#Neurological disorder

[starfishinthedistance]

Friendly reminder that if you support reproductive rights and bodily autonomy but say that disabled people shouldn't have children because they'll pass down their genes which is "cruel" or "abusive", you do not support reproductive rights and bodily autonomy. Reproductive rights do not only concern abortion for cis white abled women.

[crippledcryptidd]

Re decorated cane

ID: a black cane with various stickers, spikes in the middle, cat lights wrapped around it and a purple and black, witch cat squishamellow keychain with a black wrist strap around the top, it is leaned againsted a white door with part of a black halloween decoration in frame and standing on a grey brown hardwood floor. The lights are on but the picture is taken with flash so it is not dark. End ID

[dyspunktional-leviathan]

I still see the lightning bolt disability pride flag (the one with the zigzag-shaped non-bg part) being used occassionally.

Your reminder that it can *kill* people with epilepsy, as well as hurt those with other kinds of photosensitivity (I'm autistic and have chronic migraines, I can't look at it)

The creator was alerted of that and has long since made a photosensitivity-friendly redesign. It is also open to further edits. Her tumblr is capricorn-0mnikorn, she has the flag in her pinned, but just in case, perhaps also will draw attention more, I'll add it here too:

[Image description, copied from the creator's original post:

A “Straight Diagonal” version of the Disability Pride Flag: A charcoal grey flag with a diagonal band from  the top left to bottom right corner, made up of five parallel stripes in  red, gold, pale grey, blue, and green

/End image description]

[valcaira]

I am... still not over the fact that one day I woke up with my right side suddenly paralyzed. Without any warning. It's been several weeks now without any improvement. I want to cry. I want to yell and scream. I'm scared. This is fucking terrifying! Who knows what'll happen next? The doctors didn't find an organic cause thus dismissed me so fuck me I guess!

Just like that! One half of my body! Gone! I still can't fucking cope with this. And everyone around me acts like it's not a big deal. Fucking hell.

[underneaththatblackblanket]

"The 200+ Symptoms of Fibromyalgia"

(Note: Some symptoms may overlap)

GENERAL

1. Activity level decreased to less than 50% of pre-illness activity level

2. Cold hands and feet (extremities)

3. Cough

4. Craving carbohydrates

5. Delayed reaction to physical activity or stressful events

6. Dryness of eyes and/or mouth

7. Edema (Oedema)

8. Family member(s) with Fibromyalgia

9. Fatigue, made worse by physical exertion or stress

10. Feeling cold often

11. Feeling hot often

12. Frequent sighing

13. Heart palpitations

14. Hoarseness

15. Hypoglycemia (blood sugar falls or low)

16. Increased thirst

17. Low blood pressure (below 110/70)

18. Low body temperature (below 97.6)

19. Low-grade fevers

20. Night sweats

21. Noisy joints – with or without pain

22. Poor circulation in hands/feet

23. Profuse sweating

24. Recurrent flu-like illness

25. Shortness of breath with little or no exertion

26. Severe nasal allergies (new or worsening allergies)

27. Sore throat

28. Subjective swelling of extremities – (feels swollen Bu can’t find anything)

29. Sweats

30. Symptoms worsened by air travel

31. Symptoms worsened by stress

32. Symptoms worsened by temperature changes

33. Tender or swollen lymph nodes, especially in neck and underarms

34. Tremor or trembling

35. Unexplained weight gain or loss

PAIN

36. Abdominal wall pain

37. Bad hip pain

38. Burning Nerve Pain

39. Chest pain

40. Collarbone pain

41. Diffuse swelling

42. Elbow pain

43. Exacerbated Plantar arch or heel pain

44. “Growing” pains that don’t go away once you are done growing

45. Headache – tension or migraine

46. Inflamed Rib Cartilage

47. Joint pain

48. Lumpy, tender breasts

49. Morning stiffness

50. Muscle pain - widespread

51. Muscle spasms

52. Muscle twitching

53. Muscle weakness

54. Pain that ranges from moderate to severe

55. Pain that moves around the body

56. Paralysis or severe weakness of an arm or leg

57. Restless Leg Syndrome

58. Rib Pain

59. Scalp Pain (like hair being pulled out)

60. Sciatica-like pain

61. Tender points or trigger points

62. TMJ syndrome

63. “Voodoo Doll” Poking Sensation in random places

NEUROLOGICAL

64. Blackouts

65. Brain fog

66. Carpal Tunnel

67. Feeling spaced out

68. Hallucinating smells

69. Inability to think clearly

70. Lightheadedness

71. Noise intolerance

72. Numbness or tingling sensations

73. Photophobia (sensitivity to light)

74. Seizures

75. Seizure-like episodes

76. Sensation that you might faint

77. Syncope (fainting)

78. Tinnitus (ringing in one or both ears)

79. Vertigo or dizziness

EQUILIBRIUM/PERCEPTION

80. Bumping into things

81. Clumsy Walking

82. Difficulty balancing

83. Difficulty judging distances (when driving, etc.)

84. Directional disorientation

85. Dropping things frequently

86. Feeling spatially disoriented

87. Frequent tripping or stumbling

88. Not seeing what you’re looking at

89. Poor balance and coordination

90. Staggering gait

SLEEP

91. Alertness/energy best late at night

92. Altered sleep/wake schedule

93. Awakening frequently

94. Difficulty falling asleep

95. Difficulty staying asleep

96. Excessive sleeping

97. Extreme alertness or energy levels late at night

98. Falling asleep at random and sometimes dangerous moments

99. Fatigue

100. Light or broken sleep pattern

101. Muscle spasms/twitches at night

102. Narcolepsy

103. Sleep disturbances

104. Sleep starts or falling sensations

105. Teeth grinding - "Bruxism"

106. Tossing and turning

107. Un-refreshing or non-restorative sleep

108. Vivid or disturbing dreams/nightmares

EYES/VISION

109. Blind spots in vision

110. Eye pain

111. Difficulty switching focus from one thing to another

112. Frequent changes in ability to see well

113. Night driving difficulty

114. Occasional Blurry vision

115. Poor night vision

116. Rapidly worsening vision

117. Vision changes

COGNITIVE

118. Becoming lost in familiar locations when driving

119. Confusion

120. Difficulty expressing ideas in words

121. Difficulty following conversation (especially if background noise present)

122. Difficulty following directions while driving

123. Difficulty following oral instructions

124. Difficulty following written instructions

125. Difficulty making decisions

126. Difficulty moving your mouth to speak

127. Difficulty paying attention

128. Difficulty putting ideas together to form a complete picture

129. Difficulty putting tasks or things in proper sequence

130. Difficulty recognizing faces

131. Difficulty speaking known words

132. Difficulty remembering names of objects

133. Difficulty remembering names of people

134. Difficulty understanding what you read

135. Difficulty with long-term memory

136. Difficulty with simple calculations

137. Difficulty with short-term memory

138. Easily distracted during a task

139. Dyslexia-type symptoms occasionally

140. Feeling too disoriented to drive

141. Forgetting how to do routine things

142. Impaired ability to concentrate

143. Inability to recognize familiar surroundings

144. Losing track in the middle of a task (remembering what to do next)

145. Losing your train of thought in the middle of a sentence

146. Loss of ability to distinguish some colors

147. Poor judgment

148. Short term memory impairment

149. Slowed speech

150. Staring into space trying to think

151. Stuttering; stammering

152. Switching left and right

153. Transposition (reversal) of numbers, words and/or letters when you speak

154. Transposition (reversal) of numbers, words and/or letters when you write

155. Trouble concentrating

156. Using the wrong word

157. Word-finding difficulty

EMOTIONAL

158. Abrupt and/or unpredictable mood swings

159. Anger outbursts

160. Anxiety or fear when there is no obvious cause

161. Attacks of uncontrollable rage

162. Decreased appetite

163. Depressed mood

164. Feeling helpless and/or hopeless

165. Fear of someone knocking on the door

166. Fear of telephone ringing

167. Feeling worthless

168. Frequent crying

169. Heightened awareness – of symptoms

170. Inability to enjoy previously enjoyed activities

171. Irrational fears

172. Irritability

173. Overreaction

174. Panic attacks

175. Personality changes –usually a worsening of pervious condition

176. Phobias

177. Suicide attempts

178. Suicidal thoughts

179. Tendency to cry easily

GASTROINTESTINAL

180. Abdominal cramps

181. Bloating

182. Decreased appetite

183. Food cravings

184. Frequent constipation

185. Frequent diarrhea

186. Gerd-like Symptoms

187. Heartburn

188. Increased appetite

189. Intestinal gas

190. Irritable bladder - "Angry Bladder Syndrome"

191. Irritable bowel syndrome - IBS-C, IBS-D

192. Nausea

193. Regurgitation

194. Stomachache

195. Vomiting

196. Weight gain - unexplained

197. Weight loss - unexplained

UROGENITAL

198. Decreased libido (sex drive)

199. Endometriosis

200. Frequent urination

201. Impotence

202. Menstrual problems

203. Painful urination or bladder pain - "Interstitial Cystitis"

204. Pelvic pain

205. Prostate pain

206. Worsening of (or severe) premenstrual syndrome (PMS or PMDD)

SENSITIVITIES

207. Alcohol intolerance

208. Allodynia (hypersensitive to touch)

209. Alteration of taste, smell, and/or hearing

210. Sensitivity to chemicals in cleaning products, perfumes, etc.

211. Sensitivities to foods

212. Sensitivity to light

213. Sensitivity to mold

214. Sensitivity to noise

215. Sensitivity to odors

216. Sensitivity to yeast (getting yeast infections frequently on skin, etc.)

217. Sensory overload

218. Sensitivity to pressure & humidity changes

219. Sensitivity to extreme temperature changes

220. Vulvodynia

SKIN

221. Able to “write” on skin with finger

222. Bruising easily

223. Bumps and lumps

224. Eczema or psoriasis

225. Hot/dry skin

226. Ingrown hairs

227. Itchy/Irritable skin

228. Mottled skin

229. Rashes or sores

230. Scarring easily

231. Sensitivity to the sun

232. Skin suddenly turns bright red

CARDIOVASCULAR (Heart)

233. “Click-murmur” sounds through stethoscope

234. Fluttery heartbeat

235. Heart palpitations

236. Irregular heartbeat

237. Loud pulse in ear

238. Pain that mimics heart attack - "Costochondritis"

239. Rapid heartbeat

HAIR/NAILS

240. Dull, listless hair

241. Heavy and splitting cuticles

242. Irritated nail beds

243. Nails that curve under

244. Pronounced nail ridges

245. Temporary hair loss

OTHER

246. Canker sores

247. Dental problems

248. Disk Degeneration

​249. Hemorrhoids

250. Nose bleeds

251. Periodontal (gum) disease

252. Need for early hysterectomy

[tuptastic]

"hey, how's that cold weather been?"

OW.

[elliott-the-creature]

bro having AIWS is so weird, and I think being a system makes these episodes a lot more visceral

last night I was talking to The Voices™️ (aka my headmates) about what their favourite trinket was and how I should create my headspace, and as I would talk to each of them I felt my body shifting in size (when I talked to princess my body would feel like it’s shrinking, when I talked to ruby my body would grow) and it got so much worse when I talked to Something.

it legit felt like I was growing and shrinking and the body parts were growing and shrinking and extending and it was so weird—it was like someone was playing with the customization options of my body (like when you get to customize your character at the beginning of a video game and you can choose your size and how big you want certain body parts to be).

this continued for probably 20 minutes even after I stopped talking to Something (give or take, my time perception goes out of wack when I get these episodes), and it was honestly really weird. when I get these episodes it’s normally one body part or my whole body (usually it’s my hands that increase in size, or me feeling like I’m way taller/bulkier than I actually am), but this time nothing was safe from my hallucinations. I also heard random super quiet whispers, which was definitely unpleasant

also I don’t see nearly enough representation for people with AIWS… I wish I had more folks to connect to over this weird condition

ALSO ALSO! We’ve finally decided on our system name!! From now on, us as a collective will be know as The Trinket Collective! We’ll probably make a post talking more about it in the near future -📺📚

[battleangel]

I cant watch these guys develop CTE anymore…

[religion-is-a-mental-illness]

What's the story of Joan d' Arc from an atheist's perspective?

I'm still deconstructing religion and her story still holds a place in my heart for some reason

Neurological disorder or mental illness.

https://en.wikipedia.org/wiki/Joan_of_Arc

Modern scholars have discussed possible neurological and psychiatric causes for her visions. Her visions have been described as hallucinations arising from epilepsy or a temporal lobe tuberculoma. Others have implicated ergot poisoning, schizophrenia, delusional disorder, or creative psychopathy induced by her early childhood rearing. One of the Promoters of the Faith at her 1903 canonization trial argued that her visions may have been manifestations of hysteria. Other scholars argue that Joan created some of the visions' specific details in response to the demands of the interrogators at her trial.

Keep in mind that we don't have to be able to explain her "visions" in order to reject the "explanation" that she was in telepathic communication with a magical space wizard who invented the universe with a magic spell. Or even believe that she had these "visions" at all. We don't have to "disprove" what has not been proven. And the "visions" and their purported supernatural origin are not established, evidence-based fact.

https://en.wikipedia.org/wiki/Joan_of_Arc

Many of these explanations have been challenged; the trial records designed to demonstrate that Joan was guilty of heresy are unlikely to provide the objective descriptions of symptoms needed to support a medical diagnosis.

It's true that we can't reliably diagnose her from the trial records. Mostly because people were more ignorant back then and didn't collect the evidence or data which would enable us to use our better knowledge to explain it. But that's not our fault.

But it's also the same reason we can't conclude telepathy with a magical space wizard. What are the "objective descriptions of phenomena needed to support a supernatural explanation"? What are they? And why do medical diagnoses need objective facts, but not claims of supernatural magic?

We can simply ask ourselves, which is more likely: neurological disorder/mental illness, or telepathic communication with a magical space wizard? We know neurological disorders and mental illnesses are real, we have good evidence they exist, even if we don't have conclusive evidence that she had one. We don't have any evidence of a magical space wizard, so the medical diagnosis already has a massive leg up on the supernatural magical explanation.

It's worth noting that the people who reject these more mundane medical explanations for Joan are the same ones who will reject Muhammad's divine communications with Allah, on the basis of it being more likely temporal lobe epilepsy, schizophrenia or regular old fraud. And even reject that "god" told Kenneth Copeland to assemble a fleet of private jets, on the basis of him being an unrelenting, inveterate con artist.

So, in the defenders of this mythology, what you have is inconsistent skeptics who decline to accept similar claims on equally questionable grounds.

https://en.wikipedia.org/wiki/Joan_of_Arc

Joan's firm belief in the divinity of her visions strengthened her confidence, enabled her to trust herself, and gave her hope during her capture and trial.

Dumbo's feather strengthened his confidence, enabled him to trust himself and gave him hope. This paragraph is embarrassing, not to mention completely useless.

What this is doing is retreating from "this belief is true" to "this belief is useful." We have to ask ourselves whether what we're interested in is what's true, or what's useful.

A popular retort from the faithful is something along the lines of, why would she allow herself to be burned to death if it wasn't true? You've heard this before in regard to the "persecution" of the early Xians. This is, of course, only a measure of fanaticism, not truth. Islamic terrorists are so sure they're willing to blow themselves up, yet this holds no weight with Xians as far as whether Islam is true.

It's a real shame "god" didn't help her escape her captors as he did the Israelites, though. Him untying her, parting the flames and levitating her to safety would have been an even more compelling demonstration of "god's will" than the predictable outcome of a person being burned to death. But instead, he went, "nah, I'mma be mysterious."

[wheelingwithgrace]

Tomorrow is such a nervewracking day. I have a neurology appointment, and I'll be finding out the results of my EEG/finding out if we caught any epileptic activity on it. I'm freaking out because I've been having convulsive seizures, and I just want to find out the source of them and if they aren't epileptic in nature it honestly feels like it's going to set me back one step in recovery.

[themogaidragon]

Neurodevelopmental Disability Pride Flag

PT: Neurodevelopmental Disability Pride Flag /end PT

ID: a five striped flag oriented diagonally from the top left corner to the bottom right corner over a yellowish black background. The colors of the stripes are, from top to bottom, yellow, grey, white, grey, and yellow. End ID

TW eyestrain, bright colours, flashing! Original neurodevelopmental disorder flag here (link).

[crippledcryptidd]

I want to talk about migraine and mobility aids.

I’ve made a post on Tourette’s and mobility aids so I’m going to talk about another neurological disability I have that is a reason me and many others use mobility aids. Migraine.

Migraine is a neurological disease that causes migraine attacks that are most known for causing headaches but not every attack will have a headache, migraine attacks come with many different symptoms some of which may cause someone to use mobility aids.

Some symptoms that may cause someone with migraine to use one or multiple mobility aids are

Vertigo

Vision changes

Weakness

Pain

Pain worsened when moving

Fatigue

Dizziness

Nausea which can be worsened by moving

Those symptoms and others may cause someone with migraine to use mobility aids. Everyone is different, not everyone with migraine uses mobility aids and those who do may use different ones for different symptoms.

One person may use different mobility aids depending on the day, situation, symptoms, severity of symptoms, ect.

[wheelie-sick]

I am NOT consenting to that at my neurology appointment

[ID: a line of text saying "CNC Neuro New Patient Visit"]

[thedisablednaturalist]

Did you know, October is National Disability Employment Awareness Month?

This month highlights the work people with disabilities do in government, nonprofit, and private businesses.

For more information on NDEAM,

Did you also know that if you have a disability, you can access jobs in the federal government non-competitively? The WRP program allows persons with disabilities to circumvent the application process and be contacted by government employers directly. It also provides assistance with resumes. The WRP program application open enrollment is from August 26 to October 15th. To learn more, the WRP website is here:

Unfortunately this year's open enrollment has passed, but this gives aspiring applicants time to get their schedule A letter from a medical provider or disability counselor. For more information on schedule A:

All disabilities, including mental, physical, intellectual, learning, and neurological can receive a schedule A letter. This letter DOES NOT DISCLOSE YOUR PERSONAL DISABILITY. It just certifies that you have a disability.

This is how I got my position at the EPA, which has done a great job utilizing the schedule A process. This year was the first year that the EPA flew the disability pride flag at headquarters.

Feel free to send me asks if you have any questions, I'd also love to hear from others who have found success with schedule A and WRP.

[stealfromthedevil]

As much as I only use this platform for enjoyment sometimes we all need to have a rant.

I'm not feeling good today and this is not by any means a pity post but more of an awareness one. We all talk to each other about our common interests and such which is great but sometimes it needs to be addressed that we might not be doing so great. Whether that be physical health, mental health. There's no shame in admitting that you're not ok, and today I'm not ok.

I have generalised and focal epilepsy, it is a neurological disorder that affects my life and how I live it from day to day. For any fellow sufferers (and I salute you) you will know just how much it sucks ass, and not in a good way!

This week has been full of highs and lows, from travelling and getting to enjoy a wonderful experience a few days ago to spending almost 24 hours completely incapacitated from a sudden onset of seizures.

Again, this is not for pity or sympathy.

The point is that we all have things in our lives that we struggle with at certain points and it's ok to talk about it.

So this is mine.

I have a neurological disability.

Feel free to talk openly here about anything that you find yourself struggling with, failing that my inbox is always open.

Let's support each other as much as we can because you never know who needs that little boost.

[tuptastic]

STOP RISKING SERVICE DOGS AND THEIR HANDLERS.

Yesteday, while trying to access a non-pet friendly location with my seizure and cardiac alert SDiT, we were charged by a pet dog. The owners had no control over their dog, allowed it the full six feet of the leash it was on, allowed it to rush up towards my service dog, and when I was shouting "back up, back up" and moving away they laughed at the situation and at us. They gave no apologies - only a "oh guess we have to go this way" as they dragged their dog away from my service animal.

I got inside and collapsed against the check in kiosk. I avoided a medical episode by actual slivers. My service dog behaved phenomenally for this being the SECOND TIME she has been charged and or lunged at by a dog on duty this year, but i could hardly talk or think for the entire time I was at the location, trying to get something important fixed.

It might not seem like a big deal to you to bring your dog out with you. But untrained, uncontrolled pets can cause serious harm and damage not only to service dogs but to their HANDLERS. My closest medical alert contact is an hour away. If I had had a seizure that required an ambulance (anything over a minute unresponsive as per my seizure plan), it would have taken an hour until one of my people could have gotten to the hospital to collect my dog and to help me, someone with severe and extreme medical trauma. MY HEALTH AND MY DOGS SAFETY MATTERS MORE THAN YOUR WANT TO HAVE YOUR PET.

Please. PLEASE. Stop bringing your pets places they don't need to be. It is stressful for them, stressful for us, and not fun for anyone except for you. It is selfish and cruel and terrifying for the service dog handlers who leave every day wondering if today their dog is going to be hurt. ours dogs are our best friends.

Do not take her from me.