#actually epilepsy
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can't believe i have to say this, but apparently it needs saying: it's really fucked up to say someone deserves to be disabled. point blank. end of story.
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#also if you are not disabled you have no space in this conversation#disabled#disabilities#disability#epilepsy#ehlers danlos syndrome#hypermobile ehlers danlos syndrome#actually disabled#actually epileptic#actually epilepsy#physical disability#physical disabilities#neurological disability#spoonie#chronically ill#chronic illness#chronic pain#chronic fatigue#cpunk#c punk#crip punk#cripple punk#zebra
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New term for epilepsy unlocked
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more epilepsy memes bc I just might go insane
#actually epilepsy#epilepsy stuff#epilepsy memes#epileptic#actually epileptic#epileptic problems#epilepsy#non epileptic seizures#seizures#actually neurodivergent#neurological disability#neurological conditions#neurologicalhealth#neurology#mine
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Hey Tumblr, if I select "never auto-play" for GIFs and videos, this also goes for banners. And this also goes for previews.
GIFs in the preview/background when you open a tag shouldn't auto-play. Your banners we see when we open the app shouldn't auto-play.
It's overstimulating for me and it's extremely unsafe for epileptics, people with migraines, and other photosensitive people. Everything that moves can be a trigger, not only flashing lights.
This isn't a "Please, that would be very nice", this is a "You could be responsible for an epileptic not being able to drive for 6 months because of one (1) small absence seizure".
It has real consequences, and you constantly forget photosensitive people, to say the least.
Photosensitive people can avoid unsafe apps if they know they're unsafe. But you provide the option to disable auto-play. You make people think that it's safe for them to use your app. They let their guard down. They think it's fine.
Only for you to make it unsafe again all of a sudden. That's a real asshole move tbh.
@staff
#please make this post blow up it's important#photosensitivity#epilepsy#migraine#actually epileptic#actually epilepsy
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Concept and headcanon I adore: Epiletic Kaminari
Concept and headcanon I refuse to read fics about: Epileptic Kaminari
#mha#my hero academia#denki kaminari#kaminari denki#actually epileptic#actually epilepsy#I鈥檝e been jaded too many times by badly written epilepsy#like unless the fic is explicitly written by an epileptic author I will simply not be reading <3#too many times I鈥檝e seen misinformation#and like I get it! it鈥檚 all fun and games! but it鈥檚 just such a personal ick#behold a creation
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As a disabled/chronically ill person, what's the thing that seems to shock or surprise non-disabled people the most?
I'll go first..
Accessibility is a myth.
#chronic life#chronic illness#chronically ill#chronic pain#chronic fatigue#spoonie problems#fibromyalgia#myalgic encephalomyelitis#invisible disability#disabled#crip punk#chronic disability#chronic fatigue syndrome#mental health#chronic migraine#actually disabled#actually epilepsy
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Please stop underestimating what visuals (and scents for irl!) can give people seizures/migraines/etc.
Different people have different triggers and levels of sensitivity. Brightly colored text, subtle pulsing/flashing lights, slow gifs, huge bursts of different colors in static images, anything that can cause eye strain, lots of emojis, lots of different text formatting -- these things are not necessarily safe or tame. Tag your shit.
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Please keep in mind your epileptic friends this disability pride/awareness month! We are consistently being left out and ignored by everyone and it鈥檚 VERY disheartening and it鈥檚 a life-impacting disability to have. Please don鈥檛 forget about us.
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So - I have been talking a lot to people without epilepsy about epilepsy recently, in part due to my recent video essay. One thing I have taken away from the talks is, that schools, staff, teachers AND students need to learn first-aid. As a mandatory thing. Not just as an optional extra curricular. It's not enough to just teach the teachers, but also students need to learn about health conditions and how to react. e.g.
How to apply an Epi-Pen What is Diabetes Stroke Heart Infact CPR Epilepsy First Aid... It's not just mental health awareness and education, we need health awareness and education, and more of it. Why does it have to take somebody having an emergency for people to learn about the first aid after the emergency happened?
If you work anywhere! Or if you are active anywhere no matter where, initiate getting some first aid training for everyone. There is probably also some subsidies and funds, tax incentives etc for some companies and organisations who do this sort of stuff!
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the spiritfarer devs continue to refuse to add a flash toggle and claim their game is safe even after learning that their game caused at least one person to have a seizure. screenshots (alt text available):
link to their photosensitivity warning page where they claim the game is safe for photosensitive people:
the spiritfarer devs already have a history of ableism, so this really isn鈥檛 a huge surprise
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Having an at home eeg and they wrapped my head so tight aaaa
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when i go to a venue's website and see "you don't have to pay extra for accessible seating!" i am, in fact, not reassured at all but instead am actually full of disgust that that concept would exist at all
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#disabled#disability#disabilities#actually disabled#epilepsy#ehlers danlos syndrome#hypermobile ehlers danlos syndrome#hypermobile ehlers danlos#zebra#neurological disability#physical disabilities#physical disability#seizure disorder#seizures#actually epilepsy#actually epileptic#disability culture#cpunk#c punk#crip punk#cripple punk
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Split second flash warnings on videos just may as well be no warnings at all.
#actually epilepsy#actually epileptic#I saw one as soon as I opened tik tok and because I missed the warning I got bombarded with intense flashing that has my stomach in knots 馃檭
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couldnt find good epilepsy memes so yeah fine i'll do it myself
#LMFAOO NO BC THE LAST ONE IS MY EEG#epilepsy moments#actually epileptic#actually epilepsy#epilepsy#epileptic#memes#neurodiversesquad#actually neurodivergent#actually autistic#mine#tommie speaks#neurologicalhealth#neurology#neurological disability#neurological conditions
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People who don鈥檛 tag Spiderverse gifs containing flashing imagery/strobe effects make me want to commit several crimes tbh
#the first being to rip all the studio execs who think films need excessive strobe lights to be good to shreds#across the spiderverse#atsv#into the spider verse#itsv#spiderverse#actually epileptic#actually epilepsy#behold a creation
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so upset in so many ways from yesterday's appointment
they may as well have said "cope"
all these years, to wait again
im in bits tbh
#chronic life#chronic illness#chronically ill#chronic pain#chronic fatigue#spoonie problems#fibromyalgia#chronic migraine#multiple sclerosis#actually epilepsy
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