#disability Ireland
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Happy disability pride month!
🖤💚🩵🤍💛❤️🖤
Disability Pride Month is an event in July that celebrates diversity, raises awareness of different disabilities and encourages positive conversations around disability.
“disabled people remain one of the most marginalised communities in Irish society, experiencing higher levels of poverty, unemployment, and social exclusion due to societal barriers.” - Maryam Madani, activist and chairperson of Disability Power Ireland 🇮🇪
Some information on the hidden disabilities sunflower lanyard, JAM cards, As I Am autism ID cards and Irish sign language finger spelling:
#so I may have accidentally drawn the flag upside down-#disability pride month#sunflower lanyard#actually autistic#pride month#art#artist#drawing#artbyamyoc#digital art#artwork#nurodivergent#nurodiversity#queer artist#autistic artist#autistic adult#as I am ireland#irish artist#disability Ireland#diversity#inclusion#artists on tumblr#disability pride#mental health#artfight#redbubble#art prints#illustration#sign language#autism
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Sign before you reblog. You might think that two reminders is redundant but seriously the notes to signature ratio is ridiculous.
The Irish government is proposing an overhaul to the country’s disability welfare system that will lead to disabled persons being forced into employment.
There is a plan for a three tier system, with the lowest level being forced to take up “places in training and employment programmes, and take up employment opportunities that are appropriate to their capacity and circumstances.” and receiving €220 a week,
the middle “being expected to make reasonable efforts both to engage with Intreo and to take part in training and other programmes appropriate to their circumstances”, and receiving €242.65 a week, and the highest not being required to work, but only receiving €265.30 a week.
With our country’s outrageous cost of living, not even the highest tier of welfare is enough to live off of.
This motion must not be allowed to pass.
https://ilmi.ie/government-publishes-green-paper-on-reform-of-disability-payments-need-to-create-strong-ilmi-response/
This is the full text about the motion
And this is an excellent Summary from TicToc https://vm.tiktok.com/ZGJvqtsP6/
I have created a petition against this
Just remember to actually sign it as well as reblogging it please. It takes about two minutes and could help make a big difference. No seriously, if you reblog without signing it doesn’t help at all it literally has 57 signatures.
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It's budget time in Ireland which means some eejit is inevitably going to talk about how giving disabled people and carers a €12/week raise is some fucking spending spree so here's your friendly reminder that disability benefit is and always has been below what the government determined to be the bare minimum amount you can live on.
Ireland is the worst country in the EU to be disabled. €12 a week is fuck all for us.
#i feel like people forget abt ireland in disability spaces online bc we're not very big#which fair enough#but its so so shit here to be disabled and when the main irish voices online are people throwing pity parties#or people saying we're being given free wealth#its disheartening#cripplepunk#disability#ireland#wheelchair user
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Anti-mask hate I receive in the streets
This is 100% not an exaggeration when I say that since the pandemic began, as a queer, trans, goth person with green hair!! I have received more hate walking in the streets for WEARING A MASK than for the queer, trans, goth, green-haired aspects of myself. Which is really saying something seen as I am in Ireland.
Queer- and transphobic slurs have been replaced with “Take that poxy mask off” and “Be careful I saw some covid over there” (both genuine phrases I have heard). And that’s not to say I don’t get the slurs as well. I get both. But it’s like the right wingers see me and their brain short-circuits trying to figure out what to harass me over. And the mask is what annoys them the most!
Every single time I leave my apartment, it’s guaranteed I’ll get some shit about the mask at least once. Even if it’s just to go to the supermarket two minutes away. Whether it’s the shouting or harassing, or their absolute favourite thing: coughing on you. I’m not even joking when I say I get coughed on by strangers minimum once a day.
It’s really telling that they believe in the “covid isn’t real/ is over” or “who cares, it only kills disabled people” rhetoric. It’s just bizarre because I’m not forcing them to wear one. I’m not even wearing anything that’s says to wear a mask. I’m simply wearing one on MY face and minding my own business.
#covid isn’t over#wear a mask#ireland#irish#lgbt#trans#queer#dublin#covid#covid 19#disabled#disability#invisible disability#chronically ill#chronic illness#high risk#immunocompromised#disabled rights#disability pride#disability pride month#tw homophobia#tw transphobes#tw transphobia#tw bigotry
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Resources that I used for each subject for junior cycle (age 12-15)
✨Hyperlink ✨
Subjects covered
Maths
English
Irish
French
Geography
History
Home.Ec
Science
Music
#adhd study tips#adhd studyblr#spoonie studyblr#adhd study#adhd tips#ash’s originals#actually adhd#adhd#study tips#studyblr#disabled studyblr#Ireland#Junior Cert#Online resources#Free resources#Resources#Links#Junior cycle#Studyblr#autistic studyblr
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Sup nerds! I'm Viktor Complex, a drag king based in Ireland
He/They in drag | They/Them outta drag
(Sé/Síad as Gaeilge if you're feeling it)
I'm trans & disabled, and often rely on mobility aids - and they feature a lot in my performance.
I do a lot of goofy lip syncs, attempt some stand up, and bring lotsa political inspo into my drag acts. That, and crossdressing as a 2000s emo boii of course.
You'll mostly find me on the Picture App or the Short Video App, but I do like to lurk here upon occasion too ⚡ I perform all across the country, but create lotsa online content too when spoons allow.
#drag#trans#drag king#irish drag#nonbinary#viktor complex#queer#lgbtq#disabled#babe with a mobility aid#disabled icon#irish#ireland#drag is art#local drag#support local drag#pinned post#pinned intro
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Guess which bitch now has room on its phone for instagram for the first time in like 3 years. This is only good bc now we can post art there again.
Not that instagram is nice to artists or anything. Just that our art tumblr is so very tiny and unused. Gonna probably have to clear it out somewhat when I finally get around to posting art.
#thank fuck for our silm special interest tho#we can finally get like traction on posts#which'll mean that when our fibro flare-up finally dies down (lmao it'll be ages bc our dad is Stressing The Fuck Outta Us)#we can get commissions done again#and through those. well.#money both for clothes to make us comfortable#(which will also last for years & be the right kinda clothing for when we move overseas)#and also for savings for WHEN we move overseas#like our grandma is nice & all &'ll probably help pay for us getting housing or whatever#but i dont want to have to Rely on her inheritance from her aunt(?)#and disability benifits are dodgy at best. and we'll have to survive somehow *before* we get them through#and i kinda dont want to have to rely on the generosity of an old school friend's mum. or a 10th cousin 4 times removed (or whatever)#who might well be dead before we move to ireland#bc he's like 95 rn#and idk if he'd even let us stay at his (scarily enormous) house At All#also. idk if we'd have the money without some kinda work to get HRT when we move out. dont wanna have to be reliant on parents or the gov.#for our HRT. i doubt we could get public healthcare to cover it. not immediately at least.#and i kinda dont want to have to go back on birth control. cause progesterone or w/ever its called has feminising effects iirc#and we're not sure if we want a hysterectomy yet. so.#it'd be a choice between periods (hell) and HRT (expensive)#fuck i hate being disabled sometimes#like actually if anyone calls chronically fatigued ppl “lazy”. i fucking WISH i was lazy.#like bitch please this flare-up is making it so that NONE of my meds get rid of the pain anywhere NEAR fully#and im low-key on the Good Shit™#also so annoyed that ireland hasnt legalised weed. bc. we're almost certainly gonna be doing it for pain#and getting an *illegal* product is so much more difficult#lmao i worked out commas#—Roquén#my fingies hurt so much rn lmao#anyway gonna go draw my source drowning in blood & despair. then im gonna work out what the fuck kinda pigments caranthir would use
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Reblog when you vote for larger sample size
#hyperspecific poll#physical disability#physical therapy#cross country#memes#divorce#black cats#cat#catblr#Waldorf school#mental health#mental illness#ptsd#post traumatic stress disorder#Ireland#Irish#Selkie#selkies#the secret of roan inish#indie film#waldorf#tumblr polls
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how it feels getting no email back from the people supposed to handle my ppsn (cant work) (cant transition) and from the people supposed to give me healthcare (cant work) (cant transition)
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Handsome Irish man wearing his special AFO brace and built up ortho boot!
#polio#polio man#polio boot#polio brace#poliomyelitis#polio Ireland#short leg#built up boot#orthopedic boot#hot disabled guy#built up ortho boot#leg length discrepancy#one leg shorter than the other#built up shoe#orthoboot
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been super depressed all day because my government has proposed an irish version of the british austerity measure that killed so many disabled people when they were forced back into work
it's just a green paper at the moment but it's so horrifying i don't know how to process it at all
because i'm "just autistic" i would fall under "medium support" and be forced into part time work. y'know, the thing that made me bed ridden after just four weeks this summer.
i just don't know what to do. how we oppose this.
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i was diagnosed with autism last year so i applied for a disability allowance which was months of filling out forms and waiting for responses just to get a letter saying that i don't qualify because they believe i am capable of working full time. whatever. i go apply for a jobseekers allowance instead which was weeks of filling out forms and waiting for responses just to get a phone call saying that i don't qualify because they don't believe i am capable of working full time.* the whole goddamn system needs to be reworked because what the fuck is this.
*i argued and was given the allowance, but the fact that it nearly didn't happen is greatly upsetting to me.
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I'd love people to write in in response to this post. I'll share my own story to get things started.
Before the pandemic started I had just started to get on the right track after an apartment fire 3 years ago at the time. Everything was thrown off by that and I developed PTSD from the event. My health and mental health conditions were well managed, including my agoraphobia and I was in good health.
Even as I sheltered in place for approximately 3 years and only did essential activities and went to essential places I still contracted covid. Sadly my carer brought it into my home and I've suffered with long covid immediately subsequent to my acute infection ever since (August 28th 2022).
It's turned my life upside down. I had planned on starting to ride my bike and now it sits in my apartment untouched. I struggle to walk, sit and balance especially for prolonged periods, at the ripe age of 31. An issue I didn't have before remotely.
And yet doctors keep mentioning anxiety, that it's not conclusive despite not studying up to date literature and published research on covid and long covid. I have no purpose for my shoes much either because travel is taxing on my body. In fact I've been at my mom's house for almost a month because I'm not well enough to return home.
Even paid my rent and electric digitally. My patio remains unoccupied, partly because I don't want harassment about wearing a mask outdoors but also would rather not see my neighbors. One of which harassed me and my carer after coming back from a very stressful dentist appointment with appalling covid safety and not having slept that day.
My computer collecting dust, partly due to the winter storm a couple months or so ago that knocked out my power and messed up the boot sequence, but also not being able to sit at and use it without swaying, heart palpations, feeling faint, and for long periods.
My kitchen sink, cooking utensils and ware goes unused most of the time because my new illness has largely robbed me of the energy and focus to prepare and cook meals. And my apartment tends to occupy me or my one support staff because of my fear of a repeat incident of someone bringing disease into my house. A disease that if I catch again well may kill me, or, faster.
My shower usually is dry as a bone, baths and showers leave me flaring and wiped for days. My hair products sit frequently untouched as I'm too exhausted to brush, braid, cover and moisturize my hair. As do my free weights and elastic PT bands. Ever since I got sick I lack stamina, experience shortness of breath (I had asthma but it was well controlled), my heart rate spikes and I can't exercise in any way that would hit targets or be beneficial.
And still my doctor recommends physical therapy despite telling her all this. And worst of all won't give me a long covid diagnosis. She kicked me to specialist.
Specialist who are already booked out, and whose schedules and patient lists keep lengthening because of the sharp and continued rise in long covid. Knowing it could take months for me to get a diagnosis this route and even longer to get new disability aids I need if I even get documents and approvals at all.
That I can't possibly afford because I'm dirt poor. To add pain to injury, I was disabled before this. And I understood the seriousness of covid and long covid. And took every precaution. But in a society that's a threat to life and safety, I was only as safe as everyone else was and is.
Which means I wasn't and still am not. Not only do I have whatever implications and damage short and long term from my first bout of illness, I constantly have the threat of reinfections and death everyday.
And finally, I have no use for many of the chairs in my home as my brain, neck and spine struggle to keep me upright. My body is in some ways new to me and after 3 plus decades in it, I have to learn it all over again.
And am confronted with no longer being able to do what I once did (possibly ever again) with great sadness nor test limits without high risk and unpredictable results. And it is a terrible, deeply off putting, arrogant and cruel insult to hear people write off or outright deny long covid exists and call long covid a cold. It fucking isn't.
Anyway that's my story.
#Long Covid#Covid sequela#Sequela#Long Covid Advocacy Ireland#Guus#guustweet#Stories of the pandemic#Millions Missing#Illness#Chronic illness#Complex Health Conditions#Disability#Disabled#The pandemic#Public Health
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A meme I made after my physio appointment I’d been waiting years for
Some backstory:
I have Ehlers Danlos syndrome. A genetic disease that affects the collagen in your body. It causes multiple different problems and comorbidities. But in terms of my chronic pain, it’s mainly due to its effects on joints and making them dislocate constantly.
So I have, and always will have, pain in all my joints. Very unpleasant, but I can get through. That was until three years ago when my right shoulder suddenly got unbearably painful. Both my shoulders previously would sublux (go out but not fully dislocate) a couple of times a day. But now my right shoulder was dislocating upwards of thirty times a day. Unsurprisingly, I’ve been in agony.
In terms of the most painful things to be ever experienced; the first was endometriosis cramps (thankfully I’m on birth control now so it’s a lot better), the shoulder pain, and THEN when my appendix burst. Just to put it in perspective. And while the appendix was a one time thing, and endometriosis only comes once a month and is controlled with medication, the shoulder pain is every day of my life. And it gets worse as the day goes on. My therapist has me doing those breathing exercises people in labour do to breathe through the pain. I literally walk home from college everyday hyperventilating, crying, groaning, yelping. It’s a twenty minute walk.
I have been gaslit about this pain for three years. I’m already gaslit enough having EDS in a country without a single EDS specialist. But the shoulder gaslighting was some of the worst I’ve ever experienced. Mainly because (a) it’s such severe and life altering pain and (b) since it’s pain, the assumption is that I’m seeking narcotics or other forms of painkillers. And I was looking for just an investigation or actual cure, but you know what yeah! Some proper painkillers wouldn’t go amiss! They would actually sit there and ask “Have you tried paracetamol/ ibuprofen?”.
I’d been working with a physiotherapist for the past few years for my EDS. When I brought up the shoulder pain, he completely dismissed it and told me if I was doing the physio and exercising I wouldn’t be in pain. He gave me shoulder exercises that would cause me more pain and dislocations. But gaslit me and told me that they’re supposed to hurt. When I eventually got a referral to a shoulder surgeon, the physio therapist told me they weren’t going to find anything and that I’m wasting my money.
Anyways, I finally got to the shoulder specialist. The appointment was only about ten minutes. He examined my shoulder and immediately noticed the problem. It’s basically this rare thing that can happen after you dislocate your shoulder where your muscles can forget ownership they are supposed to work, and so push your joint out constantly. For most people, a surgery could fix this. Since I’ve EDS a surgery wouldn’t work on me. And so he referred me to a physiotherapist (one of our my eight in Ireland) who could do this special physio.
Had to wait almost a year to get to see her because she’s very in demand (and now I know why). I have never experienced an appointment with such a lack of gaslighting. Before she even physically examined me, she just looked at me standing normally and immediately said “Your right shoulder droops more than your left. I bet your pain is actually worse along the top of your back rather than the shoulder itself right?”… YES!! Omg!!! That’s it exactly! And the fact that the pain is my shoulder blade and muscles being pulled down by the weight of my whole arm makes so much sense. That’s how I describe it. It’s like my muscles being pulled and ripped apart.
So now I have proper specialised physio exercises that will actually make my shoulder feel good and not worse!
#ireland#irish#ehlers danlos#ehlers danlos syndrome#heds#eds#chronically ill#chrinic illness#chronic pain#medical gaslighting#disabled#disability
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My hands hurt too much to knit :(
It doesn't seem like that big of a deal, but they hurt so much I can't type without a good deal of pain in my hands and up my arms. And knitting is something that brings me so much joy.
Using my wheelchair has a big effect on my hands, because I end up dislocating and shoving joints where they shouldn't go. And the amount of work it takes just ends up with pain anyway.
Any advice, especially from hypermobile/hsd/eds wheelchair users, is much appreciated!
#i just want to get to leave my house and have it not hurt so much I cant do anything#its better than it used to be but still#im waiting on my own wheelchair to arrive bc it has to be imported bc ireland#and then i have to wait for power assist bc insurance#eds#hsd#heds#cripplepunk#cripple punk#wheelchair user#physically disabled
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