#chronic tiredness

[fanaroff]

I hate the struggle with chronic illness. I hate being tired all the time. I’ve spent what feels like days just sleeping because my body has decided that’s what needed and I haven’t been able to get done what I need to.

I want my energy back. I want to stop feeling like my life is being taking up by something out of my control. I want my control back.

[weirdly-specific-but-ok]

weird post inspired by crowley's walk but kinda sad what is this fandom doing to me

Okay, I was watching a bunch of compilations of Crowley's walk (don't look at me, you've been there) and I had a thought that I sincerely doubt was anyone else's first thought looking at them walk.

It was more specifically that scene, you probably can see it right now, when they get out of the throne-chair hip first, so absolutely fluid, and saunter off.

I wanna be like that. I want to be that light on my feet. I feel that every time I watch the recordings of plays especially musicals, looking at the theatre actors, and yep, I know David Tennant is one too. And it's not just because I've always wanted to do theatre but never have, though that is true.

(TW: uh, talk of being tired/ill, I want to put the warning just in case)

It's because I'm not very well, and I haven't been for a while. Nothing serious, I don't think, but I have very low stamina to start with, and because of medications for my mental health I'm always so tired. Even standing up or walking without waiting a whole minute can make me dizzy enough to flop right on the ground. Even when I (probably) had COVID a couple of years ago, my main symptom was intense, intense tiredness. A few months ago, I had a viral while living alone, and had to crawl my way around (hehe crawl) (this is the state of my dark humour, I am sorry).

And watching Good Omens just reminded me of everything that I want to do, looking at them dancing around rooms and racing in cars, walking through streets for ages and sitting on the arms of chairs. The show is just so filled with life, sprawling in bathtubs and driving through the English countryside, children running around and on rope swings, desperate kisses and reading in a bookshop.

And I want that so, so much.

I want to be able to spring up from chairs and be around human beings and saunter around the city. I don't want to be sleeping through more of the day than I am awake for.

Anyway, just thoughts.

But I do want to take this post to give some love to all of you, and special love to any of you who are struggling with illness. Chronic illness or otherwise, mental illness or physical illness, just any illness. Even if it is just that heavy, heavy tiredness, that we know all too well. When I studied disease, it was broken down into its roots: dis and ease, a lack of feeling at ease. And I am reminded of that one post I saw about chronic illness, and I'd like to say what I read there to you all:

"I hope the pain eases soon."

I know that life is waiting just outside this screen, but as long as I am too tired to go out to meet it, I'm so grateful to this show, to this fandom, and to all of you maggots for bringing life to me. The loneliness has eased since I've been here, and the smiles are a little more often, the tears a little less.

And I think that's really quite wonderful.

[iamyouknow-yours]

Thinking about starting a tally about how many people see me with my cane/scooter and feel like it's okay to ask me "what's wrong with you" or "what's with the stick"

Maybe I'll buy myself a chocolate or something when I hit a certain number. 50? What do y'all think?

Right now (from what I can remember, I have a terrible memory due to my Problems™) we're on 11. I started using the cane in like September ish I think. And I don't go places very often.

Maybe I'll start a separate tally for people who refuse to call it a cane or even a walking stick and just call it a stick

To be clear, I get it you're curious. But god can you not? My best friend's cousin who is 12 has more self restraint than any of the fucking adults who have asked me this. He took my best friend aside and asked why I use my scooter. I didn't even notice him doing this because he was fucking discreet.

I'm aware there are things "wrong" with me, can't you even put in the effort to have 5 minutes of regular conversation with me before asking at least? It's always the first thing out of these people's mouths after a greeting.

[seaofreverie]

Thank you sparks for the ominous ticking noises they've made me happier than i've been since hearing my favourite song played live in front of me two months ago

[konbupie]

ehehehghjfgsj coquettezai i did for a dtiys on insta 🎀🎀 hes so silly + chibi skk because i feel the need to make everything skk related

[uta-no-fakku-sama]

[burningsolarsystem]

How do people work a job AND be productive?

I don't even work the "usual" full 8 hour shifts and by the time I get home, I'm exhausted. I tend to just come home and "nap" (more like 2-3 hours, more than a nap) on the couch and/or scroll on my phone. Not taking a nap means becoming really tired to the point getting up to go to bed is a hassle.

Not like napping makes it any better. I still wake up tired. And then I don't want to go to bed because I wasted so much of my free time. (I still do go to sleep because geez I need my sleep at night. 1 hour short and I'm dead on my feet the next day.)

And weekends are wasted because I'm tired. And by the time I even start to feel rejuvenated, the weekends over.

Meanwhile, I see people going to work and then, go out afterwards? Some people actually do things after work and I'm like, how? How are you not tired? Or at least how do you push through the tiredness?

And then, on top of all that, they also do things on the weekend. Y'all cleaning and shopping and making plans on the weekends and still can go out after work to run errands and hang out?

Because geez. I don't know how people can do it.

So, like, how do you guys push through the tiredness and get things done after work?

It's probably a lifestyle thing I'm failing at, but I would love advice.

[weirdstrangeandawful]

TW: chronic illness

Tiredness vs fatigue.

These are not the same.

When you're chronically fatigued, you are beyond tired. Beyond desperately tired even. You have no hope of not being fatigued. I am writing this hypomanic but physically my body will not let me function. Whether I like it or not. I cannot "power though it" like I can with tiredness. I am invisibly restrained. I am pinned.

[theelectricalcity]

most of the people in the system: *can't deal with our chronic fatigue for more than an hour at it's worst*

my co-host: *chronic fatigue holder and just always tired*

me: *just kinda deals with most of our issues*

both of us: *on our way to barely hold it together, but just enough that we're a mostly functional person*

[bug-hearted]

wip (there's a 50/50 chance i'm gonna finish this either in a week or in 3 months)

[jurisharma5]

Chronic Fatigue Syndrome 😔

Hello everyone! Have a wonderful and safe day 🙋🏻 Chronic Fatigue Syndrome: It is a disorder, relatively unknown to the public and even to the medical fraternity. It is a progressive, multi-system functional disorder involving the Neurological, Immune, Endocrine and digestive systems. As more and more cases are emerging, the diagnosis has now been established. This condition is also known as…

[autistic-autumn]

hi can my medication please stop making me sleep 12 hours a day this sucks

[fantastic-mr-corvid]

Timing my work for comms has made me realize that im actually really fast at drawing portraits [Yippie!] but also that my main obstruction to making better drawings is spending more time on them and i just dont have the spoons at the moment. Which unfortunately isnt something i can just do studies about...

[toomanyacronyms]

I was talking to someone on Discord and I might have something I swore up and down I didn't have. I might indeed have Chronic Fatigue Syndrome. I'm making an appointment with my primary care provider to talk about that, a wheelchair assessment, and just overall symptom management.

[lazy-toad]

The thing they don't tell you about not drinking as a teen is that you will get embarrassingly fucked up after three entire drinks

[autistic-katara]

why am i so tired ive done literally nothing today???