#Lyme disease things
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Never was underrrated for me because my chronically ill self could have wept all the good tears the first time I saw this moment 😭😭😭😍
dousy appreciation week 2023 - day three: underrated moment
#it means so much to me#daisy johnson#dousy#daniel sousa#THEM THEM THEM!#agents of s.h.i.e.l.d.#agents of shield#chloe bennet#enver gjokaj#aos#the man out of time and quake#neurological lyme things#Lyme disease things#Lyme disease#neurological lyme disease
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exotic birds? that box clearly says pigeons
#i figured i would post this bit so people did not think this was my good joke#im glad to hear the positives!#(also you dont have to apologize!)#ask stuff#Oh and Re: your most recent ask- health problems really can be hard to register until they hit a breaking point#ive said before i had lyme disease just damage me for nearly 2 years and had no idea until i was suddenly just super unwell#even for the most vigilant of people some things are just not easy to detect#hugs#Pbbth
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So as of Friday’s report I have technically tested positive for Lyme disease.
And I do technically experience occasional shooting nerve pains, and very occasional unexplained joint pain that comes and goes, and occasional headaches with very faintly stiff neck when they’re of a tension sort.
But. Like.
Look.
I know how that list sounds. But at the same time I am looking at the prevalence of false positives for this test, and the mildness of my own symptoms, and I am thinking that this is probably not the problem??
Anyway. The effort to diagnose my twitches/jolts continues, without much luck and with some side-tracks. 😂
#among other things sure I did Probably have Lyme disease once as a kid but that was treated#and OF LATE I have not had any incidents that would point towards a new infection#hmmngn#continued excitement in the world of doctors shrugging at me and ordering an array of blood tests#because their attempts to refer me to neurology because they know full well it’s not their specialty never seem to go anywhere ¯\_(ツ)_/¯#I might go along with it but I will also be sighing heavily if I get stuck on a round of antibiotics during all of this#it’s going to feel very much like the time I went in with palpatations and dizzy spells and asked ‘do you think it’s my meds?’#and got stuck on a heart monitor for a month before — yep — just reducing my med dose#all of that said I AM very grateful to have doctors that are taking me seriously rather than going ‘eh it’s probably psychosomatic’#life flails#health flails#my stuff
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#oh lads. lads. lads. lads. im being sucked back into the world of academia#i dont even kno what happened. a week ago i was crying bc i was like: this is impossible. i simply cannot do this.#and then i went into the lab sunday and miraculously i was able to easily read some papers. like i dont kno how to discribe how baffling it#was. like reading papers is like pulling teeth and this was somehow easy. i think maybe it was bc i let myself get distracted and wander#thru it. and then after that i got so much done this week and i was tired but having fun. and like the thing is: i fucking love evolution#it's like puzzling out the code for life in both a metaphical and literal sense. its fucking incredible. and my project is also very#interesting. if a bit intimidating in its scope. ya kno. just in the way photosynthesis is generally intimidating#but i think i have a strain thats lost chlf which is really interesting and my advisor said we might have the money to try some crispr for#my cyano children. hypothetically. maybe. and i get to do some poking around in genomes. theres so so much to love there#how could i possibly want to do anything else? and yet. and yet. here at the end of the week im so wrung out and i kno i just have to start#again on sunday and i kno im gonna have to step it up in terms of reading if i want to make it through a committee meeting and proposal#defense. not to even mention a comprehensive exam. and what do i get at the end of all this? a lifetime of academia draining my life away.#bc what i do is so academic. so whats the point? its just so frustrating.#and on top of that ive got all this data from my old lab that i kno i have to work on. and i will. i will. but with what time?#anyway the point is. i can see a path forward now where i stay here and decide the pain will be worth it despite not knowing where im going#after that. im just so tried#but right now it feels like im gonna stay until someone kicks me out#but that doesnt exactly make me feel happy. ugh. but if i stay i want to get my old pi to come here and give a seminar. ill warn her how#intimidating the department is tho. we've had 2 talks in the last 2 weeks that were... not good. particularly the one this week#like she couldnt answer a single question they thru at her and didnt seem to kno her data sets. it was hard to watch. anyway. i just want#to see my academic mother again. send me back to the desert! let me rot in a field full of sage#but send me back to the hills of an older mountain range. where i can climb sandstone cliffs and lay in carpets of moss. except i wouldnt do#that bc of all the ticks and threat of lyme disease...#anyway. im still tired. still sad. and there doesnt seem to b a way out#unrelated
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Ah, shit. Shit shit shit tick on my arm tick on my arm and I think it's brokennnnn shiiit
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can we hear more about the tick jar (im not judging i used to have a jar of moths before my mom made me throw it out)
just a jar that acts as a torture chamber for ticks i find on myself...... because sometimes you live in the forest and you have two dogs that you walk every day for hours and your dogs have all this expensive medication to prevent the ticks from biting them but you only have your pants and your leg hair. and maybe the first ten ticks you take off yourself will be disposed of properly (by burning) but then you get too lazy to do that because there's at least four of them everyday. so you suffocate them in the jar. because you have a cruel soul that feeds off others' suffering.....
#ask tag#still dont have lyme disease which is a win but there are other things that are wrong with me
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starting a little diagram journal about the changes in my joint pain throughout my experience with lyme disease.
it began to affect me sunday night, and today, tuesday 9/10, marks my first day on antibiotics! the worst of it should be over soon, and i should be out of the woods completely in 45 days. 👍
#today is definitely an improvement overall even if some things are worse#though maybe im just in a good mood because i finally know what's wrong AND its being taken care of#im also in a good mood because my right fingers are back!!!!#though i wish my feet and left fingers were back too lol#but whatever im choosing to look at the bright side#lyme#lyme disease#buzzing#buggie's nerd stuff
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🐣 Sableye!
lil phreakin thangy
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The modern day equivalent of vampirism is tick born ilness.
For example: some little bastard tried to drain you dry so now you’ve got light sensitivity and doctors don’t believe your condition is real.
#how I cope with chronic Lyme disease#lyme disease#tick born illness#chronic lyme disease#vampire core#vampires#vampire bite but not sexy 😿😿😿#appalachain mountains#southern gothic#fuck you the cdc for this one specific thing
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anyway if u see a target rash u should like. do something about that. even if you are such a shut-in the concept seems ludicrous
#literally for days i had been like god this is so weird it almost seems like i have lyme disease#this is possibly the funniest thing that has ever happened to me i cannot express how unlikely a candidate i am
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I CAN FINALLY WRITE AGAIN FUCK YOU LYME ITS BEEN MONTHS
#lyme disease#adhd#can’t focus without adderall#been in too much pain to bother taking it since June or July#then I finally start to have energy!! amazing!!#then lyme immediately starts giving me daily heart palpitations and some other thing I forget the name of#but I finally got checked out by the doctor and its being caused by my antibiotics murdering the lyme#which is a bit worrying that could mean the lyme was in my heart#but who cares I can take my adderall again and it’s working!!!#I only got distracted by research once!!!
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I’m not a hypochondriac until I get a bug bite and then I’m like oh fuck what if I get Lyme disease
#like babe it’s probably just a mosquito bite#and even if it is a tick bite that doesn’t guarantee Lyme disease#but the last thing I need is two autoimmune disorders#literally one of my biggest fears
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I’VE BEEN AWAKE SINCE 8AM. I know for most people that’s not early but for me that’s basically like waking up at 4 in the morning.
In other news has anyone else tried going off clomipramine and had it try to destroy you for the effort?
#I’ve been easing off of it for the last#month because I know you have to be careful and slow#but this is#ugggggghhhhh#clomipramine#chronic illness things#neurological lyme disease#lyme disease#my rambles
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me: haha yeah I have a weird paranoia thing where whenever I'm in the dark I can feel the Boiled One staring at me, watching me. i can't even take out the trash after dark sometimes cuz the paranoia is so severe
also me: I can't wait to start my new job where I stand in the middle of a forest after dark
#currently looking at my tied up trash like. how tf do i take this out#cant go outside cuz the Boiled One is out there.#i start as a scare actor for a haunted trail in a couple days and im like. maybe BEING the scary thing will help#i hope#that reminds me i need bug spray i aint getting lyme disease again
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being a hypochondriac is fun. When I was like 12 I thought I was gonna die of Lyme disease. As you can imagine i thrived in the beginnings of the pandemic. I have scared myself into believing my dog has rabies multiple times. etc etc
#and no im not exaggerating#the funniest thing about when i thought I had Lyme disease is that I didn’t bring up my concerns#to anyone at all#i was convinced I had a disease and never even told anyone because I’m so avoidant ddgfs
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A tidbit I learned from my disease ecology class back in college - ticks have seasons.
Major caveat that what I learned is specific to the Northeastern US and Lyme disease. Please go look up information on your local ticks and their diseases!
The way that the tick life cycle works, they have 3 main life stages where they're crawling around the place, and therefore 3 points in the year at which they're actively feeding. First is larvae, when they've just hatched from their egg, then nymph, then adult, which is when they're breeding. Because ticks acquire Lyme disease by feeding on animals that carry bacteria for it, larvae can't transfer it because they've never fed before. However, nymphs and adults *can*.
The ticks grab a single host animal, feed until they're fully engorged, and then rebury themselves to hibernate until the next life stage.
Here's the rough life cycle - nymphs show up in Spring and Summer (peak May-Aug), before molting and becoming adults, returning to feed again in the Fall (Oct-Nov). These summer and fall activity peaks are when you most need to be on the lookout, especially for the nymphs. They are most likely to cause disease because they're in the sweet spot of "small and hard to see" and "is likely to have the disease". So be extra vigilant about checking and keeping your skin covered during then.
For people outside the northeast US, highly recommend looking up public health information on ticks and outdoor safety generally. State/Province organizations will have the most up-to-date and personally relevant information, as will environmental research centers. I learned this stuff from a professor who studied Lyme disease for a living, and who worked with state health agencies to help track the spread of ticks and disease from year to year. Go find your maps and seasonal guides, like the one for Germany.
I'm trying to write a post about tick safety and avoiding tick bites, but a lot of the info on websites is like "Avoid going in the woods, in plants, and where there are wild animals" and "Activities like hiking and gardening can put you at risk" and I'm like thanks! This is worthless!
As ticks and tick borne illnesses are expanding their range, I think it's important for people to be educated about these things, and I think it's especially important to give people actual advice on how to protect themselves instead of telling them to just...avoid the natural world
Rough draft version of Tick Advice:
Ticks don't jump down on you from trees, they get on you when you brush against grass, brush, bushes etc.
Ticks get brought to an area when they get done feeding from an animal and fall off them. In the USA, the main tick-bringing animal is deer, but I've seen plenty ticks on feral cats and songbirds.
Ticks get killed when they dry out so drier areas with more sunlight are less favorable to ticks.
The above is useful for figuring out whether an area is likely to have lots of ticks, and how vigilant you have to be in that area.
Wear light-colored, long pants outside. Tuck your pants into your socks, and tuck your shirt into the waist of your pants. Invest in light, breathable fabrics idc
IMMEDIATELY change out of your outside clothes when you come back from a tick-prone area, wash them, and dry them on high heat to kill any ticks that might be stuck on.
Shower and check yourself for ticks after coming inside. Hair, armpits, and nether regions in particular. You can use a handheld mirror or rely on touch; an attached tick will feel like a bump kinda like a scab
While you're outside, you can just periodically check for ticks by running your hands down your legs and checking visually to see if anything is crawling on your clothes. Light colors make them easy to spot, and they don't move fast.
Combing through each others' hair to check for creepy crawly critters is a time-honored primate ritual and is not weird. When hiking, bring a friend who will have your back when you feel something on your neck and need to know if it's sweat or a tick
If you're careful, you can usually catch ticks before they bite you, but if one does bite you, it's not the end of the world. Since tickborne diseases are different regionally i suspect this advice will differ based on where you are, but the important thing is remove the tick with tweezers (DON'T use butter, a lit match, or anything that kills the tick while it's still attached, please) and contact a doctor to see what to watch for. Most illnesses you can catch from ticks are easily treatable if you recognize them when symptoms first appear
#shoutouts to Professor Killilea up at NYU#she co-taught that course with a microbiologist - she was the ecologist and he taught the lab methods for processing the ticks#and detecting which Lyme bacteria they might have#if i wasn't in fisheries research right now i'd want to do disease ecology#just because there's like. so much system-level thinking you have to do#lots of environmental factors and also the life cycles and ecology of ticks and the bacteria *and* the common animal hosts#in addition to things like human behavior and environmental impact#like neighborhoods with more domestic cats had less Lyme disease bc they were fucking depopulating the local small wildlife#i wouldn't say that's a net benefit but it's funny that cat presence can so thoroughly impact wildlife populations#that it causes public health changes in humans
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