Is yours the kind of chronic illness you'll recover from? You definitely don't have to answer or give personal details, but I really hope you feel better!
No, it's okay. It's likely that I won't fully recover, but in the past decade, there have been WAY more treatments available that turn down the immune system and combat scarring. And yes, I'm much better, thanks!💖
In a nutshell,
my immune system malfunctioned after an infection, and now it attacks my body in big, big ways—with a tendency to damage the muscles and lungs!
My situation got even weirder because it started attacking my nerves and heart from 2020 onward, which ... usually ppl with my diagnosis, get respiratory failure, not overt heart issues. (Long story, but I got undiagnosed, then rebiopsied, then rediagnosed the same thing *with extra notes.)
Anyhoo, the new developments impacted my mobility and stamina in even crazier ways than I was used to. (I have until recently worked a full-time job and pretty much spent ~5-6 days in a gym with an expensive physical therapist just to keep my body functional. Before, I had an acquired skeletal myopathy, but I was able to run a 5k in 42 minutes... I trained like an Olympian and while had to rest a lot more than most, I could do it!)
Now... I can't even manage one day a week of light activity. It's a big adjustment, even for me! I'm having to noodle on how to best manage it going forward. It's always this confusing situation of "Is this the primary illness, secondary damage, or the side effects of toxic medications?"
I'm doing a pretty good job if I do say so myself.
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I think one of the most frustrating parts of trying to be active in organization is how many people claim that they want to be a part of it and help make change and then refuse to put in any effort whatsoever. everyone's pro union and all about organizing their workplace til it comes to showing up to meetings and having conversations with their coworkers. we all have things we'd rather be doing. I don't like doing this either. I just know that nothing will ever change if I don't do ANYTHING about it
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hey there! i saw Bob in concert a few days ago in Freising (and before you ask - yes, it was amazing, and i can safely tell that he’s the loveliest person IRL). so here’s some pictures i took during the show!
!!! Oh I'm so jealous! These photos are FANTASTIC, it definitely looks like it was an amazing show! 😍 I'm so glad to hear that Bob really is lovely IRL (and it's always great to see Pete playing on Bob's solo shows too)! 🥰🥰🥰
Thanks so much for sending in and sharing these photos!! 💛
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So one of the things that can apparently contribute to kidney issues in cats is if they eat too much dry food and don't drink enough water; cats are adapted to get a lot of their water from their food since they're originally desert animals, and might not get enough water if they don't eat wet food. Unfortunately, Dozy won't eat wet food no matter what; she categorically refuses to touch the stuff. So a few months ago, we were looking for ways to get Dozy more fluids, and my wife noticed at the pet store a cat drink--basically meat broth with some floaty bits in--that was low-protein and meant for cats with kidney issues. So we figured, worth a try, right?
Great news: she loved it. Super tasty apparently. Great success. Along with the kidney-sensitive treats we found, it was a nice way to supplement her diet. Unforseen long-term consequence though: she loved it so much she began demanding it throughout the day. Like, would come up to us and meow, and meow, and meow, and not stop, until we got up, went to the kitchen, and got her some cat drink.
And by doing so on demand, we have unfortunately created a monster: no matter what we are doing at home, Dozy knows that if she sits next to you and meows, 1) you know what she wants, and 2) you know that she will not stop until you get it for her now. And when you do get it, she gets extremely excited. She will bum rush the kitchen door as you enter. She will run around your feet as you open the can. She will let out the creakiest, crunchiest, most nails-on-the-chalkboard meow you've ever heard if she thinks you're not going fast enough.
I do not begrudge her this. It is gratifying to care for a creature whose most ardent desires are so simple that it is this easy to fulfill them. But I am a little sad, because I know in my heart that I have never loved any comestible as much as she loves this cat drink. She has a pleasure of a purity and intensity that I will never know.
[the creacher in question]
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