#powerchair user

[milkweedman]

Hm. Well, I definitely did more than 9 (didn't have a chance to count but my guess is 13) but wasn't too much pain this time. Might be because my setup was a little better--I had the fiber bag hanging off my joystick and the cards on the bumper of the work truck I was sitting next to, whereas last time there was nowhere except the ground to put any of that stuff. Less bending definitely helps everything. Also on a hell of a lot of painkillers today. I probably shouldn't be at work, but my rule is, if I'm able to get out of bed, brush my teeth, feed my sourdough starter, and sit in my powerchair, I go to work. If I can't do all of those in the hour and a half between waking up and leaving to catch the bus, I don't go. Today I could, altho. Barely. There's gotta be some kind of better set up for brushing your teeth when you're in a wheelchair :/ right now I either stand (oh god) or sit in my chair but get water and toothpaste fucking everywhere.

Aaanyway. I think I'm gonna bring my cards and some wool to work more often. Much less mess.

No stream tonight BTW, hopefully Saturday

[flowercrowncrip]

It’s really hard sometimes to get people to understand that using a powerchair can be utterly exhausting.

I get how it can be tempted to look at someone like me strapped into a reclined powerchair and think something along the lines of “if I had a chair like that, I’d basically just be sat there using no energy” but you really need to take into consideration the kinds of disabilities people have that make a fancy powerchair necessary.

They’re the kinds of conditions that make holding a joystick (or using alternative controls like sip and puff) hard work. The kinds of conditions where being shaken when going over pavements is completely exhausting. Where being seated at all is a battle even with extensive postural supports.

People will often see me with my friends who use manual chair and think that I’m basically doing nothing while they’re getting a work out. They don’t see that the next day I’ll need to rest in bed while my manual chair using friend will be at their 9-5 job without too much trouble.

Obviously everyone is different – I have seen at least one popular TikToker say that they use their electric wheelchair on longer days because it “doesn’t take any energy”, and there will of course be many manual chair users who need longer to recover from a day out than my friend does. My point is simply that you cannot tell how much someone is exerting themselves just by looking at whether they’re using a powerchair or a manual chair.

[gayaest]

🌱🍎 UPDATE: Yesterday, I was assessed for a Powerchair. Because of the extremely fast progression of my disability with no treatment from specialist doctors; I haven’t been able to use my manual wheelchair more than a transport chair where someone else is pushing me, so I had no independence at all.

I have been housebound for 6 almost 7 years — and I’ve been bed bound the same. I am excited to start this new section of my journey of autonomy.

The Type of Powerchair is called a Quantum J4E, I am hoping that my insurance will cover all 3 add-ons including a lift-kit, positional controls, and leg lifting. I cannot due anything myself, including cooking, cleaning, bathing, bathroom, dressing, etc. I am also hoping to get an Accessible Vehicle with my partner to be able to leave the neighborhood with the powerchair.

Despite those in my family that refuse to acknowledge my Disability and severity, I am going to live life as best as I can… Being Severely Disabled.

Anyway! After that long caption, here’s a mock-up / rough draft of my Vtuber’s updated chair, since the original was a manual! SPROUT gets a fruit mobile!

[vixdesl]

"I run better than the government" sticker/pin designs

Edit: Crutch version too!

[cosmiccripple]

powerchair users i need your help!!

all the advice for new wheelchair users is for manual users, and i've found absolutely no advice or people showcasing their accessories and fun gadgets to personalise their powerchairs

i got my first powerchair today, a KWK D09, and i'm looking for as much advice as i can soak in, and if you have personalised your chair could you tell me about it?

plain txt: 'powerchair users i need your help!!' written in bigger lettering, green colouring, and in bold

[nightinghoul]

I unlocked yet another reaction from people when in my powerchair in public. So far, I have witnessed fear, annoyance, and unnecessary over-niceness.

Yesterday, my chair and I appeared to inspire unbridled delight. This can only mean one thing: I'm a cute little old disabled lady, like my mom.

I should be offended, but I am amused on a most deviant level. Like a butterfly bursting from its crystalis in a violent explosion (as butterflies do), I have entered a new life stage. Now is the time to get a job distracting guards for hiests.

"Oh guards, can you help me? I dropped two-thousand pennies, and they are very important to me! Pay no attention to those young able-bodied people in black."

[giantkillerjack]

Hey, y'all! Can someone please please tell me about the process for finding the right motorized wheelchair??

I've needed an electric wheelchair for years, and I've finally gotten the right prescription and the wheelchair-accessible housing I need.

But now I need to pick a wheelchair, and I STILL don't even know where to start.

The main issue is that I have no way of trying out different models of chair, and so I have no way of knowing what will and won't hurt my back - and so I ALSO have no way of knowing if I need a custom wheelchair or not.

I live in the United States in a major metropolitan area, and my insurance will ONLY pay for one chair, so as far as I know, it needs to be the right one on the first try. (Unless there's a trial-and-return policy? I have no idea. I have Medicare and Medicaid.)

I feel like there must be some kind of specialist who can help me find the right chair, but no healthcare provider I've seen has had that kind of expertise.

Where do I find these people? What do I do?? How can I find a place that allows me to try out different chairs?? Literally any advice is appreciated. Thank you in advance. <3

[crippleremus]

URGENT HELP NEEDED!

I have until December 31st 2024 to pay my remaining rent balance or my (also disabled) fiancé, cat, and I will be evicted.

please, if you’re feeling any kind of holiday spirit or kindness, consider adding to this fund. every single dollar counts.

once i get this remaining balance out of the way, i’m on track to pay my rent in full every month with help from a raise at my job as well as student aid, I just have to get over this last hurdle.

help a cripple out?

(ignore the deadname pls)

[normal-with-adhd-is-a-joke]

I think perhaps I'm not taking my powerchair to my doctor's appointment tomorrow unless my mom shovels the ramp

[briarpatch-kids]

I don't know who needs to hear this, but two layers of minwax polycrylic topcoat seems to keeping my chair from scratching up doorways. Makes them look glossy and nice too. Put it on the doorway, not the chair.

[flowercrowncrip]

Ableist things non wheelchair using disabled people/ occasional wheelchair users have said to or about me as a full time powerchair user:

Not being able to walk makes you privileged over other disabled people

I’d kill myself if I couldn’t wipe my own arse

Yeah but you’re not like regular disabled so you shouldn’t expect to be accommodated

You’re so lucky to have carers with you all the time

At least I’m not like him

Why don’t you use a folding powerchair instead? Then you wouldn’t look so… disabled (answer: because I can’t sit up or breathe properly in chairs that aren’t supportive enough).

Of course they talk to you like you’re five years old… you look well… y’know

You shouldn’t be taking over people work chronic pain just because you can’t walk (said to me while I was talking about my own chronic pain)

*talks to my carer about me*

*refuses to acknowledge my presence in a group*

I just want you to know that I’d support assisted suicide for people like you.

Again, because it’s important, absolutely all of these are from disabled people.

[gayaest]

[OC] Farrokh, Iranian, He/They, Trans masculine/man, Gay, c8 quadriplegic uses a powerchair 🍏🧸🪴

Cervical Instability, Tethered-Cord Syndrome ⭐️ Description in Alt-Text.

[vixdesl]

Hi !! :3 I'm js here to suggest smth: do I think you can make the "I run better than the government sticker" 's bottom text part a diff color? Can't rlly see it. ty !!

– 🍪

Here! hope these are easier to read :3/pos

Edit: Crutch version too!

[dionysus429]

POV: you have to charge your legs /j

(It's my powerchair battery)

[crippleremus]

nothing more frustrating and embarrassing than almost soiling yourself in public because you’re have a restroom emergency and someone (seemingly able-bodied) is taking their sweet time in the “big stall” talking on the phone

PSA AS IF IT WASN’T OBVIOUS:

THE “BIG STALL” IS THE ONLY PLACE I CAN RELIEVE MYSELF IN PUBLIC

IF YOU USE THE ACCESSIBLE STALL WHEN YOU DON’T ABSOLUTELY HAVE TO, YOU ARE TAKING AWAY ACCESS FROM SOMEONE ELSE

I DON’T CARE ABOUT YOUR COMFORT, YOU CAN USE ANY OTHER STALL, THERE IS ONLY ONE I CAN USE

i’m feeling so dehumanized right now

[normal-with-adhd-is-a-joke]

I always think I'm going to have an amazing answer when a kid asks what happened to me when I'm out in my wheelchair and then a kid actually asks and I'm completely caught off guard and I just go "I got covid and now I have long covid 😐" and speed away.