#respiratory disorder
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disability pride month userboxes part 2/5
posted these on insta throughout the month :3
#disabled#disability pride month#prosthetics#did#ptsd#arthritis#down syndrome#bipolar 2#dermatillomania#dysthymia#palilalia#anxiety#gad#depression#scoliosis#endometriosis#ehlers danlos syndrome#pcos#prosopagnosia#crutches#glasses#heart condition#chronic fatigue#chronic pain#maladaptive daydreaming#ed#learning disability#tourettes#substance addiction#respiratory disorder
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NOW YOU KNOW!!! NOW YOU KNOW!!!!! WHAT IT IS LIKE TO LIVE IN MY BODY!!!!!!
#they recover like immedaitely bc we're not actually here to see them get clobbered but STILL#one piece#op#skypeia#i get like this whenever stories go to a really high place and the air is thinner#bc like#yes!! yes!!! this is how i feel!!! ALL THE TIME#for context. i have Several Respiratory Disorders#and also just shitty fucked up lungs that are bad#extanttalks#black leg sanji#sanji#zoro#roronoa zoro#luffy#monkey d luffy#robin#nico robin#manga panel
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🫁 、 UNSPECiFIED RESPiRATORY DiSORDER LESBiAN ── A flag for lesbians with an unspecified respiratory disorder 。
#♡ 、 wish 。#unspecified respiratory disorder lesbian#unspecified respiratory disorder#lesbian#lesbian flag#lgbt pride#lgbtq#lgbtq community#lgbtqia#pride#mogai#mogai blog#mogai friendly#mogai flag#mogai safe
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Even though I say I’m having “difficulty breathing”, it doesn’t mean that I’m going to appear the same way as if someone were having a heart attack.
I wanted to make this blog post because there seems to be a lack of awareness on this topic. The other day, I saw a new doctor on Telehealth. I told her I was having issues breathing and that I preferred to write in the chat log (if there was one). She said there was no chat log, and I said that I will hang on as long as I can speak. She did urge me to call 911 if I needed to, but she was pretty hasty, rolling her eyes pretty much the entire time, with an attitude (before I even told her I was having difficulty breathing). I won’t be seeing her again. In her notes, she didn’t dismiss that I was ill, but she did write down that I claimed to be having some breathing distress but that I was “talking fine, talking in full sentences / paragraphs, and not in any breathing distress”. She put something like, “patient claims she’s breathless and can’t talk, yet she continues to talk very fast and is not actually having any issues breathing.” I wanted to put this out here, loud and clear!! Just because someone is feeling distress upon breathing and while verbally speaking does NOT necessarily mean this person can’t talk “at all”, and it doesn’t mean that this person isn’t suffering to the max when he/she speaks. There are MULTIPLE manifestations / types of “breathlessness”. That is an ambiguous word. That is why I used the phrase “difficulty breathing” earlier on. No matter the semantics you choose to use, the universal message should be clear: that if we tell you we are in distress verbally speaking, WE ARE. NOT all shortness of breath presents the same. Of course I was not having a heart attack. I know what THAT type of “short of breath” is like. That is a breathing for me that was very fast, with frequent deep gasps, with the worst distress and inability to catch my breath whatsoever. For my usual daily symptoms, though, my “difficulty breathing” is much different than that!! I guess even doctors aren’t familiar with “this type” of “difficulty breathing”. Again, having “difficulty breathing” could mean a variety of things!! Well, she did technically tell me she was not a doctor but rather a nurse practitioner. (I even had a NP who didn’t know what dysautonomia was recently, so I can’t hold them too accountable here. But, they should open their minds a little.) Even when I’m not speaking, I have labored breathing. It’s not the same type as when you have to labor your breathing when you’re in an SVT attack; I get that way too. That’s much different. When I have labored breathing, I have to manually focus on each breath. My chest is also VERY tight, and my airways are not that elastic to begin with. My lungs are always tight and compressed. I also have apnea both while awake and asleep... and not the obstructive type but the central type where the brain doesn’t even send the message to breathe. I don’t have apnea all day long. That part does come in waves. Some days it’s very severe and breathing isn’t automatic. At that point I have to focus very hard, and when I speak and my brain is going fast, it becomes almost impossible for me to breathe enough. I will talk until I get faint and then it jolts me to breath. But on the moments/days that the apnea is not severe, I still have many other respiratory issues that are exacerbated while speaking verbally. There are moments I can’t speak at all, and there are moments I can speak with just a little distress (which always worsens as I go). My FEV1 is EXTREMELY low, which is the forced air output. My lungs are also hyperinflated, as seen on chest x-rays. I was also diagnosed with COPD on top of astham and the low FEV1. When I speak, I am VERY lightheaded / faint. I get more and more near-syncope as I speak. My airways get tighter because of their lack of elasticity. I did have nodules on my vocal cords years ago. I also felt a pop in my airway back in 2010 when this all started with my airways. I did have breathing difficulty since I was a child with exertion. I see phosphenes (stars) when I speak. I start to gasp for air. I take breaks at certain times. I may talk for 4 minutes straight and then suddenly stop talking fully. I may start doing very deep breathing which can sound like I’m sighing... I assure you I never sigh. It is me deep breathing. And people don’t even notice the deep breathing. If you see me in a video, though, you’d see how much distress I’m actually in if I were to highlight the exact moments that I’m holding my chest, breathing oddly, etc. I start to sum up my answers, EVEN IF I am still talking “a lot”! This is because I know the convo could go on for a while and I want to answer as much as possible even if I have to sum things up here and there. For anyone who knows me, they will know I’m an EXTREMELY DESCRIPTIVE person. That’s just the way I am. I’m not a person of a few words; I’m a person of many words. I love to talk. I was always extremely talkative. Talking on the phone / video urges me to speak louder, and any time I speak loud, it makes me more breathless. I also used to be a singer and now I cannot sing much. That should be full proof right there. I went from being able to belt out a tune, even though I was always lightheaded to some degree doing so, to being able to hardly finish one stanza while only sitting down. Now my FEV1 is so low that I can hardly get a few lines of singing out at one time... and I can’t sign with much force for long. I can maybe sing with significant force for ~2 seconds max. I also can still scream / yell, but only for 2 seconds, and then i’m left suffering greatly afterwards. After every vocal interaction, I’m suffering SO much. It actually makes me worse because then I can’t go and exert after speaking. After talking to someone, it usually takes about 45 min for me to reset and then I can go into a wheelchair or use the bathroom, etc. People have NO idea how distressing this is. I would love nothing more than to use sign language or another method, but people do NOT see this as a “real problem” because it’s so rare. If I were deaf, yeah, sure people will use sign language. Funny thing is I can hardly hear... I lip read mostly now... and when people turn their backs and I can’t hear them, I have to ask “what” repeatedly. And it’s not even an issue with volume... I can hear volume fine, so hearing aides won’t help. It’s a problem hearing clarity, as I have extremely loud tinnitus going on at all times, involving knocking sounds, rumbling, and 8+ pitches of tones, some pulsing. I also have tensor tempani and tons of ear pressure. So believe me, I would love to use sign language, but because I’m not “deaf” no one would accommodate that. And here I will sit, suffering, for the rest of my life!!!! I also would like to write things down. Sometimes I do. Some people will not entertain that, because they can see I can still speak. But what they don’t see is how much worse it makes me, how bad I feel during it and after it, and how I can’t do anything for so long after speaking. It would give me so much freedom to be able to use sign language or write things down. Just because I can verbally speak does not mean it’s not torturing me. MY LUNGS FEEL LIKE BRICKS to lift with each breath, and when I speak, I have to lift so much more. It feels like 100 pounds. And it exhausts me. My heart rate goes up. My heart also becomes inadequate and doesn’t beat right after talking for several minutes or even after exerting at all. I burn so many calories from just TRYING to speak, due to my heart rate going up. I get so exhausted just talking a little bit. I can’t afford to speak but I do it anyway because I’m stuck in a world that only caters to visible disabilities. If you have an invisible disability, forget it. You’ll always be seen as meek, weak, and a wuss to outsiders. I’m so spent and wrung out from all this explaining. I don’t owe anyone an explanation, but here I am making myself all stressed out because an uninformed, narrow-minded nurse would rather assume than look at my past history or ask me in writing on a message.
#breathless#shortness of breath#short of breath#respiratory#chronically ill#chronic illness#lungs#heavy lungs#invisible disability#invisible illness#chronic illness warrior#chronic disability#vocal disability#out of breath#breathing disorder#breathing difficulty#rare illness#rare disability#rare condition#bronchialtrachealmalacia#bronchial malacia#nodules#tinnitus#hyperinflated lungs#difficulty breathing#hard to breathe#issues talking
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#Guillain-Barré Syndrome#Autoimmune disorder#Peripheral neuropathy#Immune system attack#Nerve damage#Acute onset#Ascending paralysis#Myelin sheath#Weakness#Tingling or numbness#Reflex loss#Respiratory failure#Inflammation#Recovery phase#Hospitalization#Infectious triggers#Viral infections#Bacterial infections#Campylobacter jejuni#Cytomegalovirus (CMV)#Zika virus#Vaccine-associated#Cerebrospinal fluid (CSF)#Lumbar puncture#Plasmapheresis#Intravenous immunoglobulin (IVIG)#Motor symptoms#Sensory symptoms#Guillain-Barré treatment#Long-term prognosis
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China’s economy shakes off Covid legacy to grow 4.5% in Q1 | CNN Business
Hong Kong CNN — China’s economy got off to a solid start in 2023, as consumers went on a spending spree after three years of strict pandemic restrictions ended. Gross domestic product grew by 4.5% in the first quarter from a year ago, according to the National Bureau of Statistics on Tuesday. That beat the estimate of 4% growth from a Reuters poll of economists. But private investment barely…
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#asia#brand safety-nsf health issues#brand safety-nsf sensitive#Business#China#continents and regions#coronavirus#diseases and disorders#domestic alerts#domestic-business#domestic-coronavirus#domestic-health and science#domestic-international news#east asia#economic conditions#economic growth#economic indicators#economy and economic indicators#economy and trade#gross domestic product#health and medical#iab-business and finance#iab-diseases and conditions#iab-economy#iab-infectious diseases#iab-lung and respiratory health#iab-medical health#infectious diseases#international alerts#international-business
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Covid-19 boosters could keep thousands of kids out of hospitals, but uptake remains low
CNN — Higher Covid-19 vaccination rates among US children could prevent thousands of pediatric hospitalizations and millions of missed school days, according to an analysis published Tuesday by the Commonwealth Fund and the Yale School of Public Health. If school-age children were vaccinated with the updated Covid-19 booster shot at the same rate that they were vaccinated against flu last…
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#Business#business and industry sectors#children#Children&039;s health#children&039;s hospitals#communicable disease control#continents and regions#coronavirus#demographic groups#diseases and disorders#economy and trade#education#families and children#family members and relatives#health and health care (by demographic group)#health and medical#Health Care#health care facilities#hospitals#Infectious diseases#life forms#maternal and child health#medical fields and specialties#microscopic life#north america#pediatric vaccinations#pediatrics#population and demographics#Public health#respiratory diseases
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Those old negative-pressure ventilators (like the famous/infamous Iron Lung) are pretty fascinating in a number of ways.
We favor positive pressure, pumping air into the lungs, via intubation in extreme cases, but that approach has a lot of drawbacks. The emergence of covid increased demand, especially for the kind of extended use that can lead to lung damage. I wonder how fast we could have moved out new negative pressure ventilators (wikipedia page linked to one kind) if we had better public health funding (both in general and not having been fucking gutted right before we ended up needing it.)
The negative pressure machines make it harder to examine a patient, but the relative expense (including training of medical personnel), non-invasive method (and lack of associated side effects, discomfort, and distress), and general quality of life seem like they would have been good to have earlier on (hell, modern technology arguably removes some of the restriction problems that older models had; theoretically you could wire a keyboard or a video game controller in there that could be used to operate a computer, tv, e-reader, and whatnot, which would probably improve prognoses from just the psychological condition of being not in pain and not bored.)
Not a lot of old ventilators like that are still in functional condition, and people who genuinely have needed them indefinitely eventually started having trouble sourcing parts to keep the things working. They do restrict movement but as an alternative to intubation in cases extreme enough to need it, they still seem by far the more comfortable option. Since positive pressure ventilators are so resource-intensive and invasive, I wonder if keeping both kinds around and transferring people to a newer model of negative pressure chamber if extended use is needed would be the ideal protocol. Covid is still a problem even though we're largely ignoring it, we could probably still use a respectable reserve of negative pressure chambers for all their benefits.
#ignore Morg#another part of why I find them fascinating might be the asthma/general breathing problems#if I were stuck in a hospital with serious covid and had the choice between a respirator and a pressure chamber#I would emphatically choose the latter#I already have chronic inflammation pain in my respiratory system and intubation is worse than that in every way#I probably wouldn't do well on it#I mean most people don't that's why intubation is usually paired with sedatives#there's also a philosophical aspect there that hits different for someone who feels kind of alienated from their body#the way I am#for however long you need a ventilator you'll be living with it.#I already have a lot of parts that I'm living with that are outright uncomfortable#both physical and psychological. I feel like I might see ''less'' difference between that kind of machine and my own lungs#than someone who isn't restricted (through pain) to not being in certain places/conditions and not doing certain activities#It's a good question whether having the choice of which ventilator might be comparable#to restricting one's own activity to avoid pain and injury. just applied to a much more serious condition#... anyway. I should cut this off at some point#not allowing reblogs because it is 1:30AM and I am absolutely tired-philosophizing like one does. actually#maybe that's why I do more at night. lowered inhibitions turn a fairly paralyzing anxiety disorder into something closer to functional#There is so much fucking wrong with me. It's stupid.
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ORGANIC JAVA CITRONELLA ESSENTIAL OIL
It has a greater proportion of Citral and Citronellal, giving it a distinct lemony aroma. Inhaling this smell helps boost oxygen delivery to the lungs, improving respiratory health. It is a good natural expectorant that has long been used to treat coughs and the flu. Pure Java Citronella Essential Oil can help alleviate chest congestion and nasal obstruction. Inhaling it might help to eliminate mucus and phlegm that have become lodged inside. It promotes natural breathing and is an age-old treatment for coughs and colds. Its citrus and refreshing scent alleviates symptoms of stress, anxiety, and terror. It has a revitalizing impact on the neurological system, which helps the mind rest.
#relieve stress#anxiety#neurological disorder#usda certified#essential oil#respiratory health#boost oxygen#anti inflammatory
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*through gritted teeth* i will not be that one asshole in the youtube comments it’s not worth it, even if they’re wrong
#Blue Jay Chirps#a lifelong epileptic dying in their sleep due to a seizure is not unexpected or shocking#it’s unfortunately entirely predictable if someone wasn’t there to monitor their breathing all night#anticonvulsants are a treatment not a cure#you are never guaranteed no seizures just less frequent and less severe#is it tragic? yes. but it’s not some one in a million accident.#seizure induced respiratory arrest isn’t uncommon#sorry this whole situation just makes me angry because it feels like another layer of ableism somehow#“this was so unexpected and tragic who could’ve foreseen this outcome?”#me. he was epileptic. you *have to* acknowledge that treatments for neuro disorders Are Not Cures. this happens. it sucks.#pretending no one could have predicted his death helps exactly nobody.#ask to tag
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Best Treatment for Respiratory Disorders in BTM Layout, Bangalore: Marutha Homeo
Respiratory disorders can significantly impact one’s quality of life, making it essential to seek effective treatment that not only addresses the symptoms but also tackles the root cause of the condition. For residents of BTM Layout, Bangalore, Marutha Homeo offers exceptional homeopathic care for respiratory disorders. This blog explores why Marutha Homeo is a top choice for individuals seeking relief from respiratory conditions and how their holistic approach can lead to lasting health improvements.
Understanding Respiratory Disorders
Respiratory disorders encompass a wide range of conditions that affect the lungs and airways, making breathing difficult. Some of the most common respiratory disorders include:
Asthma: A chronic condition characterized by inflammation and narrowing of the airways, leading to wheezing, shortness of breath, and coughing.
Chronic Obstructive Pulmonary Disease (COPD): A group of lung diseases, including emphysema and chronic bronchitis, that cause airflow blockage and breathing-related problems.
Allergic Rhinitis: Also known as hay fever, this condition is caused by an allergic reaction to airborne substances such as pollen, dust mites, or pet dander.
Sinusitis: Inflammation of the sinuses, often due to infection, that can lead to congestion, headaches, and difficulty breathing.
Bronchitis: Inflammation of the bronchial tubes, which carry air to the lungs, leading to coughing, mucus production, and chest discomfort.
These conditions can be triggered or exacerbated by factors such as pollution, allergens, smoking, and infections. Traditional treatments often involve the use of medications that may only provide temporary relief. However, homeopathy offers a more holistic and long-term approach to managing these disorders.
Why Choose Marutha Homeo for Respiratory Disorders?
Marutha Homeo, located in BTM Layout, Bangalore, is renowned for its effective homeopathic treatments for respiratory disorders. Here’s why Marutha Homeo is a trusted name in the community:
Holistic Approach: Homeopathy focuses on treating the individual as a whole, rather than just addressing the symptoms of a disease. At Marutha Homeo, the treatment of respiratory disorders is personalized, taking into account the patient’s physical, emotional, and psychological health. This holistic approach aims to strengthen the body’s natural defenses, leading to long-term relief and prevention of recurrences.
Customized Treatment Plans: The team at Marutha Homeo understands that every patient is unique, and so are their health needs. After a thorough consultation and assessment, a customized treatment plan is developed for each patient. This plan includes carefully selected homeopathic remedies that target the underlying cause of the respiratory disorder while also alleviating symptoms.
Natural and Safe Remedies: Homeopathic remedies used at Marutha Homeo are derived from natural sources and are known for their safety and lack of side effects. These remedies work gently yet effectively to stimulate the body’s healing processes, making them suitable for patients of all ages, including children and the elderly.
Expertise and Experience: Marutha Homeo is led by a team of experienced homeopathic practitioners who specialize in treating respiratory disorders. Their expertise ensures that patients receive the highest quality care and effective treatment solutions tailored to their specific needs.
Preventive Care: In addition to treating existing respiratory disorders, Marutha Homeo places a strong emphasis on preventive care. Patients are provided with guidance on lifestyle changes, dietary adjustments, and other preventive measures that can help reduce the risk of future respiratory issues.
Success Stories from Satisfied Patients
Marutha Homeo has garnered numerous positive testimonials from patients who have experienced significant improvements in their respiratory health. Many patients have reported long-term relief from chronic conditions like asthma and sinusitis, with fewer flare-ups and a reduced dependence on conventional medications. These success stories highlight the effectiveness of homeopathic treatment at Marutha Homeo and the positive impact it has had on the lives of many individuals.
Convenient Location and Welcoming Environment
Located in the heart of BTM Layout, Bangalore, Marutha Homeo is easily accessible for residents in the area. The clinic offers a welcoming and comfortable environment, where patients can feel at ease during their visits. The friendly staff and practitioners are dedicated to providing a positive and supportive experience for every patient.
Conclusion
For those in BTM Layout, Bangalore, seeking effective and natural treatment for respiratory disorders, Marutha Homeo is an excellent choice. With its holistic approach, customized treatment plans, and experienced practitioners, Marutha Homeo offers a path to better respiratory health and overall well-being. Whether you are dealing with asthma, allergies, or other respiratory conditions, the compassionate care at Marutha Homeo can help you breathe easier and live healthier.
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Anand Saggar | Expert Consultant in Clinical Genetics | IVF London
Discover expert genetic testing and treatment options with Consultant Clinical Geneticist Anand Saggar. Trust IVF London, the leading fertility clinic, for top-notch IVF treatments and personalized care.
#clinical geneticist#respiratory medicine#chronic kidney disorder#fertility london clinic#best fertility clinic london
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sometimes being disabled is just like "hey why do I feel so trash?? :/ it is but a mystery...." <- can't breathe
#extanttalks#actually disabled#disabled#disability#asthma#and my other various Respiratory Disorders that i dont feel like remembering the sciency names for#my lungs are FUCKED#this post was brought to you by the Shitty Lungs Committee#it is also brought to you by. i am stupid.
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I. Polycythemia Diagnosis:
A. Clinical Assessment:
• The diagnostic process for polycythemia commences with a thorough examination of medical history and physical condition to detect signs indicative of erythrocytosis, assess potential risk factors (e.g., smoking habits, family history of thrombosis), and uncover underlying causes.
• Special attention should be given to symptoms of hyperviscosity syndrome (e.g., headaches, dizziness), skin manifestations (e.g., erythromelalgia), and signs of organ enlargement (e.g., splenomegaly, hepatomegaly).
B. Laboratory Tests:
• Laboratory investigations are crucial for diagnosing polycythemia and understanding its underlying mechanisms. Essential tests include a complete blood count (CBC) with differential, examination of peripheral blood smear, and measurement of serum erythropoietin levels.
• Additional tests, such as JAK2 mutation analysis, bone marrow biopsy, and molecular testing for other mutations associated with myeloproliferative neoplasms (e.g., CALR, MPL), may be necessary to confirm the diagnosis of PV and rule out alternative causes.
C. Imaging Techniques:
• Imaging methods like ultrasound, computed tomography (CT), or magnetic resonance imaging (MRI) may be used to evaluate organ enlargement (e.g., splenomegaly, hepatomegaly) and identify potential underlying factors for secondary polycythemia (e.g., renal tumors).
II. Polycythemia Treatment:
Management of polycythemia aims to alleviate symptoms, lower the risk of thrombotic complications, and prevent disease progression. Treatment approaches may vary depending on the underlying cause and severity, often involving a combination of strategies:
A. Phlebotomy (Venesection):
• Phlebotomy is the primary treatment for PV, involving the removal of excess blood to achieve target hematocrit levels (<45% in men, <42% in women).
• Regular phlebotomy sessions usually start at diagnosis and are adjusted based on individual response and disease activity.
B. Cytoreductive Therapy:
• Drugs like hydroxyurea, interferon-alpha, and ruxolitinib may be used in PV patients who do not respond to or cannot tolerate phlebotomy.
• These drugs work by suppressing abnormal hematopoietic proliferation and reducing the risk of blood clotting, with hydroxyurea being the most commonly used and studied cytoreductive drug in PV.
C. Antiplatelet Therapy:
• Aspirin and other antiplatelet drugs are often prescribed to PV patients with a history of blood clots or other high-risk factors to lower the risk of arterial thrombosis.
• Aspirin is usually started at low doses (e.g., 81 mg daily) and may be combined with cytoreductive therapy for better thromboprophylaxis.
D. Treating Underlying Conditions:
• Management of secondary polycythemia focuses on addressing the root cause to relieve hypoxia-induced erythropoiesis and prevent disease progression.
• Interventions may include oxygen therapy for patients with chronic respiratory problems, correction of hemoglobin disorders or other genetic issues, and surgical removal of erythropoietin-secreting tumors.
E. Lifestyle Changes:
• Lifestyle adjustments such as quitting smoking, maintaining a healthy weight, regular physical activity, and proper hydration are vital for improving clinical outcomes and reducing cardiovascular risks in polycythemia patients.
Doctors suggest undergoing regular health checkups for the early diagnosis and treatment of polycythemia. You can choose to undergo a regular full body health checkup at Jaslok Hospital Mumbai, which is one of India's best hospitals for the early detection and management of blood disorders.
#polycythemia#headache#dizziness#CBC#biopsy#splenomegaly#hepatomegaly#phlebotomy#cytoreductive therapy#hematopoietic proliferation#aspirin#antiplatelet therapy#hypoxia#respiratory problems#blood disorders#full body health checkup#regular health checkups
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#RespiratoryIllnesses such as #asthma, #bronchiectasis, #COPD, #ILD, #PVD and #lungcancer among patients who survived for 30 days after the #COVID19 diagnosis rise consistently together with those who had #covid reinfections, new study published in the clinical journal eClinicalMedicine.
#SARSCoV2 #RespiratorySystem
https://www.sciencedirect.com/science/article/pii/S2589537024000798
#covid 19#sars cov 2#Respiratory disorders#Respiratory infections#Respiratory illnesses#Asthma#COPD#ILD#PVD#Lung Cancer
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