#autistic spoonie

[glitchdollmemoria]

oh hey btw, apparently tumblr mobile now has an option to report ads for having flashing lights, if you click the three dots in the top right corner it should show up. not sure how long thats been there but i dont remember it being there at least a few months back, i would venture to guess it came with the recent update but shrug. fucking ridiculous that they cant just not put flashing ads in our faces in the first place, but at least this is an option.

people who dont have issues with flashing lights are allowed and encouraged to reblog

[spookietrex]

[yellow-dress-basil]

QUICK PSA FOR THE DISABLED COMMUNITY

If you take any daily medication, do not eat grapefruit or activated charcoal unless you know for a fact they won’t affect your medication.

Both Grapefruit and Activated Charcoal will cancel out medication.

‘Where would you ever eat activated charcoal?’ You may be asking

Well

Halloween eve is here y’all and if you want a black cocktail or cupcake, it was probably made black with activated charcoal! So please double check before consuming!!

[stellaltumi]

stop villanizing disabled people. stop assuming we're just being lazy. stop assuming we could be trying harder. stop assuming that we'll "feel better" in a few weeks. stop assuming that we have the same energy levels as everyone else. thanks for coming to my ted talk.

[audhd-space]

Alt Text / Image Description below

To do or not to do?

Pacing and Activity Decision Chart*

A. Will it cause so much pain or fatigue that I can't function for days?

If NO then :

B. Given current symptoms will I be able to complete the task?

(If you answer YES to question B go to D, if NO then go to C)

If YES then :

C. Can I make it manageable by:

Splitting the task into smaller sections?

OR

Using an adaptation or aid to make it easier?

OR

Asking for help with challenging parts of the activity?

(If you answer YES to C go straight to D)

D. Is there enough recovery time between now and when I next need to function?

If you answer YES/PROBABLY to D then LET'S DO

THIS THING!

If you answer NO to both question C and D then:

Best not. It's OK for an emergency, but not for routine tasks.

Disclaimer:

*A simplified version, The full version would fill a book. Process varies between individuals.

**Most activity can aggravate symptoms, so it's not about avoiding pain and fatigue, but trying to keep them manageable. Trial and error is required to find this level and it can change over time.

StickmanCommunications.co.uk (HMSA)

[crazycatsiren]

Don't derail posts about physical disabilities to try to make them about neurodivergence. Just don't. Nobody's saying being neurodivergent doesn't count as being disabled. Plenty of us physically disabled people are also neurodivergent. But let people talk about things, and make your own posts for what you want to talk about. Some things are just not about you, and that's ok. That's going to happen.

[rainbowchihuahuabunny]

Every day I am brutally reminded in one way or another that this society isn't built with disabled people in mind

[neuroticboyfriend]

pro tip for disabled people (especially autistic people) that i just realized after literal years of chronic illness...

when a health professional asks how you're doing, it's not small talk. they want to know how your health has been. do not reply "good." if you seem them for chronic pain, talk about your pain. if you see them for mental health, tell them how you've been feeling. etc. etc. again... don't reply "good." jump right into it and be honest about your health.

[21stc3nturyd1gitalb0y]

happy disability pride month to disabled people who were scared to call themselves disabled

happy disability pride month to disabled people that don’t prioritize a cure or diagnosis

happy disability pride month to ambulatory aid users/people with invisible disabilities who have had the validity of their conditions questioned

happy disability pride month to disabled people with medical trauma

happy disability pride month to disabled people who have struggled loving a body that doesn’t always support them

happy disability pride month to people with chronic illness who felt they had to hide or minimize their pain in order to be liked

happy disability pride month to disabled people who were bullied or harassed for their disability

happy disability pride month to disabled people who have been criticized for speaking about their disability “too much” or “making it your whole personality”

happy disability pride month to disabled people whose disabilities are messy, chaotic, and difficult for abled people to understand

happy disability pride month to disabled people who thought they could never live a happy, fulfilled life and are doing so anyway.

[insert-name-heres-things]

Happy Disability Pride Month!!!

Remember Folks:

- SELF CARE IS NUMBER ONE

- Use your spoons sparingly! Here’s some spoons to go: 🥄🥄🥄🥄🥄🥄🥄

- Clean your mobility aids! (Seriously dude when was the last time you wiped that shit down with an antibacterial?)

- Accommodate yourself, as others will follow.

- Make goals within your reach and abilities

- DO YOUR COPINGS SKILLS

- Remember to stay hydrated and take your meds!

- For my fellow heat sensitive homies, stay cool this summer! A cold rag draped behind your neck, airy clothing, a small portable hand fan, keeping ice packs ready, cold water and expecially cold electrolyte drinks, all do wonders!

- For my fellow autistic folks, don’t be afraid wear earmuffs, stim, use chew charms, whatever it is that helps you regulate. You don’t have to mask if it’s something that isn’t benefitting to your life.

- POTS havin mofos like me, salt the ever loving fuck out of your food. Try different foods with salt, such as fruits and vegetables! I’m currently eating a salty tomato. Drink lots of water, I’ve been aiding gateraid packets to my water and it’s made a HUGE difference, especially as someone who hates drinking water.

- Those with PTSD for whatever reason, I wish you safety and support as you learn to cope and hopefully heal.

- I don’t know exactly what to say to others with H-EDS, as I’m still understanding this disorder other then BE CAREFUL WITH YOURSELF THIS PRIDE MONTH. I swear to god we are the most accident prone mother fuckers lmfao-

- If your immune system is all fucky like mine, keep clean and be sanitary, communicate with others that if they’re sick you can’t be around them, and wear a mask if you feel like that’s the right option for you. In my hometown I’ve gotten yelled at more than once for wearing a mask post-covid, however you can’t let someone else’s ignorance result in your own suffering.

- Don’t forget to move around and stretch! A little movement can do a lot for your body.

- Check in with your disabled friends! Try and see if there’s any way you can help one another, see where both of your strengths and weaknesses lie, and swap some spoons!!

- Be aware of what triggers your disorders. Whether if it’s caffeine triggering bipolar episodes, the weather causing fibro flares, big changes causing meltdowns, overexerting your hypermobility, whatever it is, it matters. Listen to your body and mind.

- Don’t be afraid to call out that doctor who isn’t listening, dismissing your symptoms and medically gaslighting you.

- While it may not seem like a big difference for some, trust me when I say your appetite is so important! Remember if it comes down to it, that it’s better to eat something, ANYTHING, than nothing at all. 

- To that person who might be hesitant, ashamed or might be questioning wether or not they should use a mobility aid, if it’s the difference between you being stuck at home vs going out and living some life… USE THAT MOBILITY AID!!! Same goes for braces and any other tool that may help you live a better quality of life.

- Be accepting towards those with disabilities different then your own- remember this month isn’t a competition about who’s struggling the most, rather to understand that people of physical, psychological, sensory, neurodivergence, and even undiagnosed disabilities all share one thing in common.. WHICH IS BEING DISABLED!

- Doesn’t matter who you are, how young or old, black or white, thick or thin - the disabled minority is one you can end up becoming a part of at any time, and likely will if you live long enough. Disability doesn’t discriminate, so EVERYONE should be advocating for disabled people’s rights.

- And of course, have pride in being disabled. This shit is fucking hard, but if you’re reading this, you’re doing it. Just being here today and doing what you can handle or manage, is doing your best, and that’s enough. You don’t have to push yourselves to impossible lengths to be proud of yourself.

Here, have the disability pride flag:

[atley01]

To all my Disabled friends;

fakeclaiming yourself will only result in the further deterioration of your health

I was having a good run of things with my physical health and thought to myself, "Maybe I'm cured!/ was faking all along!" Only to overdo it, and now I am in a pain flare up thats gotten worse as I type this out because once more, I ignored my symptoms the first time and am FORCED to do nothing until I feel better.

Do not wait until your symptoms are the worst they possibly could be until you pay attention to them. You are only doing yourself a disservice

[monachopsis-11]

People always talk about how childhood autistic traits can be troubling and problematic for people (especially allistic parents) but how about ways childhood autistic traits can be helpful and convenient for parents? I’m putting some examples below from my childhood.

- my need for routines was helpful to my mom and made her life easier

- my ability to hyperfocus on interests and solitary activities allowed my parents to attend to my sister

- my preference for being with adults who were more predictable made me easier to handle

- I had a very strong internal sense of right and wrong that made me easy to reason with as long as I was given a reasonable explanation

- my difficulty expressing my emotions and internalizing them instead made me seem low maintenance

- compared to my sister who is very reactive my atypical responses weren’t noticeable

- because I was so independent I was easy to leave alone and overlook

- because my traits weren’t disruptive to my parents I was just seen as ‘mature,’ ‘smart,’ and ‘an old soul.’

- even though I was only social when people interacted on my terms I didn’t avoid people so I wasn’t seen as antisocial

- I talked so much that if I had a day I was struggling no one noticed because they were just used to me being chatty

- I had a decent early childhood before things got really challenging so my meltdowns weren’t bad or often at that age

- by the time I was at an age where those things would stand out I was more prone to disassociation and then having a meltdown when I was alone so they didn’t know

If anyone has any childhood autistic traits that were convenient to their parents and overlooked because of it please let me know in the comments! ⬇️

[jadwiga-abremovic]

You don't have to be fixed, corrected, medicalized and healthy to be happy and loved.

[tofu-bento-box]

with this neat trick you too can turn minor blemishes into scars that’ll last decades

[anothersssarchive]

Autistics deserve time to recharge from social situations

Spoonies deserve time to recharge from social situations

Anxious people deserve time to recharge from social situations

Does anyone need time to recharge from social situations? Give them their time. We need it

[clownrecess]

You are not gross, or bad, if you struggle with hygenine. Its okay! Last night I brushed my teeth, which was a big achievement for me! Whatever achievement you made, I'm proud of you. And if you didnt make an achievement, I'm still proud of you. I love you so much, and your ability to take care of yourself is irrelevant to that love. /p