#huntingtonsdisease

[devybobevy]

I hate that I spent my entire childhood promising that I'd never be anything like my mother just to find out that she is the way she is because of Huntington's disease and that whether or not I end up like her is in the hands of a genetic coin toss that happened at my conception

[preponias]

Huntington’s Disease

[the-greenery420]

1 Week of THCA with Huntington's Disease

So I've been a stoner for a long time, but primarily was smoking marijuana which is illegal here, luckily with more recent advancements with cannabis and legislature we have options here that are now just as effective. I was curious what would happen if I switched to pure THCA bud because the reason I smoke and have been smoking marijuana on and off since I was 8 was because at the time my dad said it would help with my ADHD (it did as well as my depression although I REALLY don't recommend giving it to an 8 year old lol, my dad was not exactly a "think things through" type of person though).

Over the years the constant fear that I'd get busted and sent to the pen for a completely non-violent "crime" really was hard on my mental health, and even though cannabis provided me with tremendous benefits, it was hard for me to enjoy the benefits with all the fear and anxiety from the possibility of getting locked up like a lot of my friends.

When CBD and Delta 8 got so big, I did experiment with Delta 8 but I felt like even though there was a benefit it wasn't quite "hitting the spot" where I needed to be to stop my tremors which have been getting worse from my neurodegenerative disease, I used it quite a bit at night to put me to sleep (especially edibles), and it did help more than not taking any form of THC but, I definitely needed something else.

I didn't want to take the reeeeeally synthetic forms of THC that they came out with just because I had experiences with K2 with my dad and was weary about anything blatantly synthetic (mainly because I can't know if there's going to be side-effects eventually), so I just stuck with Delta 8 even though it's a concentrate / isolate and you really have to check that the companies test them to make sure the solvents are gone.

I stumbled across THCA bud in the local headshop before it closed down recently, but it was 35$ for 7 grams so I figured I could find a better selection for cheaper online like I do with my kratom. I came across a distributor called JKDistro, and they have 1oz smalls for 50$ sometimes, best investment I ever made. Now I'm smoking in the morning and then some at night to wind down and within 1 week I've seen drastic improvements in basically every aspect of my life.

I'm not joking, it's as good as OG cannabis but now the fact I'm not always fearing the cops makes it so much easier to enjoy it. I like that I can go out on my porch and spark up a joint too since JK sends me a card to carry each time I get some bud from them so if I got stopped cops would know it's legal. Cops don't really care here anymore so much because of progress in legislation but it really helps me feel better.

Some of the biggest benefits I noticed from dosing in the morning and at night:

Sleep Quality

For people with Early Onset Dementia from diseases like mine, our brains can't shut down and typically we have a hard time going to sleep and staying asleep. I got to where I was only getting about 1-3 hours of sleep a night if at all before I started dosing like I am now. The first few days I literally slept (3 days nearly straight) and it was really nice because I know my body desperately needed the rest to heal. Now I'm sleeping 6-8 hours a night and that's literally amazing because I'm waking up feeling way better. A bit groggy sometimes if I smoke a bit too much or take too much cannabutter but, overall much better than I was feeling before.

Anxiety

Crazy enough I have an interview on Wednesday for a job in sales, funny thing is I HATE talking to people, especially on the phone. Once I started the THCA regimen I've gotten so much more talkative, relaxed, and social than I was. I am diagnosed with ASD, and the main way mine significantly limits me is communication and being anxious around strangers. It's amazing that I was able to get an interview and now I'm about to go back into the workforce for the first time in 12 years.

Depression

I have a big issue with getting really depressed (which apparently is very common among Alzheimer's and HD patients). Since I've been on the regimen, I've been a lot happier, more relaxed, less irritable. It's been really nice and I've felt myself smile a lot more. I know I'm a lot more pleasant to be around and I've not been near as emotional as usual.

Anger / Emotional Regulation

Once again, I have a real issue with emotional regulation. I think a lot of that goes back to ASD but then the HD doesn't help at all. I've been a lot more chill and more pleasant to be around. Not as irritable / fussy, and able to interact with people more patiently. I get frustrated usually pretty easily but I've been able to be more chill than usual which is nice. I'm also not "all over the place" as much, my mood swings are a lot better.

Pain / Inflammation / Soreness

I have a lot of issues with inflammation. On every test I get (blood test) it always shows my inflammation levels to be very high due to my body being full of a toxic protein called Huntingtin. This also causes pain in my joints sometimes and because my muscles are slowly deteriorating some they are sore a lot and I have to constantly work them out a lot to not lose muscle. I'm not in near as much pain as I was before I started up the THCA, which is huge because it's been freezing here and usually I can't get out of bed when it's this cold. My muscles aren't near as sore and I'm not near as stiff either.

Overall I feel like the THCA is doing me a lot of good, I'm excited to see where I am in a month or even a year. I have found it very useful for me. If y'all want to check out JKDistro and see if you can find something you like that would help you, you can use my link and get 20% off your purchase. They have great deals, and VERY good quality stuff. I literally swear by them, and I've been smoking for a VERY long time. You can click here and it'll take you with the link for a discount! I hope it helps you like it helped me!

[d0nutzgg]

Repurposing account & update

Hey all, I know I haven't really been on, it's been a rough few months for me and I no longer do programming and ethical hacking because for those of you who know I have Huntington's Disease and my memory and stuff has been getting worse + the 4k$ bounty I got nearly killed all my assistance (medical insurance etc). After realizing I cannot afford a 25k$ / month prescription without insurance nor my housing on just freelancing, I decided to resign to the fact that I am just very sick and cannot lead a normal life even though I have fought very hard to be "normal" despite being terminally ill. I have been very ashamed and angry having to come to terms with the fact that I just can't live a regular life because of my illness.. I have done my best to keep holding on to my memory capacity, and am playing video games again to help with motor control / coordination but.. it feels like my 30s have already been a downward spiral and I have only been 30 since April. On top of that, Taylor and I have received a ton of hate because we are married.. so that's not exactly been fun. Feels like there is no real safe place for me any more and that is becoming increasingly stressful. We also lost my cat of 12 years named DB to Parvo a few weeks ago and I've not been dealing with it well. I mostly sleep during the day just to avoid eveything that is going on in my life. I am trying to keep sane because of Tay, but it's increasingly hard to deal with my mental health issues from HD and dying from it as well. I am still fighting, but I can't seem to get out of this depression so I am going to try to work on just doing things that make me happy. Tay and I play Fortnite Duos (esp in Ranked ZB right now), and I am starting to pick up Valorant and am even taking some coaching for it. I also am uploading more often to my Youtube & TikTok albeit I deleted everything else but TikTok, YouTube, and Tumblr because the state of the world tbh.. Tumblr seems to be the only place that has been 100% kind to me. I will start writing game guides some to keep me occupied on this account now since everything else is kinda gone now and I hope you all will still stay with me until the end. I will try to make up for all the lost time starting with a Fortnite ZB Ranked guide I will be writing soon, + some DBD & Phasmophobia stuff, and maybe even some Valorant guides!! With love, - D0nut

[miagh07]

huntingtons disease

dementia is not a condition

but rather a collection of conditions

in which someone’s memory is impaired

alzeihmers, parkinson’s, als

but lesser known is huntingtons

9 months waiting process

therapy time and time again

50-50 chance of passing it on to your children

1 in 10000 people in the world have it

my grandad has it, and so might my dad

that leaves me with 25%

75% chance i can live that full life

sit on the porch swing with my husband well into my old age

25% chance i’ll be counting down the days till my death, crippled by my terminal illness

that’s only until my dad gets tested.

where he waits 9 months to make sure he’s “mentally stable”

even though the worse half of the news will destroy him anyway

then it’ll be 50% for me.

for generations it will be 50% chance and 50% chance

doctors ushering quietly at sonograms

a look of shock on their face as they ask

“have you heard about a thing called huntingtons disease”.

[cmarswrites]

Stay.

We bend and almost break under all we do not say. Smiling, laughing, passing time, knowing you can't stay.

Breathing in, drinking, scents and tastes of spring - warmth and sun and berry sweetness - a welcome not to overstay.

Though the garden, tended carefully, can last into fall, for all your begging, pleading can never make it stay.

Gather and freeze berries and squash and protect against the frost, hoping your favorite among them will manage to outstay.

I embrace the coming autumn - prepped, at ease, resigned, but in my mind, to this short sweet summer, still, please. Stay.

CMarsh 2022

[medazhospital]

𝐑𝐚𝐦𝐚𝐝𝐚𝐧 𝐌𝐮𝐛𝐚𝐫𝐚𝐤 𝐭𝐨 𝐲𝐨𝐮 𝐚𝐥𝐥. 𝐌𝐚𝐲 𝐀𝐥𝐥𝐚𝐡 𝐞𝐚𝐬𝐞 𝐲𝐨𝐮𝐫 𝐡𝐚𝐫𝐝𝐬𝐡𝐢𝐩𝐬 𝐚𝐧𝐝 𝐬𝐡𝐨𝐰𝐞𝐫 𝐲𝐨𝐮 𝐰𝐢𝐭𝐡 𝐥𝐨𝐚𝐝𝐬 𝐨𝐟 𝐩𝐞𝐚𝐜𝐞 𝐚𝐧𝐝 𝐩𝐫𝐨𝐬𝐩𝐞𝐫𝐢𝐭𝐲 𝐝𝐮𝐫𝐢𝐧𝐠 𝐭𝐡𝐢𝐬 𝐡𝐨𝐥𝐲 𝐦𝐨𝐧𝐭𝐡 𝐨𝐟 𝐑𝐚𝐦𝐚𝐝𝐚𝐧 . आप सभी को रमजान मुबारक! . Website - https://www.medazhospital.com/neurology .

ramadan #ramdankareem #ramdanmubarak #Medazhospital #Medazhospitalpatnabihar #patna #bihar #india

[wehaveaface-global-hubs]

Kevin Jess talks about recent papers published and about to be published concerning changing the diagnostic criteria for HD

[hdadvocate]

Please join us for our 2023 San Francisco Family Education Day! This is a free event and lunch will be provided. SATURDAY, DECEMBER 2ND, 2023 9:30 A.M. to 2:30 P.M STANFORD CAMPUS - LI KA SHING CENTER FOR LEARNING AND KNOWLEDGE (LKSC) 291 Campus Drive - Stanford, CA 94305

[kelly85sposts]

Reading sleeping eating repeat.... then add mum life, broken body life... im a surviving

[lifestylehealth]

Huntington's Disease Causes, Symptoms and Prevention

What is Huntington's Disease? 

Huntington's disease is an inherited neurological disease caused by a single defective gene HTT that causes a progressive breakdown of nerve cells. Huntington's disease destroys the patient's normal abilities and is characterized by gait, thinking and mental disorders. Predominantly, Huntington's signs and symptoms appear in adulthood, such as in the 30s or 50s.

Huntington's disease Symptoms:

Signs and symptoms of Huntington's disease include 3 main areas:

Read More

[ikno-io]

Learn about Huntington's Disease, its causes, symptoms, diagnosis, and current treatment options. Understand the challenges of living with this genetic condition and the ongoing research aimed at finding a cure. read the full article: https://bit.ly/4cXwx2K #HuntingtonsDisease #GeneticDisorder #NeurologicalDisease #Health #MedicalResearch read more: what is huntington's disease

[the-greenery420]

Mimosa

Good morning everyone! Who is currently wake 'n baking? This morning we're smoking some Mimosa strain to wake us up while drinking some Rogue Energy Rocket Pop energy drink mix. Just took some Kat's Botanicals Rogue Hippo White Vein Kratom and decided to test this new strain out and do a review.

Gear

Today I'm currently using Raw 1G Blunt Cones, and then I also have a mini cone of Obama Runtz. My grinder is a 1 Stage from GrassCity but today I get my other grinder when my Amsterdam Glass Mini Bong from GrassCity gets here!

Genetics

Symbiotic Genetics turned Purple Punch and Clementine into the sativa-dominant (70/30) Mimosa strain in 2017. The strain sits at a THC content of 21% THC for the batch I got.

Appearance

Amber veins and hairs run through the dark frosty green buds . I got some smalls because it's more affordable but just as potent. Ended up getting an Oz for 50$ which is a wildly good deal where I live!

Effects

Mimosa is a perfect strain for morning use, and delivers a happy and energizing high that can help you start your day with a smile. Mimosa is also known for its therapeutic benefits. It can balance your mood, ease your stress, and stimulate your appetite. Many people with ADD and ADHD find Mimosa helpful for calming their mind and improving their focus. Mimosa can also alleviate depression and migraines with its uplifting and soothing effects.

Mimosa has a delicious taste and aroma that resembles a fruity cocktail. You can enjoy the tropical citrus and berry notes of Mimosa, with a hint of woodsy and floral undertones. Mimosa can cause dry mouth, so make sure to stay hydrated when smoking this strain!

Smoking Experience

After I sparked my 1G cone up, the woodsy, flowery taste hit me first. Then, on the exhale it has a bit of an orange and berry taste as the thick smoke rolls of my tongue. The smell is VERY strong, so if you are an incognito smoker, be sure to make you a sploof. I live in an apartment but everyone knows my wife and I smoke. Definitely wouldn't be smoking this before an inspection or the landlord coming over though! Oust is always going to be your friend, and a good air cleaner.

Every two months our landlord comes to "inspect" the house, so as it gets closer to that point I'll probably be blowing into a tp roll/dryer sheet! This stuff is definitely dank!

It takes about 5 minutes to really start ramping up, then you're going to be hit with pure euphoria, after about 15 minutes it changes into a warm comforting waves of calm and focus, it's like wrapping up in a warm soft blanket right after the drier is done. I have Diagnosed Autism, ADHD, Agoraphobia, Social Anxiety, Depression, Chronic Pancreatitis, Spinal Stenosis, and Huntington's Disease and I found an overwhelming relief from both my pain and mental health issues.

In fact this strain made me talk non-stop most of last night the first time I smoked a joint of it. I normally am very quiet, as is my wife, but this is definitely a social strain. My wife and I had deep conversations about the universe, so definitely helps foster creative and expansive thinking.

Activities to do After Toking

I played Path of Exile a lot last night when I first smoked a joint of this and then a joint of the Obama Runtz before bed. I found myself listening to Martin Garrix, later G Herbo, as well as some Biggie. a good strain to vibe to and listen to music to. It didn't cloud my awareness, or make me couch locked. It's a very active strain so I really love it. I was able to focus on just having some fun! Would be a strain I'd use if I wanted to focus on reading too. I often like to read astrophysics books. Watching documentaries would be great, especially nature ones. Definitely a good strain for if you have a pet in the house too as pets always raise the comfort level of most strains.

I'm a game developer so this would also be my go-to if I needed to focus on repetitive things such as level building, and I believe it'd help me with my creativity in game design! Probably going to end up doing that today while listening to music because I'm currently working on a Castlevania-like 2D platformer.

Growing

This strain flowers in about 9 weeks. If you plan on growing it outside, it'll be ready for harvest in mid-October, sometimes even later.

Mimosa is not too difficult to grow if you want to harvest a mid. But to get 27%, it's recommended to use a high-nutrient plant food to encourage your strain to flourish. Mimosa is greedier than the average plant, nutritionally speaking, so make sure to give your plant lots of nutrients and TLC!

Conclusion and Last Thoughts on the Mimosa Experience

It's an enjoyable, social, fun strain that helped me get stuff done. I was able to remember things better and less agitated during the night, I ended up drifting off into an 8 hour deep sleep when I usually sleep 2-3 hours max a night due to the Early Onset Dementia from Huntington's Disease. I have a real issue with focusing too and don't take any ADHD meds but this strain helped me vibe for hours before I took a weed nap! I woke up refreshed, and the strain was so good I couldn't resist a wake 'n bake. I'll do some more writeups later today on my bong and the Obama Runtz from last night! Let me know what your favorite strain is in the comment section!

Nothing in this article is medical advice, always check with your doctor before indulging in medical cannabis/legal cannabis.

Thanks for toking with me!

[d0nutzgg]

Currently streaming on YouNow

I am currently live analyzing podcasts about serial killers. Come join our talk about John Wayne Gacy after the episode. All proceeds of my streaming goes towards the HDSA.org

As I said I have Huntington's Disease and I am donating (with proof) all of the money I earn from my streams. Come listen and hang out with us!

[thebikerbookforcharity]

[cmarswrites]

A Sonnet for Huntington's and All You Stole.

The day, when broken on your fallen's face, so pallored as it is with sun-starved skin, now sees no hope to send her joy; replaced instead with dread at all that could have been. She chokes on food and gasps for breath amid the shakes and shudders of her bones. Her brain betrays her voice and stunts her lips, undid by words and woe, her smile a sad refrain. A decade lost to you, your subject now turns tides, revolts and finds herself anew. She's laid in wait, stark still with furrowed brow and, broke from her vessel, faces you. She turns on dagger eyes and with a breath says fond farewells and conquers you in death

CMarsh 2016