#im gonna have such bad migraines
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Im genuinly so pathetic because after years of caffeine addiction I finally try to quit just because my crush told me he quit a year ago 😔🤚
#im gonna have such bad migraines#but having an energy drink addiction is also highkey embarrassing so it was overdue
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Second silent migraine in two days ☄️☄️☄️☄️☄️
#I HAVE TO GO PLATE MY CELLS IN THE BSL3#I CANNOT BE HANDLING MYCOBAXTERIUM TUBERCULOSIS WITH THIS BRAINFOG#im gonna take a minute for the meds to kick in and if they dont help im gomna havr to tell my boss this isnt gonna work UUUUUUUGH#thankfully shes seen me have a silent migraine she knows how bad my brainfog is and that i should NOT!!!!!! be trusted with mtb with it
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y'all. i swear. able bodied people. ohh my fucking god. oh my god
there's a flavor of ableism im experiencing where some people think they are my fucking life coach and handler that i didn't ask for and mind you they interact with me once a month at BEST.
they think that since im disabled im automatically mopey, self pitying, clueless on my own body, etc etc etc, to the point where they're passive aggressively suggesting to my ROOMMATE that they are enabling me????? did i mention these people see me one time in a month AT BEST. and most of those meetings aren't in person. oh. my fucking god. oh my god.
truly they are just mad i'm disabled. they're solely mad that i can't do things 'normally'. they're mad i need more time to rest and that i'm usually in some sort of pain. that's why they keep slapping on basic remedies like just do this and do that and then they get mad when that doesn't work or i literally can't do it bc i am DIS-abled. quite literally bc im not fucking abled to their liking. they'd prefer i was in pain and looking normal for the sake of it.
and they view disability as a sad useless life. the way i hold myself and take care of myself shows inherently that i value my own happiness and capabilities and im willing to take unconventional ways to achieve it. i don't hide it. i don't hide my cane because i need it and it helps me be happy and capable. i don't hide that im semi verbal. if i can't talk i won't talk and i'll communicate in other ways. because i need to. it keeps me happy and capable. so for them to see me, not to be cheesy, living authentically, and for them to see that as me 'doing nothing to help myself/moping/languishing in pain' is a reflection of how they see disability. when they eventually become disabled from age or a major life event, they'll run themselves into the ground, 'pushing through the pain' trying not to look disabled. but that's their choice. that's their body.
what i wanna know is why they feel so entitled to make that decision for me.
#im not TWELVE. and still even 12 year olds deserve a level of autonomy and if not possible then to be active in decisions made for them#*an active part#like oh my god#make your ableism your own problem not mine#i'm not gonna regress to make you comfortable#one of em today literally said something akin to 'well can you do anything normal' NO motherfucker i'll have a migraine#is that what you want so bad#you want me doubled over in pain but at least the window shades are open so i can look NORMAL. listen to yourself. god#handmadeorganicpost#ableism#disabled#disability#disabilities
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Me: I'm not sure if my health can withstand a commute. Should I try to go in tomorrow?
Apollo: no
Me: should I plan to work from home?
Apollo: no
Me: ...
Apollo:
Me: migraine?
Apollo: migraine.
#(cue it starting immediately afterwards)#i managed to take some painkillers in time to stave the migraine off but i still felt like shit the next day#so i couldnt have worked regardless#this was monday night (and tbf sunday & monday were *extremely* tiring days. i was falling asleep while crocheting & playing ac#which is rare even considering my fatigue issues)#yes/no divination has been great as a way to consult apollo without pulling out the tarot deck (which is more time consuming and takes#a *lot* more spoons)#the only issue is that when i do the stones or tarot i tend to get on a Divination Kick tm which is. not helpful b/c what am i going to do??#i've already finished asking what i needed to ask???#i should probably funnel that burst of dopamine/hyperfixation into researching different methods actually#gonna add that to the routine#also! working out the kinks with the yes/no method. doing it on my floor? no good. inconsistent results. Feels Bad. Loud#doing it on my bed? wonderful 10/10. very consistent results. Feels Good. not loud#i still do tarot on the floor though b/c having a flat sturdy surface is nice#for reference: my commute is 2-2.5 hrs each way via public transit. the sensory experience drains me *very* fast if im not careful and#we're in Purgatory Weather season where it's *juuust* warm & humid enough to maybe be a problem but isnt one For Sure#*and* the state fair is on so the trains are gonna be packed when im trying to get home#coriander says#helpol#hellenic pagan#hellenic polytheism#apollo#theoi#pagans of tumblr#hellenic community#paganblr
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ngl gamers, I think I'm gonna inevitably lose to the hormones and depression in the near future XD
Can't bring myself to be active cause I'm using a lot of energy to not vent post all the time. But fuck it, into the tags I go!
#I want NO MESSAGES regarding this. let me just be upset and alone#you spend most of your life trying to not succumb to sick brain but honestly I don't think it's worth it in the long run#my life is for better or worse....decent. but I've lost the drive and happiness to really DO anything a long time ago. like whats the point#the only reason I havent killed myself yet is cause Im too lazy (and dont have access to a gun for a quick getaway)#and I'm saying all this DESPITE having stuff to look forward to in the near future. it's like AUGH whats the POINT IM always gonna suffer#why does mental health take such a toll on ppl. this shit sucks ass. and I still feel excited for things in the future too? somehow?#but I also really want to die so. idk man. idk. maybe if I fall in love with someone then I can be distracted but all my walls are up#what's the point in anything anymore. *I* have to take the steps to improve myself and my situation#and I'd rather die. anyways who wants to make a pact that once we reach 40 we will marry each other#that might be fun#also my brain has gotten so bad that I am literally considering joining a hiking club to get out more and I FUCKING HATE HIKING#but I should probably do something out of my comfort zone to push myself and who knows maybe I will find a new passion#but let me tell you about the anxiety - oh BOY it's starting to act up again. hahahha#ah well sometimes you just need to scream your feelings out in the tags to get a lil clarity from the brain fog#one day I will fucking die/kill myself but for now I'll just try to make the best out of. whatever the hell this stupid life is. *shrug*#(but hey if any professional hitmen are reading this. feel free to. heh. you know ;) )#also I need to get back to art#gotta do my paid work and that one pic I lined months ago. and clay stuff *continues to bed rot another week because hahahahahahaha*#ah I wish I didn't fail all those years ago. then I would be free. I wish I was free#ok goodnight I promised myself that I would do paid work when I wake up tomorrow so hopefully no more migraines -pray emoji-
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being the houston mutual means every couple years i just log on like 'hey whats up just experiencing a natural disaster down here. im fine tho'
#honestly this one probably hit me the hardest bc the lack of ac has been hard to deal with#and the lack of sleep and lack of proper diet has left me super brainfogged#plus my phone is broken#work has been overstimulating and tiring#and we have had to throw out massive massive amounts of food which is just sad#i was outside today in the heat and the rain getting melted ice cream on my pants#and a wasp flew in my room#bc the other night i was in a daze and left w my window open to crash out on my friends floor#bc i literally didnt think i could survive another night trying to sleep in the heat#its like almost 90 degrees in my apartment when the ac is off#i had such a bad migraine from caffeine withdrawal too#i woke up trying to drive anywhere to get something to eat#feeling like i was gonna puke for hours and hours#i got a coffee and some fries and pulled through (embarrassing....) kjhjdfgklfhdfgl#me: yeah ive been miserable and in massive amounts of distress and pain and everyone around me is miserable too. but im fine
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having bad pain days suck bc I also get migraines and I keep googling if I can just. remove. the parts of my body that hurt. with the most broken grammar ever
#everything hurts so bad yall#also the migraine typical nausea fucking. sucks#Im hungry but I cant eat bc I feel like Im gonna throw up just by breathing too much#my meds for one of the pain disorders decided to not cooperate so I took a few days off#it was necessary and Im gonna report abt this to my relevant medical professionals#but also motherfucking OW#I typically think I have a pretty solid pain tolerance. like Im the sort of person to walk off slamming my foot against furniture corners#meanwhile I cannot move today at all bc it hurts too much#so just. yknow. perspective#painkillers already doing their work but Im not trying anything in the realm of motion rn#being in pain sucks#-1000/10
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i love the episode where house gives himself a migraine to prove someone wrong but reacts like. well i was gonna say like he's been shot but we know thats not how he reacts so idk
#fun fact#if you dont suffer from chronic migraines#and you get a bad migraine for the first time#its common-ish for people to think theyre having a stroke#bc it also affects your eyesight and cognition. so you cant read as well#and everyone knows that as a sign of a stroke#and your head hurts??? ur stroking out#see this is my problem. one day im gonna have a stroke fr#and im gonna be like oh its my weekly migraine
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mytotally real brain tumor which is real is back every1
#Head in hands. I phrase these posts as a joke bcs I know i know i know im a hypochonriac and its not real#but still still still i think im not insane and that I do have one and that it explains so so so many things#but im never!!! gonna do anyrbing about it!!! because I KNOW headaches and migrains just run in my family and I KNOW its just a lot of#hiccups and I KNOW all these things arent bad enough to be symptoms#but I also know!!!!!!! There is a tumor in my brain!!!!! And im fighting with ny reasonable self saying its not but I know there is one !!!#AUGH. whatecer
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my phone somehow managed to make its way from the side of my bed thats up against the wall, all away across my double bed and to the floor.........
#i just had such a panic looking for it and i can already tell im gonna have a headache and or migraine today....#do i call in sick?? like i Know its gonna happen but its not bad now... idk.....
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everything going exceptionally weird lately. got lsuch low bloog sugar i lost my vision for like 20 minutes n when it came back i was unable to orocess anything i could see n was struggling to think for another hr n i still feel really wrird. lost sensation in my arms for a bit too (they were numb n then tight i felt it in my hands n then all the way up my shoulders) n took a nap n it helped but still scary to experience n that that can just happen just bc i wasnt paying attention to what i was eating. fell asleep watching needle park while my vision was still on the buffer n woke up. fell asleep again to scarecrow n dda. i think im a person again
#its v hard to describe the disorientation?#i was having like blobs of visual snow n then couldnt see half my vision#n then when it came back it was like#i could see but i was blind#my brain could not process new information#i was looking at my phone screen able to go ok i know its bobby i have a bobby axel lockscreen but i couldnt actually see it in front of me#i was struggling to talk too all i could do was pace the living room bc sitting still scared me more#i have this mild migraine still but i can see again so#n i can think again?#the insbility to think was scary but i also wasnt fully able to get scared like it was STRONG dissociation kickin in#i hope this makes sense ive never experienced low blood sugar THAT bad b4#as it was happening i was feeling this unbearable loneliness n grief bc ive been feeling both a lot lately#like obviously im fine im not dying but panic brain was like well if u do die u die alone n forgotten rn#n it is making me feel so distant from everything still idk#gonna finish tidying my room up n write this weekend#work on my commissions. idk. keep applying for jobs n hooe i get a callback b4 i have to work retail or a factory job again#av.txt#i should say its like i never went acrually blind i always had half my vision n ive had half of it go b4 when tired n hungry#but never THAT bad n never also w the confusion
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ah, the ever-more-frequent Urge To Explode My Brain from unending migraines. a migraine that just lasts the day already sucks so bad. whole day is gone in a blur of pain and misery, right ? a migraine that lasts multiple days is sort of like if hell was real and you were in it. time has no meaning, only pain, etc.
months of migraines... with no break or end or effective treatment and also you still have to work and behave like a normal person because you cannot lie in bed for months not paying rent. well id describe it you but ive fucking lost the plot. its gone on so long and its so bad that when the migraine ISN'T at its peaking on the pain scale and making me feel like if i was hit by a truck that would be an improvement, i start to feel like my head is a vestigial organ that has been removed. cant access sensation in my head and it feels literally disconnected from my body. meanwhile the pain is still there (along with the brain fog, vertigo, nausea, etc) but it feels like its happening to somebody else.
#im kind of impressed that i can at this point carry a normal conversation (as good as i ever can. which is bad but irrelevant)#while being in agony and having been in agony for as long as i can remember#usually also with something dislocated just for some extra fun#because what i actually feel like doing 100% of the time is lighting myself on fire and/or screaming forever until i die#however thats the kind of shit that puts you in the psych ward again#so i am. smiling and making small talk while migraine auras wash out my vision and i try not to visibly dry heave#its really really really fucking bad. all the time so fucking bad.#i need to message my neurologist but likelihood of me doing that is low#because 1) the stuff she's put me on has so far done nothing but add intolerable side effects to the hell that i am already existing in#and 2) its fucking hard to do anything. even the bare minimum im not doing. so extra shit is just. not happening#i want to scream.#i am gonna. go for a walk and smoke a cigarette instead and then get really high because at least then i dont really care#the auras are making it really hard to see though. theyre like bleach all over my vision. just this wash of white#hhh.#chronic illness#chronic migraine#and its like. when my knee also gives out and it feels like theres metal in there slicing everything up with each tiny movement#or any of the other one million goddamn things broken in my body#i end up so overwhelmed by pain that i just want to lay on the floor and cry#at which point everyone around me gets mad that im not being productive and im costing them money and im not good enough#like ok kill me then. cheaper for you happier for me. just get a heavy object and go to town i would thank you for it#but i cant even say that because openly expressing suicidality just makes people angrier#im rapidly running out of fucks to give but also i will do anything to avoid returning to the psych ward#literally anything. morals out the window. i dont give a shit.#so its a catch-22.#vent
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a bumper sticker that says “LED headlight drivers, kill yourself”
#DO I JUST HAVE TO ACCEPT THAT IM GONNA GET A MIGRAINE EVERY TIME I DRIVE HOME FROM WORK????#im a fucking event photographer ALL EVENTS ARE AT NIGHT some up to two hours away!!! AND YOURE BLINDING ME#i was at a red light and the car stopped across from me driving the opposite way had bright ass fucking headlights and i was turning left#AND I LITERALLY COULD NOT SEE THE MEDIAN I WAS JUST GUESSING I COULDVE EASILY CRASHED#AND THE LIGHTS HURT ME SO BAD#ive been home like half an hour and my migraine still hasnt gone away
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my PA for ajovy got denied (booo) but the reason it did was bc a neurologist needed to prescribe it which i already had an apt set up for and gad yesterday (yay!) and the appointment went really well and i like the provider a LOT of migraine management (YAY!!!) so now i am once again waiting for an ajovy PA to be approved lmao
#nervous abt needles but jax offered to help plus ajovy has auto injectors so we are going for it#but i really liked the provider she was good and very easy to talk to and stuff!! and am excited to work w her and try things#also got a referral to their sleep clinic bc my sleep is still Bad and also sleep is a big trigger for me#so im hopeful to see what i can figure out/learn from that#this is the year of blue getting health shit figured out lmak gonna get my tonsils removed etc etc lets Go#she also said i could be a candidate for botox if that seemed interesting but i like how like. open ended she was w things#like she gave me a lot of good info but also everything was my call#she also was good when looking at my mri and explained why she isnt concerned abt ms based on mri and symptoms#and in a way where i actually agree lol like. esp bc i get so anxious i can just latch on to something#but she took the time to answer my questions and explain and show what theyd see if it was ms vs my brain lesions from migraines#and Yeah! i was super stressed and like gad cleared my whole afternoon in case it was a bad time#but it wasnt! im v happy w my new neurologist!#wild to have TWO whole doctors on my care team who i like and trust???? as a fat person??? wow#(trust is w a grain of salt lol i dint entirely trust any doctor But)
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guy who wants to watch cool movies but the cool movies dont give a shit about photosensitive people :/
#peach patter#this is abt the newest spiderverse#and eeaao but ive mostly gotten over that#i wanna watch it so bad . i know its absolutely an incredible story . and im excited others get to enjoy it#but damn i wish ppl werent praising atsvs animation to the heavens and higher when it very specifically Does Not care abt photosensitive pp#itsv was bad about this . i could barely watch it . but i keep seeing atsv gifs that are even worse than itsv was#idunno . just complaining . i wish intense flashing wasnt made so normal in movies for the sake of awe or fantastical viewing#or at least that flashing was reduced to the safe limit of flashes per second . or that faster flashes were in very short scenes#and i only get migraines triggered by flashing/eyestrain . people are going to experience seizures because no one is warning them--#how bad/frequent the flashing is . people are going to FIND OUT for the first time they have epilepsy from this movie . its dangerous#and the movie gives no warning . itvs doesnt give warning either . if ur affected u just kinda have to hope u get warned beforehand#whatever sorry this is my bitching session . not gonna delete it but dont be weird okay ? okay <3
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sorry i wasnt active today ummmm. played final fantasy 7 remake for 8 hours straight again
#ripley.txt#i think im just gonna.....finish chapter 18 by watching cutscenes on youtube#there is no way im beating sephiroth in an afternoon and thats what i have <//3#okay i have such a bad migraine its bedd. time
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