#neurological lyme
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Would appreciate pray for a decision I need to make…it’s not life altering but it involves planning ahead AND spending money.
Both of which are incredibly hard with a chronic illness!
#I don’t know what to do#chronic illness problems#anxiety#prayer request#neurological lyme disease#neurological lyme#prayer requests
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So as of Friday’s report I have technically tested positive for Lyme disease.
And I do technically experience occasional shooting nerve pains, and very occasional unexplained joint pain that comes and goes, and occasional headaches with very faintly stiff neck when they’re of a tension sort.
But. Like.
Look.
I know how that list sounds. But at the same time I am looking at the prevalence of false positives for this test, and the mildness of my own symptoms, and I am thinking that this is probably not the problem??
Anyway. The effort to diagnose my twitches/jolts continues, without much luck and with some side-tracks. 😂
#among other things sure I did Probably have Lyme disease once as a kid but that was treated#and OF LATE I have not had any incidents that would point towards a new infection#hmmngn#continued excitement in the world of doctors shrugging at me and ordering an array of blood tests#because their attempts to refer me to neurology because they know full well it’s not their specialty never seem to go anywhere ¯\_(ツ)_/¯#I might go along with it but I will also be sighing heavily if I get stuck on a round of antibiotics during all of this#it’s going to feel very much like the time I went in with palpatations and dizzy spells and asked ‘do you think it’s my meds?’#and got stuck on a heart monitor for a month before — yep — just reducing my med dose#all of that said I AM very grateful to have doctors that are taking me seriously rather than going ‘eh it’s probably psychosomatic’#life flails#health flails#my stuff
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I’ve been using my CPAP a lot more and it’s helping me sleep better. This is a nasal mask, which I’m using because my nose is sore from the other mask. I have 90 stops of breathing per hour and actually have to use my CPAP a lot. Sleep apnea can be very dangerous if you have many apneas (aka you stop breathing). From headaches to strokes and even death. It’s no joke. But I do look funny!
#sleep apnea#cpap machine#actually schizophrenic#schizophrenic spectrum#schizoaffective#schizoaffective disorder#conversion disorder#functional neurological disorder#neuro lyme#lyme disease#fnd awareness#fnd#anxiey#generalized anxiety disorder
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#no brain tumor#no cancer#not sure about lyme yet but i doubt it#its just an escalation of the sleep stuff#at the 1.5 year mark and its gotten to THIS#i cant do it anymore. but i have to. so i will. and thats really all there is to it#....i cant color anymore.#i used to be especially good with color blends#patterns and such#the thing i made last night... was like something i wouldve made in grade school#its been so long since i tried but i didnt think id lose the ability to... color. of all things#now im too afraid to pick up one of my instruments again. even if id only have the energy for one song...#what if i cant play anymore?#hell i already had to quit playing minecraft because id just. get lost running in circles around the map. not remembering what i was doing#same thing happened with tears of the kingdom after the hyperfixation wore off#back to not being able to tell dreams from reality and that is really fucking bad when all your dreams are nightmares#for a bit i was able to whittle charms to hang over the bed. but if im not safe to drive i definityl shouldnt be handling a knife#not even to sharpen the colored pencils i cant use...#at least in this hellsite i can talk to myself as much as you#next up is the neurology department. and some harassing of other sleep labs#wish me luck#id say delete later but i wont
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MORE complaining sincr i have a headache and my whimsy levels are critically low
#have to sleep on the couch on vacation#my dad just fucking found out he has lyme disease#hes on antibiotics and you know hopefully no neurological symptoms will manifest but who knows!#had to drive 7 hours to go on a ‘vacation’ to hang out with my cousins#who are nice and all but . ugh. not worth it#and the air quality is sooo much worse here rhan where i live so we cqnt even. do any of the fun outdoor activities available#i dont want to be on vacation i want to slee for five hundred years
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i am once again remembering that i had fucking lyme disease, that is just so fucking funny
#literally had brain damage from having untreated lyme disease for years#and a course of antibiotics completely cured it#brains are so fucking cool#but also i'm reading a little bit about it rn and i feel validated#bc like. i had a legit neurological disability at that time i wasn't just being stupid#personal
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Dylan Rothbein’s experience with Lyme disease, and physical disability including seizures. Help Dylan by buying her music on Bandcamp here! https://dylanrothbein.bandcamp.com/album/even-though-were-different
#Lyme disease#seizures#Epilepsy#blindness#physical disability#wheelchair#Israel#internalized ableism#neurological disorder#Aspergers#gender dysphoria#paraplegia
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@soundlessdragon I deeply appreciate you saw this and thought of me.
#Not a laughing matter indeed#they’re the absolute worst 😭😭😭#the only appropriate reaction#no one should be forced#to share outside with them 😭😭😭#ticks#lyme disease#neurological Lyme disease#bartonella#babesia#Rocky Mountain spotted fever#etc….#causes
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Comprehensive Healing and Wellness at Soma Health Center LLC
Introduction Soma Health Center LLC is a leading healthcare facility specializing in advanced treatments and therapies for chronic illnesses, with a focus on the Neurological Integration System (NIS) and comprehensive Lyme treatment in Baltimore. Our dedicated team is committed to providing personalized care for individuals struggling with complex health issues. As a trusted Lyme specialist in Maryland, we offer innovative solutions to address Lyme disease and other neurological challenges, ensuring our patients receive the highest level of care. Our mission is to help you achieve optimal health and well-being through our holistic and integrative approach to healing.
Understanding the Neurological Integration System (NIS) The Neurological Integration System (NIS) is a revolutionary healthcare approach that addresses the underlying causes of health issues by focusing on the body's neurological pathways. Developed to identify and correct imbalances in the nervous system, NIS helps the body regain its natural ability to heal and function properly. At Soma Health Center LLC, we use NIS to assess and treat various conditions, from chronic pain and autoimmune disorders to hormonal imbalances and stress-related issues. By targeting the root cause of these conditions, we aim to restore optimal health and well-being.
How NIS Works The Neurological Integration System operates on the principle that the brain controls and coordinates all functions of the body. When there is a disruption in the communication between the brain and the body, it can lead to various health issues. NIS involves assessing the body's neurological signals and identifying areas where these signals are compromised. Our practitioners use gentle, non-invasive techniques to correct these imbalances, allowing the body to restore its natural healing processes. This approach not only addresses the symptoms but also targets the source of the problem, resulting in long-lasting health improvements.
Benefits of NIS at Soma Health Center LLC By incorporating the Neurological Integration System into our treatment protocols, Soma Health Center LLC offers numerous benefits to our patients:
Holistic Healing: NIS addresses the entire body rather than focusing on individual symptoms, promoting overall wellness.
Non-Invasive Treatment: The NIS approach is gentle and does not involve medication or surgery, making it a safe option for individuals of all ages.
Personalized Care: Each treatment is tailored to the patient's unique needs, ensuring the most effective healing process.
Long-Term Results: By correcting the underlying neurological imbalances, NIS provides sustainable improvements in health and well-being.
Lyme Treatment in Baltimore – A Comprehensive Approach Lyme disease is a complex and often debilitating illness caused by the bacterium Borrelia burgdorferi, transmitted through tick bites. If left untreated, Lyme disease can lead to severe health complications, affecting the joints, heart, and nervous system. At Soma Health Center LLC, we specialize in providing effective Lyme treatment in Baltimore, using a combination of advanced therapies and holistic approaches to help patients recover and regain their quality of life.
Recognizing the Symptoms of Lyme Disease The early symptoms of Lyme disease can vary, making it difficult to diagnose. Common symptoms include fatigue, joint pain, fever, headaches, and a characteristic "bullseye" rash. In more advanced stages, Lyme disease can cause neurological problems, heart palpitations, and severe joint inflammation. Early detection and treatment are crucial for preventing the disease from progressing and causing long-term damage. If you suspect you have been exposed to Lyme disease, seeking help from a qualified Lyme specialist in Maryland is essential for effective treatment.
Our Lyme Treatment Protocol At Soma Health Center LLC, we take a comprehensive and individualized approach to Lyme treatment in Baltimore. Our treatment protocol includes:
Accurate Diagnosis: We begin with a thorough evaluation and diagnostic testing to confirm the presence of Lyme disease and assess the extent of the infection.
Targeted Antibiotic Therapy: For early-stage Lyme disease, antibiotic therapy is often the most effective treatment. We tailor the dosage and duration of antibiotic use based on each patient's needs.
Nutritional Support: Proper nutrition is essential for boosting the immune system and aiding the body's recovery. We provide dietary recommendations and supplements to support healing.
Neurological Integration System (NIS) Therapy: NIS plays a vital role in our Lyme treatment approach by helping to restore the body's ability to fight the infection and repair damaged tissues.
Detoxification: Lyme disease can cause the accumulation of toxins in the body. We incorporate detoxification protocols to help eliminate these harmful substances, reducing symptoms and supporting recovery.
Why Choose Soma Health Center LLC as Your Lyme Specialist in Maryland? As a leading Lyme specialist in Maryland, Soma Health Center LLC stands out for our commitment to delivering personalized and effective treatment plans. Our team of experienced practitioners takes the time to understand each patient's unique condition, ensuring that every aspect of their health is addressed. We combine cutting-edge medical treatments with holistic therapies to provide a comprehensive solution for Lyme disease, helping patients achieve lasting relief from their symptoms.
The Importance of Early Intervention One of the key factors in successfully treating Lyme disease is early intervention. The sooner treatment begins, the better the chances of preventing the disease from spreading and causing more severe health complications. At Soma Health Center LLC, we encourage patients to seek immediate medical attention if they suspect they have been exposed to tick bites or exhibit symptoms of Lyme disease. Our Lyme treatment in Baltimore is designed to provide fast and effective relief, ensuring that patients receive the care they need without delay.
The Role of NIS in Treating Chronic Lyme Disease Chronic Lyme disease can be challenging to manage, as the symptoms may persist even after standard antibiotic treatment. In such cases, the Neurological Integration System offers a unique advantage by addressing the neurological aspects of the disease. By using NIS, our practitioners can help re-establish proper communication between the brain and body, enabling the immune system to function more effectively. This holistic approach significantly improves outcomes for patients dealing with chronic Lyme disease, reducing pain, fatigue, and other debilitating symptoms.
Supporting Your Journey to Health and Wellness At Soma Health Center LLC, we believe in empowering our patients to take control of their health and well-being. Our holistic approach ensures that every aspect of your health is addressed, from physical symptoms to emotional well-being. We provide ongoing support and education, helping patients understand their condition and the steps they can take to achieve optimal health. As a trusted Lyme specialist in Maryland, we are dedicated to guiding you on your journey to recovery.
Integrating NIS with Other Treatments One of the strengths of Soma Health Center LLC is our ability to integrate the Neurological Integration System with other treatment modalities. We recognize that every patient is unique, and a one-size-fits-all approach does not work when it comes to healthcare. By combining NIS with conventional treatments, nutritional support, and lifestyle modifications, we create a comprehensive and individualized treatment plan that addresses the root cause of your health issues.
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What Is Lyme Disease?
Lyme disease is an infectious disease that is caused by bacteria of the Borrelia type. The most common symptom of Lyme disease is a skin rash called erythema migrans. Other symptoms include fever, headache, and fatigue. Lyme disease can be treated with antibiotics. Early diagnosis and treatment are important to prevent the disease from progressing and causing more serious problems.
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#lyme disease#Lyme disease is real#Lyme#co infections#bartonella#babesia#rocky mountain spotted fever#etc…#neurological Lyme disease#neurological lyme#causes#christopher meloni#Youtube
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Never was underrrated for me because my chronically ill self could have wept all the good tears the first time I saw this moment 😭😭😭😍
dousy appreciation week 2023 - day three: underrated moment
#it means so much to me#daisy johnson#dousy#daniel sousa#THEM THEM THEM!#agents of s.h.i.e.l.d.#agents of shield#chloe bennet#enver gjokaj#aos#the man out of time and quake#neurological lyme things#Lyme disease things#Lyme disease#neurological lyme disease
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Researchers have identified a promising new approach to treating persistent neurological symptoms associated with Lyme disease. The method offers hope to patients who suffer from long-term effects of the bacterial infection, even after antibiotic treatment. Lyme disease, caused by the bacterium Borrelia burgdorferi and transmitted through tick bites, can lead to a range of symptoms, including those affecting the central and peripheral nervous systems. While antibiotics can effectively clear the infection in most cases, a subset of patients continues to experience symptoms such as memory loss, fatigue, and pain—a condition often referred to as post-treatment Lyme disease syndrome. Principal investigator Geetha Parthasarathy, an assistant professor of microbiology and immunology at the Tulane National Primate Research Center, discovered that fibroblast growth factor receptor inhibitors, a type of drug previously studied in the context of cancer, can significantly reduce inflammation and cell death in brain and nerve tissue samples infected with Borrelia burgdorferi.
Continue Reading.
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Living with a degenerative disease is genuinely the most frustrsting thing ive ever experienced.
I'm unsure of the cause at this point, but I'm experiencing a loss of fine motor skills. I'm already a very shaky person as is, but it hasn't affected my daily life. There would be problems but only very occasionally. It was just something about me that was a strange little quirk. The only super noticeably difference is that my handwriting went to absolute shit.
In the last two months, ive experienced a very drastic change in my fine motor abilities. Overall it's very hard to type and make my cross stitch patterns. I can't put on clasp necklaces it's hard to put on earrings, in my art I can never have a clean line because I'm shaking every time I try and it's really hard to erase just what I want.
Sometimes it gets really bad, where I really can't do anything fine motor related properly. I make typos that don't look enough like the real word to be auto corrected, that's happening while I'm typing this. It's hard to go back and correct the typos because I can't press the correct place on my screen to delete or add what I need. Swipe text has been really helpful with this but even that for some words doesn't really work. That's what I'm using now. Sometimes I can get a necklace on, but today I was trying and my fingers were shaking so hard that there was absolutely no hope in it. I kept trying and it just got so frustrating. I manged to get my earrings in but it was hard. I can never write with good handwriting. Bracing myself in things they can feel my shaking and twitching.
Its just so frustrating to watch all of the things I could do slowly get worse and worse. I want to draw, I want to do my fiber arts, I want to be able to choose my fucking style how I want it, I want to be able to tie my shoes. And it's so much worse knowing that I was able to and now I can't.
Honestly it's even worse knowing I'm not sure what's wrong. I have chronic lyme but that's not considered real, I was also diagnosed with mild tourrettes. Those both can have neurological symptoms. I've considered asking to be tested for multiple sclerosis and honestly I almost hope I have it because I want a "real" diagnosis.
I don't know. It's just so frustrating watching my body deteriorate.
#tw vent#mild vent#disability#chronic pain#chronic illness#physical disability#dynamic disability#disabled artist#chronic lyme#lyme disease#chronic disability#chronic fatigue#fine motor skills
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At Yale’s Long COVID Clinic, Lisa Sanders Is Trying It All
excerpts:
Since the beginning of the pandemic, she — together with colleagues in the pulmonary and neurology departments — had been seeing long-COVID patients at Yale but often in an ad hoc way. Some of the doctors had become so flooded with people seeking help that they were having difficulty scheduling and treating their regular patients who came to them for everything else ...
Long-COVID patients, generally speaking, have been very miserable for a very long time, and because the illness attacks their brains, their hearts, their lungs, their guts, their joints — sometimes simultaneously, sometimes intermittently, and sometimes in a chain reaction — they bounce from specialist to specialist, none of whom has the bandwidth to hear their whole frustrating ordeal together with the expertise to address all of their complaints: the nonspecific pain, the perpetual exhaustion, the bewildering test results, the one-off treatments. “These are people who have not been able to tell their story to anybody but their spouse and their mom — for years sometimes,” Sanders tells me. “And they are, in some ways, every doctor’s worst nightmare.”
...
Long COVID has been pushing the limits of hospital systems everywhere, not just at Yale. As Americans emerged from the most acute phase of the pandemic, as mask and vaccine mandates lifted and life returned to a semblance of normal for the people who had contracted COVID and recovered, primary-care physicians started to say, “‘I’m not interested in long COVID,’ or ‘I don’t treat long COVID. Let me refer you to a specialist,’” said David Putrino, who runs the new chronic-illness recovery clinic at Mount Sinai. For their part, Putrino added, the specialists were saying, “This is not what my practice is. This is not an emergency anymore.” Patients all over the country reported monthslong waiting times for appointments at long-COVID clinics. All the while, scientists and pundits heaped skepticism on the very notion of long COVID, arguing that infection made people stronger, that new variants posed no threats, that the danger of long COVID was overblown — implying that what patients were suffering from was all in their heads.
Forgotten in this debate are the 65 million people worldwide for whom the pandemic remains a torturous everyday reality.
...
In the late 1990s, patients with a galaxy of unexplained chronic symptoms — including fatigue, sore throat, joint pain, insomnia, dizziness, brain fog, and depression — began to gather into activist and identity groups, calling themselves sufferers of “chronic Lyme.” They had something, they argued, related to a previous infection from the bite of a deer tick, but their doctors were dismissing them as whiners and neurotics. This was in an era when the medical Establishment was rolling its collective eyes at patients who were querying whether diagnoses of “chronic fatigue syndrome” or “fibromyalgia” might fit their symptoms — ones that looked very much like those linked to chronic Lyme.
Sanders joined the chorus of debunkers. These patients had real symptoms and real ailments, she asserted in Every Patient Tells a Story. But the collection of symptoms was “hopelessly broad and overinclusive,” she wrote. “These are some of the most common symptoms of patients presenting to a primary care office.” She concluded that chronic Lyme was a “phantom diagnosis.”
“I completely regret that chapter,” she says now. “I would like to rewrite it.” Sanders explains that she was reacting to the doctors who were preying on suffering people by prescribing interminable courses of antibiotics that were not helping them: “But I completely misunderstood it. The patients were making the connection between their symptoms and Lyme disease.”
...
“We’re not paying enough attention,” she said. “We’re not. Doctors are still dismissing this disease as something that’s in your head. I have seen the exchanges on Twitter: ‘Long COVID is exaggerated, not real.’” Women are diagnosed with long COVID at roughly twice the rate of men, Iwasaki pointed out: “I think if the situation was reversed, we’d pay even more attention to this disease.” - Akiko Iwasaki, immunologist at Yale [also known for her work nasal vaccine & long covid research]
...
But even Sanders was not prepared for how little doctors and scientists know about long COVID. There is no blood test. Health officials can’t even agree on how to define it. The CDC describes long COVID as “signs, symptoms, and conditions that continue or develop after acute COVID-19 infection” — or, in Sanders’s paraphrase, “You got COVID and then something bad happened.” Under the CDC definition, patients have long COVID if they are symptomatic at least four weeks after initial infection. The WHO defines it similarly but with a different time frame: occurring or lasting at least three months after initial infection. This discrepancy matters to Sanders because, as much as possible, she wants to identify patients who have long COVID and not those who may take a little longer to recover from their original illness. In her clinic, she uses the WHO definition.
...
Sanders, more than ever before, is dependent on the patient’s account — on detailed specifics — to establish her diagnosis. It’s a process of elimination and deduction. So she has “learned just to shut the fuck up and listen.”
#covid#long covid#article#medicine#ny mag#yale#re: 'I don't know anyone with long covid'#re: 'JUST get treatment'#lyme#me/cfs#mecfs#fibromyalgia#akiko iwasaki#womens health
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Impossible so I’ll just do current ships screaming loudly at me or that I’ll always ship. And I won’t say half of what I want to say about their glorious-ness but this was fun! 😍 Thanks @chipmunkfanno1love and I nominate @what-breaks-my-heart 💛
1. Love Between Fairy And Devil.
Orchid and Dongfang Qingcang.
Just finished this drama and obsessed with them! 😍
2. Once Upon A Time.
Emma Swan and Killian Jones.
One of the best romances American television has ever give us…
3. Healer.
One of the most glorious adorable ships and drama’s ever! Timeless and perfect.
4. The Vampire Diaries.
Bonnie Bennett and Enzo St. John.
A surprise ship later on in the shows airing that took over my soul and destroyed me.
5. The Lunar Chronicles.
Princess Winter and Jacin.
“He is the only thing that is real."
I LOVED these from the beginning because of everything. I’m also a sucker for a guard and princess type trope…but even without that these two are glorious and steadfast and beautiful.
And knowing now that I had Neurological Lyme when I first read them makes even more sense why Princess Winter resonated with me so deeply and gave/gives me hope.
“It has to be this way. I will accept this side effect. I will accept any amount of monsters my mind wants to give me, but I will not become a monster myself.”
Princess Winter Hayle Blackburn.
“The wounds would become her armor, and a constant reminder of her victory. She might be broken. She might be crazy. But she would not be defeated.” Princess Winter Hayle Blackburn.
Bonus: Because I CAN’T leave them out.
Crash Landing On You.
Yoon Se Ri and Ry Jeong Hyuk.
One of the best couples ever and best drama’s ever. I ADORE them. I will never be over them and this drama.
Favourite Ship Tag Game
Since tag games are so popular around here, I thought I’d give it a go and make my own. :D
Choose 4 romantic ships (fictional couples and/or fictional characters you *wish* were couples) you love from any fictional source whether it be books, movies, TV shows, mobile/video games, etc. Please also reference the fictional source they come from. The list doesn’t have to be in any particular order.
Give your reasons why you love this couple and/or why you think they’d *make* a great couple. If you can, please include a picture or GIF of the couple.
Tag 5 of your followers to share this game with. You may choose to tag more or less if you wish, but I do recommend choosing 5. No pressure, just please share this game with others for the sake of spreading the word.
Please be respectful of others and there opinions. No abuse please. :( Also, have fun. :D
*Warning*: Story spoilers ahead.
Keep reading
#ship#ship tag#I have so many more feelings#but I have anxiety and brain fog#so this will have to do#such fun#kdrama#cdrama#American Telly#book#books#literature#my rambles#neurological lyme disease
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