#my disability disables me
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the funniest meltdown ive ever had was in college when i got so overstimulated that i could Not speak, including over text. one of my friends was trying to talk me through it but i was solely using emojis because they were easier than trying to come up with words so he started using primarily emojis as well just to make things feel balanced. this was not the Most effective strategy... until. he tried to ask me "you okay?" but the way he chose to do that was by sending "👉🏼👌🏼❓" and i was so shocked by suddenly being asked if i was dtf that i was like WHAT???? WHAT DID YOU JUST SAY TO ME?????????? and thus was verbal again
#yeehaw#1k#5k#10k#posts that got cursed. blasted. im making these tag updates after... 19 hours?#also i have been told it should say speech loss bc nonverbal specifically refers to the permanent state. did not know that!#unfortunately i fear it is so far past containment that even if i edited it now it would do very little. but noted for future reference#edit 2: nvm enough ppl have come to rb it from me directly that i changed the wording a bit. hopefully this makes sense#also. in case anyone is curious. though i doubt anyone who is commenting these things will check the original tags#1) my friend did not do this on purpose in any way. it was not intended to distract me or to hit on me. im a lesbian hes a gay man. cmon now#he felt very bad about it afterwards. i thought it was hilarious but it was very embarrassed and apologetic#2) “why didn't he use 🫵🏼?” didn't exist yet. “why didn't he use 🆗?” dunno! we'd been using a lot of hand emojis. 👌🏼 is an ok sign#like it makes sense. it was just a silly mixup. also No i did not invent 👉🏼👌🏼 as a gesture meaning sex. do you live under a rock#3) nonspeaking episodes are a recurring thing in my life and have been since i was born. this is not a quirky one-time thing#it is a pervasive issue that is very frustrating to both myself and the people i am trying to communicate with. in which trying to speak is#extremely distressing and causes very genuine anguish. this post is not me making light of it it's just a funny thing that happened once#it's no different than if i post about a funny thing that happened in conjunction w a physical disability. it's just me talking abt my life#i don't mind character tags tho. those can be entertaining. i don't know what any of you are talking about#Except the ppl who have said this is pego/ryu or wang/xian. those people i understand and respect#if you use it as a writing prompt that's fine but send it to me. i want to see it#aaaand i think that's it. everyday im tempted to turn off rbs on it. it hasn't even been a week
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anyone else ever wish they could lie down harder? Like, I'm already horizontal, but I need more horizontal. I need to be absorbed by the floor. I think that would fix me
#My orthostatic tolerance is currently zero#POTS#postural orthostatic tachycardia syndrome#me/cfs#fibromyalgia#chronic illness#disability#migraine#gastroparesis#chronic pain#chronic fatigue#chronic fatigue syndrome#myalgic encephalomyelitis#spoonie#mast cell activation syndrome#MCAS#dysautonomia#chronic migraine#joint pain#hEDS#ehlers danlos syndrome#hypermobility#hypermobile ehlers danlos#interstitial cystitis
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just a friendly reminder that, just because slavery was formally "abolished" in the so-called united states* in 1865, enslavement itself is still ongoing in the form of incarceration, which disproportionately affects Black and Indigenous people
(*i say "so-called" because the US is a settler-colonial construction founded on greed, extraction, and white supremacy) recommended readings/resources:
The New Jim Crow: Mass Incarceration in the Age of Colorblindness by Michelle Alexander
"How the 13th Amendment Kept Slavery Alive: Perspectives From the Prison Where Slavery Never Ended" by Daniele Selby
"So You're Thinking About Becoming an Abolitionist" by Mariame Kaba
"The Case for Prison Abolition: Ruth Wilson Gilmore on COVID-19, Racial Capitalism & Decarceration" from Democracy Now! [VIDEO]
#i know most of u probably followed me for fandom stuff but abolition and decolonization and sex workers' rights are so close to my heart#normally i'd post this on my academia blog but i have more followers here so. here ya go#enslavement is still ongoing in SO many other ways and it disproportionately targets BIPOC and disabled and impoverished people#might make another post about that#prison abolition#abolition#racial justice#juneteenth#social justice#human rights#resources#police abolition#decolonization#michelle alexander#mariame kaba#ruth wilson gilmore#13th amendment#antiracism
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I feel like there are a lot of people out there who needs to hear this:
If you dropped out of school because of diagnosed (or undiagnosed) ADHD, Autism, ADD, OCD, Dyslexia, Anxiety, Depression, Bipolar disorder, psychotic disorders, schizophrenia etc… You did not fail. The education system failed you.
#neurodiverse stuff#i cannot say this enough#neurodivergent#actually adhd#adhd problems#autism#just autistic things#actually autistic#actually bpd#actually mentally ill#actually disabled#depressing shit#this gave me more emotional damage than my dad#i am going to rant#i am going insane#dropping out#school problems#send help#you can do this#you cannot convince me otherwise#you can't change my mind#you can do it#i believe in you#i believe in their healing powers#i believe in myself#academic assignments#assignmentwriting#assignment help#in this essay i will
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Dan Piraro, Bizarro Comics 2006
#people get so weird about me using a cane sometimes#it’s like oh my disability is visible to you so now you treat me different#actually disabled#disability#disability aids
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Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside
#it feels like i got jumped by seven people but NO#if my body is going to make me feel like ive been stabbed five thousand times i should at least get a sword fight out of it im just saying#fibromyalgia#fibropain#fibro problems#fibro flare#fibro#chronic pain#chronic fatigue#chronic illness#hypermobility#hypermobile#hypermobility syndrome#spoonie#disabled#actually disabled#disability#c punk#cripple punk
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Hot take and not to be a killjoy or the shipping police but people treating Viktor or Jinx's aroace headcanons as if they were canon is not the revolutionary take people think it is.
Headcanons are always all right but we have to acknowledge that they are somehow damaging when they apply to stereotypes. It might not be the case for everyone but most of the time people unconsciously assume that disability/mental illness=asexuality. These headcanons erase the freedom of attraction from people who are already seen as unable to have sexual/romantic experiences/desires, when it's completely untrue and harmful.
You can headcanon Viktor and Jinx as aroace, but I have seen people changing their minds once Viktor is no longer disabled (s2 with all of his other forms) and Jinx is no longer as mentally ill (alternate universe Powder). And it speaks wonders of how people see these characters.
"I never thought about Jinx being able to feel romantic/sexual attraction until s2!" To believe she's actually only capable of that when she's not "damaged" is incredibly disturbing. Especially since Jinx has always had a bit of a flirty personality too.
"I've always seen Viktor as asexual, I don't know why!" That's fine. You can headcanon him as ace. But I believe there is a reason behind it, most of the time, if for some inexplicable reason the "vibes" of the disabled character are making you think he's ace.
I say all of this being aroaspec myself, by the way. Headcanon all you want but going to people's posts commenting how "it's weird for you that they have romantic/sexual plots when they're clearly aroace" is not a win at all. It's a headcanon, after all, and it should be treated as such, and that's fine. But it also is damaging to spread stereotypes like these.
Of course the disabled character is asexual. Of course the mentally ill character is aromantic. It's not as revolutionary as you might think, tbh.
Fandom is not activism and it's all right to have any headcanons you want BUT some of them are filled with damaging stuff and perhaps we should look into ourselves more before treating these assumptions as something canon.
#i hope i didn't sound rude btw i am saying this respectfully and this is directed to the ones who push these hcs as canon#if you have your own theories and know abt aroace stereotypes but are respectful abt it this is not for you keep scrolling#i actually think showing jinx (who has been dehumanized by the fandom A LOT) in a romantic relationship is good for her character#and viktor letting himself be free and loving what he considered imperfections thanks to jayce at the end c'monnn they need to make love#tired of disabled characters being treated as babies and always hc them as aroace let them fuck#this being said i am aware there are more terms inside aroace etc etc etc and there are more ways of considering them aroace etc etc etc#this is NOT about that it's about being aware of how 'mmm it's the vibes!' argument does NOT work when it's stereotypes#it's like saying 'wow this robotic character is giving me autistic vibes idk why' LIKE CMON NOW WEFNEWLFNL YOU KNOW WHY#please don't cancel me i am giving my humble opinion as someone aroaspec#at the end of the day you can do whatever the fuck you want tbh#i'm not the shipping police here#arcane#viktor arcane#jinx arcane#jayvik#timebomb
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I feel like I hear more and more people say that society is the disabling part of being autistic, not the autism itself, which is true to an extent? But I also feel like it overly simplifies it. So, here are some ways in which my autism disables me that are not related to society:
(This is written late at night as my disability is disabling me: please excuse me if I’m actually not using the english language properly)
1. I need a fan to sleep because otherwise I overheat and go into sensory overload (and my pots flares). I can’t stand the noise of the fan, and the very slight light created shifts the room ever so slightly and it’s Different and now I still can’t sleep.
2. I have horrible anxiety from the tism. It makes me (for lack of a better word, please excuse if this is rude to say) hyperactive. I can’t sit still, my brain moves too fast, I can’t hear my thoughts, but I know they’re there and it stresses me out. I feel like there are noises being blared in my head 24/7. I can’t hear them, but I can feel the vibrations and it’s super overwhelming.
3. One of the ways I counteract the above is by rearranging my room. Constantly. The super fast moving part of my brain needs stimulation All The Time or I spiral and start dissociating. I move my bed a lot because of this. But then the bed is in a New Position and it’s Not The Same and I don’t feel safe because of the lack of familiarity. I can’t sleep, and I lay awake for hours feeling panicky and exhausted but also wide awake.
4. Scroll to hide from the anxiety. Dissociate. Zone back in. I’m still scrolling. I desperately want to stop scrolling. I can’t move. I turn off my phone. I can’t move. I lay there.
5. I can’t stand the texture of anything on my lips, so I never use chapstick. My lips dry out and split. Bad Sensory Experience. If I try to use chapstick, I go into sensory overload. If I do nothing, I go into sensory overload.
Obviously, this isn’t life ruining stuff, and some of it is more difficult to live with than other parts. It’s just some ways in which my autism disables me that isn’t related to other people or society. Autism is complex and widely disabling, and I wish we talked about it more! I feel like along with the whole functioning labels problems, we also end up with this stereotype that “low functioning people are disabled and high functioning people have social anxiety”, which (just like functioning labels) is super harmful!
#autism#disability#surprise folks#my disability disables me#anxiety#autism is not just social anxiety fun fact#anywhoo#theo thinks
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I’m not sure who needs to hear this but it’s normal and okay to be DISABLED by your DISABILITY.
Sometimes it is going to stop you from doing things, and that’s okay. Sometimes it’s going to get in your way or make you struggle or cause problems in your life. But that’s okay, that’s why it’s called a disability.
You don’t need to fight yourself or “not let it hold you back” because a lot of times it will, but that’s the point.
#marshal talks#disability#also talking to myself#had my disability actually disable me recently#shocking isn’t it#/s#disabled#mentally disabled#physically disabled#invisible disability
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I don't think healthy people realize how for chronically ill people getting a diagnosis isn't sad or even disappointing for us, it's a relief and a vindication. So many people with chronic illnesses take many years to get diagnosed, and are told that 'it's just anxiety/your period/psychological' or that we're exaggerating or that everyone experiences that, so for us getting a diagnosis is being told that we weren't faking it and that this wasn't normal and it's also finally knowing what exactly is going on in our bodies.
I think many healthy people think of it as if it were them being told they have this lifelong debilitating illness, and they would feel awful because they are going from perfectly healthy to disabled, but they don't fully realize that we already have all the symptoms and impacts of said chronic illness and that we are just finally finding out the name, and that knowing what it is means that we have access to more treatments and more knowledge as to what we can to do alleviate our symptoms.
#chronic illness#disabled#disability#chronically ill#i was lucky enough to have been diagnosed early because my mother recognized my symptoms#and she recognized them because my older sibling had been diagnosed with the same thing a few months before me#but for my sibling it was years between developing symptoms and getting diagnosed
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You don't wish your disability was worse or more visible, you wish your disability was taken seriously. Please stop confusing the two, I guarantee you would not get the support you need JUST by being more severe or more visible. Please listen to visibly disabled people when we tell you it isn't better on our side
#m/cc#mine#I tried extremely hard to word this nicely because I KNOW people don't mean bad and often even know there are unique challenges#and believe me I know the challenges of invisible disability too!!#I have invisible disabilities!#but as someone who has also been at least visibly 'off' since they were 10 I am SO SICK of invisible disabilities being hailed as like#a unique extra oppression that us lucky visibly disabled people don't have to deal with#there are challenges to invisible disabilities that visibly disabled people DON'T have to deal with!#but you need to understand that *the reverse is also true*#there are MASSIVE benefits to being able to lie about your disability for example#or not dealing with the overt ableism that comes with your disability being obvious to everyone#*I do not have the option to pretend I'm not disabled.* that is never an option I have#I walk weirdly. I use a mobility aid now. my speech and face are 'off.' I lean to one side#for a long time I wore sunglasses 24/7 and often didn't make sense. I sometimes can't speak or won't react to others#for the most part people will always know that at the very least something is wrong with me#and more obviously I have people telling me they'll pray for me; telling me I can't do things I'm already in the process of doing;#wanting to shake my hand to tell me I'm an inspiration for not killing myself; giving me dirty looks for existing in public#and yes. I'm aware that this is very much an in-community issue. I know the average abled person doesn't know invisible disabilities exist#that's why there's so much awareness happening for it#but as a visibly disabled person I get SO TIRED of constantly hearing 'I wish my disability was visible :'('#it's just 'I wish I had your disability!' but from other disabled people
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you don't have to be glad that it's not worse. that goes for everything. disability, trauma, mental illness, grades, finances, whatever. you're /allowed/ to be upset that things are the way they are. you don't have to be grateful for your situation - bad is bad. somebody else's suffering doesn't make yours less painful. it's okay to be angry
#my mom tells me that my disability could be worse all the time . god i hate it#disability#chronic illness#trauma#recovery#thor speaks
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They don’t even attempt to assassinate US politicians anymore. You notice that? Not since the anthrax scare back for… who was it, Barack? And even that… pathetic. This new generation has no respect for an honest hitman. I’m not sure this new generation has any honest hitman - you see that shit with Boeing? Sloppy, fucking disgraceful - you kill the whistleblowers before they get halfway to a lawsuit. What kind of fucking amateur is doing faked suicides the night before testimony? Goddamn greenhorns. Back in my day someone tried to shoot Ronald Reagan in broad daylight. There used to be bomb threats to Congress. I took out a few union leaders in the utilities sector myself. Today’s generation? Won’t even threaten to throw a punch - not even over on that - what’s it now, ‘X’? They got no guts. None! And they don’t even have poor impulse control to boot! Too much of that - that panopticon anxiety bullshit. “Oh what if I get a called out post???” People used to send the president letters full of bioweapons. In the mail! Today’s generation? Not a chance. All because of woke.
#ra speaks#personal#JOKING.#this is a joke this is a parody of right wing rants regarding social phenomenon they believe to be oppressed by left leaning politics.#but within the perspective of an old fictional hitman.#this is a joke tangentially referencing my fictional hitmen from a fictional story in which no harm comes to career politicians#obviously but also if this gets me on a list o7#fbi agent in my phone I’m a disabled autistic dyke with zero engineering or chemistry background#my skills are best applied to…idk sabatoging national forest harvest regimes? but I’m not doing that they’re neglected enough as is.#edit: oops this is getting notes o/ hiiiii cia agent reading this post <3 a union leader my dad worked w got fucking assassinated#by Pinkertons and y’all didn’t do shit. I hope you have visions of hell and become a nomadic hermit self flagellating in the woods#edit 2: ooooooh there was a pres debate last night. that’s why people care about my two week old joke hitman post. was wondering why.
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reminder for abled people, part of being an ally to disabled people is to actually care about them enough to bother to tailor things to their needs.
care enough to plan activities that your disabled friends are able to do. care enough to plan meals that your disabled friends will be able to eat. care enough to be willing to meet them where They are, rather than being upset if they can’t meet you where You are.
things are so hard for us already. don’t make things harder and sadder for us by excluding us with your thoughtlessness.
#posts inspired by me being excluded from things bc my family couldnt be bothered :) lol#0#disability#disabled#chronic pain#chronic fatigue
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
[plain-text version of this post can be found under the cut]
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
Plain-text version:
Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
P.S. Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
#hlep#original#mental health#my sympathies and empathies to anyone who has to rely on this kind of hlep to get what they need.#the people in my life who most need to see this post are my family but even if they did I sincerely doubt they would internalize it#i've tried to break thru to them so many times it makes my head hurt. so i am focusing on boundaries and on finding other forms of support#and this thing i learned today helps me validate those boundaries. the example with the milk was from my therapist.#the example with the towing company was a real thing that happened with my parents a few months ago while I was age 28. 28!#a full adult age! it is so infantilizing as a disabled adult to seek assistance and support from ableist parents.#they were real mad i was mad tho. and the spoons i spent trying to explain it were only the latest in a long line of#huge family-related spoon expenditures. distance and the ability to enforce boundaries helps. haven't talked to sisters for literally the#longest period of my whole life. people really believe that if they love you and try to help you they can do no wrong.#and those people are NOT great allies to the chronically sick folks in their lives.#you can adore someone and still fuck up and hurt them so bad. will your pride refuse to accept what you've done and lash out instead?#or will you have courage and be kind? will you learn and grow? all of us have prejudices and practices we are not yet aware of.#no one is pure. but will you be kind? will you be a good friend? will you grow? i hope i grow. i hope i always make the choice to grow.#i hope with every year i age i get better and better at making people feel the opposite of how my family's ableism has made me feel#i will see them seen and hear them heard and smile at their smiles. make them feel smart and held and strong.#just like i do now but even better! i am always learning better ways to be kind so i don't see why i would stop
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the stars, the moon, they have all been blown out
you’ve left me in the dark
[id: a digital portrait of leola from the dragon prince. a young elven girl with purple and blue skin with stars as freckles. she has long white hair with a magenta galaxy-like underside and small braids framing her face. she has magenta eyes and a single purple horn, like a unicorn’s, coming from her forehead. she wears a sleeveless high-necked deep purple top with a star in the middle of her chest, glowing. she is looking up, the background around her featuring tendrils of smoke and a burst of lines behind her. end id]
#my art#clip studio#disabled artist#tdp#tdp spoilers#tdp s6#the dragon prince#tdp leola#leola#the dragon prince leola#dragon prince#digital portrait#artists on tumblr#my doter my child my sweet baby#this was almost exactly 6hrs on csp#my first ever digital art piece over 5 yrs ago was her dad#in a way it feels like im channeling that piece#i started watching the show in middle school#i drew this for that part of me
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