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dragonpigeons · 5 months ago
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Hey guys, I wrote two accounts of my time in hospital and after for anyone interested. The first is posted here. The second I will post separately.
Update: Link to Part 2 is here.
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Account I.
Hospital & After: The Physical & Medical Aspects of My Recovery
CW: bodily fluids, blood, needles, minor injuries.
》 Written with Twitter format in mind, edited for Tumblr.
i.
My family and I, we lived a normal existence. My mother was healthy. My father enjoyed a laid-back life but was otherwise healthy. My brother had lactose intolerance but was otherwise fit and healthy.
I had lived a normal life for the past three decades. I was regarded as fit and healthy. I liked to be active. I went for walks often. I ate a balanced diet. I got over illnesses normally. I had no allergies.
The symptoms began 2-3 years ago. More worries started to accumulate. There were more things to consider, more to do, and more to take responsibility for. And, damningly, what seemed like less time to have to deal with them all.
Everything was piling up in me physically. My body was hoarding all the things I wasn't facing and running away from. My body began to suffer under the weight of it all.
My body was slowly dying.
In May ‘24, my ankles started swelling. It built up quickly over the month and reached up my legs and hips. I finally went to my GP. She saw how serious it was via blood & urine tests. My results were off the charts. I was sent to the hospital right away.
At the hospital, they saw my blood count dropping. I had to have a blood transfusion. It helped my bloods somewhat, but I was still building up fluid and wasn't passing much urine. There was still something wrong with my body. I was still unwell.
They did more blood tests and found an antibody reading, which was also off the charts. The doctors told me I had SLE lupus nephritis. My own body was attacking my kidneys, which meant I couldn't pass urine and get rid of the fluid retention.
ii.
I was given a number of injections and IVs over the next few days. A boost to my low WBCs and neutrophils, prophylactic antibiotics, insulin to lower my potassium level, glucose to keep my blood sugars up, steroids to stabilise the lupus and stop the levels from rising higher.
Soon after, they put me on daily steroids in tablet form, along with a bunch of other pills - antibiotics, antifungal, antirheumatic, minerals, diuretics. They seemed to help keep my body stabilised. Though I did start getting side effects and symptoms.
I had insomnia and woke up often in the night. I also began having strange dreams. They felt like everything was submerged underwater. I couldn't understand what people were saying or doing. Also, my bowels were acting up, and I had to go to the toilet often.
All the while, my swelling continued to increase. I had to wait a few days to be transferred to another hospital. It became more difficult to stand and walk day by day. It was like moving with a bunch of clay wrapped around my feet and legs.
The only people I ended up talking to on a daily basis were my mother, who came to visit me every day with home cooked meals, and my brother via DMs. Everything just got too much, too fast. I had to make a lot of life-critical decisions in a short span of time.
Despite all that, I did find myself with time to think. I found myself thinking how crazy it was that my own body would choose to attack itself. I also found myself accepting that it did and what it meant.
Lupus was here to stay. Lupus would be my companion for life.
iii.
In the meantime, my kidney function dropped to 10%. I had a kidney biopsy done. The results were on the lighter side. There was no scarring but a lot of inflammation. The glomeruli were damaged quite severely, but they would be able to recover. My kidneys could heal.
Something interesting happened during all of this mayhem. I had small swollen lymph nodes for the past two years, which finally went away after the first antibiotic and steroid IVs. It was like the trash had been taken out. I felt I could think clearly for the first time in years.
One of the things I realised was that for nearly all my life, I had been caught up in the most trivial of things. Am I being ignored? Did I do something wrong? Do people even like my art? Does anyone actually like me?
I had used my energy on the wrong things. I came to realise, within the four white walls of my minimally-furnished ward room with a crappy plastic bed to sleep on, the more important things in life. Family. Friends. Community. Network.
The doctors proceeded to the next phase of my treatment. Though lupus had been stabilised by the steroids, my immune system needed to be suppressed in order to lower the levels.
Cyclophosphamide is a chemotherapy drug and, at standard doses, is the standard used to treat lupus patients. They explained the procedure and the risks. The first main risk was hemorrhagic cystitis. The second was infertility.
Since I didn't want children, it was a simpler decision for me to make. I had my first dose of the drug the next day. I didn't feel anything. The doctors told me it would kick in after 7-10 days.
Throughout the days, they continued to poke me like a pin cushion, checking my daily blood levels. My arms and hands were covered in bruises by the end. Some nurses were better than others. One had a shaky hand. I bled and bruised with them the most.
On my last day, the trend in my blood results showed improvement. My kidney function went from 10 to 14%. I was discharged that afternoon and waited for my meds. I chatted with an elderly man. I had chocolate biscuits. I was content.
iv.
My father picked me up and drove me back home. I took my first step out of the hospital after two weeks. Though it was summer, the weather greeted me with a cool, cloudy ambience. I opened my arms and welcomed it. I breathed in the fresh air. I smiled.
I was happy to be back in a comfortable bed and in the company of my family again. The environment was much better, more peaceful. I wasn't disturbed at odd hours of the night by nurses checking my vitals or giving me meds to eat.
My troubles weren't exactly over yet. I continued to have heart palpitations, and my swelling continued to increase over the next two days. I got worried that I would no longer be able to move. I feared I would have to be bed bound.
On the third day of being home, I finally felt myself getting lighter. I was passing more urine and going to the toilet more often. I gained 20kg+ since the start of the swelling. I went from 70+ down to 67 by day five.
On day six, things hit me like a truck. The chemotherapy drug had kicked in. My heart palpitations were hard and numerous. I grew exhausted. Even getting up to go to the toilet took so much out of me. I was down for the count for the following days.
I had to think about how to spend my energy each day. I prioritised eating, resting and going to the toilet. If I had an appointment, I'd try to prepare the day before. There were periods where I'd have more energy, and I'd make use of those.
Eventually, it did get easier as I learned how to manage my symptoms. Eat well, but don't overeat to reduce my palpitations. Eat fibre to keep the bowels moving. Drink fluids to keep hydrated. Rest often to conserve my energy.
v.
Since then, I've been getting better as the days go. It's been a rough and bumpy ride throughout. My symptoms and needs seem to change by the day. I have to adjust through trial and error.
Sometimes I get it wrong. Sometimes I get it right. Often, there's conflicting info on the Web. I have to take it all with a grain of salt (which is almost literally all I can have with my kidney injury) and find what works for me. I've learnt a lot. There's still more to learn.
Every day brings something new. I still get scared when something unwanted or unexpected happens. I still panic and rush to resolve the problem as if a meteor is about to hit the planet. I'm learning to just stop and do nothing. Calm myself. Observe.
I'm a high-strung person who tends to jump to the worst conclusions. I believe that with enough discipline and focus, I can change this for the better. It will take patience. It will take time. Something I thought I didn't have enough of. Now I know that I do.
There is time for everything. I just have to make it by cutting out the unnecessary and focusing on what truly matters.
Before, I squandered my time and energy. Now, I will spend them wisely as I recover and return to a new normality.
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kilgarraara · 1 month ago
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"I guess I never really faced my fears before"
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batcavescolony · 7 months ago
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Katniss is such an unreliable narrator. She says "Then something unexpected happens. At least, I don't expect it because I don't think of District 12 as a place that cares about me" girl you deliver strawberries to the Mayor, you hunt and trade for the district, when you fell at Prim being chosen someone caught you, when you went to Prim people parted for you, when you volunteered EVERYONE stopped. Idk how to tell you but I think you're a pillar of the community.
#katniss everdeen#the hunger games trilogy#the hunger games#primrose everdeen#hunger games#batcavescolony reads the hunger games#suzanne collins#'now it seems i have become someone precious' NOW? GIRL BFFR you're their hunter girl#and this isn't negative just bffr girl#your WHOLE DISTRICT did the three finger salute that you yourself says means admiration thanks and goodbye to someone you love and on top is#old a rarely used. your WHOLE DISTRICT decided in that moment that they needed to bring back this sign of respect for YOU#...................................................................#idk why some people are thinking i mean this as negative i don't she is unreliable but its not intentional. like when Peeta heart stoped in#CF she doesn't know what Finnick is doing at first cus she doesn't know off the top of her head what cpr is. she also thinks Peeta after the#reaping is acting for the cameras. he isnt we dind out later his mom basically told him Katniss was gonna win and he would die. obviously#shes not doing it on purpose shes just for lack of better words uneducated? as in she doesn't know everything shes not omnipotent#so when Plutarch (? second games guy) shows her his mokingjay hiden watch shes like *wtf that's weird?* then the people traveling to#district 13 show her the mockingjay cookie and explains it and she then goes on the difference between his watch and their cookie#and why does eveyone act as if district 12 is as bad as the capital? they CANT help Katniss and Prim in the way you want. they cant give#them food. none of them have any! and im not putting iton Katniss but they hid they needed food so they could stay together. it sounds like#some of you are in this our world mentally of what people do after a loved one dies (brings food constantly checks on them etc) district 12#cant do that. they dont have food and they're all suffering. you cant give someone food when you have none to give. then theirs the fact#that peeta DID help. Peeta buring the bread and tossing some to her then taking a beating from his mom is a HUGE thing in the books.#he used his resources to help her like you all said someone should.#district 12 DID (rip) care about Katniss before the hunger games. why do you think she was allowed to hunt? or how her trades were good#these are the little ways 12 can shows Katniss they love her. but again Katniss doesn't see this and YES its because she had ptsd before the#hunger games as well. i swear some of you make it seem like d12 was all living a life of luxury and glaring down at Katniss.#other things that show Katniss is in hight standing with at least her people of d12 is her dad was known enough through d12 for peeta dad to#comment on his singing along with his commenting on her mom. also her mom is a healer in the community. yeah her parents arnt the top but#of d12 but they are/were definitely high staning in the Seam.
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stil-lindigo · 9 months ago
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lead balloon (the tumblr post that saved me)
if this comic resonated with you, it would mean the world to me if you donated to this palestinian family's escape fund.
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no creative notes because this isn't that kind of comic.
I know I don’t owe any of you anything but I still felt compelled to write about my long term absence. And I feel far enough away from the dangerous spot I was in to be able to make this comic. I have a therapist now, and she agreed that making this could be a very cathartic gesture, and the start of properly leaving these thoughts behind me. I am still, at seemingly random times, blindsided by fleeting desires to kill myself. They’re always passing urges, but it’s disarming, and uncomfortable. I worry sometimes that my brain’s spent so long thinking only about suicide that it’s forgotten how to think about anything else. Like, now that I've opened that door for myself, I'll never be able to fully shut it again. But I’m trying my best to encourage my mind in other directions. We'll see how that goes.
I am still donating all proceeds from my store to Palestinian causes. So far, I've donated over $15K, not including donations coming from my own pocket or the fundraising streams which jointly raised around $10K. In the time since I made my initial post about where this money would be going, the focus has shifted from aid organisations to directly donating to escape funds.
If you'd like to do the same, you can look at Operation Olive Branch, which hosts hundreds of Palestinian escape funds or donate to Safebow, which has helped facilitate the safe crossing and securing of important medical procedures for over 150 at-risk palestinians since the beginning of the genocide.
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noodles-and-tea · 4 months ago
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Last part whoo!!!
PART 1 / PART 2 / PART 3 / PART 4
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sonykatzen · 2 months ago
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pretty boy
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andstuffsketches · 30 days ago
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girl who lives in a cave
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stageturn · 4 months ago
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(slides u a jon) got time for a draw this in your style?
use #stageturnDTIYS to participate :D
HAVE FUN!!!!! (closeups under the cut :3)
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and here's the actual doodle of s1 Jon
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kuni-kuun · 3 months ago
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and another mundane day
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clarisse-doodles · 11 months ago
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inspired by this post, in which Damian does not know what Vine is
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atissi · 3 months ago
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cupids...ATTACK
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nicktoonsunite · 1 year ago
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misc NU doodles part tres
last comic is based off off my nasb 2 clip
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aethersea · 1 month ago
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the question of fic comments is very straightforward actually. readers do not owe writers comments. writers do not owe readers fic. there is no bargain, no transaction, no debt.
fic is a gift. comments are a gift. gifts are exchanged between friends, out of love, not out of obligation.
I write for myself. I post it for others, as a gift, because their joy brings me joy. I read for myself. I comment for the author, as a gift, because their joy brings me joy. perhaps we were not friends before, but we are now, however fleetingly, because we have given each other gifts out of love.
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egophiliac · 28 days ago
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I don’t think we’ve ever seen you draw knight of dawn before 🤔 what are your thoughts about him? Or take?
I've drawn him a couple of times, just really little/in the background. but I should draw him more, I love this guy a lot! I have many, many thoughts about him and the way he parallels Silver...and also I think it is extremely funny that his ghost is stuck in a ring. especially considering where that ring has been for the last 16-ish years.
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karemandohan1999 · 1 month ago
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The cat did not survive the bombing 😭💔
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Hamoud, my little boy, considered his cat part of our small family. She used to play with him and bring some joy amidst the fear and chaos of war. A few days ago, during a nearby bombing, the cat was severely injured, and just a few hours later, she passed away. It was heartbreaking for Hamoud, and I struggled to find the words to explain what happened.
Now, all I can do is try to provide him with safety in the midst of this destruction, but the reality is harsher than I can bear. We are in desperate need of your help to meet his basic needs. Every donation, no matter how small, can make a significant difference in our lives.
Please help give Hamoud a chance to feel safe again. May God bless you and reward you abundantly
Donation Link
Or paypal
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superduperkas · 2 months ago
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Arcane is a masterclass in body language and how to properly use it in storytelling to get your message to your audience without thunking them over the head/spoon feeding it them.
Caitlyn's relationship to Vi vs her relationship to others is a great example.
Caitlyn is almost always trying to create less distance between Vi and her or "fill the gap" between them:
Cait steps over the red line in Stillwater to show Vi the evidence
After Vi ditches Cait in the brothel to jump Sevika, Cait seeks her out and saves her from Sevika
When she gives Vi the medicine for stab wound, they're breathing each other's air
She reaches across the space between them on her bed to caress Vi's face
She chases after Vi following the Council meeting not going their way
Fairly certain, she was going to go look for Vi after her shower if Jinx hadn't kidnapped her
She seeks out Vi after her dad, more or less, says he doesn't want Vi in their house. Not to kick her out but to find some comfort in being close to her (i think this is why she pushed so hard for her to be an enforcer, to keep her close)
Cait also does a fair share of looking at Vi's lips, slightly leaning in, and second guessing herself all within a span of a blink
Vi asks Cait not to change (she already has), so she closes the gap between them, and they share their first kiss as a form of reassurance
She takes down Vi mongoose style and again starts closing the gap between them by betraying Ambessa and helping Vander
Cait slightly/momentarily leans towards Vi's lips when she's pulling the bag over her head
Vi spits in her face and wipes it TOWARDS HER MOUTH and not away
After Jayce shoots Viktor and Ambessa attacks, Caitlyn has ample opportunity to go after Jinx, but she focuses on Vi and covering her back until she gets sliced across the abdomen and then she runs to her to help her to her feet
Now let's look at how Caitlyn creates gaps and space with Maddie even tho they're sleeping together:
Beginning of episode 4, while they're sitting in bed, Maddie tries to close the gap and create some intimacy. Caitlyn, in turn, leans away from her, creating space between them
Maddie is also the one trying to initiate/create emotional intimacy, and Caitlyn swerves her each time
Maddie kisses/nuzzles Caitlyn's neck, and in response, Caitlyn has the quickest expression of "eugh" before fixing her face and moving away from Maddie
Instead of leaning into the intimacy Maddie is trying to give her, Caitlyn gets up to work on something and says she'll come to bed soon
Caitlyn lets Ambessa dismiss Maddie from the room after (more than likely) overhearing the discussion about restarting the council (I really think if this were Vi, Caitlyn would've pulled rank and told her to stay)
Maddie is also very absent from the rest of s2p2, and given how we've seen Caitlyn actively seek out Vi in her absence, she honestly doesn't seem to care where Maddie is or how she's doing
And none of this is explicitly told to the audience thru dialog. All thru body language. And i just think that's really neat
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