrition between governments and public attention. The momentum of public outcry is difficult to sustain through repeated stonewalling and bureaucratic intractability. When we're flooded with these reports and a sense of futility and despair replaces the anger, it allows compassion fatigue to set in and the violence to become normalized. Massacring hospitals, killing sick children and openly targeting humanitarian aid workers (Netanyahu just declared the UNRWA is in league with Hamas) will become simply more news articles that fade into the background, and open genocides will soon become part of the "lesser evil".
Take care of yourselves how you can, take distance where needed, but please never tune out and give up on the two million people for whom we are the only witness and hope. Never stop boosting and sharing the news and posts you find, never stop getting out there and joining every protest you can, however small. Anger burns out, which is why activism must depend on an immovable sense of justice and uncompromising value for human life. It's not just about Gaza, it's about the kind of evil our generation will be coerced into accepting as unchangeable and inevitable hereafter.
#but also like it's a lot about us and especially you in the West#every bomb dropped on Gaza brings us closer to the brink of‚ if not a world war‚ an eruption of regional conflict#with devastating economic and environmental effects across the world#I'm tired of repeating this and my followers are prob tired of seeing it#but someone has to#war of attrition like I said#free Palestine#tw child murder#tw child death#tw baby killing#tw ableism#disability justice#war crimes#gaza genocide#save gaza#gaza under attack#palestinian genocide#israel is a terrorist state#knee of huss
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#chronic disability#chronic pain#chronic illness#spoonie#disability#its 6am and i cant fall back asleep#i see a lot of these polls but they never have pain relief in them#so i wanted to make one more specifically for those with chronic pain/illness
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Oh? Oh Greta Gerwig? Putting a Barbie using a mobility aid to dance front and centre? Putting her front and centre for a dance sequence and making her the centre of attention? Just like that? To personally make me sob tears of joy? During July?
#barbie spoilers#being disabled and seeing any disability rep makes me sob#disability pride month#barbie#greta gerwig#barbie movie
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backhanded flattery
#some weird ass shit i keep seeing well intentioned ppl do#especially when the art in question is made by psychotic and disabled people
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