#hemolytic anemia

[covington-shenanigans]

listen, my wife z"l, a cis woman, had a stem cell transplant, which involves a very large blood transfusion. her stem cell donor was a cis man. (all we know about him is he was in his 30s and French. we named him Jean-Pierre.) the stem cell transplant worked amazingly and got rid of the bone marrow cancer, which was its job. it did not cause any of whatever the fuck side effects Jowling Kowling Rowling thinks are a thing if you get blood from the ~wrong gender~.

(as we all know, in addition to taking time out of her busy schedule of communing with the devil to attempt murder at trans people, JKR is also a well-known medical professional specializing in hematology! oh wait no she fucking isn't, she's just a weapons-grade asshole with too much time on her hands)

my wife did, at one point during the weeks after her stem cell transplant, get hemolytic anemia. why? because her body started producing blood of the donor's blood type instead of her blood type much sooner than the doctors expected. so while she was still getting transfusions of her old blood type (you have to get regular blood transfusions for quite a while after SCT), her body actually needed blood of the new type. this caused her body to start shredding platelets (hemolytic anemia) and she ended up in the ICU. fortunately they figured it out pretty quickly, started transfusing her with the correct type, and she recovered quickly.

at no time did the doctors say "it must be because of the Man Blood!!!!" because that would be fucking stupid. you will also notice this scenario is point #1 in burninglight's response up there.

JKR is a fucking twat and her spiral down into literal white supremacist eugenics, antisemitism, and weird transphobic paranoia is depressing as fuck to watch in real time.

The sequel ‘Skull Measuring for beginners’ is scheduled for 2025.

[historia-vitae-magistras]

I want to clarify that my intention is not to be unkind or instruct you on how to handle your emotions. However, discussing self-harm in the manner you do can be highly distressing, and using threats of self-harm to manipulate others, even if it feels valid at the moment, is a concerning and manipulative behavior. Please seek help.

Trigger warnings for body horror, death, illnesd and blood and gore.

Okay this has been sitting in my box for a bit and I was very concerned with just what the unholy hell you were talking about but then I realized what "bleed to death if they're mean to me" must sound like outside of my own head.

In a very abstract way, you're right. It is self harm but it's an autoimmune disorder. It's my immune system misfiring and hurting me, not a mental illness manifestation. Think of it as a friendly fire incident. The body mistakes friendly cells for for bacteria and attacks them. For me, this is hemolytic anemia. Hemolytic anemia isn't common, only making up about 5% of all anemias diagnosed, but considering how misdiagnosed it is and how common anemia is, it's something that should be talked about more.

So hemolytic anemia as a bodily process is somewhat common but mine as originates from a specific genetic pattern I inherited from my French Canadian parent is pretty rare and dramatic. But the general gist is that red bloodcells carry oxygen and white blood cells are your immune system so when I'm ill or stressed (hence the being mean to me part lol) my body copes by firing off white bloodcells to destroy my red blood cells. And without the oxygen carrying cells, oxygen can't be delivered. It can be much like normal anemia where a heavy period hinders your bloods ability to deliver oxygen and makes you tired and cold and ill.

That part you can get used too. In me however, having that rare sort and being very young and until recently an unencumbered immune system, I have gone from fine to, and I mean this in the most frank of ways, bleeding to death without opening a vein in less than an hour. I can destroy blood so fast they've rigged me up to two bags of blood at once to compensate. Not quite as fast as say, opening up a wrist in the bathtub, but considering I don't choose when it happens, it's not what anyone would consider ideal conditions to finish a degree under.

So yeah, if you're depressed, get your mental and physical health checked out! Your mental health is important! If you're feeling ill and weak and cold, see a doctor. If your piss suddenly turns black, your fingernails and lips go blue and your eyes or skin turn yellow, take your ass to the ER. This has been a PSA from your local blood sucker. Cheers!

[nightmaretour]

Trans radfems: Yes let's harass and suicide bait seriously ill and disabled transmascs for talking about trans people that aren't me!! No I'm not ableist, I just want disabled transmascs to die because of me!!!

[justabunchofdragons]

being a system is so fun because chaos is like actually focusing on uni and i'm here like hm which of these conditions would enhance my fanfic writing.

[makerofmadness]

Cells at Work fandom how are there only like two fics about AIHA it has so much angst potential why are y'all sleeping on this

[bommagoni]

Warm Autoimmune Hemolytic Anemia Treatment Market Analysis

[great-and-small]

You know what I hate about the internet? Sometimes people will just lazily slap a “citation” on an infographic and trust that they’ll be completely taken at their word and nobody is going to dig deeper. And it works all the time. As an example, please look at this photo someone posted to dispute my assertion that garlic can be toxic to dogs.

Okay well, kind of a pain to manually type in that link but obviously I am going to look into this study that is confident enough to recommend people feeding their dogs garlic. So here’s the article, kind of a weird journal choice for this graphic to reference from but looks like a legit (though 20 year old) study

Funny thing is, almost immediately this article acknowledges that garlic can indeed be toxic to dogs. The health benefits mentioned in the graphic are referring to human health, not canine. This section is literally in the introduction of the article and one of the first things you read. Emphasis here is mine.

Crazy to me that someone would imply that this article encourages giving dogs garlic when it in fact immediately asserts that doing so has the potential to cause hemolytic anemia. The article does explore the anti-thrombotic effects of garlic components in dogs and humans, but by no means does it say that “contrary to misconceptions garlic is safe for pets”. It is dishonest to assert this in an infographic. However the creator of the image correctly assumed nobody would check, because the person who posted it took it as fact without further investigation.

I am begging you to be skeptical. Check your sources. Check their sources. Check my sources. Learn how to dig deeper and exercise that muscle as much as you can, especially on the internet. You will be absolutely shocked how much misinformation is casually stated and received as pure fact.

[thebibliosphere]

Whenever I talk about the medical neglect and ableism I've encountered as a victim of the healthcare system, there's always some cockwaffle who feels entitled to come into my inbox and make the argument of "not all doctors" while talking about how "people like them" (because it's always someone in a field of medicine who does this) are doing their best and it's really hard because so many people fake being ill to get on welfare (Yikes), but like, yeah, obviously #not all doctors, because if all doctors were negligent, bullying scum bags, I'd be dead.

But here's the thing: while I truly believe that the majority of doctors are doing their best in a system stacked against them and their patients, their presence does not negate the mass harm caused by the bad ones. And there are far more bad ones than you realize.

Fuck, John Oliver literally did a segment on this last week:

Yes, the truly bad, malicious doctors are in the minority. Most are just horrifically burned out and fighting a losing battle against a system, killing both them and their patients through a lack of funding and resources and profound overwork.

But the malicious ones do exist, and they will go out of their way to harm patients who don't kowtow to them.

I almost lost my life because when I was in my early twenties, I told a doctor I didn't think she was listening to me, and I disagreed with her assessment of my mental health (she was not a mental health doctor, and I was there for heart palpitations and chronic pain). She retaliated by putting "non-compliant" in my file.

There was also a fun little "doesn't show respect" note too that lives rent-free in my head because I know I wasn't rude. I was polite. I just didn't agree with her, and my refusal to accept her off-handed comment that "you probably have bipolar or BPD" (again, I was there for heart palpitations and chronic pain) meant I was "refusing care."

I wasn't. I just refused to be slapped with a mood/personality disorder when I was there because I kept fucking fainting when I stood up.

(Spoiler alert: it was dysautonomia)

That "non-compliant" marker followed me around for years. It followed me across an ocean and effectively ensured that any doctor I saw was going to treat me like absolute dogshit because no one wants to help Difficult Patients. It wasn't until I was so undeniably ill, literally on the brink of death, that anyone helped me.

I'm alive because of a good doctor. And all the good ones that came after him because of him.

So, I know they exist. You don't have to tell me that.

But I really fucking need you to acknowledge the bad ones and that you're part of a system with a long, long history of abusing minorities and vulnerable people. I need you to acknowledge that because it's the only way we're going to survive this godforsaken nightmare and make things better.

So yeah, #notalldoctors, but if you feel the need to say that because someone talking about being literally left to die by the medical system hurts your feelings, I'm going to have to ask you to take a step back and ask yourself if you're going into medicine for the right reasons.

Namely: do you want to help people, even the "difficult" ones?

Even the ones who might disagree with you?

Even if they're on welfare?

Even if they'll never get "better" in a way that means "cured"?

Just a thought. But hey, what do I know. I'm just someone who experienced hemolytic anemia because doctors kept telling me I was anxious and needed to exercise more 🤷‍♀️.

[larstudy]

💫 5.10.2024 [😌] // The past few days have been rough. I used my rest day to recover and took the time to do what I wanted to do. I did some chores, some self care I really needed and also studied some classes.

Classes I studied :

normothymics medchem

antidepressants medchem

hemolytic anemias

-----

💧 water input : 2,25 L

🛏️ sleep : 9h30

📚 hours studied : 3h30

[bace-jeleren]

So. As of right now, I know I was experiencing immune hemolytic anemia yesterday, which is why I needed the blood transfusion. We just don't know WHY. Like, my body just decided to start destroying itself for like. Funsies?????? The thrill?????? The whimsy of it all??????????????

[armyflags]

Not sure if my request went through, so if it did feel free to ignore this.

Could I get a trans autoimmune hemolytic anemia flag? Also, please make it purple ^w^

Also, if you could make a version of it that has bursting red blood cells (since AIHA causes the red blood cells to burst), that would be super cool. You don't have to, though. No pressure! :3

᲼᲼᲼᲼᲼᲼᲼᲼᲼᲼ Trans AIHA

᲼᲼᲼᲼᲼When one identifies as having AIHA . ᲼᲼᲼᲼᲼For whatever specified / unspecified reasons .

᲼᲼᲼᲼᲼Big apologizes , I'm no medical student , so no idea how them blood cells be bursting yk

‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‏‏‎ ‎‎‎‎If already coined consider as an alt . Req by anon . ‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‎‎‎No DNI . Just be nice / civil about it . Free for anyone .

[does-truth-matter]

The CDC has quietly changed who should AVOID the MMR vaccine.

https://www.cdc.gov/vaccines/vpd/mmr/public/index.html

They now state that ANYONE that “Has a parent, brother or sister with a history of immune system problems” should AVOID THE MMR VACCINE!

What exactly is an 'immune system problem?" Every autoimmune disorder.

* Achalasia

* Addison’s disease

* Adult Still's disease

* Agammaglobulinemia

* Alopecia areata

* Amyloidosis

* Amyotrophic lateral sclerosis (Lou Gehrigs)

* Ankylosing spondylitis

* Anti-GBM/Anti-TBM nephritis

* Antiphospholipid syndrome

* Autoimmune angioedema

* Autoimmune dysautonomia

* Autoimmune encephalomyelitis

* Autoimmune hepatitis

* Autoimmune inner ear disease (AIED)

* Autoimmune myocarditis

* Autoimmune oophoritis

* Autoimmune orchitis

* Autoimmune pancreatitis

* Autoimmune retinopathy

* Autoimmune urticaria

* Axonal & neuronal neuropathy (AMAN)

* Baló disease

* Behcet’s disease

* Benign mucosal pemphigoid

* Bullous pemphigoid

* Castleman disease (CD)

* Celiac disease

* Chagas disease

* Chronic inflammatory demyelinating polyneuropathy (CIDP)

* Chronic recurrent multifocal osteomyelitis (CRMO)

* Churg-Strauss Syndrome (CSS) or Eosinophilic Granulomatosis (EGPA)

* Cicatricial pemphigoid

* Cogan’s syndrome

* Cold agglutinin disease

* Congenital heart block

* Coxsackie myocarditis

* CREST syndrome

* Crohn’s disease

* Dermatitis herpetiformis

* Dermatomyositis

* Devic’s disease (neuromyelitis optica)

* Discoid lupus

* Dressler’s syndrome

* Endometriosis

* Eosinophilic esophagitis (EoE)

* Eosinophilic fasciitis

* Erythema nodosum

* Essential mixed cryoglobulinemia

* Evans syndrome

* Fibromyalgia

* Fibrosing alveolitis

* Giant cell arteritis (temporal arteritis)

* Giant cell myocarditis

* Glomerulonephritis

* Goodpasture’s syndrome

* Granulomatosis with Polyangiitis

* Graves’ disease

* Guillain-Barre syndrome

* Hashimoto’s thyroiditis

* Hemolytic anemia

* Henoch-Schonlein purpura (HSP)

* Herpes gestationis or pemphigoid gestationis (PG)

* Hidradenitis Suppurativa (HS) (Acne Inversa)

* Hypogammalglobulinemia

* IgA Nephropathy

* IgG4-related sclerosing disease

* Immune thrombocytopenic purpura (ITP)

* Inclusion body myositis (IBM)

* Interstitial cystitis (IC)

* Juvenile arthritis

* Juvenile diabetes (Type 1 diabetes)

* Juvenile myositis (JM)

* Kawasaki disease

* Lambert-Eaton syndrome

* Leukocytoclastic vasculitis

* Lichen planus

* Lichen sclerosus

* Ligneous conjunctivitis

* Linear IgA disease (LAD)

* Lupus

* Lyme disease chronic

* Meniere’s disease

* Microscopic polyangiitis (MPA)

* Mixed connective tissue disease (MCTD)

* Mooren’s ulcer

* Mucha-Habermann disease

* Multifocal Motor Neuropathy (MMN) or MMNCB

* Multiple sclerosis

* Myasthenia gravis

* Myositis

* Narcolepsy

* Neonatal Lupus

* Neuromyelitis optica

* Neutropenia

* Ocular cicatricial pemphigoid

* Optic neuritis

* Palindromic rheumatism (PR)

* PANDAS

* Parkinson's disease

* Paraneoplastic cerebellar degeneration (PCD)

* Paroxysmal nocturnal hemoglobinuria (PNH)

* Parry Romberg syndrome

* Pars planitis (peripheral uveitis)

* Parsonage-Turner syndrome

* Pemphigus

* Peripheral neuropathy

* Perivenous encephalomyelitis

* Pernicious anemia (PA)

* POEMS syndrome

* Polyarteritis nodosa

* Polyglandular syndromes type I, II, III

* Polymyalgia rheumatica

* Polymyositis

* Postmyocardial infarction syndrome

* Postpericardiotomy syndrome

* Primary biliary cirrhosis

* Primary sclerosing cholangitis

* Progesterone dermatitis

* Psoriasis

* Psoriatic arthritis

* Pure red cell aplasia (PRCA)

* Pyoderma gangrenosum

* Raynaud’s phenomenon

* Reactive Arthritis

* Reflex sympathetic dystrophy

* Relapsing polychondritis

* Restless legs syndrome (RLS)

* Retroperitoneal fibrosis

* Rheumatic fever

* Rheumatoid arthritis

* Sarcoidosis

* Schmidt syndrome

* Scleritis

* Scleroderma

* Sjögren’s syndrome

* Sperm & testicular autoimmunity

* Stiff person syndrome (SPS)

* Subacute bacterial endocarditis (SBE)

* Susac’s syndrome

* Sympathetic ophthalmia (SO)

* Takayasu’s arteritis

* Temporal arteritis/Giant cell arteritis

* Thrombocytopenic purpura (TTP)

* Tolosa-Hunt syndrome (THS)

* Transverse myelitis

* Type 1 diabetes

* Ulcerative colitis (UC)

* Undifferentiated connective tissue disease (UCTD)

* Uveitis

* Vasculitis

* Vitiligo

* Vogt-Koyanagi-Harada Disease

Wonder how many doctors are paying attention?

~shared from Jodi Wilson

[nightmaretour]

Me, going through my day with a constant crushing headache, struggling to breathe if I exert myself and constantly exhausted to the point of feeling like I might pass out, while my watch beeps at me every five minutes for my above 110 bpm resting heart rate: I'll go back to the doctor if it gets worse

[spot-the-ableism]

Saw some receipts from a group of radfem transfems laughing and mocking a trans man who they harassed into hospital despite knowing he was seriously sick. The actual harassment is gone now because the person was blocked but I've heard it was pretty horrific.

https://www.tumblr.com/rainyarbitertheorist/761276764527935488/adding-this-on-as-another-example-of-how-cruel-and?source=share

Of course the main perpetrator found the post and decided to display more ableism lmao

thank you, and my goodness that is quite horrifying.

above is a link to a archived version of the link anon gave, this is for the future references anyone may need.

https://web.archive.org/web/20240918012023/http://web.archive.org/screenshot/https://www.tumblr.com/nightmaretour/761277551339601920/so-apparently-this-is-whats-going-on-right-now

above is a different link^ the person we are talking about responds to the messages.

this is a pre-written by the time you get this ask, but oh my it is horrible.

for the blocklist

rin-tezuka

for suicide baiting and harassing a person with anemia+is a stroke survivor+has other neurological disabilities and possible GI cancer into needing to get a ambulance to be checked out at a hospital due to the distress it caused to their body.

also for being antisemitic this is a crossover episode

@spot-the-antisemitism got a new one for you to add to the blocklist. I cannot check her blog fully since I'm blocked by her already somehow? but this is a crossover episode.

cyanosauce

for saying as I quote "this can't be a real message LMAO" in response to a anon saying basically the harassment they are doing to that person can kill them due to having hemolytic anaemia.

which the person actually had to go to hospital for due to the harassment.

so blocklist!

drinkycrowconcussion

for saying "oh fuck rin your posts are too strong they are killing people"

and also being very incredibly antisemitic.

Deepseametro

for saying "he's got glass bones and paper skin and every morning he wakes up and break every bone in his body and at night he does it too" when in the context of harming the disabled transman nightmaretour.

interesting overlap today guys with how many ableists and radfem's (not TERF's, EDT: TIRF’s get it right.) and how they are antisemitic.

anyway, new ones for the blocklist

[cruelfeline]

About six years ago, I saw a dog for immune mediated hemolytic anemia. It's a condition where the immune system decides the red blood cells need to die, and it is very serious. Often fatal, even with aggressive treatment. Anyway, we saved this dog after about a week of hospitalization, blood transfusions, and powerful immunosuppressants. The owners were thrilled. So thankful, actually gifted us wine from their vineyard. I remembered them fondly.

I saw the dog again yesterday for something totally unrelated. He's much older now, has heart issues, ear issues; just a bunch of chronic problems. That he's unmedicated for be ause the owner has been giving him a bunch of CBD and is convinced that's keeping him alive. Also was not shy about letting us know that she believes she saved the dog herself six years ago, by feeding him CBD treats. Adamant that that's what saved him, not the advanced care we gave him for a week, that she was once so thankful for.

Anyway, he left without any of his issues being addressed properly because she didn't want to give him medications "with potential side effects." Just the CBD, whose side effects are largely unknown in dogs.

I remember how proud I was to help someone and feel so appreciated by them, only to have that fizzle out and wither away years later because that same someone has lost all appreciation for it and thinks their bullshit is more important than my hard work.

The ultimate point being that it's important to work for yourself rather than for other people because human people have the excellent habit of turning around and disappointing you, even years later.