#lupusfighters

[berberriescorner]

Sooo…I had a follow up with my hematologist.

Guess who starts yet another cycle of iron infusions next week?!

This lady 🤦🏾‍♀️. I’d go into detail, but at this point who knows what the real answer is 🤷🏾‍♀️. I’m just venting lovelies. Tired of being tired. Tired of being out of breath. Tired of lupus flare ups. Sick and tired of being sick and tired.

Yes, you get used to it, but man! I want to get back to a place where I have enough energy to do the things I love. Welp I guess it’s good I ordered all those damn books lmao! Now I’ll have new reading material for my infusion appointments😆😩🥹.

Okay enough of being an emotional lil bish. Back to being a sensitive thug😆😂🤣.

How my babies doing though?!

[primecashpro]

World Lupus Day!

On this special day, let's come together to fight lupus and improve the quality of life for those affected by it. Your strength and courage inspire us all. …

https://www.facebook.com/primecashofficial/

[sanjaysamanta500]

🤗🤗🤗🤗 Late post. 30th December 2022 . . . . .. . . . . . . . . . . . . . . . . . . . . . .. . . . . . .. . . . . . . . . . . .#selfphoto #selfie #selfphotography #photography #selfphotoshoot #selfportrait #me #love #photo #spoonie #life #butyoudontlooksick #lupus #sle #myself #raizoemika #lupuslife #lupusfighter #portrait #hangingwall #spoonielife #livingwithlupus #lupuspatient #photooftheday #selflove #sanjaysamanta #picoftheday #photographer #blackandwhite #thehangingwall (at Diamond Harbor, West Bengal, India) https://www.instagram.com/p/Cnbvt5TP7rl/?igshid=NGJjMDIxMWI=

[whatspringdoestothecherrytrees]

The days when you’re not feeling it count the most.

😷 Found out on my birthday weekend that my doctors think I have kidney involvement from the lupus.

Can’t pretend I’m not scared. Can’t pretend I’m not sad.

I’m scared to be so relatively young and already wondering if I’ve lived most of my life.

I’m scared if I might die and leave my husband and baby son. And that thought scares me the most. @anolderlove

🧪 Today I feel like going home. I feel sick from the high-dose prednisone and its resultant weekend insomnia.

💊 Dreading starting the new chemo tonight.

But I am going to do some low-energy tasks, like writing, data analysis. If I have to leave early I will.

🎛️ But first. . . Got to move that needle.

🐺 Lupus may be a b*tch but it’s my B*tch. It’s taken so much, and I refuse to let it take my dreams.

Not ashamed..

[suprememobsnob-blog]

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[indigochild1987]

🙏🏽👊🏽💜 . . . . #lupus #lupusawareness #sle #autoimmunedisease #chronicillness #invisibleillness #rheumatoidarthritis #lupusnephritis #chronicpainawareness #systemiclupuserythematosus #slewithnephritis #staystronglupies #lupuswarriors #lupusfighters #lupusbutterflies #lupusbrothersandsisters #findacureforlupus #lupushealthandcare #mylupielife1987 #reclusebychoice11 #ailistoshealingjourney8 #ailisto #angelinaisabellisto #prayfightheart #lhandsign #fuckyoulupus #lupusyousuck #butyoudontlooksick #hope . 📷: via ~ Lupus Foundation of America, Wisconsin Chapter https://www.instagram.com/p/B98OmsBAWXs/?igshid=1gmz1dzt0d3qw

[lupus-esque]

Hi warriors & hydroxychloroqueenz 💜

I figured that I would post about when I first got diagnosed w/ SLE.

I know I had symptoms way before being diagnosed, but it all made sense after the official diagnosis.

I was diagnosed with SLE in December of 2017; I was 18 years old. In my first semester of college all the way in FL when home was in NYC. I was losing my hair A LOT & I was super sleepy all the time. Eventually the hair loss got so bad and depressing that I flew out to NYC to find out what the hell was wrong with me. After countless blood work, urine tests, and doctor visits, I was finally diagnosed with Systemic Lupus Erythematosus (SLE).

I was so confused bc I only heard about Selena Gomez having lupus, so I did my research instead of crumbling into sadness; KNOWLEDGE IS POWER. I cut all my hair due to the crazy thinning I had and embraced the new me as well as took back my control.

This was the beginning of my Lupus journey, thanks for reading 💗

[learntolive-again]

I am NOT obligated to tell you why I'm using a cane.

And you do NOT have the right to get mad at me when I choose not to answer you.

Thanks. Carry on.

[my-life-now-with-lupus]

I’m sorry I can’t do things as quick as I used to or as well as know I have the ability to do…

Its not that I’m not trying, but as willing as I want the mind and body to be it doesn’t always do what I want it too and it seems to burn vast amounts of energy very quickly with sometimes very little to show for it.

I seem to be floating in the mist… longing for the clearness of the mirror more than I like.

[illdumbyousome]

🚨FINAL 3 DAY EXTENSION 🚨 [Link in my bio!] We are very close to hitting our shirt goal! 19 more to go! Can you help me make the final push? 💜 Help spread Lupus Awareness by snagging an awesome shirt! 💜 Link: https://bit.ly/2QUQwKK . #lupus #lupuswarrior #lupusawareness #lupusflare #lupussucks #lupusfighter #lupusawarenessmonth #endlupus #lupusfoundationofamerica #autoimmunedisease #invisibleillness #lupussupport #fundraiser #lupusorg #lupuschick #autoimmunestrong https://www.instagram.com/p/COGkfpPnWLR4XzexmKEAwr9k_maSf0D4H-_w-M0/?igshid=1luv0q6i64vrg

[ravenshivers]

Dear Butterfly; Dear Dragonfly,

Because of you, I have to lie. Have to pretend I'm fine.

You've helped me to identify, to find my kind. But why?

Something I wonder every day. The price I have to pay

simply to be me. Don't you care? Can't you see?

I'm not one to cry out, "Why ME?" —not specifically.

I know that I do know the why. Your wings; they've helped me fly.

But it's always half truth and half bullshit.

Sometimes it overcomes, and I can't handle it.

You know me well so I've not much more to say but

there are times I wish you two would fly away.

But, I know you'll forever stay. Grow more attached.

Leaving me dog sick, nerves wracked.

The only alternative is death.

And I'm here. Here for each and every breath.

My future is now and that is where I shall live.

Thank you for helping me learn what I can give.

[sanjaysamanta500]

🤗🤗🤗🤗 Late post. 30th December 2022 . . . . .. . . . . . . . . . . . . . . . . . . . . . .. . . . . . .. . . . . . . . . . . .#selfphoto #selfie #selfphotography #photography #selfphotoshoot #selfportrait #me #love #photo #spoonie #life #butyoudontlooksick #lupus #sle #myself #raizoemika #lupuslife #lupusfighter #portrait #hangingwall #spoonielife #livingwithlupus #lupuspatient #photooftheday #selflove #sanjaysamanta #picoftheday #photographer #blackandwhite #thehangingwall (at Diamond Harbor, West Bengal, India) https://www.instagram.com/p/Cnbvt5TP7rl/?igshid=NGJjMDIxMWI=

[authenticallyjames]

For more information on Lupus, visit www.lupus.org and www.worldlupusday.org • #fightlupus #lupuswarrior #makelupusvisible #lupussupport #lupus #chronicillness #lupuswarrior #lupusawareness #autoimmunedisease #chronicpain #invisibleillness #sle #autoimmune #lupusfighter #lupussucks #lupusflare #rheumatoidarthritis #arthritis #lupuslife #lupusawarenessmonth #lupusproblems #butyoudontlooksick #chronicillnesswarrior #health (at Garfield Heights, Ohio) https://www.instagram.com/p/COtHnugrknu/?igshid=a9762d7ldasl

[beautifullyautistic]

Fuck guys. Lupus is flaring bad. My hair is falling out. I can barely keep my eyes open or move. I make it to work and then collapse when I’m home. I feel stuck in this never ending cycle. If anyone has some positive thoughts to spare or some advice or kind words, I could use them right about now.

[thelupusdiariesofficial]

Benlysta

By Lillian China Smith Tonight is my benlysta night — and I hate it! But it has made me so much better. It took ages to work but it did in time…(a long time). Now it doesn’t make me as ill as it did when I started. Even missing my dose by a few days makes a huge difference. I am feeling grateful— and I’m all smiles for my benlysta at injection time, even though I hate the injection, and how long…

[twistedcharismaaa]

I’m still beating Lupus. Thank you Jesus. 💜