#lymedisease

[pandaspansawareness]

Disabled Rage

We talk a lot about female rage which is great (rage that stems from a lifetime of being faced with misogyny), but we should also be talking about disabled rage (rage that stems from a lifetime of ableism, being misunderstood, and unable to get the appropriate care.)... For years I have struggled with a constant internal sense of anger that has destroyed my mental health and has caused issues with adrenaline surges and a fear of seeking healthcare. Here are some examples:

Tourette's specialists refusing to believe those of us with Tourettes when we say suppression harms us, and trying to silence people with the condition as they believe that they know more about TS than the people who actually have it.

POTS specialists acting like forcing yourself to walk more and exercise will cure you when POTS often co-occurs with ME/CFS and similar issues that cause post-exertional malaise meaning that being pressured to walk more and exercise can use what little cellular energy you have left to the point where your body cannot regulate the autonomic nervous system at all and it all just gets worse. Since using a wheelchair and exercising less my POTS has been less horrific to deal with but so many "POTS coaches" and doctors refuse to listen.

The "OCD cycle" making me feel like a failure for being unable to stop my rituals because I literally thought that my thoughts could cause the end of the world and that the aliens in the afterlife would be angry at me. I felt so guilty for not being able to stop this "OCD cycle" that I purposefully didn't get treatment for an ankle infection that had grown almost 10 times its size and had gone all purple because it made me believe I deserved the pain.

The medical system denying the existence of Chronic Lyme despite over 700 peer-reviewed scientific articles and studies showing Lyme and co-infections can persist despite antibiotics and therefore be chronic. If you believe in antibiotic resistance and post-infectious inflammation there is zero reason not to believe in chronic Lyme. Due to this denial, we are forced to spend thousands on private healthcare as even the NHS won't treat us. I would be de@d without long-term antimicrobials.

Autism "specialists" who know hardly anything about Autism and refuse to listen to Autistic people.

Natural and alternative interventions being seen as "quackery" even when they are evidence based when they are essential for those of us who react badly to medications or can't afford medications. I wouldn't be alive without some alternative interventions, and yes they are evidence based with scientific studies backing up their usage.

Hospitals being inaccessible with no room for wheelchairs in the waiting room, extremely high reception desks where they can't see a wheelchair user over them, toilets with the red call string tied up where disabled people ironically can't reach it...

Constant medical gaslighting, having doctors dismiss and belittle serious issues and deny referrals to the point you either have to spend thousands of pounds on private healthcare to save yourself or self-diagnose to save yourself as you have no other option and have people ridicule you and say "sElF DIAgnoSis IsN't VaLID" as if it's a choice - it is traumatic to have no option but to diagnose yourself because the medical system is in shambles and won't help you. Diagnosing myself in the past when doctors wouldn't listen not only reduced some of the trauma caused by doctors, and saved my life. It is a privilege to be able to get a formal diagnosis.

Not being able to exist online as a disabled person without being fake-claimed or harassed by strangers...

This is just the tip of the iceberg. I don't know if myself or others like me will ever find peace.

[kestrel-tree]

I made more Spoonie bracelets!

halogenart.etsy.com

Any requests for what to make next?

[williamdecade]

So here it is November 7th now that I've calmed down from the initial shock that the country actually has a chance to improve and heal some of the damage of the last 4 years, I am hopeful for the country and hopeful for the American way of life. Me personally I'm not sure if I'm hopeful for myself I haven't made much progress if any to get help. My condition is worsening and I just don't know how to explain it to make it more understandable that when you don't have a way to get around and you don't have money to see a doctor and do other things that you need to do, you just stay in a holding pattern. I still don't know what to do about social security they want you to be seen a doctor regularly but if you're destitute how is that even possible? My illness chronic since I was a young boy has never been in question, but Social Security makes it so difficult for people to get help, what's more shocking is their willingness to help strangers that walk into the country 20 million of them and give them all the help that they possibly could need when American citizens are in dire need of help and dying everyday because they lack the resources to survive. It's just mind-boggling I did my best my entire life not to get help from the government because I was told that they couldn't afford it and on top of them treating citizens so badly and asking for help. Then all the sudden they magically have trillions of dollars to help everyone else but American citizens, literally giving away billions of dollars to foreign countries when there are people here going hungry at night and will die because they don't have the treatment or medication that they desperately need to live. I am one of those people I can't believe that I am one of those people but I am, how in the hell am I going to survive when the small bit of medication that I have Runs Out, the lack of medication is going to destroy me my body and my health and I will come to a grinding halt, I will not be able to function even less than I am now and there's no point in denying that most likely after a very short period of not having medication I will probably die. That's not being dramatic it's just the fact, the lack of medication will most likely kill me and will my death make a difference to anyone, I pretty much know that it won't I'm just a number among millions of people that need help. I so badly want to improve my situation but I just don't know how, everyday I worry about what's going to happen, people that function normally and have good jobs and live a good life have trouble understanding how others struggle on a daily basis they just don't get it and it's very hard to explain to someone to the point that they can understand how difficult it is. I don't like asking for help and wish I were more independent, but it doesn't make any sense not to ask for it if there are people out there that may be able to help please consider making a donation to my my PayPal williamdecade1@yahoo.com and please know how much I appreciate you and also most importantly take care of yourself and be careful out there, the world can be a very dangerous place.

[bacteriaeatingmybrain]

Someone needs to tell my body that crocheting isn’t supposed to make me dizzy

[readbetweenthelyme]

Me and Lyme Disease

Sometimes, I forget (which might be a good thing, IDK) that I started this blog back in like 2016 so I could chronicle and share my fight? my experience? my new life of chronic illness? To feel like I had a voice? I really wanted to get my story out there about contracting and then dealing with chronic Lyme Disease. Or Post Treatment Lyme Disease according to the CDC. There are so many people out…

[mayhallius]

When he/she/they has #Lymedisease

[alonewithdestiny-blog]

Join us on Twitch

[market-insider]

Lyme Disease Testing Market Trends and Analysis: Comprehensive Overview of Market Size, Share, Growth

The global lyme disease testing market size is anticipated to reach USD 18.57 billion by 2030 and is projected to grow at a CAGR of 8.2% from 2024 to 2030, according to a new report by Grand View Research, Inc. The primary factors driving this market are the increasing prevalence, supportive government policies regarding healthcare facilities, and the introduction of new diagnostic tests for Lyme disease. In addition, the growing incidence of tick-borne diseases further expands the global market. For instance, in August 2022, the U.S. Fair Health Organization reported that Lyme disease has significantly increased in prevalence over the past 15 years, becoming a growing national concern.

Lyme Disease Testing Market Report Highlights

Based on technology, the other segment led the market with the largest revenue share of 88.6% in 2023. The widespread adoption of these tests, considered the gold standard for testing due to their high specificity and sensitivity, significantly contributed to the growth of this segment

Based on testing, the serological test segment led the market with the largest revenue share of 53.1% in 2023. These tests dominated the market as they are widely available, affordable, established, and reliable in detecting antibodies against Borrelia burgdorferi. This makes them a trusted and accessible option for healthcare providers and patients

Based on sample, the blood segment led the market with the largest revenue share of 62.4% in 2023. This is due to the blood tests, such as ELISA and Western blot, which can effectively detect antibodies against Borrelia burgdorferi, the bacteria causing Lyme disease. Blood samples are also easy to obtain and handle, making them a practical choice for widespread diagnostic use

Based on end use, the hospital segment led the market with the largest revenue share of 58.4% in 2023. Firstly, hospitals can access advanced technology and diagnostic tools, enabling accurate & timely testing. The high hospital patient volume, including those with complex and severe symptoms, necessitates reliable diagnostic services, further driving their market dominance

In January 2024, DiaSorin announced that it submitted the LIAISON LymeDetect test to the U.S. FDA in December 2023. Developed in partnership with QIAGEN, this test detects IgG, IgM, and T-cell mediated responses using QIAGEN’s proprietary QuantiFERON technology, an Interferon-Gamma Release Assay (IGRA). This novel solution will enhance DiaSorin's LIAISON immunodiagnostic offerings in the U.S. market, representing a significant milestone in its collaboration with QIAGEN

For More Details or Sample Copy please visit link @: Lyme Disease Testing Market Report

Growing government initiatives and preventive measures significantly drive the market growth. For instance, in July 2022, an article titled "New laws seek to boost funding of Lyme disease research" highlighted that New York officials have increased funding for Lyme disease and tick-borne illnesses through a new law signed by Governor Kathy Hochul. This bipartisan measure will establish a voluntary tax check-off box to support education, research, and prevention efforts related to the disease in the region. Despite the high incidence of Lyme and tick-borne illnesses, it is believed that the actual number of cases is much higher due to inaccurate diagnostic testing.

Heightened awareness and education are further propelling market growth. Public health campaigns to educate communities about prevention strategies and symptoms have become increasingly prevalent. This growing awareness leads to more individuals seeking medical attention when they exhibit symptoms consistent with the disease, thereby driving demand for reliable testing options. Furthermore, educational initiatives targeting healthcare professionals ensure they remain informed about best practices for diagnosis and treatment.

List of major companies in the Lyme Disease Testing Market

DiaSorin S.p.A

BIOMÉRIEUX

Oxford Immunotec

Bio-Rad Laboratories, Inc.

Thermo Fisher Scientific, Inc.

T2 Biosystems

IGeneX

Gold Standard Diagnostics

ZEUS Scientific

Trinity Biotech

For Customized reports or Special Pricing please visit @: Lyme Disease Testing Market Analysis Report

We have segmented global lyme disease testing market report based on technology, testing, sample, end-use, and region.

[cassandrawallac]

Tick Talk: Understanding the Escalating Threat of Tick-Borne Infections

Due to this, diseases caused by these small creatures are on the rise because of the hot and dry weather conditions and probably increased human activities in the wilderness. Ticks are small organisms which can spread such diseases such as Lyme disease, Rocky Mountain spotted fever, and babesiosis. Such illnesses can be as mild as flu-like symptoms while others can lead to health complications of neurological nature and joint pains. To prevent the tick from biting you it is advised that you wear long pants, long sleeved shirt and apply insect repellent that contains at least 20% DEET. Always respect the signs and boundaries and once you have been out in nature, make sure that you look for ticks. If you discover the tick, use the tweezers to pull the tick backward, not jerking motion and wash the affected area. It is important to learn what the symptoms are as they look like fever, headache, rash and other signs. Immediately, consult your doctor if you think you are infected.

Visit: Tick Talk: Understanding the Escalating Threat of Tick-Borne Infections

[kerryalaska]

i don't share personal things here much but i would deeply appreciate this being shared or if anyone that has the ability to help can<3 much love to all.

[rochestertoastmasters]

A Saturday Salute to being believed, because "Lyme Disease Complications are Real" - Watch here https://youtu.be/562q1LEM4hM 

[kestrel-tree]

I started making Spoonie cards for my Etsy store in case anyone wants something to send to their chronic illness buddies!

I only have the original hand painted ones up at the moment but if I get any interest I'll be making some as prints too so they can be more affordable.

Also always open to doing custom ones if you want anything specific like "sorry your neurologist sucks" or "congrats on finally getting a diagnosis" etc.

[williamdecade]

What is it August 10th August 11th I'm not really sure I didn't look at my phone before getting on here I feel awful I've rinsed off with a cup of water for the third time today no running water or working shower tub Etc. I wish I had better news that I had won the lottery or some philanthropist or kind person donated enough for me to fix up the house so it's livable again or so I don't have to worry about them turning off the utilities etc. What I really got on here for it's been a hundred or more all week long and it's devastating to say the least with no AC although I am grateful to have a fan it helps slightly, anyway it stays in weeks like these that I suffer so much and I feel so sick and so bad that I wonder what makes people go on why do they continue suffering? Sometimes I think it's stupid but I don't know is it stupid to think that a person would hang on hoping that something good would happen or that their luck would change and they would be able to improve their life somehow? I think about all the family members that have passed and how there's no one left that really cares about me they're all waiting to hear the news that I've died, I have no benefit for them so they don't bother all the good ones are gone and all I'm left with is the trash. No one has stepped up to help me they all know that I'm suffering though and I imagine some of them Delight in it in fact I know they do. Anyway I hang on because I think about all the people that have passed that I love and all the things that they've missed the things in the world that are new and exciting or maybe the beauty of the world I think of my sister that died of cancer a few years ago and how I miss her laugh and how she would have loved all the things that have come to life I also think of my brother that died in a car wreck at 12:00 that I never really knew because I was 6 months old, I also think of the brother that I never really spent the time to get close to because I didn't know how and he was suffering so much because he was close to our other brother, I think about how he died in 1989 he loved to video games he would Marvel at what video games are now he would love the internet and the smartphone he loved things like that so much they would be new toys for him. He had such excitement and fascination with technology like I did, the smartphones been out for a while now and I still Marvel that I can lay down I'm in pain but I can still look at my screen and I can check the weather I can check the time and I can be on social media using a voice text. Unfortunately I'm aware of many of the bad things in life but I'm also aware of the good and I'm grateful for the good. I just don't know anymore some days they're just so horrible and I feel so awful mentally and physically I'm tired very tired I don't want to have to worry about I have food or not or whether or not they're going to cut off the utilities we're trying to take my home away from me I'm really really tired of it all but I keep hanging on and I keep looking in the mirror and calling myself stupid for hanging on, some days I just don't know anymore.

[boned-by-sans]

Snow! School! Cheese! LymeDisease

[readbetweenthelyme]

And So It Is...

It’s dumb, but I kept putting off posting because there wasn’t much happening and then like all the things happened! Oh, and my brain really hasn’t been working well. I’m not sure if it’s stress or fatigue but probably both. In the past 6 -7 weeks, I’ve helped my mom on Sundays pack for her big move to Arkansas. My mom and I have been very close neighbors for about 23 years now. We fenced the…