#gastric pacemaker
Explore tagged Tumblr posts
Text
Mercredi 12 juin 2024: Aujourd’hui j’ai toujours des douleurs au ventre mais heureusement que ça n’était pas aussi intense qu’hier, ça restait supportable. Par contre je me sens toujours affaiblie et j’ai une autre douleur au ventre: au pacemaker gastrique.. Ça tire énormément et parfois c’est très intense.. J’avais dû mal à bouger.. Je pense que c’est peut être les contractions des douleurs qui ont dû faire très légèrement bouger le boîtier et faire ça.. car ce n’est pas la première fois que ça arrive et à l’hôpital on m’avait dit qu’il suffit qu’il bouge d’un centimètre pour en ressentir des douleurs. Quoiqu’il en soit en soit j’espère que ça s’arrangera très vite.. Hier je n’ai rien mangé et je ne me suis pas branchée à la nutrition car j’avais beaucoup trop mal donc ça n’aurait fait qu’aggraver les choses.. J’avais si faim mais je m’étais au moins branchée à de l’eau pour rester hydratée. Aujourd’hui je me suis évidemment branchée et jusque là ça n’aggrave pas les choses!
#yamina hsaini#yamina's life#gastroparesie#sonde naso jejunale#pacemaker#gastric stimulator#gastric pacemaker#emo#alternative style#orange cat
3 notes
·
View notes
Text
My bionic stomach is definitely running out of batteries. Can tell cuz I'm hella nauseous and can't each as much in one sitting as usual. The battery of my gastric stimulator needs replacing about every three years and last time I had it replaced was just before the pandemic broke out.
My appointment to check the battery is a month away and if I do in fact need the battery replaced it will probably be at least a month or two after that before they can schedule the surgery.
Looks like ya girl is back to a diet of liquids and soft, low fiber foods. I'll try not to lose too much weight and try to keep myself fed enough to function at work.
I've got this! Gastroparesis can lick my boots! I'm gonna power through it!
#gastroparesis#chronic illness#me#stomach problems#dysautonomia#ehlers danlos syndrome#i can do this#nausea#gastric stimulator#gastric pacemaker
3 notes
·
View notes
Text
Able-bodied people (and sometimes disabled/chronically ill people with mild/in remission disease progression) operate under the assumption that medical devices are life(style) limiting and that by using one, you are giving up an able part of yourself.
Medical devices are not life limiting, they are life saving.
Feeding tubes + pumps, piccs, ports, catheters, ostomy bags, cardiac and gastric pacemakers, drains, mobility devices, nebulizers, CGMs, insulin pumps, pain pumps, nerve stimulators, implants, internal defibrillators, etc etc all extend the freedom and life of the user by allowing us to live comfortably with our condition(s).
The assertion that we are limiting ourselves by using medical technology is so prevalent, even in disease-specific communities. There are people in my gastroparesis support groups that are actively starving because they are refusing intervention at this moment, and it's all a byproduct of this mindset that I've touched on before that mental willpower is greater than the progress of chronic illness/disability. And in this case- it's perpetuated by many medical professionals as well. No amount of "eating smaller, more frequent meals" will flip a switch and un-paralyze my stomach, Dr. ER. Hospitalist.
2K notes
·
View notes
Text
Because my most popular post is about weight loss and how it's a crock, I get a lot of questions about various things, including bariatric surgery--just posted the link to the post I did about that--but also Ozempic/Wegovy, the once-weekly injectable semaglutide medication that was developed for diabetes but was found to have independent benefits on weight loss.
I always said that weight loss was like Viagra: when a medication came along that actually worked, it would explode. We'd all hear about it. Fen-phen in the 90s worked, but it was bad for your heart. Stimulants, like meth, may cause weight loss, but they do it at the cost of heart health, and raise your likelihood of dying young. Over the counter weight loss supplements often contain illegal and unlisted thyroid hormone, which is also dangerous for the heart if taken in the absence of a real deficiency. Orlistat, or "Alli," works the same way as the Olestra chips Lays made in the 1990s--it shuts off your ability to digest fats, and the problem with that is that fats irritate the gut, so then you end up with fatty diarrhea and probably sharts. Plus Alli only leads to 8-10lbs of weight loss in the best case scenario, and most people are not willing to endure sharts for the sake of 8lbs.
And then came the GLP-1 agonists. GLP stands for glucagon-like peptide. Your body uses insulin to make cells uptake sugar. You can't just have free-floating sugar and use it, it has to go into the cells to be used. So if your body sucks at moving sugar into the cells, you end up with a bunch of glucose hanging out in places where it shouldn't be, depositing on small vessels, damaging nerves and your retinas and kidneys and everywhere else that has a whole lot of sensitive small blood vessels, like your brain.
Glucagon makes your liver break down stored sugars and release them. You can think of it as part of insulin's supporting cast. If your body needs sugar and you aren't eating it, you aren't going to die of hypoglycemia, unless you've got some rare genetic conditions--your liver is going to go, whoops, here you go! and cough it up.
But glucagon-like peptide doesn't act quite the same way. What glucagon-like peptide does is actually stimulating your body to release insulin. It inhibits glucagon secretion. It says, we're okay, we're full, we just ate, we don't need more glucagon right now.
This has been enough for many people to both improve blood sugar and cause weight loss. Some patients find they think about food less, which can be a blessing if you have an abnormally active hunger drive, or if you have or had an eating disorder.
However, every patient I've started on semaglutide in any form (Ozempic, Wegovy, or Rybelsus) has had nausea to start with, probably because it slows the rate of stomach emptying. And that nausea sometimes improves, and sometimes it doesn't. There's some reports out now of possible gastroparesis associated with it, which is where the stomach just stops contracting in a way that lets it empty normally into the small intestine. That may not sound like a big deal, but it's a lifelong ticket to abdominal pain and nausea and vomiting, and we are not good at treating it. We're talking Reglan, a sedating anti-nausea but pro-motility agent, which makes many of my patients too sleepy to function, or a gastric pacemaker, which is a relatively new surgery. You can also try a macrolide antibiotic, like erythromycin, but I have had almost no success in getting insurance to cover those and also they have their own significant side effects.
Rapid weight loss from any cause, whether illness, medication, or surgery, comes with problems. Your skin is not able to contract quickly. It probably will, over long periods of time, but "Ozempic face" and "Ozempic butt" are not what people who want to lose weight are looking for. Your vision of your ideal body does not include loose, excess skin.
The data are also pretty clear that you can't "kick start" weight loss with Ozempic and then maintain it with behavioral mechanisms. If you want to maintain the weight loss, you need to stay on the medication. A dose that is high enough to cause weight loss is significantly higher than the minimum dose where we see improvements in blood sugar, and with a higher dose comes higher risk of side effects.
I would wait on semaglutide. I would wait because it's been out for a couple of years now but with the current explosion in popularity we're going to see more nuanced data on side effects emerging. When you go from Phase III human trials to actual use in the world, you get thousands or millions more data points, and rare side effects that weren't seen in the small human trials become apparent. It's why I always say my favorite things for a drug to be are old, safe, and cheap.
I also suspect the oral form, Rybelsus, is going to get more popular and be refined in some way. It's currently prohibitively expensive--all of these are; we're talking 1200 or so bucks a month before insurance, and insurance coverage varies widely. I have patients who pay anything from zero to thirty to three hundred bucks a month for injectable semaglutide. I don't think I currently have anyone whose insurance covers Rybelsus who could also tolerate the nausea. My panel right now is about a thousand patients.
There are also other GLP-1 agonists. Victoza, a twice-daily injection, and Trulicity, and anything else that ends in "-aglutide". But those aren't as popular, despite being cheaper, and they aren't specifically approved for weight loss.
Mounjaro is a newer one, tirzepatide, that acts on two receptors rather than one. In addition to stimulating GLP-1 receptors, it also stimulates glucose-dependent insulinotropic polypeptide (GIP) receptors. It may work better; I'm not sure whether that's going to come with a concomitantly increased risk of side effects. It's still only approved for diabetes treatment, but I suspect that will change soon and I suspect we'll see a lot of cross-over in terms of using it to treat obesity.
I don't think these medications are going away. I also don't think they're right for everyone. They can reactivate medullary thyroid carcinoma; they can fuck up digestion; they may lead to decreased quality of life. So while there may be people who do well with them, it is okay if those people are not you. You do not owe being thin to anyone. You most certainly do not owe being thin to the extent that you should risk your health for it. Being thin makes navigating a deeply fat-hating world easier, in many ways, so I never blame anyone for wanting to be thin; I just want to emphasize that it is okay if you stay fat forever.
772 notes
·
View notes
Note
Have you ever used a minifridge
Have you ever drank one of those limited mtn dew flavors and if so which is your favorite
Have you ever finished Minecraft (beat the Enderdragon in survival mode)
Have you ever drank a "real" cola
Have you ever had pure maple syrup?
Have you ever had unpasteurized honey? (what one is your favorite?)
Have you ever had a product from a worker's cooperative?
Would you rather use a gas stove or an electric stove?
Would you rather have Coke a Cola or a Pepsi? + Cherry or no Cherry? (You must choose one)
Would you rather go to Disney Land (one day pass) or a Nintendo of America tour (all day)?
Would you rather a tour of Intel or a tour of AMD, with spicy unreleased info?
Would you rather: A diabetic insulin pump, or a gastric/heart pacemaker, at a DefCon full of eager eyes?
Would you rather go to a furry convention with friends and a pass for one free full fursuit by a fantastic creator, or a tech convention with an exclusive currency that allows you to purchase any one item unavailable for resale?
Would you rather a hookup from Craigslist or a tens unit you must use from Temu?
Would you rather a Windows S Laptop from Amazon or Temu?
A vending machine offers you a Can of Nothing or a Bag of Laughter. You must choose and consume one. Which do you choose? One will make you mute for twenty four hours, including your ability to text or type, the other will make you giggle uncontrollably for twenty four hours, including in a terrible situation.
Some questions are situations which may be seen as two unappealing things you must decide on. I am interested to know your reason between them
woah! sorry i didnt answer this earlier! here goes:
nope, never used a minifridge before. does code red count? then code red :3 yes, once. i just like building :3 ..... real cola? like, non usa coke? no :( its on my list tho also no :( 'spensive... REI is a coop, right..? electric, cause i think its neat. runner up: gas cause FIYAHHH cherry bepis eugh. fine. nintendo of america tour i guess... AMD AMD ADM RAHHHHHHR ARHHHHH RYZEN SWEEP oh god thats so rough. fuck. heart pacemaker as a deterrent. i stopped reading at furry convention. i love furcons! temu tens unit, mod it into vr hardware somehow ......amazon? idk put arch on that can of nothing. laughing makes me nauseous :(
hugging you so tight also im still working on drawing your bunsona! as a thanks for the hug!
#ask and answer#i hope youre doing well#holding ur paws#some of these were genuinely hard to choose between i like to think about them
4 notes
·
View notes
Text
Please share this fundraiser and donate if you can! Shannon can't get her treatment on the NHS and needs it privately funded.
#gastroparesis#fundraiser#gofundme#fundraising#mutual aid#donate#donate please#donate if you can#glasgow#uk#london
1 note
·
View note
Text
This one is very important to me, gang. My friend Shannon has been through what can only be described as medical hell the past two years, and getting this funded will make a world of difference. Please, please, please share and donate, every donation or share helps us teach our goal of getting Shannon the treatment she needs to eat again.
0 notes
Text
Gastric Electric Stimulators Market Brief Forecast and Analysis by Top Key Players to 2032
The Gastric Electric Stimulators Market is experiencing a notable upswing as it offers innovative solutions for individuals with various gastrointestinal disorders. In 2033, this market is witnessing significant growth, primarily driven by the increasing prevalence of conditions like gastroparesis and chronic obesity-related diseases. Gastric electric stimulators, also known as gastric pacemakers, are implantable medical devices designed to modulate the electrical activity of the stomach, thereby improving gastric motility and alleviating symptoms. This technology is increasingly becoming a lifeline for patients who have not responded to traditional treatments.
One of the key factors contributing to the growth of the Gastric Electric Stimulators Market is the rising incidence of gastroparesis, a condition characterized by delayed gastric emptying. This debilitating condition can lead to symptoms like nausea, vomiting, abdominal pain, and malnutrition. Gastric electric stimulators have emerged as an effective therapeutic option, providing relief to patients who have struggled to manage their symptoms through conventional treatments.
The market's expansion is further fueled by the increasing recognition of the role of gastric electrical stimulation in the management of obesity. As obesity rates continue to rise globally, there is a growing demand for minimally invasive and reversible weight loss options. Gastric electric stimulators offer a potential solution by targeting the appetite control centers in the brain, helping patients achieve and maintain weight loss goals.
For More Info@ https://www.bloomberg.com/press-releases/2019-07-31/gastric-electric-stimulators-market-to-reach-a-6-4-of-cagr-by-2026-pmr
Technological advancements in the design and functionality of gastric electric stimulators are also boosting market growth. These innovations include smaller, more discreet devices, improved battery life, and enhanced programming capabilities, making them more patient-friendly. Additionally, a growing body of clinical evidence supporting the efficacy of these devices in various gastrointestinal disorders is instilling confidence among healthcare providers and patients alike. As the Gastric Electric Stimulators Market continues to evolve, it holds promise as a vital component of the therapeutic landscape for individuals facing complex gastrointestinal challenges.
0 notes
Text
Non-Surgical Alternatives
In recent years, the increased wait times for bariatric surgery is another issue that may have you looking for alternatives. Then of course, for some, there's the concern they might gain all the weight back and have gone through all of it for nothing and they've witnessed people they know who have done exactly that. Some people, of course, are simply and understandably afraid to go under the knife. The procedures range from intragastric balloon therapy to endoscopic sleeve gastroplasty. There's also a procedure called aspire assist where a tube device is inserted into a patient's stomach to aspirate or drain stomach contents after a meal - Bariatric Surgery Alternative.
All of these new options in the emerging field of bariatric endoscopy hold promise, but there are still issues of serious concern with these procedures. Because insurance providers don't usually cover these options, bariatric endoscopy presents many of the same financial barriers as bariatric surgery, and will have some of the same nutritional and psychological issues, as well as potential short- and long-term side effects. This is a weight loss strategy that introduces an implantable pacemaker-like device to control sensations of hunger and fullness. This is a minimally invasive procedure that leaves your digestive tract intact, unlike bariatric surgeries - Non-surgical Fat Reduction.
There is something called the vagus nerve in your brain that is stimulated to send signals to the stomach to control hunger and fullness. The implantable system can intermittently block signals to the stomach to cause weight loss by appetite reduction and less intense hunger sensations. The device can also be deactivated and removed at any time with the help of your surgeon. Surgery can be frightening. There are other options to consider as an alternative to gastric bypass and other weight loss surgery options. Let’s take a look at some less invasive weight loss options. For more information, please visit our site https://www.atlantaliposuction.com/
0 notes
Text
Dinner......that’s all I got (:
1 note
·
View note
Text
youtube
#my story#story of my life#mon histoire#gastroparésie#gastroparesis#nj tube#pacemaker gastrique#gastric pacemaker#yamina hsaini#yamina's life#Youtube
2 notes
·
View notes
Text
Feeling this extra right now because my body reminded me I am doomed to need surgery every three or four years for the rest of forever 🙃
(If someone could please invent wireless charging for Enterra devices, that would be sexy as hell)
That chronic illness feeling where you don't want to die soon, but the idea of spending another 60 or so years in this body makes you want to scream.
#the wait time between “oh your battery is dying ” to “here's surgery to put in a new battery so you can eat” is 3 or 4 months in nausea jail#whose dick do i have to suck [and probably vomit on] to get a way to charge this thing???#enterra implant#gastric stimulator#gastric pacemaker#chronic illness#gastroparesis
662 notes
·
View notes
Text
It's Gastroparesis Awareness Month
Hi! I have gastroparesis and I'm an insufferable know-it-all so let's talk about it!
Gastroparesis, or a paralyzed stomach, is a condition that causes delayed gastric emptying.
This can cause a range of symptoms and complications:
nausea
vomiting
early satiety/fullness
upper gastric pain
heartburn
malabsorption
dehydration
malnutrition
Gastroparesis can be treated by a gastroenterologist, but often needs to be managed by a motility specialist due to a lot of misconceptions about the condition. Providers, especially in the emergency department, will commonly misdiagnose gastroparesis as cannabis-hyperemesis syndome, cyclic vomiting syndrome, gastritis, food poisoning, etc.
There are several commonly known causes of gastroparesis like vagus nerve damage from diabetes, injury to the stomach, and stomach surgery like hernia repair or bariatric surgery. There are also idiopathic cases with no known cause. Other causes of gastroparesis are:
Connective tissue disorders like HSD and EDS (commonly hEDS and cEDS)
Post-viral (like COVID, viral gastritis, mononucleosis/Epstein-Barr)
Restrictive eating disorders
Autoimmune diseases like Systemic sclerosis (scleroderma), Lupus, Hashimoto's
Central nervous system disorders
Gastroparesis also has common comorbidities with conditions like:
POTS and other forms of dysautonomia (POTS, EDS, and gastroparesis are a common triad of diagnoses)
MCAS
SMAS (which can also present with similar symptoms to GP)
Intestinal dysmotility and esophageal dysmotility disorders (known as global dysmotility)
PCOS with insulin resistance
Endometriosis
SIBO/SIFO
Chronic intestinal pseudo-obstruction
Migraines
Certain medications like Ozempic and other drugs in that class act on the digestive system to delay gastric emptying, which has caused people to be diagnosed with gastroparesis. Some people report that their cases have not gone away since stopping the medication, others report feeling better after stopping. Other drugs like opiates and narcotics can cause delayed gastric and intestinal motility as well, but these are commonly known side effects of those painkiller classes.
Gastroparesis is classed based on severity and graded based on how you respond to treatment.
Severity of delay ranges from mild to very severe, and this is based on your actual stomach retention calculated at 4 hours into a gastric emptying study.
The grading scale ranges from one to three, one being mild and three being gastric failure.
There is no consistent single treatment that is proven to work for gastroparesis, and there is no cure. Treatments can consist of:
Diet changes (3 Step Gastroparesis Diet, liquid diet, oral sole source nutrition)
Prokinetic (motility stimulating) drugs
Anti-nausea medications
Proton-pump inhibitors
Gastric stimulator/gastric pacemaker
Pyloric botox and dilation
G-POEM/pyloroplasty
Post-pyloric tube feeding
Gastric venting/draining
Parenteral nutrition
IV fluids
Other surgical interventions like gastrectomy or rarely, transplant
Gastroparesis is a terrible disease and I hope that if any of these symptoms resonate with you that you can get checked out. I was misdiagnosed for a long time before getting a proper gastroparesis diagnosis, and all it took was a gastric emptying study. This is ESPECIALLY true if you're having post-COVID gastrointestinal problems that are not improving. I almost died from starvation ketoacidosis because of how serious my GP got in a short period of time post-COVID (I had GP before COVID), and now I'm tube reliant for all my nutrition and hydration.
Stay safe friends!
653 notes
·
View notes
Text
2 Upcoming surgeries for my gastroparesis .
The first one is a GJ tube placement. And after awhile for that will be a gastric pacemaker.
#gastroparesis#spoonie life#spoonie#spoonie strong#spoonie problems#spoonie probz#surgery#surgeries#gj tube#gastric pacemaker#spoonie positive#chronically ill#chronically sick#chronic illness
11 notes
·
View notes
Text
jjust had the most depressing 6 hour trek to Boston ever. went to mobility specialist, she basically said im stuck like this permanently. she said theres no surgery treatments (wrong and i even brought up gastric pacemaker but i digress), no way to find any root cause but even if there was one its all treated the same and that is: there is none ! there is no fucking treatment other than experimental medications and diet (and supposedly no surgical options but i was skeptical about that). she thinks my gastro is ideopathetic (there is no known cause) but figures its from a virus, which i DID have a cold one month leading up to this happening but she doesn’t fully know the exact kknown cause thats just her guess. her treatment ? miralax every day and maybe motilium. also she doesnt want to do virtual appointments, i’d have to haul me & my moms ass to BOSTON every few months or we could always ‘find someone else’ (there is so much wrong with this i cant even begin). i am literally beyond hopeless of getting even ‘normal’ at this point. Like this is seriously one of the most gut-wrenching, depressing, more bleak outlook diagnosis i ever ha the displeasure of hearing. Im serious.
#🌈#🐰.txt#gastroparesis#idk why im tagging this im just.......i doubt anyone can help me. i cried on the way back home
3 notes
·
View notes
Text
Discover How a Quick Weight Loss Can Be a Healthy
If you are interested in weight loss diet, then this section is for you. It will guide you through a quick weight loss and how it can be a healthy choice for your body.
Weight loss is the process of reducing excess body fat to improve health and physical appearance. Weight loss takes time and effort, with diet and exercise being key components to shedding pounds. However, it's important to know that there are other ways to lose weight as well.
There are several different types of weight-loss programs available that can help people achieve their goals. These programs vary in their approach on how much they focus on diet versus exercise or a combination of both. There are also programs that use medications, surgery or devices like gastric bands or pacemakers to help people reach their desired results faster than normal methods
A healthy weight loss is not a quick weight loss. It is a process that can be achieved by changing your lifestyle and the way you think about food.
It is important to understand the difference between quick weight loss and healthy weight loss. Quick weight loss can be achieved by following restrictive diets, which can lead to unhealthy eating habits and an increased risk of developing eating disorders. Healthy weight loss requires a person to change their lifestyle in order to maintain a healthy diet, exercise regularly, and reduce stress levels.
I have always been one of those people who wanted to lose weight quickly because I was always in a rush. When I finally realized that quick weight loss was not the answer, I learned that it takes time for any lifestyle change to take effect.
It is no secret that obesity is a major problem in the US. In fact, more than 1/3rd of the population is obese and this has serious implications for their health.
But, not all hope is lost! Obesity rates are actually starting to decline. A recent study revealed that there was a 2% drop in obesity rates across the US.
This article will discuss how a quick weight loss can be healthy and what you should do to achieve it.
In this article, we will be looking at how a quick weight loss can be a healthy one.
We will also be looking at the different types of diets that are out there, and how you can find the one that suits you best.
We will also look at some of the benefits of weight loss, and what it does for your body.
A quick weight loss can be a healthy weight loss. It is not necessary to starve oneself to lose weight. Eating healthy, exercising, and drinking lots of water are the best ways to lose weight. One can also use a diet patch or drink tea for quicker results.
The introduction should start by stating what the section topic is, and then provide some keywords that might be used in the article. The introduction should also include an introduction sentence about what the article will cover and why it is relevant to readers.
Nowadays, weight loss is a global issue. Obesity is one of the leading causes of death in the world. In the US, around 1/3 of adults are obese.
A quick weight loss can be a healthy one if it is done in a healthy way. This article will give you some tips on how to do it properly and safely.
2 notes
·
View notes