#regional pain syndrome

[chronicallymistreated]

People only have so much patience for those of us with chronic illnesses, chronic pain, and or mental health difficulties.

At the beginning there is so much support (or at least more support) but when they realise you're not recovering as quickly as they'd like... you get avoided, isolated, told you're exaggerating, etc. They seldom think about how those of us with chronic issues feel. How overwhelming it is to deal with everything day in and day out. There is so much anxiety, depression, grief, etc when dealing with chronic issues regardless of what they are.

If you're even more isolated because people refuse to see how much you're struggling or you're not recovering "fast enough" for the people around you just know you're not alone! There are so many of us in the same boat too

[chiwosays]

shoutout to other disabled people with constant and debilitating pain, people whose pain can't fade into the background or be ignored throughout the day.

[flawedfables]

Oof me rn

[daisyprayers]

Ophelia is currently in the hospital for emergency surgery - a significant challenge for someone with CRPS, as surgery can trigger severe pain exacerbation. She will need support for post-surgery home care and a third round of ketamine treatments in NY once she's able to travel. Your generous support has been crucial in getting her this far, and we're deeply grateful. With funds severely depleted from previous treatments, we're reaching out for help once again. Can you help reassure her that we'll see her through this difficult time?

(written by my friend)

Please reblog if you can’t donate 🫶🏻

[badxwolf]

“None of us know for sure what’s out there. That’s why we keep looking. Keep the faith. Travel hopefully. The universe will surprise you constantly.” - The Doctor

I don’t talk about it very often on this blog but I have a rare neuropathic condition called Complex Regional Pain Syndrome. It causes me constant, debilitating full-body pain along with a host of other symptoms that affect every aspect of my life.

I got sick when I was 9 years old. I am 25 now and over the years my condition has deteriorated. I’ve developed several comorbidities which in combination have become life threatening.

In 2021 I was admitted to hospice. I was only able to make it through with the support of my friends who found new treatment options and set up a fundraiser for me. I’m beginning another round of treatment soon and with your help I will be able to afford the care I need during this lengthy recovery process.

These last few years have been the hardest of my life, but also the most hopeful. This disease has taken so much from me but I refuse to give up. I know I have a future, I just need help getting there.

You can learn more about my story here:

TV Interview // Radio Interview

You can help by donating, reblogging this post and sharing my fundraiser. Every bit helps!!!

🌟 LINK TO MY FUNDRAISER! 🌟

[crps-chronicpain-ptsd]

I AM CONSTANTLY IN PAIN. YES, CONSTANTLY.

EVERY SINGLE SECOND.

THE PAIN IS STILL THERE WHEN I'M SMILING

HE PAIN IS STILL THERE WHEN I DON'T TALK ABOUT IT.

WHEN I SAY "I'M FINE" | HAVE A VERY DIFFERENT

DEFINITION THAN YOU DO.

[littlekingaaron]

"please contact your provider"

they say the road to hell is paved with good intentions but your first glance at me is filled with assumptions when your diagnosis is three times the length of your name you start defining yourself by the scale of your pain package your symptoms in takeable pills your body exists in a battle of wills i use a guitar to help me describe the amplified pain that burns through my insides but guitars get to rest at the end of a song while i'll go on forever with a body all wrong

29 November 2024

[lalalychee]

the above images are a few of my paintings.

patreon.com/lalalychee

if you want to know how to help while i am very clearly struggling with some horrible things going on in my life, a direct way is by helping me to get out of this terrible job. if nothing else, at least i wouldnt be getting screamed at day in and day out.

patreon.com/lalalychee

if you prefer a one time deal, you can join for just a month. alternatively my venmo is @autumnnoire.

i dont know man. i can barely get out of bed anymore due to both my physical and mental state. i have CRPS and polyarthritis, extremely severe mental illness from being abused for over 26 years, etc... im really going through it.

[lunarreign24]

A message to all physically disabled people whether the government labels you so or not:

survive

[takemeawayintothatgoodnight]

Nothing like being disabled and bedridden on your birthday to learn that your friends dont actually give a shit

[rqvodka]

a few days ago I went to the rheumatologist and found out I DONT have Rheumatoid arthritis, but that I do have CRPS/complex regional pain syndrome.

CRPS is a chronic pain condition that mostly affects my knees and hips (and my Ehlers Danlos also doesn't help them), but it can really affect whatever limbs.

there are two types of CRPS: type 1 (also known as reflex sympathetic dystrophy) and type 2 (also known as causalgia). type 1 is the more common form and doesn't have a clear cause, while type 2 is caused by nerve damage.

one of my mom's friends also has CRPS and when I was diagnosed she was a little confused because his limbs swell up and mine don't. but not all CRPS havers experience this!!

symptoms of CRPS can vary from person to person, but common ones include:

- intense burning or aching pain in the affected limb

- swelling, redness, and warmth in the affected area

- hypersensitivity to touch or temperature changes

- changes in skin texture or color

- limited range of motion or stiffness in the affected limb

for me, personally, I don't experience the swelling, redness, or warmth symptoms that are common in CRPS. my main symptoms are the intense burning pain and hypersensitivity, as well as limited motion during intense flare ups.

okay that's all

[chronicallymistreated]

I find that it's so unnecessarily hard to explain that chronic illnesses and pain are... chronic. People seem to not understand the chronic part. Whilst I understand that some people recover, a lot of us never will and people seem unable to grasp that...

[xremus-is-deadx]

Happy CRPS awareness day by the way!!!

I don't talk about my disability on here because, I don't know, this is the nerdy fandom place, but I've been living with CRPS (complex regional pain syndrome) for 6 years now, and it's massively impacted my life. I'm a wheelchair user, have been for years now, and I'm only just finding my place in the world of acting again (I know, I have dreams, even I'm shocked)

Jokes aside though, the condition isn't very well known, and it's something I don't talk about much because I feel like I still need to hide it sometimes, but today is paint it orange day, so cheers to that 🤎

[flawedfables]

Felt bad that there weren't many custom designs on the portal in Animal Crossing for spoonies and disabled pride. So I made some myself! 🥹

[amplified-pain-culture-is]

AMPS culture is not being able to stand for more than 15 minuets without being in crazy pain

.

[daisyprayers]

I just posted a fundraiser update for those who are interested in seeing how my recovery is going (hint: it's going really really well)!

Link: https://gofund.me/f562d4f9