#SCDS

[anotherdayforchaosfay]

Anyone here specialize in medical stuff for ears?

I've been dealing with an ongoing issue regarding my ears since having covid19 two years ago. It's taken two years for any imaging to be done because the ENT specialist I was sent to couldn't see anything and said I was imagining it. It was only after being stubborn and standing up for myself that he agreed imaging would be useful. Here's what was put in my patient profile regarding today's scan. If you have experience working with ears, please explain what this stuff means.

What it looks like to me is I have the same condition my baby sister has: SCDS or Superior Canal Dehiscence Syndrome. She was told hers is cause by too much swimming (she calls bullshit), and correcting it will require brain surgery (to plug the holes, the brain needs to be slightly lifted out of the way of the bones).

CT Mastoids (Temporal Bones) wo Contrast

IMPRESSION:

Osseous thinning and likely dehiscence along the bilateral superior semicircular canals.

Unremarkable appearance of the mastoid air cells which are well aerated bilaterally. No significant mastoid effusion or opacification.

COMPARISON: None.

TECHNIQUE: Axial CT images of the temporal bones were obtained at 1 mm intervals. Coronal reconstructions were subsequently performed.

The CT scanner utilized a dose reduction technique.

CT Dose: 480.26 mGy.cm

The external auditory canal is patent.

FINDINGS:

Right temporal bone:

The middle ear cavity is well aerated.

The ossicles are intact.

The scutum is sharp.

There is no evidence of tegmen tympani dehiscence.

The facial nerve demonstrates normal for course and morphology within the temporal bone.

The inner ear structures demonstrate normal density and morphology.

Osseous thinning and likely dehiscence along the right superior semicircular canal.

The internal auditory canal is symmetric in size.

There is no evidence of an enlarged vestibular aqueduct.

The jugular bulb is not dehiscent.

Left temporal bone:

The mastoid air cells are well aerated.

The external auditory canal is patent.

The middle ear cavity is well aerated.

The ossicles are intact.

The scutum is sharp.

There is no evidence of tegmen tympani dehiscence.

The facial nerve demonstrates normal for course and morphology within the temporal bone.

The inner ear structures demonstrate normal density and morphology.

Osseous thinning and likely dehiscence along the left superior semicircular canal.

The internal auditory canal is symmetric in size.

There is no evidence of an enlarged vestibular aqueduct.

The jugular bulb is not dehiscent.

The mastoid air cells are well aerated.

[wordsforrain]

Re: that last poll, I just thought I’d mention that SCDS can be fixed surgically and while it might not cure everything it will probably help A Lot. Yes I lost some functionality in the canal they plugged but I’ve adapted and it’s unnoticeable most of the time.

I did video consults with Gopen at UCLA and Carey at Hopkins, the two surgeons with the most experience in the US. Ended up going with Carey bc I liked his vibe and have family in the DMV, whose house I could recover at.

The surgery experience was super smooth, even with the unexpected discovery of dura tears and extra time it took to fix it (5 hrs). Carey and his residents checked on me daily when I was recovering in the neuro ward and truly they were all so nice, the nurses and orderlies and custodians and everyone else too.

And somehow, Hopkins worked with my MN-based insurance to get counted as in network for me, which made it waaaaaay cheaper.

Obviously no one ever wants to get intracranial surgery, but if you’ve got SCDS (can you hear your eyeballs move? you’ve got it) and are considering surgery, cannot recommend Dr. Carey and his team highly enough,

[thealmosttherapistwholosthermind]

Sigh After Denial

Today I am deeper than bone tired.

Recovering from my 3rd brain surgery has been different. I just don't have the "oomph" I had the first two rounds.

It's going well by all standards.

Symptoms have abated.

I walk around the block.

I cook dinner.

I even run errands.

But mostly I lay around.

It's going well. I am getting better.

I just can't put my finger on what's different. It's like something deep inside me has broken. I'm no longer fighting this disease and desperately holding on to the illusion that I will get my life back.

This IS my life. It's not the one I wanted. But it's mine.

It is a slow life. There is a lot of time to read. Time to ponder. Time to feel. Time to process. I like that. Is it strange?

I know it won't be like this forever. I know I can be symptom free. But my "old life" is long gone. There is no going back. Only forwards. Towards recovery and health, which will likely include some adjustment. I don't know what yet. But I am willing.

Maybe I am so tired because I have finally given up the struggle--the battle I was never going to win anyway. The one where, somehow, I would beat this beast of a disease back into a metaphorical cave and it'd be like it never came.

Instead, I am just going to let it be. And I'll be. And I'll manage it. And accept that I have a disability.

[monkeymeghan]

I have bunches. One on my chin from when I fell in the first grade and needed 13 stitches. One on my arm from a hemangioma removal. One behind my ear from inner ear surgery. One on each side of my head from two craniotomies for inner ear surgeries. Various cat scratches.

Put in the tags how many scars you have and how you got them

[bisexualgoth]

santa clarita diet is so fucking criminally underrated. not only is plot a Drew Barrymore and Timothy Olyphant killing nazis rapists and misogynists so drew Barrymore can eat them, plot b is about their daughter becoming an ecoterrorist. like. you can't beat this

[danystargaryens]

GET TO KNOW ME: ♡ [12/15] Male Characters: ☆ Joel Hammond (Santa Clarita Diet)

I am not a murderer, okay technically i am, not even technically. Literally. But i refuse to be defined by the one time i murdered somebody.

[rhcenyra]

SANTA CLARITA DIET | MORAL GREY AREA

[monkeymeghan]

Put someone in there who has SCDS, some of us hear body functions without the silence. I’m sure we’d last because we are used to those sounds.

The anechoic chamber, audio lab, which is housed at Microsoft’s headquarters in Redmond, Washington is the quietest place on earth, and no one has lasted inside it for more than 55 minutes.

Keep reading

[squidcave]

SCOTLAND FOREVER 🏴󠁧󠁢󠁳󠁣󠁴󠁿🏴󠁧󠁢󠁳󠁣󠁴󠁿🏴󠁧󠁢󠁳󠁣󠁴󠁿🏴󠁧󠁢󠁳󠁣󠁴󠁿🏴󠁧󠁢󠁳󠁣󠁴󠁿🏴󠁧󠁢󠁳󠁣󠁴󠁿

and bonus Scottish Miku after a hard day

[toyboy-molloy]

british culture is watching the go compare man perform in drag as mrs doubtfire on strictly

[grammatically-incoherent]

[random scd scenes 13/??]

"I was confused. You asked me if I was a pretty good dancer, which I’m not. I’m an outstanding dancer."

[wordsforrain]

My parents got me this very cute card in the hospital that I feel the need to share. I can’t laugh at it bc I’m not supposed to increase intracranial pressure right now, but maybe someone else can 🐶

[thealmosttherapistwholosthermind]

[firbolgfriend]

Cover Art for my Infection au aka Sweet Feather Diet :)

[becrystalamazed]

Shakira…

[neurodivergent-and-mentally-ill]

"YOU ARE SO FUCKING SELFISH!"

A very shocked Vil, silently shocked that I finally snapped at him. Those sugar withdrawals are finally hitting me when he took over my diet in book five during the SDC.

"I am in a completely different world without any of my friends, family, or vices! Plus, Crowley is fucking USELESS, so there's no telling whether I'll be able ever go home! You are NOT going to add onto my fucking stress by taking away the miniscule stress relief that sugar and snacks give me!"

Vil, finally able to put words together, slowly came up to me with his head slightly lowered (because I'm short and because of the shame).

"Oh... Aeryn, I do apologize. I thought that I was helping by removing such unhealthy substances from your diet, but it seems that I've done more harm than good. I will replace your favored foods, of that's what you want."

I, of course, nod. "It is what I want."

"But... at least promise me that you'll eat a proper three meals a day. Your complexion when I first met you was, and forgive me for saying this-"

"I won't."

"-Was ghastly. I almost assumed that you had tussled with Epel with how dark the circles were under your eyes."

Now it was my turn to be silent. I guess I could see where he was coming from, although it was far too extreme for my taste.

"...I can promise to try. Crowley works me to the bone, so sometimes I just get back to my dorm real late and I don't get to cook. That's why I have so much instant food. But I guess, as long as you live in my dorm, if you supply the ingredients, I can make some stuff that keeps well for when I'm too tired to cook."

Vil finally smiles at that. "Of course, sweet potato-"

"And stop calling me potato, you tall, white-ass parsnip!"