#diagnose my pain bc no other doctor actually did that

[pumpkinsouppe]

!!!!!!!!!! I FINALLY GOT A SURGERY SCHEDULED AND FOUND AN ACTUALLY GOOD DOCTOR HOLY SHIT 😭😭❗️❗️❗️

[nexus-nebulae]

me as a kid: i have all these problems

every adult around me: you're not old enough to know what's wrong with you, you're fine

me as an adult: i still have all these problems

my doctors after i finally got the opportunity to choose them myself: oh my fucking god why have you never gotten help for all these problems. you should have seen me 10 years ago

[pansyfemme]

if you dont mind me asking, how did you go about getting diagnosed with hEDS? i suspect i have it as well, and ive tried talking to my dr (as well as an orthopedic and physical therapist) abt my joint pain & other issues but i dont think i get taken seriously bc im 19 :-(

it was a long and frustrating ordeal. i started suspecting around 13 years old, it took me until 18 to get a diagnosis. I was discussing my joint pain and dislocations with my doctors the whole time, but i was given solutions like ‘weight loss’ pretty consistantly or told it was something else. When i wouldn’t drop it, i was eventually referred to a specialist where I flat out told him I wanted him to check me for ehlers danlos even if he wasn’t convinced by what I was saying. He mocked me for self diagnosing a bit but then. sure enough. That was five years into it. While bringing up a potential diagnosis explicitly often causes doctors to question you- if you’re insistant enough they may.. actually test you. which does not happen if you talk around it and hope they come up with the solution themselves. I’ve heard of people going in with binders of notes and photos. We know our own bodies. Be prepared, be firm and be adament and make sure your doctor understands they are denying you tests you may need. Best of luck to you.

[skyfallscotland]

Hi there!

I’ve been researching a lot bc I’m sick of being in pain for no particular reason and If this is too personal, feel free to not answer this.

Were your EDS discovered when you were a child? Or when you were older? And how did it work? (Like the diagnosing part)

That’s ok! Of course some things are personal but when it comes to this I think it’s important to talk about it, because otherwise so many people suffer in silence 🖤

So sorry if anything’s come across misleading but I actually don’t have EDS. I have a plethora of other chronic illnesses that are often found as comorbidities with EDS. My personal cocktail includes chronic hemiplegic migraine, postural orthostatic tachycardia (which I see hints of in Violet too), nerve pain and chronic fatigue among others.

Basically my nervous system is 10/10 done with me and my cells and organs are like we’re gonna keep you alive…sort of…and that’s about it, don’t ask for more 😅

I was diagnosed with my hemiplegic migraines at 11 which was simple because it’s a classic presentation and they became chronic at 21. The nerve pain and the chronic fatigue and POTS came later. I had to fight every step of the way, especially because I'm a woman and suffer from generalised anxiety disorder, so it was very easy for doctors to fob me off as a hypochondriac.

If you think you might have EDS, I’d suggest talking to either a doctor or physiotherapist about it if you haven’t already and if they tell you it’s nothing, tell them you want them to persist until you have answers because no one should be living in pain.

I’ve diagnosed two friends now with hEDS 😂 (later confirmed by doctors) because it was easy to recognise and never picked up for them. I don't know anyone who was diagnosed as a kid personally (we're in our early 30's). One of them was confirmed after her kids were diagnosed (the daycare raised questions too) which I think was also the case for RY from memory, but I could be wrong? And the other her chiropractor mentioned it as well after I had, which pushed her to see a doctor.

I don't think there's much that they can/will do for you generally after diagnosis, it's more just guidance for preventative measures and assistive therapies and aids, at least in my friends' experience, but if you're having other comorbid issues there might be meds for those so it's worth asking 🫶

[butchyeons]

up in space

check it out on ao3!

najeonghyo poly domestic au (ft. ryeji). this fic focuses on jihyo, who’s a traveling nurse, coping with a patient she was really fond of’s passing. also she’s trans and futch bc i said so. jeongyeon and nayeon her emotional support butch and femme respectively. they are very in love!!

trigger warning for discussions of cancer and death. i also use the d slur once but not in a bad way?? if any of that bothers you feel free to skip this one! this fic is a heavy read, so pls be warned!

other tags: hurt/comfort, angst, implied sexual content/jokes, grieving, fluff, domestic stuff idk, discussions of being trans/taking estrogen shots

tysm for all the support on my fics so far! it rlly means a lot. hope you all enjoy- and let me know what you think! this au is rlly special to me and i’ll probably write more in the future bc i love them.

———

Losing a patient was never easy. But this time, it was so much different.

Jihyo did her best to focus on the road- on the long expansion of highway ahead of her. Each time she thought about it, more tears pricked at the corners of her eyes, just like how they had been for the past three days of her shift.

Jihyo wanted to blame it on the estrogen, like she always did. But after being on it for five years, there was only so much blame she could place on her shots. In the back of her mind she could hear Jeongyeon chuckling at her, could see Nayeon giving her that look of sympathy.

“Yah, Jihyo. After a while it becomes less of the hormones and more part of being a woman.” Jeongyeon had said over dinner one night, after Jihyo had spent her whole afternoon crying her eyes out about work. Again.

Jihyo thought that she really understood it now.

Yeji was a sweet girl. She had been in and out of the hospital for years, fighting leukemia. She was diagnosed at a young age, grew up with it. Jihyo met her when she was freshly 13. On the day of her 13th birthday, actually. Jihyo watched as her family- her mom, dad, older sister, and her best friend- brought her a cake and sang her happy birthday. She had one of the brightest smiles Jihyo had ever seen.

Jihyo traveled from hospital to hospital- it was her job to go where she was needed, to specialize in a little bit of everything when it came to pediatrics. But in all her time as a nurse, the hundreds of thousands of patients she saw, she had never found herself as attached to one as she did Hwang Yeji.

She always reminded Jihyo so much of herself. Of that scared little girl that had always lived deep inside her, even before her transition. How that scared little girl never gave up, no matter how bad it got.

When she noticed how that best friend of hers- Ryujin, that was the girl’s name- would stare at her like she put the sun in the sky, she knew. And when she noticed how tightly Yeji would hold Ryujin’s hand as she got the needle in her port changed, how Yeji practically clung to Ryujin during her nausea episodes, she knew.

It reminded her a lot of something she lived through.

The sight of Nayeon in her own hospital bed, her leg shattered, half sobbing as she got the news that she would never be able to walk without pain again- how she wouldn’t be able to return to teaching, effectively getting her passion stolen away in a single afternoon. Jeongyeon held her hand, her expression stern, her eyes never once leaving her wife’s face as the doctor explained the next steps- the surgeries, the physical therapy. Jihyo stood there too, on the other side of Nayeon’s bed, exhausted from having to speed halfway across the country at Jeongyeon’s call. She felt like her heart had broken into a million pieces, scattered in every direction by a wind so strong that she’d never be able to find them all again.

Jihyo had only been with them for a year, then. But when she looked at them, she saw an entire universe. She already knew both of them better than she knew herself. She already knew her specialties, the place she held in both of their lives- fitting in exactly where she needed to, when she needed to. She also already knew then that she would spend the rest of her days with them, if she could.

So when Yeji mentioned her girlfriend to Jihyo one day while she was fixing her IV, Jihyo smiled. She listened, like she always did. She told her she was happy for her, talked about her partners, too. How they were the same. How they had each other, no matter what. Yeji smiled back.

“I hope I can have that one day, too, Ms. Park.”

It was just shy of Yeji’s 16th birthday when Jihyo came back to find her bed empty. It had been a month and a half since Jihyo had been assigned to that hospital. The last time Jihyo spoke with her, they talked about school- how Ryujin had taken their soccer team to the national championships after one last tie-breaker goal in overtime. Yeji was sad she couldn’t be there. She wanted nothing more than to be with Ryujin, was what she told Jihyo.

When she was talking, she was falling asleep. She had been doing that more lately. Jihyo did her best to keep her awake as she changed the needle in her port, told her how good she was doing. Jihyo couldn’t help but notice that she looked so pale, how her vibrant smile had dimmed just slightly. She told Yeji to tell her parents that she said hi, to tell Ryujin congratulations and good luck. She said she couldn’t wait to see her again.

Jihyo gripped the steering wheel impossibly tighter. Her eyes stung, angry thorns of tears working their way up to the surface. She tried to focus on the road- the darkness making everything a bit harder to see. She needed to get glasses. She needed to get home. She needed to get to them.

———

It was nearly 2 am by the time Jihyo pulled into the driveway. The lights were still on in the house- clearly, they were still up. Jihyo mentally scolded them for staying awake for her. But the moment she walked up the steps, only for Jeongyeon to open the door before she could even get her keys out, she forgot all about it.

Jeongyeon didn’t say anything, just held her arms out. Jihyo stepped into them, dropping her backpack on the porch somewhere beside her. Her head found its usual spot- the junction between Jeongyeon’s neck and her shoulder, her nose pressed against the older woman’s pulse point. Jeongyeon just held her, like she always did.

Jeongyeon was all muscle- solid, heavy. She worked outside and it showed. She was rough around the edges, her fingertips worn like the sandpaper she used daily. Jihyo never felt safer than she did in Jeongyeon’s arms.

“Nayeon told me everything- baby, I’m so sorry.” Jeongyeon whispered, her lips brushing against the top of Jihyo’s head.

Jihyo couldn’t miss the way her voice cracked. That’s when she couldn’t hold her tears back anymore.

Jihyo didn’t say anything- she couldn’t, didn’t need to. She just cried. She cried the big, ugly tears she held back for the past three days. She pressed herself into Jeongyeon’s shoulder, her face contorted in pain as she let it all out. Jeongyeon just held her, swaying them both as they stood on the porch, underneath the singular dim light that Jihyo had been meaning to change.

Jihyo had been through so much. Her transition was rough- what she expected to be a casual step into womanhood felt more like a downward freefall with no parachute. She lost everything- her home, her family, her entire support system. But it all seemed so trivial compared to this. At the end of the day, she was breathing. No matter how far she fell, she had someone who could catch her. Two amazing people, actually. And they caught her every single time she fell- over and over again.

The other nurses told her Ryujin was there when she passed. They said they had to practically rip her body out of Ryujin’s arms. They had never seen someone so young but so full of love. Yeji had someone who caught her, too. Even if there was nothing left to catch.

Jihyo asked whatever God was listening to make sure that those two girls met again in the next life, and in every life afterwards. It was the least they deserved. The thought of those two never meeting again in this one made her sob even harder.

“I know, baby.” Jeongyeon whispered, her hand holding the back of Jihyo’s head to her chest, her other arm still wrapped securely around her waist. “I know.”

———

When Jihyo finally calmed down, Jeongyeon helped her inside. She left her in the living room, taking her backpack up to their room. Jihyo could only really stand there, swaying slightly as she stared at the ground- unstable without Jeongyeon to hold her up.

Nayeon, who had been sleeping on the couch snoring peacefully with her jaw half slack, finally stirred. Her eyes slowly opened, a smile forming on her lips as soon as she registered the figure in front of her to be Jihyo. She tried to sit up.

“Jih- ah!” She yelped as she shifted, her leg caught at an awkward angle from how she’d been laying.

At the sound, Jihyo came back down to earth. She quickly rushed to her side, helping her adjust. One of her arms supported Nayeon’s lower back, the other going under the backs of her knees. She helped lift Nayeon up to that she was sitting up straight, her legs out in front of her. She counted to three out loud, waiting for Nayeon to give her a nod, before shifting her again so that her back rested against the back of the couch, her feet on the floor in front of her.

“You really shouldn’t sleep like that, Nay…” Jihyo muttered, no real bite to her words, as she kissed Nayeon’s forehead.

“I know, I just wanted to see you.” Nayeon replied as Jihyo sat down beside her.

“I’ve told you not to stay up late for me.”

“Don’t care.”

“Nayeon-“

Jihyo was cut off as Nayeon pulled her in for a kiss. Their lips met softly, Nayeon’s hand cupping her cheek, helping angle Jihyo’s mouth better to meet hers.

If Jeongyeon was rock, Nayeon was fire. Jihyo always melted right into her. No amount of walls Jihyo had built up could ever resist the pure heat that radiated off of Nayeon. At first it was scary- she had never met someone who made her feel so vulnerable, open. But now the heat was welcomed- needed. It kept Jihyo alive. She wouldn’t want it any other way.

“There’s dinner in the fridge if you’re hungry.” Nayeon whispered as she pulled away, her hand still caressing Jihyo’s cheek. “I missed you.”

“I missed you, too. I ate on the way home earlier.” Jihyo whispered, her eyes closed. “I’ll have some for lunch tomorrow.”

The couch shifted behind Jihyo. She felt a familiar arm wrapping around her waist, steadying her.

“You better.” Jeongyeon whispered, her nose finding Jihyo’s neck. “She made it just for you- the pickiest eater I’ve ever met.”

Jihyo chuckled.

“You both signed up for my picky eating the night you picked me up at the bar.”

Jeongyeon huffed, pulling Jihyo’s back against her front. She pressed a kiss to Jihyo’s neck.

“And you’ve been a pain in the ass ever since. I love you so much.”

“I love you more.” Nayeon added, leaning in to kiss Jihyo again. “So much more.”

If Jeongyeon was the moon and Nayeon was the sun, Jihyo was the constellation that lay between the two of them. She needed them as much as they needed her.

“No fighting.”Jihyo whispered between kisses. “I’m too tired to deal with it.”

Nayeon chuckled as she pulled away, her thumb stroking Jihyo’s cheek.

“You started it.”

“Did not.” Jihyo said, smirking.

Before Nayeon could go back in for another kiss, Jeongyeon groaned. She pulled her face away from Jihyo’s neck, both of her arms still wrapped around the younger woman’s waist.

“Can we go to bed?” She asked.

Jihyo tilted her head back, resting fully against Jeongyeon’s front.

“You don’t even have work tomorrow.”

“I wanted to get some work done around the house.” Jeongyeon grunted.

Jihyo hummed.

“Can it wait a day?”

Jeongyeon huffed through her nose, pressing a kiss to the side of Jihyo’s head.

“Do you need a day?”

Whenever Jihyo had an exceptionally bad shift, she always needed a period of decompression. And usually that decompression consisted of laying around with her girls, watching mindless dramas or reality tv, and lots of kisses. And sex, too. But mainly the first three.

“I need a day.” Jihyo replied.

“You can take as much time as you need, Ji.” Nayeon said as she scooted herself closer. “I know how much you cared about her.”

Jihyo sighed, but smiled sadly. Her thoughts were racing still. It felt like an open wound directly on the center of her heart- everything kept bothering it. There was so much she wished she could’ve said or done. She didn’t even get to say goodbye.

“I love you both.” Was all Jihyo could say before the tears came back again.

———

None of them spoke anymore that night. They didn’t really need to. Jeongyeon helped Nayeon get up from the couch, her arm secured around her wife’s waist as she led her back to their bedroom. Jihyo followed behind them, sneaking off into to master bathroom after giving them both one last kiss.

She needed a shower- needed to wash the hospital smell out of her hair, to get the days of built up sweat off of her skin. She did her best to not think about it anymore- tried to focus on the things she could be doing instead, on what she had right in front of her. Her therapist told her she tended to dwell on the “what ifs”, which always blinded her from the “right nows”. And right then, she was home, safe. Surrounded by love.

She was so damn lucky to have them- to be loved by them. They saved her life, and she saved theirs. That’s how they worked. That’s how they would always work.

After she finished blowdrying her hair, too exhausted to do her sacred skincare routine, she slinked out of the bathroom. Nayeon was already asleep again- snoring loudly. Next to her, Jeongyeon was still looking at her phone. As soon as Jihyo got into her pajamas, she leaned over and turned the bedside lamp off. Jihyo crawled in between the two of them, doing her best to not jostle Nayeon, who just shifted slightly, her arm instinctively throwing itself over Jihyo’s waist in her sleep.

Jeongyeon adjusted herself so that Jihyo was resting her head on her chest, like always. Jeongyeon was warm- she got so warm when the three of them slept together that eventually she just opted to sleep in boxers and nothing else- but Jihyo needed it. Her body shivered a bit, still adjusting to the temperature shift from the bathroom. Somehow, Nayeon wiggled even closer to her, her arm getting even tighter as she was still snoring.

No matter what happened, Jeongyeon and Nayeon always kept Jihyo tied down, grounded. No matter how high up she floated, they always managed to pull her back in. They had a gravitational pull all of their own- the sun, moon, and stars all in one bed together.

“Love you.” Jihyo muttered, her eyes finally closing easily for the first time in days.

“Love you too. Always will.” Jeongyeon answered.

It didn’t take long at all for both of them to fall asleep.

———

The next time Jihyo worked at that hospital, the head nurse, Dahyun, stopped her.

“Hey, Jihyo. Someone came by and left this letter for you a few days ago.” She said, handing an envelope to her.

Jihyo raised her eyebrows, examining it. It was a yellow envelope, her name written on the front. It was held closed with a sticker of the smiling cat emoji. She thanked Dahyun as she folded it in half and placed it in one of the pockets of her scrubs, heading off to help another patient.

When she got to her lunch break, she finally got to check it. She sat in her car, her lunchbox out on the seat beside her. Inside, Nayeon had made sure to pack all of her favorites to last her for the few days she was gone, along with her usual handwritten note wishing her good luck (which was Jihyo’s favorite part of lunchtime). She picked out one of the sandwiches and a bag of chips before closing the bag back up.

She reached inside her pocket and pulled the envelope out. Jihyo carefully opened it, doing her best to not rip the cat sticker, taking out the letter that was inside. It was written on notebook paper in blue ink- the page covered in other tiny, scribbled drawings of cats. The handwriting was a bit messy, but still somehow neat- extremely unique. When she noticed the name at the top, Jihyo smiled.

Ms. Park,

This is Shin Ryujin. I’m not sure if you’ll remember me, but you took care of my girlfriend, Hwang Yeji, up until she passed. I wanted to write you this letter as a way of saying thank you. You helped her through some really hard times, without even knowing. Her parents weren’t really happy about us being together. Of course, they wouldn’t leave her, but they scolded me and her a lot. It sucked to have that on top of everything else.

But what didn’t suck was when you were there. You were a really good shoulder for her to lean on. She was always so happy telling me about you and your partners (wives? I hope you guys get married or something). You helped her accept a lot of herself. That helped me accept a lot of myself, too.

She wanted to be a nurse, just like you. She wanted to open her own hospital, eventually. All she ever thought about was helping others, no matter how sick she got. She even still tried to give blood when we did blood drives at school for her. She was the sweetest girl I had ever met. I think I’ll love her until the day I die. I hope you feel that way about your girls, too.

Even though there was nothing that could be done to prevent what happened, you really saved her life. You saved mine, too. Please, keep doing what you do. You really were a lifeline for two clueless lesbians, haha. Hopefully you’ll help more in the future. In fact, I know you will.

Thank you for everything. I can only hope to meet you again in the future. I’ll never forget you. I hope you never forget us.

- Shin Ryujin

P.S. We won the championship! Thank you for the well wishes. Yeji passed a few days after. I told her I’d win for her- and I did.

I think I’ll keep doing everything for her.

Attached to the letter was a picture of them. It was a selfie- Ryujin holding the phone up while Yeji smiled that same brilliant smile that Jihyo always knew. She was bundled up in a jacket, sweater, and a beanie, while Ryujin only had on a sweatshirt. They were at the beach- the ocean waves crashing onto the shore behind them. The bottom of the photo had a date written- February. Yeji had passed in late April.

It was a lot for Jihyo to read, to take in. She felt a pit form in her stomach- a black hole that would open up and swallow her. She set the letter and photo down, taking a deep breath to steady herself. She looked out at the side of the hospital building- trying to count the bricks on the side of the wall, trying to give herself something to keep her grounded.

It really wasn’t enough. She needed something stronger, needed her gravitational pull- she needed her universe.

Jihyo immediately pulled her phone out and called Jeongyeon. Really, her number was off limits except for emergencies. But she figured she would let this one slide. She quickly found Jeongyeon’s contact and pressed the call button.

The line rang a few times before someone picked up. Jihyo was met with the clear sounds of a jackhammer whirring in the background, along with men yelling at one another. And then there was Jeongyeon’s laugh.

“Mind your business- Seriously, Changbin. Get back to work- I’m your boss. I can do what I want. Shut up.” Jeongyeon yelled- clearly, one of her guys was up her ass about her taking a phone call.

After a few more moments of bickering over the sounds of heavy machinery, Jihyo listened as a door slammed- all the noises cutting out in an instant. She smiled when Jeongyeon huffed.

“This better be good, Park Jihyo.” She said, annoyed. But that act faded immediately, like it always did. “Are you okay?”

“Yah, Jeongyeon. I’m pregnant. It’s yours.” Jihyo said, grinning as she took a bite of her sandwich.

“I’m finally gonna be a dad?” Jeongyeon asked in that stupid, playful voice of hers, feigning excitement.

“Seems like it. Was daddy just not good enough for you?”

“Oh that’s never enough, baby. Need to actually get you-“

“Oh my god, Jeongyeon- shut up.” Jihyo said, cutting off the older woman, nearly choking on her food. “You’re so- god you can’t even- you’re disgusting!”

Jihyo sputtered over her words as she coughed. Jeongyeon just laughed. Typical.

“God- are you busy?” Jihyo asked once she was able to breathe.

“I’m at work, Hyo. Yes.”

“Well do you have a second?”

“For you.” Jeongyeon sighed. Jihyo could hear her smile through the phone. “What’s wrong? You never call at this time. Did something happen?”

“Well, no. But yes.” Jihyo answered, setting her food down to tap at her phone. “Wait. Let me add Nayeon- I need you both here for this.”

Jeongyeon hummed. Jihyo started the three-way call, the line ringing a few times before Nayeon picked up.

“Hi baby!” She said cheerfully. “Oh wait, you’re both here- did something happen? You never call at work.”

Despite their obvious differences, Jihyo thought it was almost comical how similar Jeongyeon and Nayeon were. Jihyo sighed, smiling down at the call screen.

“I got a letter today. I wanted you both to hear it.”

So, Jihyo read it out to them. By the end of the second read, she was fighting back her tears again. When she told them about the picture, it was nearly impossible to speak without her voice cracking.

It was the estrogen- had to be that. She just took her shot yesterday. That’s what she told herself. That’s why everything felt so heavy, why her voice fluttered between octaves, a bird angrily trying to claw its way out of a cage. The typical symptoms of second puberty- of womanhood.

Jeongyeon and Nayeon were both silent. A few moments passed before there was a sniffle on Jeongyeon’s end.

“Hyo, oh my god.”

Jihyo couldn’t hold back then. She grit her teeth, leaning back into her seat, her body trembling as she gripped her phone- trying to hold back the sobs. She gasped for air without meaning to. She wished she was home, wished she was between her sun and moon.

“You saved her life, Jihyo.” Nayeon whispered.

In Jihyo’s mind, all she saw was the night they met. She had never even been to a gay bar before- but she was down on her luck, needed to have a good time. She still felt like she was pretending, felt like she was dressing up as the idea of a woman. She needed to be around people like her. She had been taking her shots for a month then- living in her car as she traveled from hospital to hospital, praying her patients and coworkers would just be decent. Decency was found few and far between back then.

She was just about to call it a night when a couple came up to her. They asked for her name, asked if she lived in town- said they’d remember seeing a pretty face like hers. When she explained she was just in for a few days before she took off on call again, they asked if she’d like to go home with them- to stay for the night, to have some fun. And how could Jihyo deny the most gorgeous butch and femme she had ever seen of anything, especially after they bought her a drink and showered her in compliments. And then the one night stay turned into a permanent residence, into stability. Decency turned into real, genuine love.

A whole ocean of people were in that bar that night, but somehow the tides pulled them towards each other. She wasn’t even trying to be seen- wanted to let the waves just take her where they felt. But every day she thanks whatever divine being blessed her with the lifeboat that was Yoo Jeongyeon and Im Nayeon, how they pulled her on board and allowed her a spot in their crew. She had her life saved. And more importantly, she got to keep doing the same for others because of it.

“E-Even if she didn’t make it, you saved her.” Nayeon said, clearly choked up on her own tears. “Both of them.”

Jihyo nodded. She had finally calmed down. She stared at the half eaten sandwich, sitting haphazardly in her lap.

“I saw so much of myself in her.” She muttered. “I saw so much of us in both of them. She deserved so much more than she got. Both of them did.”

There was a moment of silence again. The black hole in the pit of Jihyo’s stomach was gone.

“You’re really amazing, Jihyo.” Jeongyeon said, her voice distant. “I don’t even have the words.”

Jihyo let out a huff, smiling. She could feel the floorboard of her car underneath her feet, registered the texture of her shirt as she brushed some breadcrumbs away. Back down on earth.

“You two are biased.”

Both of them made noises of protest, which crackled over the speakers of her phone.

“So what if I am?” Nayeon asked. “You’re one of the most selfless people on this planet. I’m lucky to have you- Jeongyeon and I both are.”

“I will say it until my last breath and mean it every single time-” Jeongyeon cut in. “You are amazing, Park Jihyo. God. You are a life saver- literally.”

Jihyo leaned back in her seat, finally taking another bite of her sandwich. There was no point in arguing with them- that’s how it always was. But their words helped her feel real again. She felt like a human being by their sides.

“Fine. Whatever you say.”

“We wouldn’t say it if it wasn’t true, and you know that.” Nayeon said softly.

Jihyo smiled, her face still wet from her tears. Her speakers vibrated when Jeongyeon chuckled, sniffling again.

“God- you call me at work and make me cry. The guys will never let me live this one down.”

Jihyo rolled her eyes, wiping up the last remnants of her emotions with the sleeve of her undershirt.

“So what? They’ll never understand what it’s like to be a woman. Not like we do, anyways.”

Nayeon hummed in agreement, her sweet, bunny-toothed smile clear as day over the phone. Jihyo wished she could see it. Jeongyeon laughed- that bubbly, staggered laugh that Jihyo absolutely adored.

“You’re damn right they won’t.” Jeongyeon said firmly.

———

From that day forward, Jihyo kept the letter and picture in her glovebox. She got over it the best she could- she had to. She knew better than to dwell on it for too long, to spend too much time thinking about the “what ifs”.

But when she was having an exceptionally rough shift, she looked at them. When she was mentally beating herself to a pulp, telling herself how she needed to be better, she thought about them. When she broke herself down to her barest, most raw essentials, examining every part of herself thoroughly before putting it all back together, she reminded herself that there was a point. She had to keep going. If not for herself, for other people. She had people to help, lives to save.

If Ryujin could keep going, she could, too. She had someone to fight for- and so did Jihyo. She had two people.

She was back home, snuggled inbetween Jeongyeon and Nayeon in their bed that was so clearly not made to fit all three of them. Her back was pressed as close as it ever could be to Jeongyeon’s front as Nayeon kissed her, their noses bumping into one another from the weird angle. It made Jihyo giggle, made Nayeon smile even harder. Jeongyeon pressed a kiss to the back of Jihyo’s head.

“Would you two love birds cut it out so I can sleep?” She mumbled, her voice muffled by Jihyo’s hair.

“You’re off tomorrow.” Nayeon said bluntly between more kisses.

Jeongyeon groaned. “I have to get the light on the porch fixed.”

Jihyo eyed Nayeon, who gave her one last kiss, before shifting so that she faced Jeongyeon. Nayeon’s arms replaced Jeongyeon’s easily, finding their usual spot at Jihyo’s waist.

“It’s not that hard to change a lightbulb, baby.” Jihyo whispered as she took Jeongyeon’s face in her hands, her thumbs circling the apples of her cheeks. “I think you’re just getting worn out.”

Jeongyeon rolled her eyes, pursing her lips into that signature annoyed smile she always did.

“It’s because of you two.”

Jihyo smirked, Nayeon made an annoyed sound somewhere behind her. She pulled Jeongyeon in for a kiss- deep, but soft. Their lips moved the same way they always had, always would. When Jihyo felt Jeongyeon’s tongue swipe against her lower lip, she shifted again- sitting up to straddle the older woman’s hips, her hands finding her bare chest- never breaking their kiss. Of course, Jeongyeon was already shirtless, heat radiating off of her tanned skin from how closely the three of them were pressed together. Nayeon moved closer, clinging to her wife, her mouth finding its way to Jeongyeon’s collarbone. When Jeongyeon whimpered, Jihyo finally pulled away.

“You love it though, really.” She said, smirking. Her grip tightened, earning another small sound of need.

The sight of Jeongyeon underneath her, of Nayeon holding onto her as if she’d slip away would never fail to make Jihyo feel like she was in heaven. The way their bodies moved together, how natural it all felt- Jihyo was the luckiest person in the entire world. Her whole universe squeezed onto a king sized mattress; the sun, moon, and stars all contained in three tired, old dykes.

Jihyo rolled her eyes. Nayeon pressed a kiss to Jeongyeon’s cheek. Jeongyeon just smiled.

“I do.”

———

Jihyo stepped down from the ladder, wiping the sweat off her brow that had formed in the brief time it took for her to switch out the old lightbulb on the porch. It was the dead of summer now- the sun baring down its rays angrily, warming everything up to what felt like a boiling point.

Beside her, Nayeon sat in one of the chairs, in sunglasses with her favorite sundress on, three glasses of fresh lemonade on the table next to her. Her legs were propped up on the wicker footrest they bought after her accident. A random piece of white wood furniture among all the black metal. It didn’t match the set, but it worked. Jihyo always thought it was funny that she could relate to a footrest.

“She’s still got it in her, doesn’t she?” Nayeon asked, referring to their third half.

Jihyo turned, watching as Jeongyeon fought to turn their push mower on. She gave the chord a few more good pulls, trying her damnedest to get it started. That thing had been giving her hell for the past few weeks- it was on its last leg, needed to be replaced the moment they got it. But the three of them were stubborn, wanted to get their money’s worth out of the 20 year old hunk of metal that they bought used at a garage sale. All ₩40,000 worth.

“I’m more so concerned about why you feel the need to babysit.” Jihyo said, sitting down in the chair beside Nayeon’s.

She took a good look at Nayeon- at the way her bottom lip poked out, pouting as she judged her wife. She pushed her sunglasses up on her head, revealing those beautiful, round eyes. Her face scrunched from the sunlight, her nose crinkling. Jihyo thought she was the prettiest person to have ever existed.

“There’s a masc shortage, sweetheart.” Nayeon said, shifting to get her glass of lemonade off the table. She took a sip. “I can’t have anyone trying to steal her from us.”

Jihyo chuckled. She watched as Jeongyeon finally gave up, letting out an annoyed groan as she kicked the side of the lawnmower. As if by magic, the machine whirred to life. Jeongyeon let out her excited squawks, jumping around it in a circle with her arms up before turning to look up at them on the porch, a giant grin plastered on her face, adorned by those beautiful crescent moon eyes.

Jihyo waved, smiling back. Nayeon clapped beside her, cheering. Jeongyeon took a bow before adjusting herself and cheerfully flexing her biceps- putting on a show for her two favorite girls, as always. Nayeon whistled, and Jihyo rolled her eyes, laughing. She looked like an idiot. Jihyo loved her more than words would ever describe.

“I don’t think anyone besides us wants her that badly, Nay.” Jihyo huffed out, taking a sip of her drink.

“I’d sure hope so.” Nayeon said, looking over at her. “I’m selfish. No one deserves her more than we do. I don’t wanna share.”

Jihyo shared the same sentiment, but didn’t say it. She sat back on her seat, watching as Jeongyeon finally got to mowing the grass- sweat already ruining the muscle shirt that clung to her torso. She glanced over at Nayeon again, who was smiling so brightly, laughing as she watched Jeongyeon do her best to maneuver that piece of junk around the front yard, pulling her sunglasses back down over her eyes.

These were her people. They were her reason for existing, for continuing to exist. They made life seem so simple- so perfect. She had something to fight for that was real, tangible. She was so lucky to have this, to have them. To have them share themselves with her, to lay everything about themselves out on the table for her. Over and over, they shared everything. Jihyo never knew she could have this much love for more than one person- she never knew soulmates could be a trio until she met them.

“I’m gonna go get dinner started. Wanted to make kimchi stew for you.” Nayeon said. “Help me up?”

Jihyo set her drink down. Wordlessly she got up, going over to Nayeon’s side, taking her empty cup from her. She lifted Nayeon’s ankles up and off the footrest, gently setting her feet down on the ground. She moved to wrap her arm around Nayeon’s waist, counted to three, waited for Nayeon’s approval, before hoisting her up. They stood there for a moment, ignoring the heat, pressed as close together as they possibly could be.

“Thank you, baby.” Nayeon said softly, pulling Jihyo in for a kiss.

“It’s not a problem, Nay. You know that.” Jihyo said, smiling as Nayeon pulled away.

“I know.” Nayeon whispered, tapping Jihyo’s cheek a few times with her fingers. “But can’t a girl say thank you to her emotional support futch every once in a while?”

Jihyo snorted.

“I guess she can. Especially when you say it so sweetly.”

She helped Nayeon get inside along with their empty cups, her arm never leaving the older woman’s waist until they made it to the kitchen. Nayeon insisted she could handle it from there. And really, Jihyo knew she could, but the worry would never leave. She had come a long way since the accident- her body bounced back shockingly well. She just needed a little help getting started still, and Jihyo was more than happy to provide it.

After a few more kisses and some filthy comments about what they’d be doing later from Nayeon, Jihyo went back out to check on Jeongyeon. The lawnmower had finally given out, but thankfully Jeongyeon had just finished the yard. She was sitting on the steps, slamming the glass of lemonade that Nayeon had left behind for her.

“You good, Jeong?” Jihyo asked, her arms crossed as she stood behind her.

Jeongyeon finished the glass, grinning from ear to ear as she tilted her head back to look up at Jihyo.

“Never been better, Hyo.”

Jihyo rolled her eyes and helped pull her up. Jeongyeon stretched her arms out, her back cracking loudly. It made both of them laugh. Jeongyeon took the opportunity to pull Jihyo into one of her bear hugs.

“God- Jeongyeon- you’re so sweaty.” Jihyo protested. Her arms wrapped right around Jeongyeon’s waist, her head finding its spot on her shoulder. “Get off of me.”

“You love it though. Can’t get enough of it.” Jeongyeon teased, pressing a kiss to Jihyo’s temple.

“Shut up.” Jihyo hissed, finally pulling away. “Go take a shower.”

Jihyo went back into the house and Jeongyeon followed her. While Jihyo stopped to take her shoes off, Jeongyeon got right behind her, landing a smack on her ass and causing her to yelp.

“C’mon baby. You wouldn’t be complaining about it if I took you right here- you love it that much.” Jeongyeon said, smirking mischievously before running off, back to their bedroom.

“Shut up!” Jihyo yelled, regaining her balance. “Oh my god. You and Nayeon are so nasty! No decorum around here.”

“Wouldn’t be fun if we had any, and you know it.” Nayeon said, peeking her head out from the kitchen. She had her usual grin on her face.

Jihyo rolled her eyes. She walked back to the kitchen and rejoined her partner, helping Nayeon prep the ingredients for the stew. After a bit, Jeongyeon finally came back down- freshly showered, her short, wet hair messy from where she lazily towel dried it. As Jihyo was cutting up pieces of tofu, she watched Jeongyeon walk up behind Nayeon, her arms wrapping around her waist.

Jihyo smiled at the sight of the two of them. Nayeon smiled, leaning back against her wife, whispering something up to her that Jihyo couldn’t quite catch. Jeongyeon just chuckled, her nose pressing into Nayeon’s hair.

She couldn’t help but think about them again- about the life they could’ve had together. She couldn’t help but see a future for them every time she passed by that hospital room. The way Yeji would speak and Ryujin would just listen, smiling. How Ryujin would hold Yeji’s hand the entire time. They deserved something good more than anyone else. She was happy they had each other until the end.

She could only hope to have a love like that. Well, she didn’t really need to hope for it- she had it. It was already right in front of her, their force of gravity pulling her in over and over again.

[lvnleah]

I have a question but you most definitely don't have to answer if you don't feel comfortable. What are you endo symptoms and like did you have any different symptoms before you were diagnosed.

I think I might have PCOS or possibly even endo. Because after heaps and heaps of research I actually found some people have endo and never find out until they have fertility issues because they didn't have bad period pain - but they did display most other endo symptoms it's just that the pain is like the symptom doctors like to associate with it which makes sense but yeah - bc I don't think my symptoms match PCOS but they kind of match endo without the period pain... But I'm scared too go to the doctor and they be dismissive or like I am just being overly cautious you know... I also don't think being on the pill basically since I got my first period helps either bc some of these conditions say the pill could help so that factor could be masking it too... Sorry for like emotional dumping on you. I just think hearing what someones actual endo symptoms are could help me.... bc the internet says so many different things....

I do think maybe it is PCOS though because most of my pain stems from my ovaries but I'm not entirely sure..

first of all, my DMs are always open so if you want you can message me! Don’t be scared <33

My main endo symptoms are:

• lower back pain as I have endo growing around the back of my pelvis that worsens when I’m on my period.

• feeling sick constantly

• heavy periods

• not being able to work while on my period

Also during the three weeks between my periods I struggle with very very bad ovulation pains! As I said my DMs are always open if you want to talk more <33

[wild-moss-art]

hi moss! I hope you are having a good day!! I was wondering if you were willing to share how you convinced a doctor to yeet the uterus :O are you scared about having a major surgery? (I am, as always, having The Thoughts.)

<3 I hope you're having a good day too! It is a long story and kind of personal but I'm happy to share bc I know that it's really difficult to find info on, and if anyone has questions you can feel free to dm or send an ask. Gonna put the story under the cut.

First of all, I live in america and this will all sound very american lol.

In the interest of not burying the lede, my working theory is that I have endometriosis or adenomyosis; these are notoriously difficult to diagnose. Endometriosis is only diagnosable through a laparoscopic surgery and adenomyosis is literally only diagnosable through getting a hysterectomy and having the tissue biopsied. If you don't want a hysterectomy, you can't get an official diagnosis.

Now to the backstory. I think my medical history and experience advocating for myself medically had the most impact on being approved for this procedure.

I have been on hormonal birth control since I was about 13 or 14 practically as soon as I hit puberty I had debilitating periods. I was missing a lot of school and obviously this didn't look good for my parents, so I was put on the pill, and later when I was older I switched to IUDs. The birth control basically put a bandaid on the problem, and the IUD eliminated my period altogether.

Near the beginning of this year, I started to have a lot of pelvic pain that I initially thought was a UTI. I went to the doctor who kept telling me I didn't have the bacteria for a UTI, and basically sent me home with some antibiotics anyway, which didn't help. They did not test for any other problems. I ended up switching doctors due to insurance purposes, but was also put off by the care I'd received.

When I went to the next doctor, they were actually willing to run tests. This doctor and every other doctor I've seen since initially insisted I must have an STD. A panel was run, and I was fully clean for STDs. I was referred to a urogynecology specialist, as my main symptoms at this point were pain(which they do not care about- didnt even put it in my file) and difficulty urinating(this symptom I believe is the only reason I was able to get a referral to a specialist).

While I was waiting for my urogynecology appointment(they were pretty booked out), the pain got worse, like a lot worse. I was also having more and more hormonal symptoms like heavy acne. I was able to move my appointment up but ended up going to the ER. At the ER, I posted about my experience which I can link if you'd like but I'll include the relevant info. The doctor hadn't looked at my age on the file and initially DENIED testing because I was "too young". He came back later and approved it, because he actually looked at my fucking file. From this point on I've been livid and ready to fistfight every doctor Ive seen.

I was at the ER for like 10 hours and got a CT scan, which showed all the inflammation in my uterus and little in my bladder, which was when I began to realize that the bladder issue was just a symptom and not the problem. The original doctor was off duty toward the end of my visit, and the new doctor came in for briefing when she mentioned they needed to run an STD panel. I told her I'd had one about a week ago that was fully negative. She said "I need to go talk to my supervisor."

Ultimately, I was released from the ER with a prescription for extra strength ibuprofen and a referral to a gynecologist. They said my IUD was stabbing me internally, and needed to come out. They did not take it out at the ER.

At this point, it was time for my urogynecology appointment. At the appointment, I told them about my ER visit and asked if they could take my IUD out. They said they didn't really do that there, but after I showed them my CT scan results, they did it anyway. I felt a lot better, immediately. They were helpful and awesome, but said that they mostly treat bladder problems, which was clearly not what I had.

I didnt feel fully better though, because hormonal birth control keeps endometriosis and adenomyosis symptoms and pain at bay. The pain has gotten gradually worse, but it's not longer quite as sharp and stabbing. I've been doing a lot of research about these conditions thanks to a helpful tumblr mutual, and I believe I have adenomysis. I'm not sure whether I have endometriosis.

I followed up on the gynecology referral from the er; I am really happy with this clinic so far. They are the ones that offered the hysterectomy. In my initial appointment, I mentioned that I was not on birth control and wanted to be sterilized. They asked if I wanted birth control in the meantime. I said no(I believe this helped).

(as an aside. Another reason I believe I was offered what I was is that I am married. When I listed my partner as an emergency contact, they specifically mentioned that I did not take his last name. I believe this says something about our relationship to doctors. I know often they will ask for the husband's permission in this scenario; however, they did not even bring him up beyond the last name thing.)

When I met with the doctor for a tubal ligation consult, we talked a bit about the procedure and what other symptoms I was having. I also got an ultrasound that showed inflammation in my uterus(as well as a medium sized cyst on my ovary. lmao). He said the tubal ligation would not help my other symptoms. When I mentioned my CT scan, he actually left to go look at it, returned and immediately asked if I wanted kids. When I said no, he told me he could give me a hysterectomy.

We went over some details; just a hysterectomy is a pretty non invasive procedure and doesn't even require an incision. He mentioned that it may or may not fix the whole problem(it would fix adenomyosis which only affects the uterus, not endometriosis which affects other organs) but that it's pretty complicated to remove the ovaries because it's a more invasive procedure and basically I'd have to be on hormones to simulate menopause for a really long time(I'm only 27). So that is an option, but it's better to just see if the hysterectomy fixes my problems.

The surgery is in 10 days from now and I have my intake consult on tuesday. I plan to update cause again, I know not a lot of people talk about these experiences and it would have really helped me to have known more going in. I really cant wait, I've basically been bedridden, cant exercise, can't stand for long periods of time, not much at all. I'm lucky my livelihood is sitting on my couch drawing.

Finally, I believe that it is possible that they wanted to sterilize me due to my mental health history. I am in ongoing treatment for my mental health, and have particular diagnoses that I do not disclose publicly. You can message me if you'd like to know this information.

[gaybd1]

I’ve definitely told this story on one of my blogs here but actually one of the worst I’ve ever been hurt (other than that terrible life-altering concussion a year ago) was like 7 years ago when I was working in lumber/building materials and I was the only one on shift at the time so I was putting up this massive beam by myself (pressure treated 14-foot 6x4 if anyone can picture) which I did ALL the time but also it was 6am so, yknow, lack of concentration I’m sure, and the whole thing bounced right back off the rack and knocked me square in the forehead

it barely missed my eye by like an inch now I think about it holy shit

Honestly that wasn’t so bad. It broke my glasses but I stayed conscious through sheer force of will, got sent to the med center, diagnosed with an obvious concussion (but this place my work sent me too was too cheap to even get me a scan and I ended up having nerve damage for a couple years) and was sent to rest for the day and come back to work tomorrow

hehe

I was living with my mom at the time and sleeping in a top bunk in her basement

So my concussed ass wakes up bright and early next morning and just… tries to get out of bed face first??

and LAND on my face and shoulder from six feet up, and my collarbone just straight up snapped

and THAT made me pass out for a minute

I have tolerated so much damn pain in my life like my tolerance is insane but I had to yell for my mom when I woke up because I just couldn’t move

anyway I spent about a month waiting for it to heal naturally like the doctor said it would, it hurt the whole time, then I finally went to a surgeon who was like “no holy shit we need to fix that TODAY” and so they had to basically rebreak it to put it back together with a bunch of metal which is still in me

and my work didn’t cover that cost bc it “happened at home”

GOOD NEWS IS when I was laid up healing all that time I found the job that changed my life and brought me to Asia so

[ed-recovery-affirmations]

So I hope you don’t mind my rant 🪻

Basically Ive been fighting my undiagnosed issue for years. I dont feel valid enough to call it an ED. But basically I went through a very stressful time years ago leading me to severely restrict my intake and only eat one meal a day which obviously lead to weekly binges. I purged everyday for several months. Lost a significant amount of weight. When the stressor left I maintained my new lower weight . the behavior persisted for years albeit to a lesser extent.

I had come to a place where while self conscious i was somewhat healthy. I ate well and enjoyed cooking and baking. I had treats without worries. I loved dancing and actually had energy to exercise and adored it. I did struggle with a constant urge to exercise though. Id been purge free for an entire year and I have been binge free for a few years

April comes and the stress of that time throws me back into restriction. At first I tell myself its okay. I make an effort to harm reduce and I eat three meals a day. Even with taking vitamins and exercising and losing weight the so called healthy way I have stomach pains and bloating, Im exhausted.

It continues and worsens and I restrict lower and lower. Often skipping a meal or only having one. My fatigue is terrible, I struggle to sleep and my anxiety is out of control. My skin is dry. My stomach gets painfully full easily. I am emotional. I cry all the time. I have sharp chest pains and I am cold. I an constantly dizzy and it is hard to breath when I stand up.

I am barely underweight. But I want to feel better.

Ive already been to the doctor twice but was too afraid to come forward about the restriction. Im going to a cardiologist soon.

Here is the real issue. I lied on the mental helath screening bcs I was afraid of being committted into a psych ward and My pcp recommended therapy. I made an appt and then cancelled. Since my anxiety is now so bad i cant manage i call to reschedule and try it and give it an honest effort.

Just the thought of going made me so upset I began purging again half of me wants to hide my issue from my therapist or cancel and the other half wants to come forward and see about getting help. This is also encouraging me to lose more because i feel i have to be sicker in order to get a diagnosis or be deserving of help. Im also so afraid of being committed or going to inpatient. It is my biggest fear. What do I do ?

I don't mind your rant, anon. It sounds like you're dealing with something really difficult and I think you are indeed allowed to call it an eating disorder.

I can understand your fear around being diagnosed, as it can change your life significantly. At the same time, anon, you will not be able to get help unless you take the steps to reach out for it (and follow through on them!) I know it's really hard and really scary, especially the thought of going to inpatient.

I get a lot of people saying "I feel like I need to be sicker." However, on the flipside, imagine all the people who've done lasting health damage to themselves, who may wish they'd gotten help before they'd gotten as sick as they did! An eating disorder is an eating disorder, and all sufferers deserve the opportunity to get help for the underlying cause of their disorder no matter what stage of ED they're in. You don't have to get "sick enough" to validate the fact that you're suffering. You can validate it to yourself. In fact, let me say it to you, anon. I see you. I see that you're suffering. You are worthy and deserving of help and support. I wish you healing.

(I'd like to add a sidenote here that just because you don't feel you look emaciated doesn't mean you aren't sick. Most human bodies have a LOT of safeguards against weight loss, especially in individuals who have a pattern of restricting, eating again, restricting, eating again...your body can still be struggling and deprived of nutrients even if it's stubbornly refusing to let go of pounds to try and keep you alive. It sounds as though your body is trying to express its distress to you in other ways, but are you ready to listen to it? That's up to you.)

I think you need to ask yourself what self-care steps you need to take in order to schedule a therapy appointment and stick to it. I think you know that the urge to comfort yourself by purging is counterproductive. What other things can you do to self-soothe in a healthy way? What are some small comforts you can use to show your body that you believe it deserves comfort and compassion while you work up the nerve to re-schedule?

When you do go to therapy, perhaps you could write down a script of stuff you're ready to talk about and stick to that script. A good therapist will gently push you but will also let you go at your pace and will not force you to talk about things that you're not ready to talk about. If you don't feel that connection with the therapist you meet, you can always search for another one. Yeah, I know, it's really hard to go through those steps AGAIN when you're already struggling so much. It's important, though. And when you're done, perhaps you can reward yourself with a treat. It doesn't have to be a food treat, if you are not at a point where you can effortlessly enjoy food. It can be any little thing that makes your body or soul feel rewarded, a fancy soap or a bath bomb, some art supplies or a little home decoration. Anything that helps you focus on giving yourself some love without engaging in ED behaviors.

You can go to cardiology, but until you're honest about what's straining your body, you'll only be putting band-aids on a much bigger gaping wound. I mean, still go to cardiology. But I think you know that you need to start treating the disorder, and finding ways to stay out of the disorder when stressful times come around.

I also want to address your fears around inpatient treatment. A lot of doctors and counselors will be willing to work with you around an outpatient treatment plan if you show that you want to heal and feel better and are willing to keep working toward that end. However, some people do end up in inpatient and I know it's scary to end up in a new environment and feel like all your control is being taken from you. But remember, while being able to engage in ED behaviors feels like you're controlling your life, every time you do it, the eating disorder takes more control of YOU. Think about it. You're already struggling. You're engaging in behaviors that take away the energy and time you had for the true joys in your life. You want medical professionals to help you, but you're not giving them the full range of information to help you. Do you feel like you're really in control of your life right now?

If you show willingness to work outpatient, I think your supports will probably work with you on this. However, I cannot 100% promise you will not end up needing to do inpatient. I know that's scary. You're allowed to be scared! I invite you to sit with that feeling and hold compassion for yourself and know that you're not the first person to ever be scared of going into inpatient. You also may have to talk about the possibility while seeking treatment. It's okay to be scared, I hope you know that. That's why I suggested bringing a script to therapy, so you can give your therapist a baseline for what you're able to confront right now. A good therapist will develop a rapport with you so that you feel safe working through scary topics. Healing is not the absence of fear, but knowing you have a safe person equipped with tools to help you cope with fear. Someone who will meet you with compassion, not judgment, and lay out your options for you in a way that you understand.

I wish you the best of luck in this difficult journey, anon. I hope you find healing.

[deathsbestgirl]

so some of my medical history:

lyme disease when i was 10

mono right after (one kid i was never near in the county had it)

a weird ass contagious skin disease that was very contagious so i couldn't go to school (easily treatable) that no one else in the county had

diagnosed with a type of arthritis when i was 15 (the "treatment" didn't help)

i've had 4 surgeries for cysts (ganglion cysts both wrists, left side lypoma, cholestiatoma in my left ear)

tubes in my ears 3 times

2 surgeries to replace the bone in my left ear (i'm HOH)

MRSA my freshman year of college (not allowed at school)

junior year? i started getting treated for chronic lyme (controversial) was on multiple antibiotics for 4 years, went gluten free, no sugar, very little caffeine, got cdif (colitis) (almost died) had to stop that route. tried chinese medicine (garlic & herbs) was taking chlorophyll with too much copper, got copper poisoning & almost died (when my dad was first diagnosed with cancer no less) stopped that course too. (also did a whole miserable diet that i can't even talk about bc i really like food & that also almost killed me bc i didn't want to eat ever)

did acupuncture for years, that was the MOST helpful. she improved my period, helped make my diet tolerable, improved my pain & migraines by leagues, etc etc

pretty sure i have pots, maybe eds but i haven't tried to get diagnosed because ... i hate doctors with a burning passion. my biggest problem now is fainting & allergies lol and liquid iv & compression socks have actually made the biggest difference. used to survive on gatorade & pedialyte. and i need to go back to acupuncture

i'm always in pain (muscles, joints literally all of them) but you learn to live with it. and my very helpful doctors told me to ignore that pain when i was 15 & said fatigue was normal. so um. yeah

i feel like i've buried most of the memories, like they were years ago at this point but they feel like another life sometimes.

it's so isolating and if i didn't have two really good friends at home when i left college, i don't know how i would have made it. they would come over basically everyday and we'd watch tv & hang out, they'd make sure i ate & help me clean etc etc (i had the downstairs apartment if my parents house most of the time and *thankfully* my family was always helpful & understanding, my mom fought so hard for me) my mom & my friends could tell how i was feeling without my having to saying a word about it.

it absolutely kills me every time i read about what others deal with when they have chronic illnesses because that just. is not how anyone should be treated when they're sick & in pain. i remember being 15 and the whole world telling me "you can't be sick all the time" like literally yes you can you dumb fucks. again, thankfully i had some great teachers who made so many allowances for me (letting someone leave class early with me because i couldn't walk or carry my stuff but i had no aids or plan with the school. sometimes teachers that weren't even mine let a friend leave their class. one teacher didn't make me read a tale of two cities because i missed the whole unit) i had another friend going through hell. she has crohn's disease and she almost went blind and it took a long time for her to get diagnosed too.

one of those days i'm just mad at the world. this post doesn't really have any purpose other than to say listen to disabled people, especially the ones in your life. and if you can help them then you should. it's isolating & exhausting & painful in so many ways. people shouldn't lose friends because of their health. they shouldn't be guilted because of their health. health isn't an achievement, it isn't something you can control even if you do everything you possibly can. some things we just have to live with.

[wawawawawawawawawawawawawa]

Okok so I looked into the Toxic Psychosis thing and it’s essentially just another way of saying/describing an episode of psychosis triggered or caused by chemicals or toxins in the system. And can be caused by anything from alcohol to opioids, other toxins that could have made it into ur system, and is also used to describe an episode of psychosis caused by an adverse reaction to a prescribed medication.

So in summary it just looks like it’s a quicker way of differentiating between a chemically/toxin induced episode and other instances of psychosis. Which really isn’t as bad as I thought it would be now that I’m looking into it, esp since I thought is was gonna be some other (much more derogatory) bs.

_________________________________

Tbh I don’t know if my psychiatrist even wanted to talk to me LMFAO

She charged a FUCK TON per appointment and every time it was always some poor student/intern (rip) that would actually talk to me & take notes before I even SAW my psychiatrist, and then she would ask like yes/no questions for five minutes- And then she’d end the zoom call

And tbh I think I’d rather try and deal with that Psychyatrist again over one that tries to re diagnose everything during the very first appointment lol

Also I did mention the Chest Pain! That and the other weird symptoms I was dealing with are what got her to take me seriously which was a relief. She had me do an EKG that same appointment and had me do some bloodwork - which came back pretty normal

Still debating how much effort I’m willing to put in to get this fixed though, especially since I haven’t been having any super bad symptoms recently. And I feel like it’s maybe not as bad as it feels???? but then again I haven’t been up in that fuckin mountain for the past few months, and that altitude could be what was making everything feel way worse.

We’ll probably just have to wait and see what happens when I go back up 👍

-💛

OOOHHHH ok that makes a lot of senss (the toxic psychosis thing)

also OOIHHHHB MY GOD FUCK THAT PSYCHIATRIST why are psychiatrists so mother fucking mean holy shit. this is why im antipsych

also good that u got taken serioisly!!!!! if the symptoms arent causing too much distress, its not worth speedrunning back to the office but i do think its smtb u need to get checked out, esp since ur tachycardia is worse than mine!!

btw, do u have a home blood pressure monitor? bc its a good investment, ull be able to see if ur blood pressure is high and stuff and then u can tell the doctors if it is. they take that stuff pretty seriously (if they dont SUCK!!!!!) and my machine was only like. 60 bucks iirc

also if ur suffering from symptoms sybdrome and a little voice tells u its not as bad as u think, DONT LISTEN TO IT!!!! thats the DEVIL talking!!!!

[i-love-you-all]

For the shuffle music ask: Breach x Sage (or alternatively solo sage)?

Thank you for the ask! I did Breach/Sage for this one, and I think I'll do Sage solo afterwards bc she does not get a large spotlight in this one as it's mostly from Breach's POV. It's a Nurse!Sage and Criminal! Breach. My choice to make Sage a nurse instead of a doc was because of how I see her. She's more hands on, nurturing, aka more likely to be at the patient's bedside instead of coming in to check every few hours and being the one to diagnose/order tests. Viper would be a doctor in this tho!

The song I got for this one is Mika's Dr. John. The full outline is below the cut. Bold parts are the actual lyrics, everything else is me :))

These are fun, so if anyone else also wants to send in an ask, please do! (Link here to the original post I made)

I look for joy in a strange place; From the back of the bar, from afar

Scene starts in a busy bar that belongs to Breach, or rather, his family, on a friday evening. Breach, still healing from wounds is seated somewhere shady and secluded to finish up “business”. Sage comes in with a couple friends.

Breach notices right away bc her style is so different from others. Wraps up his part as soon as he can and walks over.

“Strange, I walk into your place of business yesterday, and now you come into mine. Almost like fate or destiny huh?”

Sage is ready to leave the bar, remembering that she doesn’t like this guy

Viper gets along well with Breach, he handles her bluntness well, and he’s not put off by anything she says.

But how kind he is to her friends, and by extension Sage, maybe gives her doubts? After all, no one’s an angel when they’re in pain.

He leaves her alone, and for a bit, she forgets about him until they’re about to leave when he maybe sends them home w extra food or helps them call a taxi.

I see the look on my mama's face. When her son's in the corner, undone. She says that my life is over: "Boy, you don't know what you got till it's gone. Come put your head upon my shoulder” She gave me her hand, but I ignored her.

Breach has to reconcile with the idea that his business is not safe and so there’s no point in thinking about the nurse, and that he’s heard the stories and seen firsthand what people will do to hurt someone. Their aim often strays in their attempt to ruin their target.

His mother comes by his apartment to make sure he’s eating well and that he’s not taking the pressure from his father too hard.

She shows him a picture that one of his partners (Raze) took of him and Sage and sent it to his mom.

She asks him about his happiness and if this is what he actually wants to spend the rest of his life doing.

“Haven’t you ever thought about resting? Picking up from your fears and making something nice out of them?”

His answer is no, and when she asks if he wants help, again he refuses.

Oh, Dr. John, What am I doing, what am I doing wrong? 'Cause I keep on trying. Something ain't going, something ain't going on, Dr. John

A scene where Breach is rambling to Raze about his fears about what’ll happen to them if he can’t find a way out of this target on his back. She has complete faith in him and what he can achieve. Almost to a foolish amount, she truly believes that they’ll make it out of this war alive and well.

“Can we stop talking about this? It’s pulling down my mood, man.” (Raze) “What will you do after?”

Breach has no answer because he has no plans. This is all he’s known, one war to another. The opponent always changes, and sometimes, his allies too.

I see the look on my daddy's face. When his son's fallin' over, undone. Father, my life is over. I didn't know what I had, now it's gone Can I lay my head upon your shoulder? If I fall asleep, will it be over?

Breach gets bad news about his brother. He’s stable, but it’ll be a slow recovery. Like Breach predicted, the target widens every time they learn about someone he cares about. And this takes all wind out of his sails. He just wants this fight to end, even if it ends with his death.

He doesn’t realize that well, this is the hospital where Sage works until he talks with Viper (the Dr) and recognizes her.

Sage does come in later, covering for another nurse for the day, and she sees Breach alone, last of his family to leave the hospital, with his head between his knees as he’s trying to think about his next move.

Breach wants to end this as quickly as possible.

Sage gets him a cup of coffee and they talk

They talk about how he’s in the hospital quite often, and Breach divulges that it didn’t used to be like this.

They talk about family, and that his brother was his father figure for a long time and so if he lost his brother…

She makes the leap of assumptions and implies that Breach is part of a gang or some sort of organized crime, and she asks why

Family? It’s just what was expected.

“If you could do anything in the world, what would you want to do?”

Breach has no answer.

Sage might’ve wanted to be a gardener or a botanist. Hospitals can get hectic, and she loves her meditative activities.

First establishment of a connection of some sort until she needs to move on with her shift, and he goes home.

You say I'm a big heartbreaker, but Doctor, I'd never hurt you. Isn't it obvious?

This would come in much later in the story. Maybe they’ve been dating for a month or two. It’s a private dinner in the bar that’s been closed for the day. This is when the finale of the gang/crime war happens, and Breach needs to find a way to defend himself, protect Sage, call backup, and win. At the very end of it, when Sage finally realizes just how deep into all this stuff Breach is, they have a serious conversation.

Sage is able to protect herself and hold her own in a fight (martial arts if ppl come close to try and take her hostage but obviously, Sage doesn’t feel safe.

She knows how cyclical this is. Another group will want revenge on Breach, and then the next and the next, and that’s assuming Breach doesn’t die. She’s seen it too much in the hospital. She also knows that more than just the guilty parties get caught in the crossfire.

Also, Sage doesn’t want to patch up her partner after every fight.

Breach is falling hard for her and though he knew the answer, he doesn’t want to let her go either.

He promises things like he would never let anything hurt her, and that he never meant to wound her like this.

She admits that it feels a little like heartbreak, and he can do nothing but accept that.

How would I end this? I think it would lead to Breach dealing with the aftermath and the revenge plots like Sage predicted. I think she overhears something at the hospital and goes to warn him but arrives barely in time and it’s her, Breach, and Raze fighting their way out before a large event (explosion or something similar). Breach gets hospitalized and with some strings pulled with Viper and Sage, Breach and Raze are pronounced “dead”. They get their new start, and Breach moves on to his passion project, maybe something simple at first like mechanics, maybe car detailing, and Raze can help paint cars. Something simple.

[vaspider]

I have told this story over and over again, but it bears repeating:

In 2011 or so, I started having intense pain in my legs and feet. I was sent to an orthopedic surgeon. He said, "This pain is because you are fat. Go on this diet and lose weight."

I went on the diet. I ate 1300 calories a day. I exercised until I literally couldn't stand up.

1300 calories a day is what a healthy toddler should eat. I was 34 years old. I was starving, in excruciating pain. I was angry and hungry and hurting. I really don't envy anyone who had to deal with me.

Oh yeah: and I didn't lose any real weight, no matter how hard I worked and how scrupulously I followed the diet.

By 2013, when - shockingly - I had ruined my muscle tone and was still in incredible pain, I got to a point where I couldn't walk to the bathroom at work without help. I missed my kid's chorus concerts bc I couldn't sit in uncomfortable chairs after suffering all day. And I still hadn't lost any real weight.

"Isn't there anything else this could be?" I asked.

He refused to run other tests. "You just need to lose the weight."

Two years this had gone on, and I was still in pain. Still missing out on my life. Still missing out on Cat's life, on moments I couldn't ever get back.

My partner finally got fed up and dragged me to another doctor. Dragged me back to our family doctor and told her what was going on.

She took one look at me - literally, she touched my feet once - and said, "This guy is an idiot."

Two days later, an MRI found a 2.5 cm mass adhered to the sheath of my spinal cord, compressing my spinal cord against the inside of my spine. Three days after that, I was told it was most likely malignant.

It wasn't. I was lucky. It was a benign mass, removed May 9th, 2013.

Since then, I've been diagnosed with diabetes and celiac disease, both of which my doctors think come from the bodily trauma that this all put me through - that genetic predisposition got kicked into overdrive by either the trauma of starving myself for two years or surgery. We can't be sure if it's the starvation or the surgery that did it.

We can, however, be very, very sure that the disordered eating that I have struggled with for the last 12 years comes directly from a doctor who looked at me and said, "You should starve yourself," and only saw fat, not a person.

I'm very, very lucky that it wasn't actually cancer. I know more than one person who wasn't that lucky. Some of them (z''l) have died.

Medical fatphobia fucking kills.

they have a point though. you wouldn't need everyone to accommodate you if you just lost weight, but you're too lazy to stick to a healthy diet and exercise. it's that simple. I'd like to see you back up your claims, but you have no proof. you have got to stop lying to yourselves and face the facts

Must I go through this again? Fine. FINE. You guys are working my nerves today. You want to talk about facing the facts? Let's face the fucking facts.

In 2022, the US market cap of the weight loss industry was $75 billion [1, 3]. In 2021, the global market cap of the weight loss industry was estimated at $224.27 billion [2]. 

In 2020, the market shrunk by about 25%, but rebounded and then some since then [1, 3] By 2030, the global weight loss industry is expected to be valued at $405.4 billion [2]. If diets really worked, this industry would fall overnight. 

1. LaRosa, J. March 10, 2022. "U.S. Weight Loss Market Shrinks by 25% in 2020 with Pandemic, but Rebounds in 2021." Market Research Blog. 2. Staff. February 09, 2023. "[Latest] Global Weight Loss and Weight Management Market Size/Share Worth." Facts and Factors Research. 3. LaRosa, J. March 27, 2023. "U.S. Weight Loss Market Partially Recovers from the Pandemic." Market Research Blog.

Over 50 years of research conclusively demonstrates that virtually everyone who intentionally loses weight by manipulating their eating and exercise habits will regain the weight they lost within 3-5 years. And 75% will actually regain more weight than they lost [4].

4. Mann, T., Tomiyama, A.J., Westling, E., Lew, A.M., Samuels, B., Chatman, J. (2007). "Medicare’s Search For Effective Obesity Treatments: Diets Are Not The Answer." The American Psychologist, 62, 220-233. U.S. National Library of Medicine, Apr. 2007.

The annual odds of a fat person attaining a so-called “normal” weight and maintaining that for 5 years is approximately 1 in 1000 [5].

5. Fildes, A., Charlton, J., Rudisill, C., Littlejohns, P., Prevost, A.T., & Gulliford, M.C. (2015). “Probability of an Obese Person Attaining Normal Body Weight: Cohort Study Using Electronic Health Records.” American Journal of Public Health, July 16, 2015: e1–e6.

Doctors became so desperate that they resorted to amputating parts of the digestive tract (bariatric surgery) in the hopes that it might finally result in long-term weight-loss. Except that doesn’t work either. [6] And it turns out it causes death [7],  addiction [8], malnutrition [9], and suicide [7].

6. Magro, Daniéla Oliviera, et al. “Long-Term Weight Regain after Gastric Bypass: A 5-Year Prospective Study - Obesity Surgery.” SpringerLink, 8 Apr. 2008. 7. Omalu, Bennet I, et al. “Death Rates and Causes of Death After Bariatric Surgery for Pennsylvania Residents, 1995 to 2004.” Jama Network, 1 Oct. 2007.  8. King, Wendy C., et al. “Prevalence of Alcohol Use Disorders Before and After Bariatric Surgery.” Jama Network, 20 June 2012.  9. Gletsu-Miller, Nana, and Breanne N. Wright. “Mineral Malnutrition Following Bariatric Surgery.” Advances In Nutrition: An International Review Journal, Sept. 2013.

Evidence suggests that repeatedly losing and gaining weight is linked to cardiovascular disease, stroke, diabetes and altered immune function [10].

10. Tomiyama, A Janet, et al. “Long‐term Effects of Dieting: Is Weight Loss Related to Health?” Social and Personality Psychology Compass, 6 July 2017.

Prescribed weight loss is the leading predictor of eating disorders [11].

11. Patton, GC, et al. “Onset of Adolescent Eating Disorders: Population Based Cohort Study over 3 Years.” BMJ (Clinical Research Ed.), 20 Mar. 1999.

The idea that “obesity” is unhealthy and can cause or exacerbate illnesses is a biased misrepresentation of the scientific literature that is informed more by bigotry than credible science [12]. 

12. Medvedyuk, Stella, et al. “Ideology, Obesity and the Social Determinants of Health: A Critical Analysis of the Obesity and Health Relationship” Taylor & Francis Online, 7 June 2017.

“Obesity” has no proven causative role in the onset of any chronic condition [13, 14] and its appearance may be a protective response to the onset of numerous chronic conditions generated from currently unknown causes [15, 16, 17, 18].

13. Kahn, BB, and JS Flier. “Obesity and Insulin Resistance.” The Journal of Clinical Investigation, Aug. 2000. 14. Cofield, Stacey S, et al. “Use of Causal Language in Observational Studies of Obesity and Nutrition.” Obesity Facts, 3 Dec. 2010.  15. Lavie, Carl J, et al. “Obesity and Cardiovascular Disease: Risk Factor, Paradox, and Impact of Weight Loss.” Journal of the American College of Cardiology, 26 May 2009.  16. Uretsky, Seth, et al. “Obesity Paradox in Patients with Hypertension and Coronary Artery Disease.” The American Journal of Medicine, Oct. 2007.  17. Mullen, John T, et al. “The Obesity Paradox: Body Mass Index and Outcomes in Patients Undergoing Nonbariatric General Surgery.” Annals of Surgery, July 2005. 18. Tseng, Chin-Hsiao. “Obesity Paradox: Differential Effects on Cancer and Noncancer Mortality in Patients with Type 2 Diabetes Mellitus.” Atherosclerosis, Jan. 2013.

Fatness was associated with only 1/3 the associated deaths that previous research estimated and being “overweight” conferred no increased risk at all, and may even be a protective factor against all-causes mortality relative to lower weight categories [19].

19. Flegal, Katherine M. “The Obesity Wars and the Education of a Researcher: A Personal Account.” Progress in Cardiovascular Diseases, 15 June 2021.

Studies have observed that about 30% of so-called “normal weight” people are “unhealthy” whereas about 50% of so-called “overweight” people are “healthy”. Thus, using the BMI as an indicator of health results in the misclassification of some 75 million people in the United States alone [20]. 

20. Rey-López, JP, et al. “The Prevalence of Metabolically Healthy Obesity: A Systematic Review and Critical Evaluation of the Definitions Used.” Obesity Reviews : An Official Journal of the International Association for the Study of Obesity, 15 Oct. 2014.

While epidemiologists use BMI to calculate national obesity rates (nearly 35% for adults and 18% for kids), the distinctions can be arbitrary. In 1998, the National Institutes of Health lowered the overweight threshold from 27.8 to 25—branding roughly 29 million Americans as fat overnight—to match international guidelines. But critics noted that those guidelines were drafted in part by the International Obesity Task Force, whose two principal funders were companies making weight loss drugs [21].

21. Butler, Kiera. “Why BMI Is a Big Fat Scam.” Mother Jones, 25 Aug. 2014. 

Body size is largely determined by genetics [22].

22. Wardle, J. Carnell, C. Haworth, R. Plomin. “Evidence for a strong genetic influence on childhood adiposity despite the force of the obesogenic environment” American Journal of Clinical Nutrition Vol. 87, No. 2, Pages 398-404, February 2008.

Healthy lifestyle habits are associated with a significant decrease in mortality regardless of baseline body mass index [23].  

23. Matheson, Eric M, et al. “Healthy Lifestyle Habits and Mortality in Overweight and Obese Individuals.” Journal of the American Board of Family Medicine : JABFM, U.S. National Library of Medicine, 25 Feb. 2012.

Weight stigma itself is deadly. Research shows that weight-based discrimination increases risk of death by 60% [24].

24. Sutin, Angela R., et al. “Weight Discrimination and Risk of Mortality .” Association for Psychological Science, 25 Sept. 2015.

Fat stigma in the medical establishment [25] and society at large arguably [26] kills more fat people than fat does [27, 28, 29].

25. Puhl, Rebecca, and Kelly D. Bronwell. “Bias, Discrimination, and Obesity.” Obesity Research, 6 Sept. 2012. 26. Engber, Daniel. “Glutton Intolerance: What If a War on Obesity Only Makes the Problem Worse?” Slate, 5 Oct. 2009.  27. Teachman, B. A., Gapinski, K. D., Brownell, K. D., Rawlins, M., & Jeyaram, S. (2003). Demonstrations of implicit anti-fat bias: The impact of providing causal information and evoking empathy. Health Psychology, 22(1), 68–78. 28. Chastain, Ragen. “So My Doctor Tried to Kill Me.” Dances With Fat, 15 Dec. 2009. 29. Sutin, Angelina R, Yannick Stephan, and Antonio Terraciano. “Weight Discrimination and Risk of Mortality.” Psychological Science, 26 Nov. 2015.

There's my "proof." Where is yours?

[3liza]

speaking of balding, wondering if you have any aesthetic advice for ladies with hair loss, esp. in the typical "male" style (thinning temples and rising hairline). I'm 30, generaly negligent and apathetic doc says my bloodwork looks fine, no PCOS, low progesterone apparently. Scared to try rogaine because I already have insane facial and body hair that $1000s worth of electrolysis did not do much to eradicate.

Should I just commit to the shaved head & occasional wig for the rest of my life? Honestly considered transition lol but not feeling great about being a schlubby dude instead of a schlubby woman. What is the best aesthetic path? Primarily asking bc I deeply trust ur taste and opinions.

standard disclaimer, im not a doctor or a medical professional and all my advice is coming from a civilian without any credentials and is based solely on my own personal experience, observations and research.

since you mentioned doc said no PCOS i will assume youre AFAB, please correct me if i'm wrong since it does make a big difference with hair loss. lots of body hair + lots of face hair + male pattern baldness for cis afab women almost always means either PCOS or a similar hormonal issue. before trying anything else i would try to get a second opinion from a gyno and/or endocrinologist. because your doctor sounds like an idiot and also incurious and may also be reading your labs wrong or may have ordered not enough labs or the wrong labs. if nothing else i would try to get someone else to look at the lab results.

i dont know enough to tell you exactly which labs you need, but sometimes doctors are like fucking computers and will not actually perform the correct actions until you find the exact right way to phrase your request. in this case i would say to the doctor, firmly but politely, "my symptoms are hormonal and include male pattern baldness, hirsutism, and [anything else you think is relevant, including if you are above average height or weight, have a weird metabolism, and any menstrual pain or irregularities]. these symptoms negatively impact my quality of life and i am not willing to ignore them or just live with them. if my hormone levels are all normal, what else could be causing these problems? we need to test for those diagnoses. if you are not interested or qualified to pursue this issue for me, please refer me to a gynecologist or endocrinologist who can."

really punch that these issues are negatively impacting you and you arent able to function normally. feel free to "exagerrate" this part too, because when we live with chronic conditions we genuinely lose the ability to tell exactly HOW BAD things have gotten, because we get used to minimizing it and just going about our business, and doctors are almost never chronically ill and sincerely dont get it. they dont understand the complexity of subjective suffering.

a lot of doctors default to "the patient isnt actively bother me about this so they must not care that much" and theyre also really busy and will triage anyone who isnt actively getting their attention. don't let the appointment end without the doctor telling you exactly what the next step is and when it will occur, whether it's a lab order for tests, a day that someone will call you back or message you on MyChart, or a referral to another doctor. you are entitled to this information and care.

i think getting this medically checked out is of primary importance because it sounds systemic and not just about hair, but all the basic hair drugs are available on the grey market for not too much money. they all have various downsides but dutesteride and finasteride are both easy to get and try for yourself if you feel like it.

edit: i got so mad about doctors i didn't even answer your question. i think if it were me in your shoes (which it probably will be someday, like i said in the other post, hair loss comes for us all), if doctors and meds didnt work or didnt work well enough, i would probably shave my head and get some wigs for days when i didn't feel like being bald. there are GOOD, cheap wigs these days (haircube is one brand people really like but there are tons). and bald women look incredible

[wrenfea]

hey! is it ok to ask a wheelchair related question? i am in PT and have muscle atrophy n hyper mobility and nother things (no disorder specified) and I’m told to do these exercises and “it’s good to move when ur in pain and fatigued.” and that it’ll make it better .. but it’s hard to manage and id like to go through daily life not in pain and be able to do more things. i want a mobility aid .. I kinda think maybe a wheelchair would be best bc both of my legs and arms and back are effected.. but I know I’d be told I’m “giving up” and that I will atrophy more… n what I’m thinking is well what if I keep doing these exercises and doing walks but in my daily life also use a wheelchair or mobility aid? would I still atrophy then?.. what happens if u completely atrophy?.. idk it’s just like. when should I use a wheelchair vs not do that and keep doing the exercises to strengthen myself ? idk like when should I allow myself a wheelchair ?

I am not a medical professional so please take my advice with a grain of salt. Also my advice comes from my own personal experience with fibromyalgia, I do not have hyper-mobility, but I do know people that do.

I was in a pretty similar position last year in PT. Everyone kept telling me to keep moving, to push myself to get stronger even though it hurt. I tried, I really did, and it did help for a bit. However once November hit, everything went back to the way it was. Before November I was able to run around in the heat with only minor symptoms as long as I could take breaks. But once November hit I could barely move. So I had to make a choice. Stay in bed and join class virtually, losing the amazing experience of my program at SCBI, or find a way to cope with my situation.

Anon, when I told my rheumatologist, she laughed at me. It's like she wasn't even listening. A 15 minute appointment. I didn't even straight up ask for a wheelchair, I just brought up the possibility of exploring mobility aids as an option. She said I was too young. My therapist? She kept saying it was a terrible idea because it would cause muscular atrophy. This is a lady with no experience with fibromyalgia other than "one of her other clients has it". I decided to stop listening to those who kept giving me advice without actually listening to me and not actually having any experience with my disability (hell, my therapist kept saying I shouldn't call myself disabled as that would be giving up).

I started looking on forums for people with fibromyalgia (stuffthatworks is AMAZING) and was connected with people who have had my disorder for decades. I reached out to someone who was able to give me advice on mobility aids from the perspective of someone with fibromyalgia that had been using mobility aids for years.

I'm not saying doctors don't know anything, but many doctors stick to what they are taught rather than doing their own research or actually listening to their patients. It took a while but I finally have doctors who listen to me. Who actually check up and make sure their treatments are working. Who accepted that they didn't know what to do and would refer me to another doctor instead of throwing medicine at me.

If you aren't actually diagnosed yet, I would be wary about PT. How are they supposed to treat you in a way that won't exacerbate your condition if they don't even know what you have?

Here's my advice, do your own research. Try to find a specialist that deals with your specific issues. For me, I reached out to a spine and pain doctor who referred me to a neurologist. I got an MRI, an EEG, and a sleep study. They found out I had sleep apnea which I had no idea I had. I also went to a chiropractor who did x-rays and I found out my neck is literally backwards. Like I have mild scoliosis. I do PT with the chiropractor which is so much nicer because I use methods that don't cause pain. Everything is so gradual and personalized. Meanwhile my old PT place had me going up and down stairs because I told them I hated stairs. I can actually freaking move my neck side to side now.

Once you have a diagnosis, try to find a community forum for people with your condition. Heck if you already have a pretty good idea you can look at those forums now. Stuffthatworks has multiple communities for different health conditions.

Now about the mobility aids. Honestly? Fuck the whole atrophy thing. Think of it this way, will you really be moving more with it or without it? Without the wheelchair I go out less and stay in bed more, which causes atrophy!! With the wheelchair, I go out more, use my arms and core (manual wheelchair only tho), and have more energy to actually do the exercises my doctor prescribed. It helps me save energy for the things that matter. Wouldn't it be better for me to use my wheelchair to get to class and then do my PT exercises than to suffer through walking to class unaided and then sleep the rest of the day? Do what increases YOUR standard of living. If you can get a wheelchair or other mobility aid, go for it.

There's a reddit forum for wheelchair users that I've found useful for first timers. Also please note it can be next to impossible to get a wheelchair prescription ESPECIALLY as a young person. I would look on Craigslist or charities near you that provide wheelchairs. I got mine off Craigslist for $80 for a $500 wheelchair. For others I was able to find a rollator at goodwill for $40. They also had crutches but I didn't buy those. You can also find canes pretty much everywhere. It's good to have different levels of mobility aids for different levels of pain.

For the atrophy thing specifically, I used a wheelchair in highschool (broken ankle that would not heal) and did notice my legs atrophied a bit. But as long as you monitor your muscle weakness and do exercises that strengthen your muscles along with using the wheelchair, you should probably be fine. I have a rollator so I can take walks and get my legs moving while also still having a place to sit if needed. Also, working with a physical therapist that actually knows about your condition and accepts that sometimes you need to use your mobility device will help. You'll most likely find that it will actually become easier to do your physical therapy exercises once you stop wasting energy on simply getting about.

Sorry this is kinda long, I hope it helps. Let me know if you have any other questions or want me to elaborate on something. Also if anyone who sees this has more advice feel free to add on!

[wishful-seeker]

Im gonna talk about physical disability/ chronic illness

i diagnosed myself

Well kinda

My therapist, like yours, had a patient with crps (complex regional pain syndrome) and i had been suffering from an undiagnosed chronic joint pain that left me bedridden for over 2 years and housebound. She said my symptoms were similar to her other patient and advised me to try ketamine. She is not a doctor.

So i find a local ketamine place, and a nurse practioner, who does NOT have the authority to diagnose me, agrees i have crps and we began infusions without a diagnosis. It worked. Like REALLY worked. So i knew i had crps.

I had been to countless doctors, mostly rheumatologists, literally begging and crying for even 𝘭𝘰𝘸 𝘥𝘰𝘴𝘦 𝘴𝘵𝘦𝘳𝘰𝘪𝘥𝘴, 𝘵𝘩𝘦 𝘴𝘢𝘮𝘦 𝘬𝘪𝘯𝘥 𝘺𝘰𝘶 𝘨𝘦𝘵 𝘧𝘰𝘳 𝘵𝘩𝘦 𝘧𝘭𝘶 and they wouldn't even give me that. Keep in mind crps is rated one of "the most painful chronic pain conditions known to man" rating higher suffering than cancer pain, amputation, and childbirth. AND THEY WOULDN'T GIVE ME MEDS ANY ADULT CAN GET WHEN HAVING A COLD. Rheumatologists are literally the cruelest, most cowardly people i have EVER met. They literally had the audacity to say "i don't feel COMFORTABLE treating you."

So, i asked my primary care doctor (bc the rheumatologists wouldn't) if she could refer me to a neurologist, she did, i saw her and said i was looking to be tested for crps. She said ok, i did a brain mri and a very painful test where im stabbed with needles that shock me to record my brains response. Afterwards the neurologist said "tests are negative" i said "i thought crps had no test, does this mean i don't have it?" She said "your right, there is no definitive test, but i actually can't diagnose it, its not my expertise."

When she left the room i hit the medical bed as hard as i could and sobbed. 4 years, 4 YEARS of this literal interaction over and over again. This one really broke me because she made us spend money and makes me go through painful tests KNOWING she couldn't diagnose me. She got my hopes up, waisted my time and money. After that my mind and body were done, there was no way i could handle that interaction again.

So i searched "CRPS doctor near me" and found one 40 minutes away, i called, and because he was a new doctor there i didn't need a referral, and got an appointment. I HAD TO DO THAT MYSELF, ALL ON MY OWN because doctors either didn't know where to send me or "didn't think i had crps" (its a rare disease, most nurses don't even know what it is.)

So, i go to my appointment, i tell him my story which is about 5 minutes. He can see that my feet are red/purple while talking to me (one of the symptoms) as soon as im done talking he says:

"So yeah, crps is really tough to treat, its a long road, but we can try physical therapy, ketamine, and lyrica-"

I interrupt him "wait, you're saying i have it?"

"Yes."

"And you can officially diagnose it?"

"Yes."

"Like on paper?"

"Yes."

He diagnosed me without touching me, looking at me, no tests. 𝘐𝘵 𝘸𝘢𝘴 𝘣𝘭𝘢𝘵𝘢𝘯𝘵𝘭𝘺 𝘰𝘣𝘷𝘪𝘰𝘶𝘴 𝘪 𝘩𝘢𝘥 𝘵𝘩𝘪𝘴 𝘥𝘪𝘴𝘦𝘢𝘴𝘦 𝘢𝘯𝘥 4 𝘺𝘦𝘢𝘳𝘴 𝘰𝘧 𝘴𝘵𝘶𝘱𝘪𝘥 𝘤𝘶𝘯𝘵𝘺 𝘥𝘰𝘤𝘵𝘰𝘳𝘴 𝘤𝘰𝘶𝘭𝘥𝘯'𝘵 𝘧𝘪𝘨𝘶𝘳𝘦 𝘪𝘵 𝘰𝘶𝘵.

My mom started crying, i have a really hard time processing big stuff so i stayed calm, listened, asked questions, and then it was done. Mom pulled over in the car to cry more.

I had to diagnose myself

I had to find my doctor myself

If it wasn't for my therapist and nurse practioner who knows how many more years I'd have to wait.

Moral of the story: good therapists save lives, 𝘢𝘯𝘥 𝘵𝘳𝘶𝘴𝘵 𝘺𝘰𝘶𝘳 𝘧𝘶𝘤𝘬𝘪𝘯𝘨 𝘨𝘶𝘵.

i got paired up with a new therapist who specializes in and works primarily with neurodivergent patients. i felt comfortable enough to tell her that i'm autistic. she asked if i've ever received a formal diagnosis- i said no, because i've attempted in the past and i've been turned down because i'm "too articulate," i "speak too well," and they see my feminine deadname and that i'm legally AFAB and dismiss me, because "women can't be autistic".

my therapist told me that self-diagnosis is valid.

as we continued to talk through that session, she readily pointed out several autistic behaviors that i had been displaying without even realizing; i began infodumping about queer history and psychology without even realizing it, which she pointed out and then remarked that those are definitely special interests of mine. i felt floored. i knew these things about myself, but she acknowledged them effortlessly without hesitation.

in the next session, she pointed out that my tendency to re-analyze social interactions well past the time that they are over is also an autistic trait, and that i wasn't ruminating anxiously, but rather that's just how many autistic people process- we "over" analyze things in ways that allistics do not. it's difficult for many of us to figure out the entirety of what's happening in the moment, we process over time.

after that, she told me that during our next session, she wanted to spend that appointment talking about my special interests so she could get a better picture of me- specifically using that wording, calling them special interests.

after years of trying and failing to get acknowledgement for my neurotype, all it took was one therapist who specializes in neurodivergence to see the signs. one. sometimes all it takes is one person to make the difference. don't give up if you think you are autistic and are struggling to get a diagnosis or just recognition for it. it doesn't mean you're wrong. the average allistic knows nothing about how autism actually presents itself, only what they know from media, memes and mean jokes. sometimes all it takes is meeting one person who knows what autism looks like.

don't give up. you know who you are.