#epilepsy /

[fliplifeupsidedown]

me coming back to existence after a random tonic clonic

You've been "trapped" in a "VR" game for years, learnt magic, had a family, etc. But now they've "rescued" you from it all. Waking up on the hospital bed you reflexively cast a shield. Which works.

[sysboxes]

[Text: This system experiences seizures.]

Like/reblog if you save or use!

[indignanthorseboy]

just gonna start doing this to people who say this shit

[juicy-egg]

Pride month 2, the electric boogaloo

"Pride month is over"

WRONG! Your pride month is over! Me and all the other disabled queers are having pride month two: disability edition

[nightmaretour]

I keep seeing people put accommodations for people with epilepsy on the same level as sensory accommodations for autism and like... no??? Obviously both are important but epilepsy can kill people, SUDEP is a thing. If you expose someone with photosensitive epilepsy to strobing lights they could suffer permanent brain damage or die. Epilepsy is a condition with physical, sometimes deadly consequences. I'm not sure how many different ways I need to say this before it sticks, but epileptic seizures are physical neurological phenomena that can cause lasting neurological damage or death. Epilepsy can kill you. You can die from epilepsy.

[ka3l]

[spoonfulofhannah]

Fatigue feels like you have sandbags tied to your feet while trying to walk. It feels like you haven’t slept in weeks. It feels like gravity is pulling you down. It feels like cotton balls are in your head, clouding everything.

Fatigue is NOT the equivalent to being tired.

[spaceydelusions]

Fuck epilepsy

I will be updating this every time I get pissed off

I'm so pissed off about my symptoms im making a PowerPoint about it

[glitchdollmemoria]

oh hey btw, apparently tumblr mobile now has an option to report ads for having flashing lights, if you click the three dots in the top right corner it should show up. not sure how long thats been there but i dont remember it being there at least a few months back, i would venture to guess it came with the recent update but shrug. fucking ridiculous that they cant just not put flashing ads in our faces in the first place, but at least this is an option.

people who dont have issues with flashing lights are allowed and encouraged to reblog

[nebulae-d]

service dog discrimination and ableism against service dog handlers isn't just petting a service dog without asking.

it's talking to the dog while they're on duty. no amount of "oh i know I can't pet you but you're so cute!" when you do so at a restaurant while she's laying at my feet makes it okay.

it's pointing the dog out to your kids and encouraging them to get excited and yell when we come close, when all I'm trying to do is grab a package of hot dogs for dinner. or allowing them to follow us around until you trigger a meltdown, and then realize you've fucked up.

it's coming up to ask me questions when she's actively performing task work, and when I inform you she's tasking you proceed to ask questions about her tasks and what she does.

it's being incessant about asking about what my dog is trained to do and what MY issues are, because you can't manage your own curiosity and emotions.

it's recording us and photographing us without my consent. there are at least four recordings of my dog and i in the world somewhere, and i believe photos of us while she's actively been tasking.

it's denying us access to locations on rules that don't exist.

it's refusing to educate yourself on federal ADA and state laws, refusing to listen when i inform you on those laws, and spreading misinformation instead of listening to handlers.

it's hiding us away out of sight so we don't "bother others" when we go out into public under the guise of making the dog comfortable, or "giving us space" when there were plenty of other options that weren't isolated and alone.

its following us through stores and public locations to gawk at my dog.

it's being denied 10+ jobs that otherwise you were loved for because you told them at the end of the phone interview "just so you're aware, I also have a service animal and will be needing accommodations" and suddenly they no longer want you, despite being okay with the wheelchair and crutches. because everyone loves the dog until they have to put in the effort for the handler.

it's speaking to the dog instead of the handler, or ignoring the handler's needs.

it's becoming a public spectacle every time you leave your home, because everyone wants to ask questions, talk to you, and fawn over your dog.

it's being the last thought for an event, or not even a thought at all, with people who know you will always have a service dog accompanying you and require accommodation in all circumstances, whether that be just the dog or dog and wheelchair. its knowing you were not included in the planning, or were expected to leave her behind and put yourself at risk.

its being asked or told to leave your dog at home, because "why do you need them? can't you just go without them?"

its becoming angry when you're asked to leave us alone, and causing the fear of aggression or retaliation for speaking up for yourself.

its people taking your aid less seriously because its a dog, and they only see a cute companion, and it can't possibly be as important as the other aids you rely on, despite her being the thing that has saved your life more than once.

its taking your pets into places they should not be because "you want them there" or "whats the worst that could happen"

its so many little things in my life that add up that most people don't even realize they do, or don't think about, but i think about them and it hurts and it sucks. it is so simple to treat service dogs and service dog handlers with respect. it is so simple to treat disabled people with respect. i want to be left alone and i want people to give my service animal the actual respect she deserves for the work she does, and i want to be included. im so tired.

[runby2]

this is the third time this month i've had a seizure triggered by tiktoks / youtube ads and videos / pinterest ads having rapid flashing lights without warning or overwhelmingly high frequency noises. i get the joke is that people without seizures impacting their day to day will go "ow this hurts my senses" but please understand that people prone to seizures will have seizures. if the entire joke is doing something that triggers them. so please think of us before you make your joke. also think of people with migraines, and autism who will also be put through severe pain.

thanks. here's cats

[a-sassy-bench]

do able-bodied people not understand that if disabled people call out of work every time they don't feel good that we would call out of work every fucking day?

like honestly. what do you think being disabled means?

[drizzledrawings]

I will be the epileptic representation that I so desperately need!! The auras have been hitting me hard recently so I made some art about it

[anonpolls]

Do you think giving warnings for "bright/neon colors" or "eyestrain" is stupid? Not in the case of actual epileptic lights, just colors

Yes

No

Instead of making this a poll, as someone with epilepsy I would like share that warnings are important, even when you don't have epilepsy. Lots of people end up having seizures in their life because of this (eyestrain, bright colors, and flashing lights), which is why companies and whoever is creating the thing should make sure to have warnings. Even when there are no flashing lights and just bright colors or eyestrain, people with epilepsy will sometimes have seizures from that, speaking from years of experience.

I think it's important to spread this message because not many people know much about it.

[gubgam]

Y’all, tumblr is letting you report ads for having flashing lights! Tap on the 3 dots at the top and look at the bottom! Please do this for your photosensitive friends!