#kcvphoto

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May is Cystic Fibrosis awareness month. Fingers crossed that we can spread the message! CF is a progressive, terminal, recessive genetic disease; meaning those of us with CF were born with it by inheriting a defective CFTR gene from both parents. This causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs. As a result, we spend hours a day doing breathing treatments and airway clearance and most of us, including myself, have to take enzymes and supplements when we eat to be able to digest food and absorb calories and nutrients. These treatments also often include hospital stays and IVs during exacerbations. In the lungs, the mucus we produce clogs the airways and traps bacteria leading to infections, extensive lung damage, and eventually respiratory failure which is what causes our shortened life expectancy. Only 30,000 people in the United States and 70,000 people worldwide have CF making it very rare. In the 1950s, children with CF rarely lived long enough to start kindergarten. When I was born, in 1992, the life expectancy for CFers was around 16 years of age. Today, the median life expectancy for CFers in the United States is almost 37 years! In Canada, the UK, and Europe the life expectancy is even better at around 46.5 years! It’s awesome that we are now living long enough to achieve adulthood, however CF is all consuming and unpredictable and often a full time job so it is hard to maintain a normal balance. As hard as it may be to see past it those of us with CF are so much more than CF! This month I will do my best to show you the bad and the ugly of life with CF, but I will also do my best to show you the beautiful life that can come out of the resiliency and strength that CF teaches us. #vegansofig #vegansofinstagram #veganism #vegangirl #veganpower #smallyoutube #smallyoutubersupport #smallyoutubercommunity #smallyoutubechannel #veganyoutuber #veganyoutube #KCVPHOTO #cysticfibrosis #chronicillness #anxiety #motivation #inspire #friends #cf #cysters #cfer #CFlife #cfawareness #cysticfibrosisawareness #invisibleillness https://www.instagram.com/p/Bw8wzOWAqs6/?utm_source=ig_tumblr_share&igshid=1vdinmlrw8adc

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Missing Ville Quebec, Good Friends and the beautiful Le Chateau Frontenac 💜❄️ #vegansofig #vegansofinstagram #veganism #boxerpuppy #crueltyfree #boxerdog #smallyoutube #smallyoutubersupport #smallyoutubercommunity #smallyoutubechannel #veganyoutuber #veganyoutube #winter #hellowinter #happywinter #newyear2019 #KCVPHOTO #cysticfibrosis #cysticfibrosisawareness #chronicillness #anxiety #mentalhealth #motivation #believe #QuebecCity #Wander #Wanderlust #Travel #French #Francophone #Français (at Fairmont Le Château Frontenac) https://www.instagram.com/p/BvR3gA5Hkjw/?utm_source=ig_tumblr_share&igshid=16p4mqo53yt7p

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💜❄️💜 #vegansofig #vegansofinstagram #veganism #boxerpuppy #crueltyfree #boxerdog #smallyoutube #smallyoutubersupport #smallyoutubercommunity #smallyoutubechannel #veganyoutuber #veganyoutube #winter #hellowinter #happywinter #newyear2019 #KCVPHOTO #cysticfibrosis #chronicillness #anxiety #mentalhealth #motivation #believe #QuebecCity #Wander #Wanderlust #Travel #French #Francophone #Français (at Quebec, Quebec) https://www.instagram.com/p/Bs6te1fH0K6/?utm_source=ig_tumblr_share&igshid=10cr1uqjwdloy

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“Owning our story can be hard but not nearly as difficult as spending our lives running from it. Embracing our vulnerabilities is risky but not nearly as dangerous as giving up on love and belonging and joy—the experiences that make us the most vulnerable. Only when we are brave enough to explore the darkness will we discover the infinite power of our light. “ ❄️💜🌎⠀ #vegansofig #vegansofinstagram #veganism #boxerpuppy #crueltyfree #boxerdog #smallyoutube #smallyoutubersupport #smallyoutubercommunity #smallyoutubechannel #veganyoutuber #veganyoutube #winter #hellowinter #happywinter #newyear2019 #KCVPHOTO #cysticfibrosis #chronicillness #anxiety #mentalhealth #motivation #believe #QuebecCity #Wander #Wanderlust #Travel #French #Francophone #Français (at Vieux-Québec) https://www.instagram.com/p/BslzzaYn3vF/?utm_source=ig_tumblr_share&igshid=e1qpobspl2h

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Already missing Old Quèbec City 🇨🇦😩💜❄️🇫🇷⠀ #vegansofig #vegansofinstagram #veganism #boxerpuppy #crueltyfree #boxerdog #smallyoutube #smallyoutubersupport #smallyoutubercommunity #smallyoutubechannel #veganyoutuber #veganyoutube #winter #hellowinter #happywinter #newyear2019 #KCVPHOTO #cysticfibrosis #chronicillness #anxiety #mentalhealth #motivation #believe #QuebecCity #Wander #Wanderlust #Travel #French #Francophone #Français (at Vieux-Québec) https://www.instagram.com/p/BsZcD03nK-I/?utm_source=ig_tumblr_share&igshid=ywmc6fzmyarx

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🍂🍁🍂🍁🐾☕️🌾🌽💜#vegansofig #vegansofinstagram #veganism #vegangirl #veganpower #crueltyfree #plantpower #smallyoutube #smallyoutubersupport #smallyoutubercommunity #smallyoutubechannel #veganyoutuber #veganyoutube #autumn #helloautumn #hellofall #happyfall #happyautumn #autumn2018 #KCVPHOTO #cysticfibrosis #chronicillness #anxiety #mentalhealth #motivation #inspire #believe https://www.instagram.com/p/BqYvaCFATci/?utm_source=ig_tumblr_share&igshid=1w4iy3jw7u17r

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Wherever you go, go with all your heart 💜. #vegansofig #vegansofinstagram #veganism #boxerpuppy #crueltyfree #boxerdog #smallyoutube #smallyoutubersupport #smallyoutubercommunity #smallyoutubechannel #veganyoutuber #veganyoutube #winter #hellowinter #happywinter #newyear2019 #KCVPHOTO #cysticfibrosis #chronicillness #anxiety #mentalhealth #motivation #believe #QuebecCity #Wander #Wanderlust #Travel #French #Francophone #Français (at Vieux-Québec) https://www.instagram.com/p/BuY7MLVnpBp/?utm_source=ig_tumblr_share&igshid=q8m69ldsh2b

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“Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today.” #vegansofig #vegansofinstagram #veganism #vegangirl #veganpower #crueltyfree #plantpower #smallyoutube #smallyoutubersupport #smallyoutubercommunity #smallyoutubechannel #veganyoutuber #veganyoutube #autumn #helloautumn #hellofall #happyfall #happyautumn #autumn2018 #KCVPHOTO #cysticfibrosis #chronicillness #anxiety #mentalhealth #motivation #inspire #believe https://www.instagram.com/p/BomlqcngwFE/?utm_source=ig_tumblr_share&igshid=1nam8s3me88vd

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“Sometimes the smallest step in the right direction ends up being the biggest step of your life. Tip toe if you must, but take a step.” #vegansofig #vegansofinstagram #veganism #vegangirl #veganpower #crueltyfree #plantpower #smallyoutube #smallyoutubersupport #smallyoutubercommunity #smallyoutubechannel #veganyoutuber #veganyoutube #autumn #helloautumn #hellofall #happyfall #happyautumn #autumn2018 #KCVPHOTO #cysticfibrosis #chronicillness #anxiety #mentalhealth #motivation #inspire #believe https://www.instagram.com/p/BoKePAHA5i0/?utm_source=ig_tumblr_share&igshid=1h1ws4sy7b8u0

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My sweet cuddly princess Grace on her last night of being a terrible two...or not so terrible in her case 😘💜🐾#vegansofig #vegansofinstagram #veganism #boxerpuppy #veganpower #crueltyfree #boxerdog #smallyoutube #smallyoutubersupport #smallyoutubercommunity #smallyoutubechannel #veganyoutuber #veganyoutube #autumn #helloautumn #hellofall #happyfall #happyautumn #autumn2018 #KCVPHOTO #cysticfibrosis #chronicillness #anxiety #mentalhealth #motivation #miniboxer #believe https://www.instagram.com/p/BoqCOUFgFQL/?utm_source=ig_tumblr_share&igshid=xd5otwhopiop

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“Start by doing what’s necessary; then do what’s possible; and suddenly you are doing the impossible.” #vegansofig #vegansofinstagram #veganism #vegangirl #veganpower #crueltyfree #plantpower #smallyoutube #smallyoutubersupport #smallyoutubercommunity #smallyoutubechannel #veganyoutuber #veganyoutube #autumn #helloautumn #hellofall #happyfall #happyautumn #autumn2018 #KCVPHOTO #cysticfibrosis #chronicillness #anxiety #mentalhealth #motivation #inspire #believe https://www.instagram.com/p/BoSC4EbAwwZ/?utm_source=ig_tumblr_share&igshid=h951bauu967u

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“Time is priceless, but it’s free. You can’t own it, you can use it. You can spend it, but you can’t keep it. Once you’ve lost it you can never get it back.” #vegansofig #vegansofinstagram #veganism #vegangirl #veganpower #crueltyfree #plantpower #smallyoutube #smallyoutubersupport #smallyoutubercommunity #smallyoutubechannel #veganyoutuber #veganyoutube #autumn #helloautumn #hellofall #happyfall #happyautumn #autumn2018 #KCVPHOTO #cysticfibrosis #chronicillness #anxiety #mentalhealth #motivation #inspire #believe https://www.instagram.com/p/BoYzhmnhKIV/?utm_source=ig_tumblr_share&igshid=1da6h8p3ce7qu

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“Maybe life isn’t about avoiding the bruises. Maybe it’s about collecting the scars to prove that we showed up for it.” #vegansofig #vegansofinstagram #veganism #vegangirl #veganpower #crueltyfree #plantpower #smallyoutube #smallyoutubersupport #smallyoutubercommunity #smallyoutubechannel #veganyoutuber #veganyoutube #autumn #helloautumn #hellofall #happyfall #happyautumn #autumn2018 #KCVPHOTO #cysticfibrosis #chronicillness #anxiety #mentalhealth #motivation #inspire #believe https://www.instagram.com/p/BoP5F0CA7gj/?utm_source=ig_tumblr_share&igshid=oe9rbxfjrbh8

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SHE DOESN’T EVEN GO HERE. I hope everyone’s Halloween was MAGICAL and SO FETCH! 🧙🏻‍♀️💋🕶👻 🎃 #vegansofig #vegansofinstagram #veganism #vegangirl #veganpower #crueltyfree #MeanGirls #smallyoutube #smallyoutubersupport #smallyoutubercommunity #HarryPotter #smallyoutubechannel #veganyoutuber #veganyoutube #autumn #happyfall #happyautumn #autumn2018 #KCVPHOTO #cysticfibrosis ⠀ #chronicillness #anxiety #mentalhealth #Gryffindor #YoureAWizardHarry #HappyHalloween #Halloween2018 https://www.instagram.com/p/BpougQGA0cp/?utm_source=ig_tumblr_share&igshid=6n1o5to7qh05

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“The wound is the place where the light enters you.” #vegansofig #vegansofinstagram #veganism #vegangirl #veganpower #crueltyfree #plantpower #smallyoutube #smallyoutubersupport #smallyoutubercommunity #smallyoutubechannel #veganyoutuber #veganyoutube #autumn #helloautumn #hellofall #happyfall #happyautumn #autumn2018 #KCVPHOTO #cysticfibrosis #chronicillness #anxiety #mentalhealth #motivation #inspire #believe https://www.instagram.com/p/Boj28kOAYDx/?utm_source=ig_tumblr_share&igshid=92ljl2sg6n3h

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Some Spring feels for your Monday morning, featuring the Grape Hyacinth. 😊💜🌞🌱🍇 #vegansofig #vegansofinstagram #veganism #snow #warmandcozy #vegangirl #KCVPhoto #veganpower #veganshare #veganeats #cozy #carbingup #bananas #fruit #dessert #crueltyfree #plantbased #smallyoutube #smallyoutubersupport #smallyoutubercommunity #smallyoutubechannel #veganyoutuber #veganyoutube #veganfood #veganeats #springtime #grapehyacinth #sunshine #chronicillness