#cw: leukaemia
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I’ve been reading on X that Asma requested to get a divorce from Assad, do you think this is true? I hope this isn’t true and is just rumors or gossip.
It sounds like complete and utter bullshit to me
She's got acute leukaemia and the source is CNN Turk so...
#Asma al-Assad#Bashar al-Assad#Assads#Syria#tw: leukaemia#tw leukaemia#tw: leukemia#tw leukemia#cw: leukaemia#cw leukemia#tw: cancer#tw cancer#cw: cancer#cw cancer#cancer mention#leukaemia mention#leukemia mention
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((CW: medical post about my leukemia, and treatment symptoms.))
Argh my leukemia rash... it subsided but never went fully away but was something I could deal with... But now it is back again, just as bad as it was in the early stages of taking the medicine.
I'm fairly sure this rash is caused by the TKI medication I'm taking, though leukemia itself can also cause a rash.
For me the rash is just on my forearms and my scalp. On my scalp it feels HOT. Have you ever bleached your hair? If you have, you will know that chemically hot burning feeling. That's what it feels like on my scalp.
And the thing I've observed is this, after a few days of that heat and irritation of my hair follicles on my head... My hair will start to fall out again.
I hate leukemia. I hate hate hate hate it. My hair is cute. I don't wanna lose it. But oh well. If taking this medicine made ALL my hair completely fall out, I would still take it.
I will never let leukemia win. I will always fight it with the best tools possible. I'm lucky I'm alive to have this whinge about my (admittedly trivial) itchy skin and hair loss.
Life > Hair.
#chronic myeloid leukemia#leukemia#leukaemia#hair loss#medical post#journal entry#personal#cw cancer#tw cancer#blood cancer#dasatinib#leukemia rash#tyrosine kinase inhibitors
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What's Been Going On.
Hey gang.
First off, before I make a cut, I just want to thank y'all for your patience and understanding the past couple months with my... distinct lack of interesting posting. I really appreciate it. I spend so much time here that I tend to eventually burn out and then feel bad when I physically can't provide y'all with new stuff. I love this blog and the community here, and I'm grateful that y'all are so understanding.
The TL;DR for those who aren't able to read below the cut due to the content warnings: I've lost 2 relatives in the past couple weeks, and one of them hit me very hard. I am sad, but I am trying my best to carry on. It will hurt for awhile, and I'm not okay right now, but I will be... I always am.
Below the cut, cw for descriptions of deaths, cancer, depression.
So, as I mentioned, I lost two family members in two weeks, almost exactly a week apart from each other. One, my youngest aunt (dad's sister) who I wasn't close with but I saw occasionally, from a sudden heart attack. The second, a little over a week later, was my uncle (dad's brother and my godfather) after a LONG battle with various cancers but the final one was leukaemia, and he passed away this past Monday. This is the one that hit me like a freight train because I was very close with this uncle.
For context, PRIOR to all of this, I haven't been sleeping well since just before the time change for some reason – so about a month or two. I just can't sleep through a whole night anymore, and it's frustrating and leaving me exhausted for weeks on end (the insomnia is important to note and it will be relevant in a sec).
Last year I think it was, maybe the year before, my uncle was diagnosed with throat cancer. He had undergone months of radiation and it went into remission. Then about a year or so, it came back as a different cancer, but I can't remember which one it was. Half a year ago, he got leukaemia, and was undergoing chemo and blood platelet replacement therapy for a few months.
On Remembrance Day weekend (November 11), the family found out that there was nothing more they could do for my uncle's treatments. This was devastating news for all of us to hear. Of course we hoped he would be okay until after Christmas, but his prognosis was already less-than-2-months after that revelation.
A week later, my aunt passed away suddenly. No pre-conditions other than probably being overweight and a heavy smoker, but my cousin (her 17-year-old daughter) found her in her room. I am closer with the cousin than the aunt, so I was texted by one of my other aunts at 2am Friday morning to talk to my cousin, since I have gone through a traumatic sudden-death of a parent and this cousin trusts and relates to me. And the only reason I saw the text was because I was already awake due to my insomnia. I called the cousin and stayed on the phone for 6 hours with her to ensure she was going to be okay. I took the day off work to sleep.
Exactly a week later, my uncle was rushed to the hospital with a brain bleed and pneumonia. I was texted by a DIFFERENT aunt, this one being the one I am closest to and knows how close I am to my uncle, last Thursday. I found out on the Friday I took off of work that he wasn't going to get better, that the bleed was essentially killing him slowly.
This uncle, for outsider understanding, essentially became a second father to me after my dad died and I moved to be closer to his family. He became the parent my mother wasn't. This uncle ensured I was always okay, and would drop everything for me. So to say I was devastated to learn that I was losing him forever brought up a lot of core memories from when my dad died is an understatement. First, my aunt dying young, like my dad, from a sudden heart attack, like my dad. Then my father figure in my life dying shortly after? Lots of turmoil this past couple weeks for me.
On Sunday, November 24, I said my final goodbye to my uncle, and he passed away on the 25th. It hurts so badly that I want to scream non-stop. I took that Monday off to grieve, and worked from home the rest of the week to sit in my grief alone. One of the things I am so grateful for was that I was able to say goodbye to him, and to tell him how much he meant to me, how much I love him. It gave me a sense of closure that I didn't have with my dad when he died. One of my biggest regrets about my dad passing is that morning he died, I never said "I love you" like I usually did because I was running late for work.
I did not want to make that mistake again. I got to hug my uncle, and tell him I love him so, so much, and I got to thank him for always being there for me when dad died. That he helped me through my grief when I finally did break three years after he died.
I let him know he was loved; I am so grateful for that opportunity.
I miss him so much it physically hurts.
Just because his death was inevitable, it doesn't make it any easier. It feels different than my dad's death, for sure, in the sense that I lost dad too young and unexpectedly. But it still hurts to lose someone I love even if I know he's leaving us. I am just glad he's not suffering anymore; he was in immense pain when I saw him last.
So, this past week, I have been sitting in my grief, crying at mundane things because they remind me of him or things we did together. I've played video games to distract my mind, and tried my best to work on this blog, albeit at a minimum.
The surprising thing I think about this whole ordeal is the immense support I'm getting from my coworkers, and my employer's understanding about my situation. I have a job that's primarily digital, so they've let me take as much time as I need to feel up to working fully again, and I am just EXHAUSTED, but I want to try to go back to the office on Monday, to get back to the routines that make me feel comfort. Work has said that if I'm having a hard time I can go back home, which, again, is so generous. I was at a different job when my dad died, and they didn't want me gone more than a week. This has been literally 2 weeks non stop of me working / not working / working from home..... I just cannot wait until Christmas break so I can finally just REST. I am extremely lucky to have the job I have, and I am very aware of that. The fact that they're letting me have more grievance leave than normal for a non-immediate family member boggles my mind, but again, I am grateful.
So yeah, that's what's been going on with me the past couple months. It's been chaotic, I'm tired, and very very lonely. AND to top it all off, I'm feeling my seasonal depression seeping in earlier than normal because of all this stress and anxiety, and I just... ugh. I need to get back to routine.
This is also why I'm doing the Christmas cards this year... because I want to have a bit of happiness this holiday season in what will probably be even more depressing than normal. My Dad's death-iversary is on January 11, and will be 17 years since his passing. It will be harder to cope with this year more than ever now, I think. Best I can do is continue to talk to my therapist to keep me from sinking further, and not bottle everything all up like I did 17 years ago.
Thank you all for your patience and understanding. I haven't been "feeling it" these past couple months, and I know it shows in the lack of content I've been posting or producing. But I am so grateful to this community for understanding without the context y'all didn't have before now, and I hope you guys understand that I won't feel like myself again for awhile.
I'll try my best, though.
Love y'all. 💜
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CW: Cancer (Leukaemia), treatment, Terminal, family. Please read at your own discretion.
Unfortunately, we've had some very bad news about my mother's health. Her leukaemia hasn't stopped, and blood transfusions aren't going to be enough to keep her going. Her case is now terminal, and we can't put an estimate on how long she has left. I keep thinking that she was going to defeat cancer for the third time, but that won't be the case. Chemotherapy hasn't destroyed it completely, surgery's literally impossible, and bone marrow transplant isn't an option, as my mother isn't strong enough to handle the treatment.
As you can imagine, this has come as a shock for us. I feel like the reality of it all has just started to sink in. We've had a lot of family members coming to visit us, and it is really nice to have people that I trust over, it can be very tiring, not to mention that our family situation is very, for lack of a better word, complex. I am pleased to have been able to see two of my sisters (although I really only get on with one of my sisters now), my brother and my aunts. I haven't seen my brother in years, and neither has my mother. Everyone was here to support my mother, and I am grateful that she has that support. Both my mother and I have been referred to other services for support.
I don't know how we'll deal with this. Everything is everywhere right now. I just hope that we can get the support we need. I try my best to take care of her, but I don't know how I'll be able to keep caring for her. She usually only needs help with her balance, and sometimes getting around, but I know that she will gradually need more support. I don't know how I can help her. I struggle to care for myself, and I don't know how I can ensure that my mother is doing well.
Hopefully, with time and help, things will become clearer, and we can both be comfortable in this situation. Right now, though, everything is tiring.
~Oliver-Joseph
#oliver-joseph#mental health#physical health#cancer#leukaemia#terminal#terminal illness#physical illness#physical disability#family#love you mum
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cw medical shit
AAAAAAAAAAAAAAAAAAAAA i was meant to have a super important medical telephone appointment an hour ago. to tell me whether or not i have fucking leukaemia. but they just never called me!!!
i have been waiting for weeks for this appointment. going quietly insane. going in for so many tests that no one would tell me the results for. not knowing if i have cancer or not. spent the whole day today before this appointment thinking about it. obviously. and they just didn't ring me. and now it's past 5pm so the reception is closed and i can't get hold of anyone and i won't be able to until tomorrow. and even then................ when will they actually be able to see me?! i bet it won't be tomorrow if they reschedule.
i'm so. AAA. so anxious but also just numb. also i don't want to be percieved. no one look at me. i don't know what to do with myself i'm going insane. anyway. tbd i guess.
i'm going to start biting and maiming and clawing at the walls but not even in a good way
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Eternal rest grant unto her, O Lord
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Terminal | 16:22
Medtober day 2 (event by @page-doctor-bekker 🧡)
Time of Death!AU; Ava struggles to make the right decision
Word count: 1104
CW: ghosts be dead, there is a dead baby, cancer talk
***
Ava knew better, she really did, but that didn’t stop her from going to the ED. She promised herself it was just because she was bored, with no surgeries to watch in her OR for hours she felt her energy crackling like the campfires she would have with her friends back home. She needed stimulation and what better place to find something interesting than the emergency room.
The halls of Gaffney had finally begun to feel like a second home for Ava, no longer overwhelmed with the way her reality was slightly warped. She glided down the corridor comfortably now, slipping between nurses and watching as Doctor Charles shivered when she passed by him just a bit too closely. It was easy to forget how much she could still interact with the human world, especially with how much power she could feel just under her skin.
The ED was filled with life as always, yet it was also clouded by the weight of the other side. Ava had seen more spirits in this department than any other part of the hospital, somehow they all managed to come back to the emergency room even if they passed elsewhere. The wave of pain and fear that washed over her never failed to surprise Ava, though she had learned to ignore it for the sake of her stability.
There was one spirit she had trouble ignoring, though. One that always appeared like a little flash of blinding light. A pure soul, Jason had explained the light to her, someone who hadn’t done anything wrong in their life. It was near impossible to find a true pure soul, since most people had a couple sins under their belt by late childhood. This one was different, though, and Ava couldn’t seem to keep her attention on anything else as of late.
As chance would have it, she saw a flash of that light once again. She perched herself on a spare gurney, eyes tracking the man that the light always followed. Doctor Crockett Marcel, all southern drawl and confident eyes, seemed to be a pretty popular doctor since he showed up. Ava didn’t have a reason to hate him yet, though she didn’t really have a reason to like him either. She was more worried about his attachment, if she was being honest.
Eavesdropping wasn’t polite, she knew her mother would have chastised her for it even as a woman in her thirties. Still, it’s hard not to overhear everything when you’re a ghost stuck in a hospital whose walls hear everything. She had simply been floating around, trying to find something to do, and a familiar voice had caught her attention. It was Natalie Manning speaking to the new trauma surgeon, discussing something in hushed voices. Ava heard it all, though, and the story hadn’t left her mind since.
Harper had just turned one when the cancer took her, leukaemia ravaging her small body before intervention could help. Losing her had hurt Crockett far more than he let on, though Ava could feel it in the way his voice became guarded while speaking of his daughter. He wanted to protect her even in death, afraid that his memories could become tainted if in the wrong hands. Ava felt that way about her memories of Connor too, she knew it far too well.
After learning about Crockett’s daughter, Ava had trouble ignoring her. Jason said it was for the best, they shouldn’t interfere with a spirit attachment because it could harm the soul or leave them trapped. Especially for someone so young, telling Harper what was going on or why her dad didn’t pay her any mind would only damage her.
Still, she was only a baby and it hurt Ava to watch her like this. She was toddling after Crockett, watching him with big eyes as he instructed nurses to get labs and waved Will over to help with the transfer of a patient. She looked on the verge of tears, clutching onto a faded stuffed animal that seemed to resemble a rabbit. Wherever the trauma doctor went, so did his daughter, a little hand reaching out to grab the edge of his scrubs but always missing just by a thread.
It was heartbreaking, wishing she could just pick Harper up and hold her for a minute. Ava wasn’t necessarily a maternal person but she knew about sick kids, she knew they craved stability and just one good day. They never wanted to hurt and they always wanted comfort, especially from their family. She knew how hard this must be on the baby, stuck in an endless loop of trying to reach her father but missing him each time. Even as a ghost it would be so damaging to her psyche. Terminal cancer may be the worst part of being human, but the spirit world offered a never ending cycle of what if’s and pain.
“Ava, don’t do it.”
“She’s a baby, Jason.”
“She’s not your baby,” he said pointedly, materializing on the gurney to flank her right side. Ava rolled her eyes, annoyed at the way her friend always had a dramatic entrance in store.
“I know that,” Ava huffed before adding, “Don’t be an ass.”
“I didn’t do anything. You shouldn’t either, you know. Interacting with her will only make it worse.”
“She’s dead,” the blonde couldn’t tear her eyes away from where Harper stood against the wall and stared at a trauma patient her dad was working on. She looked terrified and it took all of Ava’s willpower to not let her energy go at the sight.
“So are you.”
“Yeah but I’m not a literal baby who died of terminal cancer,” she retorted, “We caused this for ourselves. She did not, she didn’t even have a chance to live.”
“And that sucks but there’s nothing we could do.”
“We could talk to her? Give her a real interaction so she doesn’t feel alone at least. The poor kid looks prettified, Jason.”
“It’s a bad idea,” he followed her gaze across the ED, “I know you care but you know-”
“Yeah yeah, the shadow people won’t like it and the hospital will react poorly if I get too upset or attached. I know, you’ve told me billions of times.”
“And yet you never listen.”
“Because she needs someone… she’s all alone and so am I; why can’t I just make sure she knows someone sees her?”
#this is so bad and so unedited <3#chicago med#ava bekker#jason wheeler#my aus#ghost!ava#ghost!jason#ghost!harper#16:22#time of death!au#medtober 2021#crockettstiddies#purple-dahlias
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(CW: me completely losing my shit re American politics)
Shouldn’t post about American politics on Tumblr - it’s just an echo chamber anyway. But fuck it, I’m angry.
You know what I am going to point out, that I’m pretty sure most Americans on Tumblr don’t know?
In Australia we have free health care, we have free education, we have a high minimum wage, we have straightforwardly available unemployment benefits, and we’ve got a strong, stable economy that made it through the Global Financial Crisis without going into outright recession. It works. It’s completely possible. There are problems, but the problems are things like “disability pensions being hard to access” and “18-month waiting lists for a free hip replacement” and “unavailability of healthcare if you live in a community of 200 people in the middle of the desert four hours from anywhere else”, not “kids being refused chemotherapy for leukaemia if their parents are unemployed.”
We’ve got our issues (see: government uselessness re bushfires), sure. Lot of stuff we need to work on. Which is why I keep an eye on local politics and do my best to participate in it. I voted against the current idiots! Didn’t work, but I tried! Next time I try, hopefully it’ll work!
We get four weeks paid leave per year. Government enforced.
Do you want that? Then start voting, and if there’s no good option then you vote for the least bad option to avoid getting the worst option. Do you want a life outside work? Don’t rely on your boss caring about you! Join a union, so that when you’re unlucky enough to get a boss who wants to mercilessly exploit you, you’ve got some ability to fight back! Unions can cause problems themselves, but complete lack of unions is a lot worse!
The world isn’t going to improve unless people actively improve it. Saying “I have a choice between a not-very-good politician and a spectacularly awful politician, so I refuse to vote because there’s no good option?” And letting the FUCKING HORRIFIC politician win because, ooh, none of the options were bright and shiny and pure? If you do that, you’re complicit in ruining your country.
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So sad!!! RIP Nicki Aycox!!
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I Would Sing You To Sleep
read it on the AO3 at https://ift.tt/XElKiQC
by HeavenInAHeartbeat
Something's up with Ian, and it's serious.
CW//lots of hospital visits, sickness theme, leukaemia
Words: 1462, Chapters: 1/?, Language: English
Fandoms: Shameless (US)
Rating: Teen And Up Audiences
Warnings: Creator Chose Not To Use Archive Warnings
Categories: F/F, F/M, M/M, Multi
Characters: Mickey Milkovich, Frank Gallagher, Fiona Gallagher, Monica Gallagher, Terry Milkovich, Iggy Milkovich, Joey Milkovich, Colin Milkovich, Mandy Milkovich, Lip Gallagher, Carl Gallagher, Ian Gallagher, Debbie Gallagher, Liam Gallagher (Shameless US), Samantha "Sammi" Gallagher, Sheila Jackson, Karen Jackson
Relationships: Ian Gallagher/Mickey Milkovich, Fiona Gallagher/Jimmy Lishman
Additional Tags: Cancer, Mentions of Cancer, Leukemia, Angst, sickness theme, Fluff and Angst, Sickfic, Sick Character, Hospitals
read it on the AO3 at https://ift.tt/XElKiQC
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#Assad#Bashar al-Assad#Asma al-Assad#Assads#Syria#leukaemia#leukemia#acute myeloid leukaemia#acute myeloid leukemia#cancer#tw: cancer#tw cancer#cancer tw#cw: cancer#cw cancer#Ebrahim Raisi#Hossein Amir-Abdollahian#Hossein Amirabdollahian#Iran
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I wanna cry in happiness but I can't because my emotions are all messed up about the whole leukemia thing. I've had good news!
My latest BCR-ABL test is showing my counts of those cells in my blood to be just 4.5%!! That's REALLY good.
My timeline of my blood cells that were leukemiaed:
19th of Feb '24 = 21%
1st of Mar '24 = 47.8% (yes that's 11 days later, yikes)
7th of Mar '24 = 1st dose of Dasatinib medication taken!
9th of Apr '24 = 4.5%
I am officially kicking leukemias BUTT! ... Well I mean obviously the medicine is. But I'm helping a bit, I'm sure!
Also I have not missed a SINGLE dose, not even on my worst days - as a sad disorganized ADHD lady that's no small feat!
*wraps arms around my knees and hugs myself happily*
*whispers* I'm gonna make leukemia my bitch
#personal#journal entry#journal#leukemia#chronic myeloid leukemia#leukaemia#tw cancer#cw cancer#blood cancer#BCR-ABL gene#philadelphia chromosome#dasatinib#cancer survivor
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illness cw///
my mum told me a few days ago that one of the kids i used to babysit was diagnosed with leukaemia and i’ve only just wrapped my head around it
#illness cw#cancer cw#notions#i literally spent a summer with this child and it was so nice#god i think he’s eleven now?
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A few thoughts of mine
So I recently had an appointment with my psychiatrist, which went well. I discussed about my feelings of gender dysphoria, which he did listen and understand what I was explaining. I had to see my GP about it, who referred me to gender services. Who knows how long that will take to hear anything.
I tried to talk about my trauma from my childhood, which was very difficult. I couldn’t bring up what my main concern was, as I just got too anxious, and perhaps my trauma and paranoia was getting to me. Maybe I’m not ready to talk to him about it yet. He asked about how I felt about the mental health services I was receiving. It was a relief that he wanted to ensure that I was okay with everything.
CW: Cancer (leukaemia), family, struggling, mentions of death.
So there has been a development in my mother’s treatment. She decided to go for the chemotherapy. It’s very intense, and she understands the risks, but she decided to take that risk. The way she explained it to me is that it’s “kill or die”. Either she finishes the treatment cancer free, or she… doesn’t make it. I understand and respect her decision, but it is still very scary. We don’t know the odds either way for certain yet, but it is all still so scary. I don’t know how I will cope if the worst happens. My mother contacted a friend of ours (when we moved, she was someone we got to know very quickly, and has supported us throughout this), who has accepted to inform me if the news does come to the worst. I can’t stop thinking about it.
Our system has been struggling with this a bit. I haven’t heard the others much recently, but this has happened before, so I’m not too worried about it. I don’t know if it’s because we’re around people who don’t know about our system, or if the others are coping in their own ways, but I trust Kirie to keep everything balanced and to take care of the system. She has always been there for us, and I know she will be there. I just keep worrying, and I have a lot to think about.
~Oliver-Joseph
Our system is struggling. I haven’t heard much from the others for a while now. I don’t know if it’s being with people who don’t know about our system, or if everyone is trying to cope in their own way. I’m not too worried about it, something similar has happened before, and I trust Kirie with everything. She has always been there, and I know that she knows how to keep things balanced. When my mother will be admitted, whatever happens, the weeks will definitely drag. I have so much to think about.
~Oliver-Joseph
#oliver-joseph#mental health#personal#cancer#leukaemia#physical health#chemotherapy#mental illness#system#struggling
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Syrian First Lady Asma al-Assad has been diagnosed with acute leukaemia
Today, a video was posted where Asma thanked people for their heartfelt messages and how it has helped her family. She then spoke about how she is going into isolation for treatment, which means being away from her loved ones. She also said that she will fight this battle with full faith in God and with people's love and prayers
Asma was sitting behind a family photo, which was taken in Aleppo in July 2022
#Asma al-Assad#Syria#leukaemia#leukemia#acute leukaemia#acute leukemia#acute myeloid leukaemia#acute myeloid leukemia#cancer#tw: cancer#tw cancer#cancer tw#cw: cancer#cw cancer
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