#TW: end of life care
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jawritter Ā· 2 years ago
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Story time?
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You guys know when I have a tough time dealing with things, certain things going on in my life, I write about it to vent it, and it works for me. Well, I need to vent for a minute. Iā€™m not looking for sympathy or anything like that, I just need to get this out on paper to work through it. So, here I go.Ā 
When I turned 18 years old, I went to school to get my CNA, and then immediately started working as a homebound caregiver, or as we call it down here in the south, a sitter, for the disabled and elderly. Basically, I come in and sit with them during the day and help them feed themselves, clean themselves, clean their homes for themā€¦ basically I do for them during the day what normal people would have done for themselves if they were able. I even go shopping for them/with them, if need be, and take them to doctorā€™s appointments as long as they are able to move around some on their own, and are not on hospice, (end of life ā€˜comfortā€™ care).Ā 
When I got pregnant with my first child, I decided not to do it anymore, and just stay home with the kids until they were old enough to go to school instead of paying for childcare while my husband and I both work. Financially it just makes more sense for me to stay home. Also, while this job is not a nursing or doctorā€™s position, itā€™s stressful and emotionally taxing. When you sit with someone day in and day out, whether you want to or not, you get attached to these people, and when their lives are over, and they are no longer here, sometimes it seriously feels like you're losing your own family.Ā 
Recently, and some of you may remember me talking about it a little, I started up again when both my girls went back to school. I like to take care of people, itā€™s just my calling, itā€™s what I do; no matter how hard it is. My first patient that I was sitting with made their transition from this life to the life here after (whatever that might be), and I took a few weeks break before I allowed myself to be assigned with another patient.Ā 
This is where the part Iā€™m struggling with comes in, so here we goā€¦
Yesterday, I met my next patient.Ā 
They told me his name was Austin. That heā€™d been disabled after an accident offshore, and that he now needed a sitter, seeing as he was a single male, who was currently unable to walk and take care of himself. (Iā€™m paraphrasing obviously for privacy reasons and to make this understandable for people that do not work in this line of work.)
Iā€™ve taken care of men before, thatā€™s not something thatā€™s bother me and never will. Still, thereā€™s one thing that got to me when I read it in his chart, itā€™s the fact that he is only 43 years old.Ā 
Iā€™ve never had to take care of someone that young. Most of the time, when we step in, the patient is in the twilight stages of life so to speak. This guy, well, they warned me when they gave me the file, might be a patient of mine for a LONG time to come.Ā 
The accident only happened less than three months ago, and heā€™s in physical therapy currently, (which is something I will have to take him to). But he canā€™t bathe, cook, or clean for himself at all currently. He only is mobile, basically above the waist for the time being, and with no immediate family that lives close by, if he wants to stay in his home, this is his only option.Ā 
I met him for the first time yesterday. I go in today when the transport drops him back at his home from the nursing home (thatā€™s where they had him for the beginning of his physical therapy after leaving the hospital), and thatā€™s when my work begins. I sit with him Monday - Friday, 6:30 AM to 7 PM in the evenings. (Another CNA is scheduled for his night shifts and weekends unless we need to swap up for some personal reason).Ā 
Heā€™s so handsome, and young, and itā€™s not fair that his life has suddenly come to a screaming halt. Itā€™s just not fair.
Heā€™s still learning to cope with it too. Heā€™s not really opened up to me yet, and thatā€™s gonna be a challenge. Heā€™s not happy with the situation heā€™s found himself in. (Who would be?) This might be the toughest thing Iā€™ve worked on to date.Ā 
Iā€™m still gonna write, Iā€™m still gonna be on here updating as much as I can. But please understand if updates come a little slowly at first, or if it takes me a little while to answer ask or something back. Iā€™m not ignoring you, Iā€™m just working, and Iā€™ll be on as soon as I can.Ā 
Okay, Iā€™ll get off my pity party and get ready to go to work now, and if you made it this far in his too long vent session, thank you, youā€™re awesome!Ā 
--Jen
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tsuutarr Ā· 1 month ago
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Yandere! Love God x Reader
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Soulmates do not always meet in every lifetime. Sometimes, a person may become a bird that soars the skies while their soulmate becomes a fish that swims the depths of the sea. Other times, a person may become a little flower in a field while their soulmate becomes a large cactus in a desert. More often than not, the stars must align for soulmates to meet in a single lifetime.
You, however, are the exception. You will meet your soulmate in every lifetime for as long as your soul exists.
After all, your soulmate is the God of Love, an immortal being that ensures that you will meet in every single lifetime.Ā 
It doesnā€™t matter if youā€™re a little plant, an animal, or a human ā€“ heā€™ll always find you and love you. When youā€™re not there by his side, he patiently waits for the glow of your soul to return to the mortal realm.
Itā€™s become a pattern of his, a habit. When you leave his side due to your lifeā€™s candle burning out, his world will be drowned in grayscale and monotony. He goes about his days without much care for anything, his duty taking the forefront of his mind.
But when you reincarnate, your soul colors his world with his love for you, brightening up his days. To him, it doesnā€™t matter what you are, just that you are ā€“ that you exist. Your existence takes the forefront of his mind, his body, his soul. He devotes everything to you for as long as he can, eager to dye you in his colors in every one of your lifetimes.
It doesnā€™t matter that you donā€™t remember him ā€“ heā€™ll remember for the both of you, filling pages and pages with his memories of you. It doesnā€™t matter that he has to start all over again in every single lifetime ā€“ heā€™ll gladly fill you with his love for you over and over again. Because, to him, you go beyond just being his world ā€“ youā€™re his universe.
So, for most people, the stars must align for soulmates to meet in a single lifetime. But for you, your soulmate forces the stars to collide so that he can draw your constellation next to his again and again for the rest of eternity.Ā 
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iliothermia Ā· 9 months ago
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I won't be able to finish this drawing before the convention, which will take up my next 5 days.. But I want to talk a little about him.. I've been thinking about golems and Frankenstein, and the trans body, projection and misunderstanding, villainization and death.
The concepts of Frankenstein's monster and the golem have been swimming in my head for a while, and their lore intertwining.. The tragedy of existing being seen as a monster no matter how you try,.. And the Golem, a protector of his people and a servant whose only flaw always rang a bit close to home as an an autistic person-- being too literal in execution of his orders. He's tired and struggles with a yearning for death. His havdalah candles will be out.. The first flame of the week, a spark of starting over again-- The flame brings him fear. As much as he's kept himself together he doesn't know how much longer he can keep doing it, he fears failure- but the fear of what may happen if he's gone is even more terrifying. He's lived a long life, and over time the one who formed him has sculpted him to the golem's own wishes.. From nothing to the man he is- but even with that effort, to outsiders he's still a monster. His skin is different shades of clays from varying riverbeds as his people have travelled.. Golems are unformed, imperfect.. but even as outsides can be polished the insides can still be broken
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simandy Ā· 4 months ago
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Having my worst day so far šŸ‘
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s0fter-sin Ā· 2 months ago
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they really 50/50ā€™d the thunderbolts with characters i like and characters i couldnā€™t give less of a shit about
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zorosdimples Ā· 4 months ago
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knowing i should take a step back from tumblr for my own wellbeing vs. being emotionally attached to this app and the people on it
#tumblr would be tumblr without meā€”as would the self ship community. itā€™s silly for me to feel so invested this Thing that is just that:#a Thing. it canā€™t give me the love or care or satisfaction with life that iā€™m looking for. iā€™ve been hiding on hereā€”escaping reality.#because itā€™s fun to live in an imaginary world where iā€™m everything i want to be. where iā€™m the main character.#but in doing so iā€™ve been neglecting the ugly parts of my real life; the pain and hurt and harsh realities.#over the past couple months it has become apparent to me that i tend to put too much trust and effort into people#who have neither the capacity nor the desire to reciprocate.#so i just look like a fool in the end. (this isnā€™t about anyone hereā€”just a pattern of behavior in general.)#at the end of the day#having thousands of followers on tumblr has no impact on my real life. if anything it makes me feel more isolated than ever.#because itā€™s yet another arena where i feel like i have to carve out my own space; iā€™ve never been good at taking up space.#anyway i suppose iā€™ll take the weekend away and see how i feel. iā€™ve had a lot of shit happening irl that has been so horribly difficult.#so maybe getting through all of that will help me feel more comfortable on my own blog again.#if you read this all iā€™m so sorry. iā€™ll prob regret posting my heartfelt thoughts in the future but at this very moment i donā€™t care.#self preservation be damned.#please support ficsforgaza; iā€™ll still be helping aleks over there because itā€™s one of the few places where i feel useful.#okay iā€™m done now. iā€™ll see you later. i wish you all so much love and nothing but the best.#tw personal
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ninasdrafts Ā· 2 years ago
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Iā€˜m trying to see this for what it is: a new chance, an opening. A clean slate. A way of the universe unmistakably showing me that one phase is over and Iā€™m ready to dive into the next. But all I see is defeat. All I see is the fear of not deserving to end up where I want to be. My thoughts are overwhelming. My doubts are endless. Iā€˜m a well thatā€™s filled to the brim, but my water is poisoned. Iā€˜m a finished painting, a portrait drawn in the most vibrant colours, but the knife is already grasped in my hand. I want to scratch off layer after layer and start again, not because Iā€˜m unhappy with the outcome, but because I donā€™t know how to do something different. Something new. Itā€™s all old news and repetitions of past mistakes and I donā€™t know how to break free from this spiral. It comes down to the same thing: Iā€˜m scared senseless. This fear has become a part of me and I donā€™t know how to let it go. I donā€™t know how to look at the future without feeling overwhelmed by it. I want to write about hope next, but Iā€˜m not feeling it right now. But one of these days, I will. I will.
one of these days, Iā€™ll write about hope / n.j.
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marnz Ā· 14 days ago
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you know, I complain a lot about my union because forming a coalition and building solidarity means you will disagree and navigate a lot of conflict, but I will say that it's also some of the most rewarding and important work I've ever done.
#tbd#union tag#yesterday i ended up confronting management--like executive suite level--about the transphobia in the agency#and it didn't go well. unsurprising.#and i got a little direct! i always advocate for pushing in a kind and professional manner but this time (:#this time I pushed harder and I told them why and how unacceptable this was#and got no where except for the head of HR looking upset that I was pushing him to take action#anyway i don't feel like we got anywhere other than putting them on notice (which sometimes IS critical to work getting done)#but we caucused after that convo and my union mates went from 0 to 60 on workshopping how to support me#and other trans colleagues in my department#like i was so warmed and surprised to see how everyone showed up for us#even though sometimes we butt heads and have significant disagreements#that's solidarity. that's the work.#and then in our union meeting someone announced a name change and everyone was like 'cool' and started using it immediately#action matters so much more over empty words#and i do see my job--my position--as someone to push (and be pushed) for action over empty words#and sometimes it takes over a year for that action to happen but when it does? indescribable#it is clear that executive level management will not budge on this unless we continue to show up#and we will.#people don't inspire change. a network of relationships--a give and take--lead to change. change comes from action#building that relationship sometimes IS the most effective action you can take#when we talk about building community we are talking about the action. the actions of care & time & listening & connecting#assembling everything you know & all you can do to figure out how to make this moment & this place & this life better#it's not about paying dues it's not about striking it's about showing up sitting down listening and forming a plan of action.#anyway#currently#transphobia tw
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pennyserenade Ā· 2 months ago
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everyone talks about how people being mean to them about their appearance in middle school or high school ā€” or whatever time in their young adult lives ā€” negatively influences the way they act when theyā€™re hit on or develop crushes is so real, except the person who was mean to me was my mother so iā€™m fighting so many beasts at once and iā€™m so scared girls
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cuteniaarts Ā· 3 months ago
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Mirror, mirror, on the wall...
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Who's the fairest of them all?
#lowkey cringy caption but I thought it was fitting given the context#my art#artists on tumblr#the legend of korra#original character#who I still haven't figured out a tag system for lmao#Kat and Nia and their multiverse of madness#alternative title: what a difference half a lifetime can make#summiya at 18/19 vs summiya at 34/35 is like night and day. she barely even looks like herself anymore#or maybe.. she looks more like herself than she ever did? what came before wasn't her. it was an empty porcelain doll devoid of personality#hiding the rotten nature underneath that's been steadily seeping through#and now that she has been thoroughly destroyed her outward appearance finally reflects what she was like inside all along#but just as she manages to convince herself of it. she looks in the mirror and refuses to accept that this is who she really is#where did that gorgeous girl who was so excited for her wedding day go? or the one who lit up upon being showered with compliments?#what happened to them? to her? how did she sink so low?#she was supposed to be better than this... better than her siblings. she was always better than Zaheer and Aiza#but now she's easily the worst of the free. their betrayal doesn't even compare#she deserves death for what she did. she looks at the bruising on her throat and wonders why it wasn't enough#why he didn't press just a little harder. then at least she wouldn't have to live with the shame#how awful of her to wish for that. she is getting what was coming to her. she did all of that for the shame. it is her punishment#she doesn't get the mercy of dying and escaping the consequences of her actions#she is by no means innocent. what's happening now is simply justice being enacted. she's sure of it#she's alone and ruined and miserable. having driven away everyone who could have possibly cared for her. not that anyone did#perhaps it's better that way. maybe then no one else will look at her and realise just how different she looks from her younger self#she wasn't happy back then either but she was content. she was taking the first step towarcs the perfect life she was promised#now that very save perfect life is crashing and burning all around her. perhaps it was inevitable. it was always going to end this way#(sleepy tags so I apologise if they make no sense whatsoever or are just rehashes of stuff I've said before. I'm tired. gonna go to bed now)#oh. before I forget though:#injury tw#bruises tw
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coachbeards Ā· 7 months ago
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also like. i do think about it a lot.
beard being told via hallucinations that heā€™d need a pep talk to kill himselfā€¦ā€¦ā€¦and then it was a pep talk by ted to get him to forgive nate (and himself)ā€¦.
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an-unexpected-trollogy Ā· 6 months ago
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Oh to be Suzanne Collins and have little social media presence and to write a book regarding whatever current societal trend is bothering her at the moment.
#i am feeling. bothered. this weekend#i am hanging out with my wealthy cousins for their bridal shower--thank christ they are not asking me to bring anything--and tired#everyone always talking about their accomplishments and im liek... pls im wanting to go back to my boyfriend and cat right now#everyone asking what i'm doing for work--because that's all ppl seem to care about in this goddamn family--and i have to say#'i'm looking for something else'#like yoo i already lied a whole year about freelancing when really i was attempting to freelance but not getting anywhere#like i was all 'oh i make x a month just workig on my computer!' when really i was making diddly squat#end this fucking generational cycle of lying about yourself because you have to prove to everyone you are ok#i want the suzanne collins life where i can do my writing hobby without putting this fake social media persona on where i police my thought#and only post about cutesy happy things (since my genre is cozy fantasy; i have no intelligence to write anything more complex#and no passion to write anythign other than sf/f#BUT SHOUTOUT TO MY COUSIN'S HUSBAND WHO ASKED IF I READ AND MENTIONED THE WHEEL OF TIME SERIES AND MY NEURONS ACTIVATED LIKE 'HAVE YOU HEAR#OF PRATCHETT AND BRANDON SANDERSON AND GAIMAN? I CAN GIVE YOU RECS#but other than that i have to deal with my aunts bragging about their kids#one of my aunts is kind of colder and i always got this weird vibe from her like i had to earn her love which... ok. whatever. i also think#she considers me very dumb#the only bright side to any of this shit is im not in college anymore thank christ#all my cousins who are in college still have this... 'energy' around them#you know? that 'wanna kms low key but im pretending to smile and laugh' energy#delete later#tw family
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thehealingsystem Ā· 1 month ago
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i'm so fucking irritating with this but dear god I want to kill myself so bad. Day after day after day I am reminded of what I am and that I can't fix myself. It's getting worse again and everyday is getting harder to just live through. I don't even know why part of me still imagines things getting better, that people even still care, i'm an obsessive freak that deserves to be put down. Nobody cares if I don't show up the next say or ever again. I destroyed everything even in my attempts to preserve it. I don't do anything with my life, my cutting has gotten worse, I barely eat most days, I cry multiple times a day and cry myself to sleep many nights. I have nightmares literally just about what I experience every day. I layed down on the couch today and cried to myself how much I wanted to die. If I tell anyone this i'm just gonna get in trouble and not actually helped, because that's what happens every single time and no one's gonna believe me when I say there's something wrong with me. I'm trapped and there's no place to go other than hell. there's nothing anyone tumblr is gonna be able to do to help me but I literally have no one to tell. most shit just festers inside me and I can't even articulate what's happening in my head most of the time. even now
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vaguehotels Ā· 8 months ago
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had the most braindead repetitive conversation/argument with my parents. buzz cuts are too masculine but if you dye a design on it it become effeminate which is bad because then you look weak and if youre weak then society falls apart (all societies ever that have fallen apart for any reason are actually because of feminine men) and we start sacrificing babies. and also all mental illness is invented because only 4 people had anxiety in the 90s and covid was made up so that we would all become gay and trans and then the government can control us better and be joe biden's little sex slaves. and also i need to keep my hair long because my father finds it attractive. what
#lolaa.txt#what do i even tag this with . my mother wouldn't let me leave and i kept asking for sources and she kept saying 'i'm your mother!!!'#'i wouldnt lie to you!'#okay. say that to someone maybe who doesnt know you lie to them all the time.#its tiring going around in circles with her.my father is better because at least he admits when he doesnt have a reason for feeling some wa#also what got me. she said 'do you own research if you want!! but im right!!!'#yeahh not seeing anything about anything you just said. i think you made that up.#i have a theory that my mother secretly hates herself because she believes all women are weak and must serve strong men#and my father has so so much trauma and anxiety that he cant be that strong man#so now she feels like shes betraying her very biology when she has to step up.#and also because i am stronger than her now and my hair is long and far far denser than hers and i have a younger face#that she feels that im wasting my precious femininity that she could be using. does that make sense.#shes so miserable trapped in her idea of what makes a man and a woman what they are. once you stop caring about what makes someone somethin#you dont have to worry about anyone else.#im queer because i dont really feel that connection to biological and social ideas of gender that my parents seem to#never really have#im not gonna theorize 'ohh shed be happier nonbinary' or stuff like that because it is up to you and you alone to define who you are#if you spend your whole life trying to fit a box for the sake of fitting the box#then when would you have any space for self discovery#youve invented personality traits to go along with your box. now you can never ever change or grow as a person. congrats#and you know what? one day she will die. and that will be the end of that.#and i will live and i will probably shave my head a thousand times. and come up with new names#and new ways to be a better person that makes me feel happy#and i will dress like a boy because its all made up anyways. who cares.#and if you care? that much about what im wearing or how i look?#then thats your problem and i wont be responsible to maintain your happiness.#SORRY RANT OVER.#im just so flabbergasted. what a sad life someone can lead poisoned by jealously and reactive rhetoric.#tw homophobia#tw transphobes
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hylianengineer Ā· 10 months ago
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Favorite Artful Dodger scene so far:
Belle: "He's dying, isn't he? What can we do?"
Jack: "Hold his hand and see him into the next life."
Also, the parallels between this and Jack's earlier speech about how dangerous it is for a surgeon to play God. No matter how good a doctor you are, you still have to be a person - it is being a person that makes you good, and if you lose sight of that, you'll fail.
And when you've done all you can as a doctor, there's still something you can do as a fellow human being. Be there.
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smiley-positivity-potato Ā· 10 days ago
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i was crocheting puff flowers earlier but now im a very depressed n a very sad boi that is having bad thoughts. but im trying.
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