#This post is about wanting to lie in bed

[bookoramaenderteeth]

Can't even exist in multiple simultaneous contradictory states any more. Because of woke.

[koqen]

⠀⠀EAST 2 WEST⠀⠀…⠀⠀Mic Check!

[swinging-stars-from-satellites]

to you (unfinished, off the top of my head) x Fall Out Boy lyrics

in order: (Coffee’s For Closers), Sugar, We’re Going Down, CFC, Thriller, Miss Missing You, w.a.m.s., I Am My Own Muse, w.a.m.s., Favorite Record, CFC

[thedisablednaturalist]

Tw for weight loss mention

The whole exercise will cure your disability thing is a fucking joke. Yes exercise is beneficial for your health, but only if you aren't already on shaky foundations. You need to be on a treatment plan that WORKS before going into the maintenance phase. You wouldn't do regular maintenance on a broken item, you'd work on getting it up and running first. And maybe it would even need specialized maintenance afterwards if it's especially fragile.

I have fibromyalgia and acute degenerative disc disease. My immune system attacks my nerves and discs in my spine are slowly calcifying and causing the bones to constrict and damage my nerves (i think thats how it works). I have days where it feels like my body is on fire from nerve pain and days where it feels like my spine is about to rip from my back. And days where I have both (like today!). I get numbness in my hands and feet. I have horrible migraines. I can no longer walk unaided more than maybe 5 minutes without severe pain. I have something wrong with my knees and hips but the doctors don't know what yet.

You'd think I live an obviously seditary lifestyle correct?

Hell no.

I walk aided on average 6 miles a day over difficult terrain OUTSIDE of regular activity almost everyday. My legs are muscular and strong. I get my heart rate up and a good sweat, like all the gym rats swear on. I am often doing physical labor such as weeding, digging, sample collecting, pruning trees etc.

I'm not saying this to make other disabled people feel bad or prove that they can do anything if they just tried harder. This is an extremely painful lifestyle I've chosen that takes a lot of lifestyle management AND BOUNDARIES to keep up with the work. I also have an extremely forgiving boss who is also physically disabled and knows what I'm going through (deciding between your passion and your health and having to do so each and every day) No one should ever be expected to do what I do. I'm not even sure if I should be doing this myself.

This is to prove that exercise? Has not cured me. My muscles are strong but still hurt as if they're broken and I have to take more breaks than my coworker. I am constantly getting out of breath and I flare up regularly if I'm not careful. I am in excellent physical condition outside of my disabilities. I go to different doctors several times a month to get checked out.

I previously went through a diet program and lost a lot of weight (basically starving myself and got off my depression meds which cause weight gain but are also the only ones that work) and guess what? That didn't do shit either!!! I still felt horrible!!! I've since gained back the weight anyway after switching to focusing on adding more nutrient dense foods than taking stuff away from my diet (also muscle weighs more than fat, and fat helps cushion my aching joints and spine).

The muscle doesn't do shit for my disabilities outside of maybe some stability. Exercising everyday doesn't make the pain go away. Without my medications and aids and nutrition plans and steroid injections and spinal adjustments and physical therapy (that takes my fibro and spine into account) and alternative work methods I WOULD NOT BE ABLE TO DO WHAT I DO. Exercise alone is like trying to make a car run with no oil. Yes it'll go but it'll get more and more damaged till it can't and will need its entire engine replaced!

And yet I see new doctors and they look at me and the first thing out of their mouths is do I exercise? I should try doing a little every day :) and then i fucking blow their minds when I tell them about my job. No longer can they use that fucking cop out on me. I've been through this rodeo. Ive tried their suggestions. If you are in pain and nothing is helping? Exercise ain't going to do SHIT. You need to get to a point where you can move without severe pain first (if that's even possible). Then and only then should you consider implementing regular exercise if you can. Also weight loss talk is a red flag and a cop out. They made me lose 50+ lbs before they would look into the reasons behind my pain. Weight loss did nothing for me and exacerbated my pain.

I am living proof that all that shit is a lie and a cop out. That is the point of this post. I cannot believe people with serious medical conditions are being forced to put their bodies through extreme duress just to be believed. You are not disabled because of laziness or because you sit a lot. Plenty of people live seditary lifestyles and do not live in constant excruciating pain (they may develop disabilities later in life due to this however, and should be doing preventative exercises to maintain their health)

Please, share my story with doctors. Use me as an example. I am proof that "exercise first treat later" does not work. I should not have had to wait years to have my pain validated. I'd rather hundreds of fakers get (what? A blood test? An MRI?) than one chronically ill person get told to try yoga and go away by a doctor.

[coriander-candlesticks]

Sometimes your Mental Illness™ is kicking your ass and all you can do is offer the first hot, non-leftover meal you managed to prep in the day at 10:30 pm to Apollo & ask for help getting to *and* getting through your appointment tomorrow and that's okay

[cobra-creampuff]

we went over the 14yr long torture session in my last therapy visit actually, and i told her that toward the end i was fantasizing about and then actively considering walking into traffic because if i got catastrophically injured then they would have to treat my pain. and she told me that's not an uncommon thing for people to do. that she has heard that many times before.

like think about that. we are so moralistic about drug use and have politicized a particular type of medicine so much, and doctors are so uncompassionate toward and even suspicious of patients who are in pain because of it, that it's NOT UNCOMMON for people who are otherwise not suicidal to start completely genuinely longing to get hit by a fucking car just for the chance to be oh so graciously provided the absolute bare fucking minimum of care.

think about how many different things have pain as a symptom. how many things have pain as the only symptom the patient is aware of. how many of them are life or death crises. heart attacks. blood clots. strokes. bleeding ulcers. those are just what i can think of off the top of my fucking head, AND I'M NOT A FUCKING DOCTOR.

what i had, for example, feels exactly like appendicitis. and they left it for fourteen years because my only symptom was excruciating pain and i didn't fit their stupid little (completely unsupported by evidence, btw) diagnostic mnemonic. if it had been appendicitis, or anything else as immediately deadly that "just" hurts, i would have fucking died the same night i got sent home from the emergency room with "medical" "advice" to take some tylenol and rest - for the first time, that is. out of dozens. how many people do die that way?

because addicts are Bad. and because doctors are too arrogant and biased to practice medicine on the basis of evidence and informed consent when the profit model and conservative propaganda make it soooo easy to stay in the good old days of paternalism instead.

[minimallycreative]

i dont want to

[orange-orchard-system]

I'm not mad about it, but it's estranging sometimes to see a lot of godkin posts that have either a Christian or Greek aesthetic to them when I'm of a very different sort of god. It's like walking into a classroom for algebra lessons but instead the professor's teaching geometry. Yeah, it's all math, but this is absolutely not at all what I'm looking for.

[infraredss]

im like "i dont need to rush into a relationship rn :) being single is fine" and then like 15 mins later its "IF I AM NOT HELD AND KISSED BY ANOTHER WOMAN I WILL INCINERATE MYSELF" . somebody save me

[iliveinprocrasti-nationn]

one thing abt being disabled/chronically ill that some people don’t get is that sometimes body maintenance that ensures you have the absolute minimum amount of function can also be something that takes away a lot of control and autonomy. you can argue till the cows come home that making those decisions to try and help yourself (or realistically to try to make sure things aren’t worse than they already are) is something that exhibits control and autonomy and stuff, but they can be so limiting in practice because they’re things that take up so much time but have to be done to do anything else

[critterchitters-closedcaptions]

trying to decipher if the overwhelming dread & Thoughts are cause of the state of the world or cause i need a shower.

vent post in the tags. idk. do whatever 👍

[chainsawworld]

Oh g-d I've been withdrawing

[running-in-the-dark]

the thing is. I've said many times that it'd probably be better if I didn't post on here so much, especially when I'm not doing so great. it does not feel good. but. when I don't, it just all stays inside my head and it feels so much worse for far longer, so I really just don't know how I would cope without this.

[diwns]

all of the fonts i frequently use i don't have them on my laptop.. and everything else

[physics-dirtbag]

venting, i suppose (tw)

Another thing that sucks about being chronically suicidal is that when you finally start to see the light at the end of the tunnel, you remember how much work, chores, etc. you put off when you were trying to decide whether or not to remove yourself from the planet

Like I need at least a week or so to rest and remind myself of the good parts of being alive

[dolla-dolla-yeah]

In the nicest possible way, what the hell are these