#neurological lyme

[psalm40speakstome]

Would appreciate pray for a decision I need to make…it’s not life altering but it involves planning ahead AND spending money.

Both of which are incredibly hard with a chronic illness!

[grumpyoldsnake]

So as of Friday’s report I have technically tested positive for Lyme disease.

And I do technically experience occasional shooting nerve pains, and very occasional unexplained joint pain that comes and goes, and occasional headaches with very faintly stiff neck when they’re of a tension sort.

But. Like.

Look.

I know how that list sounds. But at the same time I am looking at the prevalence of false positives for this test, and the mildness of my own symptoms, and I am thinking that this is probably not the problem??

Anyway. The effort to diagnose my twitches/jolts continues, without much luck and with some side-tracks. 😂

[nexttothelamp]

...

[freakingweirdo]

MORE complaining sincr i have a headache and my whimsy levels are critically low

[gardenstateofmind]

i am once again remembering that i had fucking lyme disease, that is just so fucking funny

[psalm40speakstome]

@soundlessdragon I deeply appreciate you saw this and thought of me.

[jamesvince9898]

Comprehensive Healing and Wellness at Soma Health Center LLC

Introduction Soma Health Center LLC is a leading healthcare facility specializing in advanced treatments and therapies for chronic illnesses, with a focus on the Neurological Integration System (NIS) and comprehensive Lyme treatment in Baltimore. Our dedicated team is committed to providing personalized care for individuals struggling with complex health issues. As a trusted Lyme specialist in Maryland, we offer innovative solutions to address Lyme disease and other neurological challenges, ensuring our patients receive the highest level of care. Our mission is to help you achieve optimal health and well-being through our holistic and integrative approach to healing.

Understanding the Neurological Integration System (NIS) The Neurological Integration System (NIS) is a revolutionary healthcare approach that addresses the underlying causes of health issues by focusing on the body's neurological pathways. Developed to identify and correct imbalances in the nervous system, NIS helps the body regain its natural ability to heal and function properly. At Soma Health Center LLC, we use NIS to assess and treat various conditions, from chronic pain and autoimmune disorders to hormonal imbalances and stress-related issues. By targeting the root cause of these conditions, we aim to restore optimal health and well-being.

How NIS Works The Neurological Integration System operates on the principle that the brain controls and coordinates all functions of the body. When there is a disruption in the communication between the brain and the body, it can lead to various health issues. NIS involves assessing the body's neurological signals and identifying areas where these signals are compromised. Our practitioners use gentle, non-invasive techniques to correct these imbalances, allowing the body to restore its natural healing processes. This approach not only addresses the symptoms but also targets the source of the problem, resulting in long-lasting health improvements.

Benefits of NIS at Soma Health Center LLC By incorporating the Neurological Integration System into our treatment protocols, Soma Health Center LLC offers numerous benefits to our patients:

Holistic Healing: NIS addresses the entire body rather than focusing on individual symptoms, promoting overall wellness.

Non-Invasive Treatment: The NIS approach is gentle and does not involve medication or surgery, making it a safe option for individuals of all ages.

Personalized Care: Each treatment is tailored to the patient's unique needs, ensuring the most effective healing process.

Long-Term Results: By correcting the underlying neurological imbalances, NIS provides sustainable improvements in health and well-being.

Lyme Treatment in Baltimore – A Comprehensive Approach Lyme disease is a complex and often debilitating illness caused by the bacterium Borrelia burgdorferi, transmitted through tick bites. If left untreated, Lyme disease can lead to severe health complications, affecting the joints, heart, and nervous system. At Soma Health Center LLC, we specialize in providing effective Lyme treatment in Baltimore, using a combination of advanced therapies and holistic approaches to help patients recover and regain their quality of life.

Recognizing the Symptoms of Lyme Disease The early symptoms of Lyme disease can vary, making it difficult to diagnose. Common symptoms include fatigue, joint pain, fever, headaches, and a characteristic "bullseye" rash. In more advanced stages, Lyme disease can cause neurological problems, heart palpitations, and severe joint inflammation. Early detection and treatment are crucial for preventing the disease from progressing and causing long-term damage. If you suspect you have been exposed to Lyme disease, seeking help from a qualified Lyme specialist in Maryland is essential for effective treatment.

Our Lyme Treatment Protocol At Soma Health Center LLC, we take a comprehensive and individualized approach to Lyme treatment in Baltimore. Our treatment protocol includes:

Accurate Diagnosis: We begin with a thorough evaluation and diagnostic testing to confirm the presence of Lyme disease and assess the extent of the infection.

Targeted Antibiotic Therapy: For early-stage Lyme disease, antibiotic therapy is often the most effective treatment. We tailor the dosage and duration of antibiotic use based on each patient's needs.

Nutritional Support: Proper nutrition is essential for boosting the immune system and aiding the body's recovery. We provide dietary recommendations and supplements to support healing.

Neurological Integration System (NIS) Therapy: NIS plays a vital role in our Lyme treatment approach by helping to restore the body's ability to fight the infection and repair damaged tissues.

Detoxification: Lyme disease can cause the accumulation of toxins in the body. We incorporate detoxification protocols to help eliminate these harmful substances, reducing symptoms and supporting recovery.

Why Choose Soma Health Center LLC as Your Lyme Specialist in Maryland? As a leading Lyme specialist in Maryland, Soma Health Center LLC stands out for our commitment to delivering personalized and effective treatment plans. Our team of experienced practitioners takes the time to understand each patient's unique condition, ensuring that every aspect of their health is addressed. We combine cutting-edge medical treatments with holistic therapies to provide a comprehensive solution for Lyme disease, helping patients achieve lasting relief from their symptoms.

The Importance of Early Intervention One of the key factors in successfully treating Lyme disease is early intervention. The sooner treatment begins, the better the chances of preventing the disease from spreading and causing more severe health complications. At Soma Health Center LLC, we encourage patients to seek immediate medical attention if they suspect they have been exposed to tick bites or exhibit symptoms of Lyme disease. Our Lyme treatment in Baltimore is designed to provide fast and effective relief, ensuring that patients receive the care they need without delay.

The Role of NIS in Treating Chronic Lyme Disease Chronic Lyme disease can be challenging to manage, as the symptoms may persist even after standard antibiotic treatment. In such cases, the Neurological Integration System offers a unique advantage by addressing the neurological aspects of the disease. By using NIS, our practitioners can help re-establish proper communication between the brain and body, enabling the immune system to function more effectively. This holistic approach significantly improves outcomes for patients dealing with chronic Lyme disease, reducing pain, fatigue, and other debilitating symptoms.

Supporting Your Journey to Health and Wellness At Soma Health Center LLC, we believe in empowering our patients to take control of their health and well-being. Our holistic approach ensures that every aspect of your health is addressed, from physical symptoms to emotional well-being. We provide ongoing support and education, helping patients understand their condition and the steps they can take to achieve optimal health. As a trusted Lyme specialist in Maryland, we are dedicated to guiding you on your journey to recovery.

Integrating NIS with Other Treatments One of the strengths of Soma Health Center LLC is our ability to integrate the Neurological Integration System with other treatment modalities. We recognize that every patient is unique, and a one-size-fits-all approach does not work when it comes to healthcare. By combining NIS with conventional treatments, nutritional support, and lifestyle modifications, we create a comprehensive and individualized treatment plan that addresses the root cause of your health issues.

[harmeet-saggi]

What Is Lyme Disease?

Lyme disease is an infectious disease that is caused by bacteria of the Borrelia type. The most common symptom of Lyme disease is a skin rash called erythema migrans. Other symptoms include fever, headache, and fatigue. Lyme disease can be treated with antibiotics. Early diagnosis and treatment are important to prevent the disease from progressing and causing more serious problems.

[joysofbraindamage]

Some people have FND and many are misdiagnosed with FND.

[psalm40speakstome]

Never was underrrated for me because my chronically ill self could have wept all the good tears the first time I saw this moment 😭😭😭😍

dousy appreciation week 2023 - day three: underrated moment

[mindblowingscience]

Researchers have identified a promising new approach to treating persistent neurological symptoms associated with Lyme disease. The method offers hope to patients who suffer from long-term effects of the bacterial infection, even after antibiotic treatment. Lyme disease, caused by the bacterium Borrelia burgdorferi and transmitted through tick bites, can lead to a range of symptoms, including those affecting the central and peripheral nervous systems. While antibiotics can effectively clear the infection in most cases, a subset of patients continues to experience symptoms such as memory loss, fatigue, and pain—a condition often referred to as post-treatment Lyme disease syndrome. Principal investigator Geetha Parthasarathy, an assistant professor of microbiology and immunology at the Tulane National Primate Research Center, discovered that fibroblast growth factor receptor inhibitors, a type of drug previously studied in the context of cancer, can significantly reduce inflammation and cell death in brain and nerve tissue samples infected with Borrelia burgdorferi.

Continue Reading.

[skys-archive]

Living with a degenerative disease is genuinely the most frustrsting thing ive ever experienced.

I'm unsure of the cause at this point, but I'm experiencing a loss of fine motor skills. I'm already a very shaky person as is, but it hasn't affected my daily life. There would be problems but only very occasionally. It was just something about me that was a strange little quirk. The only super noticeably difference is that my handwriting went to absolute shit.

In the last two months, ive experienced a very drastic change in my fine motor abilities. Overall it's very hard to type and make my cross stitch patterns. I can't put on clasp necklaces it's hard to put on earrings, in my art I can never have a clean line because I'm shaking every time I try and it's really hard to erase just what I want.

Sometimes it gets really bad, where I really can't do anything fine motor related properly. I make typos that don't look enough like the real word to be auto corrected, that's happening while I'm typing this. It's hard to go back and correct the typos because I can't press the correct place on my screen to delete or add what I need. Swipe text has been really helpful with this but even that for some words doesn't really work. That's what I'm using now. Sometimes I can get a necklace on, but today I was trying and my fingers were shaking so hard that there was absolutely no hope in it. I kept trying and it just got so frustrating. I manged to get my earrings in but it was hard. I can never write with good handwriting. Bracing myself in things they can feel my shaking and twitching.

Its just so frustrating to watch all of the things I could do slowly get worse and worse. I want to draw, I want to do my fiber arts, I want to be able to choose my fucking style how I want it, I want to be able to tie my shoes. And it's so much worse knowing that I was able to and now I can't.

Honestly it's even worse knowing I'm not sure what's wrong. I have chronic lyme but that's not considered real, I was also diagnosed with mild tourrettes. Those both can have neurological symptoms. I've considered asking to be tested for multiple sclerosis and honestly I almost hope I have it because I want a "real" diagnosis.

I don't know. It's just so frustrating watching my body deteriorate.

[pandemic-info]

At Yale’s Long COVID Clinic, Lisa Sanders Is Trying It All

excerpts:

Since the beginning of the pandemic, she — together with colleagues in the pulmonary and neurology departments — had been seeing long-COVID patients at Yale but often in an ad hoc way. Some of the doctors had become so flooded with people seeking help that they were having difficulty scheduling and treating their regular patients who came to them for everything else ...

Long-COVID patients, generally speaking, have been very miserable for a very long time, and because the illness attacks their brains, their hearts, their lungs, their guts, their joints — sometimes simultaneously, sometimes intermittently, and sometimes in a chain reaction — they bounce from specialist to specialist, none of whom has the bandwidth to hear their whole frustrating ordeal together with the expertise to address all of their complaints: the nonspecific pain, the perpetual exhaustion, the bewildering test results, the one-off treatments. “These are people who have not been able to tell their story to anybody but their spouse and their mom — for years sometimes,” Sanders tells me. “And they are, in some ways, every doctor’s worst nightmare.”

...

Long COVID has been pushing the limits of hospital systems everywhere, not just at Yale. As Americans emerged from the most acute phase of the pandemic, as mask and vaccine mandates lifted and life returned to a semblance of normal for the people who had contracted COVID and recovered, primary-care physicians started to say, “‘I’m not interested in long COVID,’ or ‘I don’t treat long COVID. Let me refer you to a specialist,’” said David Putrino, who runs the new chronic-illness recovery clinic at Mount Sinai. For their part, Putrino added, the specialists were saying, “This is not what my practice is. This is not an emergency anymore.” Patients all over the country reported monthslong waiting times for appointments at long-COVID clinics. All the while, scientists and pundits heaped skepticism on the very notion of long COVID, arguing that infection made people stronger, that new variants posed no threats, that the danger of long COVID was overblown — implying that what patients were suffering from was all in their heads.

Forgotten in this debate are the 65 million people worldwide for whom the pandemic remains a torturous everyday reality.

...

In the late 1990s, patients with a galaxy of unexplained chronic symptoms — including fatigue, sore throat, joint pain, insomnia, dizziness, brain fog, and depression — began to gather into activist and identity groups, calling themselves sufferers of “chronic Lyme.” They had something, they argued, related to a previous infection from the bite of a deer tick, but their doctors were dismissing them as whiners and neurotics. This was in an era when the medical Establishment was rolling its collective eyes at patients who were querying whether diagnoses of “chronic fatigue syndrome” or “fibromyalgia” might fit their symptoms — ones that looked very much like those linked to chronic Lyme.

Sanders joined the chorus of debunkers. These patients had real symptoms and real ailments, she asserted in Every Patient Tells a Story. But the collection of symptoms was “hopelessly broad and overinclusive,” she wrote. “These are some of the most common symptoms of patients presenting to a primary care office.” She concluded that chronic Lyme was a “phantom diagnosis.” 

“I completely regret that chapter,” she says now. “I would like to rewrite it.” Sanders explains that she was reacting to the doctors who were preying on suffering people by prescribing interminable courses of antibiotics that were not helping them: “But I completely misunderstood it. The patients were making the connection between their symptoms and Lyme disease.”

...

“We’re not paying enough attention,” she said. “We’re not. Doctors are still dismissing this disease as something that’s in your head. I have seen the exchanges on Twitter: ‘Long COVID is exaggerated, not real.’” Women are diagnosed with long COVID at roughly twice the rate of men, Iwasaki pointed out: “I think if the situation was reversed, we’d pay even more attention to this disease.” - Akiko Iwasaki, immunologist at Yale [also known for her work nasal vaccine & long covid research]

...

But even Sanders was not prepared for how little doctors and scientists know about long COVID. There is no blood test. Health officials can’t even agree on how to define it. The CDC describes long COVID as “signs, symptoms, and conditions that continue or develop after acute COVID-19 infection” — or, in Sanders’s paraphrase, “You got COVID and then something bad happened.” Under the CDC definition, patients have long COVID if they are symptomatic at least four weeks after initial infection. The WHO defines it similarly but with a different time frame: occurring or lasting at least three months after initial infection. This discrepancy matters to Sanders because, as much as possible, she wants to identify patients who have long COVID and not those who may take a little longer to recover from their original illness. In her clinic, she uses the WHO definition.

...

Sanders, more than ever before, is dependent on the patient’s account — on detailed specifics — to establish her diagnosis. It’s a process of elimination and deduction. So she has “learned just to shut the fuck up and listen.”

[covid-safer-hotties]

Also preserved on our archive

By Michael J. Peluso & E. Wesley Ely

Neurocognitive symptoms, including an impaired ability to process and memorize information, are among the most common and debilitating manifestations of long COVID, a disease experienced by as many as 400 million people worldwide, by one recent estimate (Z. Al-Aly et al. Nature Med. 30, 2148–2164; 2024). These symptoms, which can develop alongside those resulting from diseases of the lungs, heart and other organs, affect patients’ everyday functioning for months or even years following COVID-19. Matthew Fitzgerald, a 28-year-old former engineer at Tesla, described his long-COVID-related impairment during a clinic visit: “I’m a shell of myself. My physical issues aren’t half as bad as my brain problems. You can say brain fog, but that doesn’t come close to doing it justice.”

Extreme cases of long COVID stand out — authors who cannot write; nurses who fear making a medical error — but symptoms for most people are more insidious. Many long-COVID patients have neurological problems that meet the criteria for what would normally be considered age-related mild cognitive impairment, or mild to moderate dementia.

Over the past 30 years, US$42.5 billion have been spent on Alzheimer’s research, with limited progress. A decade ago, in part owing to the discovery of neurocognitive symptoms among younger, previously healthy people with complex illness in the intensive care unit, the US National Institutes of Health (NIH) designated a category known as Alzheimer’s disease and related dementias (ADRD) to describe neurological conditions that rob people of their memory and personhood. There is now ample evidence that both older and younger people with long COVID and other infection-associated chronic conditions are at risk of developing ADRD.

As a result, the NIH and other institutions around the world have begun to expand the scope of dementia research to include long COVID under the funding umbrella of ADRD. We serve as co-investigators on a soon-to-launch National Institute on Aging-funded phase III trial to test whether baricitinib, an immune-modulating medication, can improve symptoms of patients with ADRD from long COVID. We hope that this and similar work will open the door for studies of other infection-associated chronic conditions, including myalgic encephalomyelitis/chronic fatigue syndrome and post-treatment Lyme disease.

Brain studies of COVID patients have been among the most revealing science to emerge from the pandemic. Patient scans reveal structural changes, such as in regions near the olfactory tracts and in specific areas of the blood–brain barrier, a membrane that protects the central nervous system from blood-borne toxins and pathogens. Signs of inflammation are sometimes present, and viral remnants have been found in brain specimens of people who died.

Much remains unknown about how long COVID develops and can be treated, but research on the interplay between our immune and nervous systems could provide clues. Scientists have identified how vagal neurons, which connect the brain to the rest of the body, can relay information about pathogens to the brain stem by increasing or dampening the immune response, for example (H. Jin et al. Nature 630, 695–703; 2024). Many researchers have hypothesized that abnormalities in vagal signalling, potentially set off by the SARS-CoV-2 virus, can drive long COVID.

Considering that long COVID affects more than 5% of people infected with SARS-CoV-2, and the risk that some of these patients will develop a rapidly acquired ADRD, there now exists a critical mass of people to study in this category. Vast resources will be needed to untangle how SARS-CoV-2 infection causes long COVID and how it might be prevented and treated. This line of research could have major implications for autoimmune diseases, in general, and neuro-inflammatory conditions, in particular.

Funding organizations are beginning to respond. Beyond the NIH’s US$1.15 billion RECOVER initiative to support long-COVID research, institutes within the NIH are increasingly supporting studies of neurologic long COVID. Major funders in Europe and elsewhere are also stepping up. But more commitments are urgently needed. With sustained investment in long-COVID research, there is enormous potential to inform future directions in ADRD — an area that in the coming years will contend with rapidly escalating patient numbers that are expected to reach 139 million globally in 2050, up from 55 million in 2020. It is crucial that we do not lose momentum.

Nature 634, S11 (2024)

doi: doi.org/10.1038/d41586-024-03047-4

[liminalweirdo]

Think you might have Long Covid?

Symptoms:

General Symptoms:

Tiredness or fatigue

Symptoms that get worse after physical or mental effort

Fever

Neurological Symptoms:

Difficulty thinking or concentrating

Headache

Sleep problems

Lightheadedness

Pins-and-needles feelings

Change in smell or taste

Depression or anxiety

Digestive Symptoms:

Diarrhea

Stomach pain

Respiratory and Heart Symptoms:

Difficulty breathing or shortness of breath

Cough

Chest pain

Fast-beating or pounding heart.

Other Symptoms:

Joint or muscle pain

Rash

Changes in menstrual cycles

And more...

Routine blood tests, chest x-rays, and electrocardiograms may be normal in patients with Long COVID. The CDC describes the symptoms as similar to those reported by people with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) and other multi-system chronic complex diseases (msCCD).

These unexplained symptoms may be misunderstood by healthcare providers, which causes a delay in diagnosis and appropriate treatment. Patients with Long COVID may also present with single or multiple symptoms of varying severity.

There is no specific test to diagnose Long COVID, so doctors usually consider a diagnosis of Long COVID based on health history, current symptoms, and a health examination.

The National Academies of Sciences, Engineering, and Medicine have developed a case definition for Long COVID to facilitate diagnosis. They have defined Long COVID as an infection-associated chronic condition (IACC) that occurs after SARS-CoV-2 infection and is present for at least 3 months as a continuous, relapsing and remitting, or progressive disease state that affects one or more organ systems.

source

to learn more, or to support research into chronic illnesses like Long Covid, ME/CFS, Chronic Lyme Disease, and more, check out

Open Medicine Foundation (USA)

Open Medicine Foundation (Canada)

Open Medicine Foundation (Australia)