#guide dog services

[thepastisalreadywritten]

24 April 2024

💛🦮💛

[ireadwithmyears]

Going up to a guide dog user and saying, to their dog, something along the lines of “your mommy doesn’t let me pet you. I know, it’s so unfair,” in a baby voice is first of all counterproductive, because that’s just as distracting for the dog as petting them would be, and second of all, is actually really casually guilt trippy and I don’t like it

[beranibear]

Things that make me happy in Melbourne (feat. cow in tree)

[onlytiktoks]

[blindbeta]

Hello, I hope you are well. The main character of a book I'm writing is blind and I want to make sure I'm not being disrespectful.

He's had both retinopathy of prematurity (stage one) and recurring glaucoma that have left him with 20/200 vision, photosensitivity, and trouble processing visual information. He can see pretty well for a range of around six feet, eight if he really focuses (which he rarely does because doing it too much will give him a massive headache and exhaust him.) He doesn't have a cane, as he's spent his entire life in the house (long story short, he's adopted and his birth parents kind of want him dead) and he doesn't need it when he already knows where all of the obstacles are, but he does have a guide dog (she's mostly for his mobility issues and physical disability, but she can also do guide dog stuff.) When the story begins and he has to leave home and go into an unfamiliar situation (boarding school when he used to be homeschooled,) he couldn't bring his dog with him and didn't know a cane was an option, so one of his friends, the only one who already knew he was blind, has been subtly guiding him. He hides his blindness at first, not sure if revealing the information could put him in danger, but eventually the other characters find out. They do initially get kind of protective, but they quickly find out to not do that because if they tell him he can't do something, he'll do it anyway just to prove them wrong. He really wants to be independent and hates it when people assume they know his limits better than he does and they try to tell him what he can and can't do despite his objections.

(The character also has Williams Syndrome, epilepsy, intellectual disability, PTSD, IED, and a major injury that renders one of his legs near useless. He uses a modified cane in place of his leg as a weight-bearing limb because working with crutches wasn't possible with old breaks in his arms.)

He's transgender and in a relationship with three other characters (all aware of each other and all fine with polyamory,) two guys and a girl. One of the guys has some trauma-sourced physical disability, CPTSD, and kleptomania, and the girl has NPD and CPTSD. They all love each other very much and all put in the effort to make their relationship work. He also has two sisters who are also blind (all three of them were premature and the glaucoma is genetic,) one who's completely blind and one who has a little bit of light vision, and there are a few other blind and low-vision characters.

Here's the problem, it's his magic. I kind of added in the blind detail after deciding his magic, and I'm worried it could accidentally count as erasing. He can shapeshift like his older sister, but neither of them use it to fix their eyes because it's a massively complicated change and because they've been blind their entire lives and their brains wouldn't really know what to do with enhanced vision. And then he has an energy ability. He's always been scared of the energy ability because he nearly killed his adopted dad with it, but one of the other characters, not knowing he's blind, recommended trapeze to help him get used to using it, because he can sense things through sensing the kinetic energy. This is only used to help him get used to his power and he only uses it for trapeze (he saw it and fell in love with it before anyone could tell him not to. With a bit of adaptive technology for his leg and small, humming sound devices, each at a different pitch, on every trapeze platform, he actually does really well at it,) but does it count as negating his blindness? He can't really see with it, it's closer to hearing a projectile coming close but not being able to hear exactly how far away it is.

(These are more minor details, but there are also other details in the story about his blindness- his adopted parents got him a Braille printer and translated a few books for him, and then his younger sibling decided he liked typing on the Braille printer and started translating a bunch, so he knows how to read Braille and has a massive collection of Braille books because they're easier for him to read. He also uses voice-to-text and text-to-voice on his phone and laptop. One of his friends gets him a bunch of talking technology, like a clock that tells him the time when he presses a button, and some things like oven rack covers and colour-coded kitchen utensils, and another friend takes notes for him using those 3D ink pens so that he can easily translate them to Braille and have his own notes to study.)

Thank you for running your blog, your posts have been a great help

Photophobia, Service Dog for Someone Who Can’t Leave Home, Multiple Disabilities, Choosing Accommodations and Assistive Technology, Giving Gifts to a Blind Person, and General Blindness Stuff

This post is a big one. If you are not the asker, feel free to use the big text titles to explored the subjects that interest you. Additionally, please forgive any lingering typos in this post. I did my best to address them all, however they may still occur due to the length of this post.

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I tried to address as much as I could in your ask. Please let me know if you have more questions.

Photophobia, Health Care, and General Advice for Writing About Blindness

I can see how staying in the house all the time might lead to an even bigger increase in photophobia when venturing outside. Even if he has a backyard he can use safely, I imagine being in the outside world regularly would exacerbate his photophobia. If you plan to give him sunglasses, be sure to connect them to the photophobia and have him remove them on occasion, such as when indoors. This post might be relevant.

I’m assuming he has access to reliable medical care, considering all his conditions. Blindness generally requires regular optometrist visits, particularly for glaucoma. Same for epilepsy. He may also want psychotherapy treatment for PTSD, adoption and childhood trauma, and managing other symptoms that come with his disabilities. Since he has access to a computer, virtual therapy and virtual check-ups are possible. That said, certain testing or treatment cannot be conducted virtually. I am not familiar with weight-bearing prosthetics, but he will need to be fitted for that as well and have access to help with up-keeping it. You probably don’t need to spend a lot of time on this subject, although considering it may add realism or relatability to your story. If he takes medication for epilepsy, pain management, or if he’s on testosterone, access to medication should be considered as well, both at home and the boarding school.

For his difficulty processing visual information, he might benefit from using a screen-reader, audio descriptions, and audiobooks. He might like the tactile sensation of Braille since you mentioned Braille books. So a Braille display might be more beneficial than a Braille printer and more effective considering cost and physical space. He can get Braille books from plenty of programs, so he won’t go without, supplemented with audiobooks and the Braille display as he gets older. I have seen Braille printers at schools. Not so much in homes. Although I suppose people with access to Braille printing at school would not have much need for them at home. This might be different if he and his siblings are homeschooled.

I suggest considering what options he and his siblings prefer and why. What makes sense for their home, finances, school needs, reading needs, writing needs, and personal preferences?

For school work, slate and stylus or computers are also options.

Braille literacy is declining. I’m honestly happy to see Braille mentioned at all. These are just extra topics to consider.

You also mentioned he can see about 6 to 8 feet in front of him. I think you’re on the right track with mentioning that he doesn’t try to strain himself. A lot of blind people with residual vision are expected to use and even rely on it. Because seeing is effort for us, this can be exhausting or even painful. Eye strain is real thing. Feeling tired from using your eyes a lot, such as for reading or navigating dim, unfamiliar spaces, can cause eye strain.

Other than that, I suggest focusing less on his exact level of vision and more on using techniques to make his life easier. More on how blindness influences and enriches his life. Maybe he uses lamps instead of harsh over-head lights. Maybe he has his screen-reader read an article to him instead of having to stare at his phone. Maybe he cuddles his guide dog when it rains and his old breaks are aching. Or maybe he has brightly colored kitchen stuff to increase contrast while he cuts veggies or bakes muffins for his family.

Needs for a Service Dogs: O&M Skills and Getting Out of the House

I can also see how the lifestyle and limited mobility, exercise, and access to healthcare would influence his other disabilities, including his mobility concerns. Having a service dog who can act as a guide as well as provide stability sounds helpful. Although I wonder how training with his service dog would go, given that 1) he would need to have proficient O&M skills, including cane skills, before getting a guide dog and 2) guide dog applications require not only training with new guides, but also routes that are traversed regularly.

The Samsung Guide Dog School in Japan lists this requirement here which reads:

“There should be a daily destination to maintain activity.

School → Student, Working place → Worker or Self employment

Other social activity → Homemaker, Freelancer”

Guide Dogs of America also lists a similar requirement in this list of qualifications here which reads as follows:

Are you legally blind?

At least 18 years of age or older?

Have you completed orientation and mobility training?

Are you physically able to walk one or two miles a day?

Do you have three or more routes you walk on a regular basis?

Financially able to appropriately care for a guide dog?

Additionally, this section refers to the necessary O&M skills, particularly navigating and cane skills I mentioned earlier: “Orientation and mobility is training that visually impaired individuals receive that helps them confidently navigate the world. O&M focuses on things like sensory awareness, spatial concepts, relationships which exist between objects in the environment, searching skills, independent movement, sighted guide, protective techniques and cane skills. Every potential GDA student must submit an O&M evaluation before being accepted into our program.”

With these qualifications in mind, consider these questions and how your story can explain them. He may not need to walk exactly one or two miles a day, nor does he need to go far with his guide dog. Even walking to a general store, the vet clinic, and a neighbor’s house would work. As I explained in my post about canes and guide dogs, financial concerns also vary as well, with some schools covering all veterinary care and others only covering some food for when the dog and handler leave training. You can get flexible with whatever fits his situation best as long as the general outline is there regarding training, routes, exercise, and care for the dog.

Some things about training to consider are:

How did he get the service dog and train with her if he can’t leave the house? If he needs to stay inside for safety reasons, a program that allows him to go away and train with his service dog might actually be to his benefit. Or he could choose a program that includes training in his own home and community, depending on if it is safe enough from the people who want him dead. While a lot of programs that I can find include training at a specific location which the guide dog handler travels to, there are some programs in which trainers go to the handler instead. For example, Sadi the Blind Lady discusses this type of training with her guide dog in this video here.

As for development of cane skills, he would need to spend at least some time outside, such as when learning to cross the street safely. This would also require at least some exploration outside even with an instructor meeting him at his house. Traveling to other indoor areas to practice navigating is important as well. For example, my indoor cane skills involve finding and using escalators, elevators, stairs, and ramps safely. Finding landmarks is also a useful skill. He can use some of his residual vision for all of these tasks, along with his cane.

Exercise and routes for guide dogs are also important. These are big dogs that need at least some time outside. Most programs want a handler walking a few routes daily or a few times a week.

I can’t speak for other types of services the dog in question is trained to do, but I know that some guide dogs are also able to provide stabilization for DeafBlind handlers.

My suggestion for all these concerns would be to either come up with a reason he is safe in his general community or an area around his home rather than only inside. This might allow him to learn O&M skills, train with his guide dog, and go on short walks.

I am imagining a quiet village or perhaps a community that is secluded. Perhaps he lives in the mountains or the forest. Even a rural area could give him a little more freedom to leave his house without risk.

One last point I wanted to mention is that the requirements I listed above suggest handlers should be 18 or older. However, some schools accept 16 and older. Some accept handlers as young as 13. I’m less concerned about the more common age requirement so long as service dogs are portrayed accurately.

The Boarding School and Mobility Aids

The boarding school should allow the service dog, as service dogs can go anywhere. I also feel that him not knowing a cane is an option is confusing, especially given that cane skills are a prerequisite for guide dogs. Forgoing a cane and his dog also reduces his independence both as a blind person and someone with mobility issues. This, coupled with a drastic change in living situation, lifestyle, and amount of socialization, could be challenging. If used for plot reasons, this could be effective for creating emotional and physical struggles. However, it may be quite a lot for what sounds like a story already filled with different problems to face.

In my opinion, going into an unfamiliar situation without his usual mobility aids would probably cause additional strain. Instead of having a familiar dog by his side, he would go into this situation with no source of familiarity. Therefore, a guide dog there might help him in several areas, while also leaving his blindness less obvious than it might be if he used a cane. This is because canes are meant to be indicative of visual impairment in addition to mobility tools. Service dogs, on the other hand, can be utilized for multiple purposes, as is true with your character’s dog. This means that if your character does not want to disclose his blindness, which he is not required to do, he can explain that the dog is a service dog trained to provide assistance for various disabilities. As far as other characters know, these tasks could be anything from stabilization, medical alert, retrieval, or psychiatric support.

This post on service animals might be of some use.

This post I made about mobility aids might also be helpful.

The Spectrum of Blindness

I like that you have a few other blind characters, displaying the spectrum of blindness and different experiences. I wonder what mobility aids the other characters use.

Boarding School Accommodations and Assistive Technology

If he isn’t sharing about his blindness, how does he do schoolwork? I mention this because of little things that come up in classrooms, such as print being too small on exams, teachers writing on the boards without verbalizing, or students needing extra time. Eye strain can also be a concern in classroom settings. If he can talk with his teachers about accommodations he may need in order to do his schoolwork, this might help. He doesn’t necessarily need to let anyone else know unless he chooses to.

Conversely, you could also show the difficulties of not having accommodations or not having them fulfilled properly. The frustration, confusion, and helplessness often felt in these situations could be relatable to readers. Eventually, he could receive accommodations and advocate for himself, displaying the difference accommodations make. These can take the form of teachers and friends helping him in ways he would like to be assisted.

Accommodations put blind students on an even playing field. As long as you don’t normalize not having them, you’re probably good going either route. I wanted to include my thoughts here just in case, as you only mentioned a friend taking notes for him.

About note taking with a 3D pen—I’m not sure if that would work for notes. 3D pens are fun to use for drawings and art, but the ones I used weren’t very reliable, plus there is the size of the letters to consider. 3D letters are meant to be tactile, which means they would need to be larger than usual. This means reading an entire page of notes might be challenging.

He might be better off using other options, such as large print, for notes, particularly notes for maths or other materials written on the board that are not said out loud by the teacher. In this case, the notes his friend takes might be supplemental, with him taking his own notes by listening. He has a few options for this, including Braille, a laptop, or recording lectures. Since you mentioned he has a laptop with a screen-reader, he can probably use that with headphones. Refreshable Braille displays and note takers are also options, although they cost money. Typically they are provided by schools, governments, or scholarships.

When choosing assistive technology, consider his personality, his level of vision, how comfortable and knowledgeable he is with Braille, and how comfortable or uncomfortable he is with potentially standing out in some way. I’m not sure if at this point he’s still hiding his blindness or being open about it, but if he wants to hide it or avoid standing out among his peers, he might choose something like large print, a laptop, having a friend help take notes, or a combination thereof. Of course, if he has trouble processing visual information, large print might not be an option. In this case, a laptop with a screen-reader would allow him to take his own notes as well as read any that are emailed to him. If you go with him hiding his blindness, a laptop is probably the best option.

If he is comfortable with others knowing about his blindness, he might be more likely to use a Braille note-taker with headphones. He can also use a combination approach depending on his needs as well. For example, maybe he also records lectures because he is a slow note-taker or he gets distracted easily.

So far, you have a good use of assistive technology and Braille so far. I do wonder how he and his siblings learned Braille. Did an instructor come to their home to teach them as part of their homeschooling?

Some Thoughts About His Friends Helping Him

Other characters assuming his limits is pretty true to my own experience, as well as the reverse, such as people assuming he can do things that are actually hard for him because they can’t relate to his amount of vision. Vision can also change depending on environmental factors, lighting, fatigue, stress, eye strain, or anxiety.

While I don’t have a problem with friends making the mistake of being overly protective of blind friends, I think it is important that the behavior is also addressed and changed. His friends are not more knowledgeable about what is safe for him than he is. They are not more knowledgeable about what he can do than he is. [Bolded for emphasis.]

I also wonder, why hide his blindness and not other disabilities? Is it because blindness is a bit easier to hide than the others?

Consider how his various disabilities interact with each other. For example, blind people and people with cognitive disabilities are often infantilized, which can make advocacy difficult.

Lastly, you mentioned his friend subtly guiding him, of which I feel wary. If he asks his friend to do so, that would give him more agency, if you weren’t already alluding to that.

Oh, and another point I wanted to mention is that you have a lot of disabilities represented, some of which are highly stigmatized. Consider finding a few sensitivity readers for those as well, such as CPTSD, cognitive disability, and NPD, or at least the things you don’t already have personal experience with. @sensitivityreaders is a good place to start, as well as conducting general searches on tumblr and twitter.

@cripplecharacters is also a great resource for writing disabilities. Check out their master-posts for sure.

Avoiding Erasing Blindness Wth Shapeshifting and Energy Abilities, Plus Blind Person Learning Trapeze

The shapeshifting and energy stuff don’t seem like erasing blindness as far as you have described them here. Since one of your characters also has difficulty processing visual information with his residual vision, that means that the overwhelm would double for him. This isn’t even considering his photosensitivity. Additionally, eyes are complex structures, so messing about with them is probably not advisable if you don’t know what you’re doing.

Also, disclaimer, I know nothing about trapeze. The set-up your have sounds plausible to me, especially if you throw in magic. My main concerns are about possible light sensitivity from spotlights or light changes, as well as his stability problems making trapeze more arduous for him.

A quick search online brought up two blind trapeze artists: Sarah Houbolt and Rachael Storey.

As long as you can make trapeze accessible for him, you’re probably fine. Relying on audio and energy cues sounds like a good way to do that, as well as following regular procedures for training and safety. If anymore more familiar with trapeze can help, feel free to do in the notes and OP can contact you.

His Friends Getting Him Blindness Stuff Feels Off to Me

You mentioned that his friends get him stuff for cooking. Is he also cooking for himself at the boarding school?

A talking alarm clock and a Braille watch might be useful for school.

My only concern about his friends getting him such tools is that sighted people usually don’t know what is available, let alone where to order these items. Doing so could show that they paid attention and were proactive about doing their own research. However, what tools help can depend on the person and it might be important to establish that he expressed wanting certain items already.

Some blind people enjoy receiving blindness stuff as gifts. It shows the giver put extra consideration into choosing it. However, some blind people are sensitive about receiving items that specifically relate to blindness, unless they communicated wanting it beforehand as a gift option. Personally, unless I specifically asked for something Blindness Stuff TM, I would feel strange if a friend showed up with a talking alarm clock and gave it to me. This might be because I would rather something more personal, less utilitarian. Also, when sighted people talk about accessibility tools with me, I have usually already heard about it, didn’t want it, or already have it. The exceptions to this are if I, for example, want money to go toward something like an expensive Braille display. Or one of my blind friends gives me something I’ve been talking about for a while. With the exception of Braille cards or considering general accessibility where possible, none of my blind friends have gifted me Blindness Stuff.

@askablindperson made a video about giving blind people gifts that might also be useful. It captured some of my awkward feelings related to receiving blindness stuff. Link here.

My last suggestion for increasing general accessibility is to watch blind content creators, such as on this list linked here.

Closing

There is quite a lot to chew on in your ask. I tried to address everything. Please read any notes that might be added with anything I missed. I would also highly suggest a few sensitivity readers for the blindness and guide dog aspects.

I hope this helps.

[rxttenfish]

mmmmm

honestly miranda tends to express the... fairly normal merfolk trauma response of when she starts to get severely upset, she exclusively just wants to touch and be touched by those in her miivt'ia and turns hostile/aggressive and even possessive against anyone else around her. mainly whats happening is that the trauma makes her perceive everyone else as an actively threatening presence to her and her miivt'ia at that moment and retreating to the safety and assurance of her miivt'ia helps to self-soothe and to calm down.

for miri (and for most other traumatized merfolk too, tbh) this primarily features her clinging on/holding onto aaravi or bellanda tightly (soothing, comforting, the subconscious connection between doing so to not drift away in her sleep makes her feel safe and secure) and hiding her face against them (both for protection and closing out of other stimuli, but also hiding her mouth and any more unintentional "aggressive" responses she might have). ultimately the goal is to calm down and to stop being upset, it can just be a dramatic example of it since its a case when a merfolk would need to be alone and could not have a lot of other people around.

her and aaravi have a code for it and a cue for when miranda starts to really get upset in a crowded situation or someplace with other people. aaravi in particular has really taken this to heart as someone who also needs something very similar and can also get defensive/aggressive for miranda's sake when something happens to start causing it... and bellanda and miranda have existed for so long in this state together that to anyone else it looks like they can read each others minds. which is a little distressing, because if aaravi is defensive, then bellanda will get outright violent about it and cares significantly less if she hurts anyone else or burns any bridges over it.

[razzek]

The saga of Petey and the exorbitant vet bills continues, alas. Today we left the vet with five (!!!) meds and a bill of $380. Congratulations, Pete, you've gone over $1k! 8D

The vet thinks it's some kind of deep skin infection (you can see a bit of it on her side in the third pic; it is all over her belly, inner inner legs, and sides and in one ear right now). So far the first round of meds has at least made her more comfortable but she has had a terrible week of things.

I know things are tough for everyone right now and I haven't finished all the comms from the vet visit a few weeks back. I am not going to be reopening until January most likely so I can finish some time crunch things and get this backlog done. I am keeping a list of people who donate though so I can do something in return when I'm able.

If anyone is up for helping this old lady it would be hugely appreciated but this post is mostly just to make an update (I've been doing more on Bluesky). Thanks to everyone I have paid off something like $600 from the last Petey funds drive, she's just an expensive medical device at this point. But I promised her I would do my best until she goes out on her terms and if that means being in debt then I'll do it. This dog saved me from being run over thrice and has been a light in my life for over a decade. I love her and she deserves the world for all the charm and hilarity and doggo goodness she's spread literally around the globe, even winning the hearts of people who didn't like dogs before meeting her.

PayPal: zebitsofthegods@gmail.com

Just leave a note that it's for Petey and I'll be sure to put you on the list. :)

[oliver-and-mushrooms]

Does anyone on here train service dogs? Cause that's a job I've been considering as a career. But thing is, I also want to be a highschool art teacher. I was wondering if maybe I'd be able to do both with the service dog training on the side, or if that'd be too much work. There's not much info on service dog training and it's annoying

[talkorsomething]

I have Got to get more transgender

[homoqueerjewhobbit]

I guess Tumblr "crab day" is coming up or whatever and if you're thinking of buying me some crabs, make a donation to the org that trained my mom's guide dogs instead. Tell them it's in memory of Ethel.

Feel free to reblog (or make your own post) and add your gofundme or other worthy cause of choice that deserves money more.

Here's Ethel hard at work and wearing her corsage before guiding my mom down the aisle at my sibling's wedding last year.

[songsforchristmas]

if my college had admitted more freshmen this year i would be adopting a dog as we speak

[pepsicoughdrops]

forgot to give florida his newest scar on the last post so have him and reese chatting during their time in the big ceda hospital/holding facility after being cured 🫶

during florida’s time being infected he got into plenty of fights with other infected because of the fact he was completely blind (animal mentality of killing the weakest for others to be able to make it. even though florida post and pre infection is not weak by any means. just clumsy and very overstimulated 😭) and because he was a pretty loose cannon due to his other senses being crazy amplified which leads him to be constantly overstimulated and extremely territorial and confrontational to other infected

two of his fights are with reese and both end Bad for him 👎 first one florida’s almost gutted and has to be sewn up by jasmine (former nurse now survivor who is reluctantly traveling with alton (another survivor) who is the guy who found and followed around by florida). you can imagine how that played out. the second fight reese nearly rips out florida’s throat but ends up leaving him be <-asserting dominance. freak behavior.

florida doesn’t remember a lot of it because. well. he couldn’t really see during any of the fights he got into. but i think during the first few weeks of being cured while in the big ceda hospital/holding facility since his infection was worse than others it took him awhile to fully settle in so to speak. like even though he was very much human again i think the common room incident mentioned above was florida being able to smell reese in the same room and him getting set off set off whatever extremely small amount of non viable infection was left in reese and so they got in a fight.

^ended in them both being tased and separated by security staff

(click for better quality)

[workingflooff]

I had such a weird experience a few days ago at the mall.

I took public transit there and once we got there, I went to the spot where I normally take him to the bathroom. There was a Guide Dogs for the Blind van parked right next to where I normally take him to the bathroom. It looked like they were about to start unloading some dogs, but then they saw me and immediately packed up and hopped in the van and drove away, staring at me the entire time. All he was doing was looking for a spot to shit.  but whatever I can shrug that off they probably just don’t want any dogs near their dogs.

But then, when I actually got into the mall, Finn was doing some FMP and one of their guide dogs walked past me. Finn did fine, literally he did nothing wrong. We found a spot to sit down, and they were staring at me and whispering about me…grown ADI org guide dog trainers were judging a disabled 17-year-old’s legitimate owner trained service dog.

This made me feel like shit. I just wanted to absorb into the wall and not be seen. 

[millenniallust4death]

The Ontario Human Rights Tribunal has ruled in favour of a Sudbury woman who was denied guide dog benefit funding because her pup didn’t meet the province’s training criteria. The tribunal ruled the province’s policy was discriminatory because it created large barriers for disabled people who need service dogs for mental health support. It also directed the province to begin changing the current law by the end of 2023. [...] Under provincial criteria, a dog must be accredited by a group called Assistance Dogs International (ADI), the only designated organization for training and accrediting service dogs in Ontario. However, they only train dogs for mental health support for armed forces veterans and first responders. That meant Robinson-Cooke had no practical way of getting her dog, Sasha, accredited so she could receive the monthly funding of $84.

Link to the CTV news article (4 August 2023).

Link to Robinson-Cooke v. Ontario (Community and Social Services).

[artish-boi]