#im so frustrated im gonna cry i think
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little-pissbaby · 1 month ago
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as always, we're complaining under the cut. tw for medical PTSD, mentions of medical procedures, personal/graphic descriptions of my fucked up little body, extremely privileged whining, it's worth it for the cat at the bottom tho
I am exhausted by the number of appointments I have. I've become the kind of person who has multiple appointments every single week. This week and next week are three appointment weeks, and those appointments always lead to scheduling MORE test/procedures/office visits.
I had an appointment with my urogynecologist. Given my history of neurogenic bladder and severe stage IV endometriosis, she's in agreement with me that it might be time to at least consider a bowel diversion, if not a total colonoscopy. This would be done in addition to a bladder diversion because self-catheterization has proven unsustainable and, frankly, dangerous for me to try to continue. I'll likely have a foley placed tomorrow morning that will stay in until I can get in to the urological surgeon, who has not called to schedule yet. I have the colorectal surgery consult next month and the neurourology consult a month after that. Just thinking about it gives me a headache.
I also have an EEG in a few days to see if the blackout episodes I've been having are epilepsy, and if it is, I'm not sure what we'll do since I'm already on a good amount of anticonvulsants. I have a feeling I'm going to leave that test with a migraine and no answers, which was exactly how the EMG/NCS I had done in my hand last Friday went.
Other things I've started include using a CPAP machine. I thought this shit was supposed to help you sleep better, but instead I'm waking up many many times in a two hour window, the pressure being pushed into my lungs is dislocating my ribs, I'm getting bloated from wearing it, and the pressure is coming out of my eyes and ears too due to a deformity in my inner ears called patulous eustachian tubes, so now my constant migraine is back in full force. I'm nothing but bloated and irritable as hell, but if I don't use it for at least four hours a day for at least 24 days a month, medicaid won't pay for it and I will have to pay out of pocket to buy the machine. My mother price checked it, it costs ~$1300 to buy the machine I have. I might just give up and give it to my brother, who also needs a CPAP but who doesn't also have EDS and is, therefore, not prone to ribs dislocating.
I met with my 4th electrophysiologist and that was a frustratingly and dangerously nonproductive appointment. He did not speak or understand spoken English well enough to be allowed to practice medicine in an English-speaking country imo. I don't give a shit about an accent, I don't think people need to "go back to where they came from" or that they need to speak English exclusively, but man it is so important in the field of medicine to be able to actually understand what your patient is saying to you. He had no idea what the condition I have even was, and he assumed I made all of these diagnoses for attention but would "humor me" and wrote IN HIS NOTES that I "insisted" on a holter monitor and tilt table test. I got these orders from Duke university, the closest university to me that has a genetic electrophysiology department and a dysautonomia clinic, both of which I was being seen at until Duke stopped taking my insurance. I was trying to tell this absolute worm brain that I was telling him what the top specialists GLOBALLY told me to have done, but I was just being young and attention-seeking I guess, I'm so dangerously angry about it, it makes my chest hurt to try and articulate just how badly this EP fucked it up for me.
I realized in the middle of a visit with my PCP on the 30th that I am not working towards a goal. Most people go to the doctor with the goal of Get Better Enough To Work, or Get Better Enough To Take Care Of The Kids. I don't have that. I'll never be able to hold down a job and I can't and don't want to have children.
I feel like the shittiest friend on Earth too because a good friend of mine only lives four hours away, but as much as we'd both like to visit, I have to schedule everything in my life around what's starting to look like a year packed with surgeries. I can't just pack up and go visit him, I come with medical equipment now. Between meds, splints, incontinence supplies, and the CPAP, I have to basically haul around a small urgent care center everywhere I go. I hate that I have to be planned around.
For a few wins, I do not have carpal tunnel, and when I had my A1C checked at my last PCP appointment, it was 4.9! Every doctor who finds that out informs me even their own A1C isn't that good because they like some specific sweet treat too much. My secret? No one has said they liked something that doesn't have dairy in it, and I've had a dairy allergy since birth.
anyway. I turned 26 just over a month ago and my beloved medical advisor turned 1 year old the same day. she's my birthday buddy :) it's weird having an Adult Cat in the house now, she's not the teeny tiny kitten that sneezed in my eye and gave me pinkeye anymore.
thanks 4 reading, besties. until my next frustratingly whiny and Packed Full of Info update <3
pictured: my big adult girl and medical supervisor 🥰
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ratatatastic · 24 days ago
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maffhew who refuses to say runebergin torttu because he knows hes gonna butcher it so bad he might be kicked out of the country the second he tries and staunchly avoids that by going "the one dessert that barky is going to have to explain 😃"
sasha who gets faced with the most generic description of everything hes ever eaten in his life so far because of maffhew and going "???... oh you mean runebergin torttu!"
"he did good he liked the food and he likes the finland so far so its good" sasha says with so much pride now that all the anxiety has left his system that his husband teammate is enjoying his country and doesnt hate it
media availability | 10.29.24 (x)(x)
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the smile of a man who knowlingly doomed his husband and said husband using all his brain power to context clues his way to whatever the fuck he just got asked that his brain is running hotter than a mid 2012 macbook air thats somehow still alive in the year of the lord 2024 but girl does she chug along shes louder than a fighter jet
#matthew tkachuk#aleksander barkov#florida panthers#2425#the famous vanha kauppahalli date™#we know how bad he is at pronouncing words not in english he does not want to fuck up his husbands language in front of him#(the nhl stars try to speak german video has entered the chat)#different attitudes here lmao#“he did good” mate he was... eating food... what... what is there to praise here..?#i shivered sweet mary and joseph sasha this is how you praise maffhew? yeah id be an annoying little shit about it too#whatever they have. unexplainable. i wont even bother#im glad to see pie and cake are still very confusing for esol#somehow ive had the conversation with several different people in my lifetime and realised even i dont know what the fuck it is#in the sense that when i translate pastries into english for my american friends i just pause and go#wait... i think this is a pie... but its called a tart in spanish but its also kind of a cake? and- [windows reboot sound]#ive had to do this with pastafrola and im like please just eat it dont make me explain im gonna cry if i do#I DONT KNOW WHAT IT IS IN AN ENGLISH CONTEXT BECAUSE IT DOESNT EXIST IN AN ENGLISH CONTEXT TO ME JUST EAT IT#“so whats the difference between a torta and a tarta and isnt a tarta kinda like a pie-” “stop asking questions you dont want answers to”#you have no idea how upset i get trying to explain#im glad sasha at least protrays a little of that frustration by going “i dont know english word” girl SAME
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opens-up-4-nobody · 2 months ago
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...
#oh lads. lads. lads. lads. im being sucked back into the world of academia#i dont even kno what happened. a week ago i was crying bc i was like: this is impossible. i simply cannot do this.#and then i went into the lab sunday and miraculously i was able to easily read some papers. like i dont kno how to discribe how baffling it#was. like reading papers is like pulling teeth and this was somehow easy. i think maybe it was bc i let myself get distracted and wander#thru it. and then after that i got so much done this week and i was tired but having fun. and like the thing is: i fucking love evolution#it's like puzzling out the code for life in both a metaphical and literal sense. its fucking incredible. and my project is also very#interesting. if a bit intimidating in its scope. ya kno. just in the way photosynthesis is generally intimidating#but i think i have a strain thats lost chlf which is really interesting and my advisor said we might have the money to try some crispr for#my cyano children. hypothetically. maybe. and i get to do some poking around in genomes. theres so so much to love there#how could i possibly want to do anything else? and yet. and yet. here at the end of the week im so wrung out and i kno i just have to start#again on sunday and i kno im gonna have to step it up in terms of reading if i want to make it through a committee meeting and proposal#defense. not to even mention a comprehensive exam. and what do i get at the end of all this? a lifetime of academia draining my life away.#bc what i do is so academic. so whats the point? its just so frustrating.#and on top of that ive got all this data from my old lab that i kno i have to work on. and i will. i will. but with what time?#anyway the point is. i can see a path forward now where i stay here and decide the pain will be worth it despite not knowing where im going#after that. im just so tried#but right now it feels like im gonna stay until someone kicks me out#but that doesnt exactly make me feel happy. ugh. but if i stay i want to get my old pi to come here and give a seminar. ill warn her how#intimidating the department is tho. we've had 2 talks in the last 2 weeks that were... not good. particularly the one this week#like she couldnt answer a single question they thru at her and didnt seem to kno her data sets. it was hard to watch. anyway. i just want#to see my academic mother again. send me back to the desert! let me rot in a field full of sage#but send me back to the hills of an older mountain range. where i can climb sandstone cliffs and lay in carpets of moss. except i wouldnt do#that bc of all the ticks and threat of lyme disease...#anyway. im still tired. still sad. and there doesnt seem to b a way out#unrelated
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bunnyb34r · 1 year ago
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Having a cranky crabby high frustration day and it made me think of something I hadnt in a long time
I was thinking ab how growing up I wasnt allowed to get mad or god forbid have an attitude (yeah having CPTSD and oh being a literal fucking child will do that to you) and how I would have to lie and say I was "just tired" bc that was more acceptable than "I'm fucking mad at you right now and I know that if I say anything about WHY I'm frustrated, you'll get mad back at ME"
And it's like we all knew it was a lie, like ffs let your kids be mad at you sometimes even when you think they have no reason to be! Especially if they have poor emotional regulation!! And for God sake look in the fucking mirror and see that they are reacting how YOU react to anger!
Idk it just made me mad to think ab how kids and teens aren't allowed to be angry or "have an attitude" and then parents wonder why kids act out. Like when you have no healthy outlet to deal with anger you're going to get it out however you can, and suprise grow up into an adult with anger issues! Who fucking knew!
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jorvikzelda · 4 months ago
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reading is… frustrating. I first read this thing when I was in an all too foggy state, I’ll think, so I didn’t really absorb it all too well — I’d best read it again and really make sure to take it all in. And so I do, and I really do take it all in! Except then I’ll be all too foggy to read for a few days, and when I get back to it and continue on to the next chapter I’ll just have. Completely forgotten what happened in the last. Makes you feel rather defenceless to the fog
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bunnyboy-juice · 4 months ago
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blah blah blah blah blah
#i have real thoughts rn i am just so overwhelmed with feeling that this is all that can come out#tldr: i wish i could just spend my time traveling and treating women how they Deserve to be treated (well. loved)#thinking about how many people i see who are so deeply sad#thinking about how many ppl ive had a positive impact on even if we ended on terrible terms#thinking about how many more people i could help if i just had the resources ....#thinking about how fucked the psychiatric industry is and how so many therapists suck#thinking about how i actually love being the mommy therapist friend a lot of the time and my limits surrounding that really just come from-#-the fact i Dont have the resources to do this for everyone bc i also have to manage other things in life and work and such#thinking about how if i could i would actually do free emotional labor like. all the time.#thinking about how much it sucks i cant do this#thinking about how much i want to hold every sad girl i see on my dash and let them cry into my arms until they cant anymore#thinking about how much i love my friends#thinking about how much I love...... everyone i meet#not in the like Romantic way but in the “oh hello. you crossed my path. i love you. i love you. i love you. thank you for being alive” way#thinking about all the people who have harmed me and how i Still feel so much love for all of them#thinking of the strangers who have been both rude and kind to me and how much i think of them. how deeply i hope they're still alive.#it..... hurts to love this much ngl#but pushing it down feels worse and im full of this feeling of tender frustration????? because of it#i love that i have so many people who allow me to love them and love me in return#i want to reach through the screen and kiss every follower and mutual and person i follow on the forehead and tell them I love them#i wish i could express more love for people w/o them falling In love with me or being weirded out thinking im In Love w/ them....#i wish i could express better that its not that im aromantic but that i just have so much love at my baseline that its hard for me to-#-Fall in love unless we constantly are talking and communicating and like. working to that together without sounding like a jerk or like im+#+a saint. im not a saint. im not. i just love you. ):#ANYWAY sorry for all those feelings if i didnt get them out i was gonna explode#that also definitely wasnt really a tldr
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jasmancer · 5 months ago
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god this fucking sucks.
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zoppzoop · 6 months ago
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GAAHAHHHHH
#venting in the tags#maybe its just past darkness and the Bad Thoughts which i shouldnt listen to are clouding my brain too much#but i feel so fucking weird and inadequate over everything rn#im unable to work on drawings as i usually would have and its kinda plaguing everything which it should like yeah i love drawing but#i cant let just one aspect of me ruin everything. right? the fact that i havent been able to draw as well as i usually can should make me#feel sick to the stomach and unsure about everything i do but it happening and i hate it.#plus i got the ipad id saved up from the comms to buy and its fun and nice and all and maybe i just need more practice with it but i feel#like im not able to draw on it even more? and i spent the whole day trying to get used to it but its just not as good?? and then when i went#back to the no screen wacom i couldnt get a hang of it becuase idek its just not happening#and also the fucking art block wants me dead i swear i want to draw so bad and i have so many ideas but the moment i start anything its just#crumbles down into nothingness and i hate everything i do and gods fuck i want to cry but i can because there are people at home and#usually im a big 'crybaby' when im at home but i dont fucjing wanna be like that anymore like i can handly my shit myself im fine.#i dont need to just fuckinf cry abiut it becuase thats not gonna fox anything but also i feel like crying might just make me feel better#but then id have to hear shit from my family and i know theyre just teasing in a /pos way but i dont wanna fucking deal with that#plus my brother iust talking to him os annoying sometimes like he talks about things so condescendingly and fucking hel dude shut#the fuck up i dont need you telling me that my art is something people can 'just do' and the fact that i was able to get the ipad#'basically for free since i got that money from the little drawings i make' as if they dont fucking mean anything to you like#shut the fucking fuck up dude i worked hard on those and even though i dont like my own shit sometimes i still fucking work hard on those#fuck you you bitch#i think a lot of things are just piling up and i need to sleep#tomorrow will be a new dawn and a fresh start and maybe ill hate myself less#ps. note to anyone reading the tags#im fine i just needed to yell out and express my frustration a bit. some sleep will help surely.
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kateis-cakeis · 4 months ago
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people are really so weird and so fatphobic huh
(and oops most of my commentary is in the tags XD)
#people really out here acting like some chocolate is gonna kill you#idk maybe you should check how stats and data actually work and not just blindly trust things that get it wrong and such#because hate to break it to ya but increased risk does not equal absolute risk#it just increases the risk which is normally only by a small margin and doesnt mean anything in reality because it doesn't mean that it's#absolutely 100% going to happen that's not what risk or increased risk means#anyway this reminds of when a friend of mine took part in a study#and they were like oh yeah you have a 6% chance of a heart attack in the next 10 years#they asked if they lost weight would that decrease by a lot and the person was like uhh by like 1% it's really not the big deal everyone#makes it out to be people are just fatphobic because that's the society we've built that at all times you must be skinny#or you aren't worth anything or worse when people act like you're such a strain on the system#and that you dont deserve to have healthcare like i will scream#everyone needs to stop being so damn weird about it!!!!!!!!!!#it's literally fine it's so literally fine#you know actually thinking about increased risk with alcohol and smoking - to which is totally your choice and up to you btw#i knew someone who smoked like a chimney and drank like a fish and lived to his 70s and died of something completely unrelated#increased risk is just that increased by a certain percentage which is like not a lot in the grand scheme of things to really put it into#perspective when you have like 1 in 100 chance and the increased risk is 100% that just raises it to 2 in 100 which yes is just 1% to 2%#i will scream when people act like food is going to kill you - especially when it gets so bad people act like fruit is bad for you because#of sugar like i will cry i will start sobbing because all of this is why im pretty sure most people have disordered eating#if not full on eating disorders and that's the real concern how our attitudes make people change their behaviours and develop mental health#conditions because society is just so insistent on this one issue that you can't escape it's bad it's so bad and i hope one day#we get past all this and people can just live how they want without others getting on their backs#fatphobic people are the reason why so many people i know think they're worthless and ugly and i just that's so upsetting to me and yes yes#there's the major issues like doctors ignoring symptoms in favour of just lose weight! and then just send people into the world with 0 help#in that oh and oops now they've got an eating disorder when the problem in the first place was not weight <.<#and even if it was (which it rarely ever is) it's like okay where's the help then because there is no help and then study after study is#like oh btw dieting doesnt work lol and then what do you do what do you do im gonna start screaming hdfghsdfg#anyway sorry these tags are long im just so tired and so frustrated at the world and i hope one day people get over themselves
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donttouchtheneednoggle · 1 year ago
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shout out to thomas from ghosts for yoinking me out of a panic attack before it could really get going
#was shaking and trying not to cry and floating somewhere on the ceiling#then friday im in love came on the radio and reminded me of him doing his stupid little dance and it made me smile and calmed me down a bit#but i gotta give myself credit for not panicking at the panic too much and feeding it more#time was when feeling the thing i felt from first year tm would've sent me into a week long spiral#feels so stupid tho all it was was my volunteering manager asked if i wanted to start doing a longer shift#when im already struggling doing two measly hours a week and nothing else like jfc#but that's cos im not on my adhd meds which make life yknow tolerable and im gonna try getting back on them next week#and i also don't wanna start anything else bc i wanna change my name first so it's not quite so complicated#hahaaa it's already complicated and confusing and frustrating as all hell#but ik if i can just be patient and take these few months to figure stuff out it'll be so much better in the long term#im getting support for the gender tm and I've made so much progress in a month#i still feel guilty and ashamed bc im not actively job hunting or doing more volunteering#and like im just making excuses to let my anxiety win when ik i can cope with it#but i can't handle going into another situation where im misgendered and uncomfortable with my name#im at the end of my tether with it and i need to figure it out#wahoo#mine#vent#in good news tho im pretty certain im a dude more sure about pronouns and have a potential name im thinking of!!
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undistortedworld · 1 year ago
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GUESS WHOS GETTING A NEW JOB WOOOO \^o^/ can leave this awful place lol B)
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opens-up-4-nobody · 7 months ago
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...
#ugh. im so tried. why is crying so exhausting? i havent done anything. this is bullshit#we went from a slow motion breakdown to full on freakout meltdown today#luckily no one was around in the lab this morning bc i couldnt stop crying#so i went to the counseling center and made myself their problem#canceled my committee meeting. which everyone tells me is fine. its all fine#think about going home for a while they say. maybe tell ur dad ur having a bad time thry say#but im so tired. and i dont kno what to do and its all falling apart#i just feel like im brushing up against the limits of what i can do intellectually and its like well where do i go from here?#what do i do with my old data? how do i move my project forward? whats the point of any of this?#why did i put myself in this position? would taking a leave even help? id still have to come back to the same mess#its just so frustrating bc theres no solution ill find satisfying. everything just sucks.#idk what my advisor even told my committee. bc we were supposed to meet tomorrow morning. ugh. it would have been so bad#it also sucks bc im so drained that i can just feel my own weight when im trying to talk to ppl#like u kno when ur being a wet blanket but u dont kno how to fix it. like srry my vibes r wretched. maybe im just stuck like this#i dunno. my dad invited us home for a week in july and also plans to come out to visit me in August. but that seems like a long time away#i dunno what im gonna do. what a disaster#unrelated
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gibbearish · 11 months ago
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the thing with autism right. is i know if i was having a full mental health crisis what i would end up doing is going to the emergency room and being like "hello, my name is (x) birthday (y), um i was hoping to talk to you about potential mental health inpatient care? i'm currently having a mental health crisis and don't think i can be trusted on my own" like if there's one thing i can be sure will live on in me no matter how hard the brainworms try. is my fucking customer service voice
#like itll be busted as fuck because ill be freaking out but you bet ill be sobbing my way through verbally drafting an email#ive done it before‚ like im a frustrated crier and once i start crying i cant turn it off so ive had a couple times where i had a breakdown#at work‚ cried about it a lot‚ and my lead pulled me into a meeting room after i calmed down to check in#and as soon as i started talking it just started again so i had to be like 'sorry th-this is just something m-m-my bod-dy does‚ i-i'm calm#m-mentally but i just c-cant turn this-is off‚ just try to i-ignore HIC it and f-f-focus-s on the w-wwwords‚#(tired of crytyping so just mentally fill it in yourself in everything else i say)#n they offered me more time to chill but im like no really i genuinely am calm‚ i calm down wayyy before my body does its gonna#keep doing this on and off all day‚ it takes hours for it to fully calm down and is on a hair trigger the entire time#so thinking about this will make it kick back up again no matter what unless we talk tomorrow‚ so if youre ok with bearing with me then cool#and theyre like. dang ok and just focused on what i said#or much more recently i was talking to my roommate‚ stopped‚ held up a finger + stood there silently for ten seconds‚#then was like 'sorry about that‚ i think i have to throw up. excuse me for a moment. what was that? oh gotcha yeah i'll message you if i#need anything‚ thank you'#and just typing it out like that it sounds like i was fine and just saw it coming a ways away. however that is not the case#i had had my covid booster and some other vaccine earlier that day‚ lost 5 vials of blood‚ eaten Nothing‚ drank only#acidic-ass apple juice‚ and had just hit my vape too hard#keeping it in once it made its presence known was a feat of will the likes of which have never been seen before#and still my sentences prevail
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dizzybevvie · 1 year ago
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Feel free to ignore this!!! this is kinda like public journalling?? i dont wanna keep talking to my friends about it <3
#So obviously i dont want to “make this about myself” but im gonna push that aside to examine my own thoughts foe a bit#obviously 6 hours isnt a good time scale but i want to get this out of the way#so ive journaled some thoughts about how I WANT to let myself feel discomfort#-and gross and stuff so I can release it instead of pushing it aside and just prolonging the feeling#I want my brain to know i forgive myself for feeling like this in spite of not being the injured person because its normal#I am not worried for the guy that got hit because I know that other than a broken leg he is all around okay#although i did find out that my age estimate of 13-14 was wrong and hes actually 11 or 12#i feel bad for him obviously !!!#but this is for me to get out my own feelings#I am easily disturbed and his leg was VERY broken#ive not broken a bone before (or really been injured at all) and it made me very uncomfortable#I felt sick and/or like i was going to cry#I called my mum but she had to go in a rush because of Plans (totally fair!!!!)#The noise of the hit was insanely loud and definitely whats twisting me up the most#since i wasnt looking i dont know if it was just him getting hit OR if it was also the bone snapping#although the bone snap could 100% be something my mind made up#i think thats psrtly whats frustrating idk how much of this is real#like I thought i saw the inside of his leg but i almost definitely didnt#i dont know#im not like. DISTRESSED.#Im just feelinf kinda queasy i havent stopped thinking about the noise it made and how LIMP his leg was#I was so anxious crossing the roads on my way home#and getting off my bunkbed makes me think im gonna snap my ankle everytime#But its natural to feel that yknow?? like ill move forward and after that ill be able to move on too#I think feeling it is the easiest way to do this i dont want to push it down#i cant ask for a day off for reasons#oversharing on main#beverly says stuff#tw bones#tw car accident
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4x01 · 1 year ago
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:-D
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cerbreus · 2 years ago
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it’s been a hellish last couple months dealing with being caught in the crossfire between incompetent rental car agency that is mad at me and incompetent car insurance company that didn’t tell me the person handling my claim fucking QUIT and MY CLAIM WENT FORGOTTEN FOR MONTHS and it still isn’t resolved in fact things have gotten worse and tbh, when i have major stressful setbacks in life, my body and brains’ response is to just. not. do anything. just shut down. intense fatigue, inability to focus on literally anything because the background level of stress is so high.
#bro im gonna cry#fucking got blacklisted from one of the largest rental car companies in this country and it is apparently#impossible to get off the 'do not rent' list#whats making me more upset is that i literally called them the day the windshield cracked i got things sorted out before i even dropped the#car off and still shit is so far out of my control and now i'm stuck with all these repercussions that shouldn't have happened if my#insurance that i pay a hell of a lot of money for wasn't so incompetent#bro apparently even my ROOMMATES can get blacklisted for sharing an address with me#worse yet payment has been sent out but the company is still going 'fuck you pay me killyourself never talk to us again once u pay this'#i can't get ahold of the DRU person in charge of my claim on their end to find out what happens#so it might end up going to collections anyway which will perma fuck up my credit score which i've been trying. so hard. to raise.#being an adult is a fucking nightmare i want to sleep i can't focus for longer than 5 minutes on anything before i start getting that dread#its so frustrating i can't enjoy my hobbies i can't enjoy my work (which is going well right now) bc i'm so stuck on this i need this to go#away so i can regain my brain's normal functioning and yes i have anxiety this is the worst it's been in a while though#anyway sry for the venting i'll be fine it'll be fine my insurance WILL pay for this and things will be fine (probably) once that goes thru#not that it didn't add to my stress enough that my bp probably took another year off my life lbr#personal stuff#delete later i think#DO NOT rent a car without taking the damage waiver it doesn't matter how much it costs or if you have insurance just take the damage waiver#don't be me
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